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Eureka! Coping strategies that work!

In the survey 25% of the ADHD people answered that they used training and coaching or coping skills, to help them  and about 40% used these techniques with their children. An ADD adult, Joyce Hartwick, who also is an Occupational Therapist has found a solution that is easy, inexpensive and worth trialling in a school environment.She says,

"How can I keep a constantly active mind focused on just one thing?


My response is, after many unsuccessful attempts,  I can't.  But maybe I can give that mind two things to do at once, and at the same time screen out the environmental noise and maybe add some positive self statements.

I developed Desk Partner Audio Tapes as a simple solution to a complex problem for adults and children with ADD and ADHD.  I dubbed new age music with positive "I statements" every minute and then provided students with a walkman and earphones and what I found was that the ADD/ADHD students could stay on task, complete more work, and loved the tapes.  The students could work 22 minutes straight and be allowed to stand and work at a manipulation station for 5-10 minutes then return to work. The teachers were happy, the students were happy, and I, as their occupational therapist, was pleased.  In 4-6 weeks the same ADD/ADHD students chose not to use the tapes and could focus without any assistance.  The skills became generalized.  I have decided it was important to share this with others, and the Desk Partner web site was born.
 
As an occupational therapist (with ADD) working in the school system in Maine, I desperately wanted to remove the ongoing negative attention ADD/ADHD children were receiving each time they were off task during independent work time in the classroom.  I can recall vividly the surprise I would feel when, as a child, I was, once again, being yelled at for doing something wrong.  For the life of me I couldn't ever explain the long list of good intentions that had brought me to where I currently stood. Often I was even surprised at my own surroundings.  The surprise would get my adrenaline running and the only response I could manage was to laugh.  Well this response was "always wrong", and I would once again stay after school or visit my principal.

ADD/ADHD kids and adults have negative dialogue coming at them ongoing throughout the day, "What are you doing?" "Why would you do that?" "Can't you just listen?" "Settle down now." "Don't you have any sense?" "I wanted orange juice not milk!" etc.  They become much worse, especially the "All you want is attention." response.  This is clearly NOT what an ADHD kid or
adult is looking for when they are wandering around off task, because usually when they get attention for this, it is not pleasant, and believe it or not it is often a surprise, thus the wide eyes and the smile. What a dilemma eh?

The positive self statements in  Desk Partner help to bridge the gap between self image and external negative input.  They allow us to give ourselves positive messages when we are focusing on task.  These verbal cues used in Desk Partner are very specific.  The tapes are designed to reinforce a persons positive behavior with positive cues.  Some kids have actually shed a few tears when they first hear 20 wonderful comments about themselves in 20 minutes.  They learn to say these positive statements to themselves.  One boy walked up to me in the hall of the school and said "Ms. Hartwick I can talk nice to 
myself now, it doesn't have to be you talking". 
The music provides a method to block out environmental noise.  Many, definitely not all, ADHD and ADD persons often do more than one thing at a time, it helps them to focus, keeps their mind busy enough ignoring one consistent input so they can focus on one of their choice.  Much like doodling or fidgeting when they are listening.  These kids cannot avoid looking at who is coming through the door, or not notice a pen falling to the ground.  Once off task, something new catches their attention.  They remember that they never picked up a paper in the return box, their coping strategy for everything is "I better
do it now or I won't remember" and off they go, maybe never making it to the return box, and certainly not returning to their chair.
So what does this information have to do with adult ADD/ADHD?  Well, while we have developed strategies and entered fields which are compatible with our ADD/ADHD (I hope) there are still times when it overwhelms us. Paperwork time in the office and bill paying is where I meet my ADD the most.  These are times when using the tapes can keep you focused and able to complete the task in the appropriate amount of time.  An added bonus is that people tend  not to want to interrupt you when you are wearing earphones.  If you have ADD or ADHD as an adult and you work in a seated work station, first let me state that I am in awe of your coping strategies, then let me suggest that these tapes may make your life much easier.
Also many ADD/ADHD adults have children with ADD/ADHD.  There is no doubt that the demands on children in school to sit and work independently is higher than the demand placed on adults who have chosen compatible jobs where they can move around throughout the day..

CLINICAL TRIALS

Clinical trials were performed to test if the tapes would be successful and accepted by children in the regular classroom, without OT intervention and structure.   Three classrooms of 3rd to 5th grade students participated in the study.  After the initial introduction of the tapes 87% of the students chose to use the tapes during individual study periods, 8% of the children
preferred to work without using the tapes, and 5% of the children did not enjoy using the tapes during their first trial use.
 
Teachers consistently reported that when a student used Desk Partner: 
Students focus on schoolwork increased. 
Student concentration increased. 
Students completed more work in less time. 
The tapes blocked out distracting noise. 
Students were able to determine their own need for using the tapes. 
The students stayed in their seats for the full duration of the tape. 
The program was easy to use and implement.
Past research has indicated that intermittent beeps work as well as verbal and/or music cues to increase on task performance.  In the clinical trials, where the children were allowed independent choices, a tape with cues only and no music was provided.  the students showed little interest in using the tape without music.

Testimonials from the clinical trials:

Students "accomplished more in a shorter period of time when using the tape."   3-5 grade multi-age classroom teacher
"I started by speaking to a small number of students that were working on unfinished work at recess (2 with attention deficit disorder).  They were a BIG hit - other students were envious.  I required the tapes for three students during quiet time (reading,  writing, some theme or math) and allowed other students to use the tapes as they felt the need.  They were in
high demand. As a class we listened to the tape just to lay curiosity to rest"  3-5 grade multi-age classroom teacher

"When the tapes were first introduced everyone wanted one.  I thought it was due to the 'newness' and 'coolness' of them.  After 3-4 weeks of use, many students continue to ask for them.  Unfortunately I don't have enough for all.  Even the most capable students requested tapes now and again, especially for writing times."  3-5 Multi-age classroom teacher

"I think that the tapes (Desk Partner tapes) are really awesome and I work really good during writing because that's the only time I usually use them and it helps me work hard and in my writing my story already has 5 pages counting both sides and they are relaxing and I can usually hardly hear any one else so all my ideas come to my mind and  I also think the tapes are soothing and are helpful to kids and I myself really like the gentle soothing music."  unsolicited comment from a student

"One boy I didn't think needed the tapes, cried and became uncooperative when he couldn't use them all the time. After I set up guidelines (for classroom use) he was OK and it seemed to help him complete work."   4th grade teacher

 In my 12 years as an occupational therapist working in the schools and with adults in head injury facilities,  this has been the most successful tool I have used to teach individuals to focus on an activity.  The most amazing benefit is that it appears to train focus skills.  People learn to ignore environmental distractions and stay on task without the tapes.

What better gift could you give yourself and/or your child?

The tapes are reasonably prices at $US12.00 each. (There are 3 volumes with different music). They can be purchased right from our web site by clicking here or you can call the toll free number (877)668-3277, or and send us a check or money order in snail mail."

Joyce Hartwick MS OTR/L
Desk Partner
455 Middle Rd.
Parsonsfield, ME   04047 USA
hartwick@psouth.net
www.deskpartner.net


Other coping skills that ADHD people and their families say are working are:

As an ADD ADHD adult
As an adult I am a high energy, overachieving person.  I have had a lot of success in my business because I have been fortunate to have positions  which require someone who can juggle multiple priorities.  With me, it is  natural.  But finishing the job requires making lists, checking the lists at least daily, sometimes more, and evenutally making the goal to mark the item
as complete.

being involved in a self help Psychology group, getting to know my emotions and behaviors that are ADD related .I am a single 54 yr old male who discovered he was ADD after much study and research, also discovered I am mildly depressed..This ezine is part of my research and education about my ADD 
 
I was put into a weekly group for one academic quarter at the request of Student Affairs at my university. It was through the disabilities office and they set everything up for me. The group was small, only 7 people, and the leader was the director of the Disability Support Services. The goal of the group was for us to learn more about ADD/ADHD and how to cope with it in the university setting. He taught us different ways to study and tried to find what worked best for each of us. We took tests that told what kind of learners we were (all of us pretty much the same) mostly for us to learn more about ourselves. The group was very helpful. We learned about our rights as people with disabilities and new ways of making it through school. It was also a chance for us as students to share with eachother what has worked for each of us, and whathasn't.
 
See if you can get diagnosed. For me (ADDer's will probably understand this), being diagnosed was a relief. I finally had a name for everything I had been going through and struggling with. I had something to work on/with. By understanding ADD, I have been able to improve many parts of my life. All because someone told me, "This is what you have...this is what it is....this is what you can do." If you can't get diagnosed, find out everything you can about ADD/ADHD and learn about it yourself. There are so many resources on the web. That's where I learned the most. From there, you will be able to discover new ways of doing things and support to help you out. You don't have to have the real diagnosis to help change the way you do things. I really believe it is mostly in your attitude....the Adderall does help me to sit down and concentrate on my studies, but it's my attitude that has helped me improve everything in my life. It's just understanding that you may have to do things differently than other people. Sometimes that means more work for the same results, but it feels good when you can finally do it! 
Just understanding ADD/ADHD has helped me the most. To know there's a reason I do things the way I do. It made me feel
better about everything. Also knowing there are so many people struggling through the same things just like me. It's always nice
to know you're not alone!

My background is in mental health and not much phases me - a good knowledge base is key to understanding and compassion-unfortunately I have no support  network other than myself and it is difficult to find resourses.

add can be  dealt with best with forgiveness and coaching/training how to  manage your life and papers!! Since it is often accompanied by depression,  have that properly diagnosed and managed first, then deal with the add just as one would diabetes or any other biochemical deficiency

The only thing I can say is everyone is different.  I am glad I found out.  It is like always on the verge of something and not knowing what and when it  is going to happen.  Always anticipating but not knowing why.  I am glad I found out and the med. is working for me but some may not, but you should find out for your own sake.  It does make life easier.

get a professional evaluation, learn as much as you can, be open to all ideas and forms of treatment

You may feel that you are the only one going through this but you're not. There are lots of people who are willing  to help. let them.
 

As a parent of an ADD ADHD child

get a diagnosis as soon as possible because there are many aids out there  for people with add.   I am a college student and get extra test time and  tutors through the disability office at school.

Get coping training first for the whole family then look at what deficiency the brain has and try to remedy it without drugs
 It's not fair being ADHD in a structured environment and since the environment can't change then help the child to cope
 
Seek professional diagnosis immediately, learn resources (such as your ezine) for coping strategies, network with others to share ideas, frustrations, determine all resources available through school, etc. Learning ways to "reach" my step-daughter (i.e. using non-traditional ways to help her learn, etc.). Recognizing that if we provide her with various tools, she can learn to control herself and focus. This helps us set appropriate goals for her  which she always rises to meet (in the past we have viewed her behavior as something over which she had very little control and therefore we had low standards/expectations for her). 
We're very excited to start modifying her diet and introducing food supplements as a means to help her without drugs. We believe these things may help her even more. 
Get a proper and professional evaluation-- a neuropsych test, even if you have to pay for it.  You need an independent test from the school's testing.  The school is going to look out for the school budget.  The doctor is looking out for your child. 
Get diagnosis as early as possible.  Learn all you can about this condition.  Make sure you get a good dialog going with your childs school professionals.  Don't assume they know more than you do about ADHD.  I guarantee you that they don't.  I've had many teachers tell me they wish they were more informed on the subject 
get support we at this time do not have any & are going to join CHADD

seek counselling, and don't be afraid to try the medicine, it may help, regardless of what others say. do what the doctor suggests

Reading information/booklets etc. Talking to people and giving the ADD individual, support and love.

internet books and learning for myself because every child is different

Read, research on the internet, get all the info. you can, and take charge of it yourself. Don't let the doctor make the decisions for you. Support and advice from caring people on the internet and information about multi-modal treatment, because Ritalin alone is not enough
spending quality time with the child and having patience 

because he is my son, and I love him for who he is, no matter what his disabilities. And I will always be there for him, and do  whatever I can to help him.Just have patience, and understanding, and love them no matter what. 

Accepting that it is not the childs fault and supporting them the best way that you can.  To not be closed minded about any suggested treatment. Each child is different and what works with one may not work with another.

My faith in God.  It has kept me sane and positive even when I felt like crying

special needs education at school which has brought him up to par academically

I've learned to quit asking "why?" and to ask "what can be done".I really do know what it's like to have adhd because I have add and it was never recognized until I found out my children have add with the h.  Also, the best advice I can give is to pray often, listen often, and just love the children they are god's gifts to all of us. Whatever disability it might be, they need our help and not put downs and finger pointing.Watch out for changes in routines, have a lot of patience and keep positive and praise the positives in the children.Prepare them for any transition time, and use relaxation techniques, visualization, and lots of feedback
having patience and learning that they don't behave this way because they want to.  That it is not their fault and it is something that we have to work on and treat together

look at the stress level in your environment, see if there are any things like aditory processing that interfere and"look" like ADD, rule out all LD problems and deal with them as you pursue increasing the self-esteem through sports or any thing the child is interested in and does well.Get education on the disability - and ruling out all the preiferal things that might "look" like
ADD
Finding the right people to work with my son and his many disabilities. The school has helped out alot. I don't plan my
evenings. I have learned to live minute by minute with AJ and my family. That is all we can do some days. It gets to be some times second by second.  Enjoy the days that are good. I have learned to embrace each and every good day and try to forget the bad ones because life has to go on and dwelling on the bad days just brings life to an almost stand still. Find something positive to do each day and find a positive part of the day even the bad ones so you can go on.
Sense of humor!! And tolerating this as a child  needs to be protected from the stigmas of labeling this seemingly malady du
jour.



Has all that given you heaps to think about! We are only a small way through the survey. Next ezine we'll have comments on the use of synthetic drugs,  the good and the bad, all from ADHD people who have taken or are taking them. We will have listed all the resources suggested as extremely useful, to ADHD people and the extra comments and ideas that have come forward to help everyone

Your  next ezine will be the Christmas edition and so you will have two in December and none in January! Yes, here in New Zealand we have a month of summer holidays coming up! We live in a beach resort and will be making full use of the sunny days, warm water and cold beer! So expect more soon, as we keep collating all the results from the wonderful people who took the time to fill in the survey.

Don't forget to check out those tapes Joyce has used with such great success, They both would be truly useful Christmas stocking fillers!
Kind regards
Tricia and Mike Legg
 

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