Vulvar Vestibulitis/Vulvodynia Study at John Hopkins University
Volunteers are needed to participate in a study concerning changes in pain perception. You do NOT need to live in the area to participate. Correspondance will take place via phone or mail.
Appropriate candidates will be between the ages of 18-45, menstruating, not pregnant and diagnosed with either vulvar vestibulitis or essential vulvodynia for at least six months.IF YOU ARE CURRENTLY ON BIRTH CONTROL MEDICATION, YOU ARE ESPECIALLY NEEDED.They are also looking for volunteers to be part of the control group which will consist of women who don't suffer from chronic vulvar pain.
Principle Investigator: Ursula Wesselmann, M.D., Assistant Professor, Department of Neurology
For more information, or to volunteer to participate, contact Chris Sanders at (410)614-5775 or send her an email.
GREAT NEWS FROM THE NIH!
Organizations:
Vulvar Pain Foundation
National Vulvodynia Association
Vulvar Pain Society (UK)
The International Pelvic Pain Society
Websites Dedicated to VV:
Vulvodynia and Vulvar Vestibulitis FAQ
Vulvodynia Bibliography - contains journal articles and abstracts
Information on how to join the Vulvar Pain Forum mailing list
Articles Regarding VV
Pain Relief Guide for Vulvodynia
Abstract: Do Women With VV Differ Psychologically....?"
Archived Discussion of VV
Chronic Vulvar Pain (Brief Article)
Vulvar Disorders: including VV and Lichen Sclerosis
Vulvodynia: Diagnosis and Treatment
Vulvodynia: Unraveling the Mysteries (A VERY thorough article)
University of Iowa explains Vulvar Vestibulitis
University of Iowa explains Vulvar/Vaginal Lichen Planus
Establishing the Diagnosis of VV (using EMG)
"Vulvodynia & Chronic Vulvar Pain" article by Mayo Clinic
Disorders of the Vulva
Genital Pain in Women Undertreated
Research Outlines Effective Dx. & Treatment of Puzzling Gynecological Disorder
Patients History Provides Clues in Vulvar Disease Diagnosis (from Dermatology Times)
Vulvar Pain Syndrome: You are not Alone
News story from Detroit News regarding lawsuit of physician who perfomed laser surgeries on women with VV
Painful Intercourse Due to Vulvar Vestibulitis
Archived Discussions, including VVS (scroll down to Topic #24)
My Vulvar Vestibulitis Story
Self Care, Products and Tips
100 Ways to Love Your Mate (Recommended Reading!)
VERY INCLUSIVE Guidelines for Vulvar Skin Care
Guide to Taking Care of Your Vulva - excellent self-care tips
Guide to Vulvar Self Exam. Includes good pic of vulva.
Glad Rags - makers of cotton pads
Astroglide personal lubricant
Guide to self-care.
Success Stories
Robin's Story!!
"A Woman's Guide to Overcoming Sexual Fear and Pain" by Aurelie Jones Goodwin, Ed.D & Marc E. Agronin, M.D A wonderful workbook for anyone who is troubled with sexual difficulties. This book does address Vulvodynia specifically. Click on book cover for purchasing information
"The Harvard Guide To Women's Health" by Karen J. Carlson, MD, Stephanie A. Eisenstatd, M.D., Terra Ziporyn, Ph.D. Another good resource for general information about Vulvodynia and Vulvar Vestibulitis. It is also a good resource for any other women's health issue. Click on book cover for purchasing information
"Sick and Tired of Feeling Sick and Tired: Living With Invisible Chronic Illness" by Paul J. Donoghue & Mary E. Siegel An extremely helpful book for anyone who is suffering from an "Invisible" Chronic Illness. Click on book cover for purchasing information
"Mind Your Body - A Sexual Health & Wellness Guide for Women" by Beth Howard A wonderful resource for many women's health issues. Does include information about vulvodynia and vulvar vestibulitis, but not extremely extensive. However, I would highly recommend this book to any female. Click on book cover for purchasing information
"Everything You Always Wanted to Ask Your Gynecologist" by Scott Thornton, MD & Kathleen Schramm, MD A great book that does a good job at addressing vulvodynia. This would be a great resource for women of all ages. Click on book cover for purchasing information
"Being Female" by Rita Baron-Faust This book is WONDERFUL. It's got great information on all sorts of women's health issues, and it's section on Vulvar Disorders is the best I've seen. It includes information about vulvodynia, vulvar vestibulitis, lichen sclerosis, etc. Click on book cover for purchasing information
