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Leif is now 12. He's very healthy, and continues growing like mad. He's now in senior elementary - officially a sixth grader. He loves acting, art, and - depending on the day - math. He goes no where without his ipod. His room includes a tie-dyed ceiling, peace signs, and a giant Buddha. Give him a set of Star Wars Galactic Heroes, and he's set for the day.
Overall, Leif is a typical 12 year old. He does have an IEP at school, with a classification of Other Health Impairment (OHI), Traumatic Brain Injury (TBI). He began speech when he was 4 years old, and continued to receive intensive speech therapy for speech-language delays until fifth grade. He gets intensive daily reading/language support. He had occupational therapy weekly until the middle of fifth grade. He has qualified for ESY - extended school year - continuously. He is making great progress, and actually has begun to read books to his younger cousin. He had a cardiolgy appointment in the fall of '05 that declared him "asymptomatic", and was impressed he's in the 65th percentile for height and 60th for weight. His check-ups since then have repeated the same findings. Amazing! Leif could care less - he has better things to do with his time. He continues to swim and bike and play all kinds of games. He loves hiking, and has participated in several 5ks with his aunt and grandparents.
(Updated October 2010)
Molly and Leif's Sites:
Leif's Surgeries
Not-so-Recent Fire (but too lazy to make a new link)
Helpful Sites about Leif's Heart:
Left Heart Matters: Comprehensive Basic Information on HLHS Site by mother/author about HLHS Little Hearts: Organization for CHDs
The Children's Health Information Network
Misc. Sites
Sometimes it's good to do good things for others.
Human Rights Campaign - now more important than ever!
Unitarian Universalists Assoc.
Play - do something for yourself
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This Hypoplastic Left Heart Syndrome Net Ring
site owned by Molly Greiner.
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