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Independent
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Medline Plus Medical Drug/Encycopedia/Dictionary
http://www.nlm.nih.gov/medlineplus/druginformation.html
Free Medical Dictionary Online:
http://www.online-medical-dictionary.org/
Free Medical Dictionaries Online:
http://www.online-dictionary.net/medical/
Free Gray's Anatony Online
http://education.yahoo.com/reference/gray/
Welcome to the Behcet's Chat Room.
To start Chatting select the Enter Chat Room Here button above.
NO complicated registrations, passwords or downloads required.
Just enter any name you wish to be known by. NOTICE: If
you get a message saying the chat name you entered is already in use, please
CANCEL and enter a different unique name. Do Not Enter a Password for
this chat room.
CHAT SCHEDULE
Barring unforeseen emergencies, there is a volunteer host in the chatroom on SATURDAYS starting at 9pm GMT (4pmEST). We hope to see you then!
CHAT HELP
For a Word document that visually explains how to
use the chat room, either select the following link or right-click to
download a Word document. How to Use
the Behcet Chat Room.doc
This chat room does require a Java enabled
browser.
Make sure you have your browser's Virtual Machine installed
and switched on. While in IE, select the Tools menu >>
Internet Options >> Advanced. Look for the item, JIT Compiler
for Virtual Machine Enabled. (check box and restart your machine). If you
have any java or browser questions, visit: http://www.parachat.com/faq/java.html
or http://www.parachat.com/help/
This Chat room is not associated with any one organization or group although several individuals and organizations have supported the creation of this website. I can not express the gratitude felt towards all the volunteers, all the support, and all the hard work that has been donated to this site. So many worked together to ensure that there was a Chat room available for all Behcet's Disease Patients (BDer's). It is wonderful to be part of a growing network of individuals and organizations that foster teamwork, support and above all kindness. Every attempt has been made to ensure that this site will provide a safe forum in which fellow BDer's can share information. We hope you will enjoy your visit here and that when you leave, you will not feel so alone.
Chat Room Volunteer Angel
Want to Volunteer? If you are interested in being a Chat Room Angel, please send us email. The duties of a Chat Room Angel are simple. You sit in the chat room on the day and time of your choice and wait for other chatters to join the room. You will be supplied with support information and all you have to do is enjoy meeting others dealing with Behcet's Disease. We notify all the Behcet's support groups that there is someone in the Chat room on your specified day and time. History has shown us that if no one sits in the room, people will not accumulate. They come in and immediately leave if no one is there. This service is always in need of a volunteer as Behcet's Disease is a world wide disorder that affects all nationalities and time zones. If you are interested in your own BD chat schedule, please email one or both of the individuals below: Site Owner or Deb Kleber
Still Having trouble or questions? Contact Us
NOTE: This chat room uses a Java chat. Make sure you have your
browser's Virtual Machine installed and switched on. While in IE, select
the Tools menu >> Internet Options >> Advanced. Look for
the item, JIT Compiler for Virtual Machine Enabled. (check box and restart your
machine). If you have any java or browser questions, visit: http://www.parachat.com/faq/java.html
or http://www.parachat.com/help/
Any problem or suggestion, please send email to: 
or Deb
Kleber
What is Behcet's Disease
The International Diagnostic Criteria
Behcet's Disease is a rare immune disorder that causes the inflammation of
small blood vessels anywhere in the body. The International Diagnostic
Criteria is listed below. It shows the impact this disease can have on an
individual. This disease may show up early with one or two symptoms.
In time, other symptoms by appear or disappear depending on what body
systems are being affected. The International Diagnostic is NOT intended
to determine an individual diagnosis, this criteria was established only to
define a homogenous group of patients for clinical trials. There is no
"accepted" test to determine if you have BD. This is also no known
cure. Because of the unpredictable and complex symptoms associated with
BD, researchers have been forced to narrow their clinical drug trials to one or
more symptoms associated with BD. The diagnostic criteria varies
depending on what symptom they are trying to treat. For example, the following
BD symptoms have been studied and each subgroup of symptoms have a diagnostic
criteria associated with it: Vasculo-Behcet's, Neuro-Behcet's, Occulo-Behcet's,
GI-Behcet's, etc. (Even thought the following diagnostic criteria is outdated,
it represents a wider diagnostic criteria) According to the Behcet's Syndrome
Research Committee of Japan (1972), the International Diagnostic Criteria for
Behcet's Disease is:
Major criteria:
Minor Criteria
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Behcet's Email Digest Websites
- ABDA Email Digest (Official accredited organization - membership fee required for email support)
- Behcet-Support (Yahoo monitored and free email support)
- Behcet's Family and Friend Support (Yahoo monitored and free email support)
- Behcets (Yahoo unmonitored and free email support)
Behcet's Support Websites
Free information and support about Behcet's
- Behcet's Israel Group (BIG)
- American Behcet's Disease Association (ABDA)
- Behcet's Syndrome Society (UK)
- NIAMS - Behcet's
- Supporters For Behcet's - Who is Who Photo Gallery
- Supporters For Behcet's - Art Sale Gallery
- Behcet's
Ontario -
- ISBD - International Society For Behcet's Disease
- Got Behcet's Store This is an online store where people dealing with Behcet's can purchase hats, shirts, etc.
- International Behçet's Conference: 20-23 Sept 2006, Lisbon
- Annual Walk for Behçet's Disease: 17 Sept 2005, New York
Behcet's Books
- BD By Nature - Tal Kinnersly This book supplies a holistic view of the underlying mechanisms and suggested therapies for anyone dealing with Behcet's disease. This author did an excellent job at pointing out common nutritional deficiencies which complicate BDers overall health. This book is available on-line in PDF format. The book cost $22, $20 for BIG members (membership is free and easy to have by all)
- Behcet's Disease Books and Resources Online Store A wonderful source of books about Behcet's disease. Joanne Zeis's last book, "Essential Guide to Behcet's Disease" is excellent.
- Behcet's Informational Website for patients & healthcare providers. Book, support and information site created by Joanne Zeis. Offers information to healthcare providers and patients.
- Got Behcet's Store This is actually an online store when people can purchase hats, shirts, etc.
- Category.org search on Behcet's Books Also offers
Pain Management
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Memory Complaints In Chronic Pain Article explains that chronic Pain
is a disease that causes its own symptoms. |
Fibromyalgia WebSites
Fibromyalgia Support Webpages
Fibromyalgia Email Support
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Lupus Websites
Lupus Support and Information Websites
Lupus Email Support GroupsLupus Books |
Multiple Sclerosis Websites
Arthritis Websites
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RA Support Websites RA Email Support Groups
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Chat Ethics
If you have any questions about BD chat room
policies or rules, please read our Behcet's Youth Chat Room
Guildlines or our Terms of Use and Disclaimer
below. Currently, we have official chat schedules each week. On these
nights, we try to discuss Behcet's Disease, welcome new patients, and offer
tips about other safe BD websites. We know that there are times
when people would like a less structured chat room for simple chatting with BD
friends. The room is always open so you can schedule your own semi-private
chat time with friends. Please just don't schedule separate
private chat events during the official chat times. Use the
room to make friends and discuss topics of interest whatever they may
be. All we ask is that everyone remember that BDers need
a kind environment. Pornography is not acceptable and we ask that
chatters not get confrontational in the chat room or force their views
regarding politics, religion, etc. on anyone although these are
acceptable topics for normal discussion. Just be the normal friendly BDer
type. 
HEALTH ISSUES: If you are prone to sleep
disorders, seizures, etc, it is acceptable to notify each Chat Angel privately
or publicly of any health issue which you feel may cause concern or even
frighten other chatters. This is a personal decision which only you can make.
You can tell other chatters what you would like them to do, what not to
do, or even who to contact in case of an emergency. Please remember that
this is an International chat room so it would be unlikely that anything could
be done to help any individual but your sharing may reduce the groups stress or
their feelings of helplessness.
Behcet's Youth Chat Guildlines
- No drug topics, except for medical chat.
- No gore-theme topics, except for medical symptoms.
- No foul language.
- No *sex* or *flirt* topics. BDYC is NOT a dating service.
Policy Regarding BDYC Illegal Activities:
(including, but not limited to, child-porn,
sedition, harassment, drug trafficking, excessive swearing, sex-themes, racist
comments, dating-themes) Any user engaging in, or encouraging, illegal
activity (i.e., activity that violates US Federal or State Law) will be removed
from the BDYC Room. In fact, if we have reason to believe that a user
tends toward or conduces to illegal activity we will take action which might
range from talking directly to, or conversely ignoring, the person in question
to evacuating everyone from the room to seeking legal
prosecution. To protect ParaChat from legal issues, we will also
notify them of any action taken.
BDYC Policy Regarding Harassment:
Harassment comes in many shapes and forms.
Within the BDYC room, harassment is defined as: any exchange (public or
private) to which ANY involved party does not consent. If someone is
asked to stop discussing objectionable subject matter and yet continues to
discuss it, it is no longer chatting; it has become harassment. Because
our chat participants can be from all walks of life, from all over the world,
with many varying points of view, what one person considers objectionable may
differ from what someone else considers objectionable. Problems arise
when a discussion changes from open minded to closed minded arguing, as often
takes place on discussions of politics and religion. These are very broad
based topics and often tend to excite very deep personal feelings.
BDYC Problems and Monitors:
BDYC Monitors have the power to ban participants
from the BDYC room. We expect that the Monitors will exercise that power when,
and only when, they have cause to believe that BDYC policies are being
violated. If you believe that a BDYC Monitor has abused her or his power,
please contact us. We will do our best to resolve any and all concerns as
fairly, quickly and privately as possible.
Policy regarding free speech within a BDYC
session:
BDYC has no quarrel with freedom of expression
and we support freedom of expression as it has been traditionally understood.
Freedom of expression has never meant that a person could use language however
she or he saw fit. Freedom of expression was defended on the grounds that
rational discourse paid off immensely with respect to education, politics, and
personal growth. However, language as a tool, can serve more than just this purpose.
Language can be used in many ways, including as a tool to hurt others.
The BDYC Session is intended for a younger audience and our goal
is to create a safe environment for all involved not to restrict free speech.
BDYC Future Policy:
We reserve the right to impose further
case-by-case restrictions for the BDYC. As such, a rule does not
specifically have to be written down here to be enforced.
Terms of Use and Disclaimer
- Disclaimer: The Independent Behcet's Chat room is not associated with any one individual, group or organization. All services have been volunteered by caring individuals and they are not liable for anything that happens in this room. The people that enter this room are either volunteers or individuals interested in chatting with other BDer. There may be people who volunteered to be a room moderator. They are here to welcome chatters and help people gather on chat nights. Everyone on this site, including the volunteers, are either dealing with Behcet's Disease or knows someone that is suffering from this disorder. This group is not an organization and therefore is not liable in any way for any of the content of this site. This site is not edited by a Medical Doctor, and is in no way a substitute for medical advice or treatment. The use of knowledge obtained through this site is at the users' own risk and responsibility, and should be in cooperation with a specialist physician. Any health or other problems that may evolve as a result of the use of this site or its content is by no means the responsibility of any of the individuals listed, story or displayed on this site. We have right to change any and all of the content of this site (including the terms of use) at any time without prior notice as we see fit.
- Privacy: This site agrees to respect its users' privacy, and will not share any personal information obtained through private mail with any other body without prior consent.
- Copyright 2002: All Rights Reserved. The content of this site belongs to this site alone (unless otherwise stated) and will not be copied or used for commercial purposes by any other party. However, it can be used for personal purposes, providing it is copied as a whole, with a written acknowledgement of the source. For publication on the internet, a prior consent is needed, as is an acknowledgement of the source with a link to this site. In case of doubt contact us.
- If you have a problem with any of the terms of use, contact us, or do not enter this site. By entering this site you fully accept all its terms of use.