The Major Pains:
* Neurogenic pain:
The most difficult pains to treat are those that result from damage to the peripheral nerves or to the central nervous system itself. Mentioned earlier in this brochure as examples of extraordinarily searing pain were trigeminal neuralgia and shingles, along with several drugs that can help in these conditions. In addition, trigeminal neuralgia sufferers can benefit from surgery to destroy the nerve cells that supply pain-sensation fibers to the face. An advantage to using a treatment called "thermocoagulation" -- which uses heat supplied by an electrical current to destroy nerve cells -- is that pain fibers are more sensitive to the treatment resulting in less destruction of other sensations (such as touch and temperature).
Sometimes specialists treating trigeminal neuralgia find that certain blood vessels in the brain lie near the group of nerve cells supplying sensory fibers to the face, exerting pressure that causes pain. The surgical insertion of a small sponge between the blood vessels and the nerve cells can relieve the pressure and eliminate pain.
Among other notoriously painful neurogenic disorders is pain from an amputated or paralyzed limb -- so called "phantom" pain -- that affects a significant number of amputees and paraplegia patients. Various combinations of antidepressants and weak narcotics like propoxyphene are sometimes effective. Surgery, too, is occasionally successful. Many experts now think that the electrical stimulating techniques hold the greatest promise for relieving these pains.
* Psychogenic pain:
Some cases of pain are not due to past disease or injury, nor is there any detectable sign of damage inside or outside the nervous system. Such pain may benefit from any of the psychological pain therapies listed earlier. It is also possible that some new methods used to diagnose pain may be useful. One method gaining in popularity is thermography, which measures the temperature of surface tissue as a reflection of blood flow. A colour-coded "thermogram" of a person with a headache or other painful condition often shows an altered blood supply to the painful area, appearing as a darker or lighter shade than the surrounding areas or the corresponding part on the other side of the body. Thus an abnormal thermogram in a patient who complains of pain in the absence of any other evidence may provide a valuable clue that can lead to a diagnosis and treatment.
Where to Go for Help:
People with chronic pain have usually seen a family doctor and several other specialists as well. Eventually they are referred to neurologists, orthopedists, or neurosurgeons. The patient/doctor relationship is extremely important in dealing with chronic pain. Both patients and family members should seek out knowledgeable specialists who neither dismiss nor indulge the patient, physicians who understand full well how pain has come to dominate the patient's life and the lives of everyone else in the family.Contrary to what many people think, pain patients are not malingerers or hypochondriacs. They are men and women of all ages, education, and social background, suffering a wide variety of painful conditions.
People with pain problems may feel isolated, helpless, or hopeless. But many of those who suffer with a pain problem can be helped if they -- and their families -- understand all the causes of pain, and the many and varied steps that can now be taken to undo what chronic pain has done. As a result of the strides neuroscience has made in tracking down pain in the brain -- and in the mind -- we can expect more and better treatments in the years to come. The days when patients were told "I'm sorry, but you'll have to learn to live with the pain" will be gone forever.
The following organizations are directly concerned with pain problems. They are excellent sources of additional information, research updates, and specific help and referrals:
American Chronic Pain Association, Inc.
P.O. Box 850
Rocklin, CA 95677
916-632-0922
American Council for Headache Education (ACHE)
875 Kings Highway, Suite 200
Woodbury, NJ 08096
609-384-8760
800-255-2243
National Chronic Pain Outreach Association, Inc.
P.O. Box 274
Millboro, VA 24460
540-997-5004
National Headache Foundation
428 W. St. James Place
Chicago, IL. 60614
773-388-6399
800-843-2256
The "Chronic Pain Letter" is a newsletter that offers information for both professionals and patients. For subscription information, write:
Robert J. Fabian Memorial Foundation Chronic Pain Letter
P.O. Box 1303
Old Chelsea Station
New York, NY 10011
In addition, many organizations concerned with specific diseases, such as arthritis or heart disease, provide information and advice about attendant pain problems.
Other
NINDS publications on conditions causing pain include:
Headache: Hope Through Research
Shingles: Hope Through Research
Fact Sheet: Reflex Sympathetic Dystrophy Syndrome
One-page information sheets on:
Central Pain Syndrome, Back Pain, and Trigeminal Neuralgia (tic douloureux)
For a free single copy of any of these publications, or for information on pain research supported by the Institute, write to:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Building 31, Room 8A06
Bethesda, MD 20892
301-496-5751
Additional information on pain research supported by the NIH may be obtained from:
Public Information and Reports Branch
National Institute of Dental and Craniofacial Research
National Institutes of Health
Building 31, Room 5B49
Bethesda, MD 20892
The National Institute of Neurological Disorders and Stroke of The National Institutes of Health. NIH Publication No. 98-2406. Chronic Pain: Hope Through Research. November 1989. Last revised, August 31, 1999. (Online)
National Institute of Health - Chronic Pain: Hope Through Research