Charcot Marie Tooth Disease
Charcot-Marie-Tooth
{C-M-T}
A Description of C-M-T
I have C-M-T 1 A
"How I AM"
(hope this helps you understand)
A Poem written about neuropathy
(mine is CMT)
by Janice De Vore-Robinson
"Just The Way I Am"
by Janice De Vore-Robinson
Doing time for no known crime Has been difficult for me It's hard to live with chronic pain That others cannot see
The thief that robbed my body Stole my strength and left me pain I do my very best to cope I struggle to stay sane
I miss our get-togethers I miss shopping at the mall It hurts me to be left behind It's not my choice at all
I long for how it used to be When I could join right in To do the fun and simple things With family and friends
You seldom call or visit You're tired of it, I guess Of always asking, "Come along" And never hearing, "Yes"
I ache to be with all of you I wish I could explain How doing 'normal' things in life Can cause me so much pain
I'm trapped inside this body With pain that has no end I grieve for all the things I've lost I'd like them back again
When I decline to join you Please try to understand It's not that I don't want to It's just the way I am
by Janice De Vore-Robinson
Jazzy Power Chairs
How Stella Got her Jazzy Back
C-M-T Association
C-M-T
International UK
MDA~Charcot-Marie-Tooth Disease (CMT)
(Also known as Hereditary Motor and Sensory Neuropathy (HMSN) or Peroneal Muscular Atrophy (PMA))
...A Guide to Related Materials on MDA's Web Site
Libby's C-M-T Hotline
Two lives of Sue Horder-Mason
Orthopedic Surgery Associates~Dr. James Holmes is my doc for 3 1/2 years one surgery, had Dr, Wild for 23 years 6 surgeries
And had 7 before finding them<
Neuropathy Information from MedPress
Yahoo Support Group
Google Search Engine-Search for more C-M-T if you want to look at more C-M-T sites, this Search is Engine is one of the best ones
GRAPHICS LINKS
Annie's Treasures
Lin Kay's~Handicap
   
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Updated last November 15, 2004
I WAS BORN IN A DINKIE TOWN IN MI AND I WAS A SLOW WALKER AN "STUMBLED OVER A GLAD OF GRASS" MY DAD {HAD IT TOO} ALWAYS SAID I HAD 14 SURGERIES FIRST ONE WAS A MUSCLE AND NERVE BIOPSY AND THEY DIDN'T EVEN HAVE TO PUT IT UNDER A MICROSCOPE TO SEE HOW BAD IT WAS, BETWEEN I WAS 13 IN 1970-1998 LAST ONE WAS A COMPOUND FRACTURED FEMUR TOOK OVER { IN "98"} TO HEAL BECAUSE OF THE C-M-T, JUST BROKE A TOE 2 MONTHS AGO AND MAY TAKE 6-8 MONTHS TO HEAL! I NEVER WAS ABLE TO WORK A FULL TIME JOB I DID STUFFING ENVELOPES, BABY SITTING AND A LITTLE CLEANING OF ONE OF THE SITTING JOBS APT. WORKED LUNCH ROOM SUPERVISOR IN A ELEMENTARY SCHOOL WITH MY SISTER FOR 4 YEARS THE WORKED AT A DAY CARE FOR 8 YEARS BEFORE GOING ON DISABILITY 8 YEARS AGO I HAVE HAD C-M-T {CHARCOT-MARIE-TOOTH} NO IT ISN'T COUNTY MUSIC TELEVISION OR NOTHING TO DO WITH MY TEETH THEY ARE THREE DOCS THAT FOUND IT IN THE EARLY 1800'S BETTER EXPLAINED HERE ON MY OTHER {ORIGINAL} C-M-T I HAVE RESTLESS LEG SYNDROME AND PERIOTIC LEG MOVEMENT. I USE CANE, WHEELED WALKER, ELECTRIC WHEEL {JAZZY} CHAIR DEPENDING ON GOOD DAYS BAD DAYS AND HOW FAR I AM GOING! WHICH ISN'T FAR NOW DAYS. WE PURCHASED OUR FIRST ITEM ON EBAY AND IT WAS MY WHEEL CHAR LIFT-ELEVATOR. DAH FOR US IT WAS IN CALIF AND WE ARE MICH. NEVER GAVE THE SHIPPING A THOUGHT UPS WANTED ALMOST $800.oo AND THE SWEET COUPLE WE BOUGHT IT FROM KNOCKED OFF SOME OF THE AUCTION PRICE TO HEL PAY FOR SHIPPING AND ARE STILL FRIENDS E-MAIL,. ANOTHER SHIPPING PLACE WAS HALF AND SOMEONE MENTIONED HAVE IT SHIPPED TO HUBBY'S WORK, SO IF FINALLY GOT HERE A YEAR AGO JULY AND I JUST HAD USED IT 3 TIMES LAST MONTH AS IT WASN'T ACCESSIBLE! JUST GOT MY PORCH LIFT FIXED BY MY WONDERFUL HUSBAND, THE PART WAS $240.oo AND HE WAS ABLE ME MAKE THE RELAY, AND GOT IT GO FOR GOOD, HE HAS MADE MY LIFT FOR OUR TRUCK, BUT IT ISN'T INSTALLED YET ! I DO THEM TO KEEP MY MIND OFF MY PAIN AND NUMBNESS! I ALSO HAVE RESTLESS LEG SYNDROME, AND PERIOTIC LEG MOVEMENT, ARTHUR BOTHERS ME TOO ARTHRITIS THAT IS! ! HUBBY AND I WERE A BLIND DATE, DATED FOR 5 YEARS AND HE WENT THROUGH 9 OF MY 14 SURGERIES AND STILL MARRIED ME KNOWING ABOUT MY DISEASE, BEFORE WE WERE MARRIED IN "78" NO CHILDREN, I WOULDN'T WANT MY WORSED ENEMY TO GO THROUGH THIS { HOPE I DON'T HAVE ANY ENEMIES } WE HAVE OR SHOULD SAY WE ARE DOWN TO 2 BIRDS AND ONE SCHNAUZER, ALL WERE RESCUED AS PPL GET BIRDS NOT REALIZING THEY ARE LOUD AND LIVE LONGER THE SOME PEOPLE . SEE THEM ON THIS AND THE NEXT 2 PAGES ! SEE OUR PETS WE ALSO HAD A HAHN MCCAW AND TWO PARAKEETS, ONE WAS ILL AND THE OTHER ONE BIT ME, HE HATED ME lol SO WE FOUND THEM ANOTHER GOOD HOME! WELL HOPE YOUR STILL AWAKE!!!!! RITA
Thanks Freemo Designs
for the beautiful Teak stained glass background set, sorry their page has disapearred and if you know where they have move I would apprecate you letting me know! here |
