Dedicated to the Memory of Eternity Aziza
This page is for parents who have lost a child due to poor prenatal diagnosis,
that resulted in the loss of life of the child either as a result of termination,
premature birth, a still born birth, or death shortly after delivery. We have
created this space as a place for parents to go to find support and information,
before, during, and after the decision making process. This page is also for
support of parents that are raising children with these diseases.
When we lost our daughter, Eternity Aziza, at 24 weeks pregnant to a severe
type of Skeletal Dyspasia, (Campomelic Dysplasia pending diagnosis) we had little support,
knew nothing of the disease, and were searching for answers to our
questions about the disorder. We wanted to know about the severity of what
we were dealing with, and get an idea of what quality
of life would be for her if she survived and what types of treatments
would be available for her condition.
It is our goal to help other parents through their time of grief,
by offering support and links to answers, and places that specialize
in the disease they are dealing with. You will also find
links to online support groups, many of which offer a way to
memorialize your child. We do not advocate any one decision. But
we hope that this compiled information gives you answers, support,
and information you can use as you go through the
decision making process and also for support there after.
We do this for the love of our precious Eternity Aziza.
Went to Heaven to be in God's arms on November 6, 1999.
Her name means "Everlasting Precious One".
* If you are wanting to add the story of your child to this page
e-mail me at jodiontop@excite.com
Eternity's Story
Heaven's Playground
Other Poetry About Loss
My Webrings
Mommy's Special Thoughts and Thankyou Page
Eternity's Page Awards
Other Loss Support Web Pages
The Crusade
Abiding Hearts Support Group
Christian Pregnancy Loss Support
Parents Place
Share Atlanta
Waiting With Love
The Compassionate Friends of Atlanta, GA
The Grey Area
A Heartbreaking Choice
Information Web Pages for Skeletal Dysplasia
International Skeletal Dysplasia Registry
Campomelic Dysplasia
Hypophosphatasia
Osteogenesis Imperfecta Foundation
Non Lethal Skeletal Dysplasia
Other Poor Prenatal Diagnosis Information Links
Edward's Syndrome- Trisomy 18
Down's Syndrome- Trisomy 21
Support for Trisomy 13, 14, 18
Patau Syndrome- Trisomy 13
Spina Bifida
Hydrocephalus
Anencephaly
Potter's Syndrome
Turner's Syndrome
S.I.D.S. & O.I.D.