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Hi , again friends from The TS Chat Room! These are my notes from the Educators' symposium at the D.C. 1998 TSA National conference. Remember that they are only MY NOTES and are intended to serve as a springboard for your research and or ideas on managing and explaining our children' TS and related problems in Learning and behaviour. I hope they will be of some use.

 

"You can give kids roots or you can give them wings"

NEXT to parents , the teacher is the most important person in a person's life!

 

CRITERIA for TS

Multiple motor tics-even MILD tics may be more Bothersome

Vocal tics

Waxing &Waning-changes with stress, excitement fatigue

Uncontrolable-Supressable

Childhood onset

 

(Important to give the child free use of leaving the room for tic ing)

 

THE most common Related disorders are OCD - ADHD and Learning disabilities

FOR OCD-give options of showing what the child knows

ADHD-ex. Remember that if a child has a deficiency in his vision, he doesn't JUST STOP NEEDING Glasses because he is in the 6th grade.....and that holds true for the tools for organization

LD's-Testing ...use neuropsychologist PT

Fine motor-visual impairment visual-motor

Sensory Defensiveness-PT

Behavioural Aspect- short fuse

KEEP A SENSE OF HUMOR

 

FIND ROOM FOR A COMPLIMENT TO THE PARENTS

 

BEHAVIOUR IS A "COMMUNICATION"

 

Motivational Assessment Scale Duand 88

Sensory-> Environmental/relaxation

Escape-> Curriculum/self-esteem

Attention-> Ignore/redirect (may be reenforcing by negative attention....)

Tangible-> Expressive language issue

Managing TS and TS+ is like a THREE legged STOOL

Leg #1) Strategies

Leg #2) Therapies

Leg #3) Medications a good balance is the determining factor.

STORMS

Prevention strategies... use adaptations, ex...homework handed in late..

AGRESSION- TS + behavours are like an iceberg...what is not seen CAUSES ......

Above water level

Pushing, Hitting,

Spitting, Throwing

Water level~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Below water level Poor Social Judgement

Unawareness of the feelings of others

Sensory MIS - Perceptions (irratable/senitive)

Frustration Communication Limitations

Does NOT UnDERSTAND HoW TO INTERACT

 

OBSESSIVE COMPULSIVE DISORDER OC BEHAVIOURS

Stuck ...... anxious........... perfect........just right......

EXECUTIVE FFUNCTIONING- THAT ....CLUE - LESS - NESS...

The chile perceives "I ALWAYS DO SOMETHING WRONG"...... .(Friends, from the TS CHAT Room..hello again. I just wanted to share another few bits of these "notes" from the conference with you...hoping they may shed some light on some of your "questions" . One of the things that I "realized" in the conference is just how much Executive Function dysfunction affects our TS kids and to a greater extent, our TS+ kids. I hope it is of some help.

BB aka Bonnie/Baby

EXECUTIVE FUNCTION DYSFUNCTION

"Executive functions are control processes. They involve inhibition and delay of responding . They can be divided into the realms of initiating, sustaining, inhibiting/stopping and shifting. Another important aspect of executive function is planning and organization, which requires "attention to the future"(Dr Martha Bridge Denkla)

HALLMARKS OF EXECUTIVE DYSFUNCTION

  1. Difficulty initiating (little or no intention)
  2. Problems with goal setting and looking to the future.
  3. Unable to inhibit (e.g. trouble with cause and effect)
  4. Poor planning, sequencing and organizational skills
  5. Failure to execute and persist
  6. Difficulty utilizing feedback from the environment (poor self monitoring)

Sheryl Pruit M.ed

Warren Walter Ph.D.

Initiating, sustaining, inhibitory/stopping and shifting

Sequencing and planning-Verbal pragmatics

Planning and organization which requires "attention to the future"

 

THIS IS ALL A FRONTAL LOBE DYSFUNCTION PROBLEM

 

Social Skills should be addressed by educators

Social disabilities are the least understood and often least often addressed through direct education.

IQ IS NOT RELATED TO THIS....

The HIDDEN CURRICULUM_ that others "GET"

 

Pragmatics-Language problems solving ex. Solving problems

Social Skills curriculum

Teach to ask questions....

Social Skills Autopsy

Comic Strip Conversation

Video Social Resposnes

Hidden Curriculum- Big point-things that aren't spoken (the kids don't understand)

Social stories-talk about and explain what is coming up next..........

Small social groups

Extra curricular activities- in common ....help with friendships...

Feeling words...teach and use them

 

 

 

EXECUTIVE FUNCTION- as pertains to Memory Functioning

 

Deficits Intact Systems

 

Strategic Memory-----------Trick Book------------Immediate Memory

Working Memory-------------------------------------Declarative Memory

Procedural Memory-----helped with lists----------Semantic Memory

 

See Brain-corollary discharge Theory

 

Mood disorders

UNIPOLAR-Depression Bipolar Disorder

Execessive laughter can be a presentation

Of mania-laughter that does not fit into

Normal context/or irritability

Theoretically depression makes TS worse/stress

Sensory Integration

Alert Program-Cognitive therapy=alert himself to the problem

Tactile /Auditory /Gustatory/ Visual/ Olfactory

Knowledge ---brushing program

Sleep disorders

Wake up at the same time---check with DR. When you can't sleep

Exposure to sunshine ---4 alarm clock system

Don't stay in bed/not sleeping --- Schedule am appointments

 

PSYCHODYNAMIC- Psychological

 

BEHAVIOURAL- Teaching

 

NEUROLOGICAL- Recognizing WE ARE HERE

 

Our theoretical basis

Proactive Behaviour Management

Adaptations- Minutes of the meeting for IEP

 

Strengths

Limitations

Adaptations

 

CLIMATE IN THE CLASSROOM

POSITIVE---HAPPY___CONTENT---ENVIRONMENT is CRICIAL

 

DO NOT TRY TO PROBLEM SOLVE in VIEW of SYMPTOMS of ONCOMING

STORM- Teach NON VERBALLY

Crisis

Silence Reassurance (We WILL get THROUGH this)and not ever

Staff anxiety-stay calm and gracefully exit- Judgemental)

A GRACEFUL EXIT IS A MUST.....A SAFE PLACE & A SAFE PERSON

PERMISSION TO GO DIRECTLY TO THAT PERSON

 

HIGH JUST RIGHT LOW

 

  1. Maintain consistent rules-visual
  2. State Positively-NEVER negatively
  3. Post on the wall- Do not EVER assume that it will be remembered

 

GRANDMAS' RULE

You don't have to eat your veggies, but I made cake , if you arent hungry/

NO CAKE!

You may go out after you clean up.....

 

More intervention rather than less-the sooner the better

 

"I am a wonderful teacher, I do a good job! Trust me...." After a Not appropriate behaviour- Talk and give strategies

 

1/3 of our TS kids are home again by age 30....we need to give them strategies

ts, ADHD Kids have 6 times more accidents....MISTAKE TO NOT MEDICATE ON

WEEKENDS!

Behaviour Modification

 

Time-out as positive Reenforcement

 

  1. One minute for every year you are old is enough
  2. Cue kid and reward - go by the individual
  3. Self time out is rewarded always use computer as reward..ex.

 

Not Punishment...Do not REMOVE too many times...IF YOU ARE HAVING TO REMOVE too many times , take a look at where it is happening......something is wrong...

Rewards---the child should chose something rewarding....

 

WAYS TO CON THE TEACHER...

Teach the clues of the "hidden curriculum"- Be specific with the child about what you want from the child

 

Use HUMOR as a Tension diffusor

DETECT Storm Warnings--ex. Lip out...etc.

Praise consistently

TRAINERS' GUIDE-with 2 Videos good too.

 

STRAGEGIES

  1. listening
  2. follow directons
  3. stay on task
  4. know how to get help

 

2.9% of population 1998 England Dr. Mary Robertson

1% to 3% Tourettes

25% of all children in Special ed. Have TIC disorders

1 in 200

 

Who OWNS the problem? Wxx(the first day of school dressing drama) ...is it worth the fight?

OUR OPINIONS AND PERCEPTIONS ARE AFFECTED BY OUR FEELINGS

 

NO PUBLIC HANGINGS

DO NOT Shame in Public

AGRESSION towards

Others

AGRESSION towards FRAME the issues

Self PICK YOUR BATTLES

Destructive Behaviour

Disruptive Behaviour

Distractive Behaviour

 

"I don't have time to build a fence, I'm too busy chasing the cows"

(It is always worth investing the time)

there are 3 kinds of people- Proactive

 

Cognitive Picture rehearsal

 

Fear rating

From NO PROBLEM -to I'm a little uneasy- to NO WAY....

Visual Cues -for ex. THINGS TO DO TODAY -sign or list.

Environmental

Group Schedule

 

Relaxation

Direct Teaching/Repetitive Practice

Deep Breathing

Muscle Relaxation

Imagery

Alert Program

Sensory Boxes

Foot and hand Massages

Relaxation Room /Lighting and Music

 

READY FIRE AIM OOPS ;(

 

OCD - Make sure the kid can go back and repair-Have them look at the face(not necessarily

The eyes)

Regular anger relaease- beat pillow--------and BENIGN Correction Proceedure

GOOD TEACHING STRATEGIES

 

LIMIT SURPRISES, MAINTAIN THE MOST CONSISTENT SCHEDULE POSSIBLE

CREATE PREDICTABLE ROUTINES IN YOUR CLASSROOM

REMEMBER THE GOAL OF A LESSON WHEN CONSIDERING ADAPTATIONS

USE VISUAL CUES TOENHANCE STUDENT UNDERSTANDING

USE SEMANTIC MAPPING- FOR MAKING OUTLINES

HIGHLIGHT RELEVANT INFORMATION WHEN TEACHING NEW CONTENT

HAVE A SYSTEM FOR INTRODUCING CHANGE

USE VISUAL TASK LISTS AND TECH LIST MAKING

NEVER EMBARRASS STUDENTS

TEACH ORGANIZATIONAL SKILLS

UTILIZE PEER MENTORING SYSTEM

MODEL TOLERANCE

MODE CONTROLLED BEHAVIOUR

GIVE MORE THAN 50% TO BUILD RELATIONSHIP

 

MODEL-Cleaning up

 

2 parts Praise

What we say to the child and what he in turn, says to himself........

 

Children often misbehave when they have difficulty with......

ORGANIZATIONAL SUGGESTIONS

Give choices - let the kids try and chose strategies

Long range assignments- Break up into segments

Focus on today- organize..for difficult focusing in ADD

PROVIDE THE CHILD THE TOOLS THEY NEED TO BE SUCCESSFUL

Delvope secret signals with the child.

Yack Back or recorder as assignment reminder

DO NOT EXPECT MORE THAN THEY CAN ACCOMPLISH.

INPUT from the child on problem solving and organization

WORK IN A COLLABORATIVE EFFORT- AVOIDS TEACHER CONFRONTATIONS