Let's talk about Menire's disease. Not the
particulars. There are plenty of more qualifed
people
and places to visit for that info. I am talking
about
living with it. What it means to suffer in silence,
and the fears, and frustrations that come with
it.
If you have this disease, you already know. If you
live with, or work around someone who does, you
might
not even know they are sick.
Many times you can
look at someone and tell that something is wrong.
Many times with Meniere's you can't. These people
may
feel fine one minute, and the next be extremely
ill.
That is how it was with me. Most people
didn't believe there was anything wrong with me. You
are not suppose to let, what other people say or
think bother you, but that is easier said than
done.
There is suffering in silence. Yet
that is only a relative term. If you have tinnitus,
there is no silence........ever. Tinnitus is
ringing in the ears. Mine is so loud that I have to
be surrounded by some noise, at all times. Have you
ever fell asleep with the TV on and woke up to a
loud
and annoying test pattern noise? What if you
couldn't
shut it off..........ever????? My tinnitus is not a
test pattern noise, but just as annoying.Please wait for a few minutes, if the tinnitus noise, doesn't load right away.
It is similar to what many people experience. If you do not have tinnitus, this may give you an idea. How would you like to hear that constantly? That in itself can be maddening!
The
inner
ear is such a delicate structure,(connected with the
brain) when it malfunctions, it can wreak havoc with
the whole body. Dizziness, lightheadedness, nausea,
violent vertigo, deafness, tinnitus, fatigue,
headaches, disequilibium, inability to concentrate,
are only some of the problems this can
cause.
These
problems may come and go at any type of interval. It
affects people in so many different ways. I would
not
try to guess at how much depression, anxiety, and
possible suicides, this may have caused.
This
sounds pretty pitiful. But the last thing most of us
want is pity! Just a little understanding of the
disease, and some patience. We still want very much
to lead productive lives. Staying as active as
possible is one of the best things for physical and
mental health.
So what is your point..you may be
asking? If someone you know is, bascally an honest
person, then believe them, when they tell you
something is wrong. For years, I had no idea, what
was wrong with me. I began to doubt my own sanity.
My
wife, a few friends and relatives, and of course Dr.
Thedinger, believed me. And like taking the road
less
traveled...it has made all the difference.
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Other Places
Back to the "inner" Voice of Meniere's Home
Meniere's Links Page
A Day in the Life of a Meniere's Patient
Greg's Meniere's Discussion Group
Discussion Group Archives from Dec 98 to present
05/28/01 update
