I just left my position at St. John's University in Queens end of May last year (1999). I have presented many workshops on CAPD in the Queens/Long Island area including for LISHA the professional association on Long Island
Well I'm glad your here I keep missing Thursday nights because my son's basketball games
debbie (ID=9) (Mar 14, 2000 9:42:41 AM)
kc..I am currently reading a book by Teri James Bellis entitled "Central Auditory Processing Disordera in the Edcuational Setting...From Science to Practice" the book is excellent!
Rose (ID=10) (Mar 14, 2000 9:43:38 AM)
Dr.J do you know of any places in the Phila. PA area that you would recommend me to take my son for CAPD testing?
dr.j (ID=7) (Mar 14, 2000 9:44:12 AM)
Anyway, KC, back to the FM system your original question. The FM system is nothing more than a wireless PA system (PA I hope is not an abbreviation for something other than the system of loudspeakers used in auditoriums....is it Debbie?)
Rose (ID=10) (Mar 14, 2000 9:44:37 AM)
Dr.J just the state
dr.j (ID=7) (Mar 14, 2000 9:46:32 AM)
An FM system is a wireless PA system with one special feature, the microphone used in directional so it ONLY picks up the speaker's voice (usually the teacher) twice as loud as the background noise or speech. Thus, the teacher's voice is made louder and is directed to the loudspeaker in the sound field (speaker) system, or it is directed to the earphones worn by the child, or, for deaf and Hard of hearing children, may be directed into their hearing aids.
Rose (ID=10) (Mar 14, 2000 9:47:26 AM)
Besides using an FM system how is CAPD treated?
Rose (ID=10) (Mar 14, 2000 9:48:51 AM)
Also is CAPD a lifelong problem or is it something that someone eventually is able to compensate for or adjust to?
kc (ID=8) (Mar 14, 2000 9:50:00 AM)
Rose, you sound like a new-comer also. We have many of the same thoughts. I was told he will always have CAPD, but will compensate for the weaknesses by using his other strengths.
debbie (ID=9) (Mar 14, 2000 9:50:26 AM)
Rose in the case of my daughter,,, I feel as if there will always be areas in which she will struggle..but I have seen the effects of remeadiation lessen that struggle and she is learning "coping mechanisms" (hate that term) that are helping her on a daily basis
kc (ID=8) (Mar 14, 2000 9:50:57 AM)
Rose, how old is your child. I was told CAPD can be tested as young as 5 or 6.
dr.j (ID=7) (Mar 14, 2000 9:51:37 AM)
Rose, an FM system is NOT a treatment for CAPD.
Rose (ID=10) (Mar 14, 2000 9:51:43 AM)
Yes I am a new-comer, I was here once before. My son's current diagnosis is ADHD along with other learning disabilities. The medication for ADHD doesn't seem to be working and based on his other problems I suspect CAPD.
Rose (ID=10) (Mar 14, 2000 9:52:32 AM)
I didn't mean for it to sound that way, I just know the FM system helps people with CAPD. I was wondering what else is done?
Rose (ID=10) (Mar 14, 2000 9:54:15 AM)
My son is almost 8 and I'm not sure where to take him to be tested. I know my insurance doesn't cover CAPD and am trying to locate a place to get him tested so I can find out the cost.
kc (ID=8) (Mar 14, 2000 9:54:55 AM)
Rose - I approached my pediatrician two years ago with my son's problem and they told me it was ADD. He may have it, but three medications I tried as well as behavior modifications, valerian root, etc. have not improved his performance. I took him to a neurologist and explained all the symptoms of CAPD and was told to increase his medication! I finally found CAPD on the internet and asked my school to test him for it. They did. I also went through my insurance to get a second opinion.
dr.j (ID=7) (Mar 14, 2000 9:54:57 AM)
Rose, there are MANY ways that children and adults with auditory processing problems can be helped. The first and most important step is finding the right, bottom line, area or category or level of processing (as I call it) that is interfering with normal processing of information received through the auditory system.
debbie (ID=9) (Mar 14, 2000 9:56:20 AM)
Rose my insurance does not cover CAPD either...but they did cover "other than normal audiological processes" which is what the evaluation was for.. (that was the treatment code used)
dr.j (ID=7) (Mar 14, 2000 9:57:34 AM)
KC, When you say the medication, etc. HAVE NOT IMPROVED HIS PERFORMANCE....what do you mean by improved his performance?
kc (ID=8) (Mar 14, 2000 9:57:53 AM)
Rose - arm yourself with the specific tests that a CAPD specialist does in your area and insist that your pediatrician write a referral for you. Chances are the pediatrician will comply because they don't know enough about CAPD to challenge you. You should be covered with a referral for diagnostic work.
Rose (ID=10) (Mar 14, 2000 9:58:28 AM)
Our school doesn't test for CAPD so I have to find outside testing facility to have it done. I think my son received an ADHD diagnosis because I have another child who is ADHD. There is a great difference between the two children ( which I know is possible with ADHD) , but my older son did respond to medication and my younger son has not.
Rose (ID=10) (Mar 14, 2000 10:00:11 AM)
Both children had speach and language difficulties, but I noticed my younger son is mispronouncing words not because he can't say them correctly, but because that is what he thinks they sound like.
Rose (ID=10) (Mar 14, 2000 10:01:09 AM)
This is interfering with his ability to read and write, he cannot sound out works properly since he hears the wrong sounds.
kc (ID=8) (Mar 14, 2000 10:01:19 AM)
Dr. J. He is still unable to focus on things that he does not find interesting. He has the attention of a four year old. If you ask him to go down stairs and bring up the pickles from the refrigerator, he can't remember by the time he goes down the stairs. He might not come back up at all, or he will show up with juice. I love him to death, but unless I speak to him on a very basic level - much lower than his 8 year old peers, he cannot follow directions.
debbie (ID=9) (Mar 14, 2000 10:02:16 AM)
Dr J correct me if I'm wrong......but here I go.....Rose....because there are so few people familiar with CAPD, children are commonly misdiagnosed with ADD....one of the reasons for that is that when a child with capd get's frustrated or overwhelmed it is human nature to do everything you can do to remove yourself from the situation..whether that be getting a drink..sharpening a pencil..going to the bathroom..talking..etc......to anyone not familiar with capd these appear as traits of ADD or ADHD.....but you have to understan the underlying reason for the behavior..once you do you can see why the child is behaving a certain way!!
Rose (ID=10) (Mar 14, 2000 10:03:21 AM)
there are times when my son doesn't respond at all when spoken to and he complains of not being able to hear others at times, yet he passes normal hearing tests with no problem.
dr.j (ID=7) (Mar 14, 2000 10:04:13 AM)
KC, Focusing problems have nothing to do with CAPD. Also, if the problem is difficulties focusing on things he does not find interesting, then, he has not problems focusing, but he has a problem with motivation. That is, school and life require us to focus on boring things. If he can focus if the reward or consequence of NOT focusing is meaningful, but knowing and accepting the consequence, he still CAN'T FOCUS, it IS more likely that he has an attention deficit than a motivational problem or CAPD>
dr.j (ID=7) (Mar 14, 2000 10:05:43 AM)
Debbie, you are absolutely correct. Rose, and KC, I guess that is what I was trying to say and trying to get at. The goal of the specialist is to help find the underlying reasons for the behavior. To make it clearer....I'll send it in a different post....
kc (ID=8) (Mar 14, 2000 10:05:44 AM)
Rose, your son sounds like mine. He is a visual learner, if you want him to do something, I have to practicaly do sign language with gestures with my arms. He cannot process what you present to him auditorally - he asks you to repeat it over and over again and still does not get it. Sometimes I write it down on a 3 X 5 card and hand it to him. He thinks its fun, but it is visual and it works.
Rose (ID=10) (Mar 14, 2000 10:06:16 AM)
I've compained to the school since kindergarden about his speech problems and asked that they test him for speech, each time they say although he has some noted problems that he is ineligible for speech based on their guidelines.
dr.j (ID=7) (Mar 14, 2000 10:07:34 AM)
If the child can't focus, is distracted, won't listen, etc. there are many reasons why. One reason, the child can't control the inner impulses to react or respond before the appropriate time. The child can't inhibit certain inappropriate behaviors. In very young children we call this normal, in slightly older children we call this immaturity, but, when the same impulse control problems occur dispite the following (see next post to make it easier to read)
debbie (ID=9) (Mar 14, 2000 10:07:40 AM)
Rose the key to working with the school is not saying you want speech...but in saying you want your son to receieve speech services due to the dx of capd..and showing how the two are related and how the speech (langauage) therapy would benefit him academically
Rose (ID=10) (Mar 14, 2000 10:08:41 AM)
I find that I have to simplify what I say or reword things before he comprehends what I am saying. this is often a problem in school because he hears the words but doesn't understand . No one takes the time in school to try to make certain he comprehends directions etc.
debbie (ID=9) (Mar 14, 2000 10:09:24 AM)
basically not only do you have to say you want the service..you have show the need for the service and the benefit of the service..if you do this and make a convincing arguement you are more likely to obtain the service.
Rose (ID=10) (Mar 14, 2000 10:09:48 AM)
Debbie it sounds great, but until I actually get an official diagnosis of CAPD, I don't have anything to back up my concerns.
dr.j (ID=7) (Mar 14, 2000 10:10:09 AM)
Child is impulsive even if an adult has told the child the consequences of the actions and the child knows and understands the consequences and the consequences have a strong meaning to the child. IF the child STILL can't focus, control impulses, etc. It is most likely a physical or neurological reason for not being able to control the impulses. This is most likely ADD or ADHD and the need to change the INSIDES of the child may be warranted (medication is the usual tx), but you also have to change the child's behaviors and the behaviors of the people around the child.
Rose (ID=10) (Mar 14, 2000 10:11:14 AM)
Dr.J in case you missed my earlier question, I was wondering if you could recommend a place to obtain testing for my son in the Philadelphia area?
debbie (ID=9) (Mar 14, 2000 10:12:34 AM)
Rose if you go back and look at the archives of the chats..i believe there were some parents from PA in the chat who gave some numbers to clinics that you may try
kc (ID=8) (Mar 14, 2000 10:12:44 AM)
Dr. J. Perhaps my son has ADD - I don't doubt it at all. But I feel the heart of his academic problems is CAPD as evidenced by his handwriting, reading and spelling skills and the two CAPD tests. I reward and motivate my son constantly, as well as positive reinforcement. He can focus on math beautifully, and thrives on doing science and history homework, but he can't read despite all the resources we've tried.
Rose (ID=10) (Mar 14, 2000 10:13:09 AM)
My son is not hyperactive in school, only at home or other areas. I beleive this is because of the behaviors he is subjected to, like I said my oldest son has severe ADHD and we still have behavioral issues at home.
dr.j (ID=7) (Mar 14, 2000 10:13:23 AM)
Now, if the child CAN control impulses, but still has problems following through but can do better if (a) the same exact verbal information and task is required to be done in quiet rather than noise, (b) the speaker talks slower, (c) the language is simplified.....if the child can do the task under these conditions but not in the noise, the rapid, normal speed of speaking, and the normal language used or new concepts or vocabulary used, the child may have an auditory and /or language processing problem.....but, if the child's problem is understanding the non-verbal cues, seeing things from another person's perspective, unable to have things changed....the child may have what is now called a non-verbal learning disability. There are many reasons for not learning and having difficulties in school.
Rose (ID=10) (Mar 14, 2000 10:13:44 AM)
Thank you debbie I appreciate the advise, I will check it out later on.
dr.j (ID=7) (Mar 14, 2000 10:15:07 AM)
Rose, I don't know exactly where she is located, but I know it's the Philadelphia area, but Maxine Young is a dually certified SLP and Audiologist very well known in CAPD in that area. I don't know her address or phone number , but if you contact the American Speech-Langauge-Hearing Association (ASHA at www.asha.org) search for Maxine Young, you should get her contact information.
debbie (ID=9) (Mar 14, 2000 10:15:27 AM)
Rose I can also put out a message Thursday night asking for information for you...check back with me..=)
Rose (ID=10) (Mar 14, 2000 10:16:09 AM)
My son was diagnosed by the school as having a language processing problem already.
Rose (ID=10) (Mar 14, 2000 10:17:36 AM)
thank you Dr.J it always help to know the person you take you child to is knowledgable in the area and comes recommended. I will get her phone # and address.
kc (ID=8) (Mar 14, 2000 10:18:03 AM)
Thanks Debbie, Rose, and Dr. j. for all of your information. I have alot to think about and a great deal of archives to research. Talk to you soon.
dr.j (ID=7) (Mar 14, 2000 10:19:21 AM)
KC, please understand, I agree with you. YOur son MAY have ADD or ADHD, and for many kids the medication works and for others it doesn't. But, the medication for ADD/ADHD is NOT the cure for the behaviors and learning problems. If a child can not attend, and has lost information because of poor attention. If a child has missed all the foundations of learning becasue of attentional problems, then, later academic and educational performance will suffer. The problem underlying would be ADD or ADHD, but medication can not and will not or can never (IMHO) make up for the lost time and lost foundation. The role of the school would have to be to identify him as whatever, even if it's ADHD, and provide the resources for building the foundation NOT for trying to have him keep up in class as is often the case with resource help. The foundations may be lost or never developed, so develop them as soon as possible. But, it is not important if he does or does not have CAPD, it is important to identify the underlyi
Rose (ID=10) (Mar 14, 2000 10:20:15 AM)
thank you Debbie, I just want to be sure I take him to somewhere that I feel will be able to asses him for CAPD and either give a definate diagnosis or rule out CAPD. Either way I would like an answer I feel secure with.
Rose (ID=10) (Mar 14, 2000 10:20:56 AM)
sorry about the typo
dr.j (ID=7) (Mar 14, 2000 10:22:17 AM)
I didn't see the time. I have a meeting I have to get to at 10:30. I've got to go. See you next Tuesday morning for the regular scheduled chat. We will continue our discussion of Models or Approaches professionals take to CAPD. Got to run, bye.
Rose (ID=10) (Mar 14, 2000 10:22:44 AM)
Dr.J you are accurate in your explaination. I tried therapy for my oldest son and didn't get results( I was avoiding medication), medication calmed him down but didn't change the behaviors. Only a combination of the two actually worked.
Rose (ID=10) (Mar 14, 2000 10:23:01 AM)
Oh well I was to slow to respond
debbie (ID=9) (Mar 14, 2000 10:23:25 AM)
Rose.... I've got to scoot too..time has gone quickly this morning
Rose (ID=10) (Mar 14, 2000 10:24:18 AM)
that is okay I have enough information to keep me busy for awhile, I need to look where you and Dr. J suggested. Have a good day.
Chris S (ID=11) (Mar 14, 2000 7:08:48 PM)
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