Joan L (ID=29) (Apr 25, 2000 9:26:28 AM)
(This user has entered CAPD: From the Heart)
Jennie (ID=30) (Apr 25, 2000 11:21:36 AM)
(This user has entered CAPD: From the Heart)
debbie (ID=31) (Apr 25, 2000 1:50:26 PM)
(This user has entered CAPD: From the Heart)
Jacquie (ID=32) (Apr 25, 2000 8:51:11 PM)
(This user has entered CAPD: From the Heart)
Jacquie (ID=34) (Apr 25, 2000 8:55:03 PM)
(This user has entered CAPD: From the Heart)
woody (ID=33) (Apr 25, 2000 8:55:09 PM)
(This user has entered CAPD: From the Heart)
Tammy (ID=35) (Apr 25, 2000 8:55:24 PM)
(This user has entered CAPD: From the Heart)
Jacquie (ID=34) (Apr 25, 2000 8:55:26 PM)
Hi Woody
woody (ID=33) (Apr 25, 2000 8:55:55 PM)
hi jacquie
Jacquie (ID=34) (Apr 25, 2000 8:56:05 PM)
So what is the topic for tonight?
Tammy (ID=35) (Apr 25, 2000 8:56:11 PM)
Hi Woody..Hi Jacquie..
woody (ID=33) (Apr 25, 2000 8:56:19 PM)
hi TAMMY
woody (ID=33) (Apr 25, 2000 8:56:44 PM)
I DON'Y KNOW SHE DIDN'T TELL ME
Jacquie (ID=34) (Apr 25, 2000 8:56:57 PM)
You are just supposed to keep us in line?
woody (ID=33) (Apr 25, 2000 8:57:25 PM)
WELL I'LL TRY
Jacquie (ID=34) (Apr 25, 2000 8:57:47 PM)
O.K.
Tammy (ID=35) (Apr 25, 2000 8:57:56 PM)
according to the email msg i received, it's just an open chat...vent, discuss, whatever...
Jacquie (ID=34) (Apr 25, 2000 8:58:13 PM)
Do you find your child's capd causes stress between you and your spouse?
woody (ID=33) (Apr 25, 2000 8:58:43 PM)
JUST DON'T US ANY BAD WORD THEN THINGS WILL BE FINE
Jacquie (ID=34) (Apr 25, 2000 8:58:54 PM)
O.K. no bad words
woody (ID=33) (Apr 25, 2000 8:59:05 PM)
NO
Jacquie (ID=34) (Apr 25, 2000 8:59:26 PM)
Woody, is that your answer, or your wifes?
Tammy (ID=35) (Apr 25, 2000 8:59:46 PM)
all the time...he says I'm babying CJ and letting him get away with too much...but he is really hard on CJ...he doesn't seem to expect as much out of our five year old.
Tammy (ID=35) (Apr 25, 2000 9:00:40 PM)
woody, how do you handle sarah's capd?
Jacquie (ID=34) (Apr 25, 2000 9:00:47 PM)
We have often had differences about the best way to handle our sons LD
woody (ID=33) (Apr 25, 2000 9:00:49 PM)
THE STRESS IS WHEN I DON'T HAVE THE SLIGHTES IDEA WHAT SHE IS TALKING ABOUT AT FIRST,
ry (ID=36) (Apr 25, 2000 9:00:56 PM)
(This user has entered CAPD: From the Heart)
Tammy (ID=35) (Apr 25, 2000 9:01:02 PM)
hi ry
Jacquie (ID=34) (Apr 25, 2000 9:01:04 PM)
Hi ry
woody (ID=33) (Apr 25, 2000 9:01:10 PM)
WELCOME RY
Jacquie (ID=34) (Apr 25, 2000 9:01:37 PM)
Woody, is it becuase she doesn't explain, or because you weren't aware of a new problem?
woody (ID=33) (Apr 25, 2000 9:02:18 PM)
the wait i handle Sarah is to ask debbie what is happening, but mostly i try to help ker as much as possible
Jacquie (ID=34) (Apr 25, 2000 9:02:30 PM)
My husband says he counts on me to keep tabs on what is happening with our son
woody (ID=33) (Apr 25, 2000 9:02:49 PM)
it was this was new to us
Jacquie (ID=34) (Apr 25, 2000 9:03:06 PM)
Tammy and ry, what about you?
ry (ID=36) (Apr 25, 2000 9:03:31 PM)
not sure what the question is, can you explain
Tammy (ID=35) (Apr 25, 2000 9:03:31 PM)
i try to explain to clif what's going on with CJ...what i've found and read on the internet...sometimes he acts like he's interested and sometimes he acts like he ignores me..i think he's just so overwhelmed...he usually leaves it all up to me.
ry (ID=36) (Apr 25, 2000 9:03:57 PM)
how old is he?
Jacquie (ID=34) (Apr 25, 2000 9:04:07 PM)
ry, we are talking about stress between spouses re: child's capd
Tammy (ID=35) (Apr 25, 2000 9:04:33 PM)
i should probably qualify that last statement...it's not that clif doesn't care...he just doesn't know what to do.
woody (ID=33) (Apr 25, 2000 9:04:33 PM)
debbie has done all the work on finding out what was happening, fighting the school boards, meeting with the teachers. but i try to support her as much as possible, learning what i can, like helping her with the chat room
ry (ID=36) (Apr 25, 2000 9:04:45 PM)
sorry, I now understand (OOPS)
Jacquie (ID=34) (Apr 25, 2000 9:04:53 PM)
sometimes I can't really explain to my husband. I just kind of "know" something is wrong.
Jacquie (ID=34) (Apr 25, 2000 9:05:28 PM)
I wish I also "knew" the solutions
woody (ID=33) (Apr 25, 2000 9:06:05 PM)
when you know something is wrong that is when you need to show how you know that something is wrong
Tammy (ID=35) (Apr 25, 2000 9:06:16 PM)
the problem is I don't know what the "solution" is---I REALLY WISH I DID!!!
Jacquie (ID=34) (Apr 25, 2000 9:06:27 PM)
yup
Tammy (ID=35) (Apr 25, 2000 9:06:40 PM)
but how do you explain a gut feeling...
Jacquie (ID=34) (Apr 25, 2000 9:06:50 PM)
sometimes I just ask my husband to trust me that things are wrong
woody (ID=33) (Apr 25, 2000 9:07:14 PM)
the solution is to talk to people on how they handle things
Jacquie (ID=34) (Apr 25, 2000 9:07:42 PM)
It seems as if there aren't very many people who are in the same situation
ry (ID=36) (Apr 25, 2000 9:08:00 PM)
there must be
Jacquie (ID=34) (Apr 25, 2000 9:08:04 PM)
but,,,,now I have found this chat board and mail list, so that helps
Jacquie (ID=34) (Apr 25, 2000 9:08:18 PM)
ry, do you have a child with capd
Tammy (ID=35) (Apr 25, 2000 9:08:22 PM)
i used to feel that way too....until i found this site...now i know there are others out there who are suffering too.
ry (ID=36) (Apr 25, 2000 9:08:34 PM)
your doing a great job. Don't be so hard on yourself
Jacquie (ID=34) (Apr 25, 2000 9:08:45 PM)
thanks ry
ry (ID=36) (Apr 25, 2000 9:08:55 PM)
yes, a 6 yr old girl
Jacquie (ID=34) (Apr 25, 2000 9:09:03 PM)
when was she diagnosed
ry (ID=36) (Apr 25, 2000 9:09:18 PM)
this month
woody (ID=33) (Apr 25, 2000 9:09:18 PM)
there are lot more than you think, they just don't know it and don't want to admitt to it.
Tammy (ID=35) (Apr 25, 2000 9:09:27 PM)
it's hard not to be hard on yourself when it takes so long to get a diagnosis and then no one, including our pediatrician, has ever heard of the problem.
Jacquie (ID=34) (Apr 25, 2000 9:09:43 PM)
tammy, WOW do I agree with that
ry (ID=36) (Apr 25, 2000 9:09:50 PM)
i know what you mean
Jacquie (ID=34) (Apr 25, 2000 9:10:05 PM)
I have almost decided that the more I know, the less I know
Tammy (ID=35) (Apr 25, 2000 9:10:13 PM)
i keep thinking that if only i had insisted on something sooner maybe he wouldn't be so far behind now.
Jacquie (ID=34) (Apr 25, 2000 9:10:24 PM)
Tammy, how old is he
woody (ID=33) (Apr 25, 2000 9:11:08 PM)
thats when you start getting all the information that you can
Tammy (ID=35) (Apr 25, 2000 9:11:22 PM)
CJ is seven, he'll be eight in october. he was diagnosed in January 2000 but I "knew" something was wrong with his "hearing" since he was about 18 months old.
Jacquie (ID=34) (Apr 25, 2000 9:11:46 PM)
Tammy, they don't diagnose capd until about 7
Jacquie (ID=34) (Apr 25, 2000 9:11:58 PM)
so there wasn't much you COULD do.
woody (ID=33) (Apr 25, 2000 9:12:38 PM)
take it to all your meeting, so when they don't know what you are talking about, you can give them the info
woody (ID=33) (Apr 25, 2000 9:13:10 PM)
sarah was diagnose when she was 5 years old
Jacquie (ID=34) (Apr 25, 2000 9:13:35 PM)
I recently found out something interesting re: my son's capd
Tammy (ID=35) (Apr 25, 2000 9:13:51 PM)
i've got the package all ready...labeled, outlined, with every dr's report and some reference material too...now i'm just waiting on the school to set up a meeting.
Tammy (ID=35) (Apr 25, 2000 9:14:02 PM)
what did you find out?
Jacquie (ID=34) (Apr 25, 2000 9:14:20 PM)
I used to "trust" the experts, but..
Jacquie (ID=34) (Apr 25, 2000 9:14:35 PM)
now I realize I should have listened more to my son.
Tammy (ID=35) (Apr 25, 2000 9:14:44 PM)
what do you mean?
Jacquie (ID=34) (Apr 25, 2000 9:14:52 PM)
He used to say "my stomach hurts when I read"
Jacquie (ID=34) (Apr 25, 2000 9:15:01 PM)
I thought he was trying to get out of school
Tammy (ID=35) (Apr 25, 2000 9:15:22 PM)
stress...with CJ it's his head or he has a stomach ache.
woody (ID=33) (Apr 25, 2000 9:15:24 PM)
if wait fir the school they will hope you will go away, so you need to call every week to remind them you are waiting for your meeting
Jacquie (ID=34) (Apr 25, 2000 9:15:41 PM)
but now I found out that reading caused a chemical reaction in his body that really does make him sick.
Jacquie (ID=34) (Apr 25, 2000 9:16:23 PM)
We will get back to that later, but how long have you been waiting for the meeting.
woody (ID=33) (Apr 25, 2000 9:16:28 PM)
how is that possible???
Tammy (ID=35) (Apr 25, 2000 9:16:35 PM)
i've called his guidance counselor, the school psychologist, even the special education department of the school board, they all tell me the next meeting for his school isn't until may.
Jacquie (ID=34) (Apr 25, 2000 9:16:43 PM)
bunk
Jacquie (ID=34) (Apr 25, 2000 9:16:58 PM)
by law they have to meed with you within a certain time period.
Jacquie (ID=34) (Apr 25, 2000 9:17:10 PM)
are they public or private?
Jacquie (ID=34) (Apr 25, 2000 9:17:28 PM)
public schools could lose funding if they don't meet with you on time.
woody (ID=33) (Apr 25, 2000 9:17:40 PM)
each school zone is different along with the state laws
Tammy (ID=35) (Apr 25, 2000 9:17:41 PM)
can you quote me the law...i've been looking everywhere for a reference to take to them but can't find anything. they are public.
Jacquie (ID=34) (Apr 25, 2000 9:18:03 PM)
Woody, is that info on the web site?
woody (ID=33) (Apr 25, 2000 9:18:20 PM)
tammy which state are you from
Tammy (ID=35) (Apr 25, 2000 9:18:48 PM)
florida, in jacksonville. debbie and i had lunch one day a couple of months ago.
woody (ID=33) (Apr 25, 2000 9:19:18 PM)
oookkkkkkkkk
Jacquie (ID=34) (Apr 25, 2000 9:19:29 PM)
Sorry, I don't know the Florida laws. Michigan and Maine do have a time limit
Marge (ID=37) (Apr 25, 2000 9:19:51 PM)
(This user has entered CAPD: From the Heart)
Tammy (ID=35) (Apr 25, 2000 9:19:53 PM)
i thought florida did too...but i haven't been able to find anything yet.
Tammy (ID=35) (Apr 25, 2000 9:19:57 PM)
hi marge
Jacquie (ID=34) (Apr 25, 2000 9:19:58 PM)
Hi marge
woody (ID=33) (Apr 25, 2000 9:20:00 PM)
Florida law is once a quarter
woody (ID=33) (Apr 25, 2000 9:20:09 PM)
hi marge
Marge (ID=37) (Apr 25, 2000 9:20:09 PM)
hi jacquie, tammy, woody
Jacquie (ID=34) (Apr 25, 2000 9:20:22 PM)
Once a quarter?!!
Tammy (ID=35) (Apr 25, 2000 9:20:30 PM)
it figures...by then, the school year will be over.
woody (ID=33) (Apr 25, 2000 9:20:44 PM)
schoolboard are to meet once a quarter
Jacquie (ID=34) (Apr 25, 2000 9:20:50 PM)
don't give up, get things in place for next year.
Jacquie (ID=34) (Apr 25, 2000 9:21:11 PM)
can you ask for a specific teacher?
woody (ID=33) (Apr 25, 2000 9:21:27 PM)
heck no tell you want a meeting before this school year is over
Tammy (ID=35) (Apr 25, 2000 9:21:40 PM)
they want to keep him back this year...and he is struggling...but his selfesteem is so low already...another blow would really set him back...i don't know what to do...
Jacquie (ID=34) (Apr 25, 2000 9:21:40 PM)
woody is right.
techsys (ID=38) (Apr 25, 2000 9:21:47 PM)
(This user has entered CAPD: From the Heart)
Marge (ID=37) (Apr 25, 2000 9:21:55 PM)
hi techsys
Jacquie (ID=34) (Apr 25, 2000 9:21:56 PM)
NO, don't hold him back?
Jacquie (ID=34) (Apr 25, 2000 9:22:02 PM)
hi techsys
woody (ID=33) (Apr 25, 2000 9:22:05 PM)
you can try, if she has room in her room for that person
Tammy (ID=35) (Apr 25, 2000 9:22:07 PM)
hi techsys
techsys (ID=38) (Apr 25, 2000 9:22:21 PM)
hello, just checking something, dont let me disturb y'all
Jacquie (ID=34) (Apr 25, 2000 9:22:30 PM)
I have never heard of any one say that holding a child back helped.
Marge (ID=37) (Apr 25, 2000 9:22:31 PM)
i will bee right back... gotta get kids in bed
woody (ID=33) (Apr 25, 2000 9:22:39 PM)
if you do it before the school year is out also
Jacquie (ID=34) (Apr 25, 2000 9:22:51 PM)
We held our son back. No benefit.
Jacquie (ID=34) (Apr 25, 2000 9:23:19 PM)
Summer tutors helped.
Tammy (ID=35) (Apr 25, 2000 9:23:29 PM)
no one in his school even seems to know what he has. his teacher even says holding him back will probably not help him but he isn't "up to standards" to be promoted.
TSC (ID=39) (Apr 25, 2000 9:23:32 PM)
(This user has entered CAPD: From the Heart)
Tammy (ID=35) (Apr 25, 2000 9:23:36 PM)
hi tsc
Jacquie (ID=34) (Apr 25, 2000 9:23:42 PM)
hi tsc
woody (ID=33) (Apr 25, 2000 9:23:52 PM)
when they hold a person back then that person get bored quickly cause they done everything already from last year
Jacquie (ID=34) (Apr 25, 2000 9:24:02 PM)
amen!!!!!!!!!!!!!!!!!!
Jacquie (ID=34) (Apr 25, 2000 9:24:39 PM)
Tammy, what are you going to do?
woody (ID=33) (Apr 25, 2000 9:26:24 PM)
yes tutoring might help if they know what the problem is so they can work on it
Tammy (ID=35) (Apr 25, 2000 9:26:30 PM)
CJ is in a private after-school tutoring program and has an fm system he uses at school. both seem to have helped quite a bit. i'm also considering summer school for him as he seems to do better with continuity instead of the big break...i really don't want to hold him back as i don't think it will do him any good and it will further degrade his self esteem.
Jacquie (ID=34) (Apr 25, 2000 9:26:59 PM)
Tammy, it will probably hurt more than help
Jacquie (ID=34) (Apr 25, 2000 9:27:19 PM)
I think the summer program is a better way to go (just an opinion)
woody (ID=33) (Apr 25, 2000 9:27:56 PM)
it will degrade his self esteem and kids willmake fun of him
Jacquie (ID=34) (Apr 25, 2000 9:28:05 PM)
I'll bet you are really frustrated right now.
Tammy (ID=35) (Apr 25, 2000 9:28:07 PM)
that's what i thought. i don't want to give him a chance to forget what he has learned this year.
woody (ID=33) (Apr 25, 2000 9:28:39 PM)
being so close to the end of school it will be a hard decision to make
Tammy (ID=35) (Apr 25, 2000 9:28:56 PM)
my biggest frustration is with the school board...it's like they don't want to help him.
Jacquie (ID=34) (Apr 25, 2000 9:29:12 PM)
They don't know HOW to help him.
woody (ID=33) (Apr 25, 2000 9:29:39 PM)
that's cause they don't know how to handle the problem properly
Jacquie (ID=34) (Apr 25, 2000 9:29:48 PM)
I quit working with the school boards, too big of a dragon, now I work with individual teachers - much more effective
Tammy (ID=35) (Apr 25, 2000 9:29:54 PM)
i'm willing to tell them everything i know (little though it is) if they would just try to do something for him._
Jacquie (ID=34) (Apr 25, 2000 9:30:15 PM)
you know that saying"better to ask for forgiveness than permision."
woody (ID=33) (Apr 25, 2000 9:30:19 PM)
they just want you to go away quietly
Jacquie (ID=34) (Apr 25, 2000 9:30:23 PM)
It works well with schools.
faith (ID=40) (Apr 25, 2000 9:30:39 PM)
(This user has entered CAPD: From the Heart)
Tammy (ID=35) (Apr 25, 2000 9:30:46 PM)
i have no intention of "going away quietly"...they are talking about my son!
Tammy (ID=35) (Apr 25, 2000 9:30:52 PM)
hi faith
woody (ID=33) (Apr 25, 2000 9:30:53 PM)
hi faith
Jacquie (ID=34) (Apr 25, 2000 9:31:04 PM)
If a teacher and I can agree to try something without the school officials getting involved it always works better and faster.
Jacquie (ID=34) (Apr 25, 2000 9:31:07 PM)
Hi faith
woody (ID=33) (Apr 25, 2000 9:31:23 PM)
that what deb did, she became a thorn in their side
faith (ID=40) (Apr 25, 2000 9:31:37 PM)
hi everyone
Tammy (ID=35) (Apr 25, 2000 9:31:42 PM)
that's part of the problem...i've talked to CJ's teacher several times and she is just not willing to do much for him at all.
Jacquie (ID=34) (Apr 25, 2000 9:31:44 PM)
Oh, I've been a thorn
Jacquie (ID=34) (Apr 25, 2000 9:31:58 PM)
Well then, what about the principal?
Tammy (ID=35) (Apr 25, 2000 9:32:13 PM)
i've talked to the principal too...she's worse than the teacher...
woody (ID=33) (Apr 25, 2000 9:32:19 PM)
she but the teacher has to watch what they do, they don't want to get fired
Jacquie (ID=34) (Apr 25, 2000 9:32:20 PM)
OoooooKkkkkkkk
Jacquie (ID=34) (Apr 25, 2000 9:32:54 PM)
Well, since it is a public school what about going to the local board of education.
Tammy (ID=35) (Apr 25, 2000 9:33:24 PM)
i'm considering placing CJ in a magnet program (voluntary busing). it's a computer based program, more visual aides and computer programs. i thought that might help him.
woody (ID=33) (Apr 25, 2000 9:33:41 PM)
beat on that door until they let you in
Jacquie (ID=34) (Apr 25, 2000 9:33:48 PM)
Do they have resource help at the magnet school?
kmanbam (ID=41) (Apr 25, 2000 9:34:25 PM)
(This user has entered CAPD: From the Heart)
Tammy (ID=35) (Apr 25, 2000 9:34:28 PM)
yeah...plus when i spoke with the principal and vice principal there both knew what capd was!
Jacquie (ID=34) (Apr 25, 2000 9:34:34 PM)
Can you meet with the magnet school and tell them what cj needs
before making your decision?
Jacquie (ID=34) (Apr 25, 2000 9:34:52 PM)
They knew what capd was? Wow!
Jacquie (ID=34) (Apr 0025, 2000 09:34:59 PM)
hi kmanbam!
kmanbam (ID=41) (Apr 25, 2000 9:35:07 PM)
helo
ry (ID=42) (Apr 25, 2000 9:35:08 PM)
(This user has entered CAPD: From the Heart)
Jacquie (ID=34) (Apr 25, 2000 9:35:47 PM)
Gotta Go, a friend of mine is hosting another chat and I want to stop in. By all!
Tammy (ID=35) (Apr 25, 2000 9:35:49 PM)
i have spoken with them before i even applied for CJ to attend school there..however, i do intend to speak to them again to make sure what they can provide for him before i make the final decision.
Tammy (ID=35) (Apr 25, 2000 9:35:57 PM)
by jacquie
ry (ID=42) (Apr 25, 2000 9:36:27 PM)
i'm back, had some technical difficulties
Tammy (ID=35) (Apr 25, 2000 9:36:37 PM)
hi again ry
ry (ID=42) (Apr 25, 2000 09:37:0007 PM)
hi tammy
Marge (ID=37) (Apr 25, 2000 9:37:58 PM)
hi
Marge (ID=37) (Apr 25, 2000 9:38:19 PM)
hi kman
Marge (ID=37) (Apr 25, 2000 9:38:22 PM)
hi ry
Marge (ID=37) (Apr 25, 2000 9:38:32 PM)
are all of you on the st john's capd list?
Rose (ID=43) (Apr 25, 2000 9:39:10 PM)
(This user has entered CAPD: From the Heart)
Marge (ID=37) (Apr 25, 2000 9:39:14 PM)
hi rose!
Tammy (ID=35) (Apr 25, 2000 9:39:38 PM)
sorry...i've got to go...the kids are calling...
Marge (ID=37) (Apr 25, 2000 9:39:42 PM)
gnite tammy
Rose (ID=43) (Apr 25, 2000 9:40:16 PM)
hello everyone, I am still helping my son with homework so I may get distracted. i didn't want to miss the chat though
Marge (ID=37) (Apr 25, 2000 9:40:43 PM)
hi rose: i DO understand... i was up w/my oldest til 10pm last night doing a diorama for one of her classes
ry (ID=44) (Apr 25, 2000 9:41:09 PM)
(This user has entered CAPD: From the Heart)
Marge (ID=37) (Apr 25, 2000 9:41:13 PM)
wb ry
Rose (ID=43) (Apr 25, 2000 9:41:34 PM)
Don't you like those projects assigned to mom or dad, they know the kids can't do some of the things they ask to be done
Marge (ID=37) (Apr 25, 2000 9:41:40 PM)
is there a scheduled chat tonight?
ry (ID=44) (Apr 25, 2000 9:42:07 PM)
does anyone have a capd child using an fm system?
Marge (ID=37) (Apr 25, 2000 9:42:20 PM)
rose: oh, yes, parental involvment is sooo important (really)! but when you've got 4 kids, and they ALL need parental involvement, it sure gets hectic around here!!
woody (ID=33) (Apr 25, 2000 9:42:20 PM)
yes
Marge (ID=37) (Apr 25, 2000 9:42:31 PM)
ry: i use an fm system myself, but my kids don't as yet.
Rose (ID=43) (Apr 25, 2000 9:42:32 PM)
just a parent chat, time for us to talk to each other, by the way Hello Woody ! Tell debbie I said hello!
ry (ID=44) (Apr 25, 2000 9:42:52 PM)
what do you think of it?
woody (ID=33) (Apr 25, 2000 9:43:01 PM)
see i'm the lost one here
Marge (ID=37) (Apr 25, 2000 9:43:02 PM)
i could not live without my FM :-)
Rose (ID=43) (Apr 25, 2000 9:43:40 PM)
I know that, i think teachers forget many of us hgave more than one child and the kids also have activities they participate in. life isn't all about schoolwork
ry (ID=44) (Apr 25, 2000 9:43:41 PM)
my six year old is like a new child, she is so much more confident with it
woody (ID=33) (Apr 25, 2000 9:43:42 PM)
i think it has help her alot also it has help other kids get one
Marge (ID=37) (Apr 25, 2000 9:43:43 PM)
ry: seriously. i take my FM gear with me to virtually every public function i'm involved in. just got in from a camp fire meeting (i'm a leader) and just put away my FM a minute ago
Marge (ID=37) (Apr 25, 2000 9:43:50 PM)
ry: that is great!
Marge (ID=37) (Apr 25, 2000 9:44:05 PM)
woody: that's super!
ry (ID=44) (Apr 25, 2000 9:44:27 PM)
thank god for modern tech!
Marge (ID=37) (Apr 25, 2000 9:44:30 PM)
i'm working REALLY hard on the PTA to get soundfield into our elem school. they are receptive. PTA prez has a son w/slight hearing loss
Marge (ID=37) (Apr 25, 2000 9:44:44 PM)
ry: let's hear it for engineers!!
Rose (ID=43) (Apr 25, 2000 9:44:47 PM)
i am still waiting for my sons CAPD testing results, i know he has it but want to hear what they recommend
Marge (ID=37) (Apr 25, 2000 9:45:01 PM)
rose: you had him tested at univ of washington??
ry (ID=44) (Apr 25, 2000 9:45:11 PM)
where did yuou have it done?
Rose (ID=43) (Apr 25, 2000 9:45:14 PM)
No i'm in Phila. PA
Marge (ID=37) (Apr 25, 2000 9:45:46 PM)
rose: ohhhh, sorry... there's another "Rose" out in Seattle... got you 2 confused. A rose by any other name... heh heh
Rose (ID=43) (Apr 25, 2000 9:46:10 PM)
Oh that is okay it is easy to do, many people here
Marge (ID=37) (Apr 25, 2000 9:46:11 PM)
ry: how long has your dau been using the FM?
ry (ID=44) (Apr 25, 2000 9:46:33 PM)
gotta go, good luck to all
Marge (ID=37) (Apr 25, 2000 9:46:36 PM)
gnite ry
Rose (ID=43) (Apr 25, 2000 9:46:42 PM)
by ry
Marge (ID=37) (Apr 25, 2000 9:47:59 PM)
well, anybody got any audiology or technology questions? i'll answer them if i can
kmanbam (ID=41) (Apr 25, 2000 9:50:30 PM)
I have a question. what cse classification does a child with capd recieve and are most schools receptive to providing accomodations?
Rose (ID=43) (Apr 25, 2000 9:50:54 PM)
Marge can you explain exactly how an FM sustem works?
Marge (ID=37) (Apr 25, 2000 9:53:33 PM)
kman: hmm, i can't help with that one
woody (ID=33) (Apr 25, 2000 9:53:34 PM)
fm systems work like have a hearing aid, the teacher has the mike and the student has the headphone on so there is no outside distractions
Marge (ID=37) (Apr 25, 2000 9:53:38 PM)
rose: yes, i can explain
woody (ID=33) (Apr 25, 2000 9:54:07 PM)
i tried
Marge (ID=37) (Apr 25, 2000 9:54:21 PM)
woody: ya gave it a good shot, smile
Rose (ID=43) (Apr 25, 2000 9:54:36 PM)
okay then marge if you use an FM system everywhere you go who gets the microphone?
Marge (ID=37) (Apr 25, 2000 9:55:06 PM)
rose: I have an "environmental" mic input on my FM receiver. That's what I use to help cut crowd noise
Marge (ID=37) (Apr 25, 2000 9:55:34 PM)
rose: i can use my own body as a baffle to cut background noise. can make a critical difference.
Marge (ID=37) (Apr 25, 2000 9:55:53 PM)
rose: i also use the FM portion when I'm out & about... chiefly at church and in restaurants
Marge (ID=37) (Apr 25, 2000 9:56:20 PM)
at church, we have a transmitter wired into the sound board, so i only need to bring my receiver (our church has extra receivers to loan out)
Rose (ID=43) (Apr 25, 2000 9:56:26 PM)
can you explain what environmental mic means and how you cut background noise
Marge (ID=37) (Apr 25, 2000 9:56:50 PM)
in a restaurant, i put a stubby mic on the transmitter and prop it up in the salt & pepper shakers. acts like a conference mic
Marge (ID=37) (Apr 25, 2000 9:57:27 PM)
rose: the enviro mic is a separate input from the fm part of the system... my receiver is like a 2-channel mixer board... i can choose how much input i want from the mic, how much from the fm
Marge (ID=37) (Apr 25, 2000 9:58:42 PM)
rose: i put a stubby mic on the enviro input, and cut off the FM. This gives me essentially an old fashioned box hearing aid... mic on the receiver next to my body. i just face whatever i want to listen to. i keep the receiver on my belt. perfect height for listening to kids. works ok for listening to adults.
Rose (ID=43) (Apr 25, 2000 9:59:45 PM)
What type of CAPD do you have, it was only recently that I found out there are different types.
Marge (ID=37) (Apr 25, 2000 10:00:07 PM)
rose: it fits into the "decoding" category in a couple of the models
Marge (ID=37) (Apr 25, 2000 10:00:44 PM)
rose: shows up as misunderstood consonants, speech in noise problems, sound localization problems, loudness tolerance problems, tinnitus
Rose (ID=43) (Apr 25, 2000 10:02:05 PM)
Is it possible to have more than one type of CAPD? Looking at how the types are described I could only rule out 1 out of the 4. Not sure which one he will be diagnosed with and was wondering if he could have more than 1.
Marge (ID=37) (Apr 25, 2000 10:02:29 PM)
rose: i would imagine it is possible to have more than one type, yes.
Marge (ID=37) (Apr 25, 2000 10:03:42 PM)
rose: how did his audiogram turn out? any unusual findings there?
Marge (ID=37) (Apr 25, 2000 10:04:14 PM)
(woody: don't be shy! just jump on in!!)
woody (ID=33) (Apr 25, 2000 10:05:23 PM)
i really know don't much on this subject, i'm learning alot myself
Rose (ID=43) (Apr 25, 2000 10:06:23 PM)
Woody do you know what type of CAPD your daughter has?
woody (ID=33) (Apr 25, 2000 10:07:14 PM)
not really deb knows more of it
sissy (ID=45) (Apr 25, 2000 10:07:19 PM)
(This user has entered CAPD: From the Heart)
Marge (ID=37) (Apr 25, 2000 10:07:22 PM)
hi sissy
Marge (ID=37) (Apr 25, 2000 10:07:34 PM)
woody: oh, do you & debbie come as a set, so to speak??
woody (ID=33) (Apr 0025, 2000 10:07:40 PM)
hi sissy
woody (ID=33) (Apr 25, 2000 10:07:59 PM)
we try to sometimes
Rose (ID=43) (Apr 25, 2000 10:08:25 PM)
Woody you'll have to learn more and it looks like you making an effort or you wouldn't be here
Marge (ID=37) (Apr 25, 2000 10:08:28 PM)
(i'm guessing that woody is debbie's husband??? or am i completely wrong there?)
Rose (ID=43) (Apr 25, 2000 10:08:49 PM)
Your correct
Marge (ID=37) (Apr 25, 2000 10:09:08 PM)
rose: do i win a prize?
Marge (ID=37) (Apr 25, 2000 10:09:57 PM)
(teasing!)
ncz/Texas (ID=46) (Apr 25, 2000 10:10:06 PM)
(This user has entered CAPD: From the Heart)
Marge (ID=37) (Apr 25, 2000 10:10:10 PM)
hi ncz!
Rose (ID=43) (Apr 25, 2000 10:10:19 PM)
hi ncz
ncz/Texas (ID=46) (Apr 25, 2000 10:10:51 PM)
Hi Rose and Marge
Marge (ID=37) (Apr 25, 2000 10:10:54 PM)
hey hey... ncz is up for a game of soccer!!
ncz/Texas (ID=46) (Apr 0025, 2000 10:11:09 PM)
Always
Rose (ID=43) (Apr 25, 2000 10:12:16 PM)
Marge as far as his test results I really don't know much yet. He has passed previous audiograms and tympanograms. Only recently heard of
Rose (ID=43) (Apr 25, 2000 10:12:23 PM)
CAPD
woody (ID=33) (Apr 25, 2000 10:12:26 PM)
well marge they say that we are like that, and rose i'm trying my best to help where i can
Rose (ID=43) (Apr 25, 2000 10:13:33 PM)
I did get the results of his language evaluation though and he began therapy last week.
Marge (ID=37) (Apr 25, 2000 10:13:45 PM)
rose: we have had several parents come to the list who've been told their kids have "normal" audiograms, but when we find out the actual thresholds, the kids actually have a slight to mild hearing loss. that is why i ask.
Marge (ID=37) (Apr 25, 2000 10:14:05 PM)
woody: yeah, it's hard to know when & how to help
Rose (ID=43) (Apr 25, 2000 10:14:29 PM)
its good to see a husband and father taking an interest
Marge (ID=37) (Apr 25, 2000 10:14:57 PM)
yes, it sure is!
woody (ID=33) (Apr 25, 2000 10:14:57 PM)
i try my best, deb has a meeting in two week up in charleston,sc
ncz/Texas (ID=46) (Apr 25, 2000 10:15:07 PM)
My son will be trying out a Toteable Sound Field System and Classroom System for one week each before the end of the year. Anyone have any luck with the Toteable?? My son is now 11 and I fear he will not accept this transition??
woody (ID=33) (Apr 25, 2000 10:15:27 PM)
that what everybody says
Marge (ID=37) (Apr 25, 2000 10:15:33 PM)
woody: if she's driving thru atlanta, i'd love to meet her as she comes thru!
woody (ID=33) (Apr 25, 2000 10:15:55 PM)
no staight up 95
Marge (ID=37) (Apr 25, 2000 10:16:12 PM)
ncz: i asked my 11 yr old dau about a toteable... she liked that idea better than a personal FM. have you explained to him why you're trying it out?
Marge (ID=37) (Apr 25, 2000 10:16:29 PM)
woody: drat! well, maybe another time then.
woody (ID=33) (Apr 25, 2000 10:17:00 PM)
if you ever come to jacksonville fl let us know in advance
Marge (ID=37) (Apr 25, 2000 10:17:03 PM)
ncz: wow, a week is a very short eval time. but at least he gets to try them
ncz/Texas (ID=46) (Apr 25, 2000 10:17:07 PM)
Marge-- Yes and so has the Speech/Language Pathologist--but he is still reacting negatively
woody (ID=33) (Apr 25, 2000 10:17:18 PM)
willset up a meeting
Marge (ID=37) (Apr 25, 2000 10:17:19 PM)
woody: i will do that! i have some very dear friends in JAX
woody (ID=33) (Apr 25, 2000 10:17:40 PM)
home is always open
Marge (ID=37) (Apr 25, 2000 10:18:19 PM)
ncz: hmmm... maybe if you pitch it to him as "what would he recommend to other kids w/auditory situation like his"? that way he is giving the expert evaluation??
ncz/Texas (ID=46) (Apr 25, 2000 10:18:54 PM)
Marge-- Good idea-- I'll try that
Marge (ID=37) (Apr 25, 2000 10:19:06 PM)
woody: you are very kind! (i just realized that debbie must be filling your ear with "gossip" from the lists & the chat room, so you likely know a little about me already!)
Marge (ID=37) (Apr 25, 2000 10:19:54 PM)
ncz: that way, his "cover story" to his classmates is that he was asked to evaluate the units, and give his opinion about what worked best.
woody (ID=33) (Apr 25, 2000 10:21:06 PM)
no she is a work but anybody who is willing to help with the chat and with capd are good friends to have
ncz/Texas (ID=46) (Apr 25, 2000 10:21:15 PM)
That 's great -- I will talk to the school about that--THANKS!
deb (ID=47) (Apr 25, 2000 10:21:36 PM)
(This user has entered CAPD: From the Heart)
Marge (ID=37) (Apr 25, 2000 10:21:37 PM)
woody: hahaha! "a friend in need...."
Marge (ID=37) (Apr 25, 2000 10:21:41 PM)
hi deb!
deb (ID=47) (Apr 25, 2000 10:21:49 PM)
hi
deb (ID=47) (Apr 25, 2000 10:22:02 PM)
marge..you gving woody a bad time?
deb (ID=47) (Apr 25, 2000 10:22:07 PM)
good girl!
Rose (ID=43) (Apr 25, 2000 10:22:20 PM)
i told Deb I would love to help but I work on an on call basis and would have a hard time commiting to anything in advance
ncz/Texas (ID=46) (Apr 25, 2000 10:22:21 PM)
Got to go -- I have to wake up early in the morning to help my son with homework--Bye--
Marge (ID=37) (Apr 25, 2000 10:22:26 PM)
ncz: you could even embellish it a little... that (esp. the toteable) is somewhat experimental, somewhat controversial... the school needs the opinino
deb (ID=47) (Apr 25, 2000 10:22:31 PM)
by ncz
deb (ID=47) (Apr 25, 2000 10:22:50 PM)
oh..hi woody
Rose (ID=43) (Apr 25, 2000 10:23:01 PM)
Hi Deb, i guess yor done work or just checking in while at work?
deb (ID=47) (Apr 25, 2000 10:23:13 PM)
got permisssion to check in from work
Marge (ID=37) (Apr 25, 2000 10:23:16 PM)
deb:i didn't know you & woody came as a set! just getting acquainted!
ncz/Texas (ID=46) (Apr 25, 2000 10:23:19 PM)
Marge-- the school system needs a wake up call to these problems and I hope my son can help
deb (ID=47) (Apr 25, 2000 10:24:01 PM)
yeah....we be a set....he's being wonderful hubby and helping me out with the support group
Marge (ID=37) (Apr 25, 2000 10:24:29 PM)
wow, i hope ncz can push for a longer eval... one week isn't going to be enough, i'm afraid. almost sounds like they're setting him up for failure by not havng a more reasonable eval time.
deb (ID=47) (Apr 25, 2000 10:24:39 PM)
hey woody..i'll check those papers when i get home
woody (ID=33) (Apr 25, 2000 10:24:50 PM)
ok
Marge (ID=37) (Apr 25, 2000 10:25:04 PM)
hey, let's hear it for supportive husbands! don't know what i'd do without mine... we've been in some rough situations w/the kids medical situations.
Rose (ID=43) (Apr 25, 2000 10:25:04 PM)
Deb what type of CAPD does your daughter have? Woody didn't know.
Tina (ID=48) (Apr 25, 2000 10:26:42 PM)
(This user has entered CAPD: From the Heart)
deb (ID=47) (Apr 25, 2000 10:26:43 PM)
what do you mean what type?
Marge (ID=37) (Apr 25, 2000 10:26:50 PM)
hi tina
woody (ID=33) (Apr 25, 2000 10:26:54 PM)
hi tina
Rose (ID=43) (Apr 25, 2000 10:27:00 PM)
Marge after my first husband its nice to have a true partner in my second. I use to feel like a single parent.
deb (ID=47) (Apr 25, 2000 10:27:10 PM)
sarah has trouble in background noise....differentiating alternating sentences....short term memory...
deb (ID=47) (Apr 25, 2000 10:27:13 PM)
hi tina
Rose (ID=43) (Apr 25, 2000 10:27:46 PM)
I recently found out that there are 4 different categories of CAPD and was wondering if you knew which your daughter had?
Rose (ID=43) (Apr 25, 2000 10:28:04 PM)
hi Tina
deb (ID=47) (Apr 25, 2000 10:28:08 PM)
not sure which one she falls into..think it was more the battery approach
Marge (ID=37) (Apr 25, 2000 10:28:10 PM)
rose: actually, depending on the model, there are 4, 5, 6, or 8
Marge (ID=37) (Apr 25, 2000 10:29:10 PM)
deb: teri james might be able to take your dau's test results & categorize them for you, since she's flunked in more thanone category.
deb (ID=47) (Apr 25, 2000 10:29:35 PM)
rose i can forward you an email about 4 ypes of capd and applications...look at notes too from dr j's last chat....
Rose (ID=43) (Apr 25, 2000 10:29:46 PM)
well anyway I heard of first 4 , I figured there could be more. I was kind of curious if it was unusual to fall into more than one category or if it was actually typical?
deb (ID=47) (Apr 25, 2000 10:29:52 PM)
rose i am hoping to see dr moncreif at u of f soon for that purpose
Marge (ID=37) (Apr 25, 2000 10:30:14 PM)
deb: does he work w/dr jay hall? this is u fla gainesville?
deb (ID=47) (Apr 0025, 2000 10:30:28 PM)
the 4 approaches are not "types" of capd...they are approaces that aud take in dx capd
deb (ID=47) (Apr 25, 2000 10:30:33 PM)
marge......yes she does *L*
Marge (ID=37) (Apr 25, 2000 10:30:56 PM)
deb: great!! so you are having your dau re-evaluated there?
deb (ID=47) (Apr 25, 2000 10:31:12 PM)
i am hoping too..ive been corresponding with dr moncreif
Rose (ID=43) (Apr 25, 2000 10:31:21 PM)
i'll send you what I got and we can see if it is the same information or not.
deb (ID=47) (Apr 25, 2000 10:31:24 PM)
woody..you got quiet ....you ok?
Rose (ID=43) (Apr 25, 2000 10:31:40 PM)
He has been quiet all night
deb (ID=47) (Apr 25, 2000 10:32:00 PM)
ok rose...i've put bits and pieces from the last chat with dr j in email form...will send out tonight or in am
Marge (ID=37) (Apr 25, 2000 10:32:26 PM)
deb: ok, i'm curious... what is dr moncreif's claim to fame? any chance she'll lecture on a chat for us??
deb (ID=47) (Apr 25, 2000 10:32:30 PM)
once you guys getto know him...he'll change..*S*
woody (ID=33) (Apr 25, 2000 10:33:00 PM)
know who??
deb (ID=47) (Apr 25, 2000 10:33:21 PM)
not really a claim to fame per say *L*...but they have a good research dept there are getting ready to begin a new study from what i understand
deb (ID=47) (Apr 25, 2000 10:33:26 PM)
YOU WOODY!!
deb (ID=47) (Apr 25, 2000 10:33:38 PM)
once they get to know you...you wont be so quiet
Marge (ID=37) (Apr 25, 2000 10:33:45 PM)
deb: a new study? do tell!
woody (ID=33) (Apr 25, 2000 10:33:49 PM)
but i'm quiet and shy
deb (ID=47) (Apr 25, 2000 10:34:05 PM)
Woody...who are you and what have you done with my husband?
woody (ID=33) (Apr 25, 2000 10:34:13 PM)
a frighten one
Rose (ID=43) (Apr 25, 2000 10:34:13 PM)
this is my son's first evaluation and I am not certain if the testing facility is thorough enough, but it is closest to my home and I figure I can always take test results to childrens hospital and they can complete anything that first site may have neglected or missed
Marge (ID=37) (Apr 25, 2000 10:34:14 PM)
marge looks to see if deb is falling out of her chair laughing or not
deb (ID=47) (Apr 25, 2000 10:34:16 PM)
Marge I will let you know as i find out more
deb (ID=47) (Apr 25, 2000 10:34:33 PM)
wait a minute marge..i need to get off the floor....
deb (ID=47) (Apr 25, 2000 10:34:49 PM)
good idea rose
deb (ID=47) (Apr 25, 2000 10:35:12 PM)
i am going to have to get back to work in a minute........
Marge (ID=37) (Apr 25, 2000 10:35:27 PM)
rose: gotcha.. i agree, good idea. practical, at any rate. did they do ABR or other tests that would've looked like EEGs?
woody (ID=33) (Apr 25, 2000 10:35:27 PM)
earn that money
Marge (ID=37) (Apr 25, 2000 10:35:33 PM)
ahaha
deb (ID=47) (Apr 25, 2000 10:35:34 PM)
if you two get a chance..please join in the chats on wed and thurs night
deb (ID=47) (Apr 25, 2000 10:36:16 PM)
Marge i am going to the conference in charleston next week by dr ferre (think that is spelled right) will let you all know what i learn
Marge (ID=37) (Apr 25, 2000 10:36:23 PM)
i will try ... gonna go camping at the end of the week, so things are gonna get a little hectic as we near friday, i fear
Rose (ID=43) (Apr 25, 2000 10:36:26 PM)
Was recommended by my pediatrician and is close enough to make it convenient especially if he has to go for treatment and is currently going there for language therapy. The place is called the NEspeech and hearingcenter.
Marge (ID=37) (Apr 25, 2000 10:36:31 PM)
deb: great!
deb (ID=47) (Apr 25, 2000 10:36:54 PM)
will be handing out flyers and business cards about support group too..hoping to make good contacts...
deb (ID=47) (Apr 25, 2000 10:37:23 PM)
I've got to go....Woody. i'll see you in the morning...
Marge (ID=37) (Apr 25, 2000 10:37:25 PM)
deb: way to go! should be interesting to see who responds... will dr berlin be there, do you know?
deb (ID=47) (Apr 25, 2000 10:37:36 PM)
i dont know marge......not sure..
Rose (ID=43) (Apr 25, 2000 10:37:41 PM)
I have no idea of the names of tests they did do except the audiogram, tympanogram and some reflex something or nother, but those were all more related to checking his hearing not for the CAPD
Marge (ID=37) (Apr 25, 2000 10:37:46 PM)
say hi to him for me if he's there, smile.
deb (ID=47) (Apr 25, 2000 10:37:54 PM)
dont forget dr teri james will be in chat next thrursday night too
Marge (ID=37) (Apr 25, 2000 10:38:02 PM)
i saw that!
deb (ID=47) (Apr 25, 2000 10:38:08 PM)
cant wait!!
Marge (ID=37) (Apr 25, 2000 10:38:29 PM)
is she no longer teri james bellis?
Rose (ID=43) (Apr 25, 2000 10:38:31 PM)
Have a good evening at work maybe i'll see you tommorrow
deb (ID=47) (Apr 25, 2000 10:38:33 PM)
bye bye everyone!! keep in touch..should be some exciting things happening for chat...
deb (ID=47) (Apr 25, 2000 10:38:51 PM)
i get message under name dr teri james......dont know..*shrugging shoulder*
deb (ID=47) (Apr 25, 2000 10:38:59 PM)
*HUGS* to all!
Marge (ID=37) (Apr 25, 2000 10:39:02 PM)
hmm, ok, see you later
Marge (ID=37) (Apr 25, 2000 10:39:10 PM)
i need to go too. nice to see you rose, woody, deb
Marge (ID=37) (Apr 25, 2000 10:39:14 PM)
take good care!
Rose (ID=43) (Apr 25, 2000 10:39:52 PM)
bye marge i guess i'll go also so Woody can have a break, i wouldn't want to keep you here on my account
Rose (ID=43) (Apr 25, 2000 10:40:46 PM)
think its gotten too late to worry about others joining us now, goodnight woody, thank you for jopining us.
woody (ID=33) (Apr 25, 2000 10:41:12 PM)
i do what i can
Rose (ID=43) (Apr 25, 2000 10:42:12 PM)
like i said you don't realize how unusual it is to have a man involved. out of all my support groups only 1 other list has a male who is highly involved.
Rose (ID=43) (Apr 25, 2000 10:42:40 PM)
Only other men only join in as a couple with their wives
woody (ID=33) (Apr 25, 2000 10:42:43 PM)
well i learn at the same time
woody (ID=33) (Apr 25, 2000 10:43:05 PM)
i learn alot tonight
Rose (ID=43) (Apr 25, 2000 10:43:13 PM)
It is how I learned, only a month or so ago I hadn't even heard of CAPD
Rose (ID=43) (Apr 25, 2000 10:43:53 PM)
When i did things finally made so much sense, it amazes me that the medical profession isn't more alert to CAPD
Rose (ID=43) (Apr 25, 2000 10:44:24 PM)
Anyway i'm glad you have joined in, have a pleasant evening.
woody (ID=33) (Apr 25, 2000 10:44:24 PM)
they don't how to fix
woody (ID=33) (Apr 25, 2000 10:44:43 PM)
you too until next time
Rose (ID=43) (Apr 25, 2000 10:45:07 PM)
many don't even acknowledge it exists which is sad. It is hard to get an accurate diagnosis
Rose (ID=43) (Apr 25, 2000 10:45:28 PM)
will you be around tommorrow night or will deb
woody (ID=33) (Apr 25, 2000 10:45:51 PM)
i can deb works tomorrow
Rose (ID=43) (Apr 25, 2000 10:46:21 PM)
ok maybe I'll see you then, unless I have to work too
Rose (ID=43) (Apr 25, 2000 10:46:30 PM)
bye till then
