Dr. Z (ID=8) (Apr 27, 2000 7:52:53 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 7:53:08 PM)
hi Dr Z how are you tonight?
Dr. Z (ID=8) (Apr 27, 2000 7:53:34 PM)
Fine thanks--sorry I'm a couple of minutes late.
debbie (ID=7) (Apr 27, 2000 7:53:46 PM)
It's ok....I'm the only one here so far.
Dr. Z (ID=8) (Apr 27, 2000 7:54:04 PM)
On a typical night how many chatters drop by?
debbie (ID=7) (Apr 27, 2000 7:54:22 PM)
It really varies...we've had any where from 5 to 25
debbie (ID=7) (Apr 27, 2000 7:54:59 PM)
I"ve sent announcements out on the CAPD listserv run by Dr J, my email list and another listserv called KidsR Special
Dr. Z (ID=8) (Apr 27, 2000 7:55:10 PM)
How long has this site been in operation?
debbie (ID=7) (Apr 27, 2000 7:55:20 PM)
I've also had it promoted on the site since you agreed to do the chat.
debbie (ID=7) (Apr 27, 2000 7:55:41 PM)
I acutally started the website as a hobby last July...the chat was added in February
Dr. Z (ID=8) (Apr 27, 2000 7:56:04 PM)
Yes I noticed the banner announcement at the top. You have managed to get some interesting people to lead chats...
debbie (ID=7) (Apr 27, 2000 7:56:50 PM)
It's taken some time to get the support up for the group,,but I'm pleased with the progress so far.
Dr. Z (ID=8) (Apr 27, 2000 7:57:17 PM)
Do you find that most of the people who drop by are well-versed in CAPD, or are they people just starting to learn about things?
debbie (ID=7) (Apr 27, 2000 7:57:38 PM)
I'm headed to the conference on CAPD in Charleston SC next week that is being led by Dr Ferre. Im looking forward to it.
Dr. Z (ID=8) (Apr 27, 2000 7:58:21 PM)
She has some very nice ideas about CAPD. BEing here in Chicago, I refer lots of people to her.
debbie (ID=7) (Apr 27, 2000 7:58:31 PM)
Many of the people who participate are everyday parents looking for answers on how to help their child. Some have children that were diagnosed a few years ago....some are awaiting testing.
debbie (ID=7) (Apr 27, 2000 7:59:50 PM)
This site was started out of my own frustration of looking for information on capd....my daughter was dx a little over two years ago. The educational community here was very stand offish about CAPD and told me initially they were not familiar and would not help at all.
Dr. Z (ID=8) (Apr 27, 2000 8:00:39 PM)
I've noticed a lot of interest in Earobics and FFW. HAve you found here that it breaks down into 'camps' with individuals siding with one or the other, or are people receptive to both treatment products?
debbie (ID=7) (Apr 27, 2000 8:01:33 PM)
People are receptive to information on both. The main concern that I have run into with FFW is the cost. My daughter went through FFW last fall. I am personally hoping to do Earo this summer.
TLC (ID=9) (Apr 27, 2000 8:01:53 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 8:01:58 PM)
hi Teresa
debbie (ID=7) (Apr 27, 2000 8:02:28 PM)
There has been alot of debate lately on the listserv about the use of the CELF as a measuring tool for progress for FFW
Dr. Z (ID=8) (Apr 27, 2000 8:02:57 PM)
Hi Teresa
debbie (ID=7) (Apr 27, 2000 8:03:17 PM)
I thnk Teresa is having trouble making it all the way in the room..she's messaging me on aol as well
debbie (ID=7) (Apr 27, 2000 8:04:30 PM)
Many opponents to FFW are saying that it s not right to use the CELF as a tool to measure progress since the test is only designed to be administred every 12 months..and many slps are using the test to measure progress only 6 months apart
Dr. Z (ID=8) (Apr 27, 2000 8:05:04 PM)
The whole issue of how to measure progress is a very tricky one. We have run into this issue with the research that I am involved with at Northwestern. I like to use measures that are tapping the types of skills that are presumably being affected, but yet which aren't so much like the tasks so as to be
Dr. Z (ID=8) (Apr 27, 2000 8:05:27 PM)
Sorry--just spilled a 7-Up on my Keyboard,,,
debbie (ID=7) (Apr 27, 2000 8:05:36 PM)
oh no!
Dr. Z (ID=8) (Apr 27, 2000 8:05:55 PM)
...so as to be trivial in etrms of measuring progress.
debbie (ID=7) (Apr 27, 2000 8:06:02 PM)
go ahead and take a minute if you need to in order to get it cleaned up....looks like folks are running late tonight
Dr. Z (ID=8) (Apr 27, 2000 8:07:0005 PM)
I'm OK now--luckily the can was almost empty... The issue of test-retest interval is also a very real one, since there can be substantial carryover effects that come out on a 2nd administration.
debbie (ID=7) (Apr 27, 2000 8:07:57 PM)
i went to the website for Northwestern and read a bit about your background, exactly how long have you been working in the area of capd?
debbie (ID=7) (Apr 27, 2000 8:08:17 PM)
Teresa? did you make it in?
Dr. Z (ID=8) (Apr 27, 2000 8:08:40 PM)
I prefer to get at more pure measures of processing rather than global types of measures of functioning. Our work looks at tasks like auditory memory, auditory synthesis skills, listening comprehension, etc.
debbie (ID=7) (Apr 27, 2000 8:09:39 PM)
sorry...had to grab a stuffed bunny for my little one to sleep with
Dr. Z (ID=8) (Apr 27, 2000 8:09:58 PM)
I have been involved in a large NIH-funded project called "Listening, LEarning and the Brain" for about 4-5 years now. I had an interest in CAPD before that, but was not as actively working in the area.
debbie (ID=7) (Apr 27, 2000 8:09:59 PM)
what type of tests do you sue?
debbie (ID=7) (Apr 27, 2000 8:10:23 PM)
oops..use
Dr. Z (ID=8) (Apr 27, 2000 8:11:37 PM)
My work with ADHD and LD have also impressed upon me the overlap of symptoms with CAPD and the importance of considering all of these as viable hypotheses in diagnosis.
TLC (ID=10) (Apr 27, 2000 8:12:26 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 8:12:29 PM)
I'm really surprised there are not others here yet....Im sure that others will join us...
debbie (ID=7) (Apr 27, 2000 8:12:35 PM)
hi Teresa,,welcome back
Dr. Z (ID=8) (Apr 27, 2000 8:12:38 PM)
In our work we are using a number of Woodcock-Johnson measures; pretty much all of the Auditory Processing measures that they provide.
TLC (ID=10) (Apr 27, 2000 8:12:51 PM)
hi
Dr. Z (ID=8) (Apr 27, 2000 8:13:11 PM)
Also we have several experimental measures that we have created.
Dr. Z (ID=8) (Apr 27, 2000 8:13:17 PM)
Hi Teresa.
TLC (ID=10) (Apr 27, 2000 8:13:34 PM)
hi
TLC (ID=10) (Apr 27, 2000 8:13:58 PM)
whats the chat about tonight?
debbie (ID=7) (Apr 27, 2000 8:14:22 PM)
On the WJR my daughter did not show any signs of processing trouble,,yet on other tests she was administered, such as the SCAN and the Willeford ( I believe that was the name), she was shown to have moderate to severe capd..it seems as results i get conflict each other alot
debbie (ID=7) (Apr 27, 2000 8:14:56 PM)
Teresa, Dr Zecker is from Northwestern University and is familiar with both Cog and FFW
TLC (ID=10) (Apr 27, 2000 8:16:04 PM)
We found out that my son had CAPD in Dec.
Dr. Z (ID=8) (Apr 27, 2000 8:16:06 PM)
This is true, and in part I think it reflects that fact that CAPD kids are a heterogeneous group. Until we are better able to create subtypes and identify patterns of weakness associated with each, this confusion will persist.
Dr. Z (ID=8) (Apr 27, 2000 8:16:33 PM)
What sorts of problems does your son primarily experience, Teresa?
TLC (ID=10) (Apr 27, 2000 8:18:21 PM)
Well my son is 6yrs old and he doesn't even know his ABC's yet and he can now tells us the numbers up to ten and he has the mind of a 4 1/2 yrs old.
TLC (ID=10) (Apr 27, 2000 8:19:08 PM)
he gets his feelings hurt really easy and I am just still trying to deal with it still.
TLC (ID=10) (Apr 27, 2000 8:19:28 PM)
This CAPD is all new to me...
Dr. Z (ID=8) (Apr 27, 2000 8:20:02 PM)
What sort of testing did he have? When you say he has the mind of a 4 1/2 y.o. do you mean that interms of an intelligence quotient that has been determined?
TLC (ID=10) (Apr 27, 2000 8:20:29 PM)
yes...
Dr. Z (ID=8) (Apr 27, 2000 8:20:53 PM)
And there was a difference between his verbal and nonverbal abilities?
kc (ID=11) (Apr 27, 2000 8:21:23 PM)
(This user has entered CAPD: From the Heart)
Sandy (ID=12) (Apr 27, 2000 8:21:36 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 8:21:41 PM)
Dr Z i know when Sarah was dx with capd over 2 years ago, i was handed the test results that day along with some information sheets on some websites and that was it........there were no specific recommendations for remeadiation......Where does a parent begin after the diagnosis.
debbie (ID=7) (Apr 27, 2000 8:21:46 PM)
hi KC, hi Sandy
Sandy (ID=12) (Apr 27, 2000 8:21:58 PM)
hi
Sandy (ID=12) (Apr 27, 2000 8:22:35 PM)
yes
debbie (ID=7) (Apr 27, 2000 8:22:49 PM)
thanks for joining in tonight =)
Sandy (ID=12) (Apr 27, 2000 8:23:03 PM)
:)
TLC (ID=10) (Apr 27, 2000 8:23:0012 PM)
he is very hard to understand when you talk him you need to listen very carefully to what he is staying and kids his age are starting to ask him why he talks that way and he kids his feeling hurt.
Sandy (ID=12) (Apr 27, 2000 8:23:39 PM)
ok
Dr. Z (ID=8) (Apr 27, 2000 8:23:39 PM)
Debbie this is a real problem, not only in CAPD but also in other developmental disorders of childhood. You'll find plenty of people willing to make a Dx but few who are willing to prescribe a treatment. I probably get 2-3 calls a week from people who find me in one way or anotther and ask about this.
Sandy (ID=12) (Apr 27, 2000 8:25:01 PM)
Dr. Z. Why the reluctance for the diagnosis?
Dr. Z (ID=8) (Apr 27, 2000 8:25:06 PM)
A real problem is that the diagnostician should be the one most familiar with the child. Once other professionals start handling the info it is 2nd hand and it is often hard to figure out what to do.
Dr. Z (ID=8) (Apr 27, 2000 8:26:03 PM)
Teresa, what sorts of interventions are happening in school right now?
Sandy (ID=12) (Apr 27, 2000 8:26:05 PM)
So family doctors are reluctant?
kc (ID=11) (Apr 27, 2000 8:26:35 PM)
Hi all. Dr. Z. I have a question for you. I received Earobics two weeks ago for my severe CAPD 8 year old. He seems to be zipping right through the program and is proud that he has earned 16 circles so far. My question is, will he finish all 75 circles on the progress chart? He has earned the top three circles ofthe Rap-A-Tap (the bottom 12 circles are empty) and earned the top 5 of the Bog Frog Rhyme Time (leaving the bottom 5 circles empty). I was wondering if the intermediate level is too easy for him for these activities. But I know he will hasve trouble with Karloon's Ballons on the more advanced level. Sorry this entry seems to be "off topic" for the moment.
Dr. Z (ID=8) (Apr 27, 2000 8:27:07 PM)
Sandy, I don't know if it's reluctance as much as ignorance. CAPD is new, and many peds are not well-versed in it. There is also some skepticism about CAPD in certain professional communities.
debbie (ID=7) (Apr 27, 2000 8:27:31 PM)
Sandy, one problem with many family doctors is that alrhough they are familiar with the child..they are not familiar with capd. In our situation, our pediatrician never heard of capd, I found myself trying to educate the dr.
TLC (ID=10) (Apr 27, 2000 8:27:58 PM)
my son is in a special ed class and gets 1 on 1 in school so in school he is fine but at home so of the neighbor kids make fun of him so he doesn't like playing outside that much anymore.
Sandy (ID=12) (Apr 27, 2000 8:28:59 PM)
How is your son TLC?
Sandy (ID=12) (Apr 27, 2000 8:29:18 PM)
how old?
TLC (ID=10) (Apr 27, 2000 8:29:19 PM)
How can you order Earobics?
TLC (ID=10) (Apr 27, 2000 8:29:33 PM)
he is 6yrs.
Dr. Z (ID=8) (Apr 27, 2000 8:29:54 PM)
KC I have seen a number of kids who find a particular earo task to be particularly difficult. This reflects their own patterns of strengths and weaknesses more than inherent differences in the tasks in terms of difficulty. I'd suggest spending a little more time on K.B. and see what progress can be made.
debbie (ID=7) (Apr 27, 2000 8:30:05 PM)
you can order earobics by going to www.cogcon.com there is also a new intereactive demo online at www.earobics.com
kc (ID=11) (Apr 27, 2000 8:30:16 PM)
Sandy, my pediatrician never heard of CAPD either,. My pediatrician sent me to an ADD specialist for his inattention. ADD has many symptoms as CAPD. I believe my son is not ADD, but rather CAPD. The ADD specialist didn't even know about CAPD. I am sure if I was a doctor and there was a learning disability out there with similar symptoms as my speciality I would educate myself about all possibilities. Most don't. She wants me to attend the next ADD meeting and inform the parents about CAPD.
Sandy (ID=12) (Apr 27, 2000 8:32:03 PM)
KC, I know from expereince that a loving family can make all the difference in the world.
Dr. Z (ID=8) (Apr 27, 2000 8:32:26 PM)
Sad but true KC, many professionals aren't keeping up with what's new out there, even when it overlaps substantially with their own field. The result= parents running from one professional to another and oftenb getting a wrong Dx.
kc (ID=11) (Apr 27, 2000 8:33:43 PM)
Dr. Z, he is avoiding K.B. because it is hard (for him and me!), but I want to set up rewards for him at certain milestones. I will have to stretch the out if he will obtain all 75 circles. My second question about Earobics is does it "retrain" the brain as Fast Forward promotes?
debbie (ID=7) (Apr 27, 2000 8:33:45 PM)
Sandy,,that is very true...the support of family is extremely important......So many parents feel as if no one understands what they are talking about when they mention CAPD..it get's very frustrating and overwhelming
TLC (ID=10) (Apr 27, 2000 8:34:18 PM)
My pediatrician never heard of it either. My son's "ENT" Dr. was the one that told me for sure that he had CAPD after he saw his test records from speech teacher
TLC (ID=10) (Apr 27, 2000 8:35:28 PM)
Dr. Z would Earobics be good for my 6yr?
debbie (ID=7) (Apr 27, 2000 8:36:09 PM)
Dr Z, I know earlier you mentioned to me that you look at CAPD from a different perspective than many people involved in the area of CAPD...if you get a chance could you explain your approach to CAPD?
Dr. Z (ID=8) (Apr 27, 2000 8:36:12 PM)
KC, regarding 'retraining': the jury is still out on this, as not much research has been reported yet. I am involved in a project at Northwestern that is looking at this very question. Last summer we brought a group of kids in. Some were CAPD, some LD, some ADHD. Some were combos of the above. We take extensive pre-treatment measures on them, including electrophysiological measures.
TLC (ID=10) (Apr 27, 2000 8:37:37 PM)
What are kids like with LD?
Sandy (ID=12) (Apr 27, 2000 8:37:41 PM)
Dr. Z. What are electophiysicoloical measures?
Dr. Z (ID=8) (Apr 27, 2000 8:37:51 PM)
By electrophysiological measures I mean that we actually placed scalp electrodes on the kids and recorded brain activity during a subtle discrimination task. Then the kids got the earo treatment, 1 hour/day, 5 days/week, for 9 weeks.
TLC (ID=10) (Apr 27, 2000 8:38:32 PM)
what kind of problems do they have? whats the differents between CAPD and LD?
Dr. Z (ID=8) (Apr 27, 2000 8:39:24 PM)
Then following the treatment with earo, we once again made the electrophysiologic measurements, and the results strrongly suggested that the brain became more 'mature' with respect to the way in which it was processing these sound signals. This is ppreliminary, but very promising.
debbie (ID=7) (Apr 27, 2000 8:39:46 PM)
Sandy......Sarah may be involved in a study that will be using some of the same types of measures...will let you know when I find out
Sandy (ID=12) (Apr 27, 2000 8:40:02 PM)
Deb,
Sandy (ID=12) (Apr 27, 2000 8:40:13 PM)
I'm worried about that
Dr. Z (ID=8) (Apr 27, 2000 8:40:18 PM)
We are going to collect even more data using the same methods and new kids this summer. By Sept. we should have a very good idea about what is happening. (Sorry for the long-winded response...).
debbie (ID=7) (Apr 27, 2000 8:41:01 PM)
If you want Sandy. you can meet me in Gainesville when I go talk to the doctors over there..
TLC (ID=10) (Apr 27, 2000 8:41:05 PM)
How do you pick the Kids for the Test?
kc (ID=11) (Apr 27, 2000 8:42:39 PM)
Dr. Z: That sounds promising for us parents. Dr. Z: Do you have any experience with eduational settings and CAPD children. My catholic school suggested Special Education. My son is a math wizard and loves science and most subjects, but is about two years behind in writing and reading. We are pushing for an inclusion setting (all school districts in New York have them). Any ideas. He will be using an FM in September and going into third grade.
Dr. Z (ID=8) (Apr 27, 2000 8:42:40 PM)
Teresa--as for how LD kids look, and how they differ, the simple answer is that they overlap a lot. CAPD kids may end up with an LD Dx later on in life as their academic underachievement (if their CAPD is not effectively dealt with).
Sandy (ID=12) (Apr 27, 2000 8:42:59 PM)
Dr. Z. Are there any lomg term results of this test/treatemet?
debbie (ID=7) (Apr 27, 2000 8:45:06 PM)
Sandy, this is a type of test that has been used effectively in studying many types of disorders,,,it is not unique to CAPD or LD
kc (ID=11) (Apr 27, 2000 8:45:38 PM)
Teresa, after I found out my son was severe CAPD, I took him to get a complete battery of tests to determine if he had any other learning disabilities I was unaware of such as dsylexia, etc. The tests are called neuropsychological and psychoeducational. They took about 5 hours and were performed by Schneiders' Childrens Hospital on Long Island. Your school district can direct you as to where to go in your area... your school district should be paying for the tests.
Sandy (ID=12) (Apr 27, 2000 8:46:03 PM)
Debbie, how long have these tests been uses?
Dr. Z (ID=8) (Apr 27, 2000 8:46:17 PM)
KC--'Inclusion' means a lot of things. MAny CAPD kids can in fact function very well in a regular classroom, but in some situations, inclusion is used as an excuse to not provide more intensive and needed services (Note: this is my opinion, and many wouldn't agree). With an FM and certain other accomodations, he may do very well.
Dr. Z (ID=8) (Apr 27, 2000 8:46:34 PM)
Sandy:
debbie (ID=7) (Apr 27, 2000 8:46:57 PM)
kc i also had the psychoeducational testing done on Sarah to give me a good overall measure of where Sarah is at academically and to help pinpoint exactly what areas she needs the most help in
kc (ID=11) (Apr 27, 2000 8:48:17 PM)
Can you briefly mention a few "other accommodations". Do you mean have the teacher read the test to him, or give him extented time to finish tests, etc?
Dr. Z (ID=8) (Apr 27, 2000 8:48:23 PM)
Sandy- after the treatment, the earo kids as a group showed some significant improvement in areas like auditory memory and sound blending. When we brought them back for a 3rd time, 3-4 months after the treatment ended
TLC (ID=10) (Apr 27, 2000 8:48:38 PM)
Kc, what kind of test are they and do they put your child to sleep.
Dr. Z (ID=8) (Apr 27, 2000 8:49:43 PM)
...treatment ends, the gains persisted. Interestingly, while reading and spelling did not show gains immediatyely after the treatment ended, 3-4 months later some improvemnt was seen. Not huge, but we'll be following up with them in another few amonths again.
kc (ID=11) (Apr 27, 2000 8:50:00 PM)
TLC - no. My son thought they were fun. It involved fine motor skills, blocks, visual tests, I just wanted to know if he had any other problems to avoid his struggling in school unnecessarily.
TLC (ID=10) (Apr 27, 2000 8:50:04 PM)
My son needs all the help I can give him. Like I said before he knows some of his ABC but forget them easy.
debbie (ID=7) (Apr 27, 2000 8:50:25 PM)
Dr Z...are the results of this type of research published anywhere?
TLC (ID=10) (Apr 27, 2000 8:51:21 PM)
Kc you said I should ask the school or should I ask his speech teacher about these test?
Dr. Z (ID=8) (Apr 27, 2000 8:51:42 PM)
Debbie: I cannot support what you said enough: It is VERY helpful to have a complete psychoeducational eval conducted to get an idea of overall ability and specific patterns of strengths and weaknesses. Knowledge from this type of testing is essential (in my opinion) if the best possible treatment is to be implemented.
debbie (ID=7) (Apr 27, 2000 8:51:57 PM)
Sandy, I can research use of the electrophysiological testing and send you information
Sandy (ID=12) (Apr 27, 2000 8:52:50 PM)
Deb, I just do not want my neice used as research, she's to special.
Dr. Z (ID=8) (Apr 27, 2000 8:52:57 PM)
kc--yes, what you describe are reasonable accomodations, along with preferential seating, perhaps reduced homework assignments, etc.
debbie (ID=7) (Apr 27, 2000 8:53:54 PM)
Dr Z, this testing has been beneficial to me..I only wish someone would have recommended after the diagnosis was made,,,,when Sarah was diagnosed I was pretty much led to believe that a parent used coping mechanisms and classroom accomodations and that was it.
Dr. Z (ID=8) (Apr 27, 2000 8:54:48 PM)
Debbie--the work is not yet published. We presented the results from last summer at the Association for REsearch in Otolaryngology meetings in St. Pete, FL in February, but we are waiting until after this summer to publish the results. With the larger sample size they will be more conclusive.
kc (ID=11) (Apr 27, 2000 8:55:14 PM)
TLC: I initially asked my son's speech teacher to request that my school district test my son for CAPD. I went to the school district and asked them to perform the neuropsychological and psychoeducational tests. It will save the district some money in the long run to get a correct diagnosis instead of giving him resource room, speech, occupational therapy, etc. and have no improvement.
Dr. Z (ID=8) (Apr 27, 2000 8:55:36 PM)
Sandy: What concerns do you have about the type of research I described? MAybe I can put your mind at ease...
Dr. Z (ID=8) (Apr 27, 2000 8:55:48 PM)
...your mind at ease
TLC (ID=10) (Apr 27, 2000 8:55:54 PM)
My daughter is repeating 1st grade again because she had ear problem and fell behind in school in kindergarden so we made her repeat 1st grade again. she is inproving very much but goes to the special ed class for reading, writing and math. Do you think I should see if they can test her and the test that you have said "psycheducational"
debbie (ID=7) (Apr 27, 2000 8:56:02 PM)
Sandy, you can come to the U of F with me when I have the testing done if you would like....this is not an experimental research where they are conducting experiments on Sarah,,,the tests the Dr Z speaks of are proven tests that measure results...if you would like to know more about the program that Dr Z is involved with as a part of treatment...you can do the online demo at www.earobics.com
debbie (ID=7) (Apr 27, 2000 8:56:17 PM)
and you are right.......Sarah is very special =)
debbie (ID=7) (Apr 27, 2000 8:57:06 PM)
TLC...from one parent to another....I personally highly recommend the full psychoeducational testing.....in order to help you need to know exactly where she needs the help!
Dr. Z (ID=8) (Apr 27, 2000 8:58:15 PM)
Debbie & Sandy: You can find the results of some of our work with these techniques in the journal Science, 1996, Vol 273. pp 971-973.The article is "Auditory neurophysiologic responses and discriminatioin deficits in children with learning problems".
TLC (ID=10) (Apr 27, 2000 8:58:32 PM)
I think I will talk to the school and ask them about the test.
Sandy (ID=12) (Apr 27, 2000 8:58:38 PM)
Thank you
TLC (ID=10) (Apr 27, 2000 8:58:59 PM)
I need to run for a min but I will be back...
debbie (ID=7) (Apr 27, 2000 9:00:38 PM)
Sandy I have some other articles that I can send to you also once I find them..I have hard paper copies that I've presented to teachers and insurance companies
kc (ID=11) (Apr 27, 2000 9:00:43 PM)
TLC - if you do not feel comfortable about approaching the school, perhaps you can talk to someone at your local advocacy group. I was hesistant to ask my school until I spoke to the advocacy group and they informed me that my son should have had the tests performed over two years ago ! By New York law, a child cannot have an IEP without these tests. My school was in noncompliance. Don't be shy!.
kc (ID=11) (Apr 27, 2000 9:03:28 PM)
Dr. J. - This question is off the subject, but I was wondering if you could give me some insight as to why my son is having trouble reading, yet has excellent word discrimination and comprehension. His weaknesses are auditory memory, sequencing, attention and noise-to-ground . How do phonemes fit in here?
rave (ID=13) (Apr 27, 2000 9:04:39 PM)
(This user has entered CAPD: From the Heart)
Dr. Z (ID=8) (Apr 27, 2000 9:05:01 PM)
I don't know how common it is around the US, but in Chicago there are paid 'advocates' (well-paid, I should say), whose job it is to go in with parents to make a case for proper diagnosis and treatment. It shouldn't have to be this way, but that's the reality of special ed these days.
Sandy (ID=12) (Apr 27, 2000 9:05:44 PM)
Dr. Z. ........Is CAPD curable?
kc (ID=11) (Apr 27, 2000 9:06:01 PM)
In New York, the advocates have a hotline you can call for questions, and will attend IEP meetings for free, but a small donation is appreciated.
Dr. Z (ID=8) (Apr 27, 2000 9:06:23 PM)
kc- when you say excellent comprehension, you are referring to listening comp?
Sandy (ID=12) (Apr 27, 2000 9:07:14 PM)
Better said, can treatments prepair a child to meet normal testing requirements?
Patty (ID=14) (Apr 27, 2000 9:07:33 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 9:07:41 PM)
hi Patty....
Sandy (ID=12) (Apr 27, 2000 9:07:49 PM)
hi, patty
Dr. Z (ID=8) (Apr 27, 2000 9:08:34 PM)
Sandy-- Curable suggests eliminated completely, and I can't say that we are there yet. But I think that there are a number a accomodations and treatments that can greatly reduce the impact of CAPD. In my lifetime I do think that treatments can and will be developed that will allow for CAPD to be eliminated.
kc (ID=11) (Apr 27, 2000 9:08:44 PM)
Even though his reading is far below grade level and "choppy", his reading comprehension when he reads to HIMSELF, it is at grade level or above. He has similar comprehension results when some one reads TO HIM....at or above grade level. Did I answer your question?
Dr. Z (ID=8) (Apr 27, 2000 9:10:20 PM)
KC--what I would want to see is the _types_ of errors he is making. Does he represent all of the sounds in each word? Are there sequencing difficulties? Are irregualr words especially difficult? These questions and others can help to pinpoint the underlying cause.
Dr. Z (ID=8) (Apr 27, 2000 9:10:52 PM)
Hi PAtty
Patty (ID=14) (Apr 27, 2000 9:11:12 PM)
Hi everyone
Dr. Z (ID=8) (Apr 27, 2000 9:13:11 PM)
Sandy: We know that the brain is plastic, that is, that its 'wiring' can be changed through experience. And we know that the early you try to change the brain's wiring, the easier it is. So now the trick will be to identify kids as early as possible so that we can induce this change most easily (and so that the CAPD's effects will be wiped out before they impact other areas of learning).
kc (ID=11) (Apr 27, 2000 9:14:23 PM)
My son does not represent all the sounds in words, often he leaves out a sound or reverses sounds. He also has a tendency to race through a book and assumes a word is correct because he replaces it with a word that starts the same (house/horse) . He reads much better if I can slow him down. Depite it all, he understands the point of the story. He has difficulty after two years of reading help and tutoring spotting the rules of reading (such as a long vowel if a silent e is on the end of a word and two vowels are a long sound such as the oa in boat.).
Sandy (ID=12) (Apr 27, 2000 9:14:40 PM)
Is there an age level were the the SDA of this disorder declines?
debbie (ID=7) (Apr 27, 2000 9:16:04 PM)
Sandy ...do you remember the article that you saw in the July 5th issue of Time Magazine last year? That was an article that supports the theory of neuroplasticity and "rewiring" the brain.
kc (ID=11) (Apr 27, 2000 9:16:39 PM)
The article was "Retraining the Brain".
debbie (ID=7) (Apr 27, 2000 9:17:03 PM)
yes kc..that is the one..it was a very good article
Sandy (ID=12) (Apr 27, 2000 9:17:23 PM)
Yes, remember I sent that to you but I'm looking for a Dr's perspective, not Time Magazine
Dr. Z (ID=8) (Apr 27, 2000 9:18:00 PM)
KC: These are common problems that you are describing. I would suggest that an approach that aims to boost phonological awareness skills would be helpful, along with carefully structured lessons highlighting certain parts of words (especially the middle parts where the vowels tend to be).
lr (ID=15) (Apr 27, 2000 9:18:24 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 9:18:43 PM)
hi lr...thanks for joining us tonight...
Dr. Z (ID=8) (Apr 27, 2000 9:19:17 PM)
I read that article too. Usually the mass media doesn't do a very good job on that sort of thing, but that article was OK, I thought.
Dr. Z (ID=8) (Apr 27, 2000 9:19:27 PM)
Hi lr
Sandy (ID=12) (Apr 27, 2000 9:19:29 PM)
thank you
debbie (ID=7) (Apr 27, 2000 9:20:06 PM)
kc..when sarah did her testing...we found that her reading accuracy and speed were low..yet her comprehension was average......i found that very confusing......
kc (ID=11) (Apr 27, 2000 9:20:35 PM)
Dr. Z: Doesn't Earobics boost phonological awareness (Rat a Tat is a little difficult for him when he has to tap out each sound (he was tapping out each syllable until he got the hang of it). Back to the circles - will he accomplish all 75, or just the top circles unless he goes on to the advanced level?
Dr. Z (ID=8) (Apr 27, 2000 9:20:45 PM)
I don't think there is any data to answer your question, Sandy. The thing is, CAPD manifests itself in different ways throughout the lifespan. Some issues fade, others surface.
Sandy (ID=12) (Apr 27, 2000 9:21:55 PM)
I undestant thant, thank you from a concerned aunt
debbie (ID=7) (Apr 27, 2000 9:22:19 PM)
Dr Z : When Sarah went through FFW she had great difficulty with Old MacDonald's Flying Farm..but far that was the hardest game for her. What part of Earobics would address the same issues as OMDFF?
Dr. Z (ID=8) (Apr 27, 2000 9:23:06 PM)
One thing to remember when discussing comprehension is the way that these tests assess reading comp. Typically they use a multiple choice format, meaning the answer is right there. Kids who are bright and possess good thinking and reasoning skills often can rule out one or two alternatives and get the answer right without really having understood what they read. It thus _overestimates_ whatbthey are in fact understanding.
debbie (ID=7) (Apr 27, 2000 9:24:45 PM)
Dr Z...one thing that the psychologist explained to me when I questioned the comprehension scores was that alot of the reading on the test was what was referred to as "contextualized" reading...does that make a difference in your opinion?
Dr. Z (ID=8) (Apr 27, 2000 9:26:42 PM)
Let me digress for a munte on the topic of plasticity. In the lab where the work I was describing earlier took place, some other researchers took a group of Japanese adults who could not discriminate /la/ from /ra/ at all. This is a model for what some CAPD kids experience. Their brain's response to /la/'s and /ra/'s was recorded, then they were trained to discriminate the two sounds by doing many trilas of a discrimination task (with feedback regarding accuracy) In a few days they learned to do this. Most importantly, tTHEIR BRAINS CHANGED as a result of the training!
debbie (ID=7) (Apr 27, 2000 9:27:33 PM)
Dr Z...that is VERY encouraging to parents of kids with CAPD!
debbie (ID=7) (Apr 27, 2000 9:28:18 PM)
Patty.....did you have any questions for Dr Zecker tonight?
Dr. Z (ID=8) (Apr 27, 2000 9:28:32 PM)
Keep in mind these were adults, whose brains aren't as capable of changing as kids. Yet they learned, and their brains reflected the learning. When I speak with optimism about the future for CAPD kids, it's because studies like this show that cdramatic change can happen in a relatively short period of time.
Patty (ID=14) (Apr 27, 2000 9:29:32 PM)
No not really. I am just starting to use earobics step2 for my son.
debbie (ID=7) (Apr 27, 2000 9:29:52 PM)
I know I've seen what I consider dramatic changes in Sarah after FFW...it seems as if every day I see something new in Sarah.....
Dr. Z (ID=8) (Apr 27, 2000 9:30:52 PM)
kc--yes, earo does work on improving phono awareness skills. Re: the circles--he'll do all 75.
Rose (ID=16) (Apr 27, 2000 9:31:21 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 0027, 2000 09:31:37 PM)
hey Rose...you made it! how was the game?
Rose (ID=16) (Apr 27, 2000 9:32:13 PM)
still on we are losing :(
Dr. Z (ID=8) (Apr 27, 2000 9:32:25 PM)
Debbie-- Contextualized reading just means that the material was highly predictable, and that a kid with reasonable guessing ability could use that context to get it right even tho they lacked the ability to decode it well.
debbie (ID=7) (Apr 27, 2000 9:32:58 PM)
sorry to hear that Rose...
kc (ID=11) (Apr 27, 2000 9:33:23 PM)
Thanks to everyone. Thank you so much Dr. Z. You were a big help. I have to get the monsters to bed. Good night all
Dr. Z (ID=8) (Apr 27, 2000 9:33:33 PM)
Hi Rose
debbie (ID=7) (Apr 27, 2000 9:33:35 PM)
goodnight kc..
Dr. Z (ID=8) (Apr 27, 2000 9:33:53 PM)
You're welcome KC. Good luck!
Rose (ID=16) (Apr 27, 2000 9:34:35 PM)
Hi Dr. Z
Dr. Z (ID=8) (Apr 27, 2000 9:35:09 PM)
1
debbie (ID=7) (Apr 27, 2000 9:36:03 PM)
Dr Z,.....if a parent wants to learn more about CAPD....where would you recommend they turn?
Dr. Z (ID=8) (Apr 27, 2000 9:36:37 PM)
It seems that most everyone here tonight is familiar with FFW or earo.
debbie (ID=7) (Apr 27, 2000 9:37:07 PM)
its' a topic that is brought up in here often...Ann Osterling from FFW was with us last night as well as Marna from the Learning Foundation
Dr. Z (ID=8) (Apr 27, 2000 9:38:31 PM)
I would recommend Terri Bellis' book, the title opf which escapes me at the moment. That's a good starting point.
debbie (ID=7) (Apr 27, 2000 9:39:16 PM)
That's the book Im reading now....Assessment and Management of CAPD in the Educational Setting......
Dr. Z (ID=8) (Apr 27, 2000 9:40:16 PM)
Unfortunately, CAPD is new enough that there are not a lot of books that are accessible to those without some background in the field. I suspect that will change soon, since more and more kids are being Dxed all the time and the need is clearly there.
Rose (ID=16) (Apr 27, 2000 9:40:41 PM)
Dr.Z My son had his CAPD testing done but we are still waiting for the results
debbie (ID=7) (Apr 27, 2000 9:41:10 PM)
Earlier I asked about FFW vs Earo Sarah has completed FFW and had great difficulty with OMDFF.....now Im looking at Earo as a follow up to FFW to keep her moving forward....what activities in Earo would be similar to OMDFF?
Dr. Z (ID=8) (Apr 27, 2000 9:41:15 PM)
That's it Debbie. I guess I'm a bit parochial, since Terri was a student of mine here at Northwestern, but it is the best book out there, in my opinion.
Rose (ID=16) (Apr 27, 2000 9:41:26 PM)
Do you think more insurance companies will pay for testing and treatment in the future?
Rose (ID=16) (Apr 27, 2000 9:42:03 PM)
Debbie what does OMDFF stand for?
debbiedustin (ID=17) (Apr 27, 2000 9:42:10 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 9:42:18 PM)
Im excited that she will be joining in on the chat next Thursday...I did not realize she was your student! It is a book that seems to be written in language parents can understand!
Rose (ID=16) (Apr 27, 2000 9:42:25 PM)
Hi debbiedustin
debbie (ID=7) (Apr 27, 2000 9:42:41 PM)
OMDFF stands for Old MacDonald's Flying Farm..it is a game on FFW
debbie (ID=7) (Apr 27, 2000 9:42:50 PM)
hi debbiedustin
debbie (ID=7) (Apr 27, 2000 9:43:20 PM)
Rose, my insurance company does not cover ANY testing by an audiologist.
Dr. Z (ID=8) (Apr 27, 2000 9:44:29 PM)
Old McD's Flying Farm stresses sensitivity to phonemic differences. Hippo Hoops is most like this amonf the earo tasks.
Rose (ID=16) (Apr 27, 2000 9:44:53 PM)
Kind of sounds like the weird name of the example story on one of the CAPD sites, it is supposed to give you an idea of how a CAPD child interprets what they hear. I think it is called something like riddle ret riding rood or something weird likr that.
debbiedustin (ID=17) (Apr 27, 2000 9:45:04 PM)
My son has done ff1 and ff 2. Will he benefit from the adult adolescent ff if he never mastered trogwalkers?
debbie (ID=7) (Apr 27, 2000 9:47:02 PM)
Rose, I know the example you are speaking of! It is located on Brenda's site at www.angelfire.com/bc/capd
TLC (ID=18) (Apr 27, 2000 9:47:23 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 9:47:34 PM)
welcome back Teresa...
Dr. Z (ID=8) (Apr 27, 2000 9:47:34 PM)
Rose- Insurance companies arew of course trying to pay less for most everything these days. Companies vary tremndously, but a big problem right now is that CAPD is generally not recognized as a billable disorder. That is, it lacks a code number attached to it that ins. co's like so much.
Rose (ID=16) (Apr 27, 2000 9:47:49 PM)
I figure if my son hears thinks in that way it is amazing that he understands anything at all
TLC (ID=18) (Apr 27, 2000 9:48:45 PM)
Debbie, I called my daughter special Ed teacher and she said that in the state of Iowa they don't do them test in the schools anymore.
Dr. Z (ID=8) (Apr 27, 2000 9:49:23 PM)
Rose- 10 years ago, people were asking the same questions about ADHD. As a research literature developed that legitimized ADHD as a neurologically-based disorder, ins co's started to pay. I know of parents who actually sent copies of research articl;les to the companiees to educate them about ADHD. I suspect the same thing will happen with CAPD.
Rose (ID=16) (Apr 27, 2000 9:49:38 PM)
Our school system doesn't test for CAPD either, I had to get it done privately
debbie (ID=7) (Apr 27, 2000 9:49:45 PM)
Dr Z....May I ask you a general questions that is quite controversial? In your opinion, is CAPD a learning disorder or a medical disorder? I am running into the medical community telling me it's not covered by insurance because it is an educational problem, yet the school says it's medical.
debbie (ID=7) (Apr 27, 2000 9:50:15 PM)
TLC...refresh my memory...which tests were you asking for in paticular?
Rose (ID=16) (Apr 27, 2000 9:50:19 PM)
My son is also diagnosed with ADHD
TLC (ID=18) (Apr 27, 2000 9:50:36 PM)
psycheducational
Dr. Z (ID=8) (Apr 27, 2000 9:51:11 PM)
Debbie:
debbie (ID=7) (Apr 27, 2000 9:51:11 PM)
*looking confused*...the school does not do any psychoeducational testing? what do they do Teresa?
TLC (ID=18) (Apr 27, 2000 9:51:12 PM)
or neuropsychological
Rose (ID=16) (Apr 27, 2000 9:51:57 PM)
how do they identify problems in their students then?
debbie (ID=7) (Apr 27, 2000 9:52:06 PM)
they may not do the neuropsychological testing..that does not surprise me...but Im shocked they would say they dont do the psychoeducational testing!
TLC (ID=18) (Apr 27, 2000 9:52:55 PM)
the state of Iowa doesn't do that test anymore. They don't give a child a name if someone just needs help in reading and nothing else they will make sur e
TLC (ID=18) (Apr 27, 2000 9:53:15 PM)
that child gets the help....hit the wrong key
Rose (ID=16) (Apr 27, 2000 9:53:43 PM)
but how do they know the cause of the problem and the best way to help them?
Dr. Z (ID=8) (Apr 27, 2000 09:53:0049 PM)
This is controversial in part because there are many who don't think that the evidence exists to classify CAPD as a distinct disorder. Until this controversy is resolved, it will most likely be considered an educational problem. in my opinion, it is a medical issue, but I think that diagnosis is such in many areas that kids are being mislabeled. This mdrives the skeptics nuts...
debbiedustin (ID=17) (Apr 27, 2000 9:54:20 PM)
Sorry, Iwant to know if the older earobics program can improve the "deficit" that he was left with ff.
TLC (ID=18) (Apr 27, 2000 9:56:19 PM)
Well our insurance company that we have didn't cover speech and one of my son 's teachers asked me if I had applyed for SSI and we did and my son was approved for SSI and can get his speech now.
Rose (ID=16) (Apr 27, 2000 9:57:47 PM)
After my son's evaluation results are complete i plan to appy for ssi for insurance purposes only, we wouldn't be eligible for cash.
debbie (ID=7) (Apr 27, 2000 9:57:52 PM)
TLC.....your son was approved for SSI based on CAPD?
Dr. Z (ID=8) (Apr 27, 2000 9:58:02 PM)
Debbiedustin, that's hard to say, but recognize that these two products do different (although somewhat overlapping) things. I could very well be the case that earo could hit an area of deficit that was left unimproved by FFW.
Rose (ID=16) (Apr 27, 2000 9:58:15 PM)
my insurance only covers 8 weeks of therapy.
debbiedustin (ID=17) (Apr 27, 2000 9:59:09 PM)
How can I research to find out? Suggest names, phone numbers, web sites?
debbie (ID=7) (Apr 27, 2000 10:00:25 PM)
debbiedustin...did you know that Earo now has an online demo at www.earobics.com ?
debbiedustin (ID=17) (Apr 27, 2000 10:00:58 PM)
No, does that include the latest versions?
debbie (ID=7) (Apr 27, 2000 10:01:16 PM)
it's a brand new demo online.....it also includes information on earo you might want to check it out
Dr. Z (ID=8) (Apr 27, 2000 10:01:24 PM)
Debbiedustin- have you checked out the earo website. They have a lot of info that might help answer your question.
TLC (ID=18) (Apr 27, 2000 10:01:27 PM)
I don't know if it was because of his CAPD but the DR's SSI had there own people test my son Eric and we found out about 3 months later that he was approved.
Dr. Z (ID=8) (Apr 27, 2000 10:01:38 PM)
Beat me to the punch, debbie...
debbie (ID=7) (Apr 27, 2000 10:02:07 PM)
sorry Dr Z....i was really excited when the online demo came out!! Can you tell?
Patty (ID=14) (Apr 27, 2000 10:03:18 PM)
Should earobics be used daily or 2-3 times weekly?
debbiedustin (ID=17) (Apr 27, 2000 10:03:30 PM)
Thank you I was there much earlier this year but didn't get the answers I thought I needed. Tried to find someone with personal experience here in Dallas but unfortunately no one with experience with both products.
debbie (ID=7) (Apr 27, 2000 10:04:09 PM)
Dr Z....I want to thank you for participating in the chat tonight. I think the information that you've given out will be helpful to many... Im not sure if you know..the transcripts from all chats are archived for other to reference. I"ll have this chat archived by morning...
debbie (ID=7) (Apr 27, 2000 10:04:39 PM)
I hope you will come back and join us again!
Dr. Z (ID=8) (Apr 27, 2000 10:05:29 PM)
Patty: There is no strict approved regimen for using earo. In some of the work I described we had kids do 1 hour/day 5 days/week. that's certainly not required, but during the summer, and with proper motivation it was very doable.
Dr. Z (ID=8) (Apr 27, 2000 10:06:33 PM)
Thanks to all of you for participating--I enjoyed it. Good luck to all of you, and keep learning about CAPD and related topics--that is a real key to success!
Dr. Z (ID=8) (Apr 27, 2000 10:06:53 PM)
Goodnight all!
debbie (ID=7) (Apr 27, 2000 10:06:57 PM)
Dr Z.. Goodnight!!
Patty (ID=14) (Apr 27, 2000 10:07:17 PM)
Goodnight, Thanks
TLC (ID=18) (Apr 27, 2000 10:07:36 PM)
thanks good night
debbie (ID=7) (Apr 27, 2000 10:07:51 PM)
If any parents want to stay in the chat although Dr Z has to go..you are more than welcome to stay
Dr. Z (ID=8) (Apr 27, 2000 10:07:58 PM)
One final thing--if any of you would like to contact me, feel free. I'm at zecker@northwestern.edu. Bye.
debbie (ID=7) (Apr 27, 2000 10:08:11 PM)
Dr Z...i'll be in touch! =)
debbie (ID=7) (Apr 27, 2000 10:09:18 PM)
Rose,, you may enjoy going back and reading the transcript..some of the early comments were interesting!
TLC (ID=18) (Apr 27, 2000 10:10:13 PM)
debbie the chat was really good tonight
debbie (ID=7) (Apr 27, 2000 10:10:25 PM)
me thinks Rose is watching the game on tv...*LOL*
TLC (ID=18) (Apr 27, 2000 10:10:42 PM)
I am talking to her also
debbie (ID=7) (Apr 27, 2000 10:10:48 PM)
Teresa....I thought it was a good chat tonight too.....can i ask you a few questions about the chat in general?
debbie (ID=7) (Apr 27, 2000 10:11:00 PM)
oh ok...*LOL*...just picking on Rose...
TLC (ID=18) (Apr 27, 2000 10:11:21 PM)
yes
debbie (ID=7) (Apr 27, 2000 10:11:35 PM)
these questions are to both of you.....=)
debbie (ID=7) (Apr 27, 2000 10:11:50 PM)
1.) What type of things would you like to see discussed in the chat?
debbie (ID=7) (Apr 27, 2000 10:12:15 PM)
2.) What do you feel could be done to improve the chat?
Rose (ID=16) (Apr 27, 2000 10:12:34 PM)
i sure will do that, actually i was talking to TLC
debbie (ID=7) (Apr 27, 2000 10:12:46 PM)
3.) Has the information you've heard in the chat's been helpful to you?
TLC (ID=18) (Apr 27, 2000 10:12:47 PM)
i'm here
debbie (ID=7) (Apr 27, 2000 10:13:15 PM)
4.) Are the quick announcements that are sent out on the email list helpful?
TLC (ID=18) (Apr 27, 2000 10:13:25 PM)
yes the information has been really helpful to me and I am learning more about what CAPD is.
debbie (ID=7) (Apr 27, 2000 10:13:27 PM)
*LOL*...now i'll wait for your answers *L*
TLC (ID=18) (Apr 27, 2000 10:14:58 PM)
Can kids with "CAPD" get good Job and make a good living?
debbie (ID=7) (Apr 27, 2000 10:15:07 PM)
yes!
Rose (ID=16) (Apr 27, 2000 10:15:11 PM)
same here debbie right now I still don't even have my son's testing results, but the informtion I receive here lead me to where to get testing and Fast forward and earbotics information will be more helpful as we get into the treatment aspect of CAPD
TLC (ID=18) (Apr 0027, 2000 10:16:18 PM)
the Earobotics sound like it is great and I am going to have to try it.
debbie (ID=7) (Apr 27, 2000 10:16:24 PM)
i see no reason why when Sarah grows up she can not be whatever she wants to be....the CAPD will probably affect her still in some ways....but no more than hearing loss would affect a deaf person.....i know some very successful deaf people!
TLC (ID=18) (Apr 27, 2000 10:16:43 PM)
yes the email are very helpful.
debbie (ID=7) (Apr 27, 2000 10:16:53 PM)
TLC...were you in the chat last night? (forgiveme for asking...i was in and out so quickly)
debbie (ID=7) (Apr 27, 2000 10:17:12 PM)
Rose I ordered the demo cd today for the program Marna was talking about last night.
TLC (ID=18) (Apr 27, 2000 10:17:14 PM)
no I was not.
Rose (ID=16) (Apr 27, 2000 10:17:27 PM)
I would like to hear more about how CAPD effects a child with other learning disabilities and how we can deal with combination of problems
TLC (ID=18) (Apr 27, 2000 10:18:14 PM)
Rose does your son know his ABC's yet?
debbie (ID=7) (Apr 27, 2000 10:18:17 PM)
there was information given out about the Learning foundation... the website is www.lucotour.com you might want to check it out....i ordered the free demo cd today?
Rose (ID=16) (Apr 27, 2000 10:18:49 PM)
kind of ? he still mixes up j and K
debbie (ID=7) (Apr 27, 2000 10:18:55 PM)
Rose... Sarah has other learning problems as well as the CAPD. i believe firmly they are a result of the CAPD....
debbie (ID=7) (Apr 27, 2000 10:19:21 PM)
oops.... www.locutour.com
sherri (ID=19) (Apr 27, 2000 10:20:37 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=7) (Apr 27, 2000 10:20:44 PM)
hi sherri.. =)
TLC (ID=18) (Apr 27, 2000 10:21:09 PM)
Rose I am new to this also and I and trying to deal with this also and it really hard for me. I look at kids his age and they know the ABC's like my 4yr son knows them and he is helping my 6yr and it should be turn around the other way.
sherri (ID=19) (Apr 27, 2000 10:21:12 PM)
hi guys
debbie (ID=7) (Apr 27, 2000 10:21:15 PM)
how are you doing tonight?
TLC (ID=18) (Apr 27, 2000 10:21:15 PM)
hi
sherri (ID=19) (Apr 27, 2000 10:21:33 PM)
Ive had a hard couple of weeks
debbie (ID=7) (Apr 27, 2000 10:21:44 PM)
what's going on sherri?
sherri (ID=19) (Apr 27, 2000 10:22:13 PM)
My mother pastway last tue and my had a dr apt the last mon
Rose (ID=16) (Apr 27, 2000 10:22:48 PM)
Well so far my son has ADHD, is Dyslexic, has language delays, memory difficulty, reading difficulties etc, i can't even remember everything they have diagnosed as problem areas, Capd results still pending.
debbie (ID=7) (Apr 27, 2000 10:22:51 PM)
on sherri...im so sorry about your loss..*HUGS*
sherri (ID=19) (Apr 27, 2000 10:23:15 PM)
Michael had a dr appt. this mon with a developmental pediatric thanks debbie
debbie (ID=7) (Apr 27, 2000 10:23:31 PM)
Rose...once you get the results of the CAPD testing ...that may explain why some of the other problems...
debbie (ID=7) (Apr 27, 2000 10:23:44 PM)
how did the appt go sherri?
Rose (ID=16) (Apr 27, 2000 10:24:15 PM)
Oh I forgot to mention we also suspest SID
sherri (ID=19) (Apr 27, 2000 10:24:20 PM)
the day we had michael Appt it was my mothers Birthday the appt took 4 hours
debbie (ID=7) (Apr 27, 2000 10:25:14 PM)
ok Rose..im feeling a bit slow....SID?
debbie (ID=7) (Apr 27, 2000 10:25:24 PM)
i know i know this..but cant think *L*
TLC (ID=18) (Apr 27, 2000 10:25:26 PM)
rose, what is SID
sherri (ID=19) (Apr 27, 2000 10:25:37 PM)
the dr. told me that he has mixed developmental disorder developmental coordination and abn. process (duditory, visual fine moter, body
debbie (ID=7) (Apr 27, 2000 10:26:10 PM)
what was the dr's recommendations?
Rose (ID=16) (Apr 27, 2000 10:26:10 PM)
sensory integration dysfunction
debbie (ID=7) (Apr 27, 2000 10:26:24 PM)
thak you rose..
Rose (ID=16) (Apr 27, 2000 10:27:12 PM)
It may be something you want to look into if there are other problems
TLC (ID=18) (Apr 27, 2000 10:27:42 PM)
sherri how old is your child?
Rose (ID=16) (Apr 27, 2000 10:27:57 PM)
It is a problem with their sensual stimuli and interpretation of the senses
sherri (ID=19) (Apr 27, 2000 10:28:05 PM)
with SID is it over sensitive or under sensitive
sherri (ID=19) (Apr 27, 2000 10:28:10 PM)
Michael will be 7 in june
debbie (ID=7) (Apr 27, 2000 10:28:12 PM)
by the way.....just a heads up for those who participate in the morning chat's with Dr J......there will be a change in the scheudling of those chats real quick......due to a change in his schedule...
Rose (ID=16) (Apr 27, 2000 10:28:31 PM)
unlike CAPD it effects all senses
TLC (ID=18) (Apr 27, 2000 10:29:21 PM)
my son is very senstive. he gets his feeling hurt easy.
debbie (ID=7) (Apr 27, 2000 10:29:28 PM)
Rose that is something I will ask the dr about when we go back
debbie (ID=7) (Apr 27, 2000 10:29:37 PM)
TLC..so does Sarah
Rose (ID=16) (Apr 27, 2000 10:30:12 PM)
maybe I can send you some SId links and you can see if it relates to your child
sherri (ID=19) (Apr 27, 2000 10:30:28 PM)
just by the dr we just went to if you don't like the tags in your cloths or loud sounds if under sevsitive delay body awareness in space
TLC (ID=18) (Apr 27, 2000 10:30:40 PM)
how do they test for SID?
debbie (ID=7) (Apr 27, 2000 10:30:52 PM)
i would like to see them rose
Rose (ID=16) (Apr 27, 2000 10:30:55 PM)
Its another one of those things that only certain people can accurately diagnose
debbie (ID=7) (Apr 27, 2000 10:31:40 PM)
I am going to have to get going ladies...you are welcome to stay to chat
sherri (ID=19) (Apr 27, 2000 10:32:02 PM)
we went to da developmental specialest it was a 3 month wait
sherri (ID=19) (Apr 27, 2000 10:32:16 PM)
by debbie
TLC (ID=18) (Apr 27, 2000 10:32:28 PM)
by debbie
debbie (ID=7) (Apr 27, 2000 10:32:29 PM)
goodnight everyone....take care...=)
Rose (ID=16) (Apr 27, 2000 10:32:37 PM)
It is usually done by a developmental pediatriucian or an Occupational therapist but they have to either specialize or be familiar with SID, not all are
sherri (ID=19) (Apr 27, 2000 10:33:27 PM)
I'm not for sure I do know that the dr was wanting him tested for pt/ot
Rose (ID=16) (Apr 27, 2000 10:33:32 PM)
bye deb i'll see you tommorrow
sherri (ID=19) (Apr 27, 2000 10:34:33 PM)
the dr told us that he needed to be tested for adhd learning, speech/ language moter and sensory
TLC (ID=18) (Apr 27, 2000 10:34:41 PM)
sorry about that someone e-mail me.
sherri (ID=19) (Apr 27, 2000 10:35:23 PM)
the school will do alot of this and he has already be diagnoised with capd
Rose (ID=16) (Apr 27, 2000 10:35:42 PM)
My son still can't tie his shoes, he holds his pencil with three fingers and always breaks pencil points, he puts shoes on the wrong feet, writing is illegible, can't stand to keep clothes or shoes on.
TLC (ID=18) (Apr 27, 2000 10:36:11 PM)
my son can't tie his shoes either.
sherri (ID=19) (Apr 27, 2000 10:36:18 PM)
Rose how old is he
Rose (ID=16) (Apr 27, 2000 10:36:42 PM)
he will be 8 on Saturday
sherri (ID=19) (Apr 27, 2000 10:36:57 PM)
I calleded a college today about gettting him a tutor this summer
Rose (ID=16) (Apr 27, 2000 10:37:44 PM)
yet with all of his roblems he has an above average intellignce and doing well in school , still needs resource room for reading
sherri (ID=19) (Apr 27, 2000 10:38:23 PM)
If there is a college around you that might be able to help like that they a re people getting teaching degrees in LD
Rose (ID=16) (Apr 27, 2000 10:38:38 PM)
I'm requesting summer tutoring be included in my son's IEP, he loses too much information over the summer
TLC (ID=18) (Apr 27, 2000 10:38:49 PM)
my son goes to speech 2 times a week for 1/2 each time.
Rose (ID=16) (Apr 27, 2000 10:39:25 PM)
I'm hoping that they will pay for it , I can't afford any addition expenses at this time
TLC (ID=18) (Apr 27, 2000 10:39:26 PM)
where you from sherri?
Rose (ID=16) (Apr 27, 2000 10:40:06 PM)
my son is getting 1 hr of language therapy a week for 8 weeks after that I hope the school picks up, I won't be able to afford it
TLC (ID=18) (Apr 27, 2000 10:41:25 PM)
sherri I should call college around my area to see if they can tutor my son. thats a good idea.
Rose (ID=16) (Apr 27, 2000 10:41:30 PM)
listen gang i have to run and make cupcakes , my son needs them for school since his birthday is Sat.
Rose (ID=16) (Apr 27, 2000 10:41:57 PM)
TLC what are those three numbers again i'll write them down?
TLC (ID=18) (Apr 27, 2000 10:42:37 PM)
how much does it cost for language therapy in your area? it is $80.00 for a 1/2 hour here in Iowa.
Rose (ID=16) (Apr 27, 2000 10:42:44 PM)
i'll get in contact with you tommorrow
TLC (ID=18) (Apr 27, 2000 10:43:17 PM)
ya I need to run also but I will e-mail you rose if thats ok?
Rose (ID=16) (Apr 27, 2000 10:43:18 PM)
i have no idea my insurance is covering the 8 weeks, it only costs me $5.00 a week
TLC (ID=18) (Apr 27, 2000 10:43:47 PM)
have a good night.
Rose (ID=16) (Apr 27, 2000 10:43:49 PM)
Is fine can you e-mail me your address I already forgot it
TLC (ID=18) (Apr 27, 2000 10:44:08 PM)
bye
TLC (ID=18) (Apr 27, 2000 10:44:20 PM)
ok
Rose (ID=16) (Apr 27, 2000 10:44:21 PM)
You too It was good talking with you bye
Rose (ID=16) (Apr 27, 2000 10:44:29 PM)
thank You
TLC (ID=20) (Apr 27, 2000 10:44:35 PM)
(This user has entered CAPD: From the Heart)
sherri (ID=21) (Apr 27, 2000 10:45:55 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=23) (Apr 27, 2000 11:05:05 PM)
(This user has entered CAPD: From the Heart)
