babs (ID=20) (May 9, 2000 4:52:16 PM)
(This user has entered CAPD: From the Heart)
babs (ID=20) (May 9, 2000 4:52:36 PM)
anyone in here
woody (ID=21) (May 9, 2000 8:57:57 PM)
(This user has entered CAPD: From the Heart)
kala (ID=22) (May 9, 2000 9:01:05 PM)
(This user has entered CAPD: From the Heart)
donna (ID=23) (May 9, 2000 9:06:22 PM)
(This user has entered CAPD: From the Heart)
kala (ID=24) (May 9, 2000 9:07:16 PM)
(This user has entered CAPD: From the Heart)
woody (ID=21) (May 9, 2000 9:07:54 PM)
hi kala
kala (ID=24) (May 9, 2000 9:08:21 PM)
HI Woody
woody (ID=21) (May 9, 2000 9:09:23 PM)
so how have things been with you
vienna (ID=25) (May 9, 2000 9:09:33 PM)
(This user has entered CAPD: From the Heart)
woody (ID=21) (May 9, 2000 9:09:46 PM)
hi vienna
kala (ID=24) (May 9, 2000 9:09:54 PM)
Things are fine. It is a lovely day here and I can't wait to get out in it.
kala (ID=24) (May 9, 2000 9:10:03 PM)
Hi V,
woody (ID=21) (May 9, 2000 9:10:14 PM)
where are you?
kala (ID=24) (May 9, 2000 9:10:22 PM)
Alaska
kala (ID=24) (May 9, 2000 9:10:41 PM)
YOu?
viennav (ID=26) (May 9, 2000 9:10:43 PM)
(This user has entered CAPD: From the Heart)
woody (ID=21) (May 9, 2000 9:10:51 PM)
i'm in florida, will trade with you
kala (ID=24) (May 9, 2000 9:10:59 PM)
Welcome Back V, Where'd you go?
viennav (ID=26) (May 9, 2000 9:11:07 PM)
Sigh..........bounced myself right out of the system.
woody (ID=21) (May 9, 2000 9:11:14 PM)
hi veinnav
kala (ID=24) (May 9, 2000 9:11:16 PM)
I willbe in FL in June, can't wait
viennav (ID=26) (May 9, 2000 9:11:18 PM)
hi woody.
woody (ID=21) (May 9, 2000 9:11:29 PM)
we are in jacksonville
kala (ID=24) (May 9, 2000 9:11:46 PM)
That's in the north, right?
woody (ID=21) (May 9, 2000 9:12:13 PM)
wes northeast, just over the ga border
woody (ID=21) (May 9, 2000 9:12:29 PM)
i mean yes, not wes
kala (ID=24) (May 9, 2000 9:12:40 PM)
LOL, i understood
viennav (ID=26) (May 9, 2000 9:12:56 PM)
So this is my 1st time in the CAPD chat sight...........Does this place get a little more active or what?
kala (ID=24) (May 9, 2000 9:13:24 PM)
Hey V, You can't beat the company, after all I am here
woody (ID=21) (May 9, 2000 9:13:31 PM)
sometimes, it was from 10 to 12 before
viennav (ID=26) (May 9, 2000 9:13:35 PM)
pfffffffft.
kala (ID=24) (May 9, 2000 9:13:46 PM)
Fine be that way!!!!
viennav (ID=26) (May 9, 2000 9:13:50 PM)
My screen is blurry, I should be doing this from work!
viennav (ID=26) (May 9, 2000 9:14:00 PM)
I have got to get this computer into the doctor.
viennav (ID=26) (May 9, 2000 9:14:39 PM)
Does anyone know if CAPD can be hereditory?
woody (ID=21) (May 9, 2000 9:14:41 PM)
open the back might have alot of dust inside
kala (ID=24) (May 9, 2000 9:14:52 PM)
Just so you know Woody, Vienna and I are friends, so if we seem rude to each other, that's normal.
viennav (ID=26) (May 9, 2000 9:15:01 PM)
Naw...........I lost my video and printer drivers.............
viennav (ID=26) (May 9, 2000 9:15:17 PM)
The Microsoft Tutorial for help is about worthless.
woody (ID=21) (May 9, 2000 9:15:31 PM)
i'm just in here to help if i can
viennav (ID=26) (May 9, 2000 9:15:40 PM)
I've tried everything little thing they've suggested and still can't get my computer
viennav (ID=26) (May 9, 2000 9:15:45 PM)
to load right.
kala (ID=24) (May 9, 2000 9:15:51 PM)
It would not surprise me if CAPD was hereditary, after all many language and speech diorders are.
viennav (ID=26) (May 9, 2000 9:16:16 PM)
As a result, I've got 16 colors and the lowest pixels my computer is capable of.
woody (ID=21) (May 9, 2000 9:16:28 PM)
by they way i'm debbie's husband
viennav (ID=26) (May 9, 2000 9:16:52 PM)
I'm sorry, I don't know who debbie is.
woody (ID=21) (May 9, 2000 9:16:56 PM)
i try to help her when ever i can
woody (ID=21) (May 9, 2000 9:17:27 PM)
debbie is the one who set up this web site
viennav (ID=26) (May 9, 2000 9:17:39 PM)
oh.........how fabulous.
viennav (ID=26) (May 9, 2000 9:17:46 PM)
and most insightful as well.
viennav (ID=26) (May 9, 2000 9:18:17 PM)
Kala..........did you see that cute bunny?
kala (ID=24) (May 9, 2000 9:18:39 PM)
What bunny?? Where???
viennav (ID=26) (May 9, 2000 9:19:02 PM)
at the top of the screen.......above your name...........ads keep sliding across the screen
viennav (ID=26) (May 9, 2000 9:19:09 PM)
different chat times and what not.
woody (ID=21) (May 9, 2000 9:19:18 PM)
we ran into problems with our daughter from the school board and doctor's when they didn't know what to do
kala (ID=24) (May 9, 2000 9:19:40 PM)
Yes very cute. They had an add for earobics earlier, it's one of the therapy tools I told you about
viennav (ID=26) (May 9, 2000 9:19:49 PM)
Well, my doctor was very honest in saying he didn't know anything about CAPD.
woody (ID=21) (May 9, 2000 9:20:12 PM)
she has gotten a lot of doctors to come to the chat so people can ask questions
kala (ID=24) (May 9, 2000 9:20:40 PM)
It's not real uncommon CAPD has really only come into it's own over the past few years
kala (ID=24) (May 9, 2000 9:20:59 PM)
Many kids were diagnoses LD or Attention Deficit
viennav (ID=26) (May 9, 2000 9:21:01 PM)
I would imagine in another 10, people will know CAPD backwards and forwards.
viennav (ID=26) (May 9, 2000 9:21:09 PM)
Like Aids............education is everything.
viennav (ID=26) (May 9, 2000 9:21:25 PM)
10 people,,,,,,,,,,,pftttttttttt. didn't eat dinner, I meant 10 years.
kala (ID=24) (May 9, 2000 9:21:54 PM)
I feel your pain. I'm munching on skittles, Now that's nutrition
woody (ID=21) (May 9, 2000 9:22:01 PM)
here in fl they don't how to handle it and when you suggest something on how to help your child they think you are crazy
viennav (ID=26) (May 9, 2000 9:22:10 PM)
Kala...........Noah wore his undies all day and hasn't had a single accident.
kala (ID=24) (May 9, 2000 9:22:23 PM)
YEAH NOAH
viennav (ID=26) (May 9, 2000 9:22:25 PM)
He just did a really really big job for me.........And I didn't put him on the pot.
viennav (ID=26) (May 9, 2000 9:22:27 PM)
He came to me.
kala (ID=24) (May 9, 2000 9:23:08 PM)
Woody, the UNiversity of Florida in Gainville, has a good Speech and Hearing Program with someone on faculty who is an expert at CAPD
viennav (ID=26) (May 9, 2000 9:23:20 PM)
I have discovered, that you have to be firm with your medical providers, you are your childs best advocate. Sometimes you just have to make like you know what you are doing.
woody (ID=21) (May 9, 2000 9:23:47 PM)
Deb took Sarah down there last week
viennav (ID=26) (May 9, 2000 9:23:48 PM)
So who's the closes expert in CAP
viennav (ID=26) (May 9, 2000 9:23:53 PM)
D to alaska.
woody (ID=21) (May 9, 2000 9:24:11 PM)
She found out that Sarah has slip in some areas
viennav (ID=26) (May 9, 2000 9:24:23 PM)
slip?
woody (ID=21) (May 9, 2000 9:24:42 PM)
when backwards
kala (ID=24) (May 9, 2000 9:24:59 PM)
My guess is going to be someone in Washington, not sure who though
woody (ID=21) (May 9, 2000 9:25:02 PM)
went backwards
kala (ID=24) (May 9, 2000 9:25:14 PM)
Waht type of CAPD testing has she had?
kala (ID=24) (May 0009, 2000 9:0025:51 PM)
Or is it too many to mention?
woody (ID=21) (May 9, 2000 9:26:08 PM)
I don't know for sure but I think everything that is avaible.
woody (ID=21) (May 9, 2000 9:27:01 PM)
she has a FM receiver in school that help her alot
kala (ID=24) (May 9, 2000 9:27:09 PM)
The hard part about CAPD is that there is no quick fix. Especially if she is severely disorded, I can see where it would be frustrating.
kala (ID=24) (May 9, 2000 9:27:59 PM)
How old is she?
woody (ID=21) (May 9, 2000 9:28:04 PM)
you wouldn't know she had it if didn't know what to look for. She is very acttive in school and sports
viennav (ID=26) (May 9, 2000 9:28:14 PM)
mmmmm. saw an email today from a guy who's 12 yr old switched schools and the new school district doesn't want to foot the bill for an FM system. I rather thought they couldn't get away with that with the American Disabilities Act.
kala (ID=24) (May 9, 2000 9:28:58 PM)
PL 99-soemthing or other mandates it if it is in the IEP, if remember sorrectly.
woody (ID=21) (May 9, 2000 9:29:00 PM)
she is 8, they don't think this is a disability
woody (ID=21) (May 9, 2000 9:29:36 PM)
they think she will grow out of it
viennav (ID=26) (May 9, 2000 9:29:43 PM)
I would think that is best determined by a physician not the school board.
kala (ID=24) (May 9, 2000 9:29:48 PM)
Some kids do.
kala (ID=24) (May 9, 2000 9:30:05 PM)
Or at least learn very good compensatory strtegies
viennav (ID=26) (May 9, 2000 9:30:20 PM)
In Alaska, my kids CAPD score has resulted in yet another IEP meeting.
kala (ID=24) (May 9, 2000 9:30:38 PM)
Well, the schools sometimes have to be pressured
viennav (ID=26) (May 9, 2000 9:31:07 PM)
Very true, pressure, pressure, pressure,
kala (ID=24) (May 9, 2000 9:31:08 PM)
And it helps for parents to know what they are entitled to
woody (ID=21) (May 9, 2000 9:31:19 PM)
if you don't pressure the school they just let it slide
viennav (ID=26) (May 9, 2000 9:31:27 PM)
Grandma was right, the squeekly wheel gets the grease.
kala (ID=24) (May 9, 2000 9:31:39 PM)
AMEN and AMEN
woody (ID=21) (May 9, 2000 9:31:59 PM)
they don't want you to be a thorn in their side
kala (ID=24) (May 9, 2000 9:32:03 PM)
Give me a minute and I'll dig up that PL-99 whatever?
viennav (ID=26) (May 9, 2000 9:32:15 PM)
dig................dig................dig............you go girl
woody (ID=21) (May 9, 2000 9:32:21 PM)
ok we'll time you
viennav (ID=26) (May 9, 2000 9:33:01 PM)
59. mississippi 58 mississippi 57 mississippi 56 mississippi
viennav (ID=26) (May 9, 2000 9:33:35 PM)
55 mississippi 54 mississippi 53 mississippi 52 mississippi
kala (ID=24) (May 9, 2000 9:33:40 PM)
It might take me awhile, chat amongst yourselves
viennav (ID=26) (May 9, 2000 9:33:43 PM)
Never mind............takes too long to type.
woody (ID=21) (May 9, 2000 9:33:47 PM)
ok time limits up
viennav (ID=26) (May 9, 2000 9:34:53 PM)
My daughter is 11, her CAPD was only identified a couple of weeks ago. Although she had problems at birth, so about every 2 years, something new and interesting pops up.
woody (ID=21) (May 9, 2000 9:36:14 PM)
sarah was 5 when we found out and we been fighting all the way to where we are now.
woody (ID=21) (May 9, 2000 9:37:12 PM)
we have another who is 6, but she seems fine, we had her tested also
viennav (ID=26) (May 9, 2000 9:37:59 PM)
well, I got dragged thru the 1st 5 yrs of Sierra's medical life, now I have my hand firmly in all her medical/education arenas. Education is the best weapon, They can't snow you if you know what you are talking about. Fortunately I have an audiologist willing to help educate me
kmanbam (ID=27) (May 9, 2000 9:38:20 PM)
(This user has entered CAPD: From the Heart)
woody (ID=21) (May 9, 2000 9:38:36 PM)
hi kmanbam
viennav (ID=26) (May 9, 2000 9:38:36 PM)
welcome kman
kmanbam (ID=27) (May 9, 2000 9:38:46 PM)
hello
kala (ID=24) (May 9, 2000 9:39:50 PM)
OK so , no such luck, I couldn't find it, but I'll keep looking and if I find it I'll pass it on. The EDucation for all Handicapped children Act of 1975, was all I could drag up
kala (ID=24) (May 9, 2000 9:40:05 PM)
But I'm not sure if that's it
woody (ID=21) (May 9, 2000 9:40:06 PM)
we have dr that all we have to is but his name on the bottom and the school boards goes bonkers. they bend over backwards to help you then
viennav (ID=26) (May 9, 2000 9:41:20 PM)
mmmmmmmmmmmmmm......can ya scan his signature.
kala (ID=24) (May 9, 2000 9:43:26 PM)
V, you stopped talking, that's a first
woody (ID=21) (May 9, 2000 9:43:28 PM)
don't have a scanner, he knows the medical law about what the school boards is suppose to do when this happens
woody (ID=21) (May 9, 2000 9:44:37 PM)
Kmanbam you can jump in when ever you wish
kala (ID=24) (May 9, 2000 9:44:46 PM)
V, did you see that they have designated Wed for the parent and professionals chat
viennav (ID=26) (May 9, 2000 9:44:58 PM)
sorry,,,,,,,,,just making arrangements with the kids.
kmanbam (ID=27) (May 9, 2000 9:45:03 PM)
ok, was just happy listening
viennav (ID=26) (May 9, 2000 9:45:11 PM)
Sierra invited Joey to GLU and his dad seemed less than thrilled.
viennav (ID=26) (May 9, 2000 9:45:26 PM)
nope misseed that banner.
viennav (ID=26) (May 9, 2000 9:46:12 PM)
brb..............need to make some family adjustments.
woody (ID=21) (May 9, 2000 9:48:09 PM)
kmanbam where are you from and do you have ant questions?
woody (ID=21) (May 9, 2000 9:48:30 PM)
typing not the best
kala (ID=24) (May 9, 2000 9:48:55 PM)
Woody, how long has this room been running?
kmanbam (ID=27) (May 9, 2000 9:48:58 PM)
near horseheads.....we talked last week.
woody (ID=21) (May 9, 2000 9:49:39 PM)
she got it up and going about 2 monthes ago
kala (ID=24) (May 9, 2000 9:49:54 PM)
I think it's wonderful
viennav (ID=26) (May 9, 2000 9:49:59 PM)
Well then, it's not like I've missed great gobs of info.
woody (ID=21) (May 9, 2000 9:50:16 PM)
sorry kmanbam i didn't remember
kmanbam (ID=27) (May 9, 2000 9:50:24 PM)
that's ok
kala (ID=24) (May 9, 2000 9:50:32 PM)
The parent/professional chat is every other Wed 8:30 to 10:00
viennav (ID=26) (May 9, 2000 9:51:00 PM)
well then it sounds like another windy evening well spent if you ask me.
viennav (ID=26) (May 9, 2000 9:51:14 PM)
The caps are getting bigger.
kala (ID=24) (May 9, 2000 9:51:16 PM)
I'd rather be kayaking, no offense
viennav (ID=26) (May 9, 2000 9:51:32 PM)
yeah, I'd like to see you fight those waves missy.
woody (ID=21) (May 9, 2000 9:51:48 PM)
no offense taken
kala (ID=24) (May 9, 2000 9:51:53 PM)
I'd just make you do all the work, STROKE.... STROKE...
viennav (ID=26) (May 9, 2000 9:52:16 PM)
Ha.........I'm in the back doing the steering.............remember.
kala (ID=24) (May 9, 2000 9:52:24 PM)
BULL
woody (ID=21) (May 9, 2000 9:52:48 PM)
doing the steering or all the yelling?
viennav (ID=26) (May 9, 2000 9:53:01 PM)
sniff............I don't yell.
viennav (ID=26) (May 9, 2000 9:53:13 PM)
splash a little is all.
woody (ID=21) (May 9, 2000 9:53:24 PM)
got to up there its to cold not to
kala (ID=24) (May 9, 2000 9:53:40 PM)
Be nice to me or i'll just pretend to paddle
viennav (ID=26) (May 9, 2000 9:53:50 PM)
Yeah..........like my mother.
kala (ID=24) (May 9, 2000 9:53:58 PM)
LOL LOL
viennav (ID=26) (May 9, 2000 9:53:58 PM)
dip..............dip...................dip
woody (ID=21) (May 9, 2000 9:54:09 PM)
paddle paddle backward all the way home
kala (ID=24) (May 9, 2000 9:54:30 PM)
In SE where we are, it is very mild, and we are having lovely weather this week
viennav (ID=26) (May 9, 2000 9:54:35 PM)
hey we ought to try that out next. See if we can make it backwards.
woody (ID=21) (May 9, 2000 9:54:49 PM)
how is the weather up in horsehead these days
kala (ID=24) (May 9, 2000 9:55:00 PM)
Where is Horsehead
woody (ID=21) (May 9, 2000 9:55:08 PM)
in NY
viennav (ID=26) (May 9, 2000 9:55:10 PM)
Have they figured out why Sara has CAPD?
woody (ID=21) (May 9, 2000 9:55:21 PM)
no!!!
kmanbam (ID=27) (May 9, 2000 9:55:25 PM)
Very warm here. A cold front came through tonight, but still in upper 60's.
woody (ID=21) (May 9, 2000 9:55:50 PM)
it is hot and muggy down here will trade
kala (ID=24) (May 9, 2000 9:55:58 PM)
That has got to be the real bummer, not knowing, but it can be just as frustrating to the peoplw who are trying to help
kmanbam (ID=27) (May 9, 2000 9:56:01 PM)
Is there usually a reason for CAPD?
woody (ID=21) (May 9, 2000 9:56:18 PM)
summer not here yet but sure does feel like it
viennav (ID=26) (May 9, 2000 9:56:21 PM)
Well my kid had a 4th degree intercranial hemmorhage at birth, At least I know why she
viennav (ID=26) (May 9, 2000 9:56:27 PM)
has all the problems she does.
woody (ID=21) (May 9, 2000 9:57:03 PM)
some say yes and some say no
kmanbam (ID=27) (May 9, 2000 9:57:09 PM)
Oh, my. Any other problems besides CAPD?
kala (ID=24) (May 9, 2000 9:57:18 PM)
I think it is only fair to tell you all that not only am I Vienna's friend, but I am also and audiologist, I am not an expert in CAPD, but I am learning
viennav (ID=26) (May 9, 2000 9:57:20 PM)
left side blind.
viennav (ID=26) (May 9, 2000 9:57:30 PM)
history of siezure disorder
viennav (ID=26) (May 9, 2000 9:57:42 PM)
one side of her body is shorter than the other.
viennav (ID=26) (May 9, 2000 9:57:58 PM)
hands/ feet, legs, even her tongue is bigger on one side.
kala (ID=24) (May 9, 2000 9:58:07 PM)
I know how frustrating it can be to not give a definative answer
viennav (ID=26) (May 9, 2000 9:58:19 PM)
She has had some learning disabilities associated with the brain trauma.
kmanbam (ID=27) (May 9, 2000 9:58:50 PM)
There is a specific syndrome that manifests unilaterally shor extremities, isn't there?
viennav (ID=26) (May 9, 2000 9:58:53 PM)
increased pressure in her eyes (glaucoma)
viennav (ID=26) (May 9, 2000 9:59:00 PM)
And the list goes on.
kala (ID=24) (May 9, 2000 10:00:02 PM)
ANd while it all sounds daunting, she is probably functioning so much better than they ever gave you hope for
viennav (ID=26) (May 9, 2000 10:00:03 PM)
I wouldn't know,,,,,,,Sierra's body is smaller on the opposite side of the trauma site, the ortho doc said it was because the brain isn't "firing off" growth spurts at the same rate the healthy side is.
viennav (ID=26) (May 9, 2000 10:00:24 PM)
AMEN, most kids with her condition at birth die.
viennav (ID=26) (May 9, 2000 10:00:36 PM)
She can't be picked out of a group of 5 kids.
viennav (ID=26) (May 9, 2000 10:00:40 PM)
Very normal looking.
woody (ID=21) (May 9, 2000 10:00:48 PM)
sounds like she is fighter
kala (ID=24) (May 9, 2000 10:02:07 PM)
Well, listen V I need to get home and take my poochie for a walk. What are youup to later
viennav (ID=26) (May 9, 2000 10:02:10 PM)
I'd say more like a walking miracle.......The first 3 years of my daughters life, no one knew what caused the hemmorage or how normal she was going to be, or why she survived.
viennav (ID=26) (May 9, 2000 10:02:21 PM)
They scratched their hands and proclamed a miracle.
kmanbam (ID=27) (May 9, 2000 10:02:36 PM)
thank God for miracles.
viennav (ID=26) (May 9, 2000 10:02:37 PM)
I think I'm going to the intersessors meeting.
viennav (ID=26) (May 9, 2000 10:02:44 PM)
I haven't been in a couple of weeks.
kala (ID=24) (May 9, 2000 10:02:59 PM)
OK, I'll see you tommorrow. Bye all, have a nice night.
viennav (ID=26) (May 9, 2000 10:03:01 PM)
I need to get back on track with my prayer life.
viennav (ID=26) (May 9, 2000 10:03:05 PM)
bye Kala.
kmanbam (ID=27) (May 9, 2000 10:03:11 PM)
nite.
woody (ID=21) (May 9, 2000 10:03:20 PM)
bye kala nice talking to you
kmanbam (ID=27) (May 9, 2000 10:03:55 PM)
How would one determine the "cause " of CAP
kmanbam (ID=27) (May 9, 2000 10:04:02 PM)
D
viennav (ID=26) (May 9, 2000 10:04:19 PM)
I would imagine it would be up to your health care providers.
woody (ID=21) (May 9, 2000 10:04:25 PM)
that is a very good question?
viennav (ID=26) (May 9, 2000 10:0004:32 PM)
It could even be hereditory.
donna (ID=28) (May 9, 2000 10:04:44 PM)
(This user has entered CAPD: From the Heart)
woody (ID=21) (May 9, 2000 10:04:57 PM)
hi donna
viennav (ID=26) (May 9, 2000 10:04:59 PM)
Much easier to treat the symptoms if you know what the cause is.
viennav (ID=26) (May 9, 2000 10:05:08 PM)
hello donna
woody (ID=21) (May 9, 2000 10:05:15 PM)
and if you have support
donna (ID=28) (May 9, 2000 10:05:25 PM)
Hi. I was just reading about your daughter Woody. Sounds just like my daughter Erica who is 7 1/2
viennav (ID=26) (May 9, 2000 10:05:28 PM)
well I like the bully method myself.
woody (ID=21) (May 9, 2000 10:05:51 PM)
that not my daughter
kmanbam (ID=27) (May 9, 2000 10:05:52 PM)
"bully method"?
viennav (ID=26) (May 9, 2000 10:06:02 PM)
Two ugly words.
viennav (ID=26) (May 9, 2000 10:06:08 PM)
Lawyers and Litigation
kmanbam (ID=27) (May 9, 2000 10:06:30 PM)
Did you have to use that approach?
kmanbam (ID=27) (May 9, 2000 10:06:44 PM)
What acomodations did you get?
woody (ID=21) (May 9, 2000 10:06:44 PM)
then they jump through hops to made you happy
viennav (ID=26) (May 9, 2000 10:07:07 PM)
I took the audiologist with me to a meeting with my daughters new school (we are graduating to the 6th grade). I wanted to be sure they werent going to fight me about the FM system. (Although to be truthful, the one they have is about older than dirt)
donna (ID=28) (May 9, 2000 10:07:45 PM)
I am sorry. I thought she was. I need advice. My daughter's school wants to retain her because of her auditory problem. What should I do. She is going to an audiologist in several weeks.
viennav (ID=26) (May 9, 2000 10:08:01 PM)
I'm getting an FM system, and an IEP meeting in OCT. And possibly some sign
kmanbam (ID=27) (May 9, 2000 10:08:02 PM)
Does she have any accomodations other than FM?
viennav (ID=26) (May 9, 2000 10:08:04 PM)
language classes.
woody (ID=21) (May 9, 2000 10:08:54 PM)
when did they know about her auditory problem?
donna (ID=28) (May 9, 2000 10:09:26 PM)
She went before the Child Study Team about one month ago. She was just approved for language services twice a week.
viennav (ID=26) (May 9, 2000 10:09:38 PM)
What about summer school, they are offering my 11 yr old some summer school classes
woody (ID=21) (May 9, 2000 10:09:51 PM)
if they knew about it at the begin of the school year they should of had her tested then
donna (ID=28) (May 9, 2000 10:10:26 PM)
They feel any tutoring or summer school will not bring her up to speed. She is suppossed to enter third grade and she is only starting to read at a second grade level.
viennav (ID=26) (May 9, 2000 10:10:42 PM)
yes but unless your child can hear in a class room setting, what good is pulling her out of the class setting going to do.
viennav (ID=26) (May 9, 2000 10:11:07 PM)
pfffffffffffft. We practice at home 20 minutes a day. It's amazing how fast kids pick up.
donna (ID=28) (May 9, 2000 10:11:12 PM)
Yes. I agree. They should have had her tested at the beginning of the year.
viennav (ID=26) (May 09, 2000 10:0012:25 PM)
And I understand sign language is a great way to teach kids with CAPD things. Because of the visual aid, it's easier to learn.
woody (ID=21) (May 9, 2000 10:12:32 PM)
yes we have our kids sit down and read 20 minutes it helps the little one wjth her reading also
donna (ID=28) (May 9, 2000 10:13:04 PM)
So, do I retain or not retain? She is quite behind.
donna (ID=28) (May 9, 2000 10:13:36 PM)
We have been helping her all year. But did not know about this until now. I am very confused.
viennav (ID=26) (May 9, 2000 10:14:00 PM)
It really is up to you. How comfortable are you with the idea. Can you make up what's missing in 3 months with one on ones at home. Do you feel you are just being bullied into keeping her back?
viennav (ID=26) (May 9, 2000 10:14:33 PM)
Then again.............the 2nd grade would be less painful then the 4th or 5th grade.
kmanbam (ID=27) (May 9, 2000 10:15:01 PM)
I would request summer tutoring form a special ed teacher and a structured reading program for the summer and with hold judgement until the summer results are in.
woody (ID=21) (May 9, 2000 10:15:06 PM)
this is true as long as she is not teased
donna (ID=28) (May 9, 2000 10:15:13 PM)
I am not sure. I did see her work compared to what the average student should be doing. I was very upset. Her writing is terrible as well. I do not want to overload her either. But I am willing to get any help necessary for her to go on.
viennav (ID=26) (May 9, 2000 10:15:18 PM)
most excellent advice kman
kmanbam (ID=27) (May 9, 2000 10:15:46 PM)
thanks
donna (ID=28) (May 9, 2000 10:15:54 PM)
That is great advice. I hope the school will wait until then. Thanks
viennav (ID=26) (May 9, 2000 10:16:32 PM)
Then work up some kind of chart with your daughter..............for every goal attained. a special treat..............she should have a vested interest in her own success as well.
woody (ID=21) (May 9, 2000 10:16:34 PM)
make them wait
kmanbam (ID=27) (May 9, 2000 10:16:52 PM)
If her writing is bad you might want to request an Occupational Therapy evaluation.
woody (ID=21) (May 9, 2000 10:17:00 PM)
they are the ones that mess up
viennav (ID=26) (May 9, 2000 10:17:28 PM)
There are excercises you can do at home to beef up fine motor skills.
viennav (ID=26) (May 9, 2000 10:17:49 PM)
Sierra was enrolled with an OT/PT from the time she was 3 weeks old until her 3rd birthday.
woody (ID=21) (May 9, 2000 10:17:49 PM)
also have her retested before the new school year starts
donna (ID=28) (May 9, 2000 10:17:54 PM)
You mean the school. Why did they mess up because they did not notice it sooner? They had an answer for that too. My husband had a liver transplant last year and they attributed her behavior and struggling to the hard times at home last year
viennav (ID=26) (May 9, 2000 10:18:33 PM)
CAPD is very confusing, my daughter has had "area's" of difficulity. And they just put it
viennav (ID=26) (May 9, 2000 10:18:45 PM)
down to brain trauma and difficulty processing info.
woody (ID=21) (May 9, 2000 10:18:51 PM)
they are trying to pul the wool over your eye, putting blame somewhere else
viennav (ID=26) (May 9, 2000 10:19:05 PM)
Well brain trauma is one thing..............not processing auditory stimuli is another.
kmanbam (ID=27) (May 9, 2000 10:19:18 PM)
Our school has attributed my daughters problems to an over reactive mother.
viennav (ID=26) (May 9, 2000 10:19:28 PM)
Fairly new area.............by the time your daughter graduates, it will be a disorder picked over to death.
donna (ID=28) (May 9, 2000 10:19:48 PM)
Very funny. I like that one. I am guilty of that also.
woody (ID=21) (May 9, 2000 10:20:04 PM)
if a mother doesn't over react then there is a problem
viennav (ID=26) (May 9, 2000 10:20:12 PM)
"over-reactive" is a nice way of saying "firm" mommy.
donna (ID=28) (May 9, 2000 10:20:31 PM)
My husband says I am obsessive about it. But I feel you have to be in order to be on top of things.
viennav (ID=26) (May 9, 2000 10:20:35 PM)
Actually I'm lucky, I work in a hospital, I know how to work the system from the inside.
donna (ID=28) (May 9, 2000 10:20:51 PM)
My husband works in a hospital also. What do you do?
viennav (ID=26) (May 9, 2000 10:21:07 PM)
I work in Admitting, I grill people about Demographics and insurance.
kmanbam (ID=27) (May 9, 2000 10:21:45 PM)
our CSe meeting in Feb. didn't go well. We got an independent eval. and have hired a lawyer to go with us to the next meeting in 2 weeks.
donna (ID=28) (May 9, 2000 10:22:01 PM)
Why?
woody (ID=21) (May 9, 2000 10:22:29 PM)
also tape your meetings they don't like it when you do that
viennav (ID=26) (May 9, 2000 10:22:40 PM)
most excellent advice woody.
kmanbam (ID=27) (May 9, 2000 10:22:44 PM)
They gave her extended time for tests, which masks her disability, so they dropped all services and accomodations.
viennav (ID=26) (May 9, 2000 10:22:55 PM)
I never thought of that, will have to take one to my next meeting.
donna (ID=28) (May 9, 2000 10:23:06 PM)
That is terrrible. You better fight that.
kmanbam (ID=27) (May 9, 2000 10:23:23 PM)
Have lawyer sill travel to school.
kmanbam (ID=27) (May 9, 2000 10:23:27 PM)
will
viennav (ID=26) (May 9, 2000 10:23:43 PM)
yeah.......lawyers make everyone nervous.
woody (ID=21) (May 9, 2000 10:23:44 PM)
this way it isn't your word against there if you go to court
viennav (ID=26) (May 9, 2000 10:24:19 PM)
Apparently there are school districts still out there who haven't heard of the american disability act.
donna (ID=28) (May 9, 2000 10:24:46 PM)
I have never been so confused before about anything. There is so much involved in this. My son also is receiving special education services
viennav (ID=26) (May 9, 2000 10:25:17 PM)
Although to be truthful. Last sept...........they ran my daughter thru 4 tests, She squeeked by on all fo them...........They were about to drop her from special ed (speech and language) when I got the CAPD results in...........They will do another IEP this fall.
woody (ID=21) (May 9, 2000 10:25:25 PM)
some have heard of it but don't think parnets have
kmanbam (ID=27) (May 9, 2000 10:25:37 PM)
we are very lucky to have a special ed teacher as a friend and she is filling in the gaps for us and teaching our daughter organizational and study skills.
kmanbam (ID=27) (May 9, 2000 10:25:57 PM)
color coding, scanning etc.
kmanbam (ID=27) (May 9, 2000 10:26:14 PM)
hope she will address note taking.
donna (ID=28) (May 9, 2000 10:26:22 PM)
How old is your daughter?
kmanbam (ID=27) (May 9, 2000 10:26:28 PM)
9 yo
viennav (ID=26) (May 9, 2000 10:26:45 PM)
parents educating themselves is the best way to insure all bases are covered. Otherwise the healthcare/education system just pats you on the head and sends you on your way.
donna (ID=28) (May 9, 2000 10:26:57 PM)
Is she in fourth grade?
kmanbam (ID=27) (May 9, 2000 10:27:03 PM)
yes.
kmanbam (ID=27) (May 9, 2000 10:27:15 PM)
She uses and FM system
donna (ID=28) (May 9, 2000 10:27:26 PM)
How exactly does that work?
kmanbam (ID=27) (May 9, 2000 10:27:31 PM)
My grammer stinks.
viennav (ID=26) (May 9, 2000 10:27:45 PM)
mic and headset.
viennav (ID=26) (May 9, 2000 10:27:48 PM)
Just like on TV.
woody (ID=21) (May 9, 2000 10:27:56 PM)
join the club
viennav (ID=26) (May 9, 2000 10:28:13 PM)
The teacher wears a microphone and the kids wear an ear piece in one or both ears.
donna (ID=28) (May 9, 2000 10:28:18 PM)
In a regular classroom? Doesn't that single her out from everyone else?
viennav (ID=26) (May 9, 2000 10:28:27 PM)
Eliminates distortion and background noise.
woody (ID=21) (May 9, 2000 10:28:50 PM)
this way they are not distracted by outside noises
kmanbam (ID=27) (May 9, 2000 10:28:54 PM)
My daughter's is on her hearing aide and no one can see it. Her hair covers it.
donna (ID=28) (May 9, 2000 10:28:56 PM)
Woody, what club?
viennav (ID=26) (May 9, 2000 10:29:00 PM)
No more than glasses, braces, or hearing aids would.
viennav (ID=26) (May 9, 2000 10:29:15 PM)
It's all in the presentation and the age the kids starts wearing the device.
woody (ID=21) (May 9, 2000 10:29:20 PM)
bad grammer club
kmanbam (ID=27) (May 9, 2000 10:29:24 PM)
exactly
woody (ID=21) (May 9, 2000 10:29:41 PM)
also some kids think its cool
donna (ID=28) (May 9, 2000 10:29:42 PM)
That sounds very interesting. I think the first step is getting her properly diagnosed by an audiologist. I think you would all agree.
viennav (ID=26) (May 9, 2000 10:29:57 PM)
Well walkman's have become very popular.
kmanbam (ID=27) (May 9, 2000 10:30:03 PM)
My daughter started in grade 2. She told psychologist that she hates it, but knows it helps her.
woody (ID=21) (May 9, 2000 10:30:06 PM)
yess thats the first step
viennav (ID=26) (May 9, 2000 10:30:12 PM)
And headsets are a dead giveaway, your listening to a walkman.
viennav (ID=26) (May 9, 2000 10:30:32 PM)
Get your 2nd grader to check out TV.
viennav (ID=26) (May 9, 2000 10:30:38 PM)
newsmen wear them....
viennav (ID=26) (May 9, 2000 10:30:48 PM)
Talk show hosts wear them
viennav (ID=26) (May 9, 2000 10:30:54 PM)
And my personal favorite.
donna (ID=28) (May 9, 2000 10:31:01 PM)
Get this, her pediatrician why would you bring her to a audiologist, it has nothing to do with the hearing. If I hadn't been reading about it I would have taken his word for it.
viennav (ID=26) (May 9, 2000 10:31:07 PM)
EVERY QVC host has a mic and an ear piece.
kmanbam (ID=27) (May 9, 2000 10:31:12 PM)
ear buds aren't too bad either, but don't stay in well.
woody (ID=21) (May 9, 2000 10:31:32 PM)
also in sarah school another student started wearing one in a different classroom
kmanbam (ID=27) (May 9, 2000 10:31:42 PM)
Donna, are you looking for a new pediatrician?
donna (ID=28) (May 9, 2000 10:31:44 PM)
As long as it is not uncomfortable for the child.
viennav (ID=26) (May 9, 2000 10:32:05 PM)
Not every pediatrian knows about CAPD. Mine has been a ped for awhile and he openly admits he knows nothing. My audiologist doesn't know everything either.
kmanbam (ID=27) (May 9, 2000 10:32:36 PM)
My pediatrician says CAPD is often over looked.
donna (ID=28) (May 9, 2000 10:32:45 PM)
I know I should. The sad thing is her neurologist said the same thing. I brought her to a neurologist thinking something else might be wrong and also because she has an existing seizure condition
woody (ID=21) (May 9, 2000 10:32:56 PM)
if they are willing to learn with stay with them if you are comfortable with them
viennav (ID=26) (May 9, 2000 10:33:17 PM)
Well the 1st neurologist my daughter ever saw was an idiot.
donna (ID=28) (May 9, 2000 10:33:54 PM)
The pediatrician recommended that I go to a neuropsychologist. When I called them they said the complete assessment would be $ 1800 over a period of three days of testing (most of which the school probably already did)
viennav (ID=26) (May 9, 2000 10:33:59 PM)
He told us the hemmorahage was hereditory.
donna (ID=28) (May 9, 2000 10:34:23 PM)
I hate my daughter's neurologist. He is an ignorant and sexist pig.
viennav (ID=26) (May 9, 2000 10:34:45 PM)
Instead, get a Neurophych test...........let the tech know about the CAPD and see
viennav (ID=26) (May 9, 2000 10:34:48 PM)
what pops up.
donna (ID=28) (May 9, 2000 10:35:02 PM)
When I told him I wanted my son to see a psychiatrist. He said that is a woman's thing. All woman feel talking it out helps.
woody (ID=21) (May 9, 2000 10:35:11 PM)
turn him into the medical board
viennav (ID=26) (May 9, 2000 10:35:31 PM)
My daughter had a 3 day neuro-psych test at Children's in Seattle 3 years ago. My doc is recommending another one.
donna (ID=28) (May 9, 2000 10:35:38 PM)
I agree Woody.
viennav (ID=26) (May 9, 2000 10:36:02 PM)
I'd definately find a new doc.
donna (ID=28) (May 9, 2000 10:36:03 PM)
So you have heard of the neuropsych. Does it help give a clearer picture of what is going on?
viennav (ID=26) (May 9, 2000 10:36:17 PM)
Why give your hard earned money to a closed minded man.
viennav (ID=26) (May 9, 2000 10:36:37 PM)
yes........it gave me a clear picture of where Sierra was strong and where she had
viennav (ID=26) (May 9, 2000 10:37:07 PM)
weaknesses.............I took it back to school so they could figure out a way to help her learn better..............sierra is visual and needs something visual to help her put things together.
donna (ID=28) (May 9, 2000 10:37:13 PM)
Well that is the point. He is the only pediatric neurologist on our plan. The good news is that our medical coverage changed and now there are plenty more doctors to choose from. You know that will be the first one I change
kmanbam (ID=27) (May 9, 2000 10:37:52 PM)
Where are you from, Donna
viennav (ID=26) (May 9, 2000 10:37:53 PM)
A neurologist is one thing...............A neuro PSYCHOLOGIST is another.
viennav (ID=26) (May 9, 2000 10:38:01 PM)
Not the same and they don't test the same things.
donna (ID=28) (May 9, 2000 10:38:26 PM)
I am from Long Island. I know the difference but it is confusing as to who to go to and why and when
woody (ID=21) (May 9, 2000 10:38:30 PM)
get all you medical records from him before you change this way you don't have to start over
donna (ID=28) (May 9, 2000 10:38:42 PM)
Where are you from kmanbam
kmanbam (ID=27) (May 9, 2000 10:38:53 PM)
Western New York
viennav (ID=26) (May 9, 2000 10:39:00 PM)
I'll give your horror.
donna (ID=28) (May 9, 2000 10:39:02 PM)
Oh you know it!!!
donna (ID=28) (May 9, 2000 10:39:20 PM)
Where?
kmanbam (ID=27) (May 9, 2000 10:39:33 PM)
Wellsville
viennav (ID=26) (May 9, 2000 10:39:47 PM)
I live in SE Alaska..........I'm native, so we're forced to deal with the Indian Health Service which by the way hires no specialists at all and convincing a doctor to refer you "outside" is like pulling teeth w/o meds.
kmanbam (ID=27) (May 9, 2000 10:40:01 PM)
south of Buffalo near the PA border
donna (ID=28) (May 9, 2000 10:40:35 PM)
North Shore of Long Island. How about you Woody?
viennav (ID=26) (May 9, 2000 10:40:55 PM)
Well I must be off,,,,,,,,,, I have a meeting to go to.
kmanbam (ID=27) (May 9, 2000 10:41:07 PM)
nite, viennav
woody (ID=21) (May 9, 2000 10:41:15 PM)
debbie has friend that live up in Alaska, her husband does the cable running up there
donna (ID=28) (May 9, 2000 10:41:33 PM)
Thank you all for your advice. You have all helped a lot.
woody (ID=21) (May 9, 2000 10:41:36 PM)
i live in ne florida
kmanbam (ID=27) (May 9, 2000 10:41:57 PM)
I'd better go too. I have a meeting tomorrow and don't have the report done yet.
kmanbam (ID=27) (May 9, 2000 10:42:23 PM)
nice talking to you both. 'til next time.
kmanbam (ID=27) (May 9, 2000 10:42:34 PM)
nite, woody
woody (ID=21) (May 9, 2000 10:42:38 PM)
goodnight
