me (ID=155) (Jun 29, 2000 8:29:24 PM)
(This user has entered CAPD: From the Heart)

Tammy (ID=156) (Jun 29, 2000 8:31:42 PM)
(This user has entered CAPD: From the Heart)

debbie (ID=154) (Jun 29, 2000 8:32:09 PM)
hi Tammy

Tammy (ID=156) (Jun 29, 2000 8:32:09 PM)
hi debbie!

debbie (ID=154) (Jun 29, 2000 8:32:25 PM)
how are you tonight?

Tammy (ID=156) (Jun 29, 2000 8:32:56 PM)
actually, i think i'm coming down with a bug...i'm just not feeling up to par.

Tammy (ID=156) (Jun 29, 2000 8:33:04 PM)
how about you?

debbie (ID=154) (Jun 29, 2000 8:33:09 PM)
i was starting to wonder if the entry to the site was not working *L*

debbie (ID=154) (Jun 29, 2000 8:33:19 PM)
im doing great.....sorry to hear you aren't feelng well..

debbie (ID=154) (Jun 29, 2000 8:33:25 PM)
hope you feel better soon...

Tammy (ID=156) (Jun 29, 2000 8:33:48 PM)
actually, i did have a little trouble getting on...but i think it was on my end. thanks...

debbie (ID=154) (Jun 29, 2000 8:34:10 PM)
how's cj doing?

Tammy (ID=156) (Jun 29, 2000 8:35:49 PM)
he's doing really well. he started summer school on monday and he seems to be enjoying it.

debbie (ID=154) (Jun 29, 2000 8:36:00 PM)
that

debbie (ID=154) (Jun 29, 2000 8:36:09 PM)
that's good to hear!!

Tammy (ID=156) (Jun 29, 2000 8:36:45 PM)
we've been practicing reading and his word attack skills seem to be getting better...

Tammy (ID=156) (Jun 29, 2000 8:37:08 PM)
how's sarah?

debbie (ID=154) (Jun 29, 2000 8:37:36 PM)
she's doing great...she's on the swim team at terry parker and loving it..we are at the pool 6 days a week

debbie (ID=154) (Jun 29, 2000 8:38:10 PM)
did you get the email about the IDEA online training packet?

Tammy (ID=156) (Jun 29, 2000 8:38:44 PM)
yes, thanks.

debbie (ID=154) (Jun 29, 2000 8:39:00 PM)
have you had a chance to look at it?

Tammy (ID=156) (Jun 29, 2000 8:39:10 PM)
what grade is sarah in now?

debbie (ID=154) (Jun 29, 2000 8:39:15 PM)
she's going in 4th

Tammy (ID=156) (Jun 29, 2000 8:39:47 PM)
no, i haven't had a chance to look at it yet. do you know when "class" is going to start?

debbie (ID=154) (Jun 29, 2000 8:40:13 PM)
i was hoping tochat with parents tonight and start next week

debbie (ID=154) (Jun 29, 2000 8:40:30 PM)
if others dont show up tonight, im not sure now..

debbie (ID=154) (Jun 29, 2000 8:41:03 PM)
i did find a phone number today where you can call and order free of charge a copy of the IDEA,,it's about 270 to 280 page book

Tammy (ID=156) (Jun 29, 2000 8:41:03 PM)
is there something going on tonight that we don't know about?

Tammy (ID=156) (Jun 29, 2000 8:41:24 PM)
really! what's the number?

debbie (ID=154) (Jun 29, 2000 8:41:29 PM)
i dont know...*LOL*...maybe folks are thinking 9:00

debbie (ID=154) (Jun 29, 2000 8:41:37 PM)
the number is 1-877-433-7827

debbie (ID=154) (Jun 29, 2000 8:41:59 PM)
that number is for the US Department of Education Publication Center

debbie (ID=154) (Jun 29, 2000 8:42:35 PM)
I"m slowly trying to gather ESE guidelines from the various states also

Tammy (ID=156) (Jun 29, 2000 8:43:26 PM)
what states do you have so far?

debbie (ID=154) (Jun 29, 2000 8:43:31 PM)
I also ordered the article by Dr Teri Bellis that was in the chat on SubProfiles of CAPD

debbie (ID=154) (Jun 29, 2000 8:43:50 PM)
I just reordered Florida and Alabama and Georgia

debbie (ID=154) (Jun 29, 2000 8:44:06 PM)
I want to put together a reference library for the nonprofit

Tammy (ID=156) (Jun 29, 2000 8:44:18 PM)
do they have anything on indiana or ohio?

debbie (ID=154) (Jun 29, 2000 8:44:30 PM)
not yet i dont....just getting started

debbie (ID=154) (Jun 29, 2000 8:45:34 PM)
On the new website I am working on for the nonprofit I am setting up links to the department of education for each state...

Tammy (ID=156) (Jun 29, 2000 8:46:06 PM)
do you have any idea if the state of florida has a web site for its laws/regulations regarding children with disabilities? i've been looking for a while but apparently, in the wrong place...

debbie (ID=154) (Jun 29, 2000 8:46:26 PM)
i believe so..hold on..let me get you the addy

debbie (ID=154) (Jun 29, 2000 8:48:37 PM)
http://www.firn.edu/doe/doehome.htm

debbie (ID=154) (Jun 29, 2000 8:49:21 PM)
that is for the Department of Education in Florida

Tammy (ID=156) (Jun 29, 2000 8:50:16 PM)
is that FIRN?

debbie (ID=154) (Jun 29, 2000 8:50:50 PM)
brb

debbie (ID=154) (Jun 29, 2000 8:52:22 PM)
sorry..pizza man at the door

debbie (ID=154) (Jun 29, 2000 8:52:26 PM)
that is FIRN

Tammy (ID=156) (Jun 29, 2000 8:52:37 PM)
okay, thanks!

debbie (ID=154) (Jun 29, 2000 8:53:19 PM)
from there at the bottom there is a link to exceptional student education

debbie (ID=154) (Jun 29, 2000 8:53:32 PM)
i also called them and ordered a new copy of guidelines today

debbie (ID=154) (Jun 29, 2000 8:54:51 PM)
on this site http://www.firn.edu/doe/bin00014/p-info-e.htm there is a parent record book you can download to keep tract of meetings and such...i've not looked at it yet

Tammy (ID=156) (Jun 29, 2000 8:55:45 PM)
is there a charge for a copy of the guidelines?

debbie (ID=154) (Jun 29, 2000 8:56:18 PM)
no

Tammy (ID=156) (Jun 29, 2000 8:57:36 PM)
i'm sorry i'm just not very talkative tonight...

debbie (ID=154) (Jun 29, 2000 8:57:40 PM)
this is the number i called for florida guidelines (850) 488-1106

debbie (ID=154) (Jun 29, 2000 8:57:48 PM)
it's ok...

Tammy (ID=156) (Jun 29, 2000 8:59:40 PM)
thanks...i'll have to call them and order a copy...

debbie (ID=154) (Jun 29, 2000 9:01:26 PM)
there is another book on the site called for Parents of Florida's Exceptional Children (I"m wondering if it's the same book) I"m not sure....why dont you go get some rest tammy?

Tammy (ID=156) (Jun 29, 2000 9:02:53 PM)
thanks...i was just about to say i think i'd better go...sorry...i hope some others show up later...i'll talk to you next week..have a nice weekend..good night...

bren (ID=157) (Jun 29, 2000 9:08:33 PM)
(This user has entered CAPD: From the Heart)

debbie (ID=154) (Jun 29, 2000 9:11:15 PM)
hi bren...how are you?

bren (ID=158) (Jun 29, 2000 9:18:22 PM)
(This user has entered CAPD: From the Heart)

Rose (ID=159) (Jun 29, 2000 9:23:24 PM)
(This user has entered CAPD: From the Heart)

Rose (ID=159) (Jun 29, 2000 9:23:40 PM)
hi debbie

ELM (ID=160) (Jun 29, 2000 9:26:18 PM)
(This user has entered CAPD: From the Heart)

Rose (ID=159) (Jun 29, 2000 9:26:54 PM)
Hi elm Debbie must be busy at the moment

ELM (ID=160) (Jun 29, 2000 9:27:02 PM)
Hi Debbie and Rose...am I interrupting?

debbie (ID=154) (Jun 29, 2000 9:27:09 PM)
hi elm..hi rose..im back

Rose (ID=159) (Jun 29, 2000 9:27:15 PM)
How are you tonight?

debbie (ID=154) (Jun 29, 2000 9:27:28 PM)
sorry about delay..i a hope you wernt waiting on my long

Rose (ID=159) (Jun 29, 2000 9:27:32 PM)
noy at all

ELM (ID=160) (Jun 29, 2000 9:27:33 PM)
I'm great, how are you tonight?

mlmom (ID=161) (Jun 29, 2000 9:27:47 PM)
(This user has entered CAPD: From the Heart)

Rose (ID=159) (Jun 29, 2000 9:27:53 PM)
no,just a few minutes

ELM (ID=160) (Jun 29, 2000 9:28:01 PM)
no, I just got here

debbie (ID=154) (Jun 29, 2000 9:28:07 PM)
i lost my husband at the swim pool and had to go find him *L* woody and the girls were having a good time

mlmom (ID=161) (Jun 29, 2000 9:28:09 PM)
Hi everyone

debbie (ID=154) (Jun 29, 2000 9:28:22 PM)
hi mlmom

Rose (ID=159) (Jun 29, 2000 9:28:27 PM)
I didn't print out the workbook , printer needs ink

Rose (ID=159) (Jun 29, 2000 9:28:45 PM)
I just wanted to join in

Rose (ID=159) (Jun 29, 2000 9:29:07 PM)
Hi mlmom

debbie (ID=154) (Jun 29, 2000 9:29:16 PM)
ok....I found a number where you can call and order a copy of the IDEA also too..it's about a 270 to 280 page book

debbie (ID=154) (Jun 29, 2000 9:29:43 PM)
the number is -1-877-433-7827

Rose (ID=159) (Jun 29, 2000 9:29:49 PM)
To anyone who doesn't know me I have an 8 year old son only recently diagnosed with CAPD

Rose (ID=159) (Jun 29, 2000 9:30:09 PM)
Do you know the cost?

ELM (ID=160) (Jun 29, 2000 9:30:09 PM)
I wanted to share with you guys, people who can understand...I finally had the CAP testing done on my son today after many, many months of trying to persuade someone to do it, and of course she said he had significant difficulties

Chris (ID=162) (Jun 29, 2000 9:30:17 PM)
(This user has entered CAPD: From the Heart)

debbie (ID=154) (Jun 29, 2000 9:30:23 PM)
hi Chris

Chris (ID=162) (Jun 29, 2000 9:30:39 PM)
Hello!!!

Rose (ID=159) (Jun 29, 2000 9:30:39 PM)
Hello Chris nice to see you

debbie (ID=154) (Jun 29, 2000 9:30:48 PM)
What areas was he showing difficulties in?

Chris (ID=162) (Jun 29, 2000 9:31:08 PM)
Nice to see you Rosie, and everyone

ELM (ID=160) (Jun 29, 2000 9:31:21 PM)
She hasn't scored the tests but the most noticable was auditory memory

Chris (ID=162) (Jun 29, 2000 9:31:22 PM)
CAPD, and he also has a hearing loss

mlmom (ID=161) (Jun 29, 2000 9:31:27 PM)
Hi Chris. Rose, I have an 8 year old daughter who is suspected to have CAPD. She was tested Tuesday.

Rose (ID=159) (Jun 29, 2000 9:31:28 PM)
I'm waiting for our dinner to get here, we ordered Chinese food

debbie (ID=154) (Jun 29, 2000 9:31:47 PM)
we ordered pizza

Chris (ID=162) (Jun 29, 2000 9:31:48 PM)
Hi mlmom

ELM (ID=160) (Jun 29, 2000 9:31:55 PM)
Hey, Chris, my son also has a hearing loss, which is why it was so difficult to find someone to do the testing! Did you find that also?

Chris (ID=162) (Jun 29, 2000 9:32:02 PM)
We had tuna fish sandwiches.

Rose (ID=159) (Jun 29, 2000 9:32:18 PM)
Mlmom we only recently got home from baseball games

mlmom (ID=161) (Jun 29, 2000 9:32:29 PM)
The audiologist would not give me ANY immediate feedback following Lauren's evaluation.

debbie (ID=154) (Jun 29, 2000 9:32:36 PM)
*looking around the room ,,,i think i've met about everyone.*..anyone new tonight?

Chris (ID=162) (Jun 29, 2000 9:32:38 PM)
No not really Elm. The audiologist suspected it at the age of 5 but

Chris (ID=162) (Jun 29, 2000 9:33:26 PM)
he was too young to test for it. That was in 98 then in 99 he lost his hearing and has nerve damage

Rose (ID=159) (Jun 29, 2000 9:33:30 PM)
was wondering mlmom how your daughter is doing in school

Chris (ID=162) (Jun 29, 2000 9:34:06 PM)
Now they can't test for it because of the hearing loss. It makes it twice as hard now

ELM (ID=160) (Jun 29, 2000 9:35:06 PM)
what level of hearing loss?

mlmom (ID=161) (Jun 29, 2000 9:35:19 PM)
She is receiving Special Ed support in the classroom and language therapy. Last summer she was diagnosed LD in Reading and Spelling with significant weaknesses in Language Processing.

Rose (ID=159) (Jun 29, 2000 9:35:31 PM)
my son has multiple LD's and it was hard to get him tested too

Chris (ID=162) (Jun 29, 2000 9:35:33 PM)
I will be back I have to get my kids to bed. The level is about 50 to 80

mlmom (ID=161) (Jun 29, 2000 9:36:02 PM)
She will be entering 3rd grade in September but is reading at beginning 1st grade level.

debbie (ID=154) (Jun 29, 2000 9:36:08 PM)
did anyone else get a chance to look at the online handbook for the IDEA?

Chris (ID=162) (Jun 29, 2000 9:36:31 PM)
What is weird about is that at the 2000 frequency or decibal he is a 10 normal hearing. We don't understand it.

mlmom (ID=161) (Jun 29, 2000 9:36:52 PM)
I looked at the handbook, Debbie. It's great. Thanks for the info.

Chris (ID=162) (Jun 29, 2000 9:37:10 PM)
I'll be back.

ELM (ID=160) (Jun 29, 2000 9:37:16 PM)
How did he lose his hearing?

ELM (ID=160) (Jun 29, 2000 9:37:28 PM)
Oops, never mind...when Chris comes back

Rose (ID=159) (Jun 29, 2000 9:37:31 PM)
my son has ADHD, CAPD,dyslexia( visual perception difficulties, short term memory problems and a language based learning disability(mainly processing problems)

mlmom (ID=161) (Jun 29, 2000 9:37:32 PM)
I printed the index. I printed and read Part 4/Six Principles of IDEA last night.

Rose (ID=159) (Jun 29, 2000 9:38:29 PM)
He is also suspected to have Sensory Integration dysfunction and we are scheduling testing to confirm or rule out

debbie (ID=154) (Jun 29, 2000 9:39:14 PM)
what did you think mlmom?

Rose (ID=159) (Jun 29, 2000 9:39:18 PM)
we are awaiting his schedule for ESY so we can schedule his appointment

ELM (ID=160) (Jun 29, 2000 9:39:52 PM)
Rose, if you don't mind me asking, how do you separate the ADHD stuff from the CAPD stuff? They've been wanting to stick an ADHD label on my son for a couple of years. It seems to me, though, with my son, that the frustration at not being able to understand turns into ADHD-like behaviors. How is it different for you?

Rose (ID=159) (Jun 29, 2000 9:40:06 PM)
he is also beginning 3rd grade and is on a 1st grade reading level, but he is in regular classes except resource room for reading

Rose (ID=159) (Jun 29, 2000 9:40:32 PM)
well first of all I have an older son with CAPD

ELM (ID=160) (Jun 29, 2000 9:40:56 PM)
and you see differences?

Rose (ID=159) (Jun 29, 2000 9:41:09 PM)
secondly by taking medication my son can focus better which wouldn't be possible if he only had CAPD

ELM (ID=160) (Jun 29, 2000 9:41:30 PM)
I see...

Rose (ID=159) (Jun 29, 2000 9:41:48 PM)
medication will not work if the ADHD dianosis is correct

Rose (ID=159) (Jun 29, 2000 9:42:31 PM)
without meds we can't get him to learn or work on areas of difficulty including CAPD

debbie (ID=154) (Jun 29, 2000 9:42:38 PM)
i'm just listening in ...........

mlmom (ID=161) (Jun 29, 2000 9:42:52 PM)
Elm, the school personnel initially thought my daughter had ADD Inattentive type (without the Hyperactivity)

ELM (ID=160) (Jun 29, 2000 9:43:33 PM)
I'm not trying to be inflammitory, I'm really curious about your opinion on this...I've heard some people argue that *anyone* would focus better on stimulants (including Ritalin, Adderall). I'm sure you don't buy that, but what's your take on that?

Rose (ID=159) (Jun 29, 2000 9:43:40 PM)
also they can't even perform the CAPD testing unless hhis medication is effective, it gives inaccurate results

Rose (ID=159) (Jun 29, 2000 9:44:26 PM)
No that isn't true a person without ADHD gets more hyper not less, remember it is speed we are talking about

Rose (ID=159) (Jun 29, 2000 9:44:45 PM)
focus maybe but not stay still

ELM (ID=160) (Jun 29, 2000 9:45:19 PM)
I'm also curious because we had our son on adderall briefly but began ticcing and was not any more focused on external stimuli

debbie (ID=154) (Jun 29, 2000 9:45:27 PM)
ELM...im going to jump in here.may I ask you a few questions?

ELM (ID=160) (Jun 29, 2000 9:45:35 PM)
sure

mlmom (ID=161) (Jun 29, 2000 9:45:59 PM)
The school would not do psycometric testing for LD until we had our pediatrician prescribe a trial of an ADD med. He prescribed Adderall. After 6 months, the classroom teacher said she saw no differecne in Lauren's attention.

ELM (ID=160) (Jun 29, 2000 9:46:05 PM)
Thanks, Rose, I hope you don't think I'm being difficult! I'm just trying to get clear on this issue

debbie (ID=154) (Jun 29, 2000 9:46:12 PM)
Rose get your sling shot ready..you know when to shoot me off my soap box...the confusions between ADD and CAPD is a really hard area for me..

Rose (ID=159) (Jun 29, 2000 9:46:30 PM)
Elm this could mean he isn't truely ADHD/ADD or it could just be a reaction to the medication and others may need to be tried if you still suspect ADHD/ADD

debbie (ID=154) (Jun 29, 2000 9:46:42 PM)
ELM........what indications are there that your son is ADD?

debbie (ID=154) (Jun 29, 2000 9:47:06 PM)
ooops..took care of that message

Rose (ID=159) (Jun 29, 2000 9:47:13 PM)
He has no control over his body at all and is constantly in motion

debbie (ID=154) (Jun 29, 2000 9:48:48 PM)
Dr J and I talked this afternoon about whether or not Sarah had attentional problems......

Rose (ID=159) (Jun 29, 2000 9:48:49 PM)
he is unable to interact properly in social situations and can't shut up often blurting out things not relevant and will jump from subject to subject

debbie (ID=154) (Jun 29, 2000 9:49:08 PM)
Do you all mind if I inject my view point on this?

ELM (ID=160) (Jun 29, 2000 9:49:10 PM)
Yes, Rose, I agree. I don't think it's ADD, I think it's CAP issues and Asperger's issues that look like the more common ADD. He's got attention problems...doesn't seem to pay attention to what's going on around him, hyperfocused on his own interests, often very restless

ELM (ID=160) (Jun 29, 2000 9:49:47 PM)
Well, Rose, that *does* sound like my son, but I attribute those things to the AS.

ELM (ID=160) (Jun 29, 2000 9:49:54 PM)
shoot, debbie!

debbie (ID=154) (Jun 29, 2000 9:50:10 PM)
Let me ask you all......If you were to go to a party and didnt' know anyone there and felt very uncomfortable....what would you do?

Rose (ID=159) (Jun 29, 2000 9:50:10 PM)
I think the hard part is distinguishing ADD symptoms from CAPD more so than ADHD

Rose (ID=159) (Jun 29, 2000 9:50:27 PM)
AS?

ELM (ID=160) (Jun 29, 2000 9:50:48 PM)
LOL, well, I wouldn't walk up to everyone and tell them how old I am, which is what my son does, LOL

ELM (ID=160) (Jun 29, 2000 9:50:57 PM)
(AS=Aspergers)

debbie (ID=154) (Jun 29, 2000 9:51:06 PM)
Or say you were involved in a conversation with three people speaking another language you didnt understand....how would you feel?

Rose (ID=159) (Jun 29, 2000 9:51:14 PM)
sit in an out of way place and count the minutes till I go home, unless someone approached me then I would talk

debbie (ID=154) (Jun 29, 2000 9:51:19 PM)
ELM LOL

debbie (ID=154) (Jun 29, 2000 9:51:53 PM)
So basically you would try to get yourselves out of the situation??

Rose (ID=159) (Jun 29, 2000 9:52:06 PM)
Oh, elm did you go to the amicus for children web page, sheri is great with asperger's this is her specialty since her son Chadd has it

ELM (ID=160) (Jun 29, 2000 9:52:07 PM)
yes, Rose, I agree...unless I did some visualizing before I went

debbie (ID=154) (Jun 29, 2000 9:52:33 PM)
would you either go sit in the corner..or leave......

Chris (ID=163) (Jun 29, 2000 9:52:40 PM)
(This user has entered CAPD: From the Heart)

ELM (ID=160) (Jun 29, 2000 9:52:49 PM)
no, not recently, I'll check again...the AS dx is new, too...it's been a busy few months around here !

debbie (ID=154) (Jun 29, 2000 9:52:49 PM)
welcome back Chris

mlmom (ID=161) (Jun 29, 2000 9:53:01 PM)
I would do about the same as Rose. Sit quietly unless approached.

Chris (ID=163) (Jun 29, 2000 9:53:13 PM)
Thanks

Rose (ID=159) (Jun 29, 2000 9:53:24 PM)
yes, but my son doesn't try to get out due to understanding or hearing problems, he tries to get involved but doesn't know how, unless medicated then he has no problem

debbie (ID=154) (Jun 29, 2000 9:53:29 PM)
mlmom would you sit in the middle of the crowd or go somewhere else?

ELM (ID=160) (Jun 29, 2000 9:54:05 PM)
I would sit in the middle but not participate.

mlmom (ID=161) (Jun 29, 2000 9:54:17 PM)
No, probably off to the side.

Rose (ID=159) (Jun 29, 2000 9:54:23 PM)
if you go read Chadd's story Debbie did a great Job and I only read it last night myself

Chris (ID=163) (Jun 29, 2000 9:54:34 PM)
I am new to this CAPD thing so I hope you can all help with the proper lingo, and problems associated with this disorder.

ELM (ID=160) (Jun 29, 2000 9:54:34 PM)
do you have a link handy, Rose?

Rose (ID=159) (Jun 29, 2000 9:54:52 PM)
she could help you alot especially since she is an advocate

ELM (ID=160) (Jun 29, 2000 9:55:17 PM)
wow, all those wonderful things rolled into one, LOL? Too good to be true!

Rose (ID=159) (Jun 29, 2000 9:55:20 PM)
no but if you type in amicus for children it comes up on the search

ELM (ID=160) (Jun 29, 2000 9:55:43 PM)
ok, thanks

Rose (ID=159) (Jun 29, 2000 9:55:48 PM)
she helped me greatly at my last IEP meeting for my son

debbie (ID=154) (Jun 29, 2000 9:55:50 PM)
for our kids in school...when they are put in the a situation where they do not understand or are confused..they tend to want to get out of the situation..so they want to get a drink..sharpen a pencil...start talking....then they are slowly labeled behavior problems

Chris (ID=163) (Jun 29, 2000 9:56:06 PM)
Is the auditory memory associated with this? Because my son experiences this too.

Rose (ID=159) (Jun 29, 2000 9:56:30 PM)
associated with what?

Chris (ID=163) (Jun 29, 2000 9:56:38 PM)
CAPD

ELM (ID=160) (Jun 29, 2000 9:56:38 PM)
Rose, it sounds like you are very confident that you have found the right help for your son...that must be a great feeling!

debbie (ID=154) (Jun 29, 2000 9:56:44 PM)
yes Chris it is...my daughter has had difficulty with auditory memory due to her capd

ELM (ID=160) (Jun 29, 2000 9:57:20 PM)
oh, Debbie, absolutely! And my son's kindergarten teacher was yelling at him all year because he didn't even realize she was talking!

debbie (ID=154) (Jun 29, 2000 9:57:54 PM)
alot of times this is where kids with capd are misdiagnosed with ADD or ADHD

debbie (ID=154) (Jun 29, 2000 9:58:20 PM)
it's not ADD it's human nature...that's what i was trying to show with the party example

ELM (ID=160) (Jun 29, 2000 9:58:36 PM)
I think that for some kids they don't even know what it is that is causing them to feel so uncomfortable!

Chris (ID=163) (Jun 29, 2000 9:58:51 PM)
Has anyone had experience with the earrobics. I think I spelled it wrong. SOmeone told me it is like the FF, but it is cheaper.

Rose (ID=159) (Jun 29, 2000 9:59:22 PM)
I am confident that we are in the right direction, not quite there yet, at least Sheri was able to turn things around with the school situation I was losing my mind

debbie (ID=154) (Jun 29, 2000 9:59:32 PM)
Chris there is an online demo for Earobics at www.earobics.com the demo is cool...i've not used it yet..but i've heard good things about it...

ELM (ID=160) (Jun 29, 2000 10:00:00 PM)
I totally agree, Debbie! Everyone has been asking me lately what the point of getting the CAPD dx, and that's what I say...that I don't want anyone treating him like a behavior problem, I want them to immediately say to themselves, "oh, he must not have understood!"

mlmom (ID=161) (Jun 29, 2000 10:00:16 PM)
I ordered Earobics. It cost $59. It came in on Tuesday and Lauren likes it. She has worked about 1/2 hour each day for the last 3 days.

debbie (ID=154) (Jun 29, 2000 10:00:43 PM)
ELM i have been fortunate enough both times my daughter was tested for CAPD to sit in on some of the testing.....it was the most eye opening experiences I've ever had!! When she was having trouble processing, I could see the fidgeting and the restlessness

Chris (ID=163) (Jun 29, 2000 10:00:44 PM)
I was just wondering if it worked. I was on that sight, and it sounded pretty good.

Rose (ID=159) (Jun 29, 2000 10:01:13 PM)
does anyones child recieve wrap around services?

ELM (ID=160) (Jun 29, 2000 10:01:20 PM)
I've used Earobics! My son likes it...except when it gets too hard, he's very easily frustrated.

mlmom (ID=161) (Jun 29, 2000 10:01:39 PM)
It's too soon for me to tell if it works . But, so far it has Lauren's interest and that's good.

debbie (ID=154) (Jun 29, 2000 10:02:04 PM)
ELM the point to the diagnosis is to know how to help your child..in order to help you have to know what the problem is!!

Chris (ID=163) (Jun 29, 2000 10:02:14 PM)
So is my son!! Extremely frustrated, and worried about kids making fun of him with this and the hearing aids.

debbie (ID=154) (Jun 29, 2000 10:02:39 PM)
Chris...where are you from? May I ask? I'm from Florida

Chris (ID=163) (Jun 29, 2000 10:03:39 PM)
With the auditory memory. I sort of don't understand because when I play with him with those memory games, he always wins, and he loves it.

Chris (ID=163) (Jun 29, 2000 10:03:44 PM)
I am from PA

Rose (ID=159) (Jun 29, 2000 10:03:44 PM)
I am still worried how my son will react to an assistive listening device when he sarts school id Sept.

ELM (ID=160) (Jun 29, 2000 10:03:53 PM)
debbie, I wish I could have heard what the tasks were today. I wa on the other side of the glass. But I did see how upset he became that he couldn't do it. Luckily, I knew beforehand that the tests would be very hard for him and very very frustrating and I spoke to him about it and told him that it would be very hard and he'd be frustrated but I gave him incentives for sticking with it

mlmom (ID=161) (Jun 29, 2000 10:04:42 PM)
Lauren gets frustrated easily too. She often tries to avoid reading because it is hard for her.

debbie (ID=154) (Jun 29, 2000 10:04:49 PM)
Chris if you have questions regarding Earobics Ican put you in contact with a representative there that I work with, if you'd like...Jesse can answer questions for you or get you the answers.

ELM (ID=160) (Jun 29, 2000 10:05:09 PM)
Chris, how did your son lose his hearing?

debbie (ID=154) (Jun 29, 2000 10:05:18 PM)
mlmom....that's my Sarah too!

Chris (ID=163) (Jun 29, 2000 10:05:49 PM)
He is involved with a program here in PA called the CAIU, Capital Area Intermediate Unit, and it helps with kids of different disabilities. It is great!!

debbie (ID=154) (Jun 29, 2000 10:05:54 PM)
ELM it may sound crazy..but I'd like to go through the CAPD tests, just so I know what they are like

debbie (ID=154) (Jun 29, 2000 10:06:35 PM)
Chris..how did you get involved with that?? How would I get general information about the program?

ELM (ID=160) (Jun 29, 2000 10:06:37 PM)
yeah, me too, debbie...but more than me, I'd like my *husband* to go through them, LOL...they've both got the same selective hearing!

debbie (ID=154) (Jun 29, 2000 10:06:56 PM)
*LOL* =)

Chris (ID=163) (Jun 29, 2000 10:07:05 PM)
ELM, we don't know how he lost his hearing. He has had alot of ear infections when he was little. They tell me he has nerve damage, which is hereditary, but noone in my family has ever had nerve damage.

debbie (ID=154) (Jun 29, 2000 10:07:30 PM)
Chris have you ever had tubes in yoru sons ears?

Rose4x (ID=164) (Jun 29, 2000 10:07:42 PM)
(This user has entered CAPD: From the Heart)

ELM (ID=160) (Jun 29, 2000 10:07:57 PM)
Chris, I'm sorry if you've said this already, but how old is your son, and how old was he when he lost some hearing?

debbie (ID=154) (Jun 29, 2000 10:07:57 PM)
there you are *L*...change of names?

ELM (ID=160) (Jun 29, 2000 10:08:04 PM)
(sorry, brb, baby...)

Rose4x (ID=164) (Jun 29, 2000 10:08:24 PM)
hII i'M BACK IT WOULDN'T LET ME SIGN IN AS rOSE

debbie (ID=154) (Jun 29, 2000 10:08:36 PM)
the name was probably ghosting...

Rose4x (ID=164) (Jun 29, 2000 10:09:08 PM)
MY KIDS KNOCKED THE PHONE OFF THE HOOK AND DISCONNECTED ME

Chris (ID=163) (Jun 29, 2000 10:09:41 PM)
It was just last year. He was 6. He is now seven, but he just got his hearing aids in Jan, of 2000. He also uses a FM device in school, which is helping too.

Rose4x (ID=164) (Jun 29, 2000 10:09:57 PM)
Chris if you need help with dealing with the school you should contact

Rose4x (ID=164) (Jun 29, 2000 10:10:22 PM)
Sheri she will travel abd attend meetings with you

Chris (ID=163) (Jun 29, 2000 10:11:10 PM)
Debbie I will get that info. for you and email you with it. Our school district pays to send these kids to this school about 20 miles north of where I live. They put out about $25,000 a year for this. It is well worth it though.

Rose4x (ID=164) (Jun 29, 2000 10:11:17 PM)
where in Pa I am also in PA

debbie (ID=154) (Jun 29, 2000 10:11:50 PM)
I"ll send you my address.......

Rose4x (ID=164) (Jun 29, 2000 10:11:58 PM)
what type of school is it?

debbie (ID=154) (Jun 29, 2000 10:13:13 PM)
oops..just saw the email..*L* my email is capdfromtheheart@aol.com

Rose4x (ID=164) (Jun 29, 2000 10:13:14 PM)
By the way Debbie I sent an e-mail to sheri to see if she is interested in hosting a chat, she may contact you, I haven't heard back from her yet

debbie (ID=154) (Jun 29, 2000 10:13:27 PM)
ok thanks Rose!

Rose4x (ID=164) (Jun 29, 2000 10:14:07 PM)
I also explained that you might need her advice about the non-profit too

debbie (ID=154) (Jun 29, 2000 10:14:57 PM)
I"m hoping to formalize the non profit this next week

Denise (ID=165) (Jun 29, 2000 10:15:00 PM)
(This user has entered CAPD: From the Heart)

debbie (ID=154) (Jun 29, 2000 10:15:13 PM)
hi Denise!! How are you tonight?

Denise (ID=165) (Jun 29, 2000 10:15:39 PM)
Hi Debbie, fine thanks

Rose4x (ID=164) (Jun 29, 2000 10:15:54 PM)
Someone had asked how it is funded, obviously they accept tax-deductable donations and they also get money from people going to sites they have listed

debbie (ID=154) (Jun 29, 2000 10:15:55 PM)
I"m happy you could make it back in the chat tonight..

mlmom (ID=161) (Jun 29, 2000 10:15:56 PM)
Hi Denise

Rose4x (ID=164) (Jun 29, 2000 10:16:04 PM)
Hi Denise

Chris (ID=163) (Jun 29, 2000 10:16:15 PM)
No, I am not having trouble with the school at all. They are terrific!! The problem I will have is Next school year is the last year he

Denise (ID=165) (Jun 29, 2000 10:16:27 PM)
Hi to everyone

Rose4x (ID=164) (Jun 29, 2000 10:17:07 PM)
where are you located and does he go to the special school you mentioned?

debbie (ID=154) (Jun 29, 2000 10:17:21 PM)
Hey Everyone....Denise stopped in the chat this afternoon and I invited her to join us for the first time tonight...she's new here with us...

Chris (ID=163) (Jun 29, 2000 10:17:40 PM)
can go to that school he will have to go to our school but they are not equipped to handle his needs. So I need all the info I can get to get them trained so they will be able to handle his needs.

Chris (ID=163) (Jun 29, 2000 10:18:40 PM)
Hi Denise!!

debbie (ID=154) (Jun 29, 2000 10:18:45 PM)
Chris will the school you are at now send recommendations to the new school?

debbie (ID=154) (Jun 29, 2000 10:18:56 PM)
Denise..where are you from?

Denise (ID=165) (Jun 29, 2000 10:19:14 PM)
Hi Chris, I am new to the chat room, I am in California

kmanbam (ID=166) (Jun 29, 2000 10:20:08 PM)
(This user has entered CAPD: From the Heart)

debbie (ID=154) (Jun 29, 2000 10:20:13 PM)
Just to introduce myself Denise...my name is Debbie and I have a daughter who was diagnosed with CAPD 2 1/2 years ago......that's why I started this website

debbie (ID=154) (Jun 29, 2000 10:20:16 PM)
hi kman

Chris (ID=163) (Jun 29, 2000 10:20:20 PM)
Yes I am sure, I will just have to keep on them. You know what I mean. There are other schools in my area to handle this, but I have heard horror stories about them, and I don't want to send my child there. He gets frustrated enough, and is very insecure. That won't help

debbie (ID=154) (Jun 29, 2000 10:20:21 PM)
good to see you tonight

kmanbam (ID=166) (Jun 29, 2000 10:20:36 PM)
hi

Rose4x (ID=164) (Jun 29, 2000 10:20:36 PM)
Well it seems as if we are spread out across the country now

Rose4x (ID=164) (Jun 29, 2000 10:21:04 PM)
Hi Kman

Denise (ID=165) (Jun 29, 2000 10:21:22 PM)
I have an 8 year old daughter who also has CAPD

Chris (ID=163) (Jun 29, 2000 10:21:26 PM)
Hi Kman

debbie (ID=154) (Jun 29, 2000 10:21:35 PM)
Rose being spread out can be a good thing in a way..this way once we get organized in the form of the nonprofit we can have contacts in different states if anyone is intersted in helping out

debbie (ID=154) (Jun 29, 2000 10:21:54 PM)
how long ago was she diagnosed Denise?

Rose4x (ID=164) (Jun 29, 2000 10:21:58 PM)
a lot of 8 year olds tonight

Chris (ID=163) (Jun 29, 2000 10:22:34 PM)
Debbie, can you confirm something for me?

debbie (ID=154) (Jun 29, 2000 10:22:35 PM)
Sarah has a birthday on Saturday..she is so excited!

Denise (ID=165) (Jun 29, 2000 10:22:58 PM)
Debbie, have you had trouble getting services? I took her in Oct 99 because the new school wanted to drop her services

Rose4x (ID=164) (Jun 29, 2000 10:23:06 PM)
Oh I meant it was good and it also makes you realize we aren't alone people all over have the same problems to deal with

debbie (ID=154) (Jun 29, 2000 10:23:06 PM)
Chris go ahead and ask..i'll try to!

debbie (ID=154) (Jun 29, 2000 10:23:28 PM)
exactly Rose!

Chris (ID=163) (Jun 29, 2000 10:23:51 PM)
If someone had nerve damage which is genetic. Why wouldn't my son have had this from day one? Instead of it starting when he was 6?

debbie (ID=154) (Jun 29, 2000 10:24:15 PM)
Denise my school told me they were not familiar with CAPD and would not deal with it.....through some friendly discussions we have started to come to an understanding and they are offering some help now

Rose4x (ID=164) (Jun 29, 2000 10:25:19 PM)
I think CAPd is still not well recognized and hopefully a non-profit group will help increase awareness

debbie (ID=154) (Jun 29, 2000 10:25:21 PM)
Chris that is a question I cant answer...but if you forward it to me in an email I will do my best to get you an answer...OK? Please understand Chris I am not an aud I a a parent going through the same thing all of you are.....

Denise (ID=165) (Jun 29, 2000 10:25:36 PM)
Debbie, it was so bad this year, she has a transient tic disorder, anixety disorder that we will home school next year. Thats great, I am hoping to get something back through all the assesements we have just completed

Chris (ID=163) (Jun 29, 2000 10:26:01 PM)
Can I do that from here, and if so how?

debbie (ID=154) (Jun 29, 2000 10:26:11 PM)
Chris my thought is he may have had the damage but it didnt manifest itself until a later time..

debbie (ID=154) (Jun 29, 2000 10:26:52 PM)
you can email me through the site...

debbie (ID=154) (Jun 29, 2000 10:27:02 PM)
not from the actual chat room though

Chris (ID=163) (Jun 29, 2000 10:27:22 PM)
Ok, I will do that. Thank YOu So Much!!!!

debbie (ID=154) (Jun 29, 2000 10:27:45 PM)
or if you are on the email list to this site you can respond to any email and it will come to me...and if you arne't on the email list for this site I invite you to enjoy!

Chris (ID=163) (Jun 29, 2000 10:28:26 PM)
you mean the listserve where it goes to everybody on the list?

debbie (ID=154) (Jun 29, 2000 10:28:31 PM)
Denise you have to be firm with teh school about providing services for your child. Do you receive any services?

Denise (ID=165) (Jun 29, 2000 10:28:48 PM)
Debbie I am not sure how it is in other states, but I do know in Ca. it is all about money. We had 15 people at the last IEP it lasted 3 hours and nothing was accomplished

debbie (ID=154) (Jun 29, 2000 10:29:02 PM)
Chris there is the listserv run by Dr J and I also have an email list on my website that pertains to this site and chats.

debbie (ID=154) (Jun 29, 2000 10:29:34 PM)
Denise I have a feeling it boils down to money in most states...

Chris (ID=163) (Jun 29, 2000 10:29:35 PM)
Does my school district have to get the training my son needs?

debbie (ID=154) (Jun 29, 2000 10:29:40 PM)
what part of CA are you in?

Rose4x (ID=164) (Jun 29, 2000 10:29:50 PM)
Denise do you have an advocate

Chris (ID=163) (Jun 29, 2000 10:30:04 PM)
Debbie, I am on that list. I will do that too!

Denise (ID=165) (Jun 29, 2000 10:30:09 PM)
Debbie, she has had speech and language since kindergarten, and RSP services since first

Rose4x (ID=164) (Jun 29, 2000 10:30:30 PM)
what is RSP services?

Denise (ID=165) (Jun 29, 2000 10:30:35 PM)
Rose , we have 2 attorneys 1 advocate

debbie (ID=154) (Jun 29, 2000 10:30:55 PM)
Denise are they familiar with CAPD?

Denise (ID=165) (Jun 29, 2000 10:31:00 PM)
Resourse specialist program

Rose4x (ID=164) (Jun 29, 2000 10:31:24 PM)
oh I never heard it expressed that way before

debbie (ID=154) (Jun 29, 2000 10:31:47 PM)
great Chris..give me a few days once you send the question to me to get you an answer, OK?

Rose4x (ID=164) (Jun 29, 2000 10:31:53 PM)
I wish I could afford attorney but I did locate an excellent advocate

Denise (ID=165) (Jun 29, 2000 10:32:09 PM)
Yes, I have tried to read everything I could get my hands on, I was the one that found it.

mlmom (ID=161) (Jun 29, 2000 10:32:31 PM)
I need to say goodnight folks. Thanks everyone for sharing. It helps to know I am not alone.

Chris (ID=163) (Jun 29, 2000 10:32:32 PM)
Well, I am sorry I have to go. I have to get up early!! Ok Debbie I will do that. Thanks Again!!!!!

debbie (ID=154) (Jun 29, 2000 10:32:32 PM)
kman you are quiet tonight....everything ok?

Rose4x (ID=164) (Jun 29, 2000 10:32:47 PM)
Bye chris

Chris (ID=163) (Jun 29, 2000 10:32:49 PM)
Good Nite EVERYONE!!!

debbie (ID=154) (Jun 29, 2000 10:32:50 PM)
goodnight Chris..I hope to see you in here again!

kmanbam (ID=166) (Jun 29, 2000 10:32:57 PM)
just listening

Chris (ID=163) (Jun 29, 2000 10:33:00 PM)
You WILL!!!!!!

debbie (ID=154) (Jun 29, 2000 10:33:01 PM)
goodnight mlmom

debbie (ID=154) (Jun 29, 2000 10:33:06 PM)
sweet dreams

debbie (ID=154) (Jun 29, 2000 10:33:17 PM)
ok...just checking on you =)

Rose4x (ID=164) (Jun 29, 2000 10:34:07 PM)
so your lawyers and advocate are familiar with CAPD then

Denise (ID=165) (Jun 29, 2000 10:34:55 PM)
No, I am the one trying to supply them with alot of the information, they are also RN's

Rose4x (ID=164) (Jun 29, 2000 10:35:47 PM)
That is a start, but it is better if they have more knowledge than you than they could help you more

kmanbam (ID=166) (Jun 29, 2000 10:36:02 PM)
we also had to hire a lawyer to advocate for our daughter. CSE chair does not believe our daughter has a disability.

Rose4x (ID=164) (Jun 29, 2000 10:36:34 PM)
okay now what does CSE stand for?

kmanbam (ID=166) (Jun 29, 2000 10:36:41 PM)
Our lawyer only deals in school and disability law.

kmanbam (ID=166) (Jun 29, 2000 10:36:52 PM)
committee on special education

Rose4x (ID=164) (Jun 29, 2000 10:36:54 PM)
always learning something new

debbie (ID=154) (Jun 29, 2000 10:37:14 PM)
For some good solid information on CAPD you can email Dr Teri Bellis and she will send you a paper she wrote entitled SubProfiles of Central Auditory Processing Disorder. I just requested the paper but have read her book Her email is tbellis@usd.edu

debbie (ID=154) (Jun 29, 2000 10:37:38 PM)
oops..forget that funny little symbol in the beginning

Denise (ID=165) (Jun 29, 2000 10:38:16 PM)
Thanks Debbie

debbie (ID=154) (Jun 29, 2000 10:38:31 PM)
not a problem Denise!

Rose4x (ID=164) (Jun 29, 2000 10:39:02 PM)
Thanks debbie I will e-mail her too I'm always interested in everything I can find that may help

debbie (ID=154) (Jun 29, 2000 10:39:10 PM)
me too!

Denise (ID=165) (Jun 29, 2000 10:39:47 PM)
Debbie do you know anything about integration deficit subtype

ELM (ID=160) (Jun 29, 2000 10:39:50 PM)
(hi, I'm back...sorry I missed Chris and Rose)

ELM (ID=160) (Jun 29, 2000 10:40:11 PM)
I found those subprofiles on a website last night

Rose4x (ID=164) (Jun 29, 2000 10:40:26 PM)
elm I'm still here just had to change my name to get in

debbie (ID=154) (Jun 29, 2000 10:40:47 PM)
Denise that is what I'm working on now...my daughter has an integration deficit...im trying to determine what to do next for her..

ELM (ID=160) (Jun 29, 2000 10:40:53 PM)
oh, LOL, good!

debbie (ID=154) (Jun 29, 2000 10:41:06 PM)
what website ELM do you remember?

ELM (ID=160) (Jun 29, 2000 10:41:20 PM)
I'll go find it...brb

Rose4x (ID=164) (Jun 29, 2000 10:41:24 PM)
what website I am interested in looking at it, my son is suspected of having sensory integration dysfuction and I wonder if this is similiar or the same

debbie (ID=154) (Jun 29, 2000 10:41:36 PM)
that's what Dr J and I were chatting about this afternoon....

Denise (ID=165) (Jun 29, 2000 10:42:05 PM)
Debbie, have you tried any of the software products, Locu Tour

Denise (ID=165) (Jun 29, 2000 10:42:37 PM)
Debbie, did he make any suggestions

debbie (ID=154) (Jun 29, 2000 10:43:34 PM)
I have the demo...but not ordered the program.....i've been waiting to see what was going on with her reevaluation before i ordered any more programs

Denise (ID=165) (Jun 29, 2000 10:45:04 PM)
Debbie, my daughter did not do well in the classroom this last year the noise was overwhelming, she finally gave out. We are having another SCAN done in August, and we will see if there is any maturation.

Rose4x (ID=164) (Jun 29, 2000 10:45:16 PM)
I can't wait to get my son re-evaluated but i KNOW IT WILL BE AWHILE

debbie (ID=154) (Jun 29, 2000 10:45:27 PM)
we just had a reevaluation done this last week

Denise (ID=165) (Jun 29, 2000 10:46:02 PM)
Debbie, did she show any progress in maturation

Rose4x (ID=164) (Jun 29, 2000 10:46:39 PM)
I have to apply for wrap-around first and that takes time , I'll be lucky if everything is in order by sept. than he can get tested at children's hospital

debbie (ID=154) (Jun 29, 2000 10:47:01 PM)
Denise we've seen some progress in her decoding skills but now we are pinpointing other areas of concern such as the integrations deficit...i feel like we are finally getting to the root of the problems...

Denise (ID=165) (Jun 29, 2000 10:47:47 PM)
Debbie, that has to feel good!

debbie (ID=154) (Jun 29, 2000 10:47:48 PM)
dr j did give me some info to help and we talked at great lengths today...but before I try to explain it to somoene else i need to go back and read notes i've made

debbie (ID=154) (Jun 29, 2000 10:48:12 PM)
yes it does..it's been a long road...i still have so many concerns...

debbie (ID=154) (Jun 29, 2000 10:48:36 PM)
Rose how long since the last dx?

Denise (ID=165) (Jun 29, 2000 10:48:47 PM)
Debbie, I am with you on that

Rose4x (ID=164) (Jun 29, 2000 10:49:12 PM)
I am wondring what integrations deficit is and whether or not it is the same or similiar as Sensory Integration dysfunction

debbie (ID=154) (Jun 29, 2000 10:49:19 PM)
The biggest relief is knowing that we are making progress...

debbie (ID=154) (Jun 29, 2000 10:49:45 PM)
Rose I believe it is similar..i wish i knew more....

debbie (ID=154) (Jun 29, 2000 10:50:10 PM)
i believe sensory integration can have to do with more than one sense...

Rose4x (ID=164) (Jun 29, 2000 10:50:29 PM)
It was only in april but I had to settle for a testing site i could afford rather than one i ws really certain would be thorough and accurate

debbie (ID=154) (Jun 29, 2000 10:50:40 PM)
ie integrating what he hears with what he sees and making sense of it..but I'm not sure

Rose4x (ID=164) (Jun 29, 2000 10:51:04 PM)
yes it does, so integration deficit has only to do with hearing?

Denise (ID=165) (Jun 29, 2000 10:51:23 PM)
Rose, have you heard of Processing Powers by Jeanane Ferre, great book I checked it out at the library and than bought it for myself.

debbie (ID=154) (Jun 29, 2000 10:51:32 PM)
Rose, then I hadnt lost my mind! i thought it was recently.....you like tryin to make me think I'm crazy! *L*

Rose4x (ID=164) (Jun 29, 2000 10:51:51 PM)
No I'll have to write that down

Rose4x (ID=164) (Jun 29, 2000 10:52:20 PM)
yes first the name thing and now this boy I am confusing

debbie (ID=154) (Jun 29, 2000 10:52:29 PM)
Jeananne Ferre is a wonderful audiologist!! I went to one of her seminars and had the good fortune to hear her speak...she is marvelous!

Denise (ID=165) (Jun 29, 2000 10:53:23 PM)
Debbie, I would love to meet someone that was an expert in that field

Rose4x (ID=164) (Jun 29, 2000 10:54:25 PM)
Childrens testing is a three two day evaluation and they require all of your childs educational information and previos testing results, they are extremely thorough

debbie (ID=154) (Jun 29, 2000 10:54:47 PM)
I"ve been fortunate enough to go to her seminar..and to talk to Dr Teri Bellis in here as well as Dr Steve Zecker...I also have a great amount of respect for Dr J...I"m looking foward to working with him on the nonprofit

Rose4x (ID=164) (Jun 29, 2000 10:55:15 PM)
they have a day just set up to discuss the results , which is something I still don't understand his test results

debbie (ID=154) (Jun 29, 2000 10:55:57 PM)
I"ve met dr moncreiff from the University of Florida in Gainesville also...she's doing exciting work in the area of capd as well

Denise (ID=165) (Jun 29, 2000 10:56:01 PM)
Rose, what i notice the most with my daughter is she processes in coming information so slow, that she has problems following direction, staying on task and switching, organanzation skills are pretty bad, than theres the social stuff

debbie (ID=154) (Jun 29, 2000 10:57:55 PM)
I"m going to have to be going in just a moment..I"ve really enjoyed talking to everyone tonight.

Denise (ID=165) (Jun 29, 2000 10:57:59 PM)
I have read through the archives, they were a wealth of information

Rose4x (ID=164) (Jun 29, 2000 10:58:38 PM)
My son can only process the first thing said to him, but cannot process multy step instructions, he also has problems with compound words and prepositional phrases

Denise (ID=165) (Jun 29, 2000 11:00:00 PM)
Rose, that sounds different from what my daughter is experiencing, how does he do with attention and noise?

Rose4x (ID=164) (Jun 29, 2000 11:00:15 PM)
Debbie I am hoping I can get in touch with sheri to help out with the IDEA pamphlets I'll let you know if I hear from her, she may be on vacation so it could take awhile

debbie (ID=154) (Jun 29, 2000 11:00:49 PM)
I"ll archive this transcript tomorrow so it's available for everyone...

debbie (ID=154) (Jun 29, 2000 11:01:13 PM)
not a problem Rose..I appreciate your help!!

Rose4x (ID=164) (Jun 29, 2000 11:01:21 PM)
well my son has ADHD so without medication attention is horrible but much better with medication, as for noise he gets aggitated and screams when it is noisy

debbie (ID=154) (Jun 29, 2000 11:01:48 PM)
im going to go to bed before i fall asleep on you all....sweet dreams everyone!

ELM (ID=160) (Jun 29, 2000 11:02:07 PM)
I couldn't find the Bellis site, but I did just find a site that discusses all the different types of CAP...I'll give the link...

Denise (ID=165) (Jun 29, 2000 11:02:18 PM)
I think a lot of children with CAPD get highly frustrated

Rose4x (ID=164) (Jun 29, 2000 11:02:19 PM)
he has been loosing his voice and is getting evaluated by an ENT to be sure his throat is okay, I think it is from hollering a lot

Denise (ID=165) (Jun 29, 2000 11:02:40 PM)
Goodnight Debbie fun talking with you~D

Rose4x (ID=164) (Jun 29, 2000 11:02:56 PM)
good night debbie

debbie (ID=154) (Jun 29, 2000 11:03:08 PM)
Denise I"ve enjoyed it also..I hope you join us again!

Denise (ID=165) (Jun 29, 2000 11:03:24 PM)
I will

Denise (ID=165) (Jun 29, 2000 11:04:10 PM)
I will need to speed up the typing, If I get more than one conversation

Denise (ID=165) (Jun 29, 2000 11:04:37 PM)
Rose, what state are you in?

Rose4x (ID=164) (Jun 29, 2000 11:04:51 PM)
my son has difficulty hearing in noisy environments and processes very little

Rose4x (ID=164) (Jun 29, 2000 11:04:59 PM)
PA

Denise (ID=165) (Jun 29, 2000 11:05:17 PM)
What grade is he in?

ELM (ID=160) (Jun 29, 2000 11:05:28 PM)
(anyone know how to paste links here?)

Rose4x (ID=164) (Jun 29, 2000 11:05:30 PM)
going into 3rd

Denise (ID=165) (Jun 29, 2000 11:06:05 PM)
ELM, I can't help you

Rose4x (ID=164) (Jun 29, 2000 11:06:48 PM)
Me either doesn't it work the traditional way? I never tried

Rose4x (ID=164) (Jun 29, 2000 11:07:17 PM)
but one thing we accomplished is he is getting ESY services this summer

ELM (ID=160) (Jun 29, 2000 11:07:31 PM)
Rose, LOL, sorry to be about 10 minutes behind...but to answer your question about auditory integration vs sensory integration...are you still wondering?

Denise (ID=165) (Jun 29, 2000 11:07:59 PM)
Rose, its that time, I want to thank you for the chat and look forward to the next time Goodnight to All

Rose4x (ID=164) (Jun 29, 2000 11:08:03 PM)
yes please explain, we could be thinking one and it may be the other

ELM (ID=160) (Jun 29, 2000 11:08:12 PM)
gnite, Denise!

Rose4x (ID=164) (Jun 29, 2000 11:08:37 PM)
bye denise have a good night boy I wish these chats were earlier

Rose4x (ID=164) (Jun 29, 2000 11:09:05 PM)
shoot elm

Rose4x (ID=164) (Jun 29, 2000 11:09:17 PM)
its just you and me

ELM (ID=160) (Jun 29, 2000 11:09:58 PM)
auditory integration is the ability to understand several auditory messages at the same time (like if several people are talking to you at the same time). Sensory integration has to do with being hyper- or hypo- sensitive to sensory information

ELM (ID=160) (Jun 29, 2000 11:10:16 PM)
I think it's just coincidental that *integration* is in both terms

ELM (ID=160) (Jun 29, 2000 11:10:36 PM)
I'm exhausted but I could send you some SI links tomorrow

Rose4x (ID=164) (Jun 29, 2000 11:11:00 PM)
I wonder if there is a link between the two?

ELM (ID=160) (Jun 29, 2000 11:11:20 PM)
I don't think so, but hey, what do I know

kmanbam (ID=167) (Jun 29, 2000 11:11:54 PM)
(This user has entered CAPD: From the Heart)

ELM (ID=160) (Jun 29, 2000 11:11:57 PM)
I can't seem to posts links here (I've seen debbie do it, I've got to ask her how)

ELM (ID=160) (Jun 29, 2000 11:12:24 PM)
kman, I don't know if you got my IM, but I we've *met* before on the deaf/hoh list

Rose4x (ID=164) (Jun 29, 2000 11:12:40 PM)
my son cannot understand several messages at one time and also needs extreme sensory input

Rose4x (ID=164) (Jun 29, 2000 11:13:10 PM)
I have SI information but never heard of the integration probelems related to CAPD

kmanbam (ID=167) (Jun 29, 2000 11:13:16 PM)
yes, but when I tried to respond I froze and had to restart computer, etc to get back. How are you?

ELM (ID=160) (Jun 29, 2000 11:13:18 PM)
my son is the latter, but cannot tolerate certain sensory input, like being touched

ELM (ID=160) (Jun 29, 2000 11:13:26 PM)
LOL, sorry, K!

ELM (ID=160) (Jun 29, 2000 11:13:39 PM)
I'm fine, it's so funny to bump into you here!

kmanbam (ID=167) (Jun 29, 2000 11:14:05 PM)
how is your son doing/

ELM (ID=160) (Jun 29, 2000 11:14:06 PM)
My son just had CAPD testing today....I feel like I've been through the ringer!

Rose4x (ID=164) (Jun 29, 2000 11:14:14 PM)
my son hates having his hand held, he use to dislocate his arm when we tried

ELM (ID=160) (Jun 29, 2000 11:14:19 PM)
Have you had testing done, K?

ELM (ID=160) (Jun 29, 2000 11:14:46 PM)
my son learned to walk at 15 months because he absolutely would not let anyone touch his hands to help him learn

kmanbam (ID=167) (Jun 29, 2000 11:15:01 PM)
Yes, dd went to University of Buffalo this Spring.

ELM (ID=160) (Jun 29, 2000 11:15:04 PM)
hmmm....dislocate his arm, eh?

Rose4x (ID=164) (Jun 29, 2000 11:15:17 PM)
my son walked at eight months never needed hands

ELM (ID=160) (Jun 29, 2000 11:15:36 PM)
I've been doing some reading (online, of course, LOL) about hypermobile joints

kmanbam (ID=167) (Jun 29, 2000 11:16:10 PM)
find anything interesting or earth shattering?

ELM (ID=160) (Jun 29, 2000 11:16:17 PM)
LOL, Rose, my almost-10mo has been threatening to walk the last few weeks...I *won't* hold her hands, LOL!

Rose4x (ID=164) (Jun 29, 2000 11:16:25 PM)
he would pull and since he has week joints it would pop in and out, it would be painful for a few days so we stopped trying never heard of SID at the time

ELM (ID=160) (Jun 29, 2000 11:16:57 PM)
I find it *all* so interesting...that's why my dh doesn't remember what I look like, LOL

kmanbam (ID=167) (Jun 29, 2000 11:17:08 PM)
lol

ELM (ID=160) (Jun 29, 2000 11:17:15 PM)
How old is your daughter now?

Rose4x (ID=164) (Jun 29, 2000 11:17:18 PM)
but we struggle with his need for pressure and need to be low to the ground

kmanbam (ID=167) (Jun 29, 2000 11:17:28 PM)
she is 9 yo

ELM (ID=160) (Jun 29, 2000 11:17:34 PM)
Did you get the runaround about not being able to test a HI kid for CAP?

kmanbam (ID=167) (Jun 29, 2000 11:17:56 PM)
no, they were wonderful

ELM (ID=160) (Jun 29, 2000 11:17:58 PM)
oh, wow, ROse, *definitely* sounds like sensory integration stuff going on

Rose4x (ID=164) (Jun 29, 2000 11:18:00 PM)
same here he is probably wondering where I am now as if he doesn't know lol

ELM (ID=160) (Jun 29, 2000 11:18:07 PM)
LOL

ELM (ID=160) (Jun 29, 2000 11:18:28 PM)
maybe it's me...I'm beginning to take it all so personally

kmanbam (ID=167) (Jun 29, 2000 11:18:42 PM)
Rose, have you tried a brushing propram and does he get Occupational Therapy?

Rose4x (ID=164) (Jun 29, 2000 11:19:32 PM)
he is always in the dirt, always has his shoes off, can't sit up in a chair and ends up on the floor, can't keep books on a desk they always end up in his lap and the list goes on and on

ELM (ID=160) (Jun 29, 2000 11:20:15 PM)
you need a consult...quick, LOL

Rose4x (ID=164) (Jun 29, 2000 11:20:22 PM)
we are currently awaiting an OT evaluation to be scheduled, we still don't know his school days or hours for the summer

kmanbam (ID=167) (Jun 29, 2000 11:20:25 PM)
Sounds like an OT program would definately help

Rose4x (ID=164) (Jun 29, 2000 11:20:35 PM)
I

ELM (ID=160) (Jun 29, 2000 11:20:41 PM)
make sure the OT eval has a SI focus...many don't

Rose4x (ID=164) (Jun 29, 2000 11:21:49 PM)
'm hoping it has taken so long for me to get anyone to listen to me, my son has an above average IQ and he has been able to keep up in most areas in school so they never listened

kmanbam (ID=167) (Jun 29, 2000 11:22:29 PM)
what grade, Rose?

Rose4x (ID=164) (Jun 29, 2000 11:22:58 PM)
I've only recently begun to get them to acknowledge that we have several problems to deal with and get them to investigaste them all, of course i end up having him tested privately also

ELM (ID=160) (Jun 29, 2000 11:23:13 PM)
boy, do I know THAT feeling!

Rose4x (ID=164) (Jun 29, 2000 11:23:31 PM)
going into 3rd although if it was up to the school he would still be in 2nd

kmanbam (ID=167) (Jun 29, 2000 11:24:11 PM)
how's his hand-writing?

Rose4x (ID=164) (Jun 29, 2000 11:24:16 PM)
they tried to get me to hold him back last year instead of address his needs, I knew it wouldn't help

Rose4x (ID=164) (Jun 29, 2000 11:24:55 PM)
awful have you ever tried writing on your lap? besides he doesn't hold a pencil properly, he uses three fingers.

ELM (ID=160) (Jun 29, 2000 11:25:14 PM)
That's great that your dd was tested without it being an ordeal, K! Did the school pick up on some issues or did you bring it up?q

Rose4x (ID=164) (Jun 29, 2000 11:25:46 PM)
schools answer to this was to give him fat kindergarten pencils , he could never hold them correctly either

ELM (ID=160) (Jun 29, 2000 11:26:03 PM)
and I'll bet the other kids gave him a hard time about that

ELM (ID=160) (Jun 29, 2000 11:26:34 PM)
it's so frustrting when the school's attitude is "what problems?"

kmanbam (ID=167) (Jun 29, 2000 11:26:42 PM)
It has been a constant struggle with our school. They stripped her of services at our last meeting. That is when we went to Buffalo and then hired a disability lawyer to advocate for her.

Rose4x (ID=164) (Jun 29, 2000 11:26:53 PM)
not that he mentioned but this was late in the year, it took all year to get them to do anything Iand I was trying since kindergarten

Rose4x (ID=164) (Jun 29, 2000 11:28:01 PM)
then they want to keep pointing out how the window to getting him to read is closing and I want to punch them for not doing anything sooner

Rose4x (ID=164) (Jun 29, 2000 11:28:52 PM)
thank God for Sheri from amicus for children, I had my first successful IEP meeting when she advocated at the meeting

kmanbam (ID=167) (Jun 29, 2000 11:29:01 PM)
Rose, what state are you in?

ELM (ID=160) (Jun 29, 2000 11:29:15 PM)
it sounds like the advocate/attorney has helped, K. I just hired an advocate also...too much emotionally wrapped up in the school fight

Rose4x (ID=164) (Jun 29, 2000 11:29:44 PM)
things aren't completely resolved but she had them visibly shaking and they ackowledged everything we said and are addressing all our questions now

kmanbam (ID=167) (Jun 29, 2000 11:29:47 PM)
That's how we felt.

Rose4x (ID=164) (Jun 29, 2000 11:29:54 PM)
PA

kmanbam (ID=167) (Jun 29, 2000 11:30:20 PM)
I'm in NY

Rose4x (ID=164) (Jun 29, 2000 11:30:43 PM)
I thought i was going to have a breakdown and i actually lost a baby this year probably from all the stress

ELM (ID=160) (Jun 29, 2000 11:30:49 PM)
I kept thinking, what can an advocate do for me, I know what the issues are, I know what he needs, I should be able to get it. WRONG! I've been told, and now I see it starting to happen, that when the advocate walks through the door everything changes.

ELM (ID=160) (Jun 29, 2000 11:31:03 PM)
oh, I'm so sorry, Rose!

Rose4x (ID=164) (Jun 29, 2000 11:31:13 PM)
Sheri is located in PA but she may be willing to help, you may want to contact her

kmanbam (ID=167) (Jun 29, 2000 11:31:17 PM)
so sorry, Rose

kmanbam (ID=167) (Jun 29, 2000 11:32:07 PM)
Nest time we'll just ask for a fair hearing and they can pay for our lawyer.

kmanbam (ID=167) (Jun 29, 2000 11:32:14 PM)
next

Rose4x (ID=164) (Jun 29, 2000 11:32:17 PM)
now that I have an advocate to back me up I am going to try again, at least I shouldn't get all stressed out this time

ELM (ID=160) (Jun 29, 2000 11:32:37 PM)
going to try again to do what?

kmanbam (ID=167) (Jun 29, 2000 11:32:42 PM)
Good luck Rose

Rose4x (ID=164) (Jun 29, 2000 11:32:59 PM)
I was leaving all my meetings in tears, it was as if they had CAPD because no one would listen to me

Rose4x (ID=164) (Jun 29, 2000 11:33:08 PM)
get pregnant again

ELM (ID=160) (Jun 29, 2000 11:33:35 PM)
good luck!!

kmanbam (ID=167) (Jun 29, 2000 11:33:59 PM)
Guess I'd better go. Got to send oldest daughter's friends home and get youngest to bed. Nice talking to you.

ELM (ID=160) (Jun 29, 2000 11:34:10 PM)
you too!!!!

Rose4x (ID=164) (Jun 29, 2000 11:34:11 PM)
then they would all gang up on me, I was told by the advocate that they totally mishandled everything and they knew it, I guess not many parents call them on it

kmanbam (ID=167) (Jun 29, 2000 11:34:18 PM)
Nite

Rose4x (ID=164) (Jun 29, 2000 11:34:21 PM)
you too hope to talk soon

ELM (ID=160) (Jun 29, 2000 11:34:31 PM)
yup, that's exactly what I've heard too!

ELM (ID=160) (Jun 29, 2000 11:35:01 PM)
I'm going to go, too, Rose...it was nice chatting again!

Rose4x (ID=164) (Jun 29, 2000 11:35:18 PM)
I knew i was right but didn't have the knowledge to properly handle things me too hope to see you soon

Rose4x (ID=164) (Jun 29, 2000 11:35:32 PM)
good night

ELM (ID=160) (Jun 29, 2000 11:35:35 PM)
yup, I know what you mean! gnite!