TLC (ID=20) (Aug 3, 2000 8:34:45 PM)
(This user has entered CAPD: From the Heart)
Jenn (ID=21) (Aug 3, 2000 8:54:07 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=22) (Aug 3, 2000 8:56:12 PM)
(This user has entered CAPD: From the Heart)
debbie (ID=22) (Aug 3, 2000 8:56:22 PM)
hi Jenn...how are you tonight?
debbie (ID=22) (Aug 3, 2000 9:04:34 PM)
Jenn are you here?
DonnaE (ID=23) (Aug 3, 2000 9:08:19 PM)
(This user has entered CAPD: From the Heart)
DonnaE (ID=23) (Aug 3, 2000 9:08:42 PM)
hi Debbie, Hi Jenn
DonnaE (ID=23) (Aug 3, 2000 9:10:35 PM)
be right back - my son needs me for a minute
debbie (ID=22) (Aug 3, 2000 9:10:42 PM)
hi donna
DonnaE (ID=23) (Aug 3, 2000 9:15:41 PM)
I'm back
debbie (ID=22) (Aug 3, 2000 9:20:07 PM)
hi donna..welcome back
DonnaE (ID=23) (Aug 3, 2000 9:20:49 PM)
thanks Debbie
debbie (ID=22) (Aug 3, 2000 9:21:13 PM)
how are you doing tonight?
DonnaE (ID=23) (Aug 3, 2000 9:21:20 PM)
Just want to say thanks for all the work you've been doing, I haven't been to the chats very much but I do appreciate the information
DonnaE (ID=23) (Aug 3, 2000 9:21:32 PM)
good thanks and you?
debbie (ID=22) (Aug 3, 2000 9:22:04 PM)
I"m doing wonderful. I just returned from a vacation and am ready to get back to work again on the chat and nonprofit
debbie (ID=22) (Aug 3, 2000 9:22:14 PM)
thank you for your kinds words..you are very welcome
DonnaE (ID=23) (Aug 3, 2000 9:23:00 PM)
Good for you, we all need a vacation, I haven't been on one yet, Daniel, my son goes away to his Aunt's and Grandparents next week so I'll have a few days to myself
debbie (ID=22) (Aug 3, 2000 9:23:17 PM)
This is the first time I've been home in 8 years
DonnaE (ID=23) (Aug 3, 2000 9:23:52 PM)
wow 8 years
debbie (ID=22) (Aug 3, 2000 9:24:34 PM)
yes.....my dad usually travels here
debbie (ID=22) (Aug 3, 2000 9:24:40 PM)
this was a long overdue trip
DonnaE (ID=23) (Aug 3, 2000 9:25:13 PM)
that's a long time, my Mom just lives two blocks away and my sister is a block and a half and the almost ex husband is three blocks away
DonnaE (ID=23) (Aug 3, 2000 9:25:27 PM)
sometimes I think they are all too close for comfort *G
debbie (ID=22) (Aug 3, 2000 9:25:30 PM)
most of my family lives in florida now.
debbie (ID=22) (Aug 3, 2000 9:25:35 PM)
*LOL* i understand!
DonnaE (ID=23) (Aug 3, 2000 9:26:22 PM)
Now I wouldn't mind visiting them in winter - your family that is *G
debbie (ID=22) (Aug 3, 2000 9:26:43 PM)
that is where I am at now too...I"ve lived in the south for about 12 years now
DonnaE (ID=23) (Aug 3, 2000 9:27:22 PM)
I'm in Ontario Canada so Florida would sound wonderful in winter
DonnaE (ID=23) (Aug 3, 2000 9:28:00 PM)
so if you're in need of a Canadian contact, count on me
debbie (ID=22) (Aug 3, 2000 9:28:27 PM)
I will count on you! Thank you!!
debbie (ID=22) (Aug 3, 2000 9:28:51 PM)
I have set up a site for acontact in Canada. =) I was still looking for someone
debbie (ID=22) (Aug 3, 2000 9:29:37 PM)
Can you email me with contact information for you?
DonnaE (ID=23) (Aug 3, 2000 9:30:06 PM)
well then call me :0) I'm joining the London Chapter of the Learning Disabilities Association - they were great in helping me advocate for Daniel
DonnaE (ID=23) (Aug 3, 2000 9:30:28 PM)
sure I believe I still have you're email addy, mine is briardon@hurontel.on.ca
debbie (ID=22) (Aug 3, 2000 9:31:19 PM)
that is fantastic. my email is capdfromtheheart@aol.com
DonnaE (ID=23) (Aug 3, 2000 9:32:44 PM)
fortunately, he had a wonderful school team working on his behalf - the advocate from the association was quite impressed with what they had done in the way of testing and coming up with coping strategies for Daniel
debbie (ID=22) (Aug 3, 2000 9:33:10 PM)
I will be filing the papers to begin the nonprofit very soon and hopefully then we will be able to begin getting programs together.
debbie (ID=22) (Aug 3, 2000 9:33:22 PM)
right now i am looking for educational laws and such
DonnaE (ID=23) (Aug 3, 2000 9:34:43 PM)
well let me know what info I can research for you on this side of the border, I'm at home myself - on long term disability from my "other" job for awhile, so I do have time to research
debbie (ID=22) (Aug 3, 2000 9:36:34 PM)
I"m sorry for delay..
debbie (ID=22) (Aug 3, 2000 9:36:52 PM)
I'm also talking to an audioligst who is willing to help with the nonprofit
DonnaE (ID=23) (Aug 3, 2000 9:37:03 PM)
that's why we went ahead with the formal identification process - that way Daniel has rights under the provincial laws - the school has to provide him with whatever he needs to learn to the best of his ability
DonnaE (ID=23) (Aug 3, 2000 9:37:31 PM)
that's great! don't feel you have to chat with me too I understand
debbie (ID=22) (Aug 3, 2000 9:37:42 PM)
If you would be interested in looking into guidelines for exceptional student education, that would be fantastic. I am not familiear with with canadian education
debbie (ID=22) (Aug 3, 2000 9:37:59 PM)
No! I want to talk to you..please dont misunderstand
DonnaE (ID=23) (Aug 3, 2000 9:39:28 PM)
LOL don't worry! Sure I can check it out for you. Each province is slightly different, education falls under their domain but it would give me something to focus on instead of me
debbie (ID=22) (Aug 3, 2000 9:40:12 PM)
I can give you my address if you get ahold of any printed material that may be helpful you can always forward it
DonnaE (ID=23) (Aug 3, 2000 9:40:54 PM)
I'm sure it will come together
debbie (ID=22) (Aug 3, 2000 9:41:57 PM)
It will come together in time. I work full time so I"m slow getting things done sometime
DonnaE (ID=23) (Aug 3, 2000 9:44:24 PM)
I understand, not always enough hours in the day
debbie (ID=22) (Aug 3, 2000 9:45:59 PM)
I wish i had about another 10 hours a day!
DonnaE (ID=23) (Aug 3, 2000 9:46:09 PM)
and just for information sakes, I am a writer/photographer by trade so if you ever decide that you need a newsletter or a brochure designed let me know
DonnaE (ID=23) (Aug 3, 2000 9:46:56 PM)
my official title was audio visual technician, which took in a whole lot of things from photography to writing to design and drawing
debbie (ID=22) (Aug 3, 2000 9:47:12 PM)
oh i definitely plan on a newsletter!! probably quarterly one, if you are interested in helping with that it would be fantastic!
DonnaE (ID=23) (Aug 3, 2000 9:48:15 PM)
would be glad to help
debbie (ID=22) (Aug 3, 2000 9:49:07 PM)
I will count on you for that. There is so much to do I cant possible do it myself
DonnaE (ID=23) (Aug 3, 2000 9:50:07 PM)
well I believe that things happen for a reason and people come into your life for a reason and that sometimes a power greater than ourselves orchestrates these things. *VBG
debbie (ID=22) (Aug 3, 2000 9:52:23 PM)
I definitely agree with you. It's been amazing the number of people that God has brought into my life lately that have been willing to help
DonnaE (ID=23) (Aug 3, 2000 9:53:10 PM)
LOL that's what I mean, God, but I try to be respectful of other's beliefs
debbie (ID=22) (Aug 3, 2000 9:54:36 PM)
I
debbie (ID=22) (Aug 3, 2000 9:55:04 PM)
i'm very open about my faith and belief..without God I dont think this non profit would have ever happened
leigh (ID=24) (Aug 3, 2000 9:56:07 PM)
(This user has entered CAPD: From the Heart)
DonnaE (ID=23) (Aug 3, 2000 9:56:11 PM)
Good for
DonnaE (ID=23) (Aug 3, 2000 9:56:16 PM)
Good for you
DonnaE (ID=23) (Aug 3, 2000 9:56:20 PM)
Hi Leigh
debbie (ID=22) (Aug 3, 2000 9:56:27 PM)
hi Leigh..how are you tonight?
leigh (ID=24) (Aug 3, 2000 9:56:43 PM)
Hi , doing great, how about you?
DonnaE (ID=23) (Aug 3, 2000 9:57:00 PM)
doing very well thank you
leigh (ID=24) (Aug 3, 2000 9:57:21 PM)
what is the chat about tonight?
DonnaE (ID=23) (Aug 3, 2000 9:57:21 PM)
brb, one dog wants out and one wants in
debbie (ID=22) (Aug 3, 2000 9:57:23 PM)
I am doing fantastic tonight!
debbie (ID=22) (Aug 3, 2000 9:57:47 PM)
right now it has been a general chat. Donna and I have been talking a bit about the nonprofit for capd
leigh (ID=24) (Aug 3, 2000 9:59:55 PM)
oh, ok....I've never been on this chat site before., so I don't know if I know enough to contribute anything. I have a hyperlexic son name Kevin who is 7 (that's how I got this site...thru hyperlex)
DonnaE (ID=23) (Aug 3, 2000 10:00:44 PM)
welcome to the room
debbie (ID=22) (Aug 3, 2000 10:00:48 PM)
my daughter who is 8 was diagnosed 2 years ago with capd
leigh (ID=24) (Aug 3, 2000 10:00:53 PM)
thanks
DonnaE (ID=23) (Aug 3, 2000 10:01:06 PM)
my son is 9 and was diagnosed just this year with capd
debbie (ID=22) (Aug 3, 2000 10:02:10 PM)
Donna did you have a hard time finding someone to diagnose your son?
debbie (ID=22) (Aug 3, 2000 10:02:22 PM)
what is hyperlex? Im not familiar with it
DonnaE (ID=23) (Aug 3, 2000 10:02:30 PM)
so I'm still on a learning curve
DonnaE (ID=23) (Aug 3, 2000 10:02:44 PM)
It took awhile to figure out what was wrong, he was very good at covering
debbie (ID=22) (Aug 3, 2000 10:03:21 PM)
Donna it took me 4 years to figure out what was wrong. Originaly we thought my daughter had a hearing loss
leigh (ID=24) (Aug 3, 2000 10:03:27 PM)
I don't know if Kevin has an auditory processing problem now...he did when he was younger...don't want to interupt just learn something...he was dx. with an autistic like disorder at 2 1/2 PDD NOS...hyperlexia was added. It is early decoding (reading ) ability with autistic-like symptoms
DonnaE (ID=23) (Aug 3, 2000 10:03:59 PM)
At first his teacher and I thought it was because of the turmoil of the family breaking up
debbie (ID=22) (Aug 3, 2000 10:05:06 PM)
Sarah was taken to an aud at age 5 for speech disfluency and auditory processing problems.....the audioligst did a hearing test but never did capd testing....at that time i did not know there were different tests
debbie (ID=22) (Aug 3, 2000 10:05:49 PM)
leigh the way we all learn is by sharing so please dont feel as if you are interrupting. ...that is what this chat is for! we are all parents struggling to help our kids.... =)
DonnaE (ID=23) (Aug 3, 2000 10:06:30 PM)
I worked closely with his teacher and the special education resources teacher at the school. I went to our family dr who pulled some strings to get him in to see the pediatrician who ruled out anything physical or add or adhd
debbie (ID=22) (Aug 3, 2000 10:07:46 PM)
tomorrow on tv on one of the talk shows there is goign to be a show on add
DonnaE (ID=23) (Aug 3, 2000 10:07:50 PM)
then the special ed teacher mentioned the possibility of capd, so I mentioned it to our dr and he got us into see the audiologist who gave the diagnosis
debbie (ID=22) (Aug 3, 2000 10:08:32 PM)
MARK UNGAR, EXECUTIVE DIRECTOR OF THE ADD ACTION GROUP IS A GUEST THIS FRIDAY
ON THE QUEEN LATIFAH SHOW WHICH IS A NATIONAL PROGRAM.
leigh (ID=24) (Aug 3, 2000 10:08:39 PM)
Thanks Debbie, my computer connection seems so slow tonight that I think I'm not getting everything. I need to check it. I'll try chatting with you all another time when it is working better...goodnight! :)
DonnaE (ID=23) (Aug 3, 2000 10:08:44 PM)
and in between waiting for specialists I contacted the Learning Disabilities Association and went to see them for information
debbie (ID=22) (Aug 3, 2000 10:08:46 PM)
it's on Fox
debbie (ID=22) (Aug 3, 2000 10:09:19 PM)
my pediatrician had no idea what i was talking about
debbie (ID=22) (Aug 3, 2000 10:10:02 PM)
THE SHOW'S THEME IS "WHY ARE WE DRUGGING OUR CHILDREN?"
DonnaE (ID=23) (Aug 3, 2000 10:10:06 PM)
Dr. Porter was excellent, he knew what it was about and talked to me about it and even had suggestions to take back to the school til we got an official diagnosis
debbie (ID=22) (Aug 3, 2000 10:10:23 PM)
that is great! was your school open to helping?
DonnaE (ID=23) (Aug 3, 2000 10:11:26 PM)
yes, in fact without the school team we wouldn't have gotten as far as we did, they pushed for testing within the system to get him the help he needed
debbie (ID=22) (Aug 3, 2000 10:11:55 PM)
wow!!! i wish i heard that from more parents
DonnaE (ID=23) (Aug 3, 2000 10:12:18 PM)
IT was ME who was very reluctant to have him "labelled"
debbie (ID=22) (Aug 3, 2000 10:12:56 PM)
I didnt want my daughter labeled but I wanted to know what was wrong
DonnaE (ID=23) (Aug 3, 2000 10:12:59 PM)
Dr. Robert Ivey was the audiologist in London who did the testing and gave the diagnosis and he will be monitoring Daniel every year
DonnaE (ID=23) (Aug 3, 2000 10:13:16 PM)
same here
DonnaE (ID=23) (Aug 3, 2000 10:13:38 PM)
I just knew he was angry and frustrated and falling behind.
debbie (ID=22) (Aug 3, 2000 10:13:48 PM)
let me go back and ask you about something you mentioned earlier if you dont mind...ok?
DonnaE (ID=23) (Aug 3, 2000 10:13:53 PM)
Reading and writing is so difficult for him, sure
debbie (ID=22) (Aug 3, 2000 10:14:12 PM)
it's hard for sarah too..but she's doing better slowly
debbie (ID=22) (Aug 3, 2000 10:14:28 PM)
do you have any experience with designing logos?
DonnaE (ID=23) (Aug 3, 2000 10:14:34 PM)
yes
debbie (ID=22) (Aug 3, 2000 10:14:52 PM)
I'm not sure what I want to use yet.....
debbie (ID=22) (Aug 3, 2000 10:15:01 PM)
the name of the non profit is going to be the
debbie (ID=22) (Aug 3, 2000 10:15:17 PM)
National Foundation for Auditory Processing Disorders, Inc.
debbie (ID=22) (Aug 3, 2000 10:15:29 PM)
for short NFAPD, Inc.
debbie (ID=22) (Aug 3, 2000 10:16:02 PM)
I'm looking for designs for a logo and not sure what I want....I'
debbie (ID=22) (Aug 3, 2000 10:16:26 PM)
any ideas or suggestions?
DonnaE (ID=23) (Aug 3, 2000 10:16:42 PM)
let me think on it and I'll play around with it
debbie (ID=22) (Aug 3, 2000 10:17:08 PM)
ok sounds great..... I've thought of the double hearts like above or even an oak tree....
DonnaE (ID=23) (Aug 3, 2000 10:17:09 PM)
are you thinking colour? a symbol?
debbie (ID=22) (Aug 3, 2000 10:17:38 PM)
right now i have the new website design based in a purple *LOL*
DonnaE (ID=23) (Aug 3, 2000 10:18:04 PM)
that's a start, should try to tie everything together with typestyle and colour
debbie (ID=22) (Aug 3, 2000 10:18:17 PM)
the reason for the oak tree is my favorite saying is A Mighty Oak is just a little nut that stood its ground
DonnaE (ID=23) (Aug 3, 2000 10:18:29 PM)
so that people automatically associate it
DonnaE (ID=23) (Aug 3, 2000 10:18:40 PM)
that's cute
debbie (ID=22) (Aug 3, 2000 10:18:46 PM)
it's me! *LOL*
DonnaE (ID=23) (Aug 3, 2000 10:19:00 PM)
I like the little rabbit that you have too
DonnaE (ID=23) (Aug 3, 2000 10:19:06 PM)
rabbits - ears
debbie (ID=22) (Aug 3, 2000 10:19:18 PM)
that's from somoene else's site. Brenda C's site
debbie (ID=22) (Aug 3, 2000 10:19:37 PM)
the logo on my main page is the double heart with the ear in it...
DonnaE (ID=23) (Aug 3, 2000 10:19:42 PM)
well let me work with the tree idea for a bit
DonnaE (ID=23) (Aug 3, 2000 10:19:52 PM)
maybe a tree with hearts?
debbie (ID=22) (Aug 3, 2000 10:20:01 PM)
I just really dont know what to do...
debbie (ID=22) (Aug 3, 2000 10:20:22 PM)
dont stress over it..but if you think of somethink let me know...
DonnaE (ID=23) (Aug 3, 2000 10:20:46 PM)
I'll play with it and send you some ideas, sometimes if you just keep brainstorming it'll come. Won't stress - I love this kind of challenge
debbie (ID=22) (Aug 3, 2000 10:21:24 PM)
ok....the tree dont have to be there.. i was just trying to think of something different...
DonnaE (ID=23) (Aug 3, 2000 10:21:52 PM)
do you have a saying that you would like to associate with the logo?
debbie (ID=22) (Aug 3, 2000 10:22:35 PM)
not yet..nothing definite....the one above is listening to the hearts of others.....hence the ear in the hearts
debbie (ID=22) (Aug 3, 2000 10:23:06 PM)
i've also thought about "understanding what you hear and hearing what you understand"
DonnaE (ID=23) (Aug 3, 2000 10:23:22 PM)
that's great! I like that very much
debbie (ID=22) (Aug 3, 2000 10:23:31 PM)
which one?
debbie (ID=22) (Aug 3, 2000 10:23:43 PM)
the last one?
DonnaE (ID=23) (Aug 3, 2000 10:23:58 PM)
"understanding what you hear and hearing what you understand" says it all for me
debbie (ID=22) (Aug 3, 2000 10:24:14 PM)
I thought maybe others would think that was corny *LOL*
DonnaE (ID=23) (Aug 3, 2000 10:24:55 PM)
nope not corny at all
DonnaE (ID=23) (Aug 3, 2000 10:25:00 PM)
at least to me
DonnaE (ID=23) (Aug 3, 2000 10:25:15 PM)
Well I have to get going, I have to feed the dogs and get some sleep
DonnaE (ID=23) (Aug 3, 2000 10:25:38 PM)
I'll send you that contact information and if I come up with anything I'll send it to you
DonnaE (ID=23) (Aug 3, 2000 10:25:52 PM)
night Debbie, thanks for the chat I've enjoyed it
