Frances (ID=22) (Jan 9, 2001 8:09:42 PM)
(This user has entered CAPD: From the Heart) (IP = 32.103.30.97 )
Frances (ID=22) (Jan 9, 2001 8:10:39 PM)
is everyone gone???
debbie (ID=21) (Jan 9, 2001 8:10:58 PM)
hi there....
debbie (ID=21) (Jan 9, 2001 8:11:14 PM)
you are the first one here,..other than me..im hoping people got note about new time
Frances (ID=22) (Jan 9, 2001 8:11:42 PM)
I think I was late , this is my first time...
debbie (ID=21) (Jan 9, 2001 8:12:00 PM)
where are you from?
Frances (ID=22) (Jan 9, 2001 8:12:17 PM)
Puerto Rico, and you??
debbie (ID=21) (Jan 9, 2001 8:12:51 PM)
I"m from Florida....
Frances (ID=22) (Jan 9, 2001 8:13:06 PM)
How old is your kid?
debbie (ID=21) (Jan 9, 2001 8:13:07 PM)
Happy you could join the chat tonight....How did you hear of the chat?
debbie (ID=21) (Jan 9, 2001 8:13:25 PM)
my daughter is 9 now..she was diagnosed when she was 6 1/2
Frances (ID=22) (Jan 9, 2001 8:14:27 PM)
we don't have to much here, so i get in the internet to see what I can find and meet Dr Chermak and she told me..
debbie (ID=21) (Jan 9, 2001 8:14:59 PM)
so you do have a child with capd?
Frances (ID=22) (Jan 9, 2001 8:16:14 PM)
my son is 8 and I have been all over, one say that he have it the other , that he have ADD , and you know, I'm trying to find every I can . She is going to see him in February
debbie (ID=21) (Jan 9, 2001 8:17:03 PM)
hopefully you will have the answers then in Feb when you see Dr Chermak
debbie (ID=21) (Jan 9, 2001 8:18:00 PM)
by chance, have you joined the email list on this site?
Frances (ID=22) (Jan 9, 2001 8:18:38 PM)
its funny he can talk english very good you will think he is from the states , but them in spanish he have problems and he seems to think faster than he can talk. Yes I joined.
Frances (ID=22) (Jan 9, 2001 8:18:54 PM)
How do you noticed?
debbie (ID=21) (Jan 9, 2001 8:19:53 PM)
I was wondering if this is frances weil? It's been a while since i've been in contact with frances...
Frances (ID=22) (Jan 9, 2001 8:20:24 PM)
no I'm Frances Trabal
debbie (ID=21) (Jan 9, 2001 8:20:46 PM)
being in puerto rico, is spanish his native language? what language do you primarily speak at home/
Frances (ID=22) (Jan 9, 2001 8:21:10 PM)
Spanish
debbie (ID=21) (Jan 9, 2001 8:21:52 PM)
is his school in english or spanish?
Frances (ID=22) (Jan 9, 2001 8:21:55 PM)
how do you know that yours have capd ?
Frances (ID=22) (Jan 9, 2001 8:22:07 PM)
his school is in Spanish.
Peggy (ID=23) (Jan 9, 2001 8:22:32 PM)
(This user has entered CAPD: From the Heart) (IP = 144.198.207.35 )
debbie (ID=21) (Jan 9, 2001 8:22:42 PM)
i knew my daughter had problems with her speech by age 2. I suspected that she had a hearing loss. It took a long time to have her diagnosed.
debbie (ID=21) (Jan 9, 2001 8:22:48 PM)
hi Peggy! How are you tonight?
Peggy (ID=23) (Jan 9, 2001 8:23:00 PM)
Hi Debbie, Pretty good...
Peggy (ID=23) (Jan 9, 2001 8:23:05 PM)
How are you?
Peggy (ID=23) (Jan 9, 2001 8:23:22 PM)
I'm at work, so I'll be checking in and out as time allows.
debbie (ID=21) (Jan 9, 2001 8:23:28 PM)
I"m doing pretty good. Frances is joining us tonight for the first time.
Peggy (ID=23) (Jan 9, 2001 8:23:35 PM)
Hi Frances...
Frances (ID=22) (Jan 9, 2001 8:23:39 PM)
hi
debbie (ID=21) (Jan 9, 2001 8:23:53 PM)
Peggy, when you have a chance, please check out the auditory simulation we added to the NCAPD website today and send any feedback you may have.
Peggy (ID=23) (Jan 9, 2001 8:24:19 PM)
I was going to do that.. I'll let you know what I think...
Frances (ID=22) (Jan 9, 2001 8:24:28 PM)
what are we supposed to do?
debbie (ID=21) (Jan 9, 2001 8:24:30 PM)
Frances....Sarah has had a lot of trouble organizing her thoughts and expressing herself also, in speech and writing.
debbie (ID=21) (Jan 9, 2001 8:25:05 PM)
Frances, what you do will depend on the test results that you gather from Dr Chermak and what her recommendations are.
Peggy (ID=23) (Jan 9, 2001 8:25:07 PM)
Debbie, It looks like my son may be going to a different school so he can attend a special language intensive classroom. Like a language support classroom.
Peggy (ID=23) (Jan 9, 2001 8:25:51 PM)
He has receptive and expressive language delays. Moderate in receptive and mild to moderate in expressive.
Frances (ID=22) (Jan 9, 2001 8:26:03 PM)
I know, the problem here is that we don't have special school or any help at all
debbie (ID=21) (Jan 9, 2001 8:26:26 PM)
What size classes will be in the new school? Is this a private school or one the district sponsors?
Peggy (ID=23) (Jan 9, 2001 8:26:31 PM)
We aren't sure yet, but we will see if this class is available and how it can help..
Frances (ID=22) (Jan 9, 2001 8:27:02 PM)
I have to do all, and I have a ttutor that comes every day to study with him and it have help.
debbie (ID=21) (Jan 9, 2001 8:27:04 PM)
Frances, there is not alot of help in my area either. It takes eduating those you are working with.
debbie (ID=21) (Jan 9, 2001 8:27:19 PM)
Peggy...when does your son begin?
Peggy (ID=23) (Jan 9, 2001 8:27:27 PM)
It would be throught the Intermediate Unit... (Public school) Smaller classes... The Special Ed Liasian (?sp) is looking to see if it is appropriate for my son.
debbie (ID=21) (Jan 9, 2001 8:27:58 PM)
Peggy I will be anxious to see how it goes for you?
Peggy (ID=23) (Jan 9, 2001 8:28:10 PM)
They are still looking into the class, so i'll keep you posted.
Frances (ID=22) (Jan 9, 2001 8:28:12 PM)
they are scare and they don't seems to understand, you know is easy to look the other way..
Frances (ID=22) (Jan 9, 2001 8:28:48 PM)
but he is great and we will do one day at a time
debbie (ID=21) (Jan 9, 2001 8:29:02 PM)
it will mean alot ot him to have your support
Frances (ID=22) (Jan 9, 2001 8:29:43 PM)
do you have any problem in fourth grade, I think that is the hardest one.
debbie (ID=21) (Jan 9, 2001 8:30:15 PM)
My daughter is in 4th grade now and she's having a hard time....
Frances (ID=22) (Jan 9, 2001 8:30:38 PM)
how was it before?
Deb (ID=24) (Jan 9, 2001 8:30:50 PM)
(This user has entered CAPD: From the Heart) (IP = 172.162.93.73 )
debbie (ID=21) (Jan 9, 2001 8:30:52 PM)
before my dauther was an A/B student.....
debbie (ID=21) (Jan 9, 2001 8:30:55 PM)
hey Deb!
Deb (ID=24) (Jan 9, 2001 8:31:19 PM)
Hi...sorry I'm late...
Frances (ID=22) (Jan 9, 2001 8:31:29 PM)
Do you have help?
debbie (ID=21) (Jan 9, 2001 8:32:40 PM)
The school is helping some..but it's not been easy.....
Frances (ID=22) (Jan 9, 2001 8:33:20 PM)
Is she in any therapy at all?
Frances (ID=22) (Jan 9, 2001 8:33:47 PM)
I'm sorry to ask so much but I need all the help that I can get..
debbie (ID=21) (Jan 9, 2001 8:34:16 PM)
Please do ask questions.!! That's what we are here for!
debbie (ID=21) (Jan 9, 2001 8:34:25 PM)
Deb,,,How have you been? It's good to see you!
debbie (ID=21) (Jan 9, 2001 8:34:37 PM)
The simulation is live on the web with the new web design
Frances (ID=22) (Jan 9, 2001 8:34:50 PM)
what is that??
Deb (ID=24) (Jan 9, 2001 8:34:55 PM)
Debbie...ok...kids went back to school Monday...hip-hip hooray for routine again!
debbie (ID=21) (Jan 9, 2001 8:35:10 PM)
Currently Sarah is not in therapy, although she is using an FM trainer in school
Frances (ID=22) (Jan 9, 2001 8:35:29 PM)
What is an FM trainer?
Deb (ID=24) (Jan 9, 2001 8:35:42 PM)
Debbie...As of when?! COOL!!!! I will have Travis' teacher and SLP check it out tomorrow!! He starts with his language eval tomorrow....
debbie (ID=21) (Jan 9, 2001 8:35:50 PM)
Frances, the auditory simulation is a new simulation that Dr J Lucker and I have collaborated on .....We put it live on the web today. You can see the simulation on the NCAPD website at www.ncapd.org
debbie (ID=21) (Jan 9, 2001 8:36:03 PM)
Deb, it went live about 3 hours ago!
Frances (ID=22) (Jan 9, 2001 8:36:17 PM)
ok
Deb (ID=24) (Jan 9, 2001 8:36:30 PM)
Debbie....I AM SOOOOOOOOOO PHYSCHED!!!!!!!!!!!!!!!
debbie (ID=21) (Jan 9, 2001 8:37:02 PM)
An FM Trainer is a device that my daughter uses in school.....she wears a headset and the teacher wears a microphone. the teacher's voice is amplified in my daughter's ears and it drowns out the background noise
debbie (ID=21) (Jan 9, 2001 8:37:36 PM)
Deb, I"m pysched too....there is a feedback form on the end of the simulation now..encourage anyone you show the simulation to, to fill it out
Deb (ID=24) (Jan 9, 2001 8:37:51 PM)
I can't wait to get Travis' FM trainer!
Frances (ID=22) (Jan 9, 2001 8:37:53 PM)
did you buy it or how you get it?
debbie (ID=21) (Jan 9, 2001 8:38:43 PM)
the school is providing one for my daughter.
Deb (ID=24) (Jan 9, 2001 8:38:55 PM)
Debbie....BELIEVE ME.....TOMORROW I will be having EVERYONE at school check it out!! I'll be in school for half of the day tomorrow, so I'll MAKE SURE they check it out!
debbie (ID=21) (Jan 9, 2001 8:39:25 PM)
Debbie, did you know Dr Hall and Dr Moncrieff are doing seminars on APD in Florida in March?
Deb (ID=24) (Jan 9, 2001 8:39:37 PM)
Frances....same with me...the school will be providing one for Travis.
Deb (ID=24) (Jan 9, 2001 8:40:01 PM)
WHEN? WHERE? LET'S GO!!!!
Frances (ID=22) (Jan 9, 2001 8:40:14 PM)
can you ask were I can get one? and let me know . My e-mail is fgarcia@oxfordgolf.com
Frances (ID=22) (Jan 9, 2001 8:40:59 PM)
do you know who is Dr gail Chermak. she seems very nice.
debbie (ID=21) (Jan 9, 2001 8:41:13 PM)
your best bet Frances, is to talk to Dr Chermak....and see if it is appropriate for your son?
debbie (ID=21) (Jan 9, 2001 8:41:40 PM)
I know the name Dr Chermak...Although I"ve never met her, I"ve heard much of her and her work..she is very respected........
Frances (ID=22) (Jan 9, 2001 8:42:13 PM)
ok, is just that I'm so into have everything to help him
debbie (ID=21) (Jan 9, 2001 8:43:09 PM)
there are many different categories of capd......
Frances (ID=22) (Jan 9, 2001 8:44:27 PM)
how they know? I'm going to Orlando in two weeks do you know of some Dr. there?
debbie (ID=21) (Jan 9, 2001 8:45:04 PM)
my daughter and deb's son were both tested in Gainesville....about 2 hours from Orlando I think....
Frances (ID=22) (Jan 9, 2001 8:45:58 PM)
who help you can you get me information?
debbie (ID=21) (Jan 9, 2001 8:46:33 PM)
if you email me...i will try and get you information..my email is capdfromtheheart@aol.com
debbie (ID=21) (Jan 9, 2001 8:47:13 PM)
deb, do you have dr hall's number handy?
Frances (ID=22) (Jan 9, 2001 8:47:18 PM)
Thank You , I will do that
debbie (ID=21) (Jan 9, 2001 8:47:59 PM)
great!....
Deb (ID=24) (Jan 9, 2001 8:48:03 PM)
Hold on...I'll get Dr. Halls phone number...brb....
debbie (ID=21) (Jan 9, 2001 8:48:38 PM)
just a sec frances....deb will get info now for you.......
Frances (ID=22) (Jan 9, 2001 8:49:39 PM)
I have to work, so Ill talk to all of you next week . Thank you for the information.. See you...
Deb (ID=24) (Jan 9, 2001 8:49:44 PM)
You'll want to ask for the Speech & Hearing Center...ask for Dr. JAY Hall...the numbers are 352-392-8888 OR 1-800-749-7424
debbie (ID=21) (Jan 9, 2001 8:50:08 PM)
thank you deb
Deb (ID=24) (Jan 9, 2001 8:50:16 PM)
No problem...
Deb (ID=24) (Jan 9, 2001 8:50:57 PM)
Amungst my mess, I can still find things...amazing!!
debbie (ID=21) (Jan 9, 2001 8:51:08 PM)
better than me deb!
Deb (ID=24) (Jan 9, 2001 8:51:29 PM)
You, the one who has all at her fingertips? *L*
debbie (ID=21) (Jan 9, 2001 8:52:29 PM)
not anymore...i've been working on getting organized!!
Deb (ID=24) (Jan 9, 2001 8:52:32 PM)
I am SOOOOOO excited about the simulation being up and running!!
Deb (ID=24) (Jan 9, 2001 8:52:58 PM)
I just borrowed a book from a friend the other day, on that very subject!
debbie (ID=21) (Jan 9, 2001 8:53:19 PM)
what subject?
debbie (ID=21) (Jan 9, 2001 8:53:37 PM)
auditory simulations?
Deb (ID=24) (Jan 9, 2001 8:53:37 PM)
Getting organized!
debbie (ID=21) (Jan 9, 2001 8:53:50 PM)
oh! *LOL* ....might have to borrow it *LOL*
Deb (ID=24) (Jan 9, 2001 8:54:36 PM)
*LOL*.....I'll let you know how it is...I haven't started reading it yet...my reading time is between the hours of 2 and 3 AM!!! *LOL*
debbie (ID=21) (Jan 9, 2001 8:55:23 PM)
not me..if there aren't many more parents here soon, im going to head to bed early....3:30 am sure comes early!!!! geesh!
debbie (ID=21) (Jan 9, 2001 8:55:33 PM)
thank you for staying so so late last week
Deb (ID=24) (Jan 9, 2001 8:55:50 PM)
How is that going for you? Adjusting to the new hours?
debbie (ID=21) (Jan 9, 2001 8:56:23 PM)
i think im going to really really like the hours....
Deb (ID=24) (Jan 9, 2001 8:56:28 PM)
I just couldn't go last week...they had lots of questions....I still haven't heard from Shawna either..have you?
fran (ID=25) (Jan 9, 2001 8:56:33 PM)
(This user has entered CAPD: From the Heart) (IP = 24.190.206.1 )
debbie (ID=21) (Jan 9, 2001 8:56:41 PM)
i get saturday night off....and then dong go back til wed....it's like all this free time!
debbie (ID=21) (Jan 9, 2001 8:56:43 PM)
hi fran...
Deb (ID=24) (Jan 9, 2001 8:56:45 PM)
Hi Fran.....
debbie (ID=21) (Jan 9, 2001 8:56:50 PM)
no deb..i've not heard from shawna
fran (ID=25) (Jan 9, 2001 8:57:01 PM)
hi Yes I am new!
debbie (ID=21) (Jan 9, 2001 8:57:52 PM)
we are happy to have you..do you have a child with apd?
fran (ID=25) (Jan 9, 2001 8:58:00 PM)
have anyone been through fast forward yet?
fran (ID=25) (Jan 9, 2001 8:58:21 PM)
yes
Deb (ID=24) (Jan 9, 2001 8:58:33 PM)
No, but we are going to be starting Earobics soon...
fran (ID=25) (Jan 9, 2001 8:58:55 PM)
never heard of that, going to read about it soon
debbie (ID=21) (Jan 9, 2001 8:59:21 PM)
my daughter went through FFw over a year ago.
Deb (ID=24) (Jan 9, 2001 8:59:23 PM)
It's similar to FFW, not quite as intense..right Debbie?
fran (ID=25) (Jan 9, 2001 8:59:49 PM)
seen any improvement? were you happy with it?
Deb (ID=24) (Jan 9, 2001 9:00:16 PM)
BRB....
fran (ID=25) (Jan 9, 2001 9:00:55 PM)
considering fastforward... Did you do it yourself at home or with an audiologist?
debbie (ID=21) (Jan 9, 2001 9:01:25 PM)
I did FFw at home with my daughter...
Jill (ID=26) (Jan 9, 2001 9:01:28 PM)
(This user has entered CAPD: From the Heart) (IP = 172.147.193.103 )
fran (ID=25) (Jan 9, 2001 9:01:44 PM)
was it successful?
debbie (ID=21) (Jan 9, 2001 9:01:45 PM)
I think between FFW and using an FM trainer I"ve seen improvement in my daugther..
debbie (ID=21) (Jan 9, 2001 9:01:51 PM)
hi Jill............how are ou tonight?
debbie (ID=21) (Jan 9, 2001 9:02:03 PM)
We did see success with my daughter...
Jill (ID=26) (Jan 9, 2001 9:02:12 PM)
Good ,Thank you
debbie (ID=21) (Jan 9, 2001 9:03:01 PM)
Overall my daughter seems to be doing better...we no long are having the background discrimination problems.....now are focusing on other areas...
fran (ID=25) (Jan 9, 2001 9:03:24 PM)
how old is your daughter?
Deb (ID=24) (Jan 9, 2001 9:03:51 PM)
I'm back....having problems with my right hand...typing is very difficult tonight...
debbie (ID=21) (Jan 9, 2001 9:03:53 PM)
my daughter is 9 1/2 now,,,she was diagnosed almost 3 years ago....
debbie (ID=21) (Jan 9, 2001 9:04:14 PM)
what's the matter with your hand Deb? (worried look)
Deb (ID=24) (Jan 9, 2001 9:05:09 PM)
Debbie..not sure...can't bend it too much, can't flex it....it's starting to get worse...who knows! (Thanks for the worried look!)
debbie (ID=21) (Jan 9, 2001 9:05:13 PM)
Jill............did you see the note that the auditory simulation is online now and able to be viewed?
debbie (ID=21) (Jan 9, 2001 9:05:41 PM)
Deb...did you hit your hand on something? Dont suppose you are considering see a dr are you?
Jill (ID=26) (Jan 9, 2001 9:06:22 PM)
Yes But just got home from the running today I"ll look at it again later to night when I can concentrate
Deb (ID=24) (Jan 9, 2001 9:06:28 PM)
Debbie..no, didn't hit it....who, me see a Dr.?! Isn't that for other family members and not Mom?!?! *L*
debbie (ID=21) (Jan 9, 2001 9:07:09 PM)
Deb..same philosophy as in my family *LOL*...but if your hand dont get better soon....pleeeeeasssssssseee call the dr...
Deb (ID=24) (Jan 9, 2001 9:07:30 PM)
Debbie....Yes Mam...I promise!
debbie (ID=21) (Jan 9, 2001 9:07:30 PM)
Jill...let me know what you think..
debbie (ID=21) (Jan 9, 2001 9:07:56 PM)
Deb.....=)
Deb (ID=24) (Jan 9, 2001 9:08:21 PM)
Debbie...You're welcome...and thanks =) =)
Jill (ID=26) (Jan 9, 2001 9:08:32 PM)
Well do
debbie (ID=21) (Jan 9, 2001 9:09:11 PM)
Jill..have you had a good week?
Jill (ID=26) (Jan 9, 2001 9:09:57 PM)
Yea I am meeting with Timmy's teacher and principal...?
debbie (ID=21) (Jan 9, 2001 9:10:11 PM)
what day is your meeting?
Jill (ID=26) (Jan 9, 2001 9:10:47 PM)
Thursday My husband will be there I cry very easy and get that mother bear thing going
debbie (ID=21) (Jan 9, 2001 9:11:21 PM)
Jill that is wonderful that he is going with you!
Jill (ID=26) (Jan 9, 2001 9:11:49 PM)
We are a pretty unitied team about Timmy
Deb (ID=24) (Jan 9, 2001 9:11:50 PM)
Jill..same with me..I cry very easy...especially when it concerns Travis...
Jill (ID=26) (Jan 9, 2001 9:12:14 PM)
Plus he is Knows I could just pull him and homeschool
debbie (ID=21) (Jan 9, 2001 9:12:32 PM)
My husband is very supportive when it comes to Sarah, but he's not made any meetings with me....
Jill (ID=26) (Jan 9, 2001 9:12:53 PM)
If you knew me that is not an option Timmy would be great in physical activity
Deb (ID=24) (Jan 9, 2001 9:13:17 PM)
Stan has made most of T's...except the last one I think...hmmmm..not too bad I guess.
debbie (ID=21) (Jan 9, 2001 9:13:51 PM)
that's not bad at all Deb
Deb (ID=24) (Jan 9, 2001 9:14:42 PM)
My Mom went to the last one with me...when I thought I was going to have to fight for the FM Trainer...
debbie (ID=21) (Jan 9, 2001 9:14:58 PM)
I"m going to let you ladies chat for a few..I have to do something real quick..back in a few minutes.
Deb (ID=24) (Jan 9, 2001 9:15:14 PM)
Okie-dokey....
Deb (ID=24) (Jan 9, 2001 9:15:36 PM)
What is your meeting about on Thursday Jill?
Jill (ID=26) (Jan 9, 2001 9:15:37 PM)
Actually we are hoping that we can move him to another school that has a hands on teacher. Timmy's teacher now just lectures....Boring and it's first grade
laurasmom (ID=27) (Jan 9, 2001 9:16:03 PM)
(This user has entered CAPD: From the Heart) (IP = 172.132.15.4 )
Deb (ID=24) (Jan 9, 2001 9:16:10 PM)
You better believe it...boring, and NOT a good way for him to learn...
Deb (ID=24) (Jan 9, 2001 9:16:25 PM)
Hi laurasmom...how are you tonight?
Jill (ID=26) (Jan 9, 2001 9:16:31 PM)
He isn't at the same level the rest of the class is so I guess Academic Probation
laurasmom (ID=27) (Jan 9, 2001 9:16:58 PM)
HI, Deb, and all...am I too late to ask a question?
Jill (ID=26) (Jan 9, 2001 9:17:15 PM)
Never
Deb (ID=24) (Jan 9, 2001 9:17:33 PM)
Travis isn't at his 2nd grade level either....and, he'll probably never be at the level as the rest of his classmates...BUT, I know, and cann see his BIG improvements....
Deb (ID=24) (Jan 9, 2001 9:17:41 PM)
Ask away!!
laurasmom (ID=27) (Jan 9, 2001 9:18:11 PM)
Thanks. Guess I'm confused and somewhat disheartened. My daughter, who's 10, has some apd issues, and we had been seeing an SLP for receptive and expressive help.
Deb (ID=24) (Jan 9, 2001 9:18:37 PM)
How is that going for her? See any improvements?
laurasmom (ID=27) (Jan 9, 2001 9:18:55 PM)
But this past Fall, Laura fell down a firepole at school and broke both bones in her right leg. She has great anxiety about getting hurt at all at this point.
Deb (ID=24) (Jan 9, 2001 9:19:04 PM)
Has she been tested by an audiologist?
Jill (ID=26) (Jan 9, 2001 9:20:10 PM)
Can you give an example
laurasmom (ID=27) (Jan 9, 2001 9:20:18 PM)
There are certainly Sensory Integration issues and I believe she has trouble making out the distance to the ground. Yes, she has been tested for hearing( which is perfect) but her SLP believes that the apd tests wouldn't tell her more than she can already surmise from working with her.
Deb (ID=24) (Jan 9, 2001 9:21:12 PM)
Yes, the APD tests would give you LOTS of info the SLP can't!!
laurasmom (ID=27) (Jan 9, 2001 9:21:23 PM)
You know, it's hard for me to know where to start. (that is, which problems to address. (As you can imagine, the greatest issues for the past three months has been getting her to walk again.
Jill (ID=26) (Jan 9, 2001 9:21:26 PM)
what does her regular doctor think?
Deb (ID=24) (Jan 9, 2001 9:21:37 PM)
My son is going to be tested for some SI issues....
laurasmom (ID=27) (Jan 9, 2001 9:22:16 PM)
Jill, that's an interesting question, as I've been to many specialists but not gotten into depth with her regular doctor. Deb, can you tell me about the SI issues you are looking into?
laurasmom (ID=27) (Jan 9, 2001 9:22:58 PM)
Laura has great difficulties with background noise, in a restaurant or a classroom
franny (ID=28) (Jan 9, 2001 9:23:01 PM)
(This user has entered CAPD: From the Heart) (IP = 24.190.206.1 )
Jill (ID=26) (Jan 9, 2001 9:23:01 PM)
Sometimes peds know more than specialists
Deb (ID=24) (Jan 9, 2001 9:23:37 PM)
He has a lot of tactile issues...always 'picking' at his hands, or fingers...doesn't like to be touched a whole lot...
Deb (ID=24) (Jan 9, 2001 9:23:51 PM)
Hi Franny...how are you tonight?
laurasmom (ID=27) (Jan 9, 2001 9:24:01 PM)
Jill, I'll explore that route as well. I'm thinking now though, that if I concentrated on SI instead of apd issues, I might be able to help her avoid the next broken leg.
franny (ID=28) (Jan 9, 2001 9:24:38 PM)
its fran, i got bumped off and couldn't getback on
franny (ID=28) (Jan 9, 2001 9:24:51 PM)
enjoying the chat
laurasmom (ID=27) (Jan 9, 2001 9:24:51 PM)
She is terrified of pain. Screamed so the whole county could hear her when the cast was removed. When it's over, she rather maturely apologizes to the docs, nurses, and us.
Deb (ID=24) (Jan 9, 2001 9:25:01 PM)
I saw that when I looked over to see who was in...sorry...welcome back!
franny (ID=28) (Jan 9, 2001 9:25:10 PM)
thanks
laurasmom (ID=27) (Jan 9, 2001 9:25:21 PM)
I wish I could understand how/if SI and capd are related. any thoughts?
franny (ID=28) (Jan 9, 2001 9:25:52 PM)
what does si stand for?
laurasmom (ID=27) (Jan 9, 2001 9:26:01 PM)
Sensory Integration
franny (ID=28) (Jan 9, 2001 9:26:09 PM)
thanks
Jill (ID=26) (Jan 9, 2001 9:26:23 PM)
Are they related? Deb do you know
laurasmom (ID=27) (Jan 9, 2001 9:26:26 PM)
It can be extremes....Some children hate to be touched, as Deb mentioned
Deb (ID=24) (Jan 9, 2001 9:26:49 PM)
laurasmom...have you read the book 'The Out of Sync Child'? I'm in the process of reading it right now...it is AWESOME for Si issues...and, I can see a lot of APD stuff in there as well. My sons teacher is reading it as well....great book!
laurasmom (ID=27) (Jan 9, 2001 9:27:08 PM)
Each sense (visual, auditory, tactile) etc, seems to have it's own issues and difficulties
franny (ID=28) (Jan 9, 2001 9:27:14 PM)
my child was like that when he was younger too
franny (ID=28) (Jan 9, 2001 9:27:40 PM)
do you find that the schools are not at all informed about capd?
laurasmom (ID=27) (Jan 9, 2001 9:28:15 PM)
In Laura's case, it's called proprioceptive...has to do with her place in relation to the Earth. She's great (was great before breaking her leg,. ) at rollerblading, biking, dancing. But try to kick a ball and she'll sprain an ankle...or break her leg coming down a firepole
Deb (ID=24) (Jan 9, 2001 9:28:30 PM)
I'm not quite sure if they are related or not....but, you will often find that a lot of our children with APD, aslo have SI issues....they sometimes (A lot of times) do go hand in hand.
laurasmom (ID=27) (Jan 9, 2001 9:29:18 PM)
Yes, I've read the Out of Sync child. and you're right, it's very helpful. I guess I've just got to explore seeing an Occupational Therapist. But even the term is hard to get a handle on
Deb (ID=24) (Jan 9, 2001 9:29:39 PM)
Fran....absolutely..for the most part, the schools ARE NOT knowledgeable on APD..that's where we parents come in...to educate the educators.
franny (ID=28) (Jan 9, 2001 9:29:58 PM)
has anyone heard that capd children could also have autistic tendencies?
laurasmom (ID=27) (Jan 9, 2001 9:30:02 PM)
Yes Deb, you're right. Look how many people refer to difficulty with background noise for example. That's a Sensory Integration issue.
Deb (ID=24) (Jan 9, 2001 9:30:33 PM)
laurasmom...Travis has has an OT since he was 3 yrs. old...and will probably end up having an SI therapist as well...once the testing has been done....
Dawn (ID=29) (Jan 9, 2001 9:30:33 PM)
(This user has entered CAPD: From the Heart) (IP = 209.245.104.232 )
Deb (ID=24) (Jan 9, 2001 9:30:56 PM)
Hi Dawn...welcome....
Dawn (ID=29) (Jan 9, 2001 9:31:10 PM)
hello. I'm very late. Just got the reminder so I thought I'd pop in. How is everyone?
laurasmom (ID=27) (Jan 9, 2001 9:31:51 PM)
Deb, I didn't realize those are two separate specialists: OT and SI therapist. How are they different? I have a feeling it's a Sensory Integration therapist I should seek.
Deb (ID=24) (Jan 9, 2001 9:31:54 PM)
Fran...yes, I believe some can have autistic tendencies as well....someone asked about that last week also.
Dawn (ID=29) (Jan 9, 2001 9:32:38 PM)
Deb...some meaning who? sorry I'm in the middle of the conversation..
franny (ID=28) (Jan 9, 2001 9:33:14 PM)
It has been brought to my attention, I need to research this further. I wondering if it is a characteristic of capd or autism / or both
Deb (ID=24) (Jan 9, 2001 9:33:27 PM)
laurasmom...Yes, they are different....an SI therapist is trained differently and has to be certified...and it's hard to find someone who is trained in SI....
laurasmom (ID=27) (Jan 9, 2001 9:33:40 PM)
Another question...Whenever I suggest to my daughter that she does something (semi) academic: read, write a thank you note, etc, her first response is to protest.
Dawn (ID=29) (Jan 9, 2001 9:34:02 PM)
funny you should mention autism..we saw a neurologist last week who said he saw autistic like behaviors in Justin and also thought he may be having seizures
Deb (ID=24) (Jan 9, 2001 9:34:26 PM)
Same with Travis...he'll protest, and throw a fit...but, once he sits down to do it, he;s usually ok...but, will hurry through it!
Dawn (ID=29) (Jan 9, 2001 9:34:34 PM)
we have no official diagnosis of anything..not even CAPD just so y'all know
laurasmom (ID=27) (Jan 9, 2001 9:35:02 PM)
oops, hit the send too fast! Do any of you have the same problem (protest first, do it later) with your child? I try to take off the pressure, but I do believe that some structure (especially at age 10) is neede.
Deb (ID=24) (Jan 9, 2001 9:35:11 PM)
Dawn..how old is Justin?
debbie (ID=21) (Jan 9, 2001 9:35:11 PM)
hi..im back..sorry for delay
Dawn (ID=29) (Jan 9, 2001 9:35:20 PM)
he's 27months
Dawn (ID=29) (Jan 9, 2001 9:35:29 PM)
young I know
franny (ID=28) (Jan 9, 2001 9:35:40 PM)
we have a capd diagnosis, been to two neurologissts. They don't vote on autism, yet school psychologists sees tendencies...
laurasmom (ID=27) (Jan 9, 2001 9:35:56 PM)
Deb, what does the OT do...or why would you see an SI therapist instead...is it because SI
laurasmom (ID=27) (Jan 9, 2001 9:36:06 PM)
is better trained for Travis?
Deb (ID=24) (Jan 9, 2001 9:36:15 PM)
laurasmom...I agree with you...YES to structure! And Travis will protest, almost always, and says he will do it 'later'....yeah, right!
franny (ID=28) (Jan 9, 2001 9:36:42 PM)
reading a book, gets a later vote here too
laurasmom (ID=27) (Jan 9, 2001 9:37:47 PM)
Franny, how old is your child?
laurasmom (ID=27) (Jan 9, 2001 9:38:10 PM)
Are any of you located in California?
franny (ID=28) (Jan 9, 2001 9:38:18 PM)
14 now, diagnosed at 9
Deb (ID=24) (Jan 9, 2001 9:38:23 PM)
laurasmom....The SIOT would be doing/treating different issues than his reg. OT...and if there isn't an SI therapist, his OT said she could do the SI therapy, as she has had some training, but isn't certified...make any sense?
Jill (ID=26) (Jan 9, 2001 9:38:26 PM)
I'm in Sunnyvale
Deb (ID=24) (Jan 9, 2001 9:38:36 PM)
Ocala, Florida
debbie (ID=21) (Jan 9, 2001 9:38:48 PM)
I"m in Jacksonville, Florida
franny (ID=28) (Jan 9, 2001 9:38:59 PM)
long island, ny
Jill (ID=26) (Jan 9, 2001 9:38:59 PM)
Sunnyvale, California
laurasmom (ID=27) (Jan 9, 2001 9:39:02 PM)
Well, at least we've all got better climate!
Jill (ID=26) (Jan 9, 2001 9:39:20 PM)
Where are you?
franny (ID=28) (Jan 9, 2001 9:39:29 PM)
not me! we just had 13 inches of snow last week
laurasmom (ID=27) (Jan 9, 2001 9:39:54 PM)
Whoops, except for Franny. I'm FROM Long Island. Garden City But now I'm in Souther California, near Santa Barbara. Franny, do you mind telling us where in Long Island?
Deb (ID=24) (Jan 9, 2001 9:40:18 PM)
Fran...I just moved to Florida a tear ago from upstate NY....hmmmm....wonder why!!! *L*
franny (ID=28) (Jan 9, 2001 9:40:23 PM)
stoneybrook
Deb (ID=24) (Jan 9, 2001 9:40:51 PM)
ooops....a YEAR ago...sorry!
laurasmom (ID=27) (Jan 9, 2001 9:40:54 PM)
'Franny:Yes, near the University. Are they any help?
Dawn (ID=29) (Jan 9, 2001 9:41:22 PM)
We're in NH
laurasmom (ID=27) (Jan 9, 2001 9:41:28 PM)
Poor Deb..a tear ago, was it that hard to leave? ;-D
franny (ID=28) (Jan 9, 2001 9:41:31 PM)
i haven't used anyone from there.
Jill (ID=26) (Jan 9, 2001 9:41:39 PM)
Where in So. Cal
laurasmom (ID=27) (Jan 9, 2001 9:41:56 PM)
Westlake Village
kman (ID=30) (Jan 9, 2001 9:42:04 PM)
(This user has entered CAPD: From the Heart) (IP = 64.30.132.66 )
Deb (ID=24) (Jan 9, 2001 9:42:10 PM)
NO, it was a PLEASUREto leave!! I hated that nasty white stuff as a kid, and hated it even more as an adult!
Deb (ID=24) (Jan 9, 2001 9:42:30 PM)
Hi kman....
debbie (ID=21) (Jan 9, 2001 9:42:32 PM)
hey kman..how are you tonight?
Jill (ID=26) (Jan 9, 2001 9:42:44 PM)
Westlake Village is a nice community
kman (ID=30) (Jan 9, 2001 9:42:50 PM)
hello, fine and you?
Dawn (ID=29) (Jan 9, 2001 9:43:00 PM)
Has anyone here had an EEG done on their child? We're supposed to have one done to look for seizure activity.
laurasmom (ID=27) (Jan 9, 2001 9:43:04 PM)
You know, maybe we need to start a "great doctors or great specialists list."
debbie (ID=21) (Jan 9, 2001 9:43:09 PM)
doing great tonight..
Deb (ID=24) (Jan 9, 2001 9:43:25 PM)
Dawn....no EEG here....
laurasmom (ID=27) (Jan 9, 2001 9:43:41 PM)
The thyroid site I frequent has that (a great doctors list)and it has made a difference to many.
debbie (ID=21) (Jan 9, 2001 9:43:44 PM)
laurasmom..the NCAPD has a national referral program for audiologist and slp's....it's beeing update and will be back online very shortly
Dawn (ID=29) (Jan 9, 2001 9:43:45 PM)
He has staring spells
Jill (ID=26) (Jan 9, 2001 9:43:49 PM)
Isn't the LindaMood Auditory Center in San Luis Obispo could the recommend some one in WestLake for you
debbie (ID=21) (Jan 9, 2001 9:44:08 PM)
we had to take the referral program down temporarily to reregister some of the participants.
laurasmom (ID=27) (Jan 9, 2001 9:44:13 PM)
Debbie, that's great.
Deb (ID=24) (Jan 9, 2001 9:44:39 PM)
How long does he stare Dawn? How long has it been going on?
debbie (ID=21) (Jan 9, 2001 9:44:57 PM)
if you aren't familiar with the NCAPD website...take time to look at the new changes......TODAY we added an auditory simulation that dr j and I have been working on together.......
laurasmom (ID=27) (Jan 9, 2001 9:45:04 PM)
Jill that's a great thought. (And Sunnyvale's nice, too. )I'll pursue that.
franny (ID=28) (Jan 9, 2001 9:45:21 PM)
good night girls, got to go thanks... I'll be on again next week... enjoyed the chat!
Deb (ID=24) (Jan 9, 2001 9:45:25 PM)
Debbie has done a WONDERFUL job on the website...and the simulation is AWESOME!!!!
debbie (ID=21) (Jan 9, 2001 9:45:29 PM)
goodnight franny
Peggy (ID=23) (Jan 9, 2001 9:45:32 PM)
Dawn, My son had an EEG when he was around 4 1/2
Deb (ID=24) (Jan 9, 2001 9:45:37 PM)
Night Fran...see you next week!
debbie (ID=21) (Jan 9, 2001 9:45:47 PM)
thanks Deb!
Dawn (ID=29) (Jan 9, 2001 9:45:56 PM)
it can be up to 6 seconds that I've seen...short. Not really sure how long it's been happening. Thought he was just daydreaming
Peggy (ID=23) (Jan 9, 2001 9:46:00 PM)
Hi OT thought he has absents (s?) seizures. _
Dawn (ID=29) (Jan 9, 2001 9:46:09 PM)
What was the outcome Peggy?
Peggy (ID=23) (Jan 9, 2001 9:46:11 PM)
Turned out he didn't.
laurasmom (ID=27) (Jan 9, 2001 9:46:13 PM)
Jill, would you mind dropping me an e-mail with your e-mail address or give it to me here?
Dawn (ID=29) (Jan 9, 2001 9:46:15 PM)
good
Deb (ID=24) (Jan 9, 2001 9:46:19 PM)
You are oh so welcome Debbie! Hats off to you and Dr. J on the simulation!
laurasmom (ID=27) (Jan 9, 2001 9:46:30 PM)
I'm sjcurtis@aol.com
TLC (ID=31) (Jan 9, 2001 9:46:35 PM)
(This user has entered CAPD: From the Heart) (IP = 63.39.72.180 )
Dawn (ID=29) (Jan 9, 2001 9:46:36 PM)
That's what they're called...absence seizures
Peggy (ID=23) (Jan 9, 2001 9:46:37 PM)
It was done at Philadelphia's Children's Hospital.
Jill (ID=26) (Jan 9, 2001 9:46:39 PM)
KentVogel@aol.com
Peggy (ID=23) (Jan 9, 2001 9:46:46 PM)
My son didn't like it... It was scarry.
laurasmom (ID=27) (Jan 9, 2001 9:46:49 PM)
Thanks!
debbie (ID=21) (Jan 9, 2001 9:46:49 PM)
hey TLC....good to see you tonight
Deb (ID=24) (Jan 9, 2001 9:46:52 PM)
Hi TLC....
Dawn (ID=29) (Jan 9, 2001 9:46:58 PM)
was he sedated?
TLC (ID=31) (Jan 9, 2001 9:47:03 PM)
good evening
Dawn (ID=29) (Jan 9, 2001 9:47:12 PM)
I don't think it'll be that fun
TLC (ID=31) (Jan 9, 2001 9:47:34 PM)
whats the chat about tonight?
Peggy (ID=23) (Jan 9, 2001 9:47:41 PM)
They used something to mark the places where they stick the electon pieces on his scalp.
Peggy (ID=23) (Jan 9, 2001 9:47:57 PM)
They then monitor his activity with the lights off.
Peggy (ID=23) (Jan 9, 2001 9:48:04 PM)
Then they put on a strobe light.
debbie (ID=21) (Jan 9, 2001 9:48:12 PM)
general chat tonight TLC
Peggy (ID=23) (Jan 9, 2001 9:48:32 PM)
It wasn't fun. Maybe they changed it now... I hope.
Dawn (ID=29) (Jan 9, 2001 9:48:48 PM)
another question..wondering if anyone had CPC's in utero. (choroid plexus cysts) Yikes Peggy. When was that? Maybe it's better now. lol
Peggy (ID=23) (Jan 9, 2001 9:48:52 PM)
They say that strobe lights can trigger seizures.
debbie (ID=21) (Jan 9, 2001 9:48:59 PM)
well ladies....3:30 am comes early so I'm going to say goodnight for now....
Dawn (ID=29) (Jan 9, 2001 9:49:11 PM)
yes. lights, sounds, stress
Peggy (ID=23) (Jan 9, 2001 9:49:11 PM)
He had the EEG done around 4 yrs ago.
Peggy (ID=23) (Jan 9, 2001 9:49:19 PM)
Good night Debbie.
Dawn (ID=29) (Jan 9, 2001 9:49:24 PM)
night debbie
Jill (ID=26) (Jan 9, 2001 9:49:28 PM)
I need to go and feed the family....They are pacing I guess I should feed them
Dawn (ID=29) (Jan 9, 2001 9:49:47 PM)
bye Jill
laurasmom (ID=27) (Jan 9, 2001 9:49:50 PM)
Good night Jill. Thanks for your help. I'll drop you an e-mail
Peggy (ID=23) (Jan 9, 2001 9:49:52 PM)
Bye Jill
TLC (ID=31) (Jan 9, 2001 9:49:59 PM)
My son had his Appendicitis out the day after Christmas. I spent Christmas night in the ER room.
Deb (ID=24) (Jan 9, 2001 9:49:59 PM)
Nighty night Debbie...I'll talk to you soon...I'm going to be heading out myself I think...I have some computer stuff to print out for school tomorrow...plus, the ole handis really sore.
Jill (ID=26) (Jan 9, 2001 9:50:07 PM)
Me too..Thanks ladies
Deb (ID=24) (Jan 9, 2001 9:50:13 PM)
Night Jill....
Dawn (ID=29) (Jan 9, 2001 9:50:21 PM)
not fun TLC
TLC (ID=31) (Jan 9, 2001 9:50:41 PM)
no it wasn't but he's ok now.
Dawn (ID=29) (Jan 9, 2001 9:50:52 PM)
that's good.
Deb (ID=24) (Jan 9, 2001 9:50:54 PM)
Glad to hear all is well TLC....
TLC (ID=31) (Jan 9, 2001 9:51:06 PM)
thank you
Deb (ID=24) (Jan 9, 2001 9:51:26 PM)
I'm going to go to all...hope to see you all next week....good chatting with you all!
Peggy (ID=23) (Jan 9, 2001 9:51:34 PM)
Bye Deb
Dawn (ID=29) (Jan 9, 2001 9:51:39 PM)
bye deb
TLC (ID=31) (Jan 9, 2001 9:51:40 PM)
bye
Deb (ID=24) (Jan 9, 2001 9:51:41 PM)
Night all.....
laurasmom (ID=27) (Jan 9, 2001 9:51:53 PM)
Thanks Deb...and does anyone know the address of the ncapd web site?
Dawn (ID=29) (Jan 9, 2001 9:52:11 PM)
nope. sorry
kman (ID=30) (Jan 9, 2001 9:52:32 PM)
www.nacpd.org
TLC (ID=31) (Jan 9, 2001 9:53:18 PM)
how old is everyone Child that has CAPD? Mine is 7yrs old and I found out about 1 1/2 half ago that he had CAPD.
Peggy (ID=23) (Jan 9, 2001 9:54:00 PM)
My son is now 8 yrs old, CAPD and Expressive/Receptive Language delays.
Dawn (ID=29) (Jan 9, 2001 9:54:01 PM)
mine is 2 but we don't have a diagnosis...searching for cause of developmental delays
kman (ID=30) (Jan 9, 2001 9:54:07 PM)
My daughter is 10 years old
Peggy (ID=23) (Jan 9, 2001 9:54:18 PM)
Dawn, is the EEG for the 2yr old?
Dawn (ID=29) (Jan 9, 2001 9:54:22 PM)
yes
Peggy (ID=23) (Jan 9, 2001 9:54:39 PM)
Have you noticed any seizures???
TLC (ID=31) (Jan 9, 2001 9:54:47 PM)
Peggy what kind of Receptive language delays does he have?
Dawn (ID=29) (Jan 9, 2001 9:54:59 PM)
He has staring spells that looked to the neurologist like seizures
Peggy (ID=23) (Jan 9, 2001 9:55:16 PM)
He had moderate Receptive language delay...and mild to moderate expressive.
Peggy (ID=23) (Jan 9, 2001 9:55:47 PM)
Just had him re-evaluated at DuPont Childrens hospital on Jan 2nd. Waiting for the reports.
TLC (ID=31) (Jan 9, 2001 9:55:53 PM)
is your son hard to understand?
TLC (ID=31) (Jan 9, 2001 9:56:36 PM)
what kind of moderate expressive ?
Peggy (ID=23) (Jan 9, 2001 9:57:08 PM)
No, articulation has improved a lot since he was 4 and had ear tubes. He still does have some articulation delays, not as bad as the language.
Dawn (ID=29) (Jan 9, 2001 9:57:43 PM)
I should get going. You all have more in common...age. will stop in again sometime. Thanks for your input Peggy.
TLC (ID=31) (Jan 9, 2001 9:58:13 PM)
My son is hard to understand and he takes speech twice a week.
Peggy (ID=23) (Jan 9, 2001 9:58:39 PM)
Good Luck Dawn!!!
Dawn (ID=29) (Jan 9, 2001 9:58:45 PM)
best of luck to you all too
TLC (ID=31) (Jan 9, 2001 9:59:00 PM)
bye dawn
Dawn (ID=29) (Jan 9, 2001 9:59:06 PM)
bye
Peggy (ID=23) (Jan 9, 2001 9:59:53 PM)
TLC, I'm not sure what kind of Moderate delays, The report should give details...I hope.
Peggy (ID=23) (Jan 9, 2001 10:00:05 PM)
How is your son's hearing?
drewk (ID=32) (Jan 9, 2001 10:00:05 PM)
(This user has entered CAPD: From the Heart) (IP = 172.171.20.180 )
TLC (ID=31) (Jan 9, 2001 10:00:24 PM)
my son has tubes in both ear.
Peggy (ID=23) (Jan 9, 2001 10:00:42 PM)
Has he had them for a while?
Peggy (ID=23) (Jan 9, 2001 10:00:53 PM)
It helped my son with articulation.
TLC (ID=31) (Jan 9, 2001 10:00:56 PM)
yes
TLC (ID=31) (Jan 9, 2001 10:01:41 PM)
my son has an aid with him though out the school day because school is way to hard for him.
Peggy (ID=23) (Jan 9, 2001 10:02:14 PM)
My son gets Speech Therapy for 1/2 hr twice a week at school. Only thing is they aren't meeting his language needs right now. I hope to address this very soon.
TLC (ID=31) (Jan 9, 2001 10:02:55 PM)
He is in 1st grade but the test at a beginning kindergarden level.
Peggy (ID=23) (Jan 9, 2001 10:03:12 PM)
They are thinking of sending my son to a special ed classroom which is for children with Language delays so he can get more help. Until they find such a class they may give him an aide.
Peggy (ID=23) (Jan 9, 2001 10:03:20 PM)
Is it helping?
Peggy (ID=23) (Jan 9, 2001 10:03:56 PM)
The aide?
Peggy (ID=23) (Jan 9, 2001 10:04:03 PM)
Hi Drewk.
drewk (ID=32) (Jan 9, 2001 10:04:21 PM)
hi. I'm just listening
TLC (ID=31) (Jan 9, 2001 10:04:23 PM)
Yes the Aid helps him a lot. He would be lost in school without a aid.
Peggy (ID=23) (Jan 9, 2001 10:04:51 PM)
I am at work, I was a little busy earlier.
Peggy (ID=23) (Jan 9, 2001 10:05:03 PM)
Debbie left for the night I believe.
drewk (ID=32) (Jan 9, 2001 10:05:10 PM)
excuse me for interuppting but how old are the children that we are discussing?
Peggy (ID=23) (Jan 9, 2001 10:05:24 PM)
8 yrs
TLC (ID=31) (Jan 9, 2001 10:05:24 PM)
mine is 7yrs old
TLC (ID=31) (Jan 9, 2001 10:05:41 PM)
how old is yours Drewk
laurasmom (ID=27) (Jan 9, 2001 10:05:47 PM)
My daughter's 10, and yours , DrewK
drewk (ID=32) (Jan 9, 2001 10:05:52 PM)
Min daughter is eleven and has an aide and a tutor in the school
laurasmom (ID=27) (Jan 9, 2001 10:06:05 PM)
How does the aide help her?
BEA (ID=33) (Jan 9, 2001 10:06:07 PM)
(This user has entered CAPD: From the Heart) (IP = 172.132.115.98 )
Peggy (ID=23) (Jan 9, 2001 10:06:08 PM)
My son is in part time learning support for Reading and math. He's in 2nd grade.
Peggy (ID=23) (Jan 9, 2001 10:06:14 PM)
Hi Bea
BEA (ID=33) (Jan 9, 2001 10:06:28 PM)
Hi Peggy
Peggy (ID=23) (Jan 9, 2001 10:07:00 PM)
Does anyone have experience with special education classrooms???
TLC (ID=31) (Jan 9, 2001 10:07:12 PM)
Drewk & Laurasmom how long has your kids had CAPD?
drewk (ID=32) (Jan 9, 2001 10:07:37 PM)
The aide as you know does not need a degree to partake with our children's learning capacities which I am disgruntled about but as you know in the wonderful workd of IEPs onece you have this on paper just make sure that this is something that you never give up because you will never get it back
drewk (ID=32) (Jan 9, 2001 10:08:55 PM)
Peggy the school district wanted to place my daughte rin a self-contained class room but I did not go for it. Theydistrict sent me to watch some classes for a few days and I was not happy with what I saw
BEA (ID=33) (Jan 9, 2001 10:09:44 PM)
Would someone please explain auditory processing and CAPD?
drewk (ID=32) (Jan 9, 2001 10:09:57 PM)
My daughter started with testing when she was 3.5 years but not just testing of CAPD. I knew at this erearly age that something was just not "right"
Peggy (ID=23) (Jan 9, 2001 10:10:08 PM)
They are the same thing.... APD CAPD
Peggy (ID=23) (Jan 9, 2001 10:10:44 PM)
Dwerk, They are looking at a special language class for my son...
Peggy (ID=23) (Jan 9, 2001 10:11:00 PM)
I don't know yet,
Peggy (ID=23) (Jan 9, 2001 10:11:42 PM)
Bea, they renamed CAPD to APD not to long ago. I am not sure exactly why. They both are Auditory Processing
drewk (ID=32) (Jan 9, 2001 10:11:45 PM)
would this be a class that he would be in for the entire day and not mainstreamed into his home class
Peggy (ID=23) (Jan 9, 2001 10:12:40 PM)
I am not sure yet. I think they will try to mainsteam as much as possible, they don't even know yet what is available.
Peggy (ID=23) (Jan 9, 2001 10:13:16 PM)
They may get him an aide in the mean time. He does have part-time learing support for math and reading and is doing well there with FM trainer.
drewk (ID=32) (Jan 9, 2001 10:14:07 PM)
This is what kills me about the system. When you say they don't even know yet I get the feeling that this district of yurs is really putting you off bacause they don't know how deal with the child and most importantly the parent
Peggy (ID=23) (Jan 9, 2001 10:14:08 PM)
The regular classroom teacher said that the FM doesn't help in the regular class, so that is why we are looking at other options. FM works in Learining support .
Peggy (ID=23) (Jan 9, 2001 10:15:25 PM)
I just had him tested at DuPont Children for Speech and Language. This report should help me when we do meet witht the school.
Peggy (ID=23) (Jan 9, 2001 10:15:43 PM)
I am going to visit any class they may suggest he attend...
drewk (ID=32) (Jan 9, 2001 10:15:47 PM)
The FM trainer worked for my daughter at first until I started to really get on the teachers about the slow progress. That is when they really admitted that they had not even really used the trainer much. Again it is another game of pacifying the parent
Peggy (ID=23) (Jan 9, 2001 10:17:08 PM)
I am going to keep on top of things...Such a pain...
Peggy (ID=23) (Jan 9, 2001 10:18:08 PM)
Dwerk, do they use FM now?
drewk (ID=32) (Jan 9, 2001 10:19:06 PM)
my only thing that I can really tell all of you in this chat room and for the record in the archives is to be careful because your child will slip into the cracks of the system before your eyes. I am a very persistent mom as all of you are too but the stuff that these districts have tried to tell me is unreal. No, my daughter doesn't use the trainer anymore
Peggy (ID=23) (Jan 9, 2001 10:19:47 PM)
Thanks...
drewk (ID=32) (Jan 9, 2001 10:20:42 PM)
My daughter did finish the FastForward program which did seem to be of a benefit to her
Peggy (ID=23) (Jan 9, 2001 10:21:10 PM)
I want to have my son do that this comming summer.
Peggy (ID=23) (Jan 9, 2001 10:21:46 PM)
Expensive though...
drewk (ID=32) (Jan 9, 2001 10:23:02 PM)
My daughter absolutely hated sitting at the computer for almost 2 hours doing the same thing time and time again but it did help. Mu husband is affiliated with the Scottish Rite program which helped the expense
Peggy (ID=23) (Jan 9, 2001 10:25:34 PM)
Scottish Rite? What is that?
drewk (ID=32) (Jan 9, 2001 10:27:51 PM)
The Scottish Rite is a part of the Shriners. Are you familiar with the Shrines? This organization help children with lost limbs, prosthesis etc. The Scottishe Rite is a subsidiary organization that helps children with speech and language disabilities. My daughter started with this program wneh she was in Kidergarten
drewk (ID=32) (Jan 9, 2001 10:28:33 PM)
Sorry about the spelling in the last statement
Peggy (ID=23) (Jan 9, 2001 10:28:48 PM)
Is it available for any child with Language delays/??
drewk (ID=32) (Jan 9, 2001 10:30:45 PM)
I do not know the answer to that question. I don't know whether a child has to be sever enough to receive this help
Peggy (ID=23) (Jan 9, 2001 10:31:24 PM)
OK. It may be something I can look into if it helps with FFWD expense.
Peggy (ID=23) (Jan 9, 2001 10:33:12 PM)
Thanks.
drewk (ID=32) (Jan 9, 2001 10:33:13 PM)
Again I do not know. I do know that through large amounts of investigation that you will receive many benefits for your child both through outside societies and also within the school districts. Know your federal and state laws.
Peggy (ID=23) (Jan 9, 2001 10:34:18 PM)
Thanks again, Well, I have to go... I have some work to catch up on ... Have a good night ladies! See ya.
drewk (ID=32) (Jan 9, 2001 10:34:24 PM)
Oh and read between all the lines that the teachers and districts feed you. Do not look a gift horse in the mouth!!!!!!!!
Peggy (ID=35) (Jan 9, 2001 10:34:36 PM)
(This user has entered CAPD: From the Heart) (IP = 144.198.207.35 )
drewk (ID=32) (Jan 9, 2001 10:35:27 PM)
Laurasmom are you stil there
