Jade (ID=60) (Jan 16, 2001 8:10:31 PM)
(This user has entered CAPD: From the Heart) (IP = 216.79.219.222 )
debbie (ID=59) (Jan 16, 2001 8:11:07 PM)
hi Jade, How are you tonight?
Jade (ID=60) (Jan 16, 2001 8:11:27 PM)
fine thanks
Jade (ID=60) (Jan 16, 2001 8:11:37 PM)
how are u
pabu (ID=61) (Jan 16, 2001 8:11:47 PM)
(This user has entered CAPD: From the Heart) (IP = 64.39.135.140 )
debbie (ID=59) (Jan 16, 2001 8:12:04 PM)
Hi Pabu! I've not had a chance to email you yet...Imsorry
debbie (ID=59) (Jan 16, 2001 8:12:14 PM)
I"m doing fine Jade....kind of tired tonight
pabu (ID=61) (Jan 16, 2001 8:12:28 PM)
thats ok I know life can be crazy
Jade (ID=60) (Jan 16, 2001 8:12:31 PM)
debbie, does your child use an fm system
debbie (ID=59) (Jan 16, 2001 8:12:57 PM)
My daughter has a personal FM....she uses the FM Easy Listener
lunawingsl (ID=62) (Jan 16, 2001 8:13:18 PM)
(This user has entered CAPD: From the Heart) (IP = 172.129.216.7 )
Jade (ID=60) (Jan 16, 2001 8:13:24 PM)
let me explain something
debbie (ID=59) (Jan 16, 2001 8:13:43 PM)
ok......
debbie (ID=59) (Jan 16, 2001 8:13:46 PM)
hi lunawings
Jade (ID=60) (Jan 16, 2001 8:13:47 PM)
my daughter was using the personal fm system
lunawingsl (ID=62) (Jan 16, 2001 8:14:12 PM)
hello
pabu (ID=61) (Jan 16, 2001 8:14:18 PM)
hello lunawings
Jade (ID=60) (Jan 16, 2001 8:14:30 PM)
then about two weeks ago, the district audiologist switch it to a system, where she now
Jade (ID=60) (Jan 16, 2001 8:14:39 PM)
uses a speaker type box
debbie (ID=59) (Jan 16, 2001 8:14:50 PM)
what was the reason for the switch?
Jade (ID=60) (Jan 16, 2001 8:15:00 PM)
not too sure what type of system it is called.
Jade (ID=60) (Jan 16, 2001 8:15:22 PM)
i believe just a change in system
debbie (ID=59) (Jan 16, 2001 8:16:02 PM)
Do you like the new system?
debbie (ID=59) (Jan 16, 2001 8:16:51 PM)
How are you tonight Lunawings? Have you been in the chat before?
lunawingsl (ID=62) (Jan 16, 2001 8:17:00 PM)
hi, I don't want to interrupt, I've never been in a chat before, so I'll just "listen" for awhile if that's ok?
Jade (ID=60) (Jan 16, 2001 8:17:09 PM)
sorry had to leave for moment
debbie (ID=59) (Jan 16, 2001 8:17:27 PM)
that's ok...lunawings you are welcome to join in....we are happy you made it to the chat tonight.
Jade (ID=60) (Jan 16, 2001 8:17:28 PM)
my dtr seems to like it
Jade (ID=60) (Jan 16, 2001 8:17:41 PM)
she's not wearing the headset
Jade (ID=60) (Jan 16, 2001 8:17:59 PM)
just uses the small speaker box which is placed in front of her
debbie (ID=59) (Jan 16, 2001 8:18:42 PM)
do you like this system Jade?
Jade (ID=60) (Jan 16, 2001 8:18:42 PM)
i thought it might be good for her, to help get her off the system
Jade (ID=60) (Jan 16, 2001 8:19:12 PM)
at this time i haven't seen it and don't know much about it.
Jade (ID=60) (Jan 16, 2001 8:19:29 PM)
i do plan on going into the classroom to see it
Jade (ID=60) (Jan 16, 2001 8:20:24 PM)
so i can't answer if i like it
debbie (ID=59) (Jan 16, 2001 8:20:33 PM)
I"ve never used the classroom amplification system..so I'm not overly familiar with it.....
Diane (ID=63) (Jan 16, 2001 8:20:33 PM)
(This user has entered CAPD: From the Heart) (IP = 172.148.137.78 )
pabu (ID=61) (Jan 16, 2001 8:20:58 PM)
Hello Diane
debbie (ID=59) (Jan 16, 2001 8:21:03 PM)
hi Diane!
Diane (ID=63) (Jan 16, 2001 8:21:04 PM)
Yippee I madeit !!!!!!!!
debbie (ID=59) (Jan 16, 2001 8:21:23 PM)
is this the Diane I"ve been messaging with ?
Diane (ID=63) (Jan 16, 2001 8:21:49 PM)
I don't know how but it worked this time,...yes it is debbie :)
debbie (ID=59) (Jan 16, 2001 8:22:02 PM)
great!!!! happy you made it finally!
Diane (ID=63) (Jan 16, 2001 8:22:15 PM)
I think it's my computer :(
Diane (ID=63) (Jan 16, 2001 8:22:34 PM)
Thanks me too !
debbie (ID=59) (Jan 16, 2001 8:22:52 PM)
someone else is having trouble too...IM trying to help her get in the chat now
pabu (ID=64) (Jan 16, 2001 8:23:25 PM)
(This user has entered CAPD: From the Heart) (IP = 64.39.135.140 )
debbie (ID=59) (Jan 16, 2001 8:23:36 PM)
Did anyone else have trouble getting in the chat?
Jade (ID=60) (Jan 16, 2001 8:23:49 PM)
no, just a little slow going
Diane (ID=63) (Jan 16, 2001 8:23:53 PM)
worked first time for me this time
pabu (ID=64) (Jan 16, 2001 8:23:58 PM)
no but I just got kicked out
Diane (ID=63) (Jan 16, 2001 8:24:06 PM)
May I ask a ??
debbie (ID=59) (Jan 16, 2001 8:24:13 PM)
I saw that pabu..hmm...wonder why
debbie (ID=59) (Jan 16, 2001 8:24:17 PM)
sure Diane....
pabu (ID=64) (Jan 16, 2001 8:24:25 PM)
I dont know
Diane (ID=63) (Jan 16, 2001 8:24:47 PM)
Does anyone else's child have sensory integration problems?
Jade (ID=60) (Jan 16, 2001 8:25:00 PM)
no
debbie (ID=59) (Jan 16, 2001 8:25:03 PM)
mine doesn't
Jade (ID=60) (Jan 16, 2001 8:25:14 PM)
mine is decoding problems
pabu (ID=64) (Jan 16, 2001 8:25:35 PM)
Debbie let me ask you this, is there a differnce between a fm system and a easy listner?
debbie (ID=59) (Jan 16, 2001 8:25:56 PM)
and Easy Listener is a personal FM system
Diane (ID=63) (Jan 16, 2001 8:26:42 PM)
I'm just beginning to explore this possibility with my sister in law that is an OT
Diane (ID=65) (Jan 16, 2001 8:26:59 PM)
(This user has entered CAPD: From the Heart) (IP = 172.148.137.78 )
Jade (ID=60) (Jan 16, 2001 8:27:11 PM)
is the personal fm system the one where your child wears a headset?
pabu (ID=64) (Jan 16, 2001 8:27:16 PM)
thats what I thought when Caleb went to FSU he was using one they said to stop because there was no one to monitor it then they said to use a easy listner so I thought maybr they were differnt
Diane (ID=65) (Jan 16, 2001 8:27:23 PM)
whaaaaa I just got bumped missed your answers
debbie (ID=59) (Jan 16, 2001 8:27:24 PM)
yes it is Jade
Diane (ID=65) (Jan 16, 2001 8:27:40 PM)
sorry :(
Jade (ID=60) (Jan 16, 2001 8:27:54 PM)
ok, that's what my dtr was using. seemed to work well, grades had improved
Jade (ID=60) (Jan 16, 2001 8:28:24 PM)
now we will have to see if this speaker system works or not. just got it
pabu (ID=64) (Jan 16, 2001 8:28:40 PM)
Caleb's teacher hated having to use it but she will have to again
debbie (ID=59) (Jan 16, 2001 8:28:58 PM)
my daughter has used the FMEasy Listener for over a year...it's helped her...
Kathy (ID=66) (Jan 16, 2001 8:29:08 PM)
(This user has entered CAPD: From the Heart) (IP = 65.32.156.178 )
debbie (ID=59) (Jan 16, 2001 8:29:13 PM)
hi Kathy!
pabu (ID=64) (Jan 16, 2001 8:29:27 PM)
hello Kathy
Kathy (ID=66) (Jan 16, 2001 8:29:28 PM)
Hello, Debbie.
Kathy (ID=66) (Jan 16, 2001 8:29:41 PM)
Hello everyone.
debbie (ID=59) (Jan 16, 2001 8:29:42 PM)
Pabu,,why did the teacher hate using the FM?
Diane (ID=65) (Jan 16, 2001 8:29:51 PM)
Hello Kathy
Jade (ID=60) (Jan 16, 2001 8:29:54 PM)
my dtr is 12 in 6th grade, and maybe this new speaker system will help her to be more
Jade (ID=60) (Jan 16, 2001 8:30:05 PM)
independent
lunawingsl (ID=62) (Jan 16, 2001 8:30:19 PM)
I was wondering the ages of your children and at what point it seemed nec to us the fm?
pabu (ID=64) (Jan 16, 2001 8:30:27 PM)
she said she couldn't remember to charge it , she forgot to put it on just every excuse not to use it
debbie (ID=59) (Jan 16, 2001 8:30:43 PM)
One good side to the classroom system is it does not single out yoru child as much..although sarah has never had trouble with kids teasing her...
Diane (ID=65) (Jan 16, 2001 8:30:52 PM)
mine is 9 and does not use an FM
debbie (ID=59) (Jan 16, 2001 8:30:58 PM)
Lunawings..my daughter is 9
Diane (ID=65) (Jan 16, 2001 8:31:10 PM)
does everyone else's child use one ?
Jade (ID=60) (Jan 16, 2001 8:31:13 PM)
dan has had no one tease her either
pabu (ID=64) (Jan 16, 2001 8:31:25 PM)
Mine did and is going to again
Jade (ID=60) (Jan 16, 2001 8:31:28 PM)
if fact her classmates think its cool
debbie (ID=59) (Jan 16, 2001 8:31:53 PM)
i think the approach the teacher takes when the Fm is introduced really sets the tone for the class
Diane (ID=65) (Jan 16, 2001 8:31:55 PM)
so you all see signifacant diffrence with one
Jade (ID=60) (Jan 16, 2001 8:31:56 PM)
my dtr seems to think this new speaker systems can help her other classmates
lunawingsl (ID=62) (Jan 16, 2001 8:32:01 PM)
thanks, my daughter is 7 and holding on the classroom, but I was wonder if an fm might become necessary as she gets older.
Jade (ID=60) (Jan 16, 2001 8:32:27 PM)
she seems to think other children in her class, could possibly be capd, but that's just her
Jade (ID=60) (Jan 16, 2001 8:32:35 PM)
personal opinion.
pabu (ID=64) (Jan 16, 2001 8:32:38 PM)
Caleb is only 5 and spaces out in class as the teacher puts it
debbie (ID=59) (Jan 16, 2001 8:32:40 PM)
an FM is not for every child with an auditory processing disorder...it depends on what area she is having troubles in
pabu (ID=64) (Jan 16, 2001 8:33:09 PM)
which is why they want him to have the system
Diane (ID=65) (Jan 16, 2001 8:33:24 PM)
I am going to get an exact dx of my son's weakness's
Diane (ID=65) (Jan 16, 2001 8:33:40 PM)
we don't have that yet
debbie (ID=59) (Jan 16, 2001 8:33:57 PM)
Sarah was having trouble with background discrimination....she scored very low in this area......almost a year later she's scoring average to above average in the same area
Diane (ID=65) (Jan 16, 2001 8:35:24 PM)
Does insurance usually cover the audiologist ?
Jade (ID=60) (Jan 16, 2001 8:35:47 PM)
i have to go everyone, have a good night.
debbie (ID=59) (Jan 16, 2001 8:35:52 PM)
Insurance covered our testing to find out what was wrong..just nothing afterwards
debbie (ID=59) (Jan 16, 2001 8:36:01 PM)
goodnight Jade..I hope you will come back and join us again
pabu (ID=67) (Jan 16, 2001 8:36:08 PM)
(This user has entered CAPD: From the Heart) (IP = 64.39.135.140 )
Jade (ID=60) (Jan 16, 2001 8:36:12 PM)
i will, take care
pabu (ID=67) (Jan 16, 2001 8:36:19 PM)
kicked out again
debbie (ID=59) (Jan 16, 2001 8:36:45 PM)
that's kind of weird...Deb can
debbie (ID=59) (Jan 16, 2001 8:36:50 PM)
Deb can't get in
Diane (ID=65) (Jan 16, 2001 8:37:11 PM)
Debbie did your pediatrician recommend it ?
pabu (ID=67) (Jan 16, 2001 8:37:13 PM)
it didn't want to let me back in
debbie (ID=59) (Jan 16, 2001 8:37:16 PM)
I"d like to ask a question....did any of you see the auditory simulation yet?
Kathy (ID=66) (Jan 16, 2001 8:37:21 PM)
I took me a long time but I only had to tryonce
Diane (ID=65) (Jan 16, 2001 8:37:34 PM)
Yes I did very interesting
Kathy (ID=66) (Jan 16, 2001 8:37:36 PM)
no not yet
pabu (ID=67) (Jan 16, 2001 8:37:39 PM)
yes now I under stand better
debbie (ID=59) (Jan 16, 2001 8:37:50 PM)
no Diane......I talked to Dr J about the possible use and also dr Moncrieff..the audiologist that did the most recent testing...
pabu (ID=67) (Jan 16, 2001 8:37:53 PM)
Caleb's tutor is going there tonight
debbie (ID=59) (Jan 16, 2001 8:38:10 PM)
good pabu..did you fill out the feedback form?
pabu (ID=67) (Jan 16, 2001 8:38:19 PM)
no I should have
debbie (ID=59) (Jan 16, 2001 8:38:41 PM)
Diane we are going to be added harder simulations very soon..should make it very realistic
Diane (ID=65) (Jan 16, 2001 8:38:45 PM)
No did your pediatrician recommend the audiologist or did school
pabu (ID=67) (Jan 16, 2001 8:38:52 PM)
but it was time to pick up the kids
debbie (ID=59) (Jan 16, 2001 8:39:15 PM)
If you get a chance to fill out the feedback, please do....it's really helpful to Dr J and myself
pabu (ID=67) (Jan 16, 2001 8:39:28 PM)
ok in the am I will do so
Diane (ID=65) (Jan 16, 2001 8:39:33 PM)
It really helped me understand what it is like for my Jake
debbie (ID=59) (Jan 16, 2001 8:39:44 PM)
Diane, do you mean who recommended the audiologist testing?
Diane (ID=65) (Jan 16, 2001 8:39:55 PM)
yes
pabu (ID=67) (Jan 16, 2001 8:40:17 PM)
Caleb's school did so they paid for it.
Diane (ID=65) (Jan 16, 2001 8:40:44 PM)
He hasonly been seen by SLP and psychologist
debbie (ID=59) (Jan 16, 2001 8:40:59 PM)
The school thought something was wrong and they were going to do LD testing.....I went to the pediatrician and convinced them to give me an audiologist referral...I thought since Sarah was 2 that there was something wrong her hearing.........I had to push the issue.......
debbie (ID=59) (Jan 16, 2001 8:41:35 PM)
Sarah had seen aud before and everyone kept saying her hearing was ok.......knew something was not right
Diane (ID=65) (Jan 16, 2001 8:41:37 PM)
I've had to push everything with school but my Dr is very accomadating
Diane (ID=65) (Jan 16, 2001 8:42:26 PM)
I've also thought that something was wrong all the way back to first yr of preschool
Kathy (ID=66) (Jan 16, 2001 8:42:56 PM)
Diane, my son is 4 he does not have dx yet, not able to complete the testing. he had been to several audiologists for routine hearing screens(ear infections and tubes). I realized he need to see a specialized audiologist after doing research. That lead me to the same audiologist that Debbie used for Sarah
Diane (ID=65) (Jan 16, 2001 8:42:56 PM)
I had him privately tested by psychologist
Diane (ID=65) (Jan 16, 2001 8:43:40 PM)
school refused said he was just immature and wanted to retain him in 1st grade
debbie (ID=59) (Jan 16, 2001 8:43:58 PM)
I have done psychoeducational testing with Sarah as well....Sarah showed to have some other problems, but we believe they are related to the APD
debbie (ID=59) (Jan 16, 2001 8:44:22 PM)
Diane, please remind me..where are you from?
Diane (ID=65) (Jan 16, 2001 8:44:48 PM)
Well that is very interesting Debbie cause Jake has been dx'd as dyslexic but i think it is all intertwined
Diane (ID=65) (Jan 16, 2001 8:44:59 PM)
Indiana
debbie (ID=59) (Jan 16, 2001 8:45:49 PM)
We are hoping to have an article in the first newsletter of the NCAPD about current research being done in the areas of APD and dyslexia
debbie (ID=59) (Jan 16, 2001 8:46:17 PM)
The audiologist that Kathy and I saw is the one conducting the research
Diane (ID=65) (Jan 16, 2001 8:46:21 PM)
And my sister in law who is an OT gave be a book "The Out of sync Child" and that is where we got the vestibular intergration idea
Diane (ID=65) (Jan 16, 2001 8:46:48 PM)
she is going to do a work up on him this weekend
Diane (ID=65) (Jan 16, 2001 8:47:22 PM)
From what I have read they are probably very much connected
Diane (ID=65) (Jan 16, 2001 8:47:37 PM)
the APD and dyslexia
debbie (ID=59) (Jan 16, 2001 8:48:03 PM)
I hope the newsletter will be ready by the end of January
murtspa (ID=68) (Jan 16, 2001 8:48:07 PM)
(This user has entered CAPD: From the Heart) (IP = 172.164.135.124 )
Diane (ID=65) (Jan 16, 2001 8:48:11 PM)
I have so much to learm
debbie (ID=59) (Jan 16, 2001 8:48:21 PM)
We are hoping to feature a different research project each newsletter
debbie (ID=59) (Jan 16, 2001 8:48:30 PM)
hi Murtspa
murtspa (ID=68) (Jan 16, 2001 8:48:43 PM)
Hello
debbie (ID=59) (Jan 16, 2001 8:48:44 PM)
Diane, we all have alot to learn
Diane (ID=65) (Jan 16, 2001 8:48:48 PM)
That will be wonderful debbie I can't wait to read it
pabu (ID=67) (Jan 16, 2001 8:49:02 PM)
hello Murtspa
Diane (ID=65) (Jan 16, 2001 8:49:17 PM)
Hello Murtspa :)
murtspa (ID=68) (Jan 16, 2001 8:49:25 PM)
I am happy to finally join a chat.
debbie (ID=59) (Jan 16, 2001 8:49:41 PM)
where are you from murtspa? Im from Florida
Diane (ID=65) (Jan 16, 2001 8:49:45 PM)
me too :)
murtspa (ID=68) (Jan 16, 2001 8:49:53 PM)
I hope I am not interupting. I'm from Pa.
pabu (ID=67) (Jan 16, 2001 8:50:04 PM)
Georgia :)
debbie (ID=59) (Jan 16, 2001 8:50:05 PM)
not at all murtspa
Kathy (ID=66) (Jan 16, 2001 8:50:14 PM)
Florida
Diane (ID=65) (Jan 16, 2001 8:50:33 PM)
Indiana
murtspa (ID=68) (Jan 16, 2001 8:51:04 PM)
My son is 10 and recently diagnosed. Comprehension and sequencing is the big problem. My name is Alanna.
debbie (ID=59) (Jan 16, 2001 8:51:09 PM)
Kathy and pabu..let me ask since you are somewhat "close".....If we were to sponsor a conference designed for parents on APD here in the jacksonville area..would either of you be interested?
pabu (ID=67) (Jan 16, 2001 8:51:26 PM)
I would be!!!!!!!
Diane (ID=65) (Jan 16, 2001 8:51:32 PM)
I got a name from one of your links for a audiologist at our childrens hosp I am going to call and ck it out tomorrow
Kathy (ID=66) (Jan 16, 2001 8:51:45 PM)
Yes, of course dates and $ make a difference but I sure would try to get there
debbie (ID=59) (Jan 16, 2001 8:52:08 PM)
great Diane! I"m starting to put up the National Referral Program back on the web............
Diane (ID=65) (Jan 16, 2001 8:52:10 PM)
i wish i were closer I'd love to come
Kathy (ID=66) (Jan 16, 2001 8:52:43 PM)
Florida is great in the winter... even if Jax is almost GA.
debbie (ID=59) (Jan 16, 2001 8:52:44 PM)
IF YOU KNOW OF AN AUDIOLOGIST OR SLP OR OTHER PROFESSIONAL WHO WORKS WITH KIDS WHO HAVE CAPD...PLEASE PLEASE REFER THEM TO THE NCAPD WEBSITE TO JOIN THE REFERRAL PROGRAM.
Diane (ID=65) (Jan 16, 2001 8:53:11 PM)
I don't remember which one i got it from but it sure was helpful thanks :)
debbie (ID=59) (Jan 16, 2001 8:53:13 PM)
The conference is not a definite yet....have to know if there is enough interest first...then planning....
pabu (ID=67) (Jan 16, 2001 8:53:19 PM)
Debbie does CAPD and ADD go hand in hand?
Kathy (ID=66) (Jan 16, 2001 8:53:27 PM)
got it what can I do to help
Diane (ID=65) (Jan 16, 2001 8:53:47 PM)
I sure think they do
pabu (ID=67) (Jan 16, 2001 8:53:54 PM)
I will help too
debbie (ID=59) (Jan 16, 2001 8:53:55 PM)
CAPD and ADD can co-exist but do not neccessarily co-exist
Diane (ID=65) (Jan 16, 2001 8:54:10 PM)
I'm wondering if my son really is ADD
pabu (ID=67) (Jan 16, 2001 8:54:29 PM)
They want to test Caleb for ADD so I was curious.
Diane (ID=65) (Jan 16, 2001 8:54:40 PM)
and it's just CAPD and the LD and frustration from the 2
debbie (ID=59) (Jan 16, 2001 8:54:43 PM)
APD is often misdiagnosed as ADD
Diane (ID=65) (Jan 16, 2001 8:55:09 PM)
Thats what I think has happened with my son
pabu (ID=67) (Jan 16, 2001 8:55:13 PM)
I have been giving him mountain dew each morn before school to see if the caffaine helps him
Diane (ID=65) (Jan 16, 2001 8:55:43 PM)
That's why I want the Audiologist and Ped to find out
debbie (ID=59) (Jan 16, 2001 8:55:46 PM)
Kathy and Pabu I will let you know what you can do to help as soon as we make a decision if and when we are going to do the conference.....
Diane (ID=65) (Jan 16, 2001 8:56:08 PM)
My son does take concerta and that has helped hin alot tho
pabu (ID=67) (Jan 16, 2001 8:56:14 PM)
ok just let me know.
debbie (ID=59) (Jan 16, 2001 8:56:19 PM)
Diane, they should be able to do tests to tell the difference for you....
Kathy (ID=66) (Jan 16, 2001 8:56:23 PM)
same here
murtspa (ID=68) (Jan 16, 2001 8:56:35 PM)
Please explain the caffeine strategy and concerta?
pabu (ID=67) (Jan 16, 2001 8:56:36 PM)
what is concerta?
Kathy (ID=66) (Jan 16, 2001 8:56:50 PM)
what effect do you want all that caffene to have?
pabu (ID=67) (Jan 16, 2001 8:57:17 PM)
caffeine is to give him a boost he is sluggish first thing in the morn
Diane (ID=69) (Jan 16, 2001 8:57:35 PM)
(This user has entered CAPD: From the Heart) (IP = 172.148.137.78 )
Diane (ID=69) (Jan 16, 2001 8:57:50 PM)
Geez I got bumped again
pabu (ID=67) (Jan 16, 2001 8:57:53 PM)
This si just a trial run for a week if there is no differnce then it stops
debbie (ID=59) (Jan 16, 2001 8:58:06 PM)
Diane..but you made it back! =)
Diane (ID=69) (Jan 16, 2001 8:58:14 PM)
yep !
Kathy (ID=66) (Jan 16, 2001 8:58:21 PM)
fair I'd try it for a week if I thought it might help
Diane (ID=69) (Jan 16, 2001 8:58:39 PM)
has anyone else's child been dx'd with ADD
pabu (ID=67) (Jan 16, 2001 8:58:46 PM)
that was my thinking too I mean what could it hurt?
Kathy (ID=66) (Jan 16, 2001 8:58:52 PM)
what's concerta
murtspa (ID=68) (Jan 16, 2001 8:58:59 PM)
Not mine.
debbie (ID=59) (Jan 16, 2001 8:58:59 PM)
Sarah was tested, but they psychologist said no....
Diane (ID=69) (Jan 16, 2001 8:59:24 PM)
It's a newly compounded formula of ritalin
pabu (ID=67) (Jan 16, 2001 8:59:31 PM)
Caleb will be tested in the spring
murtspa (ID=68) (Jan 16, 2001 8:59:34 PM)
Oh.
Kathy (ID=66) (Jan 16, 2001 8:59:35 PM)
thanks
Diane (ID=69) (Jan 16, 2001 8:59:52 PM)
The psychologist is the one that made the intial dx
debbie (ID=59) (Jan 16, 2001 9:00:05 PM)
It is my understandign that if a child is truly APD that medication will not make a difference
Diane (ID=69) (Jan 16, 2001 9:00:10 PM)
of ADD
debbie (ID=59) (Jan 16, 2001 9:00:38 PM)
I may be wrong though....
pabu (ID=67) (Jan 16, 2001 9:00:56 PM)
that is what I was told too which is why the mountain dew as a way to help rule out ADD
Kathy (ID=66) (Jan 16, 2001 9:01:05 PM)
makes sense, but if a chld truely has both it might help some?
pabu (ID=67) (Jan 16, 2001 9:01:29 PM)
spring is a long way off so we are trying to rule this out before the test
Diane (ID=69) (Jan 16, 2001 9:01:35 PM)
I don't know he may be truly ADD too because the Concerta has helped him attend but it all has been since he has gotten resource help and the Earobics
debbie (ID=59) (Jan 16, 2001 9:01:40 PM)
If a child has ADD then yes it may help with the ADD which may help with the APD
Diane (ID=69) (Jan 16, 2001 9:01:55 PM)
exactly
debbie (ID=59) (Jan 16, 2001 9:02:29 PM)
Diane, the whole idea is by helping one of the other problems your child has, you are getting to the real route of the trouble....the APD
Diane (ID=69) (Jan 16, 2001 9:02:51 PM)
I just want him properly dx'd if he does not need to take meds I don't want him too
pabu (ID=67) (Jan 16, 2001 9:03:13 PM)
do you notice a differnce with the meds?
Diane (ID=69) (Jan 16, 2001 9:03:16 PM)
but he has told me that it helps him concentrate
Diane (ID=69) (Jan 16, 2001 9:03:23 PM)
yes
debbie (ID=59) (Jan 16, 2001 9:03:42 PM)
if your son can see the difference, then he may truly have both
pabu (ID=67) (Jan 16, 2001 9:03:47 PM)
then they are helping.
Diane (ID=69) (Jan 16, 2001 9:04:24 PM)
he is on lowest dose possible
Diane (ID=69) (Jan 16, 2001 9:04:50 PM)
I just don't like my 9yo on medication
pabu (ID=67) (Jan 16, 2001 9:04:52 PM)
The last thing I want is Caleb on meds but if it helps him to get a good education then they will be worth it.
Diane (ID=69) (Jan 16, 2001 9:05:11 PM)
My thoughts exactly Pabu
Diane (ID=69) (Jan 16, 2001 9:05:48 PM)
I just think that he needs to be more thoroughly tested on the APD
debbie (ID=59) (Jan 16, 2001 9:06:28 PM)
Diane you should have seen me when the pediatrician wanted to put my baby on steroids...i hated the thought!!! but it was what was best for the baby at the time so i had to do it to help her................
Diane (ID=69) (Jan 16, 2001 9:07:01 PM)
Was it for ear infections Debbie ?
debbie (ID=59) (Jan 16, 2001 9:07:29 PM)
it was my other daughter ..not related to apd
Diane (ID=69) (Jan 16, 2001 9:07:39 PM)
Oh I see
debbie (ID=59) (Jan 16, 2001 9:08:06 PM)
but the idea is that we have to do what we have to do at times for our kids when it comes to medications and helping them........
Diane (ID=69) (Jan 16, 2001 9:08:17 PM)
Did anyone else's child have ear infection probs as babies ?
murtspa (ID=68) (Jan 16, 2001 9:08:31 PM)
No.
debbie (ID=59) (Jan 16, 2001 9:08:42 PM)
Sarah was hospitalized at age of 6 months for ear infections that were very severe
Kathy (ID=66) (Jan 16, 2001 9:08:49 PM)
almost constant for 6 months to thirty months even with tubes in place...
pabu (ID=67) (Jan 16, 2001 9:08:51 PM)
Caled had a lot less than my oldest one who does not have CAPD.
Diane (ID=69) (Jan 16, 2001 9:09:20 PM)
same here constant from 3mos to 3yrs
Kathy (ID=66) (Jan 16, 2001 9:09:39 PM)
has had two since woke up in NOv with blood running down the side of his face out of his ear
Diane (ID=69) (Jan 16, 2001 9:10:09 PM)
Oh my Kathy, how frightning
debbie (ID=59) (Jan 16, 2001 9:10:17 PM)
Kathy that is scary!
pabu (ID=67) (Jan 16, 2001 9:10:41 PM)
Debbie does this have any thing to do with CAPD or are you still doing research in to this?
Kathy (ID=66) (Jan 16, 2001 9:10:54 PM)
I know what it was couldnt get in to the ent walked into the peds office saw the doctor and took him to school
Kathy (ID=66) (Jan 16, 2001 9:11:22 PM)
he had no other symptoms including pain
debbie (ID=59) (Jan 16, 2001 9:12:14 PM)
Pabu, I have to believe that Sarah's CAPD is related to the number of ear infections she had...
pabu (ID=67) (Jan 16, 2001 9:12:19 PM)
I would of freaked kathy!!
pabu (ID=67) (Jan 16, 2001 9:12:37 PM)
Could a vacum cause CAPD?
Kathy (ID=66) (Jan 16, 2001 9:12:44 PM)
I didn't don't know why have been known to freak for lesser things...
debbie (ID=59) (Jan 16, 2001 9:13:16 PM)
pabu..i dont know....
Diane (ID=69) (Jan 16, 2001 9:13:18 PM)
as a vacumn used in birth pabu ?
pabu (ID=67) (Jan 16, 2001 9:13:29 PM)
yes Diane
Kathy (ID=66) (Jan 16, 2001 9:13:33 PM)
When I made the appointment to have W tested for CAPD, the audiologist asked how many ear infections he had had.
pabu (ID=67) (Jan 16, 2001 9:13:54 PM)
They asked me that too.
Diane (ID=69) (Jan 16, 2001 9:14:19 PM)
I never thought of that Jake was delivered that way !
Kathy (ID=66) (Jan 16, 2001 9:14:20 PM)
There is no research "proving" the correlation, but the audiologist has a suspiciuon
Kathy (ID=66) (Jan 16, 2001 9:14:47 PM)
W was a c section... did any one have lots of ultrasounds when prgnant.
pabu (ID=67) (Jan 16, 2001 9:15:02 PM)
Caleb was too and I have had some people say that maybe that was what caused his CAPD
Diane (ID=69) (Jan 16, 2001 9:15:15 PM)
Lots here at least 10-12
pabu (ID=67) (Jan 16, 2001 9:15:35 PM)
I had a C section and a ton of ultra sounds with him
Kathy (ID=66) (Jan 16, 2001 9:15:49 PM)
I had heard that fetal ultrasounds might cause "ear" problems.
debbie (ID=59) (Jan 16, 2001 9:16:15 PM)
i never had an ultrasound during my entire pregnancy
Diane (ID=69) (Jan 16, 2001 9:16:16 PM)
interesting
pabu (ID=67) (Jan 16, 2001 9:16:43 PM)
will we ever know what causes CAPD?
Diane (ID=69) (Jan 16, 2001 9:17:13 PM)
tho it does make sense since ultrasounds use sound waves
murtspa (ID=68) (Jan 16, 2001 9:17:13 PM)
Back to the ear infections and decreased hearing...I guess since the brain "learns" from what it hears, sees etc (or doesn't hear), one would think it could be related..... I only had one ultrasound.
debbie (ID=59) (Jan 16, 2001 9:17:56 PM)
company at the door....just a minute....
Kathy (ID=66) (Jan 16, 2001 9:18:15 PM)
I probably had 20 or so...
pabu (ID=67) (Jan 16, 2001 9:18:19 PM)
that is true murtspa
pabu (ID=67) (Jan 16, 2001 9:18:54 PM)
me too Kathy Caleb was avery trying child before he ever got here
murtspa (ID=68) (Jan 16, 2001 9:18:56 PM)
Please call me Alanna I'll have to sign in differently next time.
pabu (ID=67) (Jan 16, 2001 9:19:12 PM)
ok Alanna
Diane (ID=69) (Jan 16, 2001 9:19:19 PM)
so was jake
pabu (ID=67) (Jan 16, 2001 9:19:41 PM)
Will it ever stop with them?
Kathy (ID=66) (Jan 16, 2001 9:19:55 PM)
I had trouble getting prgnant, not problems with the pregnancy, just the white glove treatment.
pabu (ID=67) (Jan 16, 2001 9:20:21 PM)
I have always said God knew what he was doing when he gave me him last!!
Kathy (ID=66) (Jan 16, 2001 9:20:25 PM)
My son is mostly very well behaved...
Diane (ID=69) (Jan 16, 2001 9:20:29 PM)
Kathy so did I took 10 years I was 40 when I had him
pabu (ID=67) (Jan 16, 2001 9:20:39 PM)
took me 13
Kathy (ID=66) (Jan 16, 2001 9:21:00 PM)
I didnt try til 36 had him at 38
debbie (ID=59) (Jan 16, 2001 9:21:11 PM)
In Sarah's case..she has had a delay in the maturation of her left ear.....I have to believe this delay could be attributed to the number of ear infections she had..if the ear was infected it would not develop normally
pabu (ID=67) (Jan 16, 2001 9:21:19 PM)
Caleb is very head strong
Diane (ID=69) (Jan 16, 2001 9:21:57 PM)
did you ahev any infertility treatments ?
pabu (ID=67) (Jan 16, 2001 9:22:08 PM)
not me
Kathy (ID=66) (Jan 16, 2001 9:22:13 PM)
yup clomid and then humegon
Diane (ID=69) (Jan 16, 2001 9:22:24 PM)
geez I'm getting tired I can't even spell now
Diane (ID=69) (Jan 16, 2001 9:22:41 PM)
me too kathy same thing
debbie (ID=59) (Jan 16, 2001 9:23:16 PM)
I"ve got unexpected company and am going to have to go.....I do apologize
Kathy (ID=66) (Jan 16, 2001 9:23:28 PM)
Good night debbie
Diane (ID=69) (Jan 16, 2001 9:23:34 PM)
we had given up and it just happened 10 mos after stopping the treatments
debbie (ID=59) (Jan 16, 2001 9:23:47 PM)
good night....take care and I'll tlalk to you all next week..........
pabu (ID=67) (Jan 16, 2001 9:23:53 PM)
Debbie try to e-mail the stuff later and I will get on it in the AM
Diane (ID=69) (Jan 16, 2001 9:23:54 PM)
Good night debbie thanks for all your help
murtspa (ID=68) (Jan 16, 2001 9:24:06 PM)
Thanks guys! Godnight.
pabu (ID=67) (Jan 16, 2001 9:24:07 PM)
have a good night
debbie (ID=59) (Jan 16, 2001 9:24:13 PM)
I go to work at 4:45 am..I'll have it to you early!!
debbie (ID=59) (Jan 16, 2001 9:24:16 PM)
good night
pabu (ID=67) (Jan 16, 2001 9:24:21 PM)
good night
pabu (ID=67) (Jan 16, 2001 9:25:14 PM)
Good night every one I get up at 5:00 so I better hit the bed!!
Diane (ID=69) (Jan 16, 2001 9:25:36 PM)
good night pabu nice chatting with you
Kathy (ID=66) (Jan 16, 2001 9:25:44 PM)
good night...I'm going to bed too. It was nice talking to you, and see you next week
pabu (ID=67) (Jan 16, 2001 9:25:55 PM)
same to you guys
Diane (ID=69) (Jan 16, 2001 9:25:59 PM)
Bye everyone Thanks
Jill (ID=70) (Jan 16, 2001 9:27:24 PM)
(This user has entered CAPD: From the Heart) (IP = 172.172.172.53 )
E (ID=71) (Jan 16, 2001 9:28:50 PM)
(This user has entered CAPD: From the Heart) (IP = 172.134.252.29 )
Jill (ID=72) (Jan 16, 2001 9:29:25 PM)
(This user has entered CAPD: From the Heart) (IP = 172.172.172.53 )
drewk (ID=73) (Jan 16, 2001 9:40:19 PM)
(This user has entered CAPD: From the Heart) (IP = 172.145.145.225 )
Beth (ID=74) (Jan 16, 2001 10:53:09 PM)
(This user has entered CAPD: From the Heart) (IP = 64.111.112.65 )
cindy (ID=75) (Jan 16, 2001 10:59:11 PM)
(This user has entered CAPD: From the Heart) (IP = 24.95.119.10 )
