debbie (ID=99) (Feb 27, 2001 8:39:19 AM)
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debbie (ID=99) (Feb 27, 2001 8:39:27 AM)
hey Deb how are you this am?
Deb (ID=98) (Feb 27, 2001 8:39:35 AM)
Mornin' Debbie!
Deb (ID=98) (Feb 27, 2001 8:40:06 AM)
Am a little sick right now, but ok. How did yesterday go?!?!?!
debbie (ID=99) (Feb 27, 2001 8:40:12 AM)
I"m on my way to school meeting so I wont be in the chat this am...will you please remind dr j for me?
debbie (ID=99) (Feb 27, 2001 8:40:31 AM)
yesterday was interesting....we will NOT be using the best western i was thinking of....happy i made the trip
Deb (ID=98) (Feb 27, 2001 8:40:35 AM)
Yep, no problem. GOOD LUCK!!! Let me know how it goes!!
debbie (ID=99) (Feb 27, 2001 8:40:45 AM)
getting the flu?
Deb (ID=98) (Feb 27, 2001 8:40:53 AM)
Why, was it really yukky?
debbie (ID=99) (Feb 27, 2001 8:41:02 AM)
pretty much so..yepper...
Deb (ID=98) (Feb 27, 2001 8:41:04 AM)
Yeah, I think so. =(
debbie (ID=99) (Feb 27, 2001 8:41:27 AM)
the conference room would not work at all..i was ready to leave the minute we walked in
Deb (ID=98) (Feb 27, 2001 8:41:31 AM)
Well, good thing you went then. Did you check out the other place?
dr.j (ID=100) (Feb 27, 2001 8:41:33 AM)
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Deb (ID=98) (Feb 27, 2001 8:41:46 AM)
Goodmorning Dr. J!!
debbie (ID=99) (Feb 27, 2001 8:41:49 AM)
yes i did.....found two possibilities but have to run some numbers
debbie (ID=99) (Feb 27, 2001 8:41:52 AM)
good morning dr j!
dr.j (ID=100) (Feb 27, 2001 8:41:58 AM)
Good morning Deb and debbie. How are you both this am?
Deb (ID=98) (Feb 27, 2001 8:42:01 AM)
Keep me posted!
debbie (ID=99) (Feb 27, 2001 8:42:12 AM)
I"m doing great..on my way to school meeting...just popped in quick to say hi
debbie (ID=99) (Feb 27, 2001 8:42:15 AM)
will do deb
Deb (ID=98) (Feb 27, 2001 8:42:27 AM)
Geting the flu, I think....but, pretty good! And you?
dr.j (ID=100) (Feb 27, 2001 8:43:06 AM)
debbie, you have to be careful with what you say ("Run some numbers) Where I came from before we were in D.C. area, "running numbers" had a very different meaning than what you mean ;-)
Deb (ID=98) (Feb 27, 2001 8:43:19 AM)
*LOL*
debbie (ID=99) (Feb 27, 2001 8:43:31 AM)
*LOL*
dr.j (ID=100) (Feb 27, 2001 8:44:28 AM)
Sorry about you getting the flu. There's been a virus running around in our area since January and it's hit pretty hard. I was down for 2 weeks with the flu. SO, Deb I hope it's not something that will set you back a while.
debbie (ID=99) (Feb 27, 2001 8:44:34 AM)
I did something really interesting for the meeting today..i made up a bar graph of the three different times Sarah has taken the WJ-R at school and color coded each year......I"m hoping this will show them pretty clearly where she needs help.
dr.j (ID=100) (Feb 27, 2001 8:44:40 AM)
debbie, this is a meeting on Sarah, right (at school)?
debbie (ID=99) (Feb 27, 2001 8:45:09 AM)
yepper....
Deb (ID=98) (Feb 27, 2001 8:45:28 AM)
Good thinking Debbie....maybe this will wake them up a bit....if they can see something VISUAL!!
dr.j (ID=100) (Feb 27, 2001 8:45:30 AM)
debbie, that sounds great. I hope you have good info and are ready to go in and get what Sarah needs. And remember, if there is anything I can do, let me know.
debbie (ID=99) (Feb 27, 2001 8:45:42 AM)
dont know if either of you are religious people..but if you are say a little prayer..im so wound up right now it's not funny and i'm not in the mood for crap and sympathy from them today
Deb (ID=98) (Feb 27, 2001 8:45:51 AM)
Ahhh, I'm a Mom Dr. J....can't let it get me down! Have tooooo much to do! *L*
dr.j (ID=100) (Feb 27, 2001 8:45:52 AM)
Deb, you're right. The problem is whether they are willing to look and see!
Deb (ID=98) (Feb 27, 2001 8:46:56 AM)
You're right Dr. J....You better believe I'll say a prayer, or two or three!
dr.j (ID=100) (Feb 27, 2001 8:48:07 AM)
Deb, I have to say that one of the most wonderful things about kids is how well they really understand deep inside. When I got hit bad, my wife, Anne, had school and work, and I took care of our little one (Joshua). All day that Sat while mommy was in class, Joshua took really good care of sick, shivering, very low temperature (almost hypothermic) daddy playing games with me and putting on different videos and helping make his own lunch and snacks all day.
dr.j (ID=100) (Feb 27, 2001 8:48:30 AM)
What time is your meeting debbie?
debbie (ID=99) (Feb 27, 2001 8:48:45 AM)
9 o'clock...im on my way out right now
Deb (ID=98) (Feb 27, 2001 8:48:50 AM)
Some good news....we FINALLY got Travis' FM in yesterday.
debbie (ID=99) (Feb 27, 2001 8:49:08 AM)
i've printed out the simulation to take to them too......give them some good reading.....
dr.j (ID=100) (Feb 27, 2001 8:49:16 AM)
debbie, good luck with the school. And, again, if you need anything, support whatever, I'm happy to help out.
debbie (ID=99) (Feb 27, 2001 8:49:19 AM)
great deb!! talk to you both later....
dr.j (ID=100) (Feb 27, 2001 8:49:33 AM)
talk you to this pm, debbie.
debbie (ID=99) (Feb 27, 2001 8:49:34 AM)
thanks dr j......i really appreciate that very much..i'll talk to you this afternoon
Deb (ID=98) (Feb 27, 2001 8:49:35 AM)
Wow...that is so wonderful Dr. J....kids really are quite understanding when a parent is sick...the boys gave me "the elbow kiss" as they left for school this AM!
Deb (ID=98) (Feb 27, 2001 8:49:43 AM)
GOOD LUCK Debbie....TTYL
dr.j (ID=100) (Feb 27, 2001 8:50:35 AM)
debbie, too often I think you're 100% correct that we are "NUTS" and our kids know it ;-)
dr.j (ID=100) (Feb 27, 2001 8:50:58 AM)
Deb, TTYL is a new one for me. I've typically seen TTFN
dr.j (ID=100) (Feb 27, 2001 8:51:32 AM)
Anyway, Deb, you got the FM for Travis. Has the school personnel been trained in using it yet? Has Travis tried it out yet?
Deb (ID=98) (Feb 27, 2001 8:52:35 AM)
Question for you Dr. J....I read your post on the listserv last week about SI....Travis had an SI eval last Friday, and I'm waiting for the results. Once he start with his therapy, I'm hoping that we can 'conquer' some of his demons. He is also getting OT and speech at school. He and his teacher used it yesterday...she showed it to me first thing in the AM...I am not sure if she was instructed on how to use it.
Deb (ID=98) (Feb 27, 2001 8:53:29 AM)
But, as I was in the classroom, he was sitting at his desk, NOT doing any of his morning work, and she, almost in a whisper, said, "Travis, get to work." Boy, he put that pencil to the paper ASAP!!
dr.j (ID=100) (Feb 27, 2001 8:55:35 AM)
Deb, as for the SI, IF there really are SI issues, it is often very good to get a good OT working with the child along with the other services. In our personal life, Anne and I have been so happy when we found a great OT who did the SI dx on Joshua. We have found and used a lot of the stroking/brushing techniques and rocking and even (sometimes) spinning stuff and found some really good responses from these. We would both say that it has been a lot of the OT stuff that has really helped with behavior and some other related behavioral issues.
dr.j (ID=100) (Feb 27, 2001 8:57:17 AM)
SUre, Deb, it was like a those cartoons in which the angel or devil speak into the ear of the cartoon character and they jump up and hop to it right away. Travis (hopefully) will come to realize that there is someone watching over him so he has to focus on his work and soon that will be the little "inner voice" which we want all children to have.
Deb (ID=98) (Feb 27, 2001 9:00:00 AM)
I am pretty sure, there are definate SI issues. I had listed an entire page of stuff for her...I also gave her a copy of his lastest report from his school OT, his lang. eval we just got, and as much other info I thought would be beneficial for her. His OT at school has done some of the stroking/brushing with him. He isn't real fond of it, but, he did do a little to himself last week. His school OT, and his new one, I think will work kind of hand-in-hand with each other. His newest one is VERY into helping EACh child, where they need it. I felt totally at ease with her, knowing she will do everything she can to help him where he needs it.
Deb (ID=98) (Feb 27, 2001 9:01:17 AM)
He liked her too. First thing he said when we left was "Mom, I think I want to come back here." YEAH!!
dr.j (ID=100) (Feb 27, 2001 9:04:08 AM)
That sounds great, Deb. Important that the child is comfortable and feels positive about the specialists with whom he is working. You're fortunate that the school and private OT are willing to work together. Our experience was that the school OT was awful. It was really a waste of Joshua's time there for the 1/2 hour she spent with him twice a week. Except for the "arts and crafts" stuff that he enjoyed doing, there was really no work on the specific issues we had discussed and addressed in the IEP. So, you have good professionals and poor ones in all areas.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:08:06 AM)
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Deb (ID=98) (Feb 27, 2001 9:08:13 AM)
We really are luck, in that we have everyone working together. His school OT comes all the way from Orlando (about an hour + for her)...she sees him once a week for an hour after school. She has been doing some SI things with him, and she too, is very good. His SLP, weeeeelllllll, we need to work a bit there. His teacher and I both feel that he needs to have more speech, and now, he will need language as well. His teacher is WONDERFUL!!! She has gone from thinking, in the first 2 weeks of school, that he may need to be back in 1st grade, to the complete opposite! She is wonderful with him, and he adores her.
Deb (ID=98) (Feb 27, 2001 9:08:30 AM)
Goodmorning Carol, how are you this morning?
dr.j (ID=100) (Feb 27, 2001 9:08:33 AM)
Good morning Carol, how are you this am?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:08:42 AM)
OK, Deb and Dr. J, and you?
Deb (ID=98) (Feb 27, 2001 9:09:05 AM)
OK thanks...a touch of that nasty flu though. =(
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:09:24 AM)
I have the meeting this morning with the counselor although she has been great over the vacation week.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:09:38 AM)
I still need to talk about her getting depressed.
Deb (ID=98) (Feb 27, 2001 9:09:55 AM)
Today must be meeting day...Debbie is at one right now.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:10:08 AM)
I found out over the weekend that her teacher is especially tough and all the mothers are having fits about their kids.
dr.j (ID=100) (Feb 27, 2001 9:10:09 AM)
Sounds that way Deb.
dr.j (ID=100) (Feb 27, 2001 9:10:49 AM)
Are you wondering (as I am right now) that some of the "depression" is related to the teacher being too tough on Krystie?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:11:12 AM)
That's what I am thinking. The teacher also thinks she is doing much better with auditory issues
Deb (ID=98) (Feb 27, 2001 9:11:17 AM)
Carol...that's exactly what I was going to say as well.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:11:27 AM)
What can I do about it?
dr.j (ID=100) (Feb 27, 2001 9:11:52 AM)
When the teacher says she thinks Krystie is doing much better with auditory issues, what does she mean by that?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:12:44 AM)
She says she doesn't have to repeat direction to Krystie, which worries me. Krystie is great at making you think she understands. She also said Krystie is more willing to help in the class passing things out, etc.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:13:08 AM)
She also said she isn't as bad daydreaming and doesn't need to re-focus her as much.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:13:50 AM)
The teacher completed the Fischer eval. for me for the next eval. in July. Most of the things on it were unchecked. I questioned her and then she told me Krystie was doing great.
dr.j (ID=100) (Feb 27, 2001 9:14:17 AM)
OK, so the teacher feels she doesn't have to repeat directions.....OK. But, when she says she doesn't have to repeat directions, is that because Krystie is following through doing the "directions" correctly after hearing them for the first time?
dr.j (ID=100) (Feb 27, 2001 9:14:32 AM)
Great that the teacher feels that Krystie is better focused on her work.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:14:34 AM)
I'm hoping to meet all of you this summer. Planning a family trip and figure Orlando is a good place.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:14:59 AM)
I'm not sure how good Krystie is doing but her marks on the past report card went down which concerns me.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:15:23 AM)
This is the reason for the counselor but she also is depressed at times and very frustrated
dr.j (ID=100) (Feb 27, 2001 9:15:29 AM)
OK. Well if the teacher says that Krystie is doing "great," what do you see at home related to Krystie's school work? IS Krystie doing great on her school work?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:15:59 AM)
Better, not great. Handwriting is still a problem when rushed and the teacher's answer to that is she has to concentrate on it more.
dr.j (ID=100) (Feb 27, 2001 9:16:15 AM)
Carol, yes, and our family is planning the same. We're planning the workshop and then Disney World, Epcot, MGM, Seaworld whatever attractions we can take in.
Deb (ID=98) (Feb 27, 2001 9:16:29 AM)
Great Carol...I think it will be a wonderful confrence, and it will be so nice to actually meet the people we 'talk' to here in chat.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:16:46 AM)
She hates math and won't study it and I'm willing to let her get the D if she won't work at it but she is doing well in other subjects
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:16:55 AM)
I can't wait to meet you.
Deb (ID=98) (Feb 27, 2001 9:17:10 AM)
Me too!!!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:17:19 AM)
She's excited too thinking she might see some other kids "like her"
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:17:45 AM)
I told her there won't be kids at the conference, but maybe at SeaWorld, who knows.
dr.j (ID=100) (Feb 27, 2001 9:18:03 AM)
Carol, that would concern me as well. On the one hand, the teacher says Krystie is doing great and then that same teacher who marks the report card gave her grades that were lower than before (if I follow what you are saying correctly)? I'd really want the teacher to answer the following question for me "If as you say Krystie is doing so great in class, why are her grades going down?"
Deb (ID=98) (Feb 27, 2001 9:18:13 AM)
I hope you are mentally prepared Dr. J for a bombardment of Moms, and Dads, wanting to talk to you, ask you question!! That in itself, couldbe an entire weekend! *L*
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:18:51 AM)
Exactly, Dr. J. I am especially concerned in reading. She is an excellent reader but the mark went from an A to a B.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:19:15 AM)
Her work habits went from a D to a B. Organizational skills, preparedness, etc.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:19:28 AM)
I can't understand most of the marks
dr.j (ID=100) (Feb 27, 2001 9:19:31 AM)
Well, I'm not going to the conference, just using that as the excuse to go to Orlando, SeaWorld, meet with my hero (MIckey), and have fun. ;-) =)
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:19:40 AM)
We'll find you then
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:20:06 AM)
We were just there in December but coming back just to meet you!!!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:20:42 AM)
Kidding, I am very interested in this and now have an excuse for a vacation. We won't be doing Disney again, though.
dr.j (ID=100) (Feb 27, 2001 9:20:56 AM)
You'll have to look for the parents dressed in Mickey/Minnie ears with the little boy looking amazed at all of the wonders of Disney world and such ;-) =)
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:21:16 AM)
Krystie had her mouth open in awe the entire week
Deb (ID=98) (Feb 27, 2001 9:21:16 AM)
Have you ever been to Disney here Dr. J? If not, let me know...my parents are the CONSUMATE Disney gurus, and can tell you how NOT to waste time, and how to navigate around, and get the most out of your day(s) there.
Deb (ID=98) (Feb 27, 2001 9:22:02 AM)
They are at Disney on average of at least once a month!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:22:12 AM)
I couldn't afford that.
dr.j (ID=100) (Feb 27, 2001 9:22:33 AM)
Deb, it's been a long time. I'd say that the last time was, maybe, 6-8 years ago.
Deb (ID=98) (Feb 27, 2001 9:22:41 AM)
They have Fla. resident passes...much cheaper! I can't wait until we can afford them!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:22:55 AM)
What hotel are we using, do you know?
Kathy (ID=102) (Feb 27, 2001 9:24:08 AM)
(This user has entered CAPD: From the Heart) (IP = 65.32.156.110)
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:24:14 AM)
Hi Kathy
dr.j (ID=100) (Feb 27, 2001 9:24:21 AM)
Carol, right now debbie (wood) is looking into two hotels with the one providing the best deal being in Kisimee (I think that's how you spell it). I think it's a Best Western (but don't hold me to that) in Kisimee and it has free shuttle bus to the Orlando attractions.
Deb (ID=98) (Feb 27, 2001 9:24:25 AM)
Ahhhh, before you come down then, make up a list of what you and your family want to do, put them in priority, let me know how many day(s) you'll be there, and my parents can figure out for you how to best utilize your time....they truely are amazing! They can sqeeze SO MUCH into one day!
dr.j (ID=100) (Feb 27, 2001 9:24:27 AM)
Good morning Kathy
Kathy (ID=102) (Feb 27, 2001 9:24:28 AM)
Good morning all.
Deb (ID=98) (Feb 27, 2001 9:24:34 AM)
Goodmorning Kathy!!
Deb (ID=98) (Feb 27, 2001 9:25:14 AM)
She put the kibaosh on the Best Western in Kissimmee, NOT a nice place she said. =(
Kathy (ID=102) (Feb 27, 2001 9:25:39 AM)
She is still looking. She found a retreat....
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:25:59 AM)
We'll only be doing the Orlando attractions. I think there are 5 parks. We will probably come in on Thurs. and leave Sat. night or Sunday. The kids go back to school on Tues.
Deb (ID=98) (Feb 27, 2001 9:27:54 AM)
That's the thing about Orlando, there is now SO much to do there...not even just all of the theme parks! It's just amazing!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:28:14 AM)
Deb, how far away from Orlando are you?
Deb (ID=98) (Feb 27, 2001 9:28:35 AM)
About an hour and 10 minutes!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:29:13 AM)
So Dr. J, do you think I can request anything on Krystie's behalf this morning?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:30:16 AM)
I'll be late for the chat tonight. I have a PTA meeting until 9 and not much hope the kids will be in bed when I get home.
Deb (ID=98) (Feb 27, 2001 9:31:54 AM)
I'll probably be late too....going to Mardi Gras after school with the boys...then Daddy is bringing them home, so Mom (not feeling well), can have a fun night out with some friends. Hmmmm. fever, sore throat, ear aches, yep, sounds like some big fun! *L*
Kathy (ID=102) (Feb 27, 2001 9:32:28 AM)
It is hard to be there at 8 we have gymnastics til 7 then dinner....
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:32:32 AM)
You have the flu? I thought it was the kids.
Deb (ID=98) (Feb 27, 2001 9:32:47 AM)
Nope, lucky me!
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:32:54 AM)
yep, lucky you.
Deb (ID=98) (Feb 27, 2001 9:33:44 AM)
I don't have a lot of "deb" time, so, I'm going to tough it for a while tonight. We'll see....=(
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:34:06 AM)
That's too bad. I too get sick when it will be a night for me.
Deb (ID=98) (Feb 27, 2001 9:34:49 AM)
Doesn't that go and figure?!?! Makes me mad! Oh well.....
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:34:51 AM)
Last year we were sick every week end. I pulled all the rugs out of my house when I found out Krystie and my husband are allergic to dust mites. Now not even a cold since last April
Kathy (ID=102) (Feb 27, 2001 9:34:54 AM)
make the hubby take the kids out and keep them out while you take a bath and sneak into bed have him tell the kids your are gone, and maybe you can get some rest without any "help"
dr.j (ID=100) (Feb 27, 2001 9:35:53 AM)
Deb, thanks, I'll do that. Also, what I think WOULD be fun would be one day at an event that all families may like to do togehter.....
Deb (ID=98) (Feb 27, 2001 9:36:11 AM)
Wow...dust mites...I've heard that from others as well.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:36:11 AM)
I probably just jinxed myself.
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:36:25 AM)
Cats, too but we don't have one.
dr.j (ID=100) (Feb 27, 2001 9:37:04 AM)
SOrry, I was interrupted. Got a package from England on two chapters I am writing for a book being published there and one chapter is being co-authored by a colleague here at Gallaudet who stopped to briefly tell me what was in the package (we both received the comments on the chapter we are writing together).
Deb (ID=98) (Feb 27, 2001 9:37:13 AM)
I agree Dr. J.....that would be a great idea, and I'm sure all the kids would agree too! We'll have to do a survey to see if people would want to do that, and WHAT, they would want to do. Great idea!!
Kathy (ID=102) (Feb 27, 2001 9:37:26 AM)
we run air filters in bedroonms to keep the allergens down, keep the dogs downstairs and out of the bedrooms and have no carpeting....colds are down...
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:37:51 AM)
We use the air filters, too. No luck with the dogs, though.
dr.j (ID=100) (Feb 27, 2001 9:37:59 AM)
Sorry, I know I've missed some things. If there were any questions or things directed to me, please reask.
Deb (ID=98) (Feb 27, 2001 9:38:11 AM)
Can we get a copy of the bood when it's published, or will it be distributed in just England?
Kathy (ID=102) (Feb 27, 2001 9:38:11 AM)
maybe even a barbque at the pool, but remeber this is August in Florida......
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:38:25 AM)
OK, Dr. J anything specific I could ask for at my meeting this morning with the counselor and the teacher
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:39:34 AM)
Kathy, all we really want is the pool.\
Deb (ID=98) (Feb 27, 2001 9:39:49 AM)
One GREAT thing might be, a day at Typhoon Lagoon! If kids like to swim, and play in sand, and go down different water slides, or get on a big innertube, and float around the lagoon, THIS is the place to go! We have gone to Disney many times, just to go there! It's AWESOME!!!!
Kathy (ID=102) (Feb 27, 2001 9:40:10 AM)
Dr J, I have a four year old language delayed son. We attepmted to have him tested for APD, by Dr. M. He could not do the testing. We have ruled out autism and all related spectrum disorders. The specialist is recommending we use communication boards, what do you think?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:40:11 AM)
sounds like fun.
dr.j (ID=100) (Feb 27, 2001 9:40:22 AM)
Deb, you can purchase a copy once it's published if you are interested in devices for helping people who are deaf and hard-of-hearing from the perspective of students of electrical engineering. I am contributing the first chapter on the anatomy, physiology, disorders of, and functioning of the auditory system with sort of an overview/introduction to how technology can be used with the deaf/hard-of-hearing. THen the rest of the book is on the different technologies. THe second chapter we are writing is on Alerting/Alarming devices for the Deaf and Hard-of-hearing.
Deb (ID=98) (Feb 27, 2001 9:41:24 AM)
That sounds absolutely wonderful Dr. J....I applaud you in all that you do!! You are truely amazing!
Diane (ID=103) (Feb 27, 2001 9:41:26 AM)
(This user has entered CAPD: From the Heart) (IP = 172.137.22.124)
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:41:34 AM)
Hi Diane
Deb (ID=98) (Feb 27, 2001 9:41:38 AM)
Goodmorning Diane!
Kathy (ID=102) (Feb 27, 2001 9:41:51 AM)
hi dianne
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:41:53 AM)
That is so great dr. J.
Diane (ID=103) (Feb 27, 2001 9:41:56 AM)
Hi Carol and deb
Diane (ID=103) (Feb 27, 2001 9:42:13 AM)
and Kathy
Diane (ID=103) (Feb 27, 2001 9:42:55 AM)
Helo Dr J
dr.j (ID=100) (Feb 27, 2001 9:43:05 AM)
Carol, YES, as we sort of discussed before, I'd suggest that you should get from the teacher an explanation of why the teacher feels that Krystie is doing well, but her grades are falling. Is the teacher only focusing on the organization, focusing attention, following directions factor? Then, what needs to be clarified is not that Krystie is doing great, but that Krystie is doing well with THESE issues, now how are we (you, the school, the teacher, special services if needed) going to address any other issues/needs?
Diane (ID=103) (Feb 27, 2001 9:43:31 AM)
my first time to the morning chat
Kathy (ID=102) (Feb 27, 2001 9:43:41 AM)
mine too
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:43:46 AM)
Thanks Dr. J,
Deb (ID=98) (Feb 27, 2001 9:44:04 AM)
Ahhhh, then a double welcome Diane! Any questions for Dr. J?
Carol (Krystie's Mom) (ID=101) (Feb 27, 2001 9:44:11 AM)
I have to go to the meeting, it's at 10AM hope to talk to you tonight.
Diane (ID=103) (Feb 27, 2001 9:44:27 AM)
See you tonight Carol
Kathy (ID=102) (Feb 27, 2001 9:44:28 AM)
good luck, carol
Deb (ID=98) (Feb 27, 2001 9:44:44 AM)
Good luck Carol....see you tonight...hopefully =)
Diane (ID=103) (Feb 27, 2001 9:45:14 AM)
Yes Dr J my son has not been formally dx;d yet, what tests should i have the SLP run
dr.j (ID=100) (Feb 27, 2001 9:45:35 AM)
Kathy, not having all of the information, I really can't answer your question about what I think. I would need to have much more case information (as it is called) regarding behaviors, any tests that HAVE been done, etc. You said you tried to have your son tested for APD, but Dr. M (whomever HE is) said he could not test your son, and you said his dx is language impaired, but bring up Autism spectrum and communication boards.
Diane (ID=103) (Feb 27, 2001 9:45:45 AM)
He does have a formal dyslexia dx
Deb (ID=98) (Feb 27, 2001 9:46:07 AM)
It's Dr. Moncrieff....
Kathy (ID=102) (Feb 27, 2001 9:46:13 AM)
we are in the lets rule out what we can stage. Dr. M is Dr. Moncreiff
dr.j (ID=100) (Feb 27, 2001 9:46:25 AM)
Diane, you say your son has not been formally dx yet, formally dx as WHAT? And why are you having an SLP eval?
dr.j (ID=100) (Feb 27, 2001 9:46:51 AM)
Deb, Dr. Moncrieff is a woman (Debbie Moncrieff).
Kathy (ID=102) (Feb 27, 2001 9:47:07 AM)
yup
Deb (ID=98) (Feb 27, 2001 9:47:18 AM)
Right.....Kathy meant to say 'she' in her initial post.
Diane (ID=103) (Feb 27, 2001 9:47:26 AM)
He has a dx of dyslexia but has many problems with word dicriminationand problems hearing in loud environments
Diane (ID=103) (Feb 27, 2001 9:47:52 AM)
phonic awareness etc
Diane (ID=103) (Feb 27, 2001 9:49:02 AM)
his resource teacher is the one that suggested he may have APD
dr.j (ID=100) (Feb 27, 2001 9:49:07 AM)
Kathy, before you EVER enter the let's pick up a shotgun, shoot it and see what the buckshot hits (that's the let's try everything and rule out until we find something that hits the mark), you should really sit down with a professional who can look at ALL of the presenting behaviors, symptoms, complaints, problems, etc. and determine what areas need investigating. IF you have done this, then, you are not at the let's do this to rule out that stage, you have a plan and are following that plan. If you have not done the preliminary work, you really should consider doing some discussion first to set up a plan.
Diane (ID=103) (Feb 27, 2001 9:50:12 AM)
He has had thorough physchoed testing
dr.j (ID=100) (Feb 27, 2001 9:51:32 AM)
Diane, OK, you say that your son has a dx of dyslexia meaning a primary problem with reading. ANd, he has word discrimination problems, problems hearing "loud" environments (do you mean noise or when people speak loudly, or he has problems tolerating loud sounds that other people have no problems tolerating, I am unclear on this) and problems with what sounds like a reading related issues you call PHONIC AWARENESS.
dr.j (ID=100) (Feb 27, 2001 9:52:25 AM)
Diane, you said the resource teacher says she thinks it's APD. What you need to do is ask the resource teacher two questions "WHat is your definition of APD?" "What behaviors do you see that have led you to believe that my son has APD?"
Diane (ID=103) (Feb 27, 2001 9:53:52 AM)
Dr J this is all new to me , he has problems in the classroom hearing exactly what the teacher is saying and yes loud noises do bother him not as much as they use to but it depends on the environment
Diane (ID=103) (Feb 27, 2001 9:54:39 AM)
I can speak to him and he will not hear exacttly what is said
Kathy (ID=102) (Feb 27, 2001 9:54:43 AM)
our SLP and classroom teacher wanted him seen to rule out autism. his SLP, his classroom teacher and the autism specialist, feel that he has an APD. William does not seem to grasp the even simple repetitive things in the classroom. After 18 months of hearing the same song, he is now just grasping the word endings. He hates to have stories read to him... He can't repeat a simple story
dr.j (ID=100) (Feb 27, 2001 9:54:44 AM)
Diane, when you say he has problems in the classroom hearing exactly what the teacher is saying, do you KNOW that he mishears OR are you aware only that he misunderstands?
dr.j (ID=100) (Feb 27, 2001 9:55:04 AM)
Diane, how do you know that he "will not hear exactly what is said?"
Diane (ID=103) (Feb 27, 2001 9:55:23 AM)
only that he misunderstands
Diane (ID=103) (Feb 27, 2001 9:55:51 AM)
by his answers and what he repeats back to me that I said
Diane (ID=103) (Feb 27, 2001 9:56:41 AM)
He is now 9.5 years of age and has never really grasped rhyming
dr.j (ID=100) (Feb 27, 2001 9:56:42 AM)
Ah HA! Then, what is needed may be to differentiate whether the problem IS mishearing, getting only part of the message, OR not understanding the language/vocabulary, not understanding the way the words are used for what they mean, getting only the pieces and not being able to put them together to form the whole. As such,.....
Diane (ID=103) (Feb 27, 2001 9:57:31 AM)
so is this possibly APD ?
Diane (ID=103) (Feb 27, 2001 9:57:54 AM)
he has a very good vocabulary
dr.j (ID=100) (Feb 27, 2001 9:58:38 AM)
What you describe sounds like it could be a problem with language or auditory processing or cognitive decision-making related to putting the message together. THus, you may want to have your son evaluated for the auditory issues (APD), the language issues and the cognitive issues. I believe, if I remember correctly, you DID say that he had the full psychoeducational eval (so that would have the info for the cognitive issues).
dr.j (ID=100) (Feb 27, 2001 9:58:54 AM)
Diane, yes this is possibly APD.
Diane (ID=103) (Feb 27, 2001 9:59:27 AM)
yes his cognitive scores were good
Diane (ID=103) (Feb 27, 2001 10:00:19 AM)
he had short term auditory memory problems on the testing
Diane (ID=103) (Feb 27, 2001 10:01:36 AM)
I am trying to get him into Dr Michael Wynne at Riley Hosp for Children at Indiana U
dr.j (ID=100) (Feb 27, 2001 10:01:59 AM)
Diane, a child's ability to USE vocabulary may not relate to the child's abilty to understand the use of words by others. For example, if I know that a word (for example) "green" means the color green, but I also know that it can mean money (dollars, bills are green) etc. How do I understand the use of the word "green" in the sentence "Green with envy?" Is the person really turning green? WOuld I expect to see a green face when there is envy? SO, it's not necessarily the words I use but my ability to understand the multiple meanings and what cues from the rest of the sentence/message, context etc. tell me which meaning to consider.
Diane (ID=103) (Feb 27, 2001 10:02:52 AM)
I see,... yes he does have that problem at times
Diane (ID=103) (Feb 27, 2001 10:03:05 AM)
it is all so complex
dr.j (ID=100) (Feb 27, 2001 10:04:20 AM)
Then, you have recognized that there may be one cognitive factor at play (working memory or short term memory) AND that memory can be problematic because of poor memory (itself) a cognitive factor, poor language processing in getting information "tagged" as it is called into memory, or poor auditory processing such as poor decoding extracting the auditory information in order to form the language/symbolic information so that the information is stored in memory symbolically and not exactly (exact storage will overload the system very rapidly).
Diane (ID=103) (Feb 27, 2001 10:05:29 AM)
it was suggetsed I have the SLP do some preliminary tests but was not told what tests and yes the testing also said he poor decoding
Deb (ID=98) (Feb 27, 2001 10:05:30 AM)
Well everyone....time for me to head out. Have some things I need to get doing....have a great day everyone....hope to see you in chat tonight! Dr. J....don't forget to get working on theat Disney list! *L*
Kathy (ID=102) (Feb 27, 2001 10:05:54 AM)
Hope you feel bettter Deb see ya tonight
dr.j (ID=100) (Feb 27, 2001 10:06:04 AM)
I understand, Diane, yes it is complex. THis is why it is important to find professionals who you feel are putting it all together WITH you and helping you understand. There's no "black and white" to APD, because the symptoms we see are complex processes involving auditory signals (messages), using language, using language in certain ways, and making decisions about what is the meaning of the messages we are receiving.
Diane (ID=103) (Feb 27, 2001 10:06:47 AM)
Dr J are you familiar with Dr Wynne?
Deb (ID=98) (Feb 27, 2001 10:07:00 AM)
Thanks Kathy....see you tonight....probably a little later than earlier in chat....
dr.j (ID=100) (Feb 27, 2001 10:07:08 AM)
Diane, you said it was suggested to have the SLP do some testing. Testing for WHAT? What information do you want from the SLP evaluation? Someone suggested the SLP testing, and you can ask that person WHAT do they feel should be obtained from the SLP eval?
Diane (ID=103) (Feb 27, 2001 10:07:10 AM)
I was told that he does APD testing primarially
dr.j (ID=100) (Feb 27, 2001 10:07:23 AM)
Diane, no, I am not familiar with Dr. Wynne.
dr.j (ID=100) (Feb 27, 2001 10:07:53 AM)
IS Dr. Wynne an audiologist if he does APD testing?
Kathy (ID=102) (Feb 27, 2001 10:07:55 AM)
thank you for your time Dr. J see ya in two weeks, bye Diane see ya tonight
dr.j (ID=100) (Feb 27, 2001 10:08:14 AM)
See you in two weeks Kathy.
Diane (ID=103) (Feb 27, 2001 10:08:16 AM)
okay yes he is a pediatric audiologist
dr.j (ID=100) (Feb 27, 2001 10:09:47 AM)
Diane, what you may want to do is the following: Ask Dr. Wynne what is his definition of APD? How does he approach APD? Does he have a specific model or approach to APD that he uses? What information does he feel is obtained from his APD evaluation? What outcomes/recommendations does he usually find coming from his APD evaluations?
dr.j (ID=100) (Feb 27, 2001 10:10:18 AM)
Now, if you are comfortable with the answers he provides to these questions, then, you have a professional with whom you can work comfortably.
Diane (ID=103) (Feb 27, 2001 10:10:53 AM)
Dr J thank you for your input I will ask these ? and keep trying to find the right answers,how will i know if i am comfortable with his answers
Diane (ID=103) (Feb 27, 2001 10:11:20 AM)
is there a certain answer i am looking for ?
dr.j (ID=100) (Feb 27, 2001 10:13:41 AM)
Diane, the answers you are looking for are answers that make you feel comfortable. For example, would you feel comfortable if I said "My definition of APD is that it is a problem due to a disorder in the auditory pathways from the ear to the brain or neuromaturational developmental lag in these pathways?"
Diane (ID=103) (Feb 27, 2001 10:14:12 AM)
yes that is my understanding of APD
dr.j (ID=100) (Feb 27, 2001 10:14:56 AM)
WOuld you be comfortable if my answer to the approach I use is "I look for the specific area within the central auditory pathways that are malfunctioning ."
Diane (ID=103) (Feb 27, 2001 10:15:23 AM)
yes
dr.j (ID=100) (Feb 27, 2001 10:16:07 AM)
And, if I were to answer "My recommendations are usually things like using FM systems which we have found useful with many children having APD, and going for speech-language services."
Diane (ID=103) (Feb 27, 2001 10:16:30 AM)
If that would help my child
dr.j (ID=100) (Feb 27, 2001 10:18:16 AM)
Well, how would you know if that will help your child. Let's go back. IF as you said, you accept the definition of APD as either a disorder in the auditory pathways or neuromaturational developmental problem, how is an FM system correcting the disorder and in what way will an FM system stimulate development of the system? Remember, the recommendations/outcomes should come from the definition and the approach should be related to how it will provide info to substantiate the definition.
Diane (ID=103) (Feb 27, 2001 10:18:17 AM)
My son has been using "Earobics" for a little over a year now and it has helped in his reading do you have any thoughts on this program?
Diane (ID=103) (Feb 27, 2001 10:20:03 AM)
Well thoughts have been that his hearing needs to be trained to interpret language better, I don't really know how to say what I mean I guess
dr.j (ID=100) (Feb 27, 2001 10:21:08 AM)
yes, Diane, for children who have phonemic awareness (auditory decoding problems at the level of the speech sound or phoneme) problems, Earobics is one method for providing stimulation and practice in doing auditory phonemic awareness skills development. And, for a child with merely maturational issues, just doing Earobics can provide the needed stimulation. FOr a child with a specific problem in auditory decoding related to phonemic awareness, then, the mere doing of Earobics will not help becasue the child needs to learn the skills and strategies for successfully completing the various tasks in Earobics. In that case, the child needs a professional's guidance and intervention to teach the child the skills and strategies, then use the Earobics for practice.
Diane (ID=103) (Feb 27, 2001 10:22:00 AM)
and i really don't know what other options there are as to remediating the APD
Diane (ID=103) (Feb 27, 2001 10:23:14 AM)
when you say professional would that be a audiologist or SLP or both
debbie (ID=104) (Feb 27, 2001 10:23:46 AM)
(This user has entered CAPD: From the Heart) (IP = 172.128.106.107)
Diane (ID=103) (Feb 27, 2001 10:23:49 AM)
He receives no SLP services now
debbie (ID=104) (Feb 27, 2001 10:23:52 AM)
hi there!
dr.j (ID=100) (Feb 27, 2001 10:23:55 AM)
Diane, unless there are specific AUDITORY based or auditory perceptual deficits, a child being approached using an auditory perceptual based program and accommodations (like the FM system) will NOT really make the signficant improvements. CHildren who have problems dealing with auditory-verbal information have such problems becasue of three primary factors. One and a small one is auditory perceptual or the traditional definition of APD which is what you agreed on saying you were comfortable with the traditional definition of APD as an auditory based auditory perceptual problem. Most children with auditory-verbal processing problems have language problems alone or in conjunction with cognitivie decision-making problems.
dr.j (ID=100) (Feb 27, 2001 10:25:15 AM)
Diane, usually remediation is provided by SLPs as most audiologists do not like to do, are not trained to do, and don't know WHAT to do in remediatation. BUt, not all SLPs really understand auditory processes and know how to separate out the auditory from the language and how to integrate both.
Diane (ID=103) (Feb 27, 2001 10:25:48 AM)
I see,
Diane (ID=103) (Feb 27, 2001 10:26:49 AM)
The school SLP told me that she was not that familiar with APD and the processes of remediation for it
dr.j (ID=100) (Feb 27, 2001 10:27:51 AM)
hi, debbie, how was your meeting. We can talk more later.
Diane (ID=103) (Feb 27, 2001 10:28:18 AM)
I am afraid that school is just going to give me he runaround on this, they are the ones that said he had ADD issues but i feel that is not the case anymore
dr.j (ID=100) (Feb 27, 2001 10:28:24 AM)
Diane, sorry ,but i realize the time. I have to prepare for my class. If you want to discuss this further, please feel free to email me at drj@ncapd.org
dr.j (ID=100) (Feb 27, 2001 10:28:29 AM)
See you later debbie.
Diane (ID=103) (Feb 27, 2001 10:28:45 AM)
Thanks Dr J
Diane (ID=103) (Feb 27, 2001 10:28:54 AM)
Hi Debbie
debbie (ID=104) (Feb 27, 2001 10:29:26 AM)
hi Diane,, I did nt want to interrupt your chat
Diane (ID=103) (Feb 27, 2001 10:30:02 AM)
Thats okay debbie i'm not so sure i made much sense i'm home with the flu and my head is a mess
debbie (ID=104) (Feb 27, 2001 10:30:12 AM)
I just got home from a school meeting so thought I"d pop in
debbie (ID=104) (Feb 27, 2001 10:30:25 AM)
I"m sorry to hear that Diane,,I hope you feel better...you should try and get some rest
Diane (ID=103) (Feb 27, 2001 10:32:52 AM)
Yes i should I want to make chat tonight too LOL
Diane (ID=103) (Feb 27, 2001 10:33:17 AM)
Jake is home too the flu has hit us all
debbie (ID=104) (Feb 27, 2001 10:33:40 AM)
ok..well I will see you tonight then..im going to go do a few things and try and make it back to school for lunch with the kids....today is sarah's first day back after chicken pos
debbie (ID=104) (Feb 27, 2001 10:33:42 AM)
pox
Diane (ID=103) (Feb 27, 2001 10:34:28 AM)
Well I will see you tonight i hope :) Oh poor Sarah the chicken pox are the pits poor thing
Diane (ID=103) (Feb 27, 2001 10:34:53 AM)
see you tonight
