Hi, my name is Kendra Inman, and I am the "moderator" of this group.
When my OB doctor told me after a vaginal ultrasound on May 13, 1999 that I was going to miscarry, the first thought I had was "He's kidding, right?" Unfortunately, he was not. He and the nurse assisting him told me there was nothing in the sac. I left the office with confusion and a choice of naturally miscarrying or having a D&C. I chose the D&C, and it was performed on May 17th, the day I believe my baby, Nina, was born and died. I found out a week later on a Saturday afternoon via the telephone that my pregnancy was a partial molar pregnancy. I had never heard of this before, so I searched the internet for information. I found that cancer was a possibility, but I tried to think positive as I had to go every week to the OB/GYN clinic to have my HCG levels read. It was really hard being around all those pregnant women. If someone had asked me when I was due, I probably would have burst into tears, but luckily no one did.
My levels dropped slowly for 2-3 months, then jumped from 900 to around 1200. I had to face the fact that I beat the 5% odds....I was now a cancer patient. I started chemo sometime at the end of July, getting a weekly shot of Methotrexate, and luckily, except for the bruises on my hips, there were no side effects. Unfortunately my levels started to level off, and I had to go on a stronger chemo--Actinomyocin D. This stuff was horrible. I had mouth sores, fatigue (even though I had to work so insurance would pay for treatments), and constant needle pricks due to my veins collapsing from all the sticks. I went through four weeks of treatment (eight in all--one week on, one week off) and my levels got to 0 and stayed for a month before I was done with chemo.
Looking back, I can honestly say that if I had to do it all over again, I would have, just for the little bit of time Nina and I had together. In her memory, I have created a web site for her, started this support group for women who have experienced molar pregnancy, and I have created this web site....all dedicated to all the parents who have experienced molar pregnancy, the little ones lost to molar pregnancy, and especially to my little girl Nina. I love you.