"Journal"
In Loving Memory of
Alberta Batease Haskins,
my mother, who died at
age 39 of breast cancer.
Feb 14, 2002 Discovered by accident lump in upper right of right breast Feb 15, 2002 Called my GYN for an appointment. Feb 25, 2002 Manual exam by my GYN, lump confirmed. Referred to surgeon. Feb 28, 2002 Mammogram both breasts, sonogram right breast, chest xray. Mar 06, 2002 Surgeon confirms its breast cancer. Size of lump 3 centimeters. Stage 2. Mar 07, 2002 Pre-op bloodwork, and physical by my GP for ok for surgery. Mar 12, 2002 Lumpectomy at 10:00 a.m., home by 1:30 p.m. Mar 22, 2002 Surgeon confirms its cancer, aggressive rather than hormonal. Did not get a clean perimeter from dye test, referred to Oncologist. Mar 26, 2002 Initial mtg with Oncologist to discuss options for further surgery. Cat scan scheduled. Appointment with another surgeon made. Apr 04, 2002 Visiting nurse took more blood work, left lab slips and drinks for scan. Apr 08, 2002 My 59th birthday, cat scan at a different hospital. And the surprise of my life when an old friend from 42 years ago called the hospital to cheer me on. *Smiling* Apr 16, 2002 Met new surgeon, discussed options, surgery scheduled for modified radical. Results of cat scan "normal", but taking whole breast and nodes under arm. Apr 23, 2002 Hospital for Pre-Op tests, chest x-ray, blood work, EKG and orientation. Apr 29, 2002 Note from Lorrie's Daughter- I got home at 7:00 pm. Lorrie went in surgery and she did well The surgery took about an hour and a half. Lorrie is sore , but that is to be expected. Lorrie is all ok and doing well. Thank God she is ok . The Dr said she might be home tomorrow I want to thank you for all your support and prayers. Apr 30, 2002 Note from Lorrie's Daughter- Lorrie is doing good.She is sore, but they are giving her meds to ease the pain.If she is doing better today then she might be home tomorrow. I will keep you all up dated . May 01, 2002 Note from Lorrie's Daughter- My mom is suposed to come home today. She is tired and sore. I will let you all know when she is home. I also will let you know how she is doing once she is home. I will be going to her house and keeping in touch with her on the phone daily. I will keep you all updated. May 02, 2002 Yes I am home, in much pain. They took the zip out of me. But they think they got it all. Hard to type so this is short. Have developed blisters across my back from bandage. Apparently I am allergic or have delicate skin. I rec'd another surprise when an old school chum of 41 years ago showed up at the hospital. She and I spent a couple of hours "catching up" and it was grand to see her again. May 07, 2002 The dr took the drain out today. The report on the biopsy showed the perimeter of the breast wall is clean. The dr got all of the cancer. Out of 27 nodes removed from under the arm, one showed cancer cells. The staples come out next week, at which time scheduling for chemo therapy begins. May 08, 2002 Today is my "operation blues" day. Letting the tears flow. I have so many wonderful friends who send me messages and flowers and cards to cheer me up. But when I cry, which is not often, I am alone with no one to hold me. Today is such a day. And when I think of all the people out there who are sick or lonely with no one to hold them, I cry even harder. Tomorrow is a special day for me and will probably cry the whole day away. May 09, 2002 I spent most of last evening in the ER. It seems I have a possible blood clot in my right thigh, and a culture was taken from my incision area as it looks infected. They took blood, gave me blood thinners, one was a shot in the tummy and I got another chest x-ray. This morning I am off to the hospital again for another tummy needle and more blood work. Happy 4th Anniversary to Brucefan. Four years ago today I and my daughter were driving north for a little adventure. I will add more as I learn more. Update on May 09, 2002 Some test results are back in. The culture shows gram infection in the surgical wound. I also have DVT... (deep vein thrombosis) This means shots of Lovenox in the tummy twice a day and of course many blood tests. I am also on antibotics and am scheduled for a doplar tomorrow on the right thigh. May 10, 2002 Well lets see, first I went to my home town hospital to have blood drawn and Lovenox injected into my tummy. Then I went to a southern Vermont Hospital to have a deeper Venuous Doppler taken and this time the spelling is closer. I have been poked, prodded, stabbed and pained enough for one day. I am taking a nap!!! May 14, 2002 Today I had to see the surgeon to have the staples removed. He also had to debride the area. My daughter, who is always with me, was helpful to the dr by holding my arm up, giving the dr room to work. First she turned white, then white with a green hue, and then she fainted. So they had her in one room working with her, while I was in another. Its been quite the day. I see the dr again in 2 wks. He put me on Augmentin. The healing process is going to take a long time. May 23, 2001 Saw my regular doctor today, who is keeping an eye on my right thigh. She found a sore spot in my liver and can see its swollen with a naked eye. So she ordered lots of blood work. I see my surgeon next Tues. and there is more dead tissue to be cut away. My oncologist is anxious to start chemo on me, but we have to wait until the wound is healed more before chemo begins. May 28, 2002 I saw my surgeon today. The incision under the arm is all healed, the diagonal incision from arm to breast area is almost healed and the deep hole is filling in nicely. He gave the ok to start chemo. See him again in 2 weeks. June 05, 2002 Today I saw the oncologist. He said I cannot start chemo for 3 more weeks because the surgery has to heal more, yet my surgeon gave the ok to start. There will be two different chemo programs to choose from. One is a 6-month program and the other is a 9-week program. Before he decides which is best for me, I have to have an echo cardiogram, because the latter treatment is a little rough on the heart. He did say he was surprised that more nodes were not involved and considered it a plus for me. However, he also reminded me there are no guarantees with cancer. No radiation is needed because the breast wall is clean. June 06, 2002 I saw my GP today to follow up on my leg. She has ordered x-rays. She also decided to lecture me about getting more rest. All my vitals indicated my body was exhausted and I need more rest with an open wound. I dont sleep well and taking naps isnt always possible when one is responsible for an elderly husband in first stages of alzheimers and two mentally challenged live-ins that I take care of. However, I will try to get the required naps in. I see her again in a month. She made an appointment for me to see an orthopedic doctor concerning my leg. Gosh, no wonder I am tired, I have to see doctors all the time....grrrr! June 09, 2002 Well today I am uneasy. Restless I guess a being cooped up in the house. Wish a friend would come along and take me for a Sunday afternoon ride. Speaking of friends, I would like to make a comment. You know all my lady friends have kept in contact with me and cheer me on, but my men friends are slowly disappearing one by one. That hurts. I dont get the emails I did, I dont get the visits I did and I am even being avoided on the "chat room" I own on line. Gosh, now is the time need those shoulders. Other ladies have told me the same. Men disappear when something like this happens. *Big Sigh* June 11, 2002 I saw my surgeon today. The wound is healing nicely. He had to cut off some more dead skin and he put me back on antibiotics for precaution, but all in all, things are going well...he gave me permission to drive short distances. WOOHOO Plattsburgh here I come...oh wait...darn, thats not short. June 19, 2001 I saw my oncologist today. Although he seems to change his mind a lot, everything at the moment is set up thus: Monday, I get an echocardiogram at my hometown hospital, which will determine which chemo treatment I will be having. Tuesday, I will be going to GF, to the bigger hospital, to see my surgeon for a checkup then on to a lab to have a line pick inserted in my left arm. Wednesday, (26th) I see the oncologist, to begin my chemo. Friday (28th) my son graduates from High School. June 21, 2002 I saw the orthopedic doctor today about the on-going acute pain in my upper right thigh. It was treated at first and diagnosed as a blood clot. For weeks I took lo-venox shots I gave myself in my stomach. Now I find out the pain in the muscle of my thigh is nerve damage in my spine, a common malady of people who are rolled in surgery. It will take 6 to 9 months to heal. He has scheduled me for a catscan of my spine and x-rays of my spine for next Thursday the 27th. Sighs, its down right hard to keep smiling here! June 25, 2002 Yesterday I had an echocardiogram. Today I went to get my PICC line put in. My veins are hard to find so the RNs had to give up (after sticking me) and I was sent to x-ray where a doctor inserted the line uses a sonogram technique to see where every- thing was. Other than being exhausted, I am ok. The PICC line insertion was almost painless....all I felt was the pick of the needle with Lidacane. If my echo is satisfactory, I get my first chemo treatment tomorrow. June 26, 2002 Today was my first chemo treatment. They must have heard my knees knocking for 3 miles. I am being given two kinds of chemo...(1) Doxorubicin (Adriamycin, Adria) and (2) Cytoxan (Cyclophosphamide). One treatment every 3 weeks for 4 treatments. So in 4 months treatments should be over. The PICC line has to stay in my arm all this time and I have to hope it doesnt get infected, becuse if it does, then I have to get a new line put in...and frankly I wouldnt look forward to that. (Ugh) So one treatment today, next treatment July 17th. I can expect to start losing my hair in 10-12 days. I will know when its going to happen as I shall experience a burning sensation on forehead near hair line. I have been given pills for nausea, and suppositories. I have to drink 2 quarts of water daily so this poison doesnt irritate the bladder. The chemo treatment went well. I felt nothing. Took about two hours. July 03, 2002 My PICC line nurse was here and not happy. I have developed a serious reaction to the "see-thru" bandage covering the entry of the line. Its extremely important this area not be a source of infection, because the line goes into my heart. They are now talking about surgery again with a clavical port....and removing the PICC line. So far I have refused. Just as I refused the proceedure due last Thurs. to have dye injected into my spine for a milogram. Enough already! July 08, 2002 Saw my GP today for a general checkup. All vitals are doing good and I have lost 15 pounds. That is one of few perks with chemo. July 09, 2002 I saw my surgeon today and I graduated. ) I dont have to see him again unless my nurses report something unusual. The site is completely filled in and only needs surface healing now, but will be slow because of chemo. Monday I go to the Cancer Boutique to be fitted for a wig, if I wish, and or turbans and makeup. I dont think I will opt for the wig. I also go for a fitting of my prothesis. July 19, 2002 I am two days late writing in my Journal. I had my second round of chemo July 17th. This time around I am very ill. Crying, vomiting, diarrhea, and woe is me, no one comes to see me etc. This is rough girls, please do your self exams and regular mamograms. I am ready to give up at this time and stop chemo. But I know I have to bear it if I want the risk of recurrance lowered. July 29, 2002 I thought I should say a few words about feelings. If you are married then you have a husband to help you get through this fight with breast cancer. In my situation I am fighting alone. Oh, I have friends who email me, send me cards and flowers, but at night when the house is dark and quiet and I crawl into bed alone and the tears of fear flow, its very difficult. Once I have healed and the chemo treatments are over, there will always be fear the rest of my life. Will it come back? Will my other breast develope a lump? Did an escaped cell survive chemo and is nested in my bones or liver? I try to stay upbeat and think the positive thoughts one is suppose to, but there are dark scary moments when a pair of strong arms and a warm heart would help. For the most part I am brave or maybe I put on a brave front for family and friends, but I would be less than honest if I didn't say I have my down moments where I wonder if all this is worth it. I think only another cancer patient can fully understand the hard moments. Would you believe some of my friends have even backed away from me during this time of trial. August 28, 2002 Today was the last chemo treatment and the PICC line came out of my arm. I havent spoken much about the chemo treatments because everyone reacts differently. I did have some trouble with vomiting, diarrhea and general tiredness. However, my blood count and other vitals held their own and did very well with chemo. I will make this comment. Even though it was a great relief to have that last treatment, it was also scary too, as somehow chemo seems a safe haven. Treatment is killing the disease and there is satisfaction and security in that knowledge. Now that I wont be having more chemo I started to panic....did it get it all.... did it work....will I be safe now....will it come back? All questions and feelings that my doctor assured me was perfectly normal. There are no answers. We can only go on with our lives and live each day to its fullest. November 8, 2002 Tues. I had a pap test done. Because my cervix was of a suspicious color, the doctor took a nip for a biopsy and I get results in 3 weeks. Today I had surgery on my face. Three growths were removed and also sent for biopsy. So I sit with 4 stitches in one area and 3 in another, thinking "enough already"! To add to this, my incision from my mastectomy has decided to open in 5...yup 5 little pinhole places and drainage is coming out. So we are back to packing that with sorbsan (seaweed) and hope for the best. December 18, 2002 Wed. My pap test finally came back. It's normal and all is well. Needless to say a great relief for the holiday season. We are still having trouble with my incision. Because the doctor left a bubble of tissue to be used in reconstruction should I want it in the future, the incision is in the fold or crease. Therefore it keeps warm and moist and just doesnt want to completely heal. I may be facing more surgery to remove the 'bubble" and flatten the area out so the incision will get air and heal. I will add details to the journal as events happen. Right now I am just relieved to have a good clean biopsy from the pap test.Feb 25, 2007 Update: I am still cancer free. I had some scares in December and January and had to have a biopsy in two spots on my remaining breast. And one biopsy on a suspicious mass in my thyroid. I was ready to roll up my sleeves and face all this again but the good Lord above had other plans. He doesn't want me yet. The breast biopsies came back to be nothing more than calcium deposits. The thyroid biopsy is also benign and is the beginning of a goiter that will be treated with medications. The thyroid has gone crazy with lots of nodules and is hyper-active. I am almost 64 now and I still keep a positive attitude and a will to fight anything that should crop up. I developed a problem called Fibromyalgia a few months after my chemo was finished. I had never heard of it until a friend of mine got it and then myself. No one knows the pain that goes with that. There is no cure. It works with arthritis and it hits every muscle in your body. Sometimes in one area and sometimes in several areas at once. Sometimes it puts me in bed for a couple of days. At all times I have to take pain meds for it. Where are these new diseases coming from? -Lorrie