The Listener's "Home" Page

"Home is where the heart is, so unless you're one of those zombies from horror movies that have no heart, or the Tinman character from the Oz myth, who claimed to have no heart, home is wherever you are right now"
                                                                                                  - The Listener
 
 

"Well, actually, in this chair on the HMS Titanic right now"
                                                                            - Jack, Titanic movie, paraphrased
                                                                                (Got direct quote? E-mail me it please. From scene at dinner)

ll the words and/or opinions you see and read on these pages are the opinions of individual humans, who, just by the very fact that they are human beings, are only guesses, and, if they are growing even a little, are even subject to change in a millisecond.... so even as they're typed in here, they may have changed and/or expanded already.

Take what touches your heart, your soul, your deepest places, and leave the rest. e-mail:
ListenerOne@hotmail.com
to voice your opinions, indicating in the body of the letter if you want it posted here for all to see.

If anything pisses you off, it is probably touching some really really deep truth you have been resisting. If you have this kind of violent reaction to anything you read here, it is strongly suggested that you write out all your feelings and RE READ THEM before sending them. This will avoid the possibility of you sharing your processes and/or incompleteness instead of your deepest truth. Often, you will come to your deepest truth somewhere towards the end of a rant, and you can copy and paste THIS part into an e-mail, rather than typing the whole rant, pressing "send", and regretting it later.

Thank you for visiting "The Listener" home page. If you've come, you care, whether it's "veiled" in coming just to find something to attack, you would not spend the time to log in and come unless this has touched you deeply in some way, even, and maybe especially, if this movement and it's ideas have "pushed a button".

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She will go forth. She will listen. If you see her, flag her down, and tell your story..... are you forgotten?

Contents:
Quote by Leo Buscalgia
How lucky are you? (Quote for friendship week, pause for thought friends!)
Universal declaration of human rights
Patients bill of rights and updates/additional comments on it
Journal of the journey of The Listener, including added comments and reminisces: (please be patient, I'll get it all typed in as soon as I can, it was hand-written, so this'll take some time)
Stories of the forgotten: (as received by e-mail)
Other e-mails

Let us remember each other, our humanity,
LOVE...............

May we meet on the Path of the Heart,
The Listener

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"Our culture is constantly teaching us to be suspicious. Not to trust. Not to believe. To be afraid of everything! What we're doing is we're building higher and higher walls to protect us from each other! I don't ever want to be protected from you. I want to just dive right in the middle of you. I want to experience you. I don't want to be protected from you. I'll trust. And if there are one or two of you who smack me along the way, that's okay. But I don't want to miss you. Never. That scares me most. But our culture keeps telling us these things: "The person next to you cannot be trusted". We don't even know our neighbors. And that's a shame. Because what are we doing? We're telling our children also that they must not trust. And we're becoming more and more separated from each other.

It's time we start to build little bridges."

                                          --- Leo Buscaglia

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READ THIS RIGHT TO THE END
If we could shrink the earth's population to a village of precisely
100 people, with all the existing human ratios remaining the same, it
would look something like the following:
 

There would be:
57 Asians
21 Europeans
14 from the Western Hemisphere, both north and south
8 Africans

52 would be female
48 would be male

70 would be non-white
30 would be white

70 would be non-Christian
30 would be Christian

89 would be heterosexual
11 would be homosexual
6 people would possess 59% of the entire world's wealth and all 6
would be from the United States.
80 would live in substandard housing
70 would be unable to read
50 would suffer from malnutrition
1 would be near death; 1 would be near birth
1 (yes, only 1) would have a college education
1 would own a computer

When one considers our world from such a compressed perspective, the
need for acceptance, understanding and education becomes glaringly
apparent.

The following is also something to ponder...

If you woke up this morning with more health than illness...you are
more blessed than the million who will not survive this week.

If you have never experienced the danger of battle, the loneliness
of imprisonment, the agony of torture, or the pangs of starvation you
are ahead of 500 million people in the world.

If you can attend a church meeting without fear of harassment,
arrest, torture, or death...you are more blessed than three billion people in
the world.

If you have food in the refrigerator, clothes on your back, a roof
overhead and a place to sleep...you are richer than 75% of this world.

If you have money in the bank, in your wallet, and spare change in a
dish someplace ... you are among the top 8% of the worlds wealthy.

If you can read this message, you just received a double blessing in
that someone was thinking of you, and furthermore, you are more blessed
than over two billion people in the world that cannot read at all.

Someone once said: What goes around comes around.
Work like you don't need the money.
Love like you've never been hurt.
Dance like nobody's watching.
Sing like nobody's listening.
Live like it's Heaven on Earth.
It's National Friendship Week.
Send this to everyone you consider a FRIEND.

Pass this on, and brighten someone's day. Nothing will happen if you
do not decide to pass it along. The only thing that will happen, if you DO
pass it on, is that someone might smile because of you.

Happy friendship week!
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"United we stand. Divided we fall.
And if you back should ever be against the wall,
We'll be together,
Together,
You and I."

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Journal Of The Listener

"Authors" note:
The story of this Journey is in three parts. Part one is the Kauai trip. Part two is the mainland portion. Part three is the return to Maui and the continuation of The Listener's journey. Any additions to the original journal, "after comments", will be in this shade of maroon, and boldfaced, for those with black and white monitors. It may be that as long as The Listener remains alive, this journey will not end. If so, this journal will be expanding over time. It may be that even if/when she dies, those that are speaking, and those who have become active listeners, will continue The Work. In either of these cases, if you wish to be made aware every time the page is updated, and you have an e-mail account, please take advantage of the option at the top of the page to be automatically alerted of updates. If you do not have an e-mail account, there are many free ones offered on the net which you may easily access from any computer, even if you do not own one yourself. Use a search engine, type in "free e-mail" and choose one, perhaps shopping around beforehand, some only offer minimal storage space, so if you do not have a computer of your own, you may want to get an account that will allow you to store all your mail, which means at least 2 megs, preferably 5, since many people are using colors, graphics, and sending photos and/or other attachments that take up quite a bit of room.

Much of what is written here is highly personal, do not let it detract from the message. Often the clearest, deepest messages, are embedded or even directly stated in personal experience.

It is good to have spoken
-The Listener

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Universal Declaration of Human Rights
                 Adopted and proclaimed by General Assembly resolution 217 A (III) of 10 December 1948
 

     On December 10, 1948 the General Assembly of the United Nations adopted and proclaimed the
     Universal Declaration of Human Rights the full text of which appears in the following pages. Following
     this historic act the Assembly called upon all Member countries to publicize the text of the Declaration
     and "to cause it to be disseminated, displayed, read and expounded principally in schools and other
     educational institutions, without distinction based on the political status of countries or territories."

PREAMBLE

     Whereas recognition of the inherent dignity and of the equal and inalienable rights of all members of the human family is
     the foundation of freedom, justice and peace in the world,

     Whereas disregard and contempt for human rights have resulted in barbarous acts which have outraged the conscience of
     mankind, and the advent of a world in which human beings shall enjoy freedom of speech and belief and freedom from
     fear and want has been proclaimed as the highest aspiration of the common people,

     Whereas it is essential, if man is not to be compelled to have recourse, as a last resort, to rebellion against tyranny and
     oppression, that human rights should be protected by the rule of law,

     Whereas it is essential to promote the development of friendly relations between nations,

     Whereas the peoples of the United Nations have in the Charter reaffirmed their faith in fundamental human rights, in the
     dignity and worth of the human person and in the equal rights of men and women and have determined to promote social
     progress and better standards of life in larger freedom,

     Whereas Member States have pledged themselves to achieve, in co-operation with the United Nations, the promotion of
     universal respect for and observance of human rights and fundamental freedoms,

     Whereas a common understanding of these rights and freedoms is of the greatest importance for the full realization of this
     pledge,

Now, Therefore THE GENERAL ASSEMBLY proclaims THIS UNIVERSAL DECLARATION OF HUMAN
RIGHTS as a common standard of achievement for all peoples and all nations, to the end that every individual and every organ
of society, keeping this Declaration constantly in mind, shall strive by teaching and education to promote respect for these rights
and freedoms and by progressive measures, national and international, to secure their universal and effective recognition and
observance, both among the peoples of Member States themselves and among the peoples of territories under their jurisdiction.

Article 1.

     All human beings are born free and equal in dignity and rights.They are endowed with reason and conscience and should
     act towards one another in a spirit of brotherhood.

Article 2.

     Everyone is entitled to all the rights and freedoms set forth in this Declaration, without distinction of any kind, such as
     race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status.
     Furthermore, no distinction shall be made on the basis of the political, jurisdictional or international status of the country
     or territory to which a person belongs, whether it be independent, trust, non-self-governing or under any other limitation
     of sovereignty.

Article 3.

     Everyone has the right to life, liberty and security of person.

Article 4.

     No one shall be held in slavery or servitude; slavery and the slave trade shall be prohibited in all their forms.

Article 5.

     No one shall be subjected to torture or to cruel, inhuman or degrading treatment or punishment.

Article 6.

     Everyone has the right to recognition everywhere as a person before the law.

Article 7.

     All are equal before the law and are entitled without any discrimination to equal protection of the law. All are entitled to
     equal protection against any discrimination in violation of this Declaration and against any incitement to such
     discrimination.

Article 8.

     Everyone has the right to an effective remedy by the competent national tribunals for acts violating the fundamental rights
     granted him by the constitution or by law.

Article 9.

     No one shall be subjected to arbitrary arrest, detention or exile.

Article 10.

     Everyone is entitled in full equality to a fair and public hearing by an independent and impartial tribunal, in the
     determination of his rights and obligations and of any criminal charge against him.

Article 11.

     (1) Everyone charged with a penal offence has the right to be presumed innocent until proved guilty according to law in a
     public trial at which he has had all the guarantees necessary for his defence.

     (2) No one shall be held guilty of any penal offence on account of any act or omission which did not constitute a penal
     offence, under national or international law, at the time when it was committed. Nor shall a heavier penalty be imposed
     than the one that was applicable at the time the penal offence was committed.

Article 12.

     No one shall be subjected to arbitrary interference with his privacy, family, home or correspondence, nor to attacks upon
     his honour and reputation. Everyone has the right to the protection of the law against such interference or attacks.

Article 13.

     (1) Everyone has the right to freedom of movement and residence within the borders of each state.

     (2) Everyone has the right to leave any country, including his own, and to return to his country.

Article 14.

     (1) Everyone has the right to seek and to enjoy in other countries asylum from persecution.

     (2) This right may not be invoked in the case of prosecutions genuinely arising from non-political crimes or from acts
     contrary to the purposes and principles of the United Nations.

Article 15.

     (1) Everyone has the right to a nationality.

     (2) No one shall be arbitrarily deprived of his nationality nor denied the right to change his nationality.

Article 16.

     (1) Men and women of full age, without any limitation due to race, nationality or religion, have the right to marry and to
     found a family. They are entitled to equal rights as to marriage, during marriage and at its dissolution.

     (2) Marriage shall be entered into only with the free and full consent of the intending spouses.

     (3) The family is the natural and fundamental group unit of society and is entitled to protection by society and the State.

Article 17.

     (1) Everyone has the right to own property alone as well as in association with others.

     (2) No one shall be arbitrarily deprived of his property.

Article 18.

     Everyone has the right to freedom of thought, conscience and religion; this right includes freedom to change his religion or
     belief, and freedom, either alone or in community with others and in public or private, to manifest his religion or belief in
     teaching, practice, worship and observance.

Article 19.

     Everyone has the right to freedom of opinion and expression; this right includes freedom to hold opinions without
     interference and to seek, receive and impart information and ideas through any media and regardless of frontiers.

Article 20.

     (1) Everyone has the right to freedom of peaceful assembly and association.

     (2) No one may be compelled to belong to an association.

Article 21.

     (1) Everyone has the right to take part in the government of his country, directly or through freely chosen representatives.

     (2) Everyone has the right of equal access to public service in his country.

     (3) The will of the people shall be the basis of the authority of government; this will shall be expressed in periodic and
     genuine elections which shall be by universal and equal suffrage and shall be held by secret vote or by equivalent free
     voting procedures.

Article 22.

     Everyone, as a member of society, has the right to social security and is entitled to realization, through national effort and
     international co-operation and in accordance with the organization and resources of each State, of the economic, social
     and cultural rights indispensable for his dignity and the free development of his personality.

Article 23.

     (1) Everyone has the right to work, to free choice of employment, to just and favourable conditions of work and to
     protection against unemployment.

     (2) Everyone, without any discrimination, has the right to equal pay for equal work.

     (3) Everyone who works has the right to just and favourable remuneration ensuring for himself and his family an existence
     worthy of human dignity, and supplemented, if necessary, by other means of social protection.

     (4) Everyone has the right to form and to join trade unions for the protection of his interests.

Article 24.

     Everyone has the right to rest and leisure, including reasonable limitation of working hours and periodic holidays with pay.

Article 25.

     (1) Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family,
     including food, clothing, housing and medical care and necessary social services, and the right to security in the event of
     unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control.

     (2) Motherhood and childhood are entitled to special care and assistance. All children, whether born in or out of
     wedlock, shall enjoy the same social protection.

Article 26.

     (1) Everyone has the right to education. Education shall be free, at least in the elementary and fundamental stages.
     Elementary education shall be compulsory. Technical and professional education shall be made generally available and
     higher education shall be equally accessible to all on the basis of merit.

     (2) Education shall be directed to the full development of the human personality and to the strengthening of respect for
     human rights and fundamental freedoms. It shall promote understanding, tolerance and friendship among all nations, racial
     or religious groups, and shall further the activities of the United Nations for the maintenance of peace.

     (3) Parents have a prior right to choose the kind of education that shall be given to their children.

Article 27.

     (1) Everyone has the right freely to participate in the cultural life of the community, to enjoy the arts and to share in
     scientific advancement and its benefits.

     (2) Everyone has the right to the protection of the moral and material interests resulting from any scientific, literary or
     artistic production of which he is the author.

Article 28.

     Everyone is entitled to a social and international order in which the rights and freedoms set forth in this Declaration can be
     fully realized.

Article 29.

     (1) Everyone has duties to the community in which alone the free and full development of his personality is possible.

     (2) In the exercise of his rights and freedoms, everyone shall be subject only to such limitations as are determined by law
     solely for the purpose of securing due recognition and respect for the rights and freedoms of others and of meeting the
     just requirements of morality, public order and the general welfare in a democratic society.

     (3) These rights and freedoms may in no case be exercised contrary to the purposes and principles of the United
     Nations.

Article 30.

     Nothing in this Declaration may be interpreted as implying for any State, group or person any right to engage in any
     activity or to perform any act aimed at the destruction of any of the rights and freedoms set forth herein.

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  A Patient’s Bill of Rights

             A Patient's Bill of Rights was first adopted by the American Hospital
                                      Association in 1973.

            This revision was approved by the AHA Board of Trustees on October 21, 1992.

          Introduction

          Effective health care requires collaboration between patients and physicians and other health care
          professionals. Open and honest communication, respect for personal and professional values, and
          sensitivity to differences are integral to optimal patient care. As the setting for the provision of health
          services, hospitals must provide a foundation for understanding and respecting the rights and
          responsibilities of patients, their families, physicians, and other caregivers. Hospitals must ensure a health
          care ethic that respects the role of patients in decision making about treatment choices and other aspects
          of their care. Hospitals must be sensitive to cultural, racial, linguistic, religious, age, gender, and other
          differences as well as the needs of persons with disabilities.

          The American Hospital Association presents A Patient's Bill of Rights with the expectation that it will
          contribute to more effective patient care and be supported by the hospital on behalf of the institution, its
          medical staff, employees, and patients. The American Hospital Association encourages health care
          institutions to tailor this bill of rights to their patient community by translating and/or simplifying the
          language of this bill of rights as may be necessary to ensure that patients and their families understand their
          rights and responsibilities.

          Bill of Rights

          These rights can be exercised on the patient’s behalf by a designated surrogate or proxy decision maker if
          the patient lacks decision-making capacity, is legally incompetent, or is a minor.

            1.The patient has the right to considerate and respectful care.

            2.The patient has the right to and is encouraged to obtain from physicians and other direct caregivers
               relevant, current, and understandable information concerning diagnosis, treatment, and prognosis.

               Except in emergencies when the patient lacks decision-making capacity and the need for treatment
               is urgent, the patient is entitled to the opportunity to discuss and request information related to the
               specific procedures and/or treatments, the risks involved, the possible length of recuperation, and
               the medically reasonable alternatives and their accompanying risks and benefits.

               Patients have the right to know the identity of physicians, nurses, and others involved in their care,
               as well as when those involved are students, residents, or other trainees. The patient also has the
               right to know the immediate and long-term financial implications of treatment choices, insofar as
               they are known.

            3.The patient has the right to make decisions about the plan of care prior to and during the course of
               treatment and to refuse a recommended treatment or plan of care to the extent permitted by law
               and hospital policy and to be informed of the medical consequences of this action. In case of such
               refusal, the patient is entitled to other appropriate care and services that the hospital provides or
               transfer to another hospital. The hospital should notify patients of any policy that might affect patient
               choice within the institution.

            4.The patient has the right to have an advance directive (such as a living will, health care proxy, or
               durable power of attorney for health care) concerning treatment or designating a surrogate decision
               maker with the expectation that the hospital will honor the intent of that directive to the extent
               permitted by law and hospital policy.

               Health care institutions must advise patients of their rights under state law and hospital policy to
               make informed medical choices, ask if the patient has an advance directive, and include that
               information in patient records. The patient has the right to timely information about hospital policy
               that may limit its ability to implement fully a legally valid advance directive.

            5.The patient has the right to every consideration of privacy. Case discussion, consultation,
               examination, and treatment should be conducted so as to protect each patient's privacy.

            6.The patient has the right to expect that all communications and records pertaining to his/her care
               will be treated as confidential by the hospital, except in cases such as suspected abuse and public
               health hazards when reporting is permitted or required by law. The patient has the right to expect
               that the hospital will emphasize the confidentiality of this information when it releases it to any other
               parties entitled to review information in these records.

            7.The patient has the right to review the records pertaining to his/her medical care and to have the
               information explained or interpreted as necessary, except when restricted by law.

            8.The patient has the right to expect that, within its capacity and policies, a hospital will make
               reasonable response to the request of a patient for appropriate and medically indicated care and
               services. The hospital must provide evaluation, service, and/or referral as indicated by the urgency
               of the case. When medically appropriate and legally permissible, or when a patient has so
               requested, a patient may be transferred to another facility. The institution to which the patient is to
               be transferred must first have accepted the patient for transfer. The patient must also have the
               benefit of complete information and explanation concerning the need for, risks, benefits, and
               alternatives to such a transfer.

            9.The patient has the right to ask and be informed of the existence of business relationships among
               the hospital, educational institutions, other health care providers, or payers that may influence the
               patient's treatment and care.

           10.The patient has the right to consent to or decline to participate in proposed research studies or
               human experimentation affecting care and treatment or requiring direct patient involvement, and to
               have those studies fully explained prior to consent. A patient who declines to participate in research
               or experimentation is entitled to the most effective care that the hospital can otherwise provide.

           11.The patient has the right to expect reasonable continuity of care when appropriate and to be
               informed by physicians and other caregivers of available and realistic patient care options when
               hospital care is no longer appropriate.

           12.The patient has the right to be informed of hospital policies and practices that relate to patient care,
               treatment, and responsibilities. The patient has the right to be informed of available resources for
               resolving disputes, grievances, and conflicts, such as ethics committees, patient representatives, or
               other mechanisms available in the institution. The patient has the right to be informed of the
               hospital's charges for services and available payment methods.

          The collaborative nature of health care requires that patients, or their families/surrogates, participate in
          their care. The effectiveness of care and patient satisfaction with the course of treatment depend, in part,
          on the patient fulfilling certain responsibilities. Patients are responsible for providing information about past
          illnesses, hospitalizations, medications, and other matters related to health status. To participate effectively
          in decision making, patients must be encouraged to take responsibility for requesting additional information
          or clarification about their health status or treatment when they do not fully understand information and
          instructions. Patients are also responsible for ensuring that the health care institution has a copy of their
          written advance directive if they have one. Patients are responsible for informing their physicians and other
          caregivers if they anticipate problems in following prescribed treatment.

          Patients should also be aware of the hospital's obligation to be reasonably efficient and equitable in
          providing care to other patients and the community. The hospital's rules and regulations are designed to
          help the hospital meet this obligation. Patients and their families are responsible for making reasonable
          accommodations to the needs of the hospital, other patients, medical staff, and hospital employees.
          Patients are responsible for providing necessary information for insurance claims and for working with the
          hospital to make payment arrangements, when necessary.

          A person's health depends on much more than health care services. Patients are responsible for
          recognizing the impact of their life-style on their personal health.

          Conclusion

          Hospitals have many functions to perform, including the enhancement of health status, health promotion,
          and the prevention and treatment of injury and disease; the immediate and ongoing care and rehabilitation
          of patients; the education of health professionals, patients, and the community; and research. All these
          activities must be conducted with an overriding concern for the values and dignity of patients.
 
 

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H.R. 3605
                  PATIENTS' BILL OF RIGHTS ACT OF 1998
                                        SUMMARY
 
 
 

                                       ACCESS TO CARE

     Choice of Plans

     Choice is one of the key components of consumer satisfaction with the health system. The Democratic bill
     would allow a limited point of service option (POS) for employees who are offered only a closed panel
     HMO. The health plan, not the employer, would be required to make the POS available, and the employer
     would not be required to contribute to the point of service option.

     Adequacy of Provider Network

     Plans must have a sufficient number, distribution, and variety of providers to ensure that all enrollees
     receive covered services on a timely basis.

     Specialty Care

     Patients with special conditions must have access to providers who have the requisite expertise to treat
     their problem. The Democratic bill allows for referrals for enrollees to go out of the plan's network for
     specialty care (at no extra cost to the enrollee) if there is no appropriate provider available in the network
     for covered services.

     Chronic Care Referrals

     For individuals who are seriously ill or require continued care by a specialist, plans must have a process
     for selecting a specialist as a primary care provider and for accessing necessary specialty care without
     impediments.

     Women's Protections

     The Democratic bill extends important protections for women in managed care, including direct access to
     ob/gyn care and services and the ability to designate their ob/gyn as a primary care provider. The
     proposal also includes bills regarding mastectomy length-of-stay and breast reconstruction.

     Children's Protections

     The Democratic bill ensures that the special needs of children are met, including access to pediatric
     specialists.

     Continuity of Care

     Patients should be protected against disruptions in care because of a change in plan or a change in a
     provider's network status. The Democratic bill lays out guidelines for the limited continuation of treatment
     in these instances. There are specific protections for pregnancy, terminal illness, and institutionalization.

     Emergency Services

     Individuals should be assured that if they have an emergency, those services will be covered by their plan.
     The Democratic bill says that individuals must have access to emergency care, without prior authorization
     in any situation that a "prudent lay person" would regard as an emergency.

     Clinical Trials

     Access to clinical trials can be the only hope left for individuals with serious and life-threatening diseases,
     especially when no standard treatment is effective. Plans must have a process for allowing certain
     enrollees to participate in a defined set of approved clinical trials and for covering the routine patient costs
     associated with these trials.

     Drug Formularies

     Prescription medications can not be one-size-fits all. For plans that use a formulary, the plan must have a
     process for beneficiaries to access medications that are not on the formulary when medically indicated.
     And, plan doctors and pharmacists must help in the formulary development.

     Non-discrimination

     Patients should not be discriminated against in their access to covered health care services. The
     Democratic bill prohibits plans from discriminating against their enrollees on a variety of factors including
     genetic information, sexual orientation, and disability. This provision does not affect issuance or pricing of
     policies.

                                         INFORMATION

     Health Plan Information

     Informed decisions about health care options can only be made by consumers who have access to
     uniform, comparable information about health plans, plan policies, and providers. This bill requires
     managed care plans to provide that information.

     Confidentiality

     Patients need to know that their medical records are kept confidential. This bill says that health plans must
     have appropriate safeguards to ensure confidentiality, update records in a timely and accurate fashion,
     and allow patients access to their records. It does not address the broad issue of medical records
     confidentiality, which will require separate legislation.

     Ombudsman

     The health care marketplace can be confusing. The Democratic bill authorizes an ombudsman program in
     each state to assist consumers in understanding health insurance options, filing appeals and grievances,
     etc.

                           QUALITY ASSURANCE AND IMPROVEMENT

     Quality Assurance

     In order to constantly improve the quality of health care provided, plans should be monitoring care given to
     their enrollees, especially with regard to at-risk or chronically ill populations. The Democratic bill requires
     plans to have a quality assurance program to monitor care and improve care.

     Data Collection

     The Democratic bill requires plans to collect data in order to monitor the quality of care provided to
     enrollees. Data must be in a standard format so comparisons can be made across all plans.

     Advisory Board

     A private/public Advisory Board would be established to advise the Secretary on the standardized
     minimum data set and other activities to improve health care quality.

     Provider Selection

     Plans should not discriminate against providers when selecting them for the network. The Democratic bill
     requires plans to have a written, objective process for provider selection and forbids discrimination
     against providers based on license, location or patient base. Plans would, however, be able to limit the
     number and mix of providers as needed to serve enrollees for covered benefits.

     Utilization Review

     When a plan is reviewing the medical decisions of its practitioners, it should do so in a fair and rational
     manner. The Democratic bill lays out basic criteria for a good utilization review program: physician
     participation in development of review criteria, administration by appropriately qualified professionals,
     timely decisions, and ability to appeal.

                                   GRIEVANCE AND APPEALS

     Internal Grievances

     Patients need to be able to appeal denials of care and voice concerns about their plans. They also should
     have their concerns addressed in a timely manner. Plans must maintain an internal grievance process that
     is expedient and conducted by appropriately credentialed individuals. There also must be an expedited
     process for special circumstances.

     External Grievances

     For cases of sufficient seriousness or beyond a certain monetary threshold, individuals must have access
     to an external, independent body with the capability and authority to resolve these cases. In the
     Democratic bill, States and the Department of Labor must establish an independent external appeals
     process for the plans under their respective jurisdictions. The plan must pay the costs of the process, and
     any decision is binding on the plan. Plans may not retaliate against providers who advocate on behalf of
     their patients nor against patients who choose to access the appeals process.

                     PROTECTING THE PROVIDER-PATIENT RELATIONSHIP

     Anti-Gag and Provider Incentive Plans

     Consumers have the right to know all of their treatment options. The Democratic bill prohibits plans from
     gagging providers. It protects providers in these situations from retribution, and protects providers who
     report quality problems to appropriate authorities from retribution. It also prohibits plans from providing
     incentives to providers to limit medically necessary services.

     Provider Due Process

     Providers should receive reasonable notice of termination and should be allowed to review any
     information behind the termination decision and appeal such adverse determinations within the plan.

     Medical Necessity

     Health plans should not be allowed to place arbitrary limits on covered services. Treatment decisions
     should be made in accordance with generally accepted principles and standards of professional medical
     practice. The Democratic bill applies this standard for medically necessary care.

     Insurer Liability

     Although health plans are increasingly involved in health care decisions, the Employee Retirement Income
     Security Act (ERISA) preempts individuals in employer-sponsored plans from holding health plans legally
     accountable for decisions to limit care that ultimately cause harm. Presently, an injured person can only
     recover the dollar value of the benefit that was denied. The Democratic bill includes a provision that would
     allow State law to determine whether or not a health care beneficiary can bring a state cause of action
     against health plan administrators who cause harm through their actions. The provision also protects
     employers from liability when they were not involved in the decision.
 
 

                              Prepared by the Democratic staff of the Commerce Committee
                              2322 Rayburn House Office Building, Washington, DC 20515
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Part Two, Mainland Journey

12/10/00
It is 7:07 AM. After landing in San Francisco, was sitting near an information booth, resting, had been there no more than 5 minutes when a tall man with silver curly hair got up from his chair many rows over, and sat across from me 3 chairs down. The chairs were black vinyl with armrests, in rows. There were only 4 people in the large room. It was a little past 9 PM. There was no sign on me, or my chair, (had planned to hang sign saying "Are You Forgotten?" to attract folks ready to spill their stories into my willing, listening, lap. Ended up never having to do this for entire length of trip. It was as if some Divine Voice spoke to and called people to me, one right after another, without end at times.)  yet........
Yet.............
I looked at him. He smiled, not broad- but it qualified. I smiled back- polite but with the weary travelers dull patina. Then, we started talking.