A RED LETTER DAY
The next item on the agenda was letting me speak audibly again. The doctors
weren’t prepared to remove my trache tube for good yet. They felt the need
to have access to my lungs in case they became congested or, worse, failed
again. There is a trache called a “talking trache” that has an air bubble
around it that when inflated, prevents air from passing from the lungs through
my nose and mouth. In this mode, I could be suctioned to remove secretions
that would still be gathering in my lungs.
When the tube is deflated and the trache tube is closed, the air passes
from my lungs around it and through my larynx, voice box, and mouth allowing
me to speak. So he made the switch and closed the tube and said, “Now try
to talk.”
Very carefully and quietly I spoke, "Testing. 1, 2, 3. Testing." And a
smile grew across my face.
I had the ability to speak again. Try to imagine this. I’d lost the ability
to move then the ability to speak, leaving only my sight, hearing, taste,
and smell. You may have seen those silly movies of the mad scientist who
has a collection of heads on a shelf. Imagine one fully aware and mute.
Why go to so much trouble and expense to keep a head alive? Therein lies
an immortal question. What is a man? Is a man what he says? What if he is
mute? Is a man what he does? What if he is paralyzed? Is it what he thinks?
What if he is simple minded or gets Alzheimer’s? What makes a life worth
keeping? Since I had all my faculties and was now breathing on my own, these
difficult questions were not addressed at that time... at least, not by me.
I’d seen Joni and others survive virtually totally paralyzed. If they can
do it, I can do it. I will survive.
I spent about two more weeks in ICU doing breathing excersizes by day --
building up my partially restored diaphragm strength -- and breathing with
a canula in my nose by night. You’ve seen these. It’s a tiny clear tube
that comes from a designated hole in the wall (or oxygen tank beside you)
and wraps around your ears and under your nose to supply oxygen to those
with weak lungs. In a couple of weeks I talked Dr. Bregman into letting me
go without it. They are terribly uncomfortable. It made my nose itch all
the time and my paralyzed arms could not reach up to relieve me. So I was
constantly twitching my nose as though I was practicing for the male version
of Bewitched.
When he finally removed it, I was ready to be moved out of ICU and into
a room in the Critical Care Unit. That was a Red Letter Day.