A Bit About Me
I have thought for a long time about whether or not I should write
a little about myself. To be honest, as I am writing this, I don't
know whether or not it will go on my site. It seems rather pointless
to write a story with no beginning, and no end. I built this site to
offer some sort of consolation for other sufferers from eating
disorders- when I was first diagnosed the internet wasn't in every
household as it is now, and there was little information available
from a sufferers point of view. What I could find was rather
dis-heartening- there were no answers, no 'miracle cures' and me
being barely twelve years old found the whole thing rather daunting.
I read everything I could find- the statistics, the causes, the
symptoms, the physical complications...and found very little in the
way of hope or condolances. Most of the literature available was
written from a professionals perspective and aimed at parents. While
this was most probably a great comfort to my family, there was very
little available for myself, the sufferer.
I am now a lot older. Having been through various treatment
programs throughout the UK and seen a specialist in New York, I
still have no answers. I do however have the knowledge that
ultimately, it has to be ME who finds the answers. Sounds obvious
now, but when I first went into an inpatient unit, I believed that I
would spend a couple weeks there, and come out able to carry on as I
had been before I became ill. And I did. And I failed.
Why? Because I was treated with food. My treatment team saw the
problem as a 'physical' one. (Why they put me in a psychiatric unit
is still unclear as I was given no form of psychiatric treatment). I
left the unit having regained some of the weight I had lost. My
'starvation' routine had been interrupted briefly, but mentally
nothing had changed. I was still depressed...still
'voiceless'...still unable to express myself...still unable to see
that there was more to life than what I weighed. While physically I
was in better shape, the problem wouldn't go away as long as it was
only the symptoms being treated.
This happened several times- I was transferred from unit to unit,
consultant to consultant. I was suicidal, I had no motivation, I
hated myself. Eventually I was sent 200 miles away from home because
there were no units nearby wiilling to treat me. At the time, I felt rather
proud- I had succeeded. I was 'too ill'. I had achieved something. I
was the 'worst' case. Twisted logic, but that was (and often still
is) the way my mind works. Again, the admission failed to 'cure' me. By
that point I was past caring- so many doctors had given up hope and
it seemed only a matter of time before this unit did too. I absconded
at every chance. I fought them all the way. I didn't want to get
better...so I didn't. That is what it comes down to ultimately-
recovery is an option. It is there when you are ready to take it- it
is HARD work, but it is ALWAYS available to anybody who wants it
badly enough.
During the last few years there have been phases when I want to
recover more than anything. There have also been times when I don't.
I come up with all sorts of excuses as to why I can't yet..."not sick
enough" seems to be a favourite- not just for me, but sufferers
everywhere. When I am asked to define "sick enough" I have no
answers. Maybe weight is an issue...if I get to such-and-such a
weight then recovery will somehow be justified in my mind. Maybe not.
Why? Because even I know that NO weight will ever be low enough.
As Mary Hornbacher (author of 'WASTED') put it, "The absolute
truism of eating disorders is that you never believe you are thin
enough. Whereas most people set out to lose a few pounds- say five,
ten, fifteen- and stop when they get there, the anorexic sets out to
lose ten pounds and then says, well, maybe fifteen. She loses
fifteen and says twenty, loses twenty, says thirty, loses thirty, says
fourty, loses the fourty and dies. Oops. She hadn't meant to die. She
just wanted to see what would happen. Wanted to see how far she could
go. And then couldn't quite bring herself to break the fall."
It never fails to amaze me how caught up I have become with this disease- I cannot
for the life of me get to grips with atomic theory or photosynthesis,
and yet I can tell you per second how many calories you are
burning...how many steps you have to climb to burn off the calories
in a cappuccino...how much fat is in a slice of pizza. I cannot tell
you what I did when I went on holiday to Dubai a couple years ago, and yet I
can tell you everything I ate (or didn't eat) during the whole
holiday.
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