WELCOME TO MY LITTLE NICHE!
Phil Collins - Against All Odds
An obsession of mine is learning all I can about Type 1 Diabetes. The
reason for this is our Granddaughter, Jessica, who's 11 years old. Jessica was
diagnosed at a very young age, 15 months. It breaks my heart to see what she has to go through each day, just to stay healthy and alive.
We are thankful for technology that allows her to have better diabetes management. We need a cure for this disease! I ask that you support diabetes cure research however you are able. I research diabetic related
websites for any information I can find about this disease. Jessica is our
little hero. She is the bravest kid I know! Jessica has to have multiple blood
sugar checks each day and insulin injections. Her meal plan is
different from most of us, including her friends and classmates, in that she must count ALL the carbohydrates
she eats and balance her food with insulin.
Jessica also has to have her blood sugar checks, insulin injections, meals and
snacks at specific times..she doesn't have the luxury of eating whenever or
whatever she would like, like most of us.
Her sister, Allison who is 8 years old, is the best little sister anyone could ever have.
She's very compassionate and loves her big sister, Jessica, so much! Allison tries very hard to help Jessica with her diabetes management.
We have many friends to thank for their support. Most are folks
in similar situations, they too have a child/grandchild/or other relative with diabetes.
I have listed some of my favorite sites, stop by and visit these folks!
These are people who are dedicated to making life easier for children and families living with
diabetes, until there is a CURE.
Jessica has lived with diabetes around 3570 days of her young life. She has had approximately 18,160 finger sticks (blood sugar checks) and approximately 7,000 insulin injections. All this and she is only 11 years old. These estimates are conservative numbers. When she is sick, there are more injections and more finger sticks. |
Allison, Jessica's little sister has something to say!
Jessica and Allison
Why Should You Care About A Cure for Diabetes?
Because diabetes related health care costs
per year is estimated to be in excess of $138
billion dollars.
Because the NIDDK for 1998 has allocated a
mere $5 million toward the goal of cure
research: beta cell encapsulation and
transplantation.
Because 150 million people worldwide have
diabetes and by the year 2000 that number
will be well over 200,000,000.
Because diabetes is the primary cause of new
blindness.
Because diabetes is the leading cause of end
stage renal disease (kidney failure).
Because nearly 70% of all diabetics will have
some form of neuropathy (nerve disease)
during their lifetime and many will undergo
amputations.
Because 178,000 Americans die from
diabetes each year yet the actual death toll is
even higher because diabetes seldom gets
blamed for the havoc it causes and the deadly
conditions that result from it which is why I
call it the "insidious" disease-- too many
people consider diabetes to be just a "simple
little sugar problem" and it is not...
Because diabetics are 250% more likely to
suffer a stroke in their lifetime.
Because a child diagnosed at age 3 will have
spent well over $600,000 just on diabetes
maintenance over a lifetime.
Because a diagnosis of diabetes reduces a
diabetic's life span by an average of 20 years
Because diabetes kills more people than
AIDS or breast cancer combined yet receives
only a tiny fraction of the research dollars.
*Most of the above figures were taken from
the Juvenile Diabetes Foundation
International's fact sheet.
The following is quoted from "The
Insulin-Free World Foundation":
"By the year 2000 there will be 200 million
diabetics in the world, of whom 18 million
will depend on insulin injections for survival.
In the next 24 hours 1,800 Americans alone will be
diagnosed with diabetes; 65 will be blinded by it; 55 will
suffer kidney failure; 150 will have amputations-- and in the
same 24 hours 1,000 people in the US alone
will die from diabetes."
JUVENILE DIABETES FOUNDATION INTERNATIONAL
THE DIABETES RESEARCH FOUNDATION
New Multimillion-Dollar
Center to Create a
Fast Track for
Diabetes Cure
Focused on Islet Cell
Transplantation
Diabetes Research Initiative
Funds 32 Scientists at
Harvard
Juvenile Diabetes Foundation--Government Relations
Legislative Alert
Advocacy
JDF Government
Relations Update - Washington Report
The Only Remedy Is a Cure Campaign
JDF's Walk to Cure Diabetes
BECOME A DELEGATE FOR DIABETES
In 1994 the American Diabetes Association established its Delegates for Diabetes advocacy
program. Today more than 8,000 activists around the country participate in this program by
writing, calling and meeting with public policymakers about the needs of people with diabetes.
Help educate policymakers about the need for increased funding for diabetes research, better
health insurance coverage and an end to discrimination against people with diabetes.
Become a delegate for diabetes today!
This link will take you to the online site so that you may add your name to the list of Delegates for Diabetes Advocacy.
Delegates for Diabetes Advocacy
Give Diabetes A Face
Photocard Campaign
A Picture is Worth a Thousand Words
Please participate in the Insulin-Free World Foundations Photocard Campaign.For information visit
INSULIN FREE WORLD
The Insulin-Free World Foundation has just added a discussion forum to
Insulin-Free World On-line. Please drop by and participate in the conversation.
Insulin-Free World On-line
Check out the page at Insulin-Free World's website about
The Congressional Diabetes Caucus See if the representatives from your state are on the list.
If not, it's time to write them a letter! Become an active advocate!
MAKING NOISE TO
CURE DIABETES
This campaign was inspired by the love of Stacey Harmis for her son,
Jack Harmis.
Proudly sponsored by the Insulin-Free World Foundation
Diabetes Awareness Postage
Stamp Campaign
Margaret Himelfarb. mother of 21-year-old Michael,
diagnosed when he was four, is leading an
effort to convince the U.S. Postal Service
to issue a diabetes awareness postage stamp.
A copy of her letter can be found at
Children With
Diabetes
JDF's POSTAGE STAMP CAMPAIGN
READ ABOUT LIFE WITH DIABETES IN
RUSSIA
Written By Svetlana Zavyalova, Sergey's Mom
lana@nchcapital.com
LILLY CARES
Any family that has a problem affording insulin can call this
number
1-800-545-6962. Lilly offers assistance.
DIABETES YOUTH FOUNDATION of INDIANA
General H. Norman Schwarzkopf and Randall L. Tobias
Unveil an Interactive CD-ROM Game for Children With
Diabetes. This CD is FREE and can be ordered online.
STARBRIGHT represents a collaboration between pediatric medicine,
entertainment and advanced technology, working together to create projects that
empower seriously ill children to combat the medical and emotional challenges that they
face on a daily basis.
I want to thank my husband, Don. Without his encouragement, I would NEVER
have gotten on a computer. He understands my need to learn all I can about diabetes, because of Jessica. He's the best!
Help find a missing
child
Call 1-800-THE-LOST (1-800-843-5678) if you've seen this
child
I support the work of the National Center for Missing and
Exploited Children
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