| Name: | Alex Fonseca |
| E-mail address: | alexrec@terra.com.br |
| Signed on: | Saturday, November 11, 2000 at 6:58 |
| Comments: Kendra, May God bless you and your family. Thank you very much for this web page. Very useful information. My wife and I detected the problem on the 8th week. She's had a D&C performed on yesterday, 11/09/2000. As you know, doctors don't tell much. Your site came as a great relief. Now we know how to proceed. We believe God will lead us through all this. Thank you again, Alex and family |
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| Name: | Valerie Martin |
| Signed on: | Monday, November 13, 2000 at 8:53 |
| Comments: Thank you so much for your story. I have just returned home today from my d and c with the resultant news that it was a molar pregnancy.....I have a review appointment next week, scared and feel so alone but I took a great deal of comfort from your story....good luck | |
| Name: | Valerie Martin |
| E-mail address: | victoria507@hotmail.com |
| Signed on: | Monday, November 13, 2000 at 9:25 |
| Comments: some words to share...... forget-me-not we are the ones god chose to take we are the ones you could not wake we are the buds you see on the trees we are the ones whose spirit runs free we are the bulbs you plant in spring we are the sounds when you hear the birds sing we are the ones that could not cry we are the ones He chose to die our tears are the tips of the morning dew we are the ones that you never knew we are the rain that's left on the grass the test for life we did not pass we are the bees that you hear hum we had no voice to call you mum we are the forest, that fragrant wood to be with you, if only we could we are the sun, the clouds, the moon the end of a moment, coming too soon we are the stars that shine above we are the ones you will always love forget-me-nots that's what we are we grow in your garden not very far we are a heart broken in two we are the ones who belong to you we are the ones you could not share we are the empty space you see there so really you see us in every way forget me not for every day |
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| Name: | Alexandra Shanks |
| E-mail address: | Alex@Shanksy.co.uk |
| Signed on: | Monday, November 13, 2000 at 12:33 |
| Name: | Kammy Leslie |
| E-mail address: | markamkids@sympatico.ca |
| Signed on: | Thursday, November 16, 2000 at 7:33 |
| Comments: : I too have lost a baby at 24 weeks gestation because of a molar pregnancy with a co-existing fetus. This was followed by chemo and a hysterectomy. | |
| Name: | Kim Little |
| E-mail address: | xtralittle@yahoo.com |
| Signed on: | Thursday, November 16, 2000 at 10:05 |
| Comments: Thank you so much for sharing your experience! It is comforting to know that others know how you feel! Sincerely, Kim Little |
|
| Name: | William Kwan |
| Signed on: | Friday, November 17, 2000 at 7:58 |
| Name: | Sharon Mullins |
| E-mail address: | Sharon@lewiscounty.com |
| Signed on: | Saturday, November 18, 2000 at 7:16 |
| Name: | Jessica |
| Signed on: | Saturday, November 18, 2000 at 10:06 |
| Comments: I am very sorry and I don�t think babies like that should be forgotten. | |
| Name: | stacy wehmeyer |
| E-mail address: | wehmeyer@esn.net |
| Signed on: | Tuesday, November 21, 2000 at 8:55 |
| Comments: My name is Stacy and your story has really touched me. It was as if I were reading a story about my life. Me and my husband Bryan are going through the same thing you have. We live in Goldsboro, North Carolina. I am taking chemotherapy treatments in Greenville at ECU. My levels are at 19 so you have made me feel much better. I am concerned about how you have been since you are near your year mark. Please write me if you could. I too am a rare case in which only 5% get cancer. I hope that everything has worked out for you and your family. God Bless and I will keep you in my prayers. Thank you for your site. Sincerely Stacy Wehmeyer |
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| Name: | Lori Adams |
| E-mail address: | hpytrl5869@aol.com |
| Signed on: | Thursday, November 23, 2000 at 7:47 |
| Name: | TAQUESHA LANDERS |
| E-mail address: | rlander9@bellsouth.net |
| Signed on: | Saturday, November 25, 2000 at 2:07 |
| Comments: HELLO. MY NAME IS TAQUESHA LANDERS. I STAY IN SHREVEPORT LA. I�M A STUDENT AT FAIR PARK HIGH SCHOOL. I'VE NEVER HAD A BABY BUT HOPE TO HAVE ONE IN THE FUTURE.[NOT RUSHING] I'M SORRY ABOUT WHAT HAPPEN TO YOU AND YOUR CHILD. MY WORDS MIGHT NOT MEAN ANYTHING TO YOU. IT WAS PLACED ON MY HEART TO WRITE YOU. I NOT WRITING YOU TO TELL YOU I KNOW HOW YOU FEEL BECAUSE I DONT. I CAN ONLY IMAGINE.. I IMAGINE WHAT IF SOMETHING HAPPENED TO MY 3 YEAR OLD SISTER!! I WOULDN'T KNOW WHAT I'LL DO!!! BUT IF I LOST HER I LOST THE WORLD!!! I KNOW YOU PROBABLY FEEL LIKE THAT... GOD, WILL HELP YOU THROUGH!! ONLY THING YOU HAVE TO DO IS STEP OUT ON FAITH.. AND HE WILL MAKE A WAY. BUT YOU REALLY DIDN'T LOSE YOUR BABY FOR EVER. YOU JUST LOST HER FROM THIS SIN FULL WORLD. DO GOD'S WILL AND YOU WILL SEE HER AGAIN. I HOPE I LIFTED YOU SPIRIT A LITTLE. PLEASE DONT JUST LOOK AT THIS AND SAY SOMEONE IS PLAYING BECAUSE IM NOT. THIS COMES STRAIGHT FROM THE HEART. SINCERLY YOURS, TAQUESHA LANDERS |
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| Name: | dawn smith |
| Signed on: | Saturday, November 25, 2000 at 4:22 |
| Name: | Mandi Schutte |
| E-mail address: | minnie_s_00@yahoo.com |
| Signed on: | Sunday, November 26, 2000 at 9:58 |
| Comments: I know how it feels to lose a baby. I was 3months pregnant when I lost mine to molar pregnancy. It was really hard because my husband and I were trying for so long. It would be my parents first grandchild and they were really heartbroken, especially my dad. | |
| Name: | sofia |
| E-mail address: | 98209817@mmu.ac.uk |
| Signed on: | Tuesday, November 28, 2000 at 3:43 |
| Comments: HI! i'm 20 yrs olds and having become pregnant for the first time i suffered a miscarriage and was told that it was due to being a partial molar pregnancy. i went into hospital on November 1st 2000. Although i understand that i'm still young and there's plenty of time, as everyone keeps telling me, but it does not help take away the heartache i felt and still do feel. Being a student helps me keep my mind busy thus i'm not stressing myself out thinking about it all the time. I is the first time i'm actually openly talking about how i feel, although close members of my family and a friend know what happened. Up until now i haven't been back for any check ups, although my hospital has referred me to a specialist clinic who in time should be contacting me and then on a regular basis my water will be checked to see the levels of HCG in my body. Having been told all this in such a short space of time i felt quite scared and all alone. Reading about your emotion makes understand a lot of things, i am sorry for you having lost Nina. I pray for everyone�s future to be brighter and full of happiness. | |
| Name: | Amy Gartzke |
| E-mail address: | magda30@gotocrystal.net |
| Signed on: | Tuesday, November 28, 2000 at 8:32 |
| Name: | Mikki |
| E-mail address: | long1231@aol.com |
| Signed on: | Friday, December 1, 2000 at 6:23 |
| Comments: I recently had a molar pregnancy and when the doctor told me I didn't have a clue what he was talking about. Unfortunately it is more common than I first thought. My husband and I were desperately trying to conceive. When we found out we were pregnant we were so happy. My son (7yrs) was thrilled about being a big brother. It seems like all the sudden our dreams were shattered. It was my 3rd miscarriage. I talked with my pastor�s wife only to discover that her story was similar to mine. she had miscarried 4 times one being a molar pregnancy. My doctor also told me that my uterus was shaped as a heart no doctor had ever told me this before this makes it more difficult to carry a baby. The one thing that got us through this traumatic time was prayers and God�s love. I know my babies are in heaven now and I will do everything that I can to ensure that I spend eternity with them then I will be able to hold them. | |
| Name: | Stephanie R. |
| E-mail address: | stephjosh@yahoo.com |
| Signed on: | Friday, December 1, 2000 at 10:57 |
| Comments: On November 22, 2000 I attended a routine dr. visit and when no fetal heartbeat was detected, the preformed an ultrasound. They then quickly turned the monitor away from me. I knew something was wrong. They began to question me on the symptoms of my pregnancy. They then told me there is no baby in the sac. It is all kind of a blur; the doctor mentioned a molar pregnancy, blood work, chemo, cancer and WAIT 6 MONTHS to a YEAR to conceive again. What a nightmare, the d&c was preformed November 28, 2000. I am still having a hard time. My daughter (12 months) and husband are supportive and loving. I pray we will soon be blessed with a new pregnancy and another child to hold and love. | |
| Name: | Tanya Rugle |
| E-mail address: | jalyn36110@yahoo.com |
| Signed on: | Saturday, December 2, 2000 at 10:34 |
| Comments: I too also know how it feels and I hope that things get better. | |
| Name: | julie rohrback |
| E-mail address: | j_rohrback@hotmail.com |
| Signed on: | Saturday, December 2, 2000 at 10:56 |
| Comments: Thank you for sharing your experience with molar pregnancy with others. It has been very helpful to my family! | |
| Name: | LAC |
| Signed on: | Monday, December 4, 2000 at 4:39 |
| Name: | Sandi Sell |
| E-mail address: | SSELLCurly@aol.com |
| Signed on: | Monday, December 4, 2000 at 6:16 |
| Comments: At First I thought my daughter-in-law might possibly be having a Molar Pregnancy but thanks to your little Nina's web site I now know, (thank God) it is not. I really appreciate all of your information. | |
| Name: | LeeAnn Hathaway |
| E-mail address: | lhathawa@bsu.edu |
| Signed on: | Tuesday, December 5, 2000 at 7:08 |
| Comments: Thank you so much for your website & info on Molar Pregnancies. My 20 year old daughter was pregnant for her second baby. She had an ultrasound on apx 10/18/00 & there was a heartbeat & everything seemed to be fine, on apx 11/1/00 she had her 1st OB appt, the doctor could not hear the heartbeat by using his office equip, but did not seem that concerned since the heartbeat was heard 2 weeks earlier with the sonogram. He said it could be that she just wasn't far enough along to hear it without the advanced sonogram equipment. He re-scheduled her OB appt for 11/16/00 & still couldn't hear the heartbeat so he sent her for another sonogram, this time there was no heartbeat, but she was showing no signs of having a miscarriage. He sent her to an OBGYN Specialist the next day & they talked to her about doing the D&C procedure. This was scheduled for the following Tuesday 11/21/00. She was told she would have excessive bleeding for apx 1 week after the D&C but she only bled for 1 day & totally stopped. A few days went by & we got the results from the lab work they did on the fetus, it indicated she had a molar pregnancy. She had to go back on 11/29/00 for another blood test & this confirmed she is still carrying the molar pregnancy cell. At this point all we know is she has to go once a week every week to have a blood test & continue until like you had 3 consecutive negative tests. We are still pretty much in the dark about this whole situation, her 1st doctor appt since the D&C is 12/13/00 so hopefully we'll find out more then. Thank God for the internet & people like you who take the time to share their experiences & information. This has been a very dramatic experience for all of us. She was 13 weeks pregnant when the D&C was performed but the ultrasound the week before the fetus was at 8 1/2 weeks so from what the doctor told us she had been carrying a dead fetus for apx 4 weeks. I guess I'm just totally confused because from what I've read so far, the pregnancies have bleeding, there is no heartbeat ever heard & a few other symptoms that seems to be just the opposite from what my daughter has experienced. Hopefully we'll gain some knowledge of this at her doctors appt next week. Thanks & Happy Holidays, LeeAnn Hathaway |
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| Name: | Belinda Martinez |
| E-mail address: | mjluky7@aol.com |
| Signed on: | Tuesday, December 5, 2000 at 7:18 |
| Comments: Good luck with your next pregnancy. I'm sure you'll have your little girl. | |
| Name: | Antoinette |
| E-mail address: | fantasygirl629@yahoo.com |
| Signed on: | Tuesday, December 5, 2000 at 8:53 |
| Comments: I've just found out today that I may have a molar pregnancy and it is truly devistating. The doctor that examined me had the bed side manner of a goat and didn't really tell me anything. The lady performing to ultrasound was worse. This honestly has to be one of the worst days in my life. My fiance says he understands, but he's miles away at college. Thank you for having this site for people like me to read. I wish you much success in having another baby and good luck in the future. | |
| Name: | Katina Rice |
| E-mail address: | katjones13@aol.com |
| Signed on: | Tuesday, December 5, 2000 at 11:30 |
| Name: | Shalae Barney |
| E-mail address: | shalaeb@hotmail.com |
| Signed on: | Tuesday, December 5, 2000 at 12:13 |
| Comments: Thank you for sharing your story. | |
| Name: | Siobhan |
| E-mail address: | sjmurphy_@excite.com |
| Signed on: | Thursday, December 7, 2000 at 9:26 |
| Comments: I had a Molar pregnancy (partial) | |
| Name: | Suzanne |
| E-mail address: | sschilling@hampshire.edu |
| Signed on: | Thursday, December 7, 2000 at 10:50 |
| Comments: I'm glad to find this site. I found out I had a partial molar pregnancy on 10/13 - I was 14 weeks pregnant at the time. I had no symptoms of miscarriage and was completely in shock. I had a D&C the same day. I did not bleed after the surgery until a week and a half after, I then bled for about 4 weeks. I have had a blood test weekly since the D&C to check my HCG and just found out today it is at 0. The Dr. has asked that I have my blood checked monthly now for 6 months. I am looking for information about when to try again to conceive. My doctor originally told me 1 month after my HCG was at 0. She then consulted with another doctor who said 6 months. I would like to know more about why - I can't seem to get a concise answer from the OBGYN. Any info would be appreciated. Thanks. | |
| Name: | Karla Dodge |
| E-mail address: | dodgepk@netzero.net |
| Signed on: | Friday, December 8, 2000 at 1:19 |
| Comments: I just found out today that my 12 week pregnancy was a partial molar pregnancy. However, I had ultrasound pictures of a formed baby and a heartbeat of 156. I had my blood drawn for the first time this a.m. I have never heard of this condition and certainly did not realize one could get cancer from being pregnant. I am just beginning my travels on this bumpy road, but with sites like yours, I think I will survive. Thank You! | |
| Name: | GINA SMITH |
| E-mail address: | GINA.SMITH@SSMB.COM |
| Signed on: | Friday, December 8, 2000 at 9:10 |
| Comments: I TOO HAD A MOLAR PREGNANCY AND I'M DESPERATING TRYING TO GET PAST IT. IT'S THE ON-GOING DOCTOR'S APPOINTMENT AND THE CONSTANT REMINDERS OF MY LOSS THAT I CAN'T TAKE. EVEN THOUGH MY BLOOD LEVEL IS AT 8.4 THIS WEEK, I JUST CAN'T STAND THE WAITING. ESPECIALLY WHEN I FOUND OUT THAT I HAD TO WAIT 6 MONTHS BEFORE MY HUSBAND AND I COULD TRY AGAIN. AND THE SIX MONTH WOULD'VE BEEN WHEN MY BABY WAS BORN BECAUSE I WAS PREGNANT IN AUGUST! I THINK I'M AT THE POINT IN WHICH I WANT TO TALK ABOUT IT TO OTHER S AND SEE HOW THEY'RE FEELING. E-MAIL IF YOU CAN. AND I AM TRULY SORRY FOR YOUR LOSS TOO & AM CURIOUS ON WHERE YOU ARE TODAY AS FAR AS TRYING TO CONCEIVE AGAIN. REGARDS, GINA |
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| Name: | Leah Niehues |
| E-mail address: | ljn6943@ksu.edu |
| Signed on: | Saturday, December 9, 2000 at 8:47 |
| Comments: I just wanted to say how helpful your website has been. I was 14 wks. along and just had a D&C two days ago, Dec.7, and the dr. said she was 90% sure it was a complete molar pregnancy. Reading your experience and others is helping me through the waiting period. Sorry for your loss and good luck in the future. | |
| Name: | Terri Lamprecht |
| E-mail address: | mtlamprecht@msn.com |
| Signed on: | Monday, December 11, 2000 at 6:55 |
| Comments: I had a Molar Pregnancy 2 years ago. Your story brought back the tears. Thank you | |
| Name: | lakrisha sikes |
| E-mail address: | lakrishasikes@yahoo.com |
| Signed on: | Tuesday, December 12, 2000 at 2:59 |
| Comments: I saw on the internet what happend and I decided to look into it. I am very sorry about your loss. I hope you and your family are blessed with another child but you know your first will always be in your heart. love, lakrisha sikes |
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| Name: | wendy morehouse |
| E-mail address: | cyndle@nbnet.nb.ca |
| Home Web Site: | http://nbnet.nb.com |
| Signed on: | Wednesday, December 13, 2000 at 3:01 |
| Comments: I could not stop the tears when I read your story. I went through the same thing Nov. 23/99. I never thought I would make it threw that day. I was 16wks along but, after the DMC recovered, but it felt like my whole world was falling apart. I hid for along time away from everyone grieving my little angle I would never hold or tell that I love. I could not go out and see women pregnant, it just seemed they were everywhere. I was so angry at the world for all the people who did not deserve babies and still could have them, what did I do wrong why was I being punished. I pray that your dream will come true and I wish you the best of luck. Yours truly Wendy Morehouse |
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| Name: | Melissa Hanney |
| E-mail address: | spooner97@juno.com |
| Signed on: | Wednesday, December 13, 2000 at 5:58 |
| Comments: It felt good and bad to read about your story. I also had a molar pregnancy and just wished it would all go away. But it hasn't. I am still going to the doctors while I wait for my HCG levels to go down and they are. It's going to be a long year. Who knows we may not have anymore. Anyway, God bless you and all of the other molar pregnancy survivors! Missy | |
| Name: | rachel higgins |
| E-mail address: | rachelhiggins@hotmail.com |
| Signed on: | Wednesday, December 13, 2000 at 10:18 |
| Comments: I can�t thank you enough for your page it really helped me. My doctor didn't even inform of the risk of cancer!! no-one seems to understand how hard it is to lose a baby for me as i was only 9 weeks gone you've made me feel like someone cares I wish you all the best for the future to you and your family, thank you. | |
| Name: | Kim |
| E-mail address: | kimleahy@yahoo.com |
| Signed on: | Thursday, December 14, 2000 at 5:00 |
| Comments: Thank you so much for sharing your experience. Reading your story took me back to memory lane - a chapter in my life that I would like to forget and leave behind, but I can't. On June 1 2000, as I went for my 12-weeks check-up, the doctor performed an ultrosound as she could not hear the heartbeat. From there on, my story is very similar to yours. I tought dealing physically and emotionnally with the loss of the baby was the worse that I could imagine, but I was wrong. I too had chemo. I had 20mg of Metothexate 5 days a week and a week off. I was lucky enough to go through two full cycles. It's now been 3 1/2 months after my last treatment. Tomorrow, I must go for a follow up with my oncologist. So far, my monthly HCG tests are promising. As I look back on the series of events, I am now realizing how lucky I am despite the misfortune. Thanks again for designing your website and helping others better understand this matter. God bless you and good luck in the future. Kim in Quebec, Canada |
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| Name: | ReeRee |
| E-mail address: | andre_316@yahoo.com |
| Signed on: | Thursday, December 14, 2000 at 5:30 |
| Comments: Hi, i just had a D&C for a complete molar pregnancy on 12/6/00. My body feels horrible. I get my first level check in one week and I'm a little nervous. | |
| Name: | Michele Schoepp |
| E-mail address: | mschoepp@lakefield.net |
| Signed on: | Friday, December 15, 2000 at 9:43 |
| Comments: I'm so sorry for your loss of your child and your empty arms! We've had 2 miscarriages and now a molar pregnancy removed on 10/3/00. By God's grace, we also have 5 living children! I've been having my hcg levels checked and about 4-5 weeks ago they were kind of leveling off at 27-30 and so they diagnosed me with GTD and I saw a gyn oncologist in Milwaukee, WI. I had the ct and nothing showed up and they tell me I'll need some chemo but my blood test this week was .02!! I meet with the chemotherapist this afternoon and I'm praying that I may not need the chemo after all. My husband and I practice natural family planning (sympto-thermal method) when we have serious reason to avoid conception. This has strengthened our marriage over the years and has been a great help during this trial, not to mention, I know my body and cycle. When I first went to the doctor for abnormal bleeding, I knew something was wrong but that I wasn't pregnant. When they called me and told me my hcg levels were over 200,000, that I must be 3 months pregnant, I knew that was wrong. So when we finally had an ultra sound and there was no baby, it was sad but not as bad as it might have been. It's just been such an unreal experience, an emotional roller coaster. Please know that you and the others in your guest book are in our prayers! If anyone else uses nfp, please let me know how the chemo affected your cycles. Thank you! | |
| Name: | Amy Zarwell |
| E-mail address: | Wetrkyhnt1@aol.com |
| Signed on: | Monday, December 18, 2000 at 8:47 |
| Comments: Thank you for this site. I sufered a miscarriage a month ago and just found out that it may have been a molar pregnancy. I am waiting for the results from the specialist to see for sure. Your site made me feel a little better knowing I am not the only one going through this. Although I am still afraid I may end up with the same results as you, I at least know I am not alone. Amt Z. | |
| Name: | LUZ MORALES |
| E-mail address: | LABABY60435@YAHOO.COM |
| Signed on: | Monday, December 18, 2000 at 10:59 |
| Name: | kelliesartorius |
| E-mail address: | kelliesartorius@hotmail.com |
| Signed on: | Tuesday, December 19, 2000 at 5:20 |
| Comments: I just lost my first pregnancy at 8 weeks gestation. My physician was suspicious of ane ectopic pregnancy because there was no sign of an intrauterine pregnancy for three consective ultrasounds. I had surgery last Thrusday and no ectopic pregnancy was found so now they are now suspicious the pregnancy was molar. I won't find out until next week. I have found comfort knowing that so many other people have shared this experience and are willing to be open about their feelings; it is helping me so much. Thank you. Kellie, Canada |
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| Name: | ANA CABRERA |
| E-mail address: | FDEMOYA@HOTMAIL.COM |
| Signed on: | Tuesday, December 19, 2000 at 6:55 |
| Name: | Anna & William Barclay |
| E-mail address: | barclay@megsitnet.net |
| Signed on: | Thursday, December 21, 2000 at 5:46 |
| Comments: Thank you for the documentary with both the emotional insight and detailed scientific information. We also received news that the pregnancy we lost was due to partial molar. We do however have an ultra sound and saw a beating heart at 8 weeks. We hold on to that. The baby is burried in a beautiful wooden box under a magnolia tree in our backyard and we said prayers and read writings to aid her soul. We are Baha'i's and therefore believe that the soul begins at conception. Every soul is counted. | |
| Name: | Mercedes Jones |
| E-mail address: | mercjones@yahoo.com |
| Signed on: | Saturday, December 23, 2000 at 12:33 |
| Comments: Hi There, It was nice to find your site, you are right there really isn't a lot of info on Molar Pregnancies. I just underwent a d & c last night for a Molar Pregnancy, whether or not it was only partial I don't know. I had a fetal heart beat at my last ultrasound (6.5 weeks) but they noticed two sacs. Most likely one fetus that ended up not being viable and the other which turned out to be the molar. I must admit I am extremely scared about waht the pathology reports will say and I too have to have my hcg done once a week for the next few months (such a trying and nerve racking experience - I am not looking forward to it at all). I am paranoid that the numbers will not drop and that I will have the invasive cancer. I guess that all I can do is wait at this point. It's bben a really crappy year, we just lost our first son Kyle at 23 weeks gestation in May of this year. Later found out that I had a bicornuate uterus with a septum (the septum was remove in June - surgically) Found out we were preg again in November and now 1month later have lost another child, perhaps two! Thank you for taking the time to design this web page, it showed me that God does not select us one by one to endure such painful experiences, it's just the un fair luck of the draw! Regards and best of luck for the future, Mercedes Jones in Toronto, Ontario Canada |
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| Name: | Amy Pieper |
| E-mail address: | williamjohn.pieper@worldnet.att.net |
| Signed on: | Wednesday, December 27, 2000 at 3:36 |
| Comments: I am a 26 year old woman who also has experienced a complete molar pregnancy. It has been a very frustrating time in my life. All around me I have constant reminders of what my life should be like right now. I had a miscarriage on July 4th and then turned around and got pregnant on July 31st. When my husband and I went for our first ultra-sound at seven weeks, I thought it would be the best day of my life; when in fact it was my worst. I had the ultra-sound done at the hospital because my doctor's office was closed. No one at the hospital would tell me anything. I ended up hearing the news from a stranger over the phone, while at home by MYSELF. I thought my life had ended. I've been doing my weekly blood checks and after 2 and 1/2 months my levels are normal again. I still will have them checked every month. Now, the hard part is waiting! I want to become a mother so badly! I have several co-workers and family members who are expecting. I am very happy for them on the one hand, but another part of me is very jealous. I feel like no one else understands what exactly I have had to deal with. What do you say when someone who is unaware of our situation asks, "When are you guys going to have a baby?" I just want to break down and cry. I need to know that I will get pregnant, and have a healthy pregnancy! I wish you and your family the best! | |
| Name: | Kellie Spangler |
| E-mail address: | kykeme@earthlink.net |
| Signed on: | Wednesday, December 27, 2000 at 3:57 |
| Comments: Had a m/c 9/13/00 with d&c 9/15/00, diagnosed later as pmp. We miss our beautiful baby every day. | |
| Name: | Shannon Stone Edwards |
| E-mail address: | tincupnc@aol.com |
| Signed on: | Wednesday, December 27, 2000 at 11:48 |
| Comments: This story both moved and educated me. As a mother myself, I feel very sorry for your loss and admire your courage through this ordeal. May God bless you with another child very soon. | |
| Name: | kari |
| E-mail address: | rascotrucks@aol.com |
| Signed on: | Thursday, December 28, 2000 at 10:43 |
| Comments: My name is Kari. i had a complete molar pregnancy back in mar.00 and was told iam ready to try again,but am petrified of the outcome.this was our 1st preg. I am 24yrs old, and as the rest of you very confused and scared.there is not a day to go by that i dont think of the lose of my child.i pray that I will be able to get thru this and have the strength to try again. I so badly want to have children. One healthy child. I still have a very hard time talking about it. Thank you for listening. | |
| Name: | tara paul |
| E-mail address: | tdp@fsr.net |
| Signed on: | Thursday, December 28, 2000 at 4:07 |
| Comments: I found out there was no heartbeat at 12 weeks along. I had a dnc on oct. 3 2000. My dr. called me and said that the tissue had aspects of a partial mole. I had never heard of it. He explained everything to me and told me that I could start trying to concieve again in 3 mo. Everything on the internet said to wait 1 year. I talked to an OBGYN and she told me 1 year. Now I have read on the internet to wait 6 mo. Can anyone tell me exactly how long is it that I have to wait to concieve again? And is it from the time of the dnc or the time that the levels were normal again? Any info would help. Thanks, Tara |
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| Name: | tara paul |
| E-mail address: | tdp@fsr.net |
| Signed on: | Thursday, December 28, 2000 at 10:57 |
| Comments: I just had a partial mole in October of 2000. I am wondering if you are trying to get pregnant again or if you are pregnant again? | |
| Name: | Curt Horn |
| E-mail address: | JHORN2@CSC.COM |
| Signed on: | Friday, December 29, 2000 at 7:35 |
| Comments: My wife was diagnosed with partial hyditatidform mole in the second week of November 2000. Yesterday, Thursday December 28, 2000, she was informed that her blood test levels increased for the first time since she started weekly blood tests. Your story has helped me understand what may happen over the next few months. Thank you. | |
| Name: | Nicole Gyllstrom |
| E-mail address: | nmj41473@aol.com |
| Signed on: | Monday, January 1, 2001 at 2:53 |
| Comments: I am currently battling through the molar pregnancy crisis. Your site has been a godsend. Thank you for sharing your story. Nicky Gyllstrom | |
| Name: | DeeDee Conley |
| E-mail address: | dconley@turbineengine.textron.com |
| Signed on: | Tuesday, January 2, 2001 at 7:57 |
| Comments: Thank God for you! Tonight I got a call from my doctor telling me that I need to start coming in for blood level checks after the pathology report determined that I had a "Partial Molar Pregnancy". I'm a little nervous about all this. All I wanted was to have a baby. Thank you for your openess and candidness. I have written down your website and will refer to it as necessary. Please let me know if there is anything proactive that I need to be doing during this time. I naively thought that after what happened to me last week (heavy bleeding followed by a D&C) that I would just merely be able to try getting pregnant again. | |
| Name: | Tammy |
| E-mail address: | escorcia@ameritech.net |
| Signed on: | Tuesday, January 2, 2001 at 11:53 |
| Comments: I just found out that I had a molar pregnancy, and now I'm taking blood test every week until futher notice. I didn't know too much about this until I came across this site and started to read about so many other women who are going thru the same thing. This is unbelieveable! I was heart-broken that I had a miscarriage. I had no signs of having a miscarriage. I was twelve weeks pregnant and went for an ultrasound, and they could not find the baby. I had an empty sac. I had to have a DnC done. What a nightmare to find out you had a molar pregnancy. Something that you or most likely anyone you know has never heard of. I am very scared of what the future might hold for me. I am 36 and would like to have another baby but I am very scared that this will happen again. I have a 14 year old daughter, and feel very blessed that I have her. I want to thank everyone who has written in about this. I have read some positive things about having more children. I wish the Best of Luck to all who has gone thru this and is now going thru this! | |
| Name: | TISHA NUNEZ |
| E-mail address: | res08ivn@verizon.net |
| Signed on: | Wednesday, January 3, 2001 at 6:15 |
| Comments: I just lost our baby on the 29th of December and my OBGYN said that it is a possible molar pregnancy. I am having a hard time dealing with the loss let alone with this situtaion on top of it. It is just so hard. I was only 10 weeks pregnant but I was already bonding with the baby. My husband and I both believe that the baby was going to be a boy, because of dreams that we had alike. Could you please give me some adivse on ways to get through these tough times. I go to sleep telling "Kirkland" goodnight and wake telling him good morning! Your help will be greatly appereciated. Thanks, Tisha | |
| Name: | shari |
| E-mail address: | rashari@uswest.net |
| Signed on: | Wednesday, January 3, 2001 at 8:57 |
| Comments: Thank you for your story. It is nice to know you are not alone in times such as these. It is hard to get something so unheard of and be expected to understand it. I understand the shock of thinking you have been blessed with a child and instead going instantly to cancer instead. I am here if you ever want to talk. shari |
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| Name: | janna &curtis |
| E-mail address: | jannag@voyager.net |
| Signed on: | Thursday, January 4, 2001 at 4:28 |
| Comments: Thank you for sharing your story..... i lost 2 babies a little girl may 1984 and boy 1999my girl JENNA was born anacephalic and our boy BENJAMINE came at 5months along we know how hard it is truly sorry......God bless you both | |
| Name: | Lois Janz - Canada |
| E-mail address: | helmut@escape.ca |
| Signed on: | Friday, January 5, 2001 at 8:59 |
| Comments: PLEASE READ THIS ONE....ANYONE WHO NEEDS MORE INFO. I found a very informative and professional web site coming from a research lab in the UK on this very topic. Check it out... www.hmole-chorio.org.uk. They seem to be further along in the med. world and use other methods that in Can. I just had a DNC and found out that it was a complete molar. Now i am patiently waiting for the results to come back from my blood tests. It states in this site that it greatly increases the risk of cancer to go on to the pill while the blood level is not down to normal. Very serious! Don't only read what is written to the patients but also for the medics - greatly informative. In the meantime I am drinking Mistletoe tea which apparently is very potent in regards to destroying cancer cells. This may sound bizzare to you but I am actually thankful that I could go through this all - even though I greived at the loss of the baby at first! It's all because of a strong faith in God that He has enabled me to be risen above the whole situation with out desparing in the slightest!!! God has allowed this to happen to me inorder to draw me closer to Him. I am full of Joy and Rest because I believe that God has planned this for me because of His great love for me so that through this I can become more transformed into Christ�s image. This time here on earth is the preparation for our life to come in heaven - how very serious that we have the right attitude! Be glad to hear from anyone!! | |
| Name: | Dolly Kelejian |
| E-mail address: | gdkk@earthlink.net |
| Signed on: | Friday, January 5, 2001 11:23 |
| Comments: Hi, I am 30 years old and 9 week pregnant, just found out yesterday it is a molar pregnancy. I am terrified, that I will get cancer and not be able to enjoy my family, especialy my 2.5 year old daughter. I was so looking forward to this baby. I am glad you have this site, I have not been able to find any other good sites except for parentsplace.com. I am trying to look at this positively and think about other women who cannot have any children, at lease the Lord has given me a beautiful little girl. I hope you will be able to conceive again. Love Doll | |
| Name: | Vicki, Sonya and Nancy |
| E-mail address: | vmoore@jmhny.org |
| Signed on: | Monday, January 8, 2001 at 12:33 |
| Comments: Thank you for sharing your life with us. We are nurses in the Emergency Room at Jones Memorial Hospital in Wellsville New York. We grieve for you and your family. | |
| Name: | RACHEL CASTRO |
| E-mail address: | BUTTERFLY_80677471@YAHOO.COM |
| Signed on: | Monday, January 8, 2001 at 5:57 |
| Comments: YOUR IN MY PRAYERS. | |
| Name: | Shannon Fox |
| E-mail address: | poloman@nternet.com |
| Signed on: | Tuesday, January 9, 2001 at 2:23 |
| Comments: Hi Kendra. You have a beautiful family! I came across your website when I was doing some research about a miscarriage I had on December 13, 2000. I found out I was pregnant on November 19th. I couldn't have been happier! I love kids, and my husband and I were hoping to start our family ASAP. As the pregnancy progressed I began to have some spotting. I didn't spot a lot at all, but it was a very dark brown color and it did not stop so I contacted my ob/gyn for the first appt of my pregnancy. Because of the spotting I had been having, my Dr. did an ultrasound immediately even though his ultrasound tech wasn't even there that day. It was an internal ultrasound and he probed around for quite a while before he spoke to me. I was becoming quite nervous about what he was seeing when finally he spoke up and told me that he had two bits of news for me. The first bit of news was that I was carrying twins! Imagine my surprise! I myself am a twin and I thought twins skipped a generation! Guess not always. The second bit of news was that although Twin A was doing well...good heartbeat, well shaped amniotic sac, etc...Twin B's heartbeat was slow and it's amniotic sac was caving in on one side. Because of twin B's condition and also because I had been bleeding, my Dr. put me on progesterone and bedrest and scheduled me for another appt. the following week. So I rested in bed for a week and dreamed about my twins. Whether they would be boys or girls or one of each. What I would name them...etc. I went back for my appt the following week, and this time the ultrasound tech was there. So I got up on the table and she did another internal ultrasound. She probed around for quite a while herself, and then she called the Dr. in. They mumbled back and forth to one another...not bothering to inform me of what they were seeing. All I heard were the words three, and them shaking their heads at one another. They finished and my Dr. told me to get dressed and he would speak to me about what they had seen when he returned. So he returned and he told me the news. I had actually been carrying three babies, but today...none of the heartbeats could be seen. "Twin A" the larger of the two, had actually been two babies, but on the first visit because one's heart had already stopped beating...the Dr. had assumed it was only one. I was devastated. My husband was also away at work, but unfortunately he's a petroleum engineer on an oil rig in the gulf of Mexico (He works for two weeks at a time and then he's home for two weeks). The Dr. explained my options and told me that my best bet would be to have a D&C. I called my husband when I got home, and luckily (Thank you God!) he was able to have a chopper sent out to the oil rig he works on so that he could come home and be with me. I had the D&C the next day and everything went well. I just had my three week postop checkup on January 4th. I also had blood tests done to check my hcg levels and make sure that they are back to normal. They weren't! The nurses from my Dr's office called and told me that I need to come back in and have another blood lab done this next week. However, they never told me what a still elevated hcg level could possibly mean! That made me very nervous so I decided to investigate the internet for possible reasons. That's when I came across this site. I'm hoping that I'm just being paranoid and that the high hcg level is just caused by the fact that I had three babies inside of me or something like that, but I can't help but be nervous!! If anyone knows of any other reasons why hcg levels might be elevated...or if you just want to talk feel free to email me. Otherwise, I wish you all well. Kendra, while I was browsing your site I noticed that it said that you were going to begin trying again late in 2000. I'll be praying that your efforts are rewarded! | |
| Name: | julie |
| E-mail address: | nivis@rectron.co.za |
| Signed on: | Tuesday, January 9, 2001 at 7:25 |
| Comments: I HAVE BEEN DIAGNOSED WITH MOLAR PREGNANCY AS WELL AND I AM ACTUALLY GOING IN FOR X-TRAYS OF THE LIVER, ABDOMEN AND ULTRASOUND I AM TOTALLY SCARED AND I THANK YOU FOR GIVING ME A BETTER UNDERSTANDING FOR THIS CONDITION | |
| Name: | Christina Clark |
| E-mail address: | CiCi_147@hotmail.com |
| Signed on: | Tuesday, January 9, 2001 at 11:10 |
| Comments: Hi I'm 16 and I got pregnant about a year ago and I had a miscarriage. I felt really bad and blamed it on myself so I got pregnant again on purpose 3 months later. Everything was going fine, so I thought. When I was almost 10 weeks along I found out I had a molar pregnancy. I was absolutely devastated. But I know now that I should wait until I'm older to have kids. I miss my babies more than anything in the world and I would give anything to have one of them here with me. But I thank God for giving me not just one more chance but two more chances to get my life together. I love your site; it helped me a lot. | |
| Name: | Benita D Cephas |
| E-mail address: | Benita D Cephas@verizon.com |
| Signed on: | Tuesday, January 9, 2001 at 12:47 |
| Name: | Sherry Phillips: student nurse |
| E-mail address: | cool_mommy_68@yahoo.com |
| Signed on: | Wednesday, January 10, 2001 at 2:54 |
| Name: | April |
| E-mail address: | adorber@stny.rr.com |
| Signed on: | Wednesday, January 10, 2001 at 6:08 |
| Comments: I'm searching information on molar pregnancy for me sister. She has had her ups and downs with her first pregnancy. My sister wants to give Jimmy a little sister or brother very badly. She had to have a d&c 2 days before Christmas because at 10 weeks the baby developed a blood clot. They did the d&c and tested everything and found that she also had this molar pregnancy. I'm trying to found out more information -- it seems scary to me. God bless you for your courage. I had problems with my hormone levels not being able to support my baby until the placenta was fully active. I finally squeeked out a baby girl after about 8 miscarriages - I give you credit for having the strength to name your baby. I just see all mine rolled up into a special package that into this world. April |
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| Name: | judith rix |
| E-mail address: | gramiejude@compuserve.com |
| Signed on: | Wednesday, January 10, 2001 at 6:54 |
| Name: | carla marchbanks |
| E-mail address: | marchbanks3@aol.com |
| Signed on: | Thursday, January 11, 2001 at 6:30 |
| Name: | marjie murray |
| E-mail address: | sultan&freenet.co.uk |
| Signed on: | Monday, January 15, 2001 at 12:45 |
| Comments: hope and pray that my niece finds her levels come down. Thank you for the insight. | |
| Name: | TRACY |
| E-mail address: | CHRISANNTONY@AOL.COM |
| Signed on: | Tuesday, January 16, 2001 at 6:59 |
| Comments: I KNOW WHAT YOUR GOING THROUGH BECAUSE I JUST EXPERIENCED IT MYSELF | |
| Name: | KELLEE GREENE |
| E-mail address: | KELLEEJIMMY@AOL.COM |
| Signed on: | Tuesday, January 16, 2001 at 9:48 |
| Name: | J Follett |
| E-mail address: | julie.follett@btinternet.com |
| Signed on: | Tuesday, January 16, 2001 at 10:49 |
| Comments: I looked this site up as someone was telling me that their daughter had a molar pregnancy, I had never heard of this, so she told me to look it up on the internet. I read the story of Nina, and even though I read it word for word, I don't, i can't even imagine how you coped, but you did, and you didn't give in, the things that women go through. My sister had a miscarraige over ten years ago, she was taken to the wards where women had just had their babies, it seems so cruel to do such a thing. I wish you all the very best. | |
| Name: | Sharron Tang |
| E-mail address: | xiaolutang@hotmail.com |
| Signed on: | Wednesday, January 17, 2001 at 6:12 |
| Comments: When my husband and I found out I was pregnant with EPT, we were so happy. Unfortunately, the Dr. told me it was small for dates and no heartbeat when we came to his office about 6 weeks pregnancy. Two weeks later, I had another ultrasound, and no heartbeat, no growth. I had D&C at Dec 29, 2000. The long time bleeding really bothered me, and the pathology report tells can't exclude the GTD such as partial mole. When I asked my Dr., he told me he isn't sure until he sees the serial of HCG. The first blood test I had was 10 days after D&C, BHCG was 16000. A week later, the BHCG was back to 8000. I am looking for 2nd opinion. Does any one know any Dr. is good at molar pregnancy around North Carolina? Please refer me any Ob/Gyn specialized in molar pregnancy. Thanks for building up this website, God bless all of us! | |
| Name: | Stacy Lynn Bartolini |
| E-mail address: | stacybartolini@hotmail.com |
| Signed on: | Wednesday, January 17, 2001 at 7:28 |
| Comments: I too lost a child, at 8 weeks of age, to a molar pregnancy. Luckily, mine was not malignant. God bless you. | |
| Name: | wendy |
| E-mail address: | CntryGrlAtHrt83@aol.com |
| Home Web Site: |
http://hometown.aol.com/cntrygrlathrt83 |
| Signed on: | Wednesday, January 17, 2001 at 9:54 |
| Comments: hello! i am very sad to hear about what happened to you but i am also glad you turned out okay. I am 7 weeks pregnant with my first child (im only 18) and i am so terrified of anything bad happening but the daddy is here to help take care of me. So good luck to you!! | |
| Name: | Lori-Ann |
| E-mail address: | goodhilela@aol.com |
| Signed on: | Sunday, January 21, 2001 at 8:48 |
| Comments: Thank you for sharing your story with the world. You have helped me a great deal. On Friday, Jan 19, my doctor informed me that the pathology from my D&C, following an enevitable miscarriage, showed a partial molar pregnancy. Having never heard of such a thing, I was, needles to say, quite stunned. I have spent this weekend on the Web looking for answers to my many questions. Thanks for taking the time to put your website together to help people like me and my husband. We wish you good tidings in your future. May you enjoy your family. | |
| Name: | Sarah Ramsey |
| E-mail address: | gage12@msn.com |
| Signed on: | Sunday, January 21, 2001 at 9:34 |
| Comments: Hello, I read your story and it broke my heart. I had a Molar Pregnancy in 1996. I was 5 months and started bleeding one day. So I went to the hospital and was gave the scariest news of my life. I also decided to have the d&c. My blood was then taken every week for 6 months. All of my Cancer was removed with the D&C. I gave birth to a beatiful baby boy September 9, 1997!!! He is the joy of my life. After the miscarriage I thought that maybe I just wasn't meant to be a mother. But I know that the Son I have now is a blessing from my baby in Heaven. Thank you for sharing your story. Even though NINA was never born, it's nice that you keep her alive and are kind enough to share it with others. Sincerely, Sarah Ramsey |
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| Name: | April Williamson |
| E-mail address: | avw1@libra.pvh.org |
| Signed on: | Monday, January 22, 2001 at 10:33 |
| Comments: I am only 5 weeks pregnant and I haven't went to the doctor yet. A year and a half a ago I had a miscarriage and it AWFUL. I was eight weeks. My husband showed me no sympathy. We told the whole family. But now we are keeping it quiet for as long as we can and it is getting harder by the week to keep it quiet for another few weeks. My husband is very excited about this baby, and so I am I. I just wanted to tell you this and tell you I am very sorry about Nina and Happy for you because you beat the cancer and kept fighting. | |
| Name: | Angel |
| E-mail address: | MyAngelVictoria@aol.com |
| Signed on: | Tuesday, January 23, 2001 at 6:14 |
| Name: | Pam |
| E-mail address: | pjmoses10@hotmail.com |
| Home Web Site: | http://www.geocities.com/austinsheart98 |
| Signed on: | Tuesday, January 23, 2001 at 7:10 |
| Comments: Your story about Nina is very touching. What you've done here proves you are a very strong person. I have never heard of a molar pregnancy but heard someone talk about one and wanted to learn more. Well after going to a few sites that made no sense to me I found your site and you have done a great job at educating people. I really do hope and pray you are able to have another baby soon. I felt so sad when you said you had to wait 13 months. That is such a long wait. I lost my firstborn baby girl Courtney to prematurity and I couldn't imagine having to wait that long to get pregnant again. Thank you for putting up this page. It is very informational and a great tribute to your little Nina. | |
| Name: | Marylee |
| E-mail address: | Marygold61@aol.com |
| Signed on: | Tuesday, January 23, 2001 at 8:32 |
| Comments: Your story was both educational and inspirational. I lost my baby girl I named "Faith" last week at 10 wks to a complete molar pregnancy. My hCG before the D&C was 257,000! I have such a long way to go to 0... I'm scared and sad and depressed about it all. I'll be 40 in May and this was probably our last try, but I am so blessed to have a perfect near-two-year-old son named Luke. I hope I can be strong and get well for him with all my heart. Thanks again. Marylee | |
| Name: | JULIA WHITEHURST |
| E-mail address: | RAPHAELANGELS@CS.COM |
| Signed on: | Wednesday, January 24, 2001 at 4:41 |
| Comments: VERY INFORMATIVE THANK YOU I WAS JUST TOLD THE SAME THING AT MY APPOINTMENT TODAY WHEN I HAD MY ULTRASOUND DONE. I WAS 13-14 WEEKS PREGNANT WITH OUR FIRST. AND MY DOCTOR COULD NOT REALLY EXPLAIN WHAT HAD HAPPENED. | |
| Name: | Sandra Sartor |
| E-mail address: | Sss762800@cs.com |
| Signed on: | Saturday, January 27, 2001 at 9:16 |
| Comments: I had a molar pregnancy 30 years ago. The reason I found your website was recently I saw in a doctor's column in our local paper that a molar pregnancy was caused by the sperm entering a blank egg. I wanted to find out more about it. I don't know if I had a whole molar pregnancy or a partial one. I had a d & c when I was supposed to be about 5 months. I had had spotting off and on the whole pregnancy and was given injections of what I now feel was probably DES. At the time I didn't know that there could have been such a danger of cancer. I was told to wait a year to try to get pregnant, but was not told to get blood tests. I didn't find out about the danger until several years later. Luckily I did not develop cancer so maybe I was spared a lot of worry. Although we tried to have a baby, I never got pregnant again. I hope that every thing turns out well for you. I can imagine it was a very scary thing to go through. May God be with you. | |
| Name: | Estella Davis |
| E-mail address: | edavis7255@aol.com |
| Signed on: | Saturday, January 27, 2001 at 9:24 |
| Comments: I have read your entire story and was very informed by it. I work in a medical lab and we have a patient who had a molar pregnancy. I am so very sorry to hear of what happened to you.But after reading your story i now know what this woman is going through.Thank you for your story. God bless you and your family and I will pray for you and your family. Estell | |
| Name: | Shannon Bunnell |
| E-mail address: | shanrick@win.bright.net |
| Signed on: | Sunday, January 28, 2001 at 4:25 |
| Comments: We found out that I was pregnant on Dec. 3, 1999. This was my husband's 2nd marriage, so he already had 2 healthy daughters, and I had one. We wanted so bad to have one child together, that when we found out, I thought the world would stop. At my 1st doctor visit, they immediately scheduled for an ultrasound because I had preterm labor with my daughter. I was only 12 weeks when I had the test done, and that's when it all started. No heartbeat! I was so scared and upset, not again. On January 3, we went in for another ultrasound, same thing. The doctor told me I had a Missed Abortion, and I could wait for the baby to miscarry or have a D&C. We decided to have the D&C done. Jan.5th I went into the hospital pregnant and came out not. To make things worse, the doctor didn't know what was going on so decided to send me to a specialist. This new doctor decided to do another D&C one week later, because she was worried that the tissue was still there. I did have a partial molar pregnancy, and it took until August to get my levels down to 0, eight months later. Today, we have already passed our 1 year anniversary of losing our much wanted baby, and still don't feel healed. We have decided to be thankful for the children we do have, and not try again. It feels as though I am being punished for something I have no control over. 25 years old and no more children. I know how you feel, but I look at my daughter, who just turned 5, and I am so grateful that she is healthy and energic, and although I won't again, remember how great it was to expect a little girl. Good luck to you! | |
| Name: | Pat |
| E-mail address: | pemmhels@zoomnet.net |
| Signed on: | Monday, January 29, 2001 at 3:53 |
| Name: | N.Garge |
| E-mail address: | larva007@hotmail.com |
| Signed on: | Monday, January 29, 2001 at 4:10 |
| Comments: Hello, I dont really know what to write but i am 19 and I too have suffered a molar pregnancy and the doctors told me nothing they left me waiting for eight weeks before they place me on the recovery tests, sent me to the next town when I haven�t got a car and cost me �20, to see a so-called specialist, who hadn�t even looked at my notes. He proceeded to explain that the tissue could grow like a cancer throughout my body and i may not be able to have children however he did not tests or said nothing to put me at ease his examination involved asking me if I felt alright and sending me home, sorry i sound really bitter and twisted but because I felt so disgusted with the doctors and this condition is so rare i havent really had anyone to talk to. Anyway thanks for sharing you story and making me feel a little less alone and strange. Nicky | |
| Name: | Nanci Esposito |
| E-mail address: | nancie@hirschintl.com |
| Signed on: | Monday, January 29, 2001 at 12:42 |
| Comments: Thank you again for sharing your story. :-) | |
| Name: | Nanci Esposito |
| Signed on: | Monday, January 29, 2001 at 12:45 |
| Comments: I forgot to tell you that I will say a prayer for you that you will be able to have another healthy child. | |
| Name: | Amanda Gustman |
| E-mail address: | blondie7346@hotmail.com |
| Signed on: | Tuesday, January 30, 2001 at 10:35 |
| Comments: When reading your story while sitting in class, I couldn't help but to break down. I couldn't even make it past the first sentence of your poem. This hits a personal spot for me. On October 31st 2000, I too had the awful surgery performed to remove what was supposed to be my first child, my mother�s first grandbaby. Everyday I think of the wonderful family that was supposed to be. When I found out that I was to be a seventeen year old senior in high school mother, I din't know waht was going to happen with my life. But I realized so quickly how great my life would be. Immediately baby rooms were built, maternity clothes were bought everytime my mom left the house and baby blankets had begun being made. Since I found out that I was pregnant about 2&1\2 months into my pregnancy I didn't get into the doctors office too soon. By the time I was scheduled for an ultrasound I was close to 3& 1\3 months along. I was so excited but I have this really nervous feeling too. At the doctors office we sat & waited (me, my boyfriend, my mom, & my best friend) I kept feeling more & more scared. Finally it was our turn. Robert (my boyfriend) & I went in the room. The exam began. For some reason there wasn't anything showing up on the screen. We asked so many questions but none of them were answered. The doctor left the room & for some reason all I could do was cry. I had no idea what was going on but for some reason I had this awful feeling it was bad. Robert & I sat in suspense as we both had tears falling from our faces. That night when I was home alone, my doctor called me. She explained to me what happen. From that point on things have never been the same. I feel like all the things I went through were pointless because now I have nothing to show for it. | |
| Name: | Tereza Olivo |
| E-mail address: | Teese2U@aol.com |
| Signed on: | Wednesday, January 31, 2001 at 5:42 |
| Name: | Jennifer Shank |
| E-mail address: | shankjt@cvn.net |
| Signed on: | Wednesday, January 31, 2001 at 12:30 |
| Comments: I read your story and most of it remined me of my story. I also had a molar pregnancy. That is a scary thing. I had my D&E on Dec7,2000 and it was the worst day of my life because I was scheduled to go into get my D&E My husband was home getting our two kids on the bus and I started miscarrying on my own. I found out I was pregnant in October and they say then I was eight weeks along and time went on. I felt I was really pregnant and I went through all the doctor visits like you and the doctor on my first visit rushed me out also, and my blood levels went down in 6 weeks I was so scared I had to go through what you did. You are a very strong person, I still feel like I am pregnant but I have my period then reality sets in. But this is my secong miscarriage and the first on was normal and I don't know which is worst. I think this one because I the reality of no baby at all. I went through the altrasound like you and everything mostly by myself. Thank you for sharing your story with me. I am still recovering because it is only Janurary 31, 2001 and I feel like crying and running away and like it was my fault. My husband thinks that I should be over it and look at the wonderful things I already have two beautiful children and a brand knew home, but that don't help I feel depressed and don't know what to do about it. Thank you, Jennifer Shank |
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| Name: | tanya pitts |
| E-mail address: | tanyapitts@cs.com |
| Signed on: | Thursday, February 1, 2001 at 7:11 |
| Name: | Betty |
| E-mail address: | ike@marion.net |
| Signed on: | Friday, February 2, 2001 at 5:53 |
| Comments: I was very touched at your site and all you have went through broke my heart. I could not help but cry. I have a Great neice that has just went through this. It was a little better then a week ago. She was so excited about getting preg, then to find out she had to have a D.and C. My neice has just been sick over this.I pray to our Lord you will be ok and be able to have another child.Thank you for the site, I had never heard of this until it happened to my Great neice. May God bless and heal you broken heart. I wish there was more I could say to help you, but your site has been heart felt. God peace be with you and yours � Betty | |
| Name: | Mandy Lewry |
| E-mail address: | alewry@fsmail.net |
| Signed on: | Friday, February 2, 2001 at 6:00 |
| Name: | Peggy Shiffman |
| E-mail address: | shiffman@sunlink.net |
| Signed on: | Friday, February 2, 2001 at 11:08 |
| Comments: I wish you the best of luck with having a healthy pregnancy and a happy healthy baby. I wish that when I was going through this I had had the internet to gather information and to find emotional support. Please take heart that after an ectopic pregnancy (I lost one tube), two miscarriages and finally a molar pregnancy, perseverance and much faith allowed me to have a healthy little girl. Please persevere, it is worth it. She is the joy of my life, along with her older sister. Good Luck and God Bless! | |
| Name: | Shellie Sorrentino |
| E-mail address: | swarmintino@earthlink.net |
| Signed on: | Saturday, February 3, 2001 at 1:46 |
| Comments: Five years ago I had a tubal ligation after my 4th child was born. January 25, 2001, I had been sick for about a month. So I made an appt. with my doctor. To my surprise I was pregnant. I had three babies all stuck in my folopian tube. We had emergency surgery 1 hour later to remove my precious little ones. They were not sure that they were successful in retrieving all of the fetuses, now resulting in a molar pregnancy. I am very scared, and should start my treatment in two days. I have never heard of this before and am very saddened by this. | |
| Name: | Judy |
| E-mail address: | jikjud27@aol.com |
| Signed on: | Sunday, February 4, 2001 at 10:36 |
| Comments: I had a molar pregnancy in January 1998. I had a dnc then a second one six weeks later for excessive bleeding and my blood count was back up. I also started chemo that week. I had to have it 5days then off a week. Then for 8 more days then off another week. It was not bad it was worst seeing the other pepole there who where facing death. I realized how lucky I was to have such good doctors taking care of me. My count went down but just one month later I found out I was pregnant again. My doctors where not happy, but they helped me do everthing possible for my baby. I am happy to say I have a two year old son who is fine. I am not at all saying not to wait the year because I was scard to death that my mistake was going to kill my son. But I thank GOD everyday for keeping me and my son healthy and safe. So I am telling you this so you all will know that you will get through and you can have kids after.I will pray for you and your family. It is Febuary 2001 and I am healthy and so is my family. | |
| Name: | kimberly ward |
| Signed on: | Monday, February 5, 2001 at 7:44 |
| Name: | fiona |
| E-mail address: | fiona@mad-house99.freeserve.co.uk |
| Signed on: | Monday, February 5, 2001 at 9:09 |
| Comments: lovely tribute | |
| Name: | julie |
| E-mail address: | becker@htcomp.net |
| Signed on: | Monday, February 5, 2001 at 9:16 |
| Comments: MY DAUGHTER JUST HAD A D&C TODAY FOR A MOLAR PREGNANCY. I WAS VERY TOUCHED BY YOUR STORY.WE HAD NEVER HEARD OF THIS BEFORE. THANKS FOR LETTING US KNOW WE ARE NOT ALONE. GOD BLESS YOU & NINA | |
| Name: | Connie Anderson |
| Signed on: | Tuesday, February 6, 2001 at 6:45 |
| Name: | Kerrie |
| E-mail address: | robertk@chesterton.com |
| Signed on: | Tuesday, February 6, 2001 at 8:14 |
| Comments: Hi Everyone. In one respect it really saddens me to read all these stories and in another respect it is comforting. I too had a pmp with a D&C on 1/26/01 and like most of you, had never heard of it until now. This would have been our second child and we were really looking forward to it. We informed our families at Christmas and they were as thrilled as we were. It took us two years to get pregnant with our son Adam and this time it only took two tries. We were thrilled that we were not going to have to go through the waiting and wondering every month again. I spotted with my son so I was not too concerned when I started spotting this time. I had two ultrasounds and both looked great. In the second one I could see the baby wiggling around and everything. At my regular doc appt, (3 days later) they could not hear the heartbeat. They were not overly concerned based on the recent ultrasound and told me to come back in two days and maybe the baby would be postioned differently. Still nothing. I went for a third ultrasound and was given the terrible news. No heartbeat. I have just started my blood tests and I am really trying to stay focused on getting myself well and being there for my son and husband. I pray for myself and all of you that the HCG levels continue to drop and that our treatments are successful. I haven�t checked into it yet but I have been told that the Dan Farber Cancer Institute in Boston, MA has a great program revolving around Molar and Partial Molar pregnancy. Thank you all for the info you put out here. It has been inspiring, and I wish you all the very best with your healing. | |
| Name: | Kim Smith |
| Signed on: | Wednesday, February 7, 2001 at 4:04 |
| Comments: I found your story very upsetting and ideal for my article in the adviser paper as we would like to inform other people of this traumatic event. I heard this story in our soap Brookside and I was very upset by this. | |
| Name: | Betty crumpler |
| E-mail address: | bb120778@cyprus.hsu.edu |
| Signed on: | Saturday, February 10, 2001 at 11:46 |
| Comments: I had a molar pregnancy. I went through 5 months of chemo, five different types in 1990. My husband and I had a daughter in 1992, Alexandria Nicole Crumpler. She was perfect. I am a true beliver that children are really a gift from God. | |
| Name: | Carla Heidenreich |
| E-mail address: | fstivecelebrations@yahoo.com |
| Signed on: | Sunday, February 11, 2001 at 10:11 |
| Comments: I lost baby Noah on 12/20/99. He had been dead for about 2 weeks. I was given an ultrasound picture. Although I was almost 14 weeks along, He only stayed with me for 12 of those precious weeks. I went to the E.R. on 2 separate occasions. They sent me home and told me I was fine. I managed to make it through all of the HCG tests without any incident, then came the big blow. I went in for my last HCG and a pap, only to be called 1 1/2 weeks later and told I had abnormal cervical tissues. It turned out to be precancerious and it was removedinthe nick of time. I�m ok and i praise God for that. | |
| Name: | susan etlick |
| E-mail address: | susan539@email.com |
| Signed on: | Monday, February 12, 2001 at 6:49 |
| Comments: My best friend just had this happen to her. It was devastating. | |
| Name: | kristine stewart |
| E-mail address: | kmstew99@aol.com |
| Signed on: | Monday, February 12, 2001 at 12:05 |
| Comments: The image of the ultrasound that revealed I had a molar pregnancy is forever burned in my memory. Although it was more than 5 years ago, and I have a healthy 4 year-old now, I still can vividly picture that ultrasound screen. A D&C and 4 months of blood tests revealed I was fine. But I, like many of your visitors, knew nothing of the disease. My doctor was a caring practitioner who actually encouraged me to make the decision when to try again. I did almost immediately with success. I send my prayers to all who have gone through this. It's a strange and scary thing. Thanks for having this site. | |
| Name: | Julie |
| E-mail address: | britneyxoxo76@yahoo.com |
| Signed on: | Tuesday, February 13, 2001 at 4:24 |
| Comments: I would like to start by saying how grateful I am that this website exists. I had a partial molar pregnancy that was diagnosed at my 12 week doctor�s visit. Come to see there was no heartbeat and the baby had stoped growing at 9 weeks. I had a d&c the next day and the lab reports came back stating a partial molar pregnany. We were devasted. I have a son that is 3 years old which I took fertility drugs to concieve him as well as the child i lost to a molar pregnancy. I had this d&c on on Dec.5/2000 and since then my hcg levels have been monitered threw weekly bloodtests and now monthly. They have come down to 3 but I just wondered about the woman who tried to concieve after the years waiting period which was what my doctor said I had to wait. Anyone who has any stories they would like to share or want to talk pls pls contact me. Sometimes you just need to talk to someone who has been through the same thing. | |
| Name: | Loretta Carnes |
| E-mail address: | ml@aec.nu |
| Signed on: | Tuesday, February 13, 2001 at 12:19 |
| Comments: I too had a partial molar pregnany. At 11 weeks i was told by my doctor that my baby had no heartbeat and had died at 6 weeks along.I was then told i had to get a d/n/c. My d/n/c was the day befor thanksgiving 2000. My levels have droped to 0 but i have to go for bloodwork once a month to check them.Ihave never felt so lost or scared in my life. I miss the baby still to this day.Ithink about what it would have looked like, how it would have felt in my arms, and I cry. Thay say that i can have one more in a year, but I don�t know if I can deal with going through it again. I�m too scared. God bless all who are going through this and may we all stay and be cancer free. Loretta Carnes |
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| Name: | shannon |
| E-mail address: | sbenson_46725@yahoo.com |
| Signed on: | Wednesday, February 14, 2001 at 5:16 |
| Comments: Your website was very informative. I never knew such a thing exsisted. (and I�M A NURSE!!) I hope because of your website more people will learn about it and lives will be saved. Thank You Shannon | |
| Name: | Monica M. Smith |
| E-mail address: | monberigan@aol.com |
| Signed on: | Wednesday, February 14, 2001 at 9:07 |
| Comments: Thank you for sharing your experience. I recently had a molar pregnancy; my due date was January 28, 2001. That was a really rough day for me and my husband. However, the good news is everything is looking good for me and next week we hope to hear that we can begin trying again for another baby soon! Your site has helped me out a lot. Thank you so much for everything. Good luck to you and God bless you and your family. | |
| Name: | Stephanie Keaney |
| E-mail address: | skeaney@yahoo.com |
| Signed on: | Thursday, February 15, 2001 at 2:24 |
| Comments: We lost our baby Matthew as 11 weeks. For 3 agonizing weeks we knew it was going to happen, and just had to wait. I never even heard of PMP until it happened to me. I don't fit the profile at all. Thank you for the website! | |
| Name: | Jen |
| Signed on: | Thursday, February 15, 2001 at 10:10 |
| Comments: I have to take my sister-in-law to the ER to have an ultrasound done, I'm scared. She is 10 weeks along and has been bleeding for 2 days. Shes been trying to get pregnant for a year now and with the help of clomid (she has polycystic fibroid disease) she became pregnant. This is a lot to handle right now. But this sight brought some comfort. Thank You | |
| Name: | Jennifer King |
| E-mail address: | afacrn4u@aol.com |
| Signed on: | Saturday, February 17, 2001 at 3:01 |
| Comments: I too had a molar pregnancy. Like alot of you out there who have gone through this I had never heard of such a thing. Today is Feb. 17, 2000. I just found out on the 14th, yes, Valentine's Day. I went in for my 12 week appointment and they could not find a heartbeat. I figured the baby was just moving around alot. They sent me immediately for an ultrasound. All they would tell me at first is they did not see a baby. I got this news at 11:30 am. I was totally devistated. I called my husband Michael to come to the hospital because there was a problem. As soon as I got of the phone with him, I saw the doctor. He told me that the ultrasound showed that I had had a molar pregnancy. He gave me a quick briefing on what it was. My first question was "Was I really pregnant?" He told me that I was just something had went wrong. He ordered blood tests and chest x-rays. Michael got to the hospital and I all I could do is start crying. The rest was kind of a blur since I went in for the D&C around 4:00 pm that same day. I feel fine physically but I can not get over the fact that my baby will never be born. This was my first pregnancy. We named the baby Jacob Alexander because we wanted a boy. Even though he was never born we are going to make a memorial flower garden for him with a water fountain and a small grave stone. As for what is to come? I do not know. All I know is that my baby Jacob was taken from me just three days ago and it really hurts. If anyone out there would like to talk, please email me. I could really use someone to talk to. | |
| Name: | TAMARA WEBSTER |
| E-mail address: | mere@gte.net |
| Signed on: | Saturday, February 17, 2001 at 12:08 |
| Comments: I AM GETTING CLOSE TO MY DUE DATE OF WHEN I WOULD HAVE HAD MY BABY. I DIDN'T REALIZE THAT IT WOULD BE THIS HARD TO DEAL WITH. MY 4 YEAR OLD SON ASKED ME THE OTHER DAY, "MOMMY, WHEN HEAVEN GETS DONE FIXING MY BABY SISTER ARE THEY GOING TO SEND HER BACK?" IT BROKE MY HEART AND I HAD TO REMIND HIM THAT HIS SISTER WAS AN ANGEL NOW. HE REPLIED "WELL WHEN THEY DO GET DONE FIXING HER SHE WILL BE AN ANGEL AND ONE DAY I WILL LOOK OUT THE WINDOW AND SHE WILL BE SITTING IN A TREE." I HAVE HAD NEGATIVE BLOOD TEST SINCE MY D&C ON 7/25/00 THANK GOD. I WILL BE ABLE TO TRY TO HAVE ANOTHER BABY STARTING 8/1/01 AND I WILL FEEL SO BLESSED THIS TIME AROUND, BUT FEARFUL THAT THIS WILL HAPPEN AGAIN. ALL OF YOU WHO JUST STARTED THIS PROCESS, KEEP FAITH. YOU WILL GET THROUGH. LOVE, TAMARA W. (MEMORIAL UNDER ABIGAIL MARSUEL WEBSTER) |
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| Name: | Shane & Misti Johnson |
| E-mail address: | sjmaj@netwest.com |
| Signed on: | Saturday, February 17, 2001 at 12:41 |
| Comments: Our second miscarriage was a molar pregnancy | |
| Name: | Amy Sausen |
| E-mail address: | amykilborn@mail.com |
| Signed on: | Monday, February 19, 2001 at 2:59 |
| Comments: I was told I had a molar pregnancy on Feb. 13th and I had a D&C on the 15th. I was exactly 13 weeks pregnant. One month ago I had an emergency viisit to my doctor for bleeding. The doctor was unable to see me and the midwife in the office, after performing a vaginal ultasound told me everything was fine. I bled for a week and a half after this visit. One month later at our regularly scheduled visit, we were told we have a molar preganancy. I should have been diagnosed one month ago. They made a mistake and it has cost me a great deal physically. Michael, my husband has been wonderful throughout this entire ordeal. Both with the severe exhaustion I had for the last two months and taking time off of work to be with me throughout the surgery and recovery. I know he is hurting. He was sure this was a girl and he had named her Megan. Part of me wants to honor Megan as a child who we lost and another part of me remembers that this was tissue, not a fetus. I had a complete molar versus a partial. Right now, I am struggling through the grieving process. One hour after the surgery I had more energy than I have had in months. I cleaned the kitchen, did the laundry, baked and descorated sugar cookies for Valentine�s Day. One week before this, I was unable to get out of bed for more than 5 minutes at a time. I have had cervical cancer and severe ovarian cysts leading to the removal of my left ovary. My previous doctors have tried to take my uterus since I was 20 years old due to various problems and family history. I was so excited to have been pregnant 1 month after my wedding, at the age of 27 considering my medical history. To have this happen now is devasting. I will not be ableto give birth to a child until I am at least 30 years old. Of course, this is if I do not have any more complications from the molar. This website and the comments from the other guests have helped me understand what I am feeling and what I am facing. Thank you. | |
| Name: | Donald J. Ottomeyer |
| Signed on: | Monday, February 19, 2001 at 9:29 |
| Comments: Attempting to find out effects of molar pregnancy | |
| Name: | Steve Thompson |
| E-mail address: | steve_j_thompson@hotmail.com |
| Signed on: | Tuesday, February 20, 2001 at 11:24 |
| Comments: My wife was diagnosed with a molar pregnancy almost three weeks ago and the story you told is identical to the one we have. Her first visit with the surgeon who did the D&C is tomorrow and we are praying that God take care of her and take away the side effects of this affliction. Your website has been very informative and has prepared me for what is (or what is not) to come. God bless you for doing this website. | |
| Name: | mandy wall |
| E-mail address: | pink.2000.@mandy98.fsnet.co.uk |
| Signed on: | Wednesday, February 21, 2001 at 1:28 |
| Comments: I just wanted to tell all the people who have just gone through a molar pregnancy, what I longed to hear when I had one in April 99. Yes you can go on to have a perfectly normal baby. I just had a baby girl. I waited six months after my molar to become pregnant and luckly everything is fine.So although it may not seem it at the moment, everything is going to work ou just as you hope it will. | |
| Name: | Shannon |
| E-mail address: | shanaynaylynn@aol.com |
| Signed on: | Thursday, February 22, 2001 at 10:49 |
| Comments: In loving memory of Mikayla Rose and I hope the other was a girl too so...Jenn Marie. You two will always be loved. Due on this earth April 9, 2001. Went to heaven November 28, 2000. Cause: twin gestation of mikayla (healthy baby, but the cord was around the neck and my other sweetangel (molar pregnancy) Will love you two forever. Love mommy | |
| Name: | KELLY O'CONNELL |
| E-mail address: | PSYCHOCHIC2@HOTMAIL.COM |
| Signed on: | Friday, February 23, 2001 at 5:52 |
| Name: | Crystal |
| E-mail address: | crystal.puskas@sas.com |
| Signed on: | Friday, February 23, 2001 at 6:09 |
| Comments: So sorry to hear of the suffering you went through! I just went through a full molar pregnancy (discovered it at 16 weeks - Jan 29th) and a friend forwarded me a link to your site. My HCg levels were >8000 and as of last week were <2000. I'm still hoping things will return to normal; it helped to read your article and hear of a success story. My thoughts and prayers are with you, hoping you never have to go through something like this again! | |
| Name: | Jennifer Nelson |
| Signed on: | Friday, February 23, 2001 at 7:56 |
| Comments: Dear Kendra, I'm very sorry to hear about your situation. I personally know what you were feeling in a way. I had a molar pregnancy last year and I know how hard it can be. I am very happy that you are now free of cancer. I really do like your website it helps other families deal with their loss. | |
| Name: | Cindy Trefry |
| E-mail address: | johntrefry@msn.com |
| Signed on: | Tuesday, February 27, 2001 at 5:09 |
| Comments: I had a molar pregnancy that ended with a D&C on July 10, 2000 at 10 weeks gestation. I got all the way down to a hcg of 93 before the values reversed. Lung nodules were present in my chest CT. Four weeks of Methotrexate did the job for me with an additional two for good measure. My high hcg before chemo was 143 three days before to my first shot. My OB worked fast. I was notified of the increase on Thursday, had a sonogram on Friday, was referred by Monday to a OB Onocologist, saw the specialist on Tuesday, had a Chest CT on Thursday, and started chemo on Friday. I have now had normal hcg levels since early October. | |
| Name: | Caroline |
| E-mail address: | carolineleroi@hotmail.com |
| Signed on: | Wednesday, February 28, 2001 at 11:24 |
| Comments: Hi! I'm so glad that i found a site on the subject! I had a complete molar pregnancy in October. It was my first pregnancy, i was very sad and chock! Now my hcg are negative, but i'm wondering if any other women experience this in the first pregancy like me, and how your manage the subsequent pregnancy?? Emotionally? Me, i think i'm gonna be very anxious and nervous. I would appreciate if someone could tell me her experiences. Thank you! Caro | |
| Name: | Nicoal Holland |
| E-mail address: | hollandnicky@hotmail.com |
| Signed on: | Thursday, March 1, 2001 at 5:48 |
| Comments: I was diagnosed with a complete molar pregnancy in April 1999, we have just got the go ahead to try again for another baby, so fingers crossed everything should go o.k. this time. | |
| Name: | Patricia Lines |
| E-mail address: | bpmlines@northrock.bm |
| Signed on: | Friday, March 2, 2001 at 4:31 |
| Name: | Wanda McDougald |
| E-mail address: | wmcdougald@aimaviation.com |
| Signed on: | Friday, March 2, 2001 at 9:12 |
| Comments: Thank you so much for your website. I have tried discussing this topic with my family and friends, since had my etopic/molar pregnancy surgurcially removed on Feb. 21, 2001. Everyone has meant well but truly could't grasp the concept of something so foriegn. Your story has recounted many of the same events I've encountered. Now that the operation has taken place, the weekly HCG readings will begin. My Faith in God is the only thing I can lean on. I get very said when visit my OB's office and see all of those expectant parents and their little ones. With my husband of 2 years, we began trying to get pregnant right way but without success. When we learned of this pregnancy Jan. 11, we believed God had answered our prayers. Our loss is so great and I feel that I'm running out of time, since I'm now 41 and on a track record for having another problematic pregnancy. (I have son from my previous marriage) I will continue to lift you and your family in prayer for renewed health and the gift of life! In God's faith, Wanda R. McDougald |
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| Name: | Laura Knickman |
| E-mail address: | knickman@bellatlantic.net |
| Signed on: | Friday, March 2, 2001 at 11:53 |
| Comments: You did a very nice job recording our journey through molar pregnancy. I had my molar pregnancy in Feb. 1999. I too was three months into my pregnancy (the doctors would not give me a sonogram even though I told them from my first appointment that there was something structurally wrong and that I was a lot bigger than I should be.) There are so many voids in the understanding of the medical community about molar pregnancy, and it is our job to force them to DO THEIR HOMEWORK! I have experience lobbying on Capital Hill to Congress. I want to lobby Congress on the issues of requiring physicians to do preliminary low-cost exams on all of their pregnant patients. Any support you could give me (by forwarding your guest list to me or helping me to network with other patients/physicians) would let me begin the work I need to do to bring this tragedy out of the back rooms of doctors' offices. Please contact me any time. There are several issues that I have concern with. First, I also am afraid to conceive again. At first I was told that molar pregancy happened to 1 in 10's of thousands of pregnancies, and because it was so rare, there was almost no chance of recurrence. You should know that in 1999, my doctor's latest research revealed that there is a 40% repeat rate!!! Who wants to take that risk? She said it was not related to my thyroid disease and was not hereditary. My mother had thyroid disease and a subsequent molar pregancy. I NEED TO KNOW HOW MANY MOTHERS HAD MP'S FOLLOWING A DIAGNOSIS OF THYROID DISEASE! Because the doctors won't acknowledge this (because it isn't in black and white in a text somewhere) the only way we can know is from comparing stories. I also must comment that I would appreciate if you acknowledged in your biography, that there is a difference in partial mole and total mole. I had a total mole and it is my understanding and belief that while there is fetal tissue present in a total mole, that the chromosomal make-up was wrong from the beginning and never resulted in the conception of a human being. THIS IS VERY IMPORTANT TO MOTHERS TO UNDERSTAND. I am Catholic and Pro-life, and it would have been very important to me to baptise if there was a "baby". I understand in your case there was (as is the case with a partial mole), and I sympathize with your loss. Your doctors should have clarified for you before the d&c that there was or was not a fetus present (which is a partial). We also must encourage physicians to find ways to increase the viability of fetus' that are coexisting with a mole. God Bless you and your family. L.Knickman | |
| Name: | Tanja |
| Signed on: | Saturday, March 3, 2001 at 6:31 |
| Comments: Today my friend told me she had a molar pregnancy & had a d&c performed last week. She is my best friend and my heart is broken for her. She's been waiting to get pregnant for awhile and this was her first pregnancy. To now be told she has to wait a year to try again is so difficult to hear especially since she wanted a baby so bad. I tried to encourage her that the most important thing is for her to stay healthy so she will be able to have the family her and her husband dream of. I had never even heard of a molar pregnancy until today and even if I had I never would have thought it could happen to someone I know. I came home from visiting her today and found your site on the internet. God bless you for sharing your story so openly and honestly it has helped many people I'm sure. I plan to tell my friend about it so she can read your's and others' stories so she won't feel so alone. Thank you and all the best to you, I hope you have a successful, healthy pregnancy soon! | |
| Name: | Donna |
| E-mail address: | mcfadden@95mediaone.com |
| Signed on: | Sunday, March 4, 2001 at 10:24 |
| Comments: Twenty six years ago I had a molar pregnancy and at that time methotrexate was only in the experimental stages. I opted to take it because this was my first pregnancy and I did not want to lose my uterus. The chemo was long and painful and at times I just wanted to stop. But thanks to the chemo and my doctor, Donald P. Goldstein, today I have 2 healthy children. My son is 21 and a senior at Johns Hopkins University. My daughter is 20 and a junior at UMass Amherst. This month my first child would be celabrating his 26th birthday. Every year at this time I get a little sad but keep it to myself. Reading the info at this sight has really been a confort. Thank you so much! | |
| Name: | manna |
| E-mail address: | mannalu@aol.com |
| Signed on: | Tuesday, March 6, 2001 at 6:21 |
| Name: | Julie Wehr |
| E-mail address: | juliewehr@yahoo.com |
| Signed on: | Thursday, March 8, 2001 at 5:03 |
| Comments: You have a very nice web site. But I would like to be able to click on a "what is a molar pregnancy?" spot. I am having some trouble and need info. Julie No need to e-mail I will look further |
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| Name: | patty Hudson |
| E-mail address: | pathdsn@hotmail.com |
| Signed on: | Friday, March 9, 2001 at 1:34 |
| Name: | Widad |
| E-mail address: | mohammed_widad@hotmail.com |
| Signed on: | Friday, March 9, 2001 at 3:14 |
| Comments: I need to know about molarpregnancy because it happened to me but i do not know what it is. | |
| Name: | Rachel |
| E-mail address: | rachelgts@yahoo.com |
| Signed on: | Saturday, March 10, 2001 at 3:02 |
| Comments: That was an incredible story. I am so thankful that you decided to share your story with the rest of the world. I send my best wishes to you and your family. I hope everything will be wonderful for you from now on. I found out this past week that I had a molar pregnancy as well and I had a D&C done. I must say that I was quite scared at the time. Actually, your story scared me a little more and it made me realize how serious this can be but like you say, if God wants this to happen then it will happen, and nothing that we humans can do will prevent it. I should not waste my time worrying too much. Take good care, my heart goes out to you. | |
| Name: | Hendrik Venter |
| E-mail address: | pos@poes.com |
| Signed on: | Sunday, March 11, 2001 at 4:35 |
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