| Name: | Journeyon |
| Signed on: | Wednesday, May 8, 2002 at 11:20 AM |
| Comments: It has been over a year since I have visited your web site the first time last year was after I received a call from my doctor advising me that I had a molar pregnancy and would need to have my blood checked regularly. I'm glad to say that next 7 months after that my HCG level went down until it finally reached zero. It is now a little over a year and just learned last week that I am pregnant again although I know the chance of a repeat molar is not high I'm scared. My husband and I are happy about our pregnancy but I can see it in his eyes he's worried as well. After raising and crashing of the hope we had last year I think we have come to the conclusion that God has reasons for everything and although we may not understand them all the time we just have to leave it in his hands to decide whether we will be blessed with a child or not. We'll see. For now we have decided not to tell anyone about our pregnancy until we know we are ok. | |
| Name: | Tanya |
| E-mail address: | tanya_downes@hotmail.com |
| Signed on: | Wednesday, May 8, 2002 at 11:27 AM |
| Comments: I am due to visit the hospital tomorrow to find out if I have a molar pregnancy. So scared, need information on this. Thank you. | |
| Name: | Melissa DeFrang |
| E-mail address: | m_defrang@hotmail.com |
| Signed on: | Wednesday, May 8, 2002 at 02:17 PM |
| Comments: I’m very sorry that this tragedy happened to you! I am doing a project on molar pregnancy and want to find out more info for my personal needs. Again I am very sorry that this happened to you. Sincerely, Melissa |
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| Name: | Wendy |
| E-mail address: | wendy25@vipowernet.net |
| Signed on: | Saturday, May 11th 2002 at 01:22 PM |
| Comments: Your story is very helpful. I was diagnosed w/ a partial mole at 15 weeks, I had a D/C done the day after Thanksgiving. I totally relate to your experience. I was measuring larger for dates (measured 20 weeks, I was only 15) so they did an U/S ??? twins, my midwife thought she might have heard 2 heartbeats. I was so blindsided, I was without my husband and just cried for 20 minutes before I could do anything. This was my first pregnancy after trying for a year. It has just been 6 months and My HCG level is at 1.1 negative but still there. I have not had any complications, other then having really large ovarian cysts. I see my MD next week and will have another U/S at that time. I find that emotionally I did well until now, I would have been due to delivery in 2 weeks. I also found out it was a girl from the genetic testing that was down, but she had 3 complete set of chromosomes and should/would have never survived. I find that I just want to put it all behind me and not have to go in for blood draws and U/S. I want to go back to being normal, but that will never happen for this event has changed my life for ever. Thank you for your page. It is nice to hear others who are going through the same thing I am. I can find some sort of normalcy in a situation that not too many could possibly understand. And That is a big help. Take care, Wendy |
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| Name: | Jamie Payne |
| E-mail address: | jamielpayne@msn.com |
| Signed on: | Tuesday, May 14th 2002 at 9:39 PM |
| Name: | Leanne Landels |
| E-mail address: | infinityangel@yahoo.com.au |
| Signed on: | Thursday, May 16th 2002 at 02:00 AM |
| Comments: Would like to talk to others that can understand and share hope for the future. | |
| Name: | Darlene |
| E-mail address: | portgalme@yahoo.com |
| Signed on: | Friday, May 17th 2002 at 12:45 AM |
| Comments: My daughters friend who is only 23 had a molar pregnancy this week. She has had two successful pregnancies. I had never heard of this and was amazed. I hope she doesn't develop cancer. But hopefully because she is young she will do okay. Looking back now 2 weeks ago when we got together for her daughter's 1st birthday, she commented how big she was already. | |
| Name: | Meagan Amaral |
| E-mail address: | loks23@hotmail.com |
| Signed on: | Saturday, May 18th 2002 at 12:59 PM |
| Comments: Hi, my name is Meagan and I recently lost my baby on Jan.3, 2002 at 11 weeks gestation due to a partial molar pregnancy, also. I too was devastated and frustrated. On April 1, 1995, I had lost my first baby and I thought that this could not happen again. I blamed God at first and couldn't believe He could do this to me. I have two boys ages 6 and 3 and going through the experiences I went through makes me appreciate them much more. It is comforting for me to know that there is someone who knows exactly how I am feeling. It has been 5 months now but sometimes it feels like it was just yesterday. The emotional pain and "why" comes all the time. And I too got the comments that " You're still young to have another child." Can people really be that insensitive? And you're right, people who have not lost a baby do not know what we go through. I am still doing all the blood tests until Jan.2003 but my results have been good. My HCG count has been at zero for 3 months, but the thought of having cancer lingers in the back of my mind. I want to thank you for having this web site, it has helped me tremendously. I just take it one day at a time, one moment at a time. May God bless you and your family. Sincerely, Meagan |
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| Name: | AMY R.N. |
| Signed on: | Monday, May 20th 2002 at 08:09 PM |
| Comments: I HAVE BEEN A NEWBORN NURSERY NURSE FOR ABOUT TWO YEARS NOW. I HAD NEVER HEARD OF A MOLAR PREGNANCY UNTIL A COUPLE OF WEEKS AGO. I WAS HERE AT WORK BROWSING THE INTERNET TO LEARN MORE AND BUMPED INTO YOUR TOUCHING STORY. MY HEART SAYS A PRAYER FOR YOU AND YOUR FAMILY AND MOST OF ALL, FOR SWEET NINA. THANK YOU FOR SHARING YOUR STORY. MAY GOD BLESS YOU RICHLY! | |
| Name: | Britny |
| E-mail address: | individual@vineyard.net |
| Signed on: | Tuesday, May 21st 2002 at 7:01 AM |
| Name: | Glynda Gros |
| E-mail address: | ggros@houston.rr.com |
| Signed on: | Thursday, May 23rd 2002 at 7:20 AM |
| Comments: From the book by Dale Evans who had a handicapped child. A quote she made from the bible, "Fear not to entertain a stranger, for you may entertain an angel unaware. | |
| Name: | Lisa Sanderson |
| E-mail address: | jm014d2466@blueyonder |
| Signed on: | Monday, May 27th 2002 at 4:42 AM |
| Comments: I am really sorry with what happened to you. I am only 18 and have recently had a molar pregnancy. I’ve read the section on emotions and everything you have wrote is just exactly how I feel. Everyone tells me to just forget it but as you know its not as easy as it sounds. Half the time I don’t know how to feel. I think being able to read your stories is brilliant and you have certainly told me a lot more information than what the doctor and sisters have told me. On the 2nd of may 2002 I went for an emergency scan after my midwife couldn't hear any heartbeat of my baby. Everything the lady doing the scan told me didn’t appear to be registering in my mind, I suppose I didn’t want to believe. On the 3rd of May 2002 I was in hospital, just sat there waiting to go down to theatre. I was 15 weeks and 4 days, then nothing, I felt empty. | |
| Name: | Stefanie |
| E-mail address: | StefanieBBanaag |
| Signed on: | Monday, May 27th 2002 at 10:22 AM |
| Comments: It has been a little over a year since the doctor said I had a molar pregnancy. I'm still very sad about losing the baby. A lot of my friends and family don't understand. They think there was no baby and it was just something that happened--no big deal. But in reality my baby did die! They say it was a hidden blessing that I lost the baby! That was not very comforting! I had one friend who had a miscarriage a couple of months after my surgery. I tried to comfort her knowing that I understand her grief. But, she told me, "Well, my miscarriage was totally messy than yours!" To me that meant you don't understand death because you didn't really get pregnant! A lot of this comments have brought me down, but I'm really trying to look pass it. My grieving has made me depressed! I am frustrated because I can't come to grips with this. I am finally trying to get help. Like, reading and talking to people that went through the same thing. The story of Nina helped a lot! | |
| Name: | John Swayze |
| E-mail address: | jswayze@charter.net |
| Signed on: | Wednesday, May 29th 2002 at 7:03 PM |
| Comments: My daughter was just diagnosed after an ultrasound and a D & C will be performed. It would have been my second grandchild. | |
| Name: | Cathy Roman |
| E-mail address: | Cat_Rom@msn.com |
| Signed on: | Thursday, May 30th 2002 at 8:09 PM |
| Comments: Your story was amazing. I too went through the same thing on June 9th 1999. Not cancer, but the partial molar pregnancy. The reason why I decided to look up this topic is because I really felt the care I had was not good. I think they didn't quite know what it was, my hormones were high and my stomach was real big. I was only six weeks along. The nurse saw nothing. But the doctor finally saw something and said it would be ok, but all the talk about the molar pregnancy... and they way I was so sick. I decided to abort. After the abortion which I am not proud of, I started hemorraging the next night and almost had to have a hysterectomy and blood transfusion. This sounds gross, but what was coming out of me was sooo much tissue. I believe they misdiagnosed me. Thanks to God I had a D&C and the bleeding stopped. It took a long time to heal. But all the talk about the hormone Hcg, mine went down to 45 and I never went back. I think I should be checked again. Thanks for your story it makes me understand what happened to me more. I wish you and your family the best. | |
| Name: | reva |
| E-mail address: | polken5@aol.com |
| Signed on: | Friday, May 31st 2002 at 7:22 AM |
| Comments: Hey, sorry to hear about what has happened. I am only 15 years old and I had a molar pregnancy. It was hard to get through and it still is for me and my boyfriend. We thought it was a baby. We had clothes and names picked out. When the doctor told us that it was a complete molar pregnancy we didn’t know what it was. Then when he told us our world just crumbled. I had the surgery on October 4th and my hcg has stayed down. Hopefully it will stay down and it won’t come back. I have to keep getting my blood work drawn. I can’t get pregnant for a year. But when I do I hope everything works out right. I hope everybody that has had one will have good luck through it and after it. Thanks for letting me know I’m not the only one. Love you guys and good luck | |
| Name: | Holly |
| E-mail address: | Waiteholly@aol.com |
| Signed on: | Monday, June 3rd 2002 at 8:26 PM |
| Comments: I had a molar pregnancy, and I am sorry for anyone that has had to deal with such a thing. | |
| Name: | Susan Nelsen |
| E-mail address: | poohbus2ride58331@yahoo.com |
| Signed on: | Tuesday, June 4th 2002 at 9:18 PM |
| Comments: I had a complete molar pregnancy in Sept 2000. I was told not to become pregnant for one year and was put on birth control pills for a whole year. I have now been off the birth control pills for one year and still have not gotten pregnant. | |
| Name: | Jennifer |
| Signed on: | Wednesday, June 5th 2002 at 5:27 PM |
| Name: | Emily Robinson |
| E-mail address: | mossgreen7@yahoo.com |
| Signed on: | Thursday, June 6th 2002 at 6:40 PM |
| Comments: You have done a wonderful job on this web site. I am amazed to the information that is out there about molar pregnancies. I lost my first angel due to a complete mole, and during those times I felt that I was robbed. But now I see it as a blessing, God has given me a chance to help others who are pregnant and support them. I know one day we will have a child and that we will get to meet our first angel that we have never met. I know that my grandmothers are taking care of my baby. Thanks for the information and support! Emily Robinson |
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| Name: | Sarah Killion |
| E-mail address: | Elizebeth_sarah@hotmail.com |
| Signed on: | Monday, June 10th 2002 at 8:39 AM |
| Comments: Thank you for sharing your story. | |
| Name: | jackie |
| Signed on: | Wednesday, June 12th 2002 at 9:02 AM |
| Comments: just found out on June 11th that I had a molar pregnancy, I am waiting for the results of my blood test. I have had cancer twice and I am only 25. My father died of cancer two years ago. I am anxiously waiting for the results on the cancer. I will sign again tomorrow and tell you my results | |
| Name: | Carolina Faircloth |
| E-mail address: | fairclo@earthlink.net |
| Signed on: | Wednesday, June 12th 2002 at 3:18 PM |
| Comments: Thanks for sharing your story, my sister was diagnose about 7 weeks ago and started chemo last week. This is all new to us and while looking for more info came across your web site. God bless, Carolina | |
| Name: | Maria Rodriguez |
| E-mail address: | gentleheart74@hotmail.com |
| Signed on: | Thursday, June 13, 2002 at 3:34 PM |
| Comments: On March 14, Chris and I were given the greatest news. I was pregnant. At 27, engaged to the love of my life and set in an exciting career. This was the icing on the cake. But after a month, I knew something was wrong. I was bleeding and extremely sick. I went for an ultrasound and they gave me the same horrid news...my baby was gone. A molar pregnancy..."WHAT, a what...I need a D&C..." And like you I fell in that small percentage and I also had to have that small chemo shot in the hip and those HORRID CTs. I am getting my HCG level measures every Friday now and so far 3 week and they are going down...Am I prepared for the next stage if it goes up again...God give me strength. Thank you for sharing your story and I wish I had read your web page earlier... Our little one’s name is Yasmin Americus Shellhamer February 14, 2002 – April 12, 2002 |
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| Name: | simone |
| E-mail address: | kyle@oceanfree.com |
| Signed on: | Saturday, June 15, 2002 at 10:30 AM |
| Comments: We also had an experience with molar pregnancy and at the moment don’t know if we are having another so hopefully things will be OK ...thinking of you....simone+alan | |
| Name: | Ruth Kingsbury |
| E-mail address: | rtt@chartermi.net |
| Signed on: | Sunday, June 16, 2002 at 10:45 AM |
| Comments: I just found out on 6-13-02 that I had a blighted ovum. I am scheduled for a DNC on 6-17-02. I totally know what you are going through. I just need help knowing how to get through this. Please e-mail me and let me know. | |
| Name: | Christine |
| E-mail address: | tinismol@hotmail.com |
| Signed on: | Tuesday, June 18, 2002 at 12:46 PM |
| Comments: My name is Christine I am 28 years old and I had an aggressive molar pregnancy. To have a mole you have to be very unlucky statistically only 1 in 2000 women have a mole and in most cases with a simple DNC you will see the BHCG level fall as the mole is going away. If you have been unlucky like me to have an aggressive mole this is my story. Two years ago my husband and I decided to try for a baby. By January 2000 I thought I was pregnant. Two months later at my first sonogram I was diagnosed with a molar pregnancy. Which by this time was as big as a baby in the 4th month. If, once I thought I was pregnant, I had proceeded in taking weekly blood tests, to track the levels of my BHCG in my blood, and underwent a sonogram by my 4th week, I would have realized that my BHCG was rising to fast and from the sonogram that the pregnancy was not normal. This may have helped my situation since we would have done the DNC earlier and maybe the mole didn’t become aggressive and I would have resolved the problem fast. However, I did a DNC and the doctor said, that it would be difficult to remove all the tissue because it was so big, and that the left over tissue will be washed away with the next period anyway. For our Easter holidays we went to NY were I saw my Gynecologist. He did some further blood test, which turned out, that the BHCG levels were rising. This meant that the tissue left in my uterus was reproducing, and the mole had come back. Diagnosis: Molar pregnancy. The doctors dismissed the fact that I could have an aggressive mole, because it actually can happen that, the left over tissue from a previous DNC, can grow back a little bit, especially if the tumor was as big as mine. So, the doctors were not alarmed and nobody was mentioning the possibility of an aggressive molar pregnancy and I under went a second DNC. By the nature of an aggressive molar pregnancy the DNC procedure can not be effective. As it cannot guarantee to remove all the cells and if one single cell is left behind this may result in the mole growing back. Four weeks later unfortunately the molar had grown back and the BHCG was 86,000. Diagnosis: aggressive molar pregnancy! Standard procedure. IM Metheotraxate 8 day cycle. (Regime of Metheotraxate and Leucowaren alternated one day Metheotraxate on day Leucowaren). This is a very light form of chemo therapy administered with a intramuscular shot and does not seriously affect your health and has only very light side affects with very little nausea and no hear loss. You can lead a normal life with this form of chemotherapy. I underwent this treatment for three months. My BHCG went down very fast and I did not have any complications. My doctors were very happy with my good response to the treatment and as a result when my BHCG reached 0 I had one triple does of Metheotraxate and I was declared healthy on the 1st of August 2000. For the next year I had to control my BHCG every month. For the next year I was perfectly ok with my BHCG down to 0 a good and regular menstrual cycle and good general health. In may 2001 my Gynecologist said I could retry to have an other baby but I waited till the end of august to stop taking my ant conceptual pill. By November I was pregnant but unfortunately had a miss carriage we never did a sonogram only a blood test, resulting in a very low BHCG, which apparently led to a miss carriage. The doctors said to wait for my next normal cycle and try again. In January I thought I was pregnant again and went on my own to check my BHCG, which was up to 6,845. I sensed immediately that there was something wrong the BHCG was simply to high. The first Doctor we saw Diagnosed a Core carcinoma and suggested we should start immediately with the EMACO treatment. One week later we saw another Doctor that diagnosed a very early pregnancy. Unfortunately the following week I had an other sonogram, which showed that, the fetus was not developing any more and the doctors wanted to wait and see if I was going to lose it naturally or if to do a DNC. The following week I did a DNC. This time instead my BHCG level stayed constant at 11,000 for the first two weeks. And, after three weeks I was diagnosed with a new aggressive molar pregnancy and I started with the IM Metheotraxate 8 day cycle regime like a year ago. The BCHG was up to 25,000 on the day I restarted therapy. After 2 weeks of this regime we had a problem, what doctors call a Plato which means that the BHCG is not reducing its self by at least 1/3 but rather it is staying at the same level which can be very dangerous as it might rise very rapidly and thus we needed to start with the AMACO regime as soon as possible. At this point my BHCG was down to 5,000. The EMACO regime is a much stronger form of chemotherapy. The major difference is that you have to be hospitalized for the treatment and instead of one intramuscularly shot you have to take 5 different kinds of drugs and all intravenously on a two week cycle the first week on Monday I took Actinomicen D and VP/16 plus Metheotraxate for 12 hours with a drip in the veins. The following Monday as an external patient I will take Cytoxin and Vinchristin. This kind of treatment is very extreme and for the next three days after the treatment you will feel very tiered and lacking of energy. Common side effects are low blood counts for white and red blood cells and platelets. And like most chemotherapy this will result in hear loss. Which in many cases it is considered the worst side affects as it constantly reminds you that you are not well. Fortunately, though once you terminate your chemotherapy. Your hair will grow back stronger and thicker then ever and in some cases of a different texture. As I mentioned earlier the Molar pregnancy develops much fasted then a normal pregnancy and as we wonted to be 100% sure that we were doing the right thing we consulted another doctor from an other Hospital for a second opinion this took another week and by the time we started the EMA-CO chemotherapy regime the BHCG level had gone back up to 24,000 with the first cycle it went up to 33,000 as predicted by our doctor. The following week the chemo started to work and we were back down to 3,000 then, 400, 100, 70, 33, 22, 16, and finally 5 and last week down to 2. I am almost at the end of my therapy once I reached the 5 mark I am considered cure, as a BHCG between 5 and 0 is normal. Now I only have another 6weeks of chemo to be sure we get even the last cell and my last chemo will be on the 8th of July 2002. In this past 6
months of therapy I asked a lot of second opinions as this helped me to understand my problem and to reassure me that I was being treated the best way possible. I also learned the importance of a good careful analysis of the uterus by a MRI before trying again for a baby, in a couple of year’s time. This is imperative, as you must be sure that the uterus has properly healed, as if there is some scaring tissue left over, the egg is more likely to sit in this light depression area of the uterus and develop a new mole. For my AMACO chemotherapy I have been treated by Doctor Carol Agajanian From the Memorial Slone Catering Hospital. I also asked for second opinions to doctors in the UK, Doctor Edward Stewart Newlands that developed the EMA-CO therapy at +44-208-8461419. Doctor Naoki Tsukamoto in Japan. Doctor Israel in Paris, and other doctors in the US and Italy. Fortunately, the treatment of an aggressive mole is a standard procedure and it is curable at almost 100%. I am now nearly finished with my chemotherapy and looking back, some times is very hard, but I think that it is important to remain strong and to think positive because you know that one day you will be finished and it will be all over and you will forget fast. I truly believe the more positive you think the easier the cure will be. Our head is much stronger then we think. If you think positively this will help your body to resist better to the chemotherapy and to grow stronger. Try to do things that you like to do and be with people that you like to be with. People that make you laugh and that have a positive out look on life and that keep your moral high. To all of you out there that have the same problem I send you lots of love and all the best and hope you will get over it very quickly. If you have any further questions you can email me. P.S. For more detail and for a medical explanation of what is a mole I suggest you look up under molar pregnancies at the www.cancernetwork.com web site were you will find a detailed explanation. |
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| Name: | Sharon |
| E-mail address: | sharonbmad@iglide.net |
| Signed on: | Tuesday, June 18, 2002 at 10:54 PM |
| Comments: Kendra, thank you so much for sharing your experience, and I'm sorry for your loss of Nina. I cried quite a bit, and will read the other chapters later. I can't read any more right now. I had a molar pregnancy about 23 years ago, and there was only one paragraph in one medical textbook at a local college. That was all I could find. It stated that molar pregnancies occurred about 1/35,000 normal pregnancies, so maybe they are more common now. At the time, they said molar pregnancies were much more common in Southeast Asia, and Mexico, and people near military bases. And for people who had been to those places, so they suspected some sort of a virus. I had never been out of the country, but had an old boyfriend who was in special forces in Vietnam, and my husband and I were both in the army, so it did seem to possibly support the virus theory. It also stated that all hydidaform moles were female. So Nina is appropriate. My doctor was a general physician in a small town, so I was 4 months along, and very large. He suspected twins, but never heard a heartbeat. No fetal monitor, only OBGYN’s had them. He used the stethoscope. Then I started spotting. He put me on bedrest, except for my visits every other day. At 5 months, and still spotting, and still no heartbeat, he told me he didn't know what was wrong, but I wasn't showing any signs of miscarrying, so go back to work. I almost sat up and shouted "There is no baby, is there?" But refrained from doing so. After all, there had to be a baby. I was pregnant. Instead of going to work the next day, I called an OBGYN in a town 30 miles away. He had me come in the next day, and told me about molar pregnancies, and that he thought I had one. He did an ultrasound (You wouldn't believe how much they have improved since then) and told me that there was a chance he was wrong (I knew without a doubt that he was right). He advised a D&C. He was going on vacation the next day (Friday), so he wanted me to go home for the weekend, and come back on Monday, and his associate would do the D&C. I (a very shy, quiet person at the time, no kidding!) told him that I wasn't leaving the hospital, and he wasn't going anywhere, until he was done with the D&C. He agreed, postponed his vacation, and did it the next day! When I came out of recovery, I was told the only reason I was alive, is because I insisted on him doing it. The placenta was starting to tear away, and if I had been home, I would have bled to death before reaching the hospital! God was certainly watching out for me. First, He gave me the idea that there was no baby. Then, He led me to pick the right doctor's name out of the phone book. Then, He had me insisting that I not leave. My baby's name is Amy Celeste, and I know He is taking good care of her for me. The blood draws got to be so old. First, 2X a week, then every week, then every two weeks, then once a month for the rest of the year. But luckily my levels went down, and stayed there. The birth control they had me on was strong, and made me sick every month. Then they finally told me that we could try again. By this time, I was obsessed with having a baby. That was my only thought. Every month, I thought I was pregnant. 45 days after my period, I'd start again. So I started thinking I was crazy, but the last time, I saw a small white bone. My husband knows that was his son, and named him Russell. I had been getting pregnant each month, only to miscarry, most likely because I was so stressed. I was quite paranoid about the molar pregnancy reoccurring. I visited the doctor, he did another exam, told me everything looked OK, and that I needed to relax. I estimate I had 9 miscarriages. I was pregnant again the next month, and my long awaited Amanda Jean was born in Jan 1982. Jessica Kay followed in August 1983, and Rebecca Joan, in Oct 1984. They are truly gifts from God, and I thank Him for them quite frequently. Thank you again, Kendra, for this wonderful web site. Love, Sharon |
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| Name: | Kathy |
| E-mail address: | chattiekathie777@hotmail.com |
| Signed on: | Wednesday, June 19, 2002 at 1:22 PM |
| Comments: My daughter had her DNC last Friday and the mole was 3 times bigger then the DR. said it should be. She was 3 months pregnant and only 18. She has had no other pregnancies. So I am praying that this is not cancer. | |
| Name: | sanya mezini |
| E-mail address: | sanyam@msn.com |
| Signed on: | Wednesday, June 19, 2002 at 9:11 PM |
| Name: | Jessica cartwright |
| E-mail address: | jessybear23@hotmail.com |
| Signed on: | Thursday, June 20, 2002 at 10:51 AM |
| Comments: I don't really understand about things like this. But what I do know is that I lost my baby and I just found out on Tuesday 18,2002. I go for a DNC on June 21,2002. My baby is too big to miscarriage and too big to abort. My baby is still inside of me but it has no heart beat. I am trying to get information on the DNC and the point that what cause my baby to die. I have a tumor in my ovary and the thing the baby feeds off of grew on the tumor. So the baby was feeding off the tumor and the next thing I know my baby has no heartbeat. I am only 19 years old and really don't understand. I am just wondering if anyone has any information that will help me out. My first pregnancy and it died now I am scared to get pregnant again. Thank you for every story that’s in here. It helped with my feelings. | |
| Name: | saidah |
| E-mail address: | saidahmohd@yahoo.com |
| Signed on: | Friday, June 21, 2002 at 7:25 AM |
| Name: | sandy |
| E-mail address: | asherclan@earthlink.net |
| Signed on: | Sunday, June 23, 2002 at 11:00 PM |
| Comments: I have been through this, I went through the chemo everyday for a couple weeks and was able to have a healthy boy after the years of blood tests. I credit your strength! I never heard of it and my doctor had never dealt with this and we both learned a lot. He kept saying the chances are slim! and everything he said happened. I am cancer free and have a hcg count done every 3 years to keep a check because " there is a slim chance" it could return. Best of luck for you and your family! | |
| Name: | Kendra R. Conway |
| E-mail address: | tiger2006kc@yahoo.com |
| Signed on: | Tuesday, June 25, 2002 at 12:25 AM |
| Comments: Hi Kendra. This is Kendra from Georgia, I am 14yrs. old. I am so sorry to hear what happen BUT I know our life is not just sympathy even know there is nothing wrong with it so I would like to bless you with a fun, exciting, joyful life. Please email me so I can send you a picture. You are very pretty inside and out!! | |
| Name: | Kristy Richardson |
| E-mail address: | raesbay@cannet.com |
| Signed on: | Wednesday, June 26, 2002 at 4:47 AM |
| Comments: I too experienced a molar pregnancy in December 1990. I was 12.4 weeks into my pregnancy according to the radiologist. After all these years the memory still is there and now I am at a point of fear again. I am one week late for my cycle and my doctor has performed numerous tests which are all inconclusive at this point. I may be pregnant, but my doctor is more concerned about it being molar at the moment. I am so touched that you have chosen to share your story with the public eye. You have no idea how helpful it is to hear another's story and to feel like I am more part of a group than out there on my own with this. In 1990 my molar pregnancy almost killed me. The hospital I had gone to in Canton Ohio had only ever seen two or three cases of molar pregnancy. They performed a D&C followed by a three week round of chemotherapy. I accidentally became pregnant again in February of 1991 after my chemotherapy, but my 10 year old son has been doing great despite the fact that my body was full of toxins when he was conceived. I was advised by my doctors that I should have a tubal ligation done post-delivery to prevent any future pregnancies. Now, over 11 years later, I might be staring this once again in the face. I am remarried to a wonderful man who has no children of his own and we would more than welcome a pregnancy at this point. The thought of facing what you and I have faced before frightens me. Just know that you are not alone in what you have been through and that your generosity in being so open about your life will surely help many people that turn to the web for answers or for consolation. Thank you again. | |
| Name: | Carrie |
| E-mail address: | howat@comcast.com |
| Signed on: | Wednesday, June 26, 2002 at 6:25 PM |
| Comments: Thank you for telling your story so openly and real!! I am in the process now of dealing with a Molar Pregnancy and didn't know where to turn until I found your web site. I go in for blood work tomorrow and then ultrasound Friday. Thanks for sharing your story and guestbook!! After three miscarriages it is good to know that there are other people out there willing to talk about it. Thanks Carrie |
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| Name: | Andrea |
| Signed on: | Thursday, June 27, 2002 at 9:53 AM |
| Comments: I am sorry for your loss. I, too, had a molar pregnancy 15 years ago, but then I went on to have two happy and healthy little boys. There is always hope. | |
| Name: | Heidi Hayes |
| E-mail address: | blossom28@yahoo.com |
| Signed on: | Saturday, June 29, 2002 at 2:30 PM |
| Comments: I am very sorry for the loss and pain you have been through. I was diagnosed 6/26/02 with a complete molar pregnancy at 15 weeks gestation, and I am scheduled for a D&C on 7/2. I can only pray that it does not spread. Every pregnancy I have had has caused me some problems. First, a pituitary tumor, Second a very rare Ovarian cyst (the size of a watermelon), Third a hematoma behind the placenta and PROM, and Fouth--> the complete molar... I have decided that I have been blessed with 3 beautiful children and one that is God's angel and now I am sadly having my tubal ligation. My prayers are with everyone. No matter how you have suffered your losses, they are painful. Blessings to All and thank you for a place to come to comfort each other and know that we are not alone. Heidi |
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| Name: | Lisa Kamangirira |
| E-mail address: | lmelton19@hotmail.com |
| Signed on: | Saturday, June 29, 2002 at 6:02 PM |
| Comments: Thanks again for this amazing story. You have given me some hope. Good thoughts to all who are going through this, I am with you. Peace and love Lisa |
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| Name: | val Flay |
| E-mail address: | valsamuels@aol.com |
| Signed on: | Saturday, July 6, 2002 at 4:53 AM |
| Comments: I am a 39 year old lady who has just be told that I have had a partial molar pregnancy. This is a second blow for me this year, I had an ectopic pregnancy in Feb. I do have a very healthy 19 year old son, but I got married in April to a wonderful man who would love a child of his own. I am waiting for a letter from a specialist center in Sheffield, England so that they can test my HCG levels. I was told at my local hospital that I have to wait a least six months to a year before we can try again. Time age wish is running out for me. I was so glad that I found your site, because I feel I was not given enough information about the condition from my own hospital. I hope I have an happy ending. God bless Val |
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| Name: | Sarah Brown |
| E-mail address: | dvbdesign@sbcglobal.net |
| Signed on: | Sunday, July 7, 2002 at 1:08 PM |
| Name: | Kristine Todd |
| E-mail address: | ktodd@trimar.ca |
| Signed on: | Tuesday, July 9, 2002 at 6:52 AM |
| Comments: I just wanted to thank you for the information you have provided on your site via your experience. I have a good friend that just suffered a Molar Pregnancy and I wanted to understand more fully what she is going through and I was able to learn a lot from your site. I pray she doesn't have to deal with GTD in the future. She just had a D&C yesterday and is going for her first blood work next week. Thanks again for sharing your painful experience. Kristine Todd |
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| Name: | Amy Vaughan |
| E-mail address: | dav@jobe.net |
| Signed on: | Tuesday, July 9, 2002 at 12:33 PM |
| Comments: I got married On September 9th 2000, and found out I got pregnant our wedding night. I was 12 weeks along and started bleeding bad, I went to the doctor thinking I was having a miscarriage. When actually it was a molar pregnancy. I had it taken out on Dec. 8th 2000. I was so scared. It turned out it was not cancer. My HCG level dropped to nothing in no time. I just had my last check up and got off of the birth control Dec.8, 2001. I found out the other day (July 5th, 2002) that I am pregnant. I am so scared. I was just wondering if you would pray for me. It’s nice to talk to someone that knows what you are going through. I am so happy that you had a healthy baby. I am sorry to hear about your other pregnancies. Please e-mail me back. God Bless You!! Amy | |
| Name: | Sally |
| E-mail address: | sally@moles-moles.com |
| Personal Web Site: | http://www.moles-moles.com |
| Signed on: | Wednesday, July 10, 2002 at 11:35 AM |
| Comments: Very cool web site indeed. | |
| Name: | Raquel Brownfield |
| E-mail address: | raquel1@bigplanet.com |
| Signed on: | Wednesday, July 10, 2002 at 8:38 PM |
| Comments: I had a molar pregnancy in 1963. I have heard very little about this condition.I know the feelings this causes.You are in my prayers. | |
| Name: | Kenda H. |
| E-mail address: | hugbugs@outerbounds.net |
| Signed on: | Wednesday, July 10, 2002 at 9:30 PM |
| Comments: Thanks for putting your experience into words and for the links to information on molar pregnancy (something you never hear of until it happens to you). My husband and I found out this past Mother's Day we were pregnant again - surprise since our youngest was only 10 months! I had had some spotting almost from the start which was attributed to the recent full term pregnancy. When I had some light cramping, I called the doctor who ordered an ultrasound. The news was - blighted ovum, wait for it to miscarry. Boy is the waiting hard! After two weeks and no miscarriage and a vacation only 10 days away, we opted for a D&C. We had a call from the doctor while we were gone. When we finally caught up with her after getting home, the news was that the "tissue" testing showed a tumor - molar pregnancy. I just had my first blood draw today to check hormone levels and kidney and a chest x-ray. It is reassuring to read your site and some others and see that we are right on track with treatment so far. I pray that the hormone levels drop and stay at zero, but trust that God is in control even if they don't. I have my two girls (now 1 year and 4 1/2 years) and a loving husband to keep me busy in the meantime. I am thankful that even after all the waiting we ended up with a D&C rather than a miscarriage, because we may have never known there was a possibility of further trouble, thinking the loss was due to blighted ovum. I thank God for the healthy babies we have and look forward to meeting the ones who left us too soon when He takes us home! | |
| Name: | Brandy |
| E-mail address: | smurfette2523@aol.com |
| Signed on: | Saturday, July 13, 2002 at 11:14 PM |
| Comments: Thanks so much for this website--your story fits mine to a tee! I'm just now going through my weekly blood draws. I have felt so lost since my "loss". Its great to hear that you have come to have future children. I am finding it very hard having to wait an entire year to conceive again, when the light at the end of my tunnel was being able to try again after my D+C on June 10, 2002. Now I get another blow stating that I had a partial molar pregnancy and have to wait so long. your story gives me hope and strength, thank you | |
| Name: | starlett soto |
| E-mail address: | starslife78@yahoo.com |
| Signed on: | Sunday, July 14, 2002 at 2:17 PM |
| Comments: Your story is very heart touching. Bless you and your little one. | |
| Name: | Kristy Clark |
| E-mail address: | kc041075@hotmail.com |
| Signed on: | Tuesday, July 16, 2002 at 11:00 PM |
| Comments: Thankyou for sharing your story about Nina. I also lost my baby Zack on 4/4/02, due to a complete molar pregnancy. I also had a healthy fetus. This is extremely rare, as I had conceived twins initially. I too am on the methotextrate, and my levels are rising again. I am due to start on the Dactinomycin next week. Your site has shown me that there is a light at the end of the tunnel, and may have the family I dream of. | |
| Name: | NANCY G. |
| E-mail address: | YATZARETH_SERRATO@YAHOO.COM |
| Signed on: | Wednesday, July 17th 2002 at 6:22 PM |
| Comments: JUST WANTED TO LET YOU KNOW THAT THIS PAGE THAT YOU HAVE HAS HELPED ME IN SOME WIERD WAY AT THE MOMENT IM 1 MONTH PREGNANT AND I REALIZED THAT NOTHING IS FOREVER AND I REALLY ADMIRE YOU FOR DEALING WITH IT YOU ARE A VERY BRAVE WOMAN AND I JUST WANTED TO THANK YOU FOR SHARING YOUR PAGE WITH EVERYONE AND REMEMBER YOU WILL ALWAYS HAVE AN ANGEL WATCHING YOU FROM ABOVE | |
| Name: | P |
| Signed on: | Thursday, July 18, 2002 at 1:02 PM |
| Comments: Your page really helped explain a lot of things that seemed greek at the time the doctor told me about my situation. I just recently found out that I have a molar pregnancy. | |
| Name: | sarah |
| E-mail address: | babygirl961983@aol.com |
| Signed on: | Friday, July 19, 2002 at 11:46 AM |
| Name: | jennie |
| E-mail address: | mjacobs@nycap.rr.com |
| Signed on: | Friday, July 19th 2002 at 2:42 PM |
| Comments: I am very sorry for your loss i lost my son Ryan at 16wks he died in utero i was put into labor and delivered my son the next morning . i think about him every day that was march 19th 2002 now iam pregnant again and terrified my due date happens to be 3/19/03 i hope this is a good sign from my angel that everything will be ok he died due to a chromosonal disorder trisomy 18 we found out later this is a beautiful site Jennie mom to Marcus 8,Dylan 4, Ryan born asleep 3/19/02 and unborn baby due 3/19/2003 | |
| Name: | misty miles |
| E-mail address: | meow@semo.net |
| Signed on: | Saturday, July 20, 2002 at 3:46 PM |
| Comments: We lost our little one December14, 2001. We don’t talk to much about it because it hurts so bad and there’s to much we just can’t understand, especially me I don’t know how to cope. My husband named our baby Stacey Laveral Miles and we are planning to create a memorial. Thanks for your web site was very helpful in our loss. | |
| Name: | maureen cal |
| Signed on: | Monday, July 22, 2002 at 10:57 AM |
| Name: | Dana Nichols |
| E-mail address: | rdana@teition.net |
| Signed on: | Tuesday, July 23, 2002 at 4:04 PM |
| Comments: I am 26 and had a molar pregnancy in June 2002 and just found out that I now have the gtd and will be having chemotherapy. | |
| Name: | Heather |
| E-mail address: | peter.tormey@virgin.net |
| Signed on: | Tuesday, July 30, 2002 at 4:15 AM |
| Comments: Thankyou for your web page. I miscarried at 8 weeks and had my D & C 3 weeks ago. I have been trying to be positive and at 3pm today was hit with the blow of a complete molar, even though there was a baby with a heart beat up until week 7. I live in the uk and have to wait until tuesday for any information at my appointment. I am so scared, but with the help of your site I will be able to get through the next few days | |
| Name: | Debra Walsh |
| E-mail address: | barnhamdk@hotmail.com |
| Signed on: | Wednesday, July 31, 2002 at 1:49 PM |
| Comments: I have been thought the same sort of thing. Every November i go thought the event all over again. this happen in 1996 and every year is still the same feeling. I didn't have any support after the event. I have now two beautiful children age 5 and age 2. I never enjoyed any of the pregnancy. Time will get better Love Deb | |
| Name: | Pam C |
| E-mail address: | buffy0502@msn.com |
| Signed on: | Wednesday, July 31, 2002 at 11:58 PM |
| Comments: I just recently heard about Molar Pregnancy. I have a sister who is 22 with 3 children. Her youngest is 7 months. She was just diagnosed with cancer in the uterus and the doctors called it molar pregnancy, but they didn't know exactly what caused it. She has been very sick for a couple of months now and she thought that she was pregnant again because she was getting bigger in the stomach, but found it hard to believe since she still bled every month. She had pregnancy tests done and every time came back negative. She finally had blood work done and doctors found her hormone levels high and that was the only way she found out. She was admitted into the hospital right away where they did a scraping and cleaned it all out. It was the scariest moment in my life thinking my one and only sister might die. I was very relieved to find that the doctors removed the cancer and she will be fine. She is very week now but is looking better than she has in months. I couldn't imagine how it felt to actually know your pregnant and know that you would never see the child or hold it close to you. | |
| Name: | chana marsh |
| E-mail address: | rainbowred_62@msn.com |
| Signed on: | Saturday, August 3, 2002 at 9:15 PM |
| Name: | Stephanee |
| E-mail address: | qtpiinla@socal.rr.com |
| Signed on: | Saturday, August 3, 2002 at 10:01 PM |
| Comments: I am very sorry to hear of your stories about Nina and Abigail. I have never had a molar pregnancy, but did suffer a miscarriage June 18th, 2002. I just got married 2 weeks ago, and found out the day after my wedding I am pregnant again. I am awaiting my first doctor's appointment and ultrasound. I already have a 10 year old daughter. I wish you all the luck in the future. :) | |
| Name: | Gina Meyers |
| E-mail address: | ginam1214@att.net |
| Signed on: | Sunday, August 4, 2002 at 8:59 PM |
| Comments: I was also diagnosed with a molar pregnancy in June 2002. My Doctor's associate did the first D&C and left much tissue inside me, then signed off on the path report never mentioning to my Doctor about the molar pregnancy. It took a month and a second D&C before I found out I had this molar pregnancy. (The Doctor has since been fired). Right now my HCG levels are 2. Hopefully they will not rise. Best of luck to you and your wonderful family. I also have three children. | |
| Name: | Stacia |
| E-mail address: | Staples@essex1.com |
| Signed on: | Wednesday, August 7, 2002 at 4:11 PM |
| Comments: I too had a partial molar pregnancy. My husband & I tried for about 7 months then finally we were pregnancy! We were so excited. Everything was going better than expected. I was never sick a day & felt great. I never had any bleeding, cramping, headaches, no symptoms what so ever that anything was going wrong. We went to hear the heartbeat at the 13th wk mark & there was no heartbeat so they did an ultrasound & found nothing moving around so she sent me to have a pelvic ultrasound. She looked & looked & finally stated that she was sorry, but the embryo only made it 7wks but the pregnancy had gone on to the 13th wk. I was scheduled for my D&C 2 days later. I started my hcg level testing, they were at 534 5 days after my D&C w/in 4 wks they had gone to under 5. My Doctor wants me to wait a full year to try to have a baby, but all the reading I've done says that 6 months is usually customary for a partial. I went to see another doctor & he said that I was such low risk that he wouldn't be worried if I was pregnant in a month. Some support sites say "up to" 6 months & some say "treat it as a normal miscarriage". I'm 29 yrs old & am anxious to try again but don't want to risk my chances of getting cancer or harming my baby in any way. I was wondering if anybody else out there has gotten pregnant before the 6 month mark or if anybody's doctor has given advice of treating it as a normal miscarriage & trying again soon. (My D&C was on June 26th 2002) | |
| Name: | Brenda |
| E-mail address: | Onehunybee@aol.com |
| Signed on: | Thursday, August 8, 2002 at 7:15 PM |
| Comments: My daughter is having her third ultrasound next week. She is 29 on Monday. First pregnancy. She was married for six years and has been divorced the last 4. She was told she couldn't have kids. They were wrong. ( has a younger boyfriend now) Now there's another sac and some tissue. Yet there's a baby in another sac with a very strong heartbeat! She has no clue it could be molar pregnancy or probably hasn't even heard of it. I had not heard of it either. I am really scared and don't want to upset her by telling her I think I know what it is. I have been reading this site and tears are flowing all over the place. I know this will devastate my daughter! But with the Grace of God, she will triumph as she did with her panic attacks. I miscarried a baby at 3 months. I came down with the mumps. That was my second pregnancy and my daughter was the third. I know how devasted I was and that was in 1972. Thanks for listening. | |
| Name: | Kathryn |
| E-mail address: | natnboo@aol.com |
| Signed on: | Sunday, August 11, 2002 at 1:00 PM |
| Comments: I kind of know how you feel! In dec. of 2001 after two years of trying too get pregnant, I finally got a positive test! Two weeks later I had a miscarriage. Then three months later I got pregnant again. This time every thing seemed to be going well, except that I was staying sick.... constantly. I had a ultrasound done expecting to see my baby but... The doctor said that there was no baby there. That hurt me so bad, I had never heard of a molar pregnancy before and I am now still having to go once a week for blood work. Your story was very encouraging for me. Thank You | |
| Name: | Sherree Olson Prokes |
| E-mail address: | jimsherree@aol.com |
| Signed on: | Wednesday, August 14, 2002 at 7:13 PM |
| Comments: I haven't read the article yet, but I am looking for information. I had a complete molar (sp) pregnancy and have been on methotrextate for six weeks. They are looking to possibly start me on EMACO since the beta HCG seems to be at a stand still and actually started going back up instead of down one week. I'm hoping this article will give me some additional information. If you have any resources that may help me, don't hesitate to e-mail me. Thanks, Sherree | |
| Name: | misty miles |
| E-mail address: | meow@semo.net |
| Signed on: | Thursday, August 15, 2002 at 1:41 PM |
| Comments: we lost our little one on December 14, 2001. It was a molar pregnancy. | |
| Name: | Kenya Greene-Henderson |
| E-mail address: | kensblessed@aol.com |
| Signed on: | Tuesday, August 20, 2002 at 5:51 PM |
| Name: | Angela |
| E-mail address: | johnson120@tesco.net |
| Personal Web Site: | http://www.geocities.com/johnsonangelbaby |
| Signed on: | Tuesday, August 20, 2002 at 5:52 PM |
| Comments: What a lovely and touching site you have here. You are so very brave. Hugs to you all Luv Angela (Joe's Mum) |
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| Name: | Christine |
| Signed on: | Wednesday, August 21, 2002 at 2:36 PM |
| Comments: We lost our first baby to a molar in Feb 1997. We have gone on to have two beautiful and healthy baby boys. We are now expecting #3, and praying that everything is okay. | |
| Name: | Kathy |
| E-mail address: | kamari317@ivillage.com |
| Signed on: | Wednesday, August 21, 2002 at 9:31 PM |
| Comments: Your story has touched me so deeply...I, too, suffered a missed miscarriage during my twelfth week and underwent a D & C to remove my angel. We, too, had decided on the name Nina, should it had been a girl (we never had a boy's name in mind). My oncology report came back with high hcg levels and I went for a 6 consecutive blood tests. Fortunately, mine went to normal. I admire your courage and your strength. I was blessed one month later with another pregnancy, and as of March 5, 2002, Adriana Camille has blessed our lives. Although it was a difficult pregnancy (I was on full bed rest because of bleeding for 8 months and then delivered by cesarean), I know in my heart that our Nina was watching over her sister to make sure she came to us safely. I thank God everyday for our miracle. I wish you all love, health and happiness. | |
| Name: | Toni Satterwhite |
| E-mail address: | tsatterwhite@edix.com |
| Signed on: | Thursday, August 22, 2002 at 11:34 AM |
| Name: | Jennifer Brite |
| E-mail address: | JLPhoto3@cs.com |
| Signed on: | Thursday, August 22, 2002 at 4:16 PM |
| Comments: My best friend is going though this. She thought she was pregnant, but having very bad morning sickness, she also had a lot of bleeding. Finally she went to the hospital. They did the sonagram and they found the grapelike tissue in her uterus. They told her she has a malignant pregnancy. I had to look that up on the internet and came up with the molar pregnancy. She decided to have the DNC. It's been two weeks and her HCG level is above 900. Thank you for putting in all of your numbers, that helps me visualize the situation. I printed your story out for her, maybe it will make her feel better, maybe not, but it will answer some questions for her. Thank you for your story and God Bless you and your family. Jennifer Brite |
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| Name: | alisha |
| E-mail address: | alisha2314843@yahoo.com |
| Signed on: | Monday, August 26, 2002 at 11:49 AM |
| Comments: Hi my name is Alisha and I just found August 26 2002 that I have a molar pregnancy reading your story has really helped me with my loss. | |
| Name: | Joanne |
| Signed on: | Tuesday, August 27, 2002 at 8:35 AM |
| Name: | Lynnette |
| E-mail address: | lynnette@circuitwerkes.com |
| Signed on: | Tuesday, August 27, 2002 at 3:50 PM |
| Name: | maryanne |
| E-mail address: | Mac28767@aol.com |
| Signed on: | Tuesday, August 27, 2002 at 5:08 PM |
| Comments: My 16 year old niece has just been told she had a molar pregnancy. Her blood levels have gone back up. Has been told she will need to see an oncoligist/obgyn. And take chemo pills. Have not heard any more than this so far. But have never heard of this before, trying to find out more about it. thank you. | |
| Name: | pat duvall |
| E-mail address: | ppduvall@arkansas.net |
| Signed on: | Monday, September 2, 2002 at 8:46 AM |
| Comments: I have a friend that recently underwent a d&c for a molar pregnancy. They don't know if it was complete or partial yet. They will know after her lab tests are checked. I was looking for some information to help her feel better about her experience. Thanks | |
| Name: | Johanna |
| E-mail address: | cdussen@shaw.ca |
| Signed on: | Monday, September 2, 2002 at 9:15 PM |
| Comments: Thank you for your story. My daughter, 26 (almost 27) met the man of her dreams, married (Mar 2 this year)and hoped to have their first baby Mar 26 '03. So excited! She has waited for this blessing since she was a young girl. But first she waited on the Lord for her husband. Then Pregnant! But her story has been as yours up to last week. (She also had an ultra sound at 2 months, so earlier- thankfully!) She had the D&C last Friday and is now waiting for the results. We just pray that it is not cancerous. It is discouraging for her that she might have to wait one year...they are grieving but submitting to the Lord's will. Thank you for your story ... Thankful to God He has blessed you with more children. We trust He will do the same for our daughter. Thank you also for informing us that there WAS a baby - the Dr. told her not! We were rejoicing that their child was in heaven with 2 of my miscarried children; now we can entertain that thought and fact again!! Johanna on behalf of her daughter Nicole and their Little Ee, as they called 'him'. |
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| Name: | SUSAN |
| E-mail address: | STRUEAX@HOTMAIL.COM |
| Signed on: | Tuesday, September 3, 2002 at 3:12 PM |
| Name: | Jane Loyd |
| E-mail address: | jloyd@jafferaitt.com |
| Signed on: | Wednesday, September 4, 2002 at 10:41 AM |
| Comments: Thank you so much for sharing your story. It helped me understand what my daughter-in-law is going through. D & C tomorrow (9/4/02). Keep her in your prayers. | |
| Name: | angie sanders |
| E-mail address: | a_sanders80@hotmail.com |
| Signed on: | Friday, September 6, 2002 at 10:16 AM |
| Comments: I was very touched by your stories. I am very happy to hear that you ended up with 3 wonderful children!!! Congrats!!! | |
| Name: | melissa burns |
| E-mail address: | lburns@iland.net |
| Signed on: | Tuesday, September 10, 2002 at 3:09 PM |
| Comments: Thank you for sharing your story its been two years since my molar pregnancy and now we are going to start trying to have another baby. Its pretty scary and your sight has really helped to not only give me some hope but to understand what had happened to my body and my baby that I lost. I had never found your website before now and even though two years have passed sometimes it still seems like it was just yesterday! Thanks again I know that our angel babies watch over us. | |
| Name: | mistie Johnson |
| E-mail address: | bizzyboddy83@hotmail.com |
| Signed on: | Tuesday, September 10, 2002 at 3:12 PM |
| Comments: I just lost my baby from a molar pregnancy and I am so depressed I have had 4 miscarriages in the last year and a half and the doctors can not find anything wrong Mistie |
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| Name: | Donna |
| E-mail address: | dshouck@sbcglobal.net |
| Signed on: | Thursday, September 12, 2002 at 1:47 AM |
| Comments: I saw your letter and email on the internet and wanted to share with you. Within 4 weeks of learning I was pregnant with our 2nd baby, my tummy was the size of a 4 month pregnancy and I was in maternity clothes! I began to bleed heavily and went to the doctor. By the time I got to the doctor the bleeding had completely stopped. He did another pregnancy test and said I was still pregnant and had not miscarried and to go home and stay off my feet. A few days later it happened again. We went through the very same thing. Tests were still positive. I was so worried about having lost all the blood and wondered if my baby could still be okay. Finally in my 6th week, I began to hemorrhage profusely. They did a Sonogram and came back and told me there was no embryo. They tried to explain the molar pregnancy and I had never heard of such a thing in my life! I could find nobody who had ever had it happen to them or had heard of it! I felt alone! However, a few weeks later, my doctor had conferred with other doctors where we lived and found out there had been another woman there several years before who had gone through this. I was put in touch with her and it helped so much to have somebody who understood. She unfortunately, was given a hysterectomy because a lot was not known then about it and that was the usual procedure. The next morning a D&C was done. A mass resembling a huge cluster of grapes was removed and sent to the lab. I developed toxemia and was so swollen by the next morning, my eyes could barely open. They started diuretics to remove the excess fluid. The bleeding had been due to these little "cluster of grapes" rupturing and they are full of blood vessels. My HCG titer was 800 after surgery and I did weekly blood tests and for 3 months they continued to decline down to 76. Suddenly, the next one came back and had risen to 126. My doctor called me at work, which was an inappropriate place to give me the news that he suspected the cells were growing and may be spreading and he wanted me in Houston at M.D. Anderson the following Monday morning. It was Thursday when he called. I was shocked, angry, scared and hysterical! My precious 4 year old son needed me. I just had to live to raise him! My husband and I left on Sunday for Houston, having left our son in the care of grandparents. The next 3 days were spent getting one test after another. All I wanted was for them to just get the mess out of me, do a hysterectomy and let me live to raise Philip. When I made this request to the doctor, I will never forget his answer... "Oh no, this is very treatable now and you should be able to have another baby in time." Oh me, of little faith! What joyous news. However, he went on to explain that I would need 3 to 5 rounds of Chemotherapy to kill this tissue. Thankfully, it was still confined just to the uterus. I started the first treatment the next day. We started with daily treatments of Methotrexate for 5 days and then I would go home for 8 days. We lived 6 hours away from Houston. The treatments were alternated with Dactinomycin. After my 4th treatment, which had taken 3 months, my titer was a 3. They wanted to do one treatment beyond that and then I had to stay within normal range, 3-5 for one year before I could try to get pregnant again. What a joy when my periods began to return normally, every 28-30 days! I never would have dreamed that could be exciting, but it was normal! My body was returning to normal. My titers did stay normal for a year and I was released to try to get pregnant. After 3 months I was pregnant and I returned to Houston for a check-up and they told me to come back when my baby was 6 weeks old! I continued in the care of my home OB/GYN throughout the pregnancy. I did have placenta previa and delivered by C-Section, a 9 lb. 0oz., 21 1/2 inch baby boy! What a happy day when we went back to M.D Anderson, our precious new baby with us to show off to my doctors and nurses! A triumphant and victorious celebration! My boys are now 27 and 21 and they are the light of my life. I want every woman who experiences this to know of the hope and the future of a successful pregnancy! | |
| Name: | Diana |
| E-mail address: | diana_lynn41@hotmail.com |
| Signed on: | Sunday, September 15, 2002 at 7:12 PM |
| Comments: I would like to thank you very much for sharing your story. A friend’s wife is going through this right now and i wanted to understand it better. It's a rough time for him so I didn't want to ask to many questions. Your story really helped me to understand what’s going on. Her BCG levels finally went down to under one and they thought everything was fine but just like you they went up again. This was their first pregnancy and they want a child so badly. I sent your information to him hoping he learns more about what is going on as well. He works in another town so the phone is his only way of keeping up to date on what’s happening. I know this is a very rough time for both of them and I'm praying things turn out okay. Thanks again, Diana |
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| Name: | Tara Simon |
| E-mail address: | tarasimon18@msn.com |
| Signed on: | Monday, September 16, 2002 at 5:47 PM |
| Comments: I went for my 12 week check-up and found out about my molar pregnancy. I had a D&C 3 weeks ago and will find out tomorrow if it has continued to grow inside of me. I am terrified! I not only lost my baby, but I am terrified of my own future to. I can only hope to be as strong as you until this is all over. I wish you the best of luck. | |
| Name: | Peggy |
| E-mail address: | PPridgen@msn.com |
| Signed on: | Monday, September 16, 2002 at 8:53 PM |
| Comments: My daughter had the same thing. May God always be with you | |
| Name: | Tonda Capps |
| E-mail address: | Tlcapps1@msn.com |
| Signed on: | Wednesday, September 18, 2002 at 11:16 AM |
| Comments: I had a molar pregnancy in 1998 and at that time, I was 37. It was the most horrible experience I have ever encountered. At the time, my husband was very nonsupportive and ultimately, the marriage ended in divorce. I had my tubes tied in 2000. I find myself having very mixed emotions about the decision I made to have my tubes tied. I have met someone that I really care about who does not have children. I am now 41 and feel that I am too old. (Only in the sense of age, not the way I feel physically.) The main reason I had my tubes tied was because I was terrified of experiencing another molar pregnancy. Your comments are very welcome. Thank you Tonda |
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| Name: | Kim |
| Signed on: | Wednesday, September 18, 2002 at 8:44 PM |
| Comments: I found your site because my child’s dance instructor for five years now is experiencing this same thing. You and your family will be in my prayers. May God Bless You All! | |
| Name: | Trish |
| E-mail address: | BlackViper114@hotmail.com |
| Signed on: | Wednesday, September 18, 2002 at 10:28 PM |
| Comments: I myself went through what you have. I was also at the 3 month mark, but I was sure it was a boy. His name was Austin. It was May 26th of 2001, about 3 months after my husband and I got married. Austin was to be our first child. Though mine was not a partial, but a complete molar pregnancy. I have spoken to people about it, and they ask me "how can you cry over something that wasn't even there?" I don't even know how to answer that to this day. My due date was supposed to be December 6th, 2001. I was so excited that my hubby and I went out and bought a load of new baby stuff. Diapers, bottles, receiving blankets, toys, nibbles, socks, jumpers, bag, bath, face clothes, etc. I am 21 years old, but I feel decades older. Please write to me so I can have someone to talk to who knows what it's like to go through what I have. No one else seems to understand. Trish |
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| Name: | kellie porter |
| E-mail address: | kelliekettle@aol.com |
| Signed on: | Thursday, September 19, 2002 at 6:19 AM |
| Comments: Thank you giving me the opportunity to hear your story. I am trying to gather as much info. as possible for my sister who lost a baby last month and has now been told that it was due to a molar pregnancy. Many thanks Kellie |
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| Name: | Marcia Jones |
| E-mail address: | jfco@telpage.net |
| Signed on: | Thursday, September 19, 2002 at 6:45 AM |
| Comments: Read your story, so glad that things turned out well for you. I know it was a sad and frightening time. I had a pregnancy a long time ago in which the doctor told me that I was pregnant and not pregnant, he said that I passed the egg and the placenta was growing. I don't know if it was the same thing or not. I had another child after that and I never heard anything about any of this. I have a friend going through the hormone tests and shots now. I may refer her to your site, it would be helpful to her I am sure. God Bless you and your family. | |
| Name: | Cindy |
| Signed on: | Thursday, September 19, 2002 at 10:31 AM |
| Comments: I too had a molar pregnancy. I was only 22. I am now 44 and went on to have 2 children after that happened. I really need to know if this has lasting effects as now I am really having a lot of problems with my periods. Please write something about this on your site and I will be watching. God Bless and Thanks!! | |
| Name: | ALANA |
| E-mail address: | asorrels6698@yahoo.com |
| Signed on: | Friday, September 20, 2002 at 12:19 AM |
| Comments: Your story means so much to me, it helps me everyday to know that someone else knows what I'm feeling and that there is someone I can talk to that understand. the only thing I can say is to keep strong and God bless. | |
| Name: | TRACY REESON |
| E-mail address: | MARKREESON@MSN.COM |
| Signed on: | Friday, September 20, 2002 at 2:16 PM |
| Comments: I HAD A MOLAR PREGNANCY IN MAY THIS YEAR.I AM JUST TRYING TO FIND OUT MORE INFO ON THE CONDITION. MY REGARDS TRACY REESON |
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| Name: | ida |
| E-mail address: | mixoncassidy@aol.com |
| Signed on: | Sunday, September 22, 2002 at 4:06 AM |
| Comments: it happen to me also back in April of this year.'02'i was 11 weeks.the doc said I had a partial molar. He said it was only the sac there. He told me to wait a year, but I'm ttc now and it's been 5 months. I'm scared but I'm praying to god to bring my baby back healthy are at least give me one of his healthy angels. God bless you and your family. angel baby nov.02,ida,cassidy | |
| Name: | Tonya |
| E-mail address: | tola@myvine.com |
| Signed on: | Sunday, September 22, 2002 at 4:14 PM |
| Comments: Hello, I actually found this website a few months ago and after reading your story and several others. I did not have the strength to share my own story. I am sorry about your loss and those of many others. I too lost a baby due to a Molar Pregnancy in May of 99. I cannot begin to explain to describe the pain and loss that I felt (as many of you can probably relate). I was so excited about being pregnant and getting ready for my first baby and then for my doctor at my fist ultrasound to take it all away in one day. I couldn't believe it. Right away I could not comprehend it. What had I done wrong. I was scheduled for a D&C and thank God my hormones went down and I recovered well. My doctor told me that I could try again in four months which I hear is earlier than most doctors recommendations. Those four months went by so slow as every day I thought about the baby that I wanted and learned several scary things that I did not know. My doctor did not know much about this and I had heard that this was cancer. Thank God that I recovered well. My heart goes out to those who haven't. After the four months were up. We got pregnant and had a very healthy pregnancy. On June 29, 2000, we had a little boy!!! He is two now and is everything to us. I still think about my first pregnancy and wonder why that happened to me. What wrong with my body?? I plan to have another baby sometime next year. I am afraid that this could happen again!! | |
| Name: | Marileen Roux |
| E-mail address: | marileenroux1@absamail.co.za |
| Signed on: | Monday, September 23, 2002 at 11:04 AM |
| Comments: I was diagnosed with a molar pregnancy in February 2001 and went through chemotherapy for a year. I've been clear for 6 months. | |
| Name: | Lynda Smith |
| E-mail address: | lyndasmith@mail.com |
| Signed on: | Tuesday, September 24, 2002 at 2:01 PM |
| Comments: Hi, I found your site because my sister just found out today that she is carrying a molar pregnancy and since I had never heard of it before, I searched the internet for information. God bless you for this site. It has been helpful to me, and I am going to share it with my sister when she is up to it. Everything I had read was so scary and negative, it was wonderful to hear your story and that you had children afterward. This was my sister's first pregnancy, and we all hope she can still have a family in the future. Thank you. Lynda Smith | |
| Name: | Nicola Atkins |
| E-mail address: | akko77@bigpond.com.au |
| Signed on: | Tuesday, October 1, 2002 at 11:24 AM |
| Comments: It was very helpful to read your page. We have been through something similar. I was diagnosed with a molar pregnancy about 8 weeks ago. Unfortunately I didn't find out until after the lab results came back from pathology. I had a D and C and weekly blood tests but unfortunately needed chemotherapy. My results have just came back and after 2 weeks I now have a level of only 2. This is great news as we have had a lot of heartache in the last 6 years. I have had a total of 12 miscarriages (including this molar). I am lucky in the fact that we have two beautiful boys now. A 2 year old and a 9 month old. We obviously are not meant to have any more children. I would love to hear from anyone else who have been through something similar. I have also suffered with postnatal depression with my first son and am still being treated with medication. Hopefully each day will get easier. Love nicola |
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| Name: | Rachel Morse |
| E-mail address: | morsegirls702@aol.com |
| Signed on: | Wednesday, October 2, 2002 at 6:56 PM |
| Comments: I have recently lost my third baby due to partial molar pregnancy. I am really scared that I'll get the cancer and praying to god every day that I don't. I go in next week for my first pregnancy test and again for the next two weeks. My doctor said if my levels aren't at zero then their going to give me the chemo shot. I am glad to know that you are alive and well and happy with your children. Please pray for me in that I don't get this cancer or if I already have it that it doesn't spread. | |
| Name: | Theresa Hill |
| Signed on: | Friday, October 4, 2002 at 1:38 AM |
| Name: | Christy |
| E-mail address: | threec@airmail.net |
| Signed on: | Friday, October 4, 2002 at 6:48 PM |
| Comments: I am reading your stories with sympathy but offer hope to those of you who have recently had a molar pregnancy. I had a partial molar pregnancy and at 12 weeks gestation, of course I suffered a miscarriage. I was devastated, a loss of my child and the potential for cancer. My 3-year old son kept me going. Many weeks of blood work, which you are all too familiar with. But I am happy to tell you that was March 1987 and in August 1988, I gave birth to my second son. Now, 15 years later, I can hardly even remember all those visits back to the doctor. Have hope. Christy |
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| Name: | Gerry |
| E-mail address: | gbuckel@tds.net |
| Signed on: | Saturday, October 5, 2002 at 5:32 PM |
| Comments: I have just come across your page on molar pregnancy. In 1996 I was 4 months pregnant when i was diagnosed with a molar pregnancy. I never even had heard of such a thing. It devastated me. And I could not believe the insensitive people I met after. One doctor even shook my hand because he said I was 1 in 40,000 women to be diagnosed with this and he'd never met anyone whom had a molar pregnancy. When we found out that I was pregnant again in 1998, I was so frightened that it would happen again. And I had no one to talk to about it. My husband just wouldn't talk and my mother said to forget it. And I was 38 at the time so my chances were higher of it repeating. Thankfully, the pregnancy went well and our second son was born. And our third was born last year and I was 42. I still haven't talked to anyone and it tears me about sometimes because I wonder about the child I lost and I still don't really know why it happened. But now I know there are other women out there like me and I don't feel so alone... | |
| Name: | Robynn Hagan |
| E-mail address: | robynn63@hotmail.com |
| Signed on: | Monday, October 7, 2002 at 11:58 PM |
| Comments: Hi, I am sorry that you had to go through that dreadful molar pregnancy. I too had a molar pregnancy in 1994 and it was traumatic even though mine did not turn into cancer. I found out at my first check up, luckily. The nurses who did the first pelvic ultrasound were actually crying with me. Waiting that year and having all the blood tests to test my hormone level made the ordeal even worse. I was depressed and my doctor recommended that I see a psychologist but I told him I didn't need to be put on Prozac, I needed to get pregnant. He agreed and luckily after I waited my year I was able to have a full term healthy baby which made it daughter number 3. Thanks for sharing your story. They are rare and it helped me know that I wasn't the only one. Robynn Hagan |
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| Name: | Liz Vargas |
| E-mail address: | lizvargas1@hotmail.com |
| Signed on: | Sunday, October 13, 2002 at 10:53 PM |
| Comments: I have been a L&D RN for 5yrs. and I have never encounter a molar pregnancy and hope that I never do. Thank you for sharing your sad and very personal story. God will bless you and all the other women who had the misfortune of a Molar Pregnancy. | |
| Name: | Tracy B |
| E-mail address: | dacboyz@shentel.net |
| Signed on: | Monday, October 14, 2002 at 6:53 AM |
| Comments: I have four healthy children, and was happily expecting a fifth, due July 4th, 2002. I had a three month miscarriage, beginning in late Dec, 2001, due to a partial molar. I finally passed the placenta on March 5th, and my recovery began thereafter. My hcg reached zero on May 2nd, and has stayed there to date. I have not given up on my dream of another baby, and may in fact be expecting now. I will know for sure in another week. ~ One of the hardest things about molar pregnancy is the lack of information available. This web site, as well as one other, have been a blessing to me. | |
| Name: | Sandy |
| Signed on: | Monday, October 14, 2002 at 10:15 AM |
| Comments: The molar pregnancy I experienced would have produced our child 17 years ago yesterday. Back then ultra sound was very poor, and I had to rely on blood tests, taken every other day until I was 16 weeks pregnant, and the doctor could be sure. Pathology reports after my suction D&C confirmed it. I am not sad about it anymore. I have 3 wonderful children (1 born before, 2 after) that fill my life with joy. But I always remember that day as the day I didn't have my baby. No one can tell me that just because I didn't produce a fetus I didn't lose a baby. | |
| Name: | Laura Nesbit |
| E-mail address: | jeanettenesbit@hotmail.com |
| Signed on: | Wednesday, October 16, 2002 at 6:27 PM |
| Comments: I truly enjoyed your poems. I had a complete molar pregnancy 15years ago that develop into a tumor and lodged itself on my right lung. Your story sound oh so familiar. After going to the hospital for pre-admission testing for a D & C, they found the tumor from the chest x-ray. But I thank God, I now have two beautiful children, Regine and Christopher. May God be with you always. Laura |
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| Name: | Nosiku |
| E-mail address: | nosikum@telkomsa.net |
| Signed on: | Thursday, October 17, 2002 at 3:59 AM |
| Comments: I have been diagnosed as also having this condition but in my case, I'm now 20 weeks and we're taking each day as it comes with encouragement from the Bible and God's presence in our lives. Sorry for your loss | |
| Name: | Lourdes |
| E-mail address: | Appleblossom521@hotmail.com |
| Signed on: | Thursday, October 17, 2002 at 12:24 PM |
| Name: | Luz M Planco |
| E-mail address: | luzmar@comcast.net |
| Signed on: | Thursday, October 17, 2002 at 6:22 PM |
| Comments: My best friend found out she had molar pregnancy two day before her wedding. We still can not believe it. Your page is helping us to find all the help and information we need. God bless you. | |
| Name: | laurie |
| Signed on: | Friday, October 18, 2002 at 9:54 AM |
| Comments: Hi, I had a molar pregnancy also and I just have to say that it was and still is hard to get over. I'm 20 years old and I had just gotten married in July. I got pregnant at the beginning of august. I had a urine infection and had to take antibiotics while I had just gotten fertilized. I wasn't feeling well at all for the last 2 and a half months. I was so excited and the doctor even told me with the high hormone levels that I was probably having twins and she sent me for an ultrasound. I was bleeding ever since the 25th of August. The nurse looked at my results on the screen and I thought she was about to throw up. She turned the screen away from me and told me my pregnancy wasn't normal and she called in the technician who said that he thought he saw a mole. My doctor explained what was going on and I had a d&c done. I had to go in earlier because I started bleeding and getting major pains. I just wanted the molar tissue out of me as soon as possible it was hard for me to think I was carrying such gross stuff in my uterus. Like everyone I am not aloud to get pregnant for a year and I just have to wait and see my results. I hope that whoever has had this gets through it physically and the hardest emotionally thank you | |
| Name: | Cindy |
| E-mail address: | peridot874@hotmail.com |
| Signed on: | Tuesday, October 22, 2002 at 3:53 PM |
| Comments: I haven't read your story yet but I'm getting ready to. I just a week ago had to go trough with yet another D&C. I lost a baby last year but not the same way. I just found out today it was a molar pregnancy and I'm trying to find out all I can. I'm going to read your story now. Thanks for sharing your story with other women like myself. Cindy |
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| Name: | Shayla Patton, Mississippi, USA |
| E-mail address: | cootdogg1@aol.com |
| Signed on: | Wednesday, October 23, 2002 at 10:45 AM |
| Comments: I love your site. My husband and I are going through a possible blighted ovum pregnancy, we will find out this Friday. But reading over your site really makes me feel a lot better. I am a nurse, and we have two beautiful girls ages 3 and 4. Your site has plenty of useful information. God bless you and your family. | |
| Name: | Elizabeth Martinez |
| E-mail address: | mtz_eli2000@yahoo.com |
| Signed on: | Saturday, October 26, 2002 at 5:26 PM |
| Comments: Hi, my name is Elizabeth Martinez and I am 22 years old. On October 24, 2002 i was told i had a molar pregnancy. I had never heard of such a thing. This was my first pregnancy and everything was so new to me. I hadn't even had my first appointment. I called the doctor’s office that Tuesday because i was having brown discharge and a pain on my right side. She told me to come on in so they can do labs on me. They drew blood then I went home. Two days later she calls me to tell me that I had to get an ultrasound as soon as possible to see if my pregnancy was abnormal. I did just that. The following day I had the d & c. She didn’t give me any other options. I just got out of the hospital a couple of hours ago and I decided to get some more information on molar pregnancy. Your story really touched me. I thought it was over for me but I see I have a lot more ahead. I love kids and I just hope that everything comes out okay so I can be a mother one day. | |
| Name: | Jeta Patrick |
| E-mail address: | peaches29675@hotmail.com |
| Signed on: | Monday, October 28, 2002 at 10:40 AM |
| Name: | karla v greene |
| E-mail address: | karlavgreene@hotmail.com |
| Signed on: | Tuesday, October 29, 2002 at 7:49 AM |
| Comments: I was very touched by your story and your courage. | |
| Name: | kenyatta counts |
| E-mail address: | kenyattacounts@yahoo.com |
| Signed on: | Tuesday, October 29, 2002 at 10:10 AM |
| Comments: I HAD A MOLAOR PREGNANCY AT 19 WHICH WAS LAST YEAR IT WAS VERY SHOCKING TO ME I NEVER HEARD OF THIS BEFOR I WAS BLEEDING FOR THREE MONTHES AN DI KNEW I WAS PREGNANT I WENT TO THE DOCTOR TO GET AN ULTRASOUND AND THAT'S WHEN I GOT THE BAD KNEW THAT I HAVE A MOLAR PREGNANCY. | |
| Name: | Jennifer Tipton |
| E-mail address: | jtipton@aai-tenn.com |
| Signed on: | Wednesday, October 30, 2002 at 7:39 AM |
| Comments: I have also been diagnosed as having a molar pregnancy but I was only 5 weeks into my pregnancy. So far I have not been told that I have cancer and I hope that I don't. My mother recently overcame her bought with breast cancer and I don't want to go through the pain that she went through. I hope that God has helped you through your time of need and hope that he will continue helping your family deal with the loss and your medical condition. Take care and God Bless. | |
| Name: | corry |
| Signed on: | Friday, November 8, 2002 at 11:39 PM |
| Comments: I'm so glad to find out that I am not alone. My husband and I were so happy to find out we were going to have a baby. At 12 weeks I started spotting and immediately called my doctor who then scheduled an ultrasound at the hospital the following day. I immediately new something was wrong when the nurse said, "I don't see a baby". I can't even begin to describe how I felt!! The doctor was called in and confirmed what the nurse had said. He continued to say that he saw signs of an abnormal pregnancy know as a MOLAR pregnancy, my response was a WHAT???? Or he said it might be a miscarriage. He proceeded to explain but at that point I really wasn't paying attention since I was in SHOCK. I had a curettage done last Friday Oct 25th and it's now Thursday Oct 31st and I have NO news yet. Is it a miscarriage or a Molar? Needless to say it has been the LONGEST WEEK of my life. My husband is so worried about my health and me but I keep reassuring him that I will be fine. I will e-mail as soon as I get the results that should come in next week. Gook luck to all of you and I hope that everything works out. | |
| Name: | Shelley Wisinger |
| E-mail address: | sidwisinger@webtv.net |
| Signed on: | Wednesday, November 13, 2002 at 10:01 AM |
| Comments: My name is Shelley and I suffered a molar pregnancy 10 1/2 years ago. If only there had been a website like yours to know that I was not alone. We didn't even have internet access back then so the info I found was very limited. My husband and I had waited 6 years since we married to start a family. We were so excited when I got pregnant right away. At 7 weeks I started bleeding and an ultrasound revealed a molar and I had a D&C the next morning. I was devistated to find out I couldn't get pregnant again for a year. It was the longest year of my life. I was released from the doctor March 8, 1993 and got pregnant the next week. (The nurses couldn't believe I got pregnant so fast) Lacey Michelle was born Dec 20, 1993 and was the best Christmas present ever!! I had always said I wouldn't have a Dec baby but I guess God wanted to show me who was in charge! Lacey became a big sister May 15, 1996 to Shay Ashlyn and they are the joy of my life. To those out there going through a molar pregnancy, my heart goes out to you. I am proof that things will get better. | |
| Name: | Kathi Wells RN, NSN |
| E-mail address: | mtn-granma@msn.com |
| Signed on: | Tuesday, November 19, 2002 at 6:17 PM |
| Comments: I am inquiring for a neighbor whose niece has experienced four (4) molar pregnancies having previously had CA. Being a registered nurse I was unable to give any support or insight to what or why this was happening. Thank you so much for sharing your experience with me. Sincerely, Kathi Wells, RN,BSN |
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| Name: | nathan clough |
| Signed on: | Wednesday, November 20, 2002 at 10:16 AM |
| Name: | Lisa Schwager |
| E-mail address: | schwagerville@hotmail.com |
| Signed on: | Wednesday, November 20, 2002 at 5:33 PM |
| Comments: Thank you for your story. I just an hour ago got a phone call from my Dr. with the results from my d&c and was told that I also lost my baby due to a partial molar pregnancy. I was also 12 weeks along. I am searching for information about this and your story helps a lot. Thank you. | |
| Name: | Nicole Williams |
| E-mail address: | NicoleWilliams111@msn.com |
| Signed on: | Wednesday, November 20, 2002 at 8:28 PM |
| Comments: Thank you for making this website. This was the first page I found the day I found out I had a molar pregnancy and was to have a D & C. It gave me information and your story gave me courage. Even though I don't have cancer, I was worried, scared and upset, your story gave me hope. | |
| Name: | Tracy Fisher |
| E-mail address: | tracycfisher@yahoo.com |
| Signed on: | Sunday, November 24, 2002 at 6:41 AM |
| Comments: Thank you for your web page. I just found out that I also could have a molar pregnancy. My D&C is Monday so I am praying for the best. Your story helped me get through this weekend with a little more understanding and a lot less stress. I realize from your story that this is a condition that can be overcome and that my hopes for having another child are not broken. Thank you so much! | |
| Name: | Jamie Link |
| Signed on: | Wednesday, November 27, 2002 at 8:25 AM |
| Name: | Latansa Scott |
| E-mail address: | bitterdiva415@yahoo.com |
| Signed on: | Friday, December 6, 2002 at 9:45 AM |
| Comments: To the family of Nina. I can relate to what you are going through and my prayers are with you. I too have gone through a molar pregnancy and I blamed myself and my boyfriend. Now, months later, I have come to term with it. Thanks | |
| Name: | Loulou |
| E-mail address: | hloulou31@btopenworld.com |
| Signed on: | Friday, December 6, 2002 at 12:49 PM |
| Comments: This website has just made me cry cause it brings back bad memories. My pregnancy was unplanned and I had just got used the idea and was very excited. I was 32 and thought oh well I'm getting older we can cope. Went to the docs for 16wk check and he couldn't find a heartbeat so I had an ultra sound and they told me there and then it was a molar pregnancy. For some reason walking from the docs to the hospital I had molar pregnancy in my head. I just knew. My sis friend had one previously about 5 years before and hers was also ectopic. I was admitted that night (21/3/02) for a d&c and the docs scared me daft. My uterus was so large (though I had no molar symptoms at all no sickness or anything, I thought i was lucky) that they could damage my womb or maybe worse case scenario have to remove it. I was devasted as was my boyfriend. I had to have 3 units of blood. D/c next day. I didn't stop bleeding and about 6 weeks later I was bleeding so heavily I went to hosp and they did ultrasound. It hadn't all been removed so I had to go through it all again. My hcg levels before first d&c were 81,000. They dropped slowly until next op, but since then they have dropped to normal and have been for the last 4 months. I just hope they stay normal. My periods are still not normal (very light) so obviously I am worried but the specialists say everything is fine. I am 33 now and want to try again next year, all I have ever wanted is to be a mum. Someone in hospital told me her sis in law had a molar pregnancy but then went on to have 3 kids. I live in hope. | |
| Name: | nichole johnson |
| E-mail address: | inlove4ever2003@yahoo.com |
| Signed on: | Friday, December 6, 2002 at 12:51PM |
| Comments: may God be with you all!!! | |
| Name: | Jennifer |
| E-mail address: | Dragon2698@aol.com |
| Signed on: | Friday, December 6, 2002 at 3:58 PM |
| Comments: I feel your pain, I am glad to see you are well now. My first pregnancy was a molar pregnancy. I was only 21 years old and very confused. Reading your story gave me someone to relate to. I am healthy now a year later and hope to educate and comfort others as you have done with this site. | |
| Name: | adriane |
| E-mail address: | drianceleste@yahoo.com |
| Signed on: | Saturday, December 7, 2002 at 3:25 AM |
| Comments: I am a new grad nurse who just started working night shift at the hospital in my town. one of my recent patients was a young girl who had a molar pregnancy. I didn’t know much about molar pregnancies. But I was determined to learn more because this patient really touched my heart strings. She was only a year older than me and was very quiet the night I helped her. I thank you for your informative and very touching website of your personal experiences. I cried throughout reading it but sincerely appreciate you revealing to the public what you went through and I firmly believe it will help others. Thank you!!!!!! Take care and god bless, you have two precious angles up there looking out for you. Sincerely, Adriane |
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| Name: | Emma Neibauer |
| E-mail address: | emmaneibauer@hotmail.com |
| Signed on: | Tuesday, December 10, 2002 at 3:22 PM |
| Comments: I am just over 12 weeks and have learned that I have a Complete Molar Pregnancy with a family history of cancer. Your website has given me information on what will happen next and what could happen. Thank you. | |
| Name: | JJ Walsh |
| E-mail address: | cjwalsh@eastlink.ca |
| Signed on: | Thursday, December 12, 2002 at 5:10 PM |
| Comments: I just found out today that I had a molar pregnancy. I have read many stories on this website and I am thankful for the wealth of info. I thought that everything was over when I so-called miscarried, but now it appears that things are just beginning...it should be an interesting year. I really do appreciate all of information and support I have found so far and you can be sure I will be back. | |
| Name: | Jacynth Wess |
| E-mail address: | jwess@cablerocket.com |
| Signed on: | Thursday, December 19, 2002 at 4:24 PM |
| Comments: Thank you for your beautiful , I am 14 weeks pregnant and am going for am ultrasound tomorrow because I might be carrying a molar. | |
| Name: | Lisa Morris |
| E-mail address: | poohkram96@yahoo.com |
| Signed on: | Tuesday, December 24, 2002 at 10:26 AM |
| Comments: Hello, I am in the mist of dealing with a miscarriage, Dec 6th, and molar pregnancy, diagnosed Dec 19th. At 9 weeks of pregnancy, my husband and I, through an ultrasound, found out our baby would not grow to full term. My numbers are being taken weekly, I am at 345 currently. Praying for them to go down. I still cry everyday, missing our baby, "Ruby". Miscarriage is VERY difficult, and the possibility of Cancer, it does get to be too much. You thoughts and prayers for our strength to get through this is appreciated. Lisa | |
| Name: | Natasha |
| Signed on: | Thursday, December 26, 2002 at 7:40 PM |
| Comments: I totally understand what it is that you felt in that room at the doctor’s office. I'm 19 years old and I went to the doctors for a regular pap smear and walked out with the news I was going to have a baby myself. I was shocked and scared the whole way home. I went in for my 5 week ultrasound (which I thought was a little too soon to have) but the doctor said everything was fine and to come back in at 9 weeks. The baby's dad and I were going through major problems and I was left with the responsibility of raising the child on my own. I was frightened at first but I got over it, I quit school and started working more hours so I could raise money to support the baby on the way. When I went in at 9 weeks, the doctors told me I miscarried and that pieces of the baby were still inside me. I was heartbroken and confused. I didn't get no answers for 2 more weeks and then I was told I had a molar pregnancy. To this day I don't know if it was a test from god to see if I was really ready to bring a baby into the world, or if my baby girl would have been better off waiting to come into the world when I could bring her into a stable family life. I wish you and your family the best of luck and I'm glad there's others out there who feel like I do. | |
| Name: | Aileen |
| E-mail address: | pinayangel6@yahoo.com |
| Signed on: | Friday, December 27th 2002 at 9:52 AM |
| Comments: Hi, This is my first pregnancy and I’m only 19. I found out that I had molar pregnancy on Dec. 17, 2002. I got my d&c treatment on the 19. I went to my first HCG but I still don’t no if it went down. This molar pregnancy is a crazy and scary thing i have never heard of it till it happened to me. I always read it happens to older people but its wrong and can happen to anyone. I always read its 1 out of 1000 pregnancy. and its nice to see guestbooks and reading other peoples stories to learn more and to know that someone’s been there. I wish you the Best and everyone else’s. | |
| Name: | julie hunt |
| Signed on: | Saturday, December 28, 2002 at 11:05 AM |
| Name: | Navpreet Sidhu |
| E-mail address: | preet_sidhu@yahoo.com |
| Signed on: | Monday, December 30, 2002 at 7:20 AM |
| Name: | peggy |
| E-mail address: | peggyjean123@cs.com |
| Signed on: | Wednesday, January 1, 2003 at 11:58 AM |
| Comments: I had a miscarriage and I understand the worry of future pregnancy, I myself lost a baby only a month ago, the Dr. said to wait three months to conceive, I am now getting worried about it happening again, I pray it does not happen I have a two year old but I would like at least one more child. I will someday meet the two children I miscarried and hope their will be no more. | |
| Name: | SHIRLEY CHARLESTON |
| E-mail address: | Tinamalissas@aol.com |
| Signed on: | Thursday, January 2, 2003 at 9:15 AM |
| Comments: HI, I AM SORRY TO HEAR ABOUT YOUR LOSS, ABOUT 5YRS AGO I HAD THE SAME SITUATION, BUT MY HCG LEVEL WENT DOWN TO 0 VERY QUICKLY. BUT IT MADE ME FEEL VERY EMOTIONAL. I WAS SO AFRAID OF THIS HAPPENING AGAIN, THAT I DECIDED TO HAVE A TUBAL LIGATION. I JUST COULDN'T PUT MYSELF THROUGH THIS AGAIN, AND NOW I WANT TO HAVE ANOTHER CHILD BUT FINANCIAL SITUATIONS ARE LOW AND THINKING OF THE PAST IT'S HARD. I WAS CONSIDERED AS 20 WEEEKS GESTATION, MORNING SICKNESS AND ALL, NO PAIN THOUGH. UNTIL THE TIME OF HEARING NO HEARTBEAT,AND SEE ALOT OF GRAPE LIKE CELLS ON MY ULTRASOUND. HAVING TO REVEAL THIS TERRIBLE INFO TO MY FAMILY WAS HARD TO DO. ONCE MY DOCTOR TOLD ME I WAS GOING TO MISCARRY I DIDN'T WANT TO BELIEVE HIM, BUT A DAY LATER I WAS BATHING AND I FELT A SHARP PAIN IN THE LOWER ABDOMINAL AND THEN STARTED PASSING CLOTS. I WAS SO TERRIFIED I SCREAMED AND MY FAMILY CAME IN AND ASSISTED ME TO THE ROOM AND CALLED THE DOCTOR TO LET HIM KNOW IT HAPPENED. THIS IS STILL A TOUCHY SITUATION FOR ME, BUT I JUST WANTED TO LET YOU KNOW THAT YOU ARE NOT ALONE. I WILL PRAY FOR YOU AND ALL THE OTHERS THAT ARE JUST LIKE US. LOVE ALWAYS SHIRLEY | |
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