| Name: | Maria |
| E-mail address: | game221@aol.com |
| Signed on: | Sunday, October 12, 2003 at 8:11 PM |
| Comments: I might have had a molar pregnancy. I will find out his week. I'm scared to find out the results. I'm only 27 years old and it was my first. I'm so scared! Thank "God" my husband is very supportive. | |
| Name: | Jessica Powell |
| E-mail address: | Jpowell6004@email.vccs.edu |
| Signed on: | Tuesday, October 14, 2003 at 8:11 PM |
| Comments: Hello, this is the second time I have visited this site. I had a molar pregnancy 3 months ago. Boy has my life changed. If you have time to email me please do, I would love to talk to you, I have some questions for you. | |
| Name: | Kashi |
| E-mail address: | kashi_bhatt@yahoo.com |
| Signed on: | Monday, October 20, 2003 at 8:52 PM |
| Comments: Your website really helped me. I had d&c 5 weeks ago but just today I found out that I have partial mole. I have yet to go and get hcg level tested. Luckily, my husband is very understanding. I hope everything works out fine although, I have lost hope (also my only daughter's name too) Hope (Hindu name Aasha) was my first and only daughter who is no longer with us. If that is not hard this cancer threat and friends and family who do not understand us or our sadness is driving me nuts... Thank you for your website. It helped me a lot. Kashi | |
| Name: | Fleur Archer |
| E-mail address: | Fburgz@hotmail.com.au |
| Signed on: | Monday, October 20, 2003 at 8:57 PM |
| Comments: I had a molar pregnancy 1 year ago and now I'm pregnant for a second time, I'm really scared i can't wait to find if every thing is ok. I go for my first ultrasound on Friday 31st of October 2003. I cant wait, i wont to know every thing is ok. If there is anyone out there whom has had a molar pregnancy in the past and is pregnant or has had children since I'd been pleased to here from you | |
| Name: | Katherine |
| E-mail address: | kat.feeney@earthlink.com |
| Signed on: | Monday, October 27, 2003 at 5:05 PM |
| Comments: First of all I just have to thank you with all my heart for setting up this website and sharing your story. Knowing about your experience and that you got through it, gave me hope during my horrible experience. My story is very similar to yours and I wanted to share it when I felt I was through with all my treatments. So here is my story: April 4, 2003-I had to have a D&C because of a molar pregnancy. I was ten weeks pregnant. My HCG levels started at 245,769. April 10-they went down to 6,537, and continued to go down on their own until May 19th, when they went from 470 to 480. So I was sent to an oncologist to see about having chemotherapy. I was then given methotrexate every week until July 9, 2003. I felt nauseous at times but really had no side effects. I believed the chemo was working until my levels went up from 17 to 18. My oncologist decided to switch me to actinomycin-D, until another test showed that my levels had gone down to 7. He decided to keep me on methotrexate. The following week (July 25) my levels went down to 6. I was feeling like this whole nightmare was about to come to an end. The next week, my levels jumped up to 11. We started the actinomycin-D on August 4. I had a 5 day treatment and then took a week off the medicine. I can honestly say this is the worst I have ever felt in my life. I prayed for it to be over, but my test results showed that my levels went up to 28 after my first week of the strong chemo drug!!! At that point, I thought I was going to die or have to have drastic surgery that wouldn't allow me to have children. My doctor assured me that the next treatment would probably work and that my levels had gone up because when the cells die, they give off the HCG hormone. I was terrified but tried to remain positive. During my next 5-day treatment, my tests finally showed less than 2 (considered normal), but my doctor wanted me to finish out the week of treatments. During that week, I was not only very sick, I had terrible mouth sores that kept me from eating and talking, and I started to lose my hair. My doctor had told me my hair might thin, but I never thought it would be too bad. I kept thinking it would stop falling out, but it kept going. I continued to lose my hair for the next month. I was almost completely bald when it finally stopped. Today, October 27, 2003, what would have been my baby's due date, I am feeling very sad, but I feel good physically and my hair is starting to grow back. I teach kindergarten so I wear a wig to school each day. My last 3 tests results have been normal. I believe this ordeal is behind me except for my hair and the emotional effects. It has been the most painful experience and I thank God for giving me the strength and the loving people around me to help me through. I wanted to share my story so that others wouldn't feel alone and would know what to expect. I never thought I would have such a horrible miscarriage, chemo at 29 and lose all my hair. I wish I would have known more about molar pregnancy and its treatments. My husband and I are looking forward to having a baby one day. My doctor has told me to wait at least a year. I think I need at least that amount of time to get strong again, both physically and emotionally. God Bless You for sharing your story. | |
| Name: | EJ |
| E-mail address: | inonit0007@aol.com |
| Signed on: | Wednesday, October 29, 2003 at 9:25 AM |
| Comments: I was so touched by your site! Thank you for sharing your experiences. I came upon your website as I was doing research to remind myself about molar pregnancies. I am a pediatrician and I remember learing about molar pregnancies in medical school. I also just learned 2 weeks ago that I am pregnant for the first time in my life! My husband and I have been married for 2 years and are ready to become parents. But I am also scared because I know of some of the strange things that can happen. I too, have kept a journal and charted my HCG results. But sometimes too much information just makes you crazy. Even as a doctor, there is so much uncertainty. My husband and I decided to limit those who knew of our pregnancy to just those closest to us - especially since a family member recently had a miscarriage. I am waiting for my first sonogram to be done tomorrow and I am now 6 weeks pregnant. I want to be happy but still I'm so scared. I will just trust God to do His perfect will in my body and in my life and in the life of my baby. I thank God for your strength. God bless you and your family. | |
| Name: | Tiffany |
| E-mail address: | mommy2alittleangel@yahoo.com |
| Home web site: | http://groups.yahoo.com/group/Vampires_and_Believers |
| Signed on: | Friday, October 31, 2003 at 2:42 PM |
| Comments: Hi! I am so sorry about your loss, I can understand. I have had 2 miscarriages before I conceived my beautiful daughter Angelena Marie. Best of luck and wishes to you in your future. ~Tiffany~ | |
| Name: | sleeplessangelo |
| E-mail address: | h.paardehaar@wxl |
| Signed on: | Tuesday, November 4, 2003 at 8:37 AM |
| Comments: youre one of the bravest people i now, xxxxxxxxxxxxx wish you all the best. love you -angelo | |
| Name: | luciferiansatanist |
| E-mail address: | gbarber@the666club.com |
| Signed on: | Thursday, November 6, 2003 at 10:47 AM |
| Comments: Nice page Kendra. | |
| Name: | banksie |
| Signed on: | Friday, November 7, 2003 at 3:25 PM |
| Comments: am sorry to have heard what you wrote but feels you will be stronger from this and can feel the love you have from your family banksie |
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| Name: | Angélica Alamillo |
| E-mail address: | a.alamillo@trafimar.com.mx |
| Signed on: | Tuesday, November 11, 2003 at 9:58 AM |
| Comments: Dear Kendra, I write you from Mexico City, one of the countries with the highest percentage of women with molar pregnancies. Last Saturday it was my first ultrasound and the doctor talk about the words 'molar pregnancy'. A very big uterus and a small baby, like a spot. He showed me the 'normal' images of a 6 week pregnancy and I can tell you that my uterus is twice or 3 times bigger than the normal ones and the baby size is half of what he should be. I'm waiting for the confirmation of my first HCG counting in the next 2 days. I'm in the 7 week and frightened for everything that I've read about this theme. Pain, sorrow, fear.. To make things worst, the father of my baby who lives in Chicago is going through a major ordeal with the recent news of his father suffering lung cancer and a big promotion at job which make him hard for him to be with us until December. He calls me twice a day but I feel as if I was alone in this nightmare. My little son who is almost 9 yo is giving me all the support his lovely heart is able to give a mom and although I've tried to hide the word cancer, he is pretty intelligent and have started to asking me what else is happening with the baby. Kendra, what gave me a light of hope was to know you were a winner in your battle against cancer and that finally you were able to become a mom again. I want to be as positive as possible but sometimes is really hard. Thanks for creating this site for the rest of us who are facing this terrible situation. It really helps to know we are not alone. Thanks and kind regards from Mexico Angie |
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| Name: | candice |
| E-mail address: | essencerain@yahoo.com |
| Signed on: | Sunday, November 16, 2003 at 10:16 PM |
| Comments: Hi nice to know there is others I didnt get cancer but i just am learning now after 2 years about what happened to me . Iam sorry for your lost but iam sure u r a stronger person. sincerly candice |
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| Name: | Tamara Avery |
| E-mail address: | averyjt@telus.net |
| Signed on: | Wednesday, November 19, 2003 at 4:38 PM |
| Comments: I too had a molar pregnancy. I am now starting the blood work process and hope that my HCG levels will be low. I don't understand everything yet. It is so scary and sad. | |
| Name: | Nikki |
| E-mail address: | nweymer@csi-csi.com |
| Signed on: | Saturday, November 22, 2003 at 1:59 PM |
| Comments: Thanks for sharing your story. I am in the early stages of potential molar pregnancy. I had a D&C in which afterwards they discovered something wrong with my placenta, and now my levels won't go down. Not only was I sad at the loss of the baby, but to find out my life could be in jeopardy because of a miscarriage. I had never heard of anything like this until my doctor mentioned those ill fated words "Molar Pregnancy." Thank you so much for putting your story out here, it gives me hope. | |
| Name: | lori carvalho |
| E-mail address: | goldenvampiress6669@yahoo.com |
| Signed on: | Tuesday, December 2, 2003 at 2:12 PM |
| Name: | Meryl |
| E-mail address: | medavis@linfield.edu |
| Home web site: | http://www.dazzled.com/merylzangel.ourangels.html |
| Signed on: | Friday, December 12, 2003 at 4:55 PM |
| Comments: I am so sorry for the loss of your two little girls. I have three daughters in heaven, I share your hurt and pain. Congratulations on your boys, but what a path you had to take to get there. You are a very strong, compassionate women. You have made such an informative and caring site; a beautiful memorial to your daughters in heaven. Take care and God bless! Meryl~Mommy2^i^Tayler^i^Lilyana^i^Maleiya | |
| Name: | shawn hahn |
| E-mail address: | shahn30217@yahoo.com |
| Signed on: | Friday, December 12, 2003 at 8:48 PM |
| Comments: I just wanted to let you know i really appreciate you for having this web site. Today(Dec.12,2003) was my first labs since my D and C. I won't find out the results until Monday, this is going to be a long weekend. Thanks again. Shawn |
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| Name: | shawn hahn |
| E-mail address: | shahn30217@yahoo.com |
| Signed on: | Monday, December 15, 2003 at 7:43 PM |
| Comments: I just wrote you 2 days ago about my labs the results were down to 3450 from 300,000 on Dec.5. Thanks and continue to pray. | |
| Name: | jemma |
| E-mail address: | s.smith460@ntlworld.com |
| Signed on: | Wednesday, December 17, 2003 at 4:01 AM |
| Comments: a brilliant and informative site. I am on my way to the hospital to have my levels checked apparently they are too high. I was very nervous before I visited your site, thank you for helping to put my fears into perspective. Thanks again love always jemma xx | |
| Name: | Heidi |
| E-mail address: | woodmont76@yahoo.com |
| Signed on: | Wednesday, December 31, 2003 at 12:21 PM |
| Comments: Hi, I wrote about a year ago explaining about my partial molar pregnancy and how devasted I was. However, I made it through just fine. Now I can look back and see that although it was a horrible experience, it has truly changed me and made me see how lucky I am to be healthy. I was given the ok by my OB to try again to get pregnant right around Christmas this year. And we got pregnant right away. In fact I found out I was pregnant on what would have been the due date for the baby that we lost, so right away I felt that it was a sign that the baby we lost was looking out for us in a way... I had my daughter, Allie on September 17, 2003. She was healthy and my pregnancy was great. I had no problems at all. I loved being pregnant and we look forward to our next baby. I just want anyone who is in this waiting period to know that this time of waiting is important. Go on vacation. Do something for yourself. Take time to heal from all of the pain and fear you might be feeling. When its time to try again to get pregnant, you will be feeling emotionally and physically stronger. Thanks for this wonderful website. It is very important to those who are feeling alone and lost, as molar pregnancies are quite uncommon. This website helped me to help others and I also made a friend from this website who is due to have her baby right about now as well. There is a light at the end of the tunnel-you just need to have hope and faith. Happy New Year :) | |
| Name: | Mike Overdorff |
| E-mail address: | mydoe@hotmail.com |
| Signed on: | Monday, January 5, 2004 at 9:44 AM |
| Comments: Hi Kendra....you are one of the nicest and strongest people it has been my pleasure to talk to....Nina will always be in my prayers as will you...take care...Mike:) | |
| Name: | paula jarnagin |
| E-mail address: | paulajarnagin342@hotmail.com |
| Signed on: | Friday, January 9, 2004 at 9:16 AM |
| Comments: I am so sorry for your loss, both of you have been so strong to deal with something of this magnitude and then to continue with having the boys, most people only wish they were that strong...enjoy your family | |
| Name: | Lena |
| E-mail address: | aroundworld2003@yahoo.com |
| Signed on: | Monday, January 19, 2004 at 12:51 PM |
| Comments: Hello: Can someone who has experienced with partial/molar pregnancy please write to me? I need to get some support and have lots of questions. I have been diagnosed with partial molar pregnancy and am scared to death. Please write me. Lena |
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| Name: | shawn hahn |
| E-mail address: | shahn30217@yahoo.com |
| Signed on: | Wednesday, January 21, 2004 at 5:52 PM |
| Comments: Kendra the last time i wrote you i was at 3450 on my levels, that was Dec. 12. I am now at 21 and it is Jan.5 2004. I will have another test Feb.2. Continue to pray. Thanks Shawn | |
| Name: | robby craig |
| E-mail address: | perfautowerks@charter.net |
| Signed on: | Sunday, February 1, 2004 at 5:04 PM |
| Comments: I am very sorry to hear of your loss I will pray for you...you are a very strong person and it is good to see you trying to do good from bad with Gods love Robby |
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| Name: | angela lybarger 30 years old |
| E-mail address: | angelah@getatlas.com |
| Signed on: | Tuesday, February 3, 2004 at 11:05 AM |
| Comments: I had a molar pregnancy back in 1998 had to have 2 dnc's the 2nd dnc I had I was rush to the hospital I was losing a a lot of blood because they did not get all of it the first time. I had to go in and replace my carpet in my house from it. I was very scared. I did not know if I was going to make it or not. I had to take blood test everyday to make sure everything was o.K. was not to get pregnant for a year but I did and I had a baby girl but they took me off work early because I was having a really hard time my body was trying to fight the baby off so I was total bed rest. My heart goes out to anyone that had this. | |
| Name: | jennifer wilson |
| E-mail address: | varsitygirl@hotmail.com |
| Signed on: | Tuesday, February 3, 2004 at 2:29 PM |
| Comments: I am so sorry for you losses! I had a complete molar pregnancy one year ago this month (jan). I have been off birth control now for 2 months, I had decided to go off it early, my husband and I are so ready for kids! I still in the back of my mind worry bout what might happen or could happen. it's still very fresh in my mind of what happen to me, I still deal with the feelings of it every day. it took my about 11 months to really get over it. it hurts to know that you lost someone so important. My husband and I are trying and we wish that everything this time around will be better, that nothing will go wrong. thank you for your site. *hug* | |
| Name: | Kenneth J. Howard |
| E-mail address: | hug_e_bare4u@yahoo.com |
| Signed on: | Wednesday, February 18, 2004 at 9:09 PM |
| Name: | Tara Grubaugh |
| E-mail address: | tararene918@aol.com |
| Signed on: | Thursday, February 19, 2004 at 2:50 AM |
| Comments: am currently 18 years old, I am still trying to cope with the loss of a pregnancy. I was 15 years old when I was diagnosed with endometriosis and this was after I was told I had a abnormal pregnancy that "only happens 1 in every 10,000 pregnancies in women over 40 with a history of miscarriages!" and "Will never happen in the same family." well I find this to be rather confusing at the time being that I was 15, no where near 40... I had NEVER been pregnant before this...... and strange enough my aunt had the same exact form of pregnancy at the age of 15 as well, except she developed cancer and had to go through chemo. I am glad to see a website helping to cope with this, as well as I deeply thank you and my heart is with you and yours. Thank you again! | |
| Name: | Petena |
| E-mail address: | jptomo@dodo.com.au |
| Signed on: | Thursday, February 19, 2004 at 7:40 PM |
| Comments: At the age of 18 I has my 1st miscarriage, this happened again when I was 22 and again at 23. I have never been so devastated; I eventually had a baby girl on the 2nd Oct 1998 at the age of 24. Then when I was 27 I fell pregnant, every thing was going well, apart from morning sickness, and a bulging belly at only 8 weeks. When I was 9 1/2 weeks I had an ultrasound to make sure things were ok due to my previous miscarriages, That's when they discovered a molar pregnancy (complete mole). I had to have more scans and blood tests and then a Dc. My levels were 14000 eventually after weekly urine screens my levels started to drop, when they were at 0 for 4 months I was able to try for another baby. It took me 5 months to finally ovulate and I fell in straight away. I had a baby boy on the 20th Nov 2002 at 28 years old. We think we have finished our family now but who knows what the future holds. I pray for every one that goes through any pregnancy troubles and to never give up. I DIDN'T. | |
| Name: | Shawn Hahn |
| E-mail address: | shahn30217@yahoo.com |
| Signed on: | Friday, February 20, 2004 at 4:32 AM |
| Comments: Hi Kendra its me again. My last blood work I was down to 0!!! I am still going for monthly blood test. My Dr. says a year of this before we can try again. I have read that some people were released earlier than this. I’m ready to try again! Continue to pray! Thanks Shawn | |
| Name: | Lisa |
| E-mail address: | ljohanek@kc.rr.com |
| Signed on: | Sunday, February 22, 2004 at 7:32 PM |
| Comments: just wanted to say how great it has been to have this website. I had been feeling very alone and needed to see that other people have made it through this. On Nov.28 I had a miscarriage. A week later I had a lot of bleeding so I had to go to the ER. They drew my labs and did an ultrasound and said everything was fine they just gave me some methergine for the bleeding. A week later I followed up with the ob. She said everything looked fine and drew my labs. They were not Zero so I went back a week later and they had gone up. They did an ultrasound, they saw what they thought might be Gestational Trophoblastic Disease or possibly retained tissue. I went for a D&C the next morning. They said the tissue looked normal. 4 days later my hcg was 300 a week after that 109. The pathology said it was not a molar pregnancy so i was relieved. A week later my hcg was 600. I was devastated. I had to go for chemo (methotrexate) as well as a ct scan and chest x-ray the next day. 3 days later my hcg was 1700, I was a mess. 4days later it was 322(thank God). I had to go for chemo for 4 more weeks (2 doses past 0). It made me so tired. I have t get my blood drawn again on 3/13. I pray that it will still be zero. Emotionally I have been a mess. I am lucky enough to have 2 children a 12 year old and a 21 month old. It has been hard because I did not tell my 12 year old it was cancer (I did not want to worry him). So I have to go on like everything is ok. I only work one 12 hour shift a week so I have still been going to work. Work has also been hard because I am a nurse on a mother/baby unit. I am so happy for all the moms having healthy babies, but it is a constant reminder of what I have lost. This site is really helping me get through this. If anyone has advice on how they got through feel free to email me. | |
| Name: | Krischelle |
| E-mail address: | krischelles@msn.com |
| Signed on: | Saturday, March 6, 2004 at 8:47 AM |
| Comments: Hi, I had a D&C a month ago for a molar pregnancy (complete), at that time my Level was at 136,000, and two weeks later down to 1055, two days ago I had more blood drawn and before I could get the results yesterday I hemorrhaged at work, spent about 6 hours in the hospital, and the bleeding stopped on its own, so I didn't have to go through another D&C. My level is back up to 27,600. I will start chemo next week. Thank you for your site, because the doctors have said nothing about this being possibly cancerous, or spreading. Seems they don't want to scare us. I was unaware of the seriousness of this condition. I am blessed to have 3 healthy births, my son, Jory, (whom I gave up for adoption when I was 15)and will be 17 in a few days, my daughter, Abbi, who is 14, and my toddler, Jake, who is 20 months. We thought this recent pregnancy would be our last child, and complete our family. The timing was perfect, but now it is all a nightmare. We may stop trying while we are ahead. I am going to be 33 this summer, and soon will be in high risk category for my age, after waiting a year, and this brings other risks as well. My heart goes out to everyone who has been through this, or any health scare. I will value my life and family more than ever now. | |
| Name: | Ruth |
| E-mail address: | foxwoodfaerie@yahoo.com |
| Home web site: | http://www.geocities.com/foxwoodfaerie/ |
| Signed on: | Saturday, March 6, 2004 at 1:45 PM |
| Comments: I just want to thank you for having this website. I just found out yesterday, after my D&C that I had a partial molar pregnancy. I googled "molar pregnancy" to death and came up with a ton of short one page clinical explanations that really only scared me more. I really wanted a personal account and you provided that for me. I realize that the cancer is only a 5% chance but, I tend to get the low odds. (Getting pg on bcp, having a molar pg, etc.) So, the cancer idea does scare me, not to mention I have an extensive family history of cancer. The thought that I have to wait to have another baby really scares me, I am so longing for another child. Anyway, thank you again for your story. I am happy to read that you went on to have a happy and healthy child afterwards, which is what I wanted to see. Thank you! Ruth | |
| Name: | Kim Gallant |
| E-mail address: | kimgal@shaw.ca |
| Signed on: | Saturday, March 6, 2004 at 6:40 PM |
| Comments: Thank you for taking the time and energy to create your web site. I have a simple out look of life. What comes around goes around. Although you and your husband have suffered a great deal, you took your grief, channeled it into knowledge. The fact that you have been blessed with several more children, lets me believe that God has watched over you, guiding your path in life. Sincerely, Kim Gallant |
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| Name: | Lisa and Patrick Moreau |
| E-mail address: | vbchic@msn.com |
| Signed on: | Friday, March 12, 2004 at 9:10 AM |
| Comments: This is our first pregnancy and it has been very traumatic. I am going to be starting chemotherapy next week after the final scans are done on Monday. We are all hoping it hasn't spread so I only have to take the methyltrexate instead of the 5 chemotherapy drug mixture...but it is in God's hands now. | |
| Name: | Caroline Fusco |
| E-mail address: | gjangels@optonline.net |
| Signed on: | Monday, March 15, 2004 at 5:49 PM |
| Comments: I have read all of these lovely dedications and I take comfort knowing that I am not alone. I too lost my baby at 12 weeks pregnant to a molar pregnancy. It is still so fresh in my life that it is hard to imagine that my precious child will never know me, my husband, or our two little girls. What is even worse is that we will never have the blessing of knowing our baby. I thank you all for giving me hope, that life will go on and my child's memory will live on forever. | |
| Name: | Krischelle |
| E-mail address: | krischelles@msn.com |
| Signed on: | Friday, March 19, 2004 at 6:04 AM |
| Comments: I am updating my entry from March 6th. Here is a very rare example of the worst case scenario. I started methotrexate last week and my hormone levels were up quite a bit this week, and my MRI and ultrasound yesterday showed that the cancer has invaded the whole left side of my uterus, but has not moved through it. I need to either have a stronger chemo or a hysterectomy. I have chosen a hysterectomy because my body is not responding to chemo anyway, and I want to live for my children and husband. I have about 14 days until the cancer is moved through my uterus to other organs, and I have pain where I have it, it is like I can feel it changing all my cells. This is all really surreal, and every time I think about it, I start to hyperventilate and the tears come. Every time I have gone in I get the worst news possible. This pregnancy, which was a complete molar and never even a baby, will now steal my womanhood and I may even die. | |
| Name: | Lisa |
| E-mail address: | lsinger3@charter.net |
| Signed on: | Sunday, March 21, 2004 at 2:47 PM |
| Comments: Thank you for your website Kendra. I had a molar pregnancy in October 2003 but unfortunately my story was a rare and extreme one and I had to have a hysterectomy to end the nightmare. I will forever grieve the loss of my little Olivia Ann. She would have been born on June 1, 2004. I pray for all of you on this site that you continue to have faith that God will take care of you. Each one of us has lost a precious child that can never be replaced but the hope of another child is a precious gift that should also be cherished. God's Blessings to all of you now and always. | |
| Name: | Daxx |
| E-mail address: | vampyredaxx@yahoo.com |
| Signed on: | Monday, March 22, 2004 at 11:42 AM |
| Comments: Dearest Nina, My dear child, do not worry, sometimes these things happen and we have no control over them. Just know that your mother and father and your family love and miss you so very much like we all do The Vampyre Daxx | |
| Name: | Jenna |
| E-mail address: | rubyredroses2003@yahoo.com |
| Signed on: | Wednesday, March 24, 2004 at 2:58 PM |
| Comments: well just be happy that you had those two children. I can’t have any ever so even the chance you got should be enough. But no huh | |
| Name: | Lisa warway |
| E-mail address: | lisamaree141@yahoo.com.au |
| Signed on: | Wednesday, March 31, 2004 at 7:35 PM |
| Comments: Your web site has been very helpful. I myself have just been told that i too have had a molar pregnancy (partial). I wish u all the best in the future. | |
| Name: | Erin |
| E-mail address: | erin_balfoort@hotmail.com |
| Signed on: | Saturday, April 3, 2004 at 9:55 PM |
| Comments: It was great to be able to read your story. I have just been told that I have a complete molar pregnancy and am undergoing treatment and tests. It is confusing and so hard to explain to people. I have got many of my friends and family to read this web site to help them understand what I am going through. Thank you for sharing your story. | |
| Name: | Nicole |
| Signed on: | Monday, April 12, 2004 at 1:49 PM |
| Comments: I have had two miscarriages in the past year. One on May 14, 2003 by a D&C (10.5 weeks) and one on September 10, 2003 (5.5 weeks). I had never heard of a molar pregnancy until last week. I found out that I'm pregnant again. I am 5.5 weeks and my HCG levels are very high (10,970). I am having an ultrasound at the end of this week to find out what is going on. From the sounds of it, it doesn't look good. I am praying that they reported my levels incorrectly. I don't know how I'll make it through another miscarriage. I appreciate this website. It's given me a hope that I can make it through these tough times. Thank you. | |
| Name: | salina lopez |
| E-mail address: | lovleysalina@aol.com |
| Signed on: | Tuesday, April 13, 2004 at 12:25 AM |
| Comments: Hi my name is Salina and I am a cancer survivor from this molar pregnancy. last year I had found out that I was pregnant I have one child now but we were so happy for this pregnancy. So when I went in foe my 12 week check up we were so excited, so we went in and I had my ultrasound and they said that it looked abnormal and I was so scared and confused I ask myself what did I do wrong. So they made me an appointment to go see a ultra sound specialist. So when I went to my visit he was checking my baby out and he was very quiet then he sat me back up and told us, you have a rare pregnancy and it was called a molar pregnancy you need to have a d.n.c and i was so scared and I broke down so bad I wanted to go crazy. So the next week I had the d.n.c and they were still checking my hcg levels and then they send me to a hematology doctor and I didn't understand why but they told my mother why and then they sat me down and told me why, I needed to get a injection once a week of chemo. I was so scared. So I did what they told me to do and followed up when i was supposed to .So then one day they got my blood work and it had went back up into the100.000 thousands and they didn’t understand why this tissue was aggressive but they had to do something very quick before it spread worse. So they sat me down and told me I needed full blown chemo every day for 5hrs and once a week take home a pump of chemo and it will pump me for 12hrs, and they send me to the hospital to inserted me with a pick line .MY doctor said this was so aggressive we had to kill this tissue. I was so scared, devastated and I felt lost but I just wanted to get healthy and survive for my daughter. Everything went so fast that you do not know what to think, and then the worst was seeing all your hair fall out and go completely bald. And having your daughter see you lose all your hair and sleep. My home felt so lonely and I thank my mother for helping me and my fiancé also. It has been so hard some people don't understand. They take live for granted and I tell team people should cherish what they have. I am so thankful because my cancer got so aggressive I could have lost my life. And god gave me a second chance to tell my story to other people and to help cancer patient, and now I am involved in relay for life and I walk with the survivors. It has been a long road and it will never leave me I am getting help and the antidepressants also help. And god is given me a second chance to try to have another baby later, I need to get my self healthy first and I have faith my next pregnancy will be fine. Please e-mail me or write back there is a lot more to my story and if any one needs to talk I will always be here to help. Thank you and god bless you all. Love Salina | |
| Name: | Bobby Z Jackson |
| E-mail address: | bobbyzjackson@earthlink.net |
| Signed on: | Tuesday, April 20, 2004 at 7:14 PM |
| Name: | Millie |
| E-mail address: | apadgitt@hotmail.com |
| Signed on: | Thursday, April 22, 2004 at 11:47 AM |
| Comments: Thank you for your site. I was diagnosed with a partial molar pregnancy last week and had a D&C. Today was my first blood draw to test my HCG levels. Information is so scarce, it's helpful to hear your and others personal stories - and prepare for what may come. | |
| Name: | Kayla |
| E-mail address: | klalovesyou705@aol.com |
| Signed on: | Tuesday, April 27, 2004 at 2:13 PM |
| Comments: I am turning 16 in July of this year, and when I was 14 I found out I was pregnant. That was June of 2003, and then in July I turned 15. In September, I found out that I had a molar pregnancy. It was really weird because I had never heard of it before, and either had my mom. I was so disappointed because I had finally gotten used to the fact of having a baby so young, and I had already gotten thru telling my parents and they had already gotten over it. And plus, not like many guys, my boyfriend actually stuck around and was kind of excited about the baby. It was a major disappointment. But as for my question, my doctor told me it was really important that I didn’t get pregnant within a year. What would happen if I did get pregnant? Somebody please email me. | |
| Name: | Kate |
| Signed on: | Wednesday, April 28, 2004 at 3:25 PM |
| Comments: Your story made me cry, and made me smile. My heart goes out to you and your beautiful family. Your boys are so sweet. I am 9 weeks pregnant and was not sure how to feel, now I know. Adding one more baby to the family will be a blessing!! Good luck, your little girls are watching, laughing, crying with you. They love you and are awaiting their mommies kisses!!!! | |
| Name: | ANGELS |
| E-mail address: | PRQUEEN328@MSN.COM |
| Signed on: | Thursday, April 29, 2004 at 9:05 AM |
| Comments: I HAD A MOLAR PREGNACY. I HAVE MANY PROBLEMS NOW SINCE THAT HAPPEND. I HAVE TWO BEUTIFUL KIDS NOW THANK GOD. SOMETIMES I FEEL SO SCARED. I WAS ONLY 16YRS OLD I DIDN'T ASK ANY QUETIONS BACK THEN.I REALLY DODN'T KNOW WHAT TO EXPECT IN A FEW YEARS FROM NOW.PLEASE WRITE BACK AND TELL ME MORE ABOUT THIS IF U CAN .SORRY FOR YOUR LOST | |
| Name: | Rose |
| Signed on: | Sunday, May 2, 2004 at 2:10 PM |
| Comments: Our daughter, aged 29 and husband just found out on Friday that they have a molar pregnancy. Tara is having a D&C tomorrow. I was with her when she had her ultrasound and was shocked to see nothing on the screen! I'm so sorry you were there alone to get that awful news. Please pray for Tara and John as they go through this next year. It's so good to hear that you've had two healthy children since your molar pregnancy. God bless you! | |
| Name: | Beth Sketoe |
| E-mail address: | bethsketoe@conwaycorp.net |
| Signed on: | Monday, May 3, 2004 at 2:29 PM |
| Name: | Codie Hopkins |
| E-mail address: | TWPrice@lakewebs.net |
| Signed on: | Tuesday, May 4, 2004 at 3:39 PM |
| Comments: I hate to hear so many are affected by this experience. My story is a little different than some of these I've taken time to read. I am on my THIRD molar pregnancy. I don't fit the profile as many of you don't either. I am twenty-two years old, white, and supposedly perfectly capable of bearing children. My first molar occurred when I was eighteen years old, the second when I was nineteen and now the third at twenty - two. I just had the D&C this morning. No one who hasn't been through this can express the anger and frustration that comes with it. I'm so close to giving up all hope for a healthy baby, it's just a devastating experience when it happens this many times for " no reason " other than bad luck. Would love some e-mails back..... | |
| Name: | kelly |
| E-mail address: | lukye5@hotmail.com |
| Signed on: | Thursday, May 6, 2004 at 9:09 AM |
| Comments: I am very surprised to see how many times this has happened to people, since my doctor told me this is very rare, and usually only happens in third world countries. I had a molar pregnancy on oct,2003, I am 21 and I was pregnant with my 4 child I thought, but I started bleeding and feeling very sick. The doctor scheduled me for and ultrasound, and the technician said that she saw nothing it looked like a snow storm. she told me to go home and the doctor would call me. About a hour later she called me and said to go to the hospital right away, she wasn't quite sure what it was, she had never heard of this before. I had a d&c the next day, I felt a lot better, they said I had a hyper thyroid, high blood pressure, etc. a couple days after my hormone levels dropped to 300,000, before they had been at over a million. After that I found out that I had cysts on my ovaries but they hope they'll go away on there own. It’s been 7 months now and my levels are at 0, I hope everything will stay good. | |
| Name: | Jessica & Tyrone Thompson |
| E-mail address: | shawtman212003@yahoo.com |
| Signed on: | Thursday, May 6, 2004 at 9:51 AM |
| Comments: Thank you for writing your story about Nina. We went through the same thing last year. We had a molar pregnancy also. I am still trying to get over it. It is very hard but I am glad that I am not the only one. I felt very alone during that time. My mother didn't want me to be pregnant. When I went to the doctor for my first appointment she went with me because my husband had just started a new job and he couldn't take off. When the doctor couldn't find the baby he ordered some blood tests to see if maybe I had my dates wrong. On the way to have the blood work done my mom yells "Thank God! I hope you aren't pregnant!!!" Well I was pregnant. The baby just wasn't forming correctly. She doesn't understand the pain that I have been through. My husband and I named our little angel Janiyah. We lost her on September 15, 2004. I just wanted to say thank you again for your story. You have helped me tremendously just by sharing your story. Thank You, Jessica & Tyrone Thompson |
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| Name: | Heather |
| E-mail address: | franck.heather@optusnet.com.au |
| Signed on: | Sunday, May 9, 2004 at 8:50 PM |
| Comments: Hello Kendra, I was diagnosed with a molar two years ago today and was just given the all clear 6 months ago. I was booked in for chemo but went to a naturopath who gave me heaps of stuff to take. The specialist was amazed that my HCG levels dropped so quickly and stayed that way for fourteen months. It was my first pregnancy. My husband and I have recently gone through a rocky time - he wants children and I am too scared to risk going through it all again. My Doctor has, this month, diagnosed me with reactive depression and anxiety. Finally I am listening to my family and friends and have had three counseling sessions. I now realize the affect the molar pregnancy had on me was greater than I realized. I strongly urge anyone in a similar position to do the same regardless of the costs if at all possible. We have cut back on things in order to afford the sessions and it is worth it. I believe that in time I will have the courage to try pregnancy again (especially now that I am 35 years old!) and am thankful for wonderful amounts of support from my family and friends and of course my husband. Thank you for the website - it helps so much to learn you are not the only one. Heather | |
| Name: | tres |
| Signed on: | Monday, May 17, 2004 at 12:03 AM |
| Comments: just a note. Wanted to tell you and whoever is looking for hope...we were too and mostly found tears. But now i guess a little more than a year after my first/my wife's second (#1 is now nine) pregnancy-which wasn't a pregnancy at all-it was a horrible time...anyway. We had the typical hell to, chemo et al. everything seemed to get better. Got a go ahead (we are lucky) and did it. a lot to risk. But hey. Whoever reads this- do HAVE HOPE. It got us through. My brave wife's next attempt was a glorious beautiful (not always easy or pretty but incredibly beautiful anyway) pregnancy and delivery (also not too easy)AND TODAY I SWEAR OUR BABY BOY IS THE MOST BEAUTIFUL THING I HAVE EVER SEEN. He is almost six months old now, and appears to be perfect in every way. I love him sooo much. And my wonderful wife too. She is my hero. I’m sure someone feels that way about you too! And if no one is with you on this journey- know that YOU are a hero and you can do this. It does get better. Hang in there. | |
| Name: | Sally Lambert |
| E-mail address: | aelidrissi3@yahoo.com |
| Signed on: | Thursday, June 10, 2004 at 2:52 PM |
| Comments: I had 2 miscarriages, the 1st one the doctor told me that it was God’s way of taking care of things, and that I can try to be pregnant after 1 or 2 periods. During the u/s of the 1st one, there was an empty sac, now I understand after reading your story what that was. After a year and half, I fall pregnant, I didn't want to see a doctor till after 12 weeks, unfortunately and around 10 weeks, I started bleeding. I was scared to death and I had to see a doctor, while she was doing the ultra-sound, there was no heartbeat. I was devastated ,and told her that that was my 2nd loss and wanted to know what were the causes, she said that they are going to send the blood or tissue for analysis after having a D&E and let me know. This happened just 2 days ago, I have an appointment after 3 weeks for a follow up. Your story was of a great help, I cried and cried while reading it, God is great and May God bless you and your family. I am waiting for the results, I don't know whether I can wait or they are going to call me if anything needs right away treatment. I wish everything will be just fine for me and for all those who are in my situation. Please, if anybody has the same thing as me, e-mail me, my family is overseas, and I have nobody to talk to, my husband has to work all day. I have no kids and wish I can have kids one day. Thank you and May God bless you. | |
| Name: | Pati Baker |
| E-mail address: | pattybaker1133@hotmail.com |
| Signed on: | Monday, June 14, 2004 at 8:51 PM |
| Comments: I was looking for information to give to my neighbor. She just had a molar pregnancy. She was experiencing pain after her DNC and asked for my opinion. I suggested her return to her MD. Now she is in the process of blood test and Ultrasounds. It sounds like she might be heading down a harsh path. The worst of it all is that she is waiting for State Medical Asst and a language barrier. I am pleased to have found your site and hope to help her better understand her situation. I recently had a miscarriage in November and sympathize with you all. Thanks for your support and Thank all the woman for sharing their personal stories. Truly from my heart Pati baker | |
| Name: | Jennifer Ryan |
| E-mail address: | maleficent_27@yahoo.com |
| Signed on: | Saturday, June 19, 2004 at 9:23 PM |
| Name: | lisseth estefania |
| E-mail address: | estrella0_28@hotmauil.com |
| Signed on: | Sunday, June 20, 2004 at 5:58 PM |
| Comments: eres muy bonita y me gusta mucho tu cancion titanic | |
| Name: | lana |
| E-mail address: | pittmanl@gvtel.com |
| Signed on: | Tuesday, June 22, 2004 at 5:34 PM |
| Comments: I just found out today that I have suffered a partial molar pregnancy. My husband and I went through the full battery of tests for infertility, trying to conceive for over 3 years. We were both so excited for this baby. This has been such a circle of anticipation, excitement, loss, worry ... I started today with my weekly hcg levels. Pray for the best!! | |
| Name: | Holly |
| E-mail address: | hollysteese@hotmail.com |
| Signed on: | Sunday, June 27, 2004 at 10:20 PM |
| Comments: Kendra, your site is beautiful. I just had a m/c last Mon. at 15 weeks due to a partial molar. I'm filled with hope after seeing your beautiful sons. My heart has a long time to heal still before we're ready again. But hopefully physically I'm on the mend. Thank you for sharing your beautiful personal story. God Bless you and your family. Holly | |
| Name: | laura dawn |
| Signed on: | Wednesday, June 30, 2004 at 9:28 AM |
| Comments: I read your stories word for word and it really touched home. Four years ago I had a pmp. I was 13 weeks into my pregnancy and could see my little angle but no heartbeat. I have never gotten over the loss but have learned to move forward. I now have a two year old son and he keeps my heart warm. Best of wishes to you and your family! Thank you for sharing your story to educate others. | |
| Name: | nicole |
| E-mail address: | nanddowen@primus.com.au |
| Signed on: | Thursday, July 1, 2004 at 8:32 AM |
| Comments: Dear Kendra, I have recently visited your site and was relieved to hear the words of another sufferer. Unlike you I had an ultrasound at 7 weeks and was told that all seemed well but there was a possibility of twins. At 13 weeks this proved not to be true and a partial molar pregnancy was diagnosed. Up until the 13 week ultrasound I had had no symptoms at all. The diagnosis was quite a shock. Luckily I have an excellent obstetrician who took care of me. He was kind and compassionate and led myself and my husband through some of our darkest days. I did not go on to experience the ravages of cancer and commend you on your bravery. Last year, at 36, I went on to have a beautiful baby boy. There is always the chance of a miracle down the track. May God and his little angel Nina keep you and your family safe. | |
| Name: | Sandy |
| E-mail address: | sedwards@falconplastics.on.ca |
| Signed on: | Monday, July 12, 2004 at 6:28 AM |
| Comments: Thank you for sharing your story. It has helped tremendously. | |
| Name: | Denise |
| Signed on: | Thursday, July 15, 2004 at 1:05 PM |
| Comments: I am 18yrs and about two days ago I had my first dnc and reading all the other comments really have me scared. I didn’t know that blood work and all the other things are required after. It’s really killing me. I had a molar pregnancy and I hope I make it out of all of this. | |
| Name: | Jeannie Bloem |
| E-mail address: | jeannie.bloem@newhorizonsteesside.com |
| Signed on: | Friday, July 16, 2004 at 6:27 AM |
| Comments: Thank you for sharing this. | |
| Name: | debi childers |
| E-mail address: | debichilders@msn.com |
| Signed on: | Friday, July 23, 2004 at 12:53 PM |
| Name: | Christine |
| E-mail address: | Christinecupp@hotmail.com |
| Signed on: | Sunday, August 1, 2004 at 8:43 PM |
| Comments: Thank you for your website and the support it gives to women with molar pregnancies. I had a partial molar pregnancy and after becoming very ill lost our baby at 17 weeks. I had a D & C the same day. Now, we are monitoring my HCG levels. They are currently 145 (they started out at 968,000). If anyone needs someone to talk to, please feel free to email me. I'm fortunate to have a knowledgeable physician in my house and have researched molar pregnancies for quite some time. Has anyone ever become pregnant before their HCG levels were 0????? | |
| Name: | Renea |
| E-mail address: | renea82001@yahoo.com |
| Signed on: | Tuesday, August 3, 2004 at 9:02 AM |
| Comments: Well my levels last week were less than one, so now I am a little relieved. But I know there is that chance that they could go up again. This waiting sucks! I have eleven months to go and counting. I sure hope these months fly by quickly! Hope all of you are getting the same good news. God Bless all of you. | |
| Name: | Renea |
| E-mail address: | renea82001@yahoo.com |
| Signed on: | Tuesday, August 3, 2004 at 9:09 AM |
| Comments: I had a miscarriage in May of 2004 which was followed by a complete molar pregnancy in June of 2004. My levels were really high after the D&C so my doctor put me on birth control pills and told me I couldn't get pregnant for a year. Also I would have to go to get a blood test every two weeks until it started to come down. Well now it's August of 2004 and I'm less than a 1 now thank god! But there's always that possibility that it could go up again. The waiting totally sucks. It's been a roller coaster for a few months; I'm just ready for everything to slow down. The only thing that really gets under my skin is when people say well it really wasn't that big of a deal and really wasn't a baby because it was a molar pregnancy and I had only been pregnant for about two weeks with the second one. I believe in my heart that there was a baby I named her Mallory Rae. I was pregnant before her for about ten weeks and I named him Lane Justin after his daddy. I hope everything works for all of you. God Bless and don't give up, I'm trying really hard not to, some days are better than others. | |
| Name: | Connie Clarke |
| E-mail address: | connie_clarke@ocdsb.edu.on.ca |
| Signed on: | Friday, August 20, 2004 at 9:35 AM |
| Comments: Greatly appreciate finding this site. It is encouraging. | |
| Name: | Jacqueline |
| E-mail address: | pinkdevil162@hotmail.com |
| Signed on: | Friday, September 3, 2004 at 11:35 AM |
| Name: | Jessi Laytart |
| Signed on: | Thursday, September 9, 2004 at 1:11 PM |
| Comments: I had a molar pregnancy but they discovered it early in stage at 8 weeks they took out 4 pds of tissue and it was terrible I’m still going through blood work to get my hcg level down when it hit 10 its been going down slow ever since. I just recently had mine so. But now I have to go to the doctor. | |
| Name: | sara |
| E-mail address: | daprincess21@hotmail.com |
| Signed on: | Saturday, September 11, 2004 at 1:09 AM |
| Comments: to each one of you posting on this page, I want you to know that my heart goes out to you all! I have not had this happen to myself but I do feel for you...I believe everything happens for a reason...God will take care of you... I admire your strength. | |
| Name: | eagle_magick |
| E-mail address: | holden76@dodo.com.au |
| Signed on: | Sunday, September 26, 2004 at 7:29 PM |
| Comments: I am glad that things turned out well for your family. I am sorry for your loss and I agree Nina was and will always be your little girl Take Care Shirley |
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| Name: | Pebbles Coward |
| Signed on: | Tuesday, October 19, 2004 at 10:33 AM |
| Comments: Hi you guys! Sorry to hear about your situation. It was so devastating. I cried. My brothers friend just recently had a molar pregnancy and I almost lost it. Baby Jaycee was her name. She was my niece and god child. I hope that my sister-in-law makes it through this and hopefully be able to have a healthy pregnancy in 1 year. I am keeping Baby Nina and Baby Abigail in my prayers! God Bless the Inmans | |
| Name: | Carolyn |
| E-mail address: | cmenkello@aol.com |
| Signed on: | Wednesday, October 20, 2004 at 5:35 PM |
| Comments: Thank you SO very much for sharing your story!! I had a D&C on 9/15/2004 due to a molar pregnancy it has been so heartbreaking. I found out I would have had a girl (which I had a feeling of anyways), but hearing that news just made the whole situation more real and gave this baby more of a life (if that is even more possible :<). My HCG levels have come down to 109 in the 5 weeks since the D&C, but the past two weeks they have started to come down very slowly. I am also grateful to you that you wrote that on your 12 week ultrasound they saw no fetus.. I was told that I had a full mole (no baby showed on my ultrasound as well), but when the lab results came back it showed a partial mole... my Dr. sent my information to another Dr. to get a 2nd opinion and she said I had a full mole as well.. You have made me realize that I do in fact need to do some research on my own as well as maybe getting a 2nd opinion myself since I would believe a lab over an ultrasound. Again, I thank you from the bottom of my heart for sharing this story. Warmest regards, Carolyn Menkello | |
| Name: | Tracy martin |
| E-mail address: | trazylee30@yahoo.com.au |
| Signed on: | Wednesday, November 3, 2004 at 11:43 PM |
| Comments: well done this was the most helpful web site I’ve come across my husband and I have just gone through loosing our first child to a molar pregnancy it was the most devastating experience and we are still rather upset and confused it really felt like something had been sucked out of my body its been 1 week since it happened and every day gets better but will never forget I like to thank you for giving me the inspiration on do not give up hope it will happen and with those words it will happen until that day comes all the best thanks again. love tracy | |
| Name: | Gaynor Morley |
| E-mail address: | gaynor.morley@ntlworld.com |
| Signed on: | Thursday, November 11, 2004 at 3:54 PM |
| Comments: Hi, I've just read through your story and some of the others posted on this site and wish I'd found it before... I had a partial hydatidaform mole in 1990, I was completely devastated and very frightened by what seemed to be such a horrible thing. I had follow up for the following few months and thank God my levels dropped to normal. I have since been blessed with three beautiful children, two sons and a daughter. I just wanted to pass on the message of hope to anyone who has suffered with this condition. I always, always wanted to be a mother and I'm so grateful for the gift of my children. Stay strong and hopeful, with my thoughts. Gaynor | |
| Name: | Rae |
| E-mail address: | Raebuhl@aol.com |
| Signed on: | Tuesday, November 16, 2004 at 9:20 PM |
| Comments: I had a tubal pregnancy followed by a molar pregnancy in 1981. The pain of losing two children, for in my mind they are two children never goes away. I am so thankful to have found your website. | |
| Name: | Nicole Evans |
| E-mail address: | lamikaevans1982@charter.net |
| Signed on: | Thursday, November 25, 2004 at 12:51 AM |
| Comments: I just fought out last night when I was rushed to the emergency room at 7 weeks pregnant bleeding that I had a molar pregnancy, in a few days I will have d & c I am so scared. I cried last and I am crying tonight when my husband is not around. I know they say there was nothing there but it hurts. It hurts so bad I have never felt anything like this before we were so happy this was our first child. Just knowing how long we will have to wait to try again kills me. Please if someone will e-mail me and talk with me I would really like that. Thanks | |
| Name: | Kat |
| E-mail address: | Harris.john@insightbb.com |
| Signed on: | Tuesday, November 30, 2004 at 7:35 AM |
| Comments: I am so sorry for your losses. I thank you for your words, for your story. I had a D&C on 11/18/04 and found out on 11/23/04 that I had a complete molar. My story is just beginning so my emotions are raw. Because of you, I know that I can make it through come what may, I just pray that the next year will be swift. My four year old named the baby "TooPooh." Sincerely, Kay | |
| Name: | deborah jenkins |
| E-mail address: | PAUL.NELSON12@TESCO.NET |
| Signed on: | Friday, December 3rd 2004 at 4:19 PM |
| Comments: I HAD A PRE MOLAR IN JUNE 2004, I WAS 21 AND IT WAS MY FIRST BABY. I WENT FOR SCANS EVERY WEEK FOR 3WEEKS BUT THERE WAS NO HEARTBEAT. I WAS BROUGHT IN FOR A D+C IT WAS HEARTBREAKING AS MY SISTER WAS 10WEEKS THE SAME AS ME. I HAD 6MONTHS OF FOLLOW UP WHICH HAS NOW FINISHED A WEEK AGO I HAVE SINCE FOUND OUT I'M 6 WEEKS PREGNANT AND DON'T KNOW WHETHER I'LL BE OK THIS TIME ROUND. HAS ANYONE GOT A HAPPY EXPERIENCE THEY CAN SHARE TO MAKE ME FEEL MORE HOPEFUL. | |
| Name: | Stephanie Gray |
| E-mail address: | AnglNoahNbabyCam@aol.com |
| Home web site: | http://www.thegraybabies.com |
| Signed on: | Saturday, December 4, 2004 at 8:52 PM |
| Comments: I'm so sorry for the loss of your Angels, please know I'm always here for you if and when you need. You have a Beautiful family and I'm so proud of you for not ever giving up as God always has plans for us although we never think we will ever be able to go on, he some how gets us through. I know your pain all to well and I'm here for you sweetie, ((hugs)) and God Bless! | |
| Name: | Megan Stow |
| E-mail address: | megan_stow@yahoo.com |
| Signed on: | Tuesday, December 14, 2004 at 10:03 AM |
| Comments: I want to thank you for taking the time to write about your experiences, I understand all too well what you went through. I had a blighted ovum myself; we thought it was a girl that we named Sarah, in July of 2004. We got pregnant again in October and just this month at 10 weeks we had a D&C, I found out yesterday it was a Partial Molar Pregnancy. So now I am starting the weekly blood draws, etc. We really thought this one was a boy, and named him Phillip. I don't know how I can deal with this well, I want a baby so much and am now scared I can't have one. Although I have found a peace in this one. Since I was told I was miscarrying I just seem to know that the next pregnancy will go normal. I hope so, but I didn't think I would have to wait a year to try again. Your story gives hope. I knew what a molar pregnancy was before I was diagnosed; I am odd and like to research anything that might go wrong. I know the cancer is beatable if caught early and I know too well about being the person that the rare things happen to. I am so glad your other pregnancies had no more problems. I wish all the best for you! Thank you again! Megan Stow | |
| Name: | Michelle walker |
| E-mail address: | mickeyforu20@yahoo.com |
| Signed on: | Wednesday, February 23, 2005 - 10:23 AM |
| Comments: hi my name is Michelle just 3 days ago I had a emergency abortion with my first baby I was 5-8 weeks molar pregnant I still cant believe it happened to me I am only 23. I am going through depression on and off ever day. I read up on it cause I am a nurse and they don't even know why it happens I just hope they find out and correct it after all I cant even try to have a kid for a whole year and it's really bothering me. | |
| Name: | Hazel |
| E-mail address: | drinanedive@yahoo.com |
| Signed on: | Sunday, February 27, 2005 at 9:58 AM |
| Comments: Dear Kendra, Congratulations on producing the most beautiful web site. I suffered a partial molar pregnancy recently, diagnosed the week before Christmas at 16 weeks gestation. It was my first pregnancy so it was a particularly harrowing experience for my husband and me. It is so reassuring to see and hear other women continue to have healthy babies. Thank you for sharing your wonderful experience with me. Hazel | |
| Name: | Gillian McCormick |
| E-mail address: | jacquelineralph@hotmail.co.uk |
| Signed on: | Monday, March 7,2005 at:22 AM |
| Comments: I am 25years old and on the 1st of June 2003 I had a D&C for a molar pregnancy. This was my 2nd pregnancy as I have a healthy 8 year old daughter. My husband and I were devastated as we had been trying for 4 years. I was then told to wait a year before I tried again but in November 2003 I found out I was pregnant once again. With fear and dread inside, my husband and I went for our first scan and on August 2004 I had a healthy 7lb 2oz baby boy. I wouldn’t wish for anyone to go through the not knowing what’s happening with a molar as my Gp had never heard of it. | |
| Name: | Marta |
| Signed on: | Monday, March 14,2005 at 1:40 PM |
| Comments: I just wanted to write a few lines of hope for all of you that have suffered a molar pregnancy. Me, myself had a molar pregnancy 4 and a half years ago (I was 30 years old by then). After one and a half year of BHCG levels controls, I was told I was cured and that I could start again trying for a baby. After a few months I got pregnant and everything turned out right. I gave birth to a healthy baby girl who is now one and a half years old. Now I am expecting my second baby (3 months pregnant) and everything is also fine. So my message is do not give up! Have hope; from my experience it's possible to have a healthy pregnancy after a molar one!!! | |
| Name: | pinky |
| E-mail address: | pinkbubbles1967@aol.com |
| Signed on: | Wednesday, March 23, 2005 at 11:30 AM |
| Comments: your experience and words moved me very much. Thank you | |
| Name: | D. Ryan |
| E-mail address: | eryan1404@charter.net |
| Signed on: | Tuesday, April 12, 2005 at 6:38 AM |
| Comments: Though I have given birth to five children myself, I had never heard of Molar Pregnancy until just with in the past few weeks my son and daughter-in-law lost their baby. The pathology reports indicated a Partial Molar Pregnancy. Since then I have searched for and read every article I can find. My faith in God leads me to believe that miscarriages are simply God's way of saying that this wasn't the right time for this child to be born and I can accept that. My concern is more for my son and his wife and how I can help them get thru this painful time. It's so frustrating to know that they are hurting and not knowing what to say or what to do to make it better for them. | |
| Name: | nan vincent |
| E-mail address: | mynanlovesme@cox.net |
| Signed on: | Tuesday, April 19th 2005 - 8:45 PM |
| Comments: This site is a God send. My granddaughter had a Molar pregnancy which was diagnosed last week. She had a D @ C. She lives very far away from me and I have been very concerned about her. Not being able to speak to her Doctor personally was frightening for those of us here. Getting all the information was not only enlightening but also comforting. God bless all of the women who has gone through this ordeal. Thanx, Nan |
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| Name: | Jerri |
| E-mail address: | jd41054@yahoo.com |
| Signed on: | Tuesday, May 17, 2005 at 10:15 AM |
| Comments: I thank you for your website. My daughter and son-in-law went for their first ultrasound yesterday and found out that she has an empty sac. She is having her D&C day after tomorrow. I was not aware that a form of cancer could occur from this condition but am thankful to know because if it happens to her at least I will be expecting it and can give even more support. God bless you and your lovely family. Jerri |
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| Name: | Jessica |
| E-mail address: | fishhook07@yahoo.com |
| Signed on: | Friday, May 27, 2005 at 12:27 PM |
| Comments: My sister had a molar pregnancy. She had to go through chemotherapy her HCG levels were over five hundred. She has just finished chemo and had to shave her head. But she’s still a strong and beautiful a ever .I hope hearing about her will help you be at peace with the death of your sweet baby girl. | |
| Name: | Tammy |
| E-mail address: | tammyrickelman@cfl.rr.com |
| Signed on: | Sunday, May 29, 2005 at 7:40 PM |
| Comments: I am playing the waiting game right now to find out if I have a molar pregnancy. My HCG levels jumped from 115 to 61,000 in 2 1/2 weeks. My first ultrasound showed nothing and I was told that I had miscarried. I should be going to a high risk OB next week for another ultrasound and I'm sure more blood work. This is my sixth pregnancy. I have three children and have had two miscarriages. Thanks for creating this site. It was nice to read such a personal experience and not just medical info. | |
| Name: | Kassy Sellers |
| E-mail address: | juicypez@yahoo.com |
| Signed on: | Friday, June 3, 2005 at 2:12 AM |
| Name: | Katie |
| E-mail address: | Kabryce@hotmail.com |
| Signed on: | Sunday, June 26, 2005 at 6:37 PM |
| Comments: I want to thank you for making this website and sharing your history. I'm 21 and was 14 weeks along with my first child when I was diagnosed with a molar pregnancy 2 days ago and my D&C is scheduled for 2 days from now. It's hard dealing with a situation you had no clue existed. The initial talk with my OB/GYN was a huge blur, I'm glad there are places on the internet like your site to allow me to read up on the situation I am in. This child was unplanned, but I was extremely excited to be pregnant... now I just feel lost. My fiancé is very sad as well, but I'm glad we are going thru this together. My biggest fear of the moment is that this could be cancerous, but like you said I was told the outcome is very good. I wish I didn't have to wait the year period, but I know it is the best thing for me, my fiancé, and the child. Just want to thank you again to giving this condition a personal view (rather than just medical) and knowing that no matter what happens now - it will get better. I'm very excited to see you had healthy pregnancies after this incident. Thanks so much :) | |
| Name: | Cathy Stevenson |
| E-mail address: | jasoncathystevenson@yahoo.com |
| Signed on: | Tuesday, June 28, 2005 at 4:18 AM |
| Name: | Patricia |
| E-mail address: | nicobella23@aol.com |
| Signed on: | Friday, July 22, 2005 at 10:10 PM |
| Name: | Mandi |
| E-mail address: | Aphroditeinvt@yahoo.com |
| Home web site: | http://www.xanga.com/home.aspx?user=Frosty1176 |
| Signed on: | Sunday, July 24, 2005 at 9:51 PM |
| Comments: Hi, I just returned from the hospital today. On the 22nd, I delivered my daughter, Ashlin, she was still born as a result of an abnormal partial mole. It appears that there originally was twins. One embryo grew normally and the other turned into a 'mole'. It would also appear that she struggled against the diseases attempts to consume her. My heart is breaking, and I'm lost. | |
| Name: | Barbara Plaza |
| E-mail address: | barbaraplaza@hotmail.com |
| Signed on: | Saturday, August 13, 2005 at 2:02 PM |
| Comments: I too suffered through a molar pregnancy at age 19. I was told the same things you were told, that there was never a baby. Just a bunch of cells. My daughter is 9 now and I consider her my miracle baby. I'm too scared to have any other children because of what happened to my first and all the complications that came with my daughter. Thank you for sharing your story with all of us. It makes a difference when you know there's others that have gone through this. | |
| Name: | Samantha |
| E-mail address: | samantha_michael2003@yahoo.com |
| Signed on: | Monday, August 29, 2005 at 8:52 AM |
| Comments: I had a molar pregnancy at the age of 16, it was very hard for me to understand all of the stuff my body was going through.. It took me a while to understand everything but I am doing better now. I have to go once a week to draw blood, my hormone level is just now going back down.. Samantha | |
| Name: | Sonia |
| E-mail address: | smaria0826@yahoo.com |
| Signed on: | Friday, October 14, 2005 at 9:00 AM |
| Comments: Hello. I first want to tell you how moved I was by your writings. It is almost scary how the beginning of your story is so much like mine. Unfortunately, my story is only beginning and I am not sure where it will end. I found out I was pregnant on Sept. 13, 2005. I too was worried about what people would say and think because my son was only 16 months old. I already have high risk pregnancies due to low progesterone levels. I had to be on lots of medications to help me through my pregnancy with my son Aidan. I knew that I needed to be on all of the same meds this time. My HCG levels were not moving at the rate that they should have been moving which at first made the doctor think that I had a tubal pregnancy but at the ultrasound she became concerned that it may be a molar pregnancy. I had a D&C on October 10, 2005. Just a few days ago. I am now waiting for my results. After doing research on all of this, it definitely scares me. Anything involving possible cancer frightens me so much because I watch Cancer take my dad from me when I was little. I saw what Chemo does to the body. I pray that everything comes out alright but if it doesn't, I hope that I can email you for a friend to talk to. If that is okay. Take Care and God Bless! Sonia |
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| Name: | debbie |
| E-mail address: | dac730173@aol.com |
| Signed on: | Tuesday, October 18, 2005 at 3:41 PM |
| Comments: I had a pmp 8/2/2005. I want to know if I decide to try to get pregant,what are the my chances of it happening again. | |
| Name: | Vicki |
| E-mail address: | v_moscoe@yahoo.ca |
| Signed on: | Thursday, October 27, 2005 at 4:24 PM |
| Comments: I have recently completed 5 rounds of chemotherapy after my molar pregnancy. If there is anyone out there who would like to touch base on this please feel free to contact me. It is hard to go through and it was difficult to find someone with a similar experience. So if I can help anyone out there make it a bit easier for them I would love to. Remember, day by day the nightmare of chemo gets closer to being over. | |
| Name: | Mitch |
| E-mail address: | Shelly12MA@Aol.com |
| Signed on: | Sunday, November 20, 2005 at 6:52 PM |
| Comments: Many times I lay in bed and wonder "Why Me??" There is no answer to that question. Things happen for a reason but I haven't figured that out yet. It was bad enough hearing you have Molar Pregnancy. Then you are told you have to go for a D and C. Doctors say chances of Molar Pregnancy is 1 out of 1,500. Then the doctors tell you your chances of having to get Chemo is one out of five so don't worry. Once again I was that 1. I don't want to hear the percentages anymore. They never seem to work out for me. You ask yourself when your nightmare will go away. The question can't be answered. I just have to keep going for chemo until my HCG levels get to 0 for three weeks. There are no answers when that will be. I know I will make it through this but it isn't something I would want to go through again. Every week I pray for my HCG levels to be low. It hasn't happened yet. When I go for my treatments, I look around and realize that there are other people getting chemo that day that are worse off than me. Then I think I shouldn't complain when I could have been in there shoes. Life is never easy. We just have to be strong to make it through it. I am not saying it is easily because I have nervous breakdowns all the time. I am just saying I have to stay strong and fight this. I am not going to give in and give up. I will continue to pray and realize I am in God's hands. | |
| Name: | Jen Baquol |
| E-mail address: | jlbaquol@yahoo.com |
| Signed on: | Wednesday, November 30, 2005 at 11:48 AM |
| Comments: just lost a baby to a partial mole. I was 12 weeks. It was the hardest thing I have ever been through. I had two sonograms & the first one at 6 weeks showed a beating heart & to go back & them tell you that there was no heartbeat was SO heartbreaking & exhausting to say the least... | |
| Name: | Janice M Bourque |
| Signed on: | Wednesday, January 4, 2006 at 10:38 AM |
| Comments: It felt god to hear that i'm not the only one who had a molar pregnancy...I had never Heard about this until the doctor broke the news to me. I was devastated but the way i look at it now is that everything happens for a reason. It wasn't the right time for my little Baby (Jeyne) to be face this harsh world. Thank you for sharing you're story. Perhaps Jeyne and Nina are both little Angels now, playing together in heaven. I wish you and your family all the best! xox | |
| Name: | Naomi |
| E-mail address: | naomiparry@gmail.com |
| Signed on: | Wednesday, January 25, 2006 at 9:09 PM |
| Comments: Kendra, thanks so much for your story. I've had a partial mole too, but fortunately it went down as it was supposed to. But like you I was bigger than I should have been, and thought it was a positive sign. And I could really relate to your view on statistics - you do feel very pessimistic when this happens. So glad you've got your beautiful kids. I had a blighted ovum before I had my molar pregnancy. Thanks again for sharing. | |
| Name: | Jean Wood |
| E-mail address: | JeanBuffaloes@hotmail.com |
| Signed on: | Monday, January 30, 2006 at 4:19 AM |
| Comments: I had a molar pregnancy in 1975.Not much was known about it then. At 18weeks pregnant I looked 32 weeks pregnant. As ultrasounds were not in then & x-rays were not advisable in the first 3 months of pregnancy I had no idea what was wrong until one night I hemorrhaged & was rushed to hospital. An x-ray was organized & the doctor came back with the horrible news that I wasn’t carrying a baby at all. For the four months I was pregnant I was carrying 4 tumors that looked like bunches of grapes is the way the Dr described it. I was operated on immediately 4hr operation. Was not allowed to fall pregnant for 2 years & when I did I miscarried. Had to wait another 6 months & again I had another miscarried. Another 6 months later I had a successful pregnancy. I was lucky that my mole was benign. My sister also had a molar pregnancy but hers was malignant. She was lucky & had two successful pregnancies after all her problems. There is hope after all. Thanks for giving me the space to tell my story. | |
| Name: | Cindy |
| E-mail address: | cindywss@charterinternet.com |
| Signed on: | Thursday, February 2, 2006 at 10:53 PM |
| Comments: Thank you so much for your website. I had a D&C at 16 1/2 weeks after finding out I had lost my baby 6 or 7 weeks earlier. I didn't bleed at all and thought everything was fine. I had an ultrasound at 8 weeks and we even saw the heartbeat. I found out a couple of weeks after my D&C that I had a partial molar pregnancy. My first HCG level was 54. I was thrilled to hear it was so low and it continued to drop. That was 8 weeks ago and I seem to have hit a plateau at 11. My doctor told me today that she wants to do another ultrasound. The thought of having to go back into that room where I found out I lost my baby is terrifying. This was my first pregnancy. | |
| Name: | julie |
| E-mail address: | jlhboualam@yahoo.com |
| Signed on: | Thursday, February 16, 2006 at 10:46 PM |
| Comments: I lost our baby on 1/11/06. Had a D&C on 1/13/06. My HCG levels fell to 1,200 from 102,000. Then to 750, then back up to 1,300, then 5,000, now as of 2/14/06, it's at 12,000. I have my first oncology appointment on 2/21/06. Any helpful hints to get through this? What should I expect? Please help! I'm so scared! | |
| Name: | Suzy Gordon |
| E-mail address: | sgordon_0121@hotmail.com |
| Signed on: | Monday, February 20, 2006 at 12:48 PM |
| Comments: In December of 2002, my husband and I had what they say a complete molar pregnancy. I was 4 months along when I went it to see the Dr. for a routine check up. She did a vaginal exam and said everything was looking good. She wanted to check the baby's heart rate, so she placed the fetal heart rate monitor on. There was no heart rate noted, so she reinforced to me that everything was fine, but she wanted a vaginal ultrasound to make sure. I went to the hospital were the ultrasound was performed. It was there that I was told there was not a baby. I had all the symptoms of being pregnant from the nausea, gaining weight, and no menstrual cycle. The dr. scheduled me for a D&C the next morning. After the D&C, my HGC levels continued to rise, which lead me to see an Oncologist. I received Methotrexate injections for around 6-7 months, until my HCG levels went back to normal. From there my husband and I were not allowed to start trying to have children for at least a year. My husband and I found out in April we were going to have a baby. The baby girl was born on January 22 2005. She is now 1 and healthy as can be. Just wanted to write and give hope to the people who are going through it right now. It was by the grace of God that she is here and with me to this day and I thank him on a regular basis for the joy that he has brought to me. | |
| Name: | Maggie |
| E-mail address: | maggiemouse96@hotmail.com |
| Signed on: | Thursday, February 23rd 2006 - 3:54 PM |
| Comments: Just wanted to say thank you for taking the time to write your story. This was my first pregnancy and both me and my husband were very excited about it until we heard last Sunday it was a molar pregnancy. I go in for my D&C tomorrow and I am a bit scared but hopeful that everything will be ok in the end. May God bless you and your family! | |
| Name: | Elizabeth |
| E-mail address: | cutie2shoes17@yahoo.com |
| Signed on: | Friday, February 24, 2006 at 1:41 PM |
| Comments: I just read your story and I touched my heart in so many ways! I just found out 4 days ago that I also had a molar pregnancy. I just had my D&C done 3 days ago. This was going to be our 3rd child. I was 7.6 weeks pregnant and I had 2 ultrasounds done one on the 9th when I was 6.1 weeks pregnant and they only saw the sac and the yolk which the doctor told me everything was ok that I was early and it is hard to see anything that early. Which I knew something was wrong since I have had 2 other children that showed something at 6 weeks. They had me come in 12 days later which was on the 20th and they saw that the yolk was almost as big as the sac. Still no baby. Like I said I had the D&C done the next day. I'm also in stage 1 cervical cancer and had a LEEP done the same day. Doc tells me my HCG levels are back to normal. That we can start trying for another baby after my 1st normal period. My heart goes out to everyone that has been thru this. I just hope some day we will be able to let go of our little peanut and move on. I'm glad there are other people out there that knows about this because I had never heard of it! Thanks for sharing your story! | |
| Name: | kristie |
| E-mail address: | hebbardk@msn.com |
| Signed on: | Thursday, March 2, 2006 at 8:55 PM |
| Comments: Hi to all the ladies out there that has or is going through this horrible nightmare. I had a partial molar pregnancy in July 2005 and found out when I thought it was my 12 week scan to find that the baby had died 8 weeks in to the pregnancy. It was bad enough to have had miscarriage but what made it worse is that I didn’t no the baby had passed away. 3 weeks later the hospital rang and said I have a partial mole pregnancy and that I have to avoid pregnancy for the next 6 months and do all the blood test that go with it. Well the six months has passed and I was given the ok to fall pregnant again only to miscarry at 6 weeks pregnant. I went to the hospital as my bleeding was getting really heavy after 9 days of bleeding. They did a dnc and they said the dnc results came back as possible partial mole pregnancy but they are doing more tests on it. I'm crossing my fingers as this time I may have to go through chemo. The thing I can't work out is that my hcg levels have been neg- for the past 5 months and y me? I hope that you all go on to have healthy pregnancy and that your nightmares will be over forever Good luck BABY DUST TO U ALL!!! | |
| Name: | CHRISTINA WILSON |
| E-mail address: | C.WILSON@HOOVERTRANS.COM |
| Signed on: | Friday, March 10, 2006 at 1:45 PM |
| Comments: I HAVE HAD THREE MOLAR PREGNANCIES WHAT CAN I DO TO PREVENT THIS? | |
| Name: | daphne |
| E-mail address: | dallijahmom@aol.com |
| Signed on: | Monday, March 13, 2006 at 9:45 AM |
| Comments: I 2 had a molar pregnancy and yes u can have kids after that it took me a year and i had a girl and now i have another one on the way have hope and pray it will be ok | |
| Name: | Aiye Williams |
| E-mail address: | Aiyescaringheart@yahoo.com |
| Signed on: | Thursday, March 16, 2006 at 11:15 AM |
| Comments: My daughter just lost a child to molar pregnancy | |
| Name: | RUBY |
| E-mail address: | rncl06@yahoo.com |
| Signed on: | Wednesday, March 22nd 2006 - 12:02 PM |
| Comments: THAT WAS A SHOCKING STORY FROM WHAT IM GOING THROUGH.I HAD A CHILD TWO YEARS AGO AND HE IS HEALTHY AND NOW 15 MONTHS,AND I HAD A MOLAR PREGNACY AT SEVENTEEN AND IM A HARD WORKING YOUNG WOMAN I COULDNT GO BACK TO MY APPOINTMENT. NOW ITS BEEN FOUR MONTHS AND I MIGHT BE FOUR WEEKS AND THE DOCTOR SAID IF I WOULD OF CAME BACK HE WOULD OF TOLD ME TO NOT GET PREGNANT UNTILL A YEAR. NOW IM FOUR TO EIGHT WEEKS AND THEY WOULDNT KNOW IF ITS FROM THE MOLAR PREGNACY OR FROM ME BEING PREGNANT FROM THE HORMONES THEY GIVE YOU FROM THE PREGNACY.WHEN I LEFT THE DOCTOR I WAS SCARED BECAUSE I DIDNT KNOW WHAT TO DO THIS WAS TWO DAYS AGO 03/21/2006.I PREY TO (GOD) EVERY DAY THAT I BE OK. IF ANYONE BEEN IN THIS SITUATION OR HAVE ADVISE PLEASE WRITE ME AT RNCL06@YAHOO.COM. THANKS | |
| Name: | Meggin |
| E-mail address: | megginyo@hotmail.com |
| Signed on: | Wednesday, April 12, 2006 at 9:40 AM |
| Comments: I had a D&C on 02/27/06 to remove a partial molar. It is really great to see websites that are dedicated to molar preganancy. It hasn't been easy going through this, if having a miscarriage isn't enough, you have to worry about developing cancer. So far my HCG levels have been falling and are down to 73. Hopefully they will continue to fall and eventually I can try to have another baby. THANK YOU AND GOD BLESS YOU. | |
| Name: | jodie stevenson |
| E-mail address: | xxchina_rox_xx@hotmail.com |
| Signed on: | Saturday, April 15, 2006 at 4:46 AM |
| Comments: hi, one year ago i fell pregnant and was extremely excited as I have a 13 yo beautiful girl, and thought I had met a beautiful man, but i had waited so long to have another child as I love children. I was 9 wks pregnant and started bleeding i felt so scared i was miscarrying, went to the hospital and they sent me for an ultrasound, I was told that there was a gestational sack but no fetus, I was to have a curet, I was very confused as i still felt that the fetus was going to grow as i felt so pregnant my blood levels we're 20,000 so my first hospital visit they said I was fine but the second visit they sent me for the ultrasound. After having the curet on the Friday night, Saturday got even worse the man i thought was in love with me left and never came back, he was seeing someone else. on the Monday I got a phone call from the hospital asking me to come back they had spotted a cancer cell. (molar pregnancy). Going back to the hospital especially to maternity was all to much sitting there waiting for the doctors to see you, hearing the baby's and the happy mothers. I started having blood test every week and my levels dropped every week by the 8th week they had got to zero. But looking back a year on that was such a terrify experience very confusing as I had no clue to what molars pregnancy was. I recently got my mother to look it up on the internet that’s when I read the stories of all you other woman who have dealt with this and worse. I thank you for sharing your stories as it has helped me so much to get my head around it. I would so much love to have more children but I am scared, as it is very emotionally draining and the man I did love just recently had a baby that was due the same time my baby was due, and it cut me so much that someone could be so cruel, but i have to get over it, I know that I will find a good man, me and my daughter deserve happiness. Thank-you again for sharing your stories it has helped me to understand as i had no-one to talk about it with as they do not understand. luv jodie |
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| Name: | F. S. |
| E-mail address: | kristiningrum@hotmail.com |
| Signed on: | Wednesday, May 3, 2006 at 11:37 PM |
| Comments: I recently had molar pregnancy. I was upset, disappointed, angry and also like you, jealous to anyone who's pregnant. I had my D&C on April 21st, 2006 after 8 weeks of pregnancy. And I will have my first test tomorrow after my D&C. I hope I still can be pregnant again. Thank you for this site. God bless you and your family. | |
| Name: | jlynnpope |
| E-mail address: | jlynnpope@yahoo.com |
| Signed on: | Friday, June 9, 2006 at 1:43 PM |
| Comments: I found out that I had a molar pregnancy on April 10th 2006, I had a DnC the following day. My world was turned upside so suddenly and unexpectedly. I was 10 weeks along and the symptom that I had was mild nausea. My husband and I had been to the doctor that day and he sent us to have an ultrasound to find out the gestational age. It was than that we learned the news. I am currently in my 8th week of the blood work and my level this week is 17! I wish it was lower but it is a lot better than 3500 which is where I started at. I know that you are to wait a year before you try and conceive again but I was wandering why. I understand the risk of it coming back as cancer is 20%. But what I was really wandering is does getting pregnant increase the chance of this happening? I am confused when it comes to this issue. Any info would be helpful. | |
| Name: | patricia perea |
| E-mail address: | unicormiblanco@verizon.net |
| Signed on: | Wednesday, June 14, 2006 at 9:50 PM |
| Comments: My name is Patricia I, am Mexican and I been diagnostic with high risk molar pregnancy, I am a mother of 4 little kids and I am devastated. I am 32 years old and I am so scared. please somebody who want to write me and support me, I really need help my hcg levels were 280000 after the d&c drop down to 411, then 369 and now it raise to 398, so they send me to an oncologist and she tell me that is cancer and thy going to do scan to see if the cancer spreads in my organs. I hope and pray no please I need support from any body specially. People like you who are familiar with this type of cancer. | |
| Name: | Mary |
| E-mail address: | marytaverne@adelphia.net |
| Signed on: | Thursday, July 6, 2006 at 4:59 PM |
| Comments: I don't see many current dates in here but reading your stories make my crying seem senseful. I just experienced a complete molar pregnancy at 13 weeks and like many of you find the doctors to be no help. I have been researching this since it happened to me a week ago and have foung lots of conflicting information. at my first appointment I told my doctor I had a clear discharge with white tissue suff in it he said it was normal and I did not need a pap because I had had one six months earlier at a check up with a different doctor. At my second appointment I told him again he said stop worrying about it it is normal. Now look he could have saved me months of dreaming about a new baby that didn't exist if he would have just checked it, done his job and stoppd worrying about rushing people in and out so quickly. I have found a site that says in 70% of molar pregnancies HPV is found I asked my doctor for this test because of a rumor of one of my husbands ex's but he said since we have been together seven years and my paps were normal I don't need this HPV DNA test. I also display all the signs of hyperthyroid disease sweating, light migraines, crankiness, sleeplessness, depression, always hungry, loose weight rapidly, now miscarriage my primary care physician is looking into this because I have told her of these symptoms long before this pregnancy occurred but my OB says it isn't needed. When I have these tests done and the results are positive I am going to ask him for a written statement telling me I do not need these tests then I'm going to throw the results at him in the waiting area with all the pregnant ladies trusting his care. Very depressed mum | |
| Name: | Beth Ann |
| E-mail address: | babcartwright@bellsouth.net |
| Signed on: | Sunday, July 9. 2006 at 3:58 PM |
| Comments: This website has helped me not feel so alone. I'm 28 years old and I was diagnosed w/ a molar pregnancy Aug. 31 2005 and had the D&C on 9/1/05. During the surgery, I lost 4 pints of blood and I later found out that the doctor didn't remove all of the mass. Almost a month after my surgery, my hcg levels began to rise again so I started on chemotherapy. A couple of days after my first treatment I started getting really sick b/c my blood levels were still low. I then had to get a blood transfusion in order to keep getting the chemotherapy treatments. I was on the chemotherapy for four months. My levels have been normal since Feb. 06, but I found out last week that they are 24. I don't know what to think. Will I have to go back on the chemotherapy? Could I possibly be pregnant, even though I'm on the pill? The hardest thing about this experience is not having a baby. I was 11 wks. Pregnant when the doctor diagnosed me. The thought of having to start all over again and wait at least another year is awful. I hate to say this, but my faith in God has definitely been challenged through all of this. But I am trying my hardest to have faith and be optimistic. It seems like it's so easy for other women to have a healthy pregnancy and baby. I think a lot of women take it for granted. Having a healthy baby is a true miracle. One I hope to experience one day soon. Please pray for me. Thanks again! | |
| Name: | karen |
| E-mail address: | karencooke@biscituk.com |
| Signed on: | Monday, August 7, 2006 at 4:30 AM |
| Comments: just want to say thanks for setting up this site. it was hard enough having a "missed" misscarriage but reading about others helped a lot. I had a d & c and hoped to be on the mend physically and emotionally. then just when i was happy to get my period i had massive bleeding, went into hospital where i was told, as i came round from my 2nd d&c, that i had a molar pregnancy. I am still coming to terms with all that this means, going for my 1st blood test today. What i mostly wanted to say was that i am so pleased to have found a place to read about others with this as suddenly it seemed like i didn't fit into the misscarriage support sites any more - so helpful to know i am not alone. lots of love to everyone else going through this. i will write again when i know more xx | |
| Name: | evie |
| E-mail address: | ewright10339@aol.com |
| Signed on: | Monday, August 7, 2006 at 7:43 PM |
| Comments: MY NIECE RECENTLY HAD A MOLE PREGNANCY, AND I WAS TRYING TO GET SOME INFO. I SEARCHED AROUND ,AND FOUND YOUR WEBSITE. THANKS, FOR HAVING IT. I FEEL SO SORRY FOR ANYONE THAT HAS TO GO THRU THIS.I LEARNED A LOT. | |
| Name: | mary from england |
| Signed on: | Friday, August 11, 2006 at 11:47 AM |
| Name: | Jessyka |
| E-mail address: | jadiaz611@aol.com |
| Signed on: | Tuesday, October 3, 2006 at 12:30 PM |
| Comments: Just like many of these women I was searching the web for molar pregnancy information. I too came across your website for baby Nina. Although I am very sympathetic towards your story I am still a little discouraged. I can't seem to find anything about my specific type of pregnancy. The doctors told me I had fetal tissue but that there were blood pockets. It probably is the same thing but all the other websites describe it as grape looking. I didn't actually miscarry. I had to go to my 12 week check up as well to find out that I had lost my baby at 7 weeks. As sad as it was then I seemed to be progressing well with all the emotions that run through your mind. I went through all the same thoughts as you and all of the same confusion. I'm hoping now that I am pregnant again a year and a half later that I am ok. I haven't had an appointment yet and I'm already suppossed to be 4 months along. I'm so scared and now more than ever. The stats don't make me feel any better and I don't do well with counseling. But I'd like to thank you for being strong enough to write about your emotional story and being able to help woman like us to pull through. Also I'd like to bless you and your beautiful family. I hope everything is well for you. | |
| Name: | nichole |
| E-mail address: | emloveselmo@hotmail.com |
| Signed on: | Sunday, October 15, 2006 at 6:37 AM |
| Comments: HI my name is nichole and I lost my lovely baby two weeks ago I was told friday at a scan that I had a partial mole pregnancy after 15 weeks of loving and getting ready for a baby it was all over in four words sorry there is no heartbeat. I could not believe it I was sick so sick with morning sickness and I thought every thing was fine just in bed from being sick lost 5kg. I am finding it really hard to deal with not only I lost my baby I went into labor I think from stress my waters broke and had the urge to push and every thing not that I saw much i saw a little fetal tissue some thing that looked like a tadpole with two back spots I cant sleep because of it. My Hgc levels are not dropping at all and I might need another D&C and some chemo. I can’t find much support out there even on the world wide web. I really hope some people will come and start a group with me because it is so lonely it is so much worse then a miscarriage (i have had 5 of them)I was also wondering if anyone had a baby before the 12 months and if is the baby and you ok If any one can help pleas i just feel so alone | |
| Name: | Sue |
| E-mail address: | susues@aol.com |
| Signed on: | Wednesday, November 1, 2006 at 9:14 PM |
| Comments: I am going through chemo treatment for GTD. I don't have a molar but I do have GTD. My first shot of chemo didn't work. My doctor said HCGs after the chemo shot might go up before they go down. For those going through this, is it a nightmare. I have gone for two shots already. My number is at 1900. Before my shot it was at 1707. I have to go for more blood work and my third chemo shot next week. I hope my numbers go down. I am so stressed out and I am so sick of waiting for the numbers every week. This is so surreal. Best wishes for all going through this horrible ordeal. | |
| Name: | Gina |
| E-mail address: | ginavelarde@hotmail.com |
| Signed on: | Monday, November 6, 2006 at 9:59 AM |
| Comments: Hello, I recently had an ectopic pregnancy and it was also a partial molar gestation. My doctor didn't really explained in detail what exactly is partial molar gestation. I have looked in several different websites but the words that are used are too complicated. Can someone please explain what causes a partial molar gestation... Thank you. | |
| Name: | Lorraine |
| E-mail address: | themayersfamily@hotmail.co.uk |
| Signed on: | Wednesday, November 8, 2006 at 9:15 AM |
| Comments: I'm so pleased to find a web site dedicated to women’s experiences after having molar pregnancies. I found out I had a molar pregnancy in September 2006 after having my first scan. I already have a beautiful daughter who is 5 and was unfortunately present at the scan along with my husband. We were all so excited and then totally devastated once we realized there was no baby, I had a full molar pregnancy. I was seen straight away by a consultant who explained in great detail what was happening and what was to happen, and 4 days later was in hospital having the mole removed. I have never felt so scared and low and like all of you I also felt confused, angry, depressed and jealous of anyone who is pregnant. I’m so desperate for this to be over with and I now count the days down to when the next urine pot is delivered and for my first period. Its only been 2 months since i found out but the depression and ill feeling I had is a lot better and with the support from my husband and daughter I know there is a light at the end of the tunnel. Thank you all for sharing your experiences it has helped me find out new things and realize I’m not alone. | |
| Name: | Geraldine Afon |
| E-mail address: | Philnger@optonline.net |
| Signed on: | Monday, November 13, 2006 at 9:42 PM |
| Comments: I am so glad I found your story. It feels so much better to know I'm not the only one out there who has gone through this terrible thing of molar pregnancy. Fortunately, I am one of the lucky ones that didn't develop cancer. Before reading your story, I didn't take it serious and was going to try for another baby before my year was up, but after reading what you went through and what could happen, it put so much things in perspective for me. Thank you so much for telling your story. I had my molar pregnancy in May 2006. | |
| Name: | Judy Taggert |
| E-mail address: | jtaggert@feltrup.com |
| Signed on: | Friday, November 17, 2006 at 2:11 PM |
| Comments: I had a molar pregnancy in 1968 that was cancer and there was no known cure. It had metastased into my lungs, kidney, intestines and brain. My family was told I had only a few months at the most to live. When this happened, I had an 18-month-old daughter and my husband was in the Marine Corps at the New River Air Station in Jacksonville, North Carolina. I was extremely lucky to meet a Dr. Pordy at Camp LeJeune who was studying the drug methotrexate at Duke University. I became a test case for this drug and was hospitalized for about a year. During the treatment, my HCG results always climbed. The treatment made me very ill. I could not eat. My white blood count was so low I could not have any visitors. My mouth and entire digestive system was massive cold sores and I had to be feed intravenously. I also had cold sore like sores all over my body. I lost all of my fingernails and toenails, but I did not loose my hair! I was told they were going to give me one last treatment. That was my miracle. My HCG count went down and never came up again. I am now 59 years old and I had another daughter born in 1974. Cancer is always difficult especially when you are grieving the loss of a child but keep your faith because miracles do happen!!! | |
| Name: | cindy morfee |
| E-mail address: | morpixi@yahoo.com.au |
| Signed on: | Tuesday, November 21, 2006 at 2:12 AM |
| Comments: Thank you so much for your story. it had me in tears. i have just been told i have a complete molar and i am so heart broken and scared.i am finding that people dont understand or they just dont want to hear it so to find a website like this is wonderful. i not only lost a baby but i lost my tube as well because it was ectopic. i am scared at what the future holds but thanks to this web sit i no longer feel so alone. | |
| Name: | Michelle Ward |
| E-mail address: | mlr2127@yahoo.com |
| Signed on: | Wednesday, November 22, 2006 at 7:36 PM |
| Comments: I am 29 years old and was recently diagnosed with a molar pregnancy. I have a healthy 5 year old son from a previous marriage and never thought something like this could happen. My new husband and I found out I was pregnant on 8/04/06 and we were so excited. At 6 weeks, I started cramping and spotting and they said the ultrasound showed just a mass of tissue no baby. On 9/18/06, I had to have a D&C to remove the tissue (my hcg was over 100,000 before D&C). However my HCG level kept rising (from 12,000 to 16,000 in 3 weeks) and was diagnosed with persistent gestational trophoblastic neoplasia. After another ultrasound that showed the mole had grown back and was beginning to penetrate my uterus, I started chemo (weekly shot of methotrexate. On Wed night 11/01/06, I passed out and had to be transported to the ER. It was later discovered that the mole had went all the way through my uterus and was causing massive internal bleeding. The pain was the worst pain you can imagine. I had to have 2 units of blood immediately and had to be taken to OR for an emergency hysterectomy. They said they almost didn’t expect me to make it through because I had lost so much blood. I had to have a total of 6 units of blood. My levels are now at 309 and continuing to fall but I am still receiving chemo shots. We are completely devastated at the fact that we can’t have kids now, but we know we are blessed for me just to be here today. While my case was in the small percentage of the severe cases, it is important to realize how dangerous a molar pregnancy really is and how it can happen to anyone. In just 3 months, our lives have forever been changed. | |
| Name: | Sara |
| Signed on: | Tuesday, November 28, 2006 at 9:31 PM |
| Comments: Thanks for the site. I think it is important that we share our experiences for those who are going through the same thing. I have Gestational Trophoblastic Disease but not a Molar. My HCG numbers were at 2000 after a D&C. They were going down for 4 weeks. They got down to 1200 but then went to up 1500. I was so scared. My GYN sent me to a Cancer Specialist. After many scans and blood tests I was given methotrexate. My first shot made my HCG levels raise. This is common. It is scary however, if you do not know this. The next week my levels fell to 559. The next week, 208, the next week 6, and this week 0. I was given 85 units of MTX once a week. I have two more weeks to go as they give you two more shots pass 0 to make sure they stay at 0. Reading everything I could find on the subject made me feel in control of the situation. I was really happy to find a site where others were going through the same. Reading everyone's postings has made this a little bit easier. The more info the better. Thanks for the site at this most scary time of my life. | |
| Name: | Annie |
| Signed on: | Saturday, December 2, 2006 at 4:16 PM |
| Comments: Hi everyone- It has been so nice to see the support on this board. I want to say thank you all for sharing. I have not found out yet if my m/c was a PMP or not. I went in for my 12 week visit and the baby measured 9 weeks with no heartbeat. (We had seen the heart beating 138BPM at 8 weeks). My question is, what is the likelihood that a PMP would grow to be 9w3d? Isn't that a long time for an embryo that is so severely defective to survive??? I am just hoping that is not what happened, I am so scared as I already had surgery to remove precancerous cells.... | |
| Name: | Elita Hooper |
| E-mail address: | elitamckenzie@hotmail.com |
| Signed on: | Sunday, December 17, 2006 at 11:09 PM |
| Comments: I am 29 years old and I am so happy to know that there is someone out there that has been though exactly what I went though. I had a twin molar one partial and one complete. I had to terminate an 11 week old baby and it is the hardest thing I had to do. Now i have just finished my chemo treatment and as you want ed to do i want to fall pregnant again. I need to know for me that i can fall pregnant, both my husband and I want a baby and this child was going to be our first not a day goes by when i don't think about him/her. Would love to hear from you if you have the time our stories are so similar it is not funny. regards, Elita |
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| Name: | rosy |
| E-mail address: | rosymg@gmail.com |
| Signed on: | Tuesday, December 19, 2006 at 2:24 AM |
| Comments: hi I m 26 and got married 3 yrs back. This Aug I got pregnant and me and hubby were too exited abt this. but this turned out to be a partial molar. We had never heard of it. Here in Tokyo its very diff to find eng speaking doctors. Some how thru net we could find one and got tested. in 6th week it was very normal. After 6 weeks I started feeling very tired and daily 2 or 3 times i had vomiting. The doctor first i consulted did not recognize properly and said everything was alright. but after 8weeks i had severe nausea may be 10 to 12 times a day. i was really upset and went for a check up. we found no heat beat. i was told to consult an another doctor in some big hospital. went and examined and found to be partial molar. on Oct 27th i had my first D&C and on Nov 2nd the second one. After that i m feeling better and going for regular check up. this week doctor gave me a gud news saying my HCG is coming to normal and this a good progress of recovery, but i cannot get pregnant for 1 yr becz it may relapse or turn in to cancer. first i was very upset thinking that i wont be able to get pregnant next time. but after going thr this website i m really regaining my confidence that i can have babies. thanks for all who have shared their exp and building up confidence once again. its really very hard to face not only for me but for others who r going thr it. we need to have confidence in ur-self hoping every thing goes well next time. thanking you all Rohini Anand |
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| Name: | Claire-Lee |
| E-mail address: | claire@verso-healty.co.za |
| Signed on: | Thursday, December 21, 2006 at 12:45 AM |
| Comments: I was just 16, in Gr.10 (2005) when I found out I was preggies. It was the most difficult thing to have told my mother. My boyfriend was over the moon and so was I actually. It was going to affect my whole school career as I would have to drop out of Gr.10 and go back to do it over in 2006. I would've been a year behind all of my friends... For some unknown reason that wasnt God's plan for me. I now know what he wants for me, and that is to matriculate and start my life good. My baby will come, at the RIGHT time. I woke up on fathers day, 2005, bleeding. I literally ran to my mothers room, crying, confused, puzzled. She phoned the hospital and they said I had to come in a.s.a.p. My thoughts were running wild and the anticipation was unreal. I was 21 weeks pregnant. This was going to be my first sonar. Overwhelming shock...the doctor coudn't see my baby. I had to have a scrape, I didnt understand what was going on. What on earth was a mole????? I had lost a little life, but a new had just begun. My out look on my own life has since changed. I know that my day will come and God will bless me with a beautiful baby!!!!!!! Thanks for your site, its inspiring to read about so many other brave womans lives!!!! | |
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