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Tessa's Story

Hi, my name is Tessa and I am almost 18 years old. I was born with Lyme disease because my mother had Lyme although she did not know it at the time. My 2 brothers were also born with Lyme. Lyme effects us all...it effects us in different ways...but our lives were never normal.

I express myself best thru poetry so:

Pain of Having a Disease Nobody Understands
By: Tessa (12/99)

Lyme Disease has taken over my life.

The fatigue, depression, memory loss.

Nobody understanding pains me like a knife.

This disease is full of stress and strife.

The lyme's in control 'cause my mind often forgets who's boss.

Lyme Disease has taken over my life.

My head pounds like a marching band full of trumpets and fifes.

My mind feels like nothing more than a bunch of mushy moss.

Nobody understanding pains me like a knife.

Broken, damaged I wonder if I'll ever be taken as a wife.

When a ball I can't even try and toss.

Lyme Disease has taken over my life.

Trying to be normal only adds more strife.

Push, come on you're fine. No, I'm not and I'm my boss.

Nobody understanding pains me like a knife.

It's painful to have an unhealthy life.

My entire life, thus far, has been lost.

Lyme Disease has taken over my life.

Nobody understanding pains me like a knife.

I am so grateful for my mother's love and example and understanding of how to live with this disease but she has been very very sick all year and I wrote this poem for her.

Mom hang in there and fight
by Tessa (January 2000)

Hang in there, be strong, like you tell me to be. Lyme, fatigue, insomnia, depression. Fight, fight against the disease in thee.

Just don't understand like you and me. Doctors lie and say you're fine, regression. Hang in there, be strong, like you tell me to be.

Unfair, the life the God Almighty gave thee. Resulting in such painful suppression. Fight, fight hard against the disease in thee.

More money, to get well's a high fee. Fighting alone, no one cares, depression. Hang in there, be strong, like you tell me to be.

You, my mother, forever you will be.

Soon Galveston will rid the suppression. Fight, fight hard against the disease in thee.

I will love you always, down by the sea. Sunsets, waves wait to become our obsession. Hang in there, be strong like you tell me to be. Fight, fight hard against the disease in thee.

I hope this has helped other people to understand that having Lyme disease effects your whole life and the lives of everyone close to you.

Tessa

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