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July 2000 Volume 1 Issue 3
Monthly Issue

Editors: PSpatches, Lymechat, Borrelias
Graphics: Kneely813
Assistants: LutzDM, ROWDEEGPSY, CCCooks,
LymeDiva, nothomealone@home.com


Welcome to Lyme Matters!

This newsletter will serve two purposes: To provide timely and accurate information regarding Lyme Disease and Lyme related issues, and to serve as a means by which members of the Lyme community can voice their opinions and concerns.

This is the monthly issue. You will receive weekly updates. If you choose not to receive the weekly issues click here.

Monthly Issues Only

We welcome your comments and we'll do our best to accommodate any suggestions that you may have.



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Please note that none of the articles contained within Lyme Matters are the opinions of America On Line, the editors or assistants.


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By LymeDiva@aol.com


Some great slogans for our new managed care organization.....


Rome did not create a great empire by having meetings, they did it by killing all those who opposed them.

If you can stay calm, while all those around you are in chaos... then you probably haven't completely understood the seriousness of the situation.

Doing the paperwork RIGHT the first time gets the job done. Losing the paperwork fourteen times gives you job security.

Eagles may soar, but weasels don't get sucked into jet engines.

Artificial Intelligence is no match for Natural Stupidity.

A person who smiles in the face of adversity...probably has a scapegoat.

If at first you don't succeed, try managed care.
br> Never put off until tomorrow what you can avoid altogether.

TEAMWORK...means never having to take all the blame yourself.

The beatings will continue until morale improves.

Never underestimate the power of very stupid people in large groups.

(For providers) We waste time, so you don't have to.

Hang in there, retirement is only thirty years away!

Go the extra mile. It makes your boss look like an incompetent slacker.

INDECISION is the key to FLEXIBILITY. Succeed in spite of management.



From: Jaclyn Tartaglia

Email jitags@aol.com


I am a thirty-one year old woman with Lyme disease. I was diagnosed in August of 1993, it seems as if it was a lot longer. I, too, went to numerous doctors in the Philadelphia area, which they all told me it was a nervous tick.

My symptoms in the beginning were flu like, I just did not know it. At the time I was working full-time and going to school part-time. I thought it was because I was doing so much. I felt tired, but continued to push myself.

Well, on my boyfriend's, now husband, graduation of college (in May), it hit hard. I could barely walk, my neck and arm were extremely sore. All I wanted to do was sleep. My hand started to shake and eventually progressed into my shoulder and then on the other arm and shoulder. As the weeks went by, undiagnosed, more and more symptoms started.

Finally, in August, a small town doctor told me I had Lyme disease and started IV antibiotics right away. Slowly the symptoms started to decrease. The shaking of my arm and shoulder took the longest to slow down. For seven years, I have been treated on and off IV antibiotics and oral antibiotics. The shaking is usually the first sign of the Lyme reoccurring.

I had a baby in October 1999. The pregnancy went well, but after the symptoms slowly began again. I have been battling with fatigue and shaking since December. I was on oral antibiotics twice, they helped for a while. Now, my daughter is not sleeping through the night and I am having a hard time getting myself up to par.

I will never be 100%, but the days that are OK seem to be less and less. I have not been working since September. I am a teacher and am worried I will not be able to go back next year to teach. Unfortunately, we need the money, so somehow I am going to have to try. Some days I just want to crawl into bed and sleep the days away, but when I look at my daughter I press on. I have to be strong for her no matter how difficult it may be.

I will continue to battle this disease in hope of a cure. If there is not I will manage somehow to get through each day.



By Lymechat@aol.com

A good July to all of you! I hope that this summer's been good for you thus far and that you've found ways of staying cool. This month we'll be discussing the following supplements: maitake mushroom and kombuchu tea. In The Herb Corner we'll be covering the following herbs: panax ginseng, boneset, lady's mantle and oat fiber. As always, if you have any questions regarding any of the information contained within this column, please feel free to E-mail me.


Natural Food Supplements


Maitake Mushroom
Maitake is one of two herbs that we'll be discussing in this issue which are known as adaptogens; the other is panax ginseng. Adaptogens help to normalize the functions of the body by enabling it to better adapt to stress. Maitake has long been a popular remedy for many illnesses in Japan and China.

However, it's only recently that this herb has become better known in the United States for its healing properties, which are associated with a substance known as beta-1.6 glucan. This polysaccharide is reported to have many benefits to the body, including killing the HIV virus and inhibiting the growth of malignant tumors. In addition, it is also said to be an immune system enhancer in that it appears to stimulate the activity of CD4 cells (these cells help keep the immune system functioning properly).

Maitake has been used in the treatment of many different illnesses ranging from chronic fatigue syndrome to diabetes. Among its many benefits is that it is more readily absorbed by the body then other types of mushrooms. This herb can be eaten as a food or taken supplementally. Supplemental forms include extract, capsule and tea. When taking it supplementally, studies have shown that using 500 milligrams of vitamin C simultaneously with maitake can aid the body's absorption of this herb.

*Caution -- While there are no warnings regarding this supplement, people using it should be aware that they may have, or may develop an allergy to maitake. Should you develop a rash or experience any other odd symptoms while using this this supplement, discontinue use of it immediate


Kombuchu Tea
Kombuchu tea is made from the Manchurian mushroom. However, unlike maitake (which can be eaten), this mushroom is not consumed, but rather combined with a number ingredients to make a very nutritious tea. Like maitake, kombuchu tea has numerous benefits. It is a powerful antioxidant and because of its ability to stimulate the immune system, has been used in the treatment of many chronic illnesses including AIDS and cancer.

It's also becoming better recognized in this country as an "energy tonic" because of its usefulness in boosting one's energy levels. Kombuchu tea preparations can be difficult to find because of of the time it takes to manufacture them. However, if you persevere, you should be able to find them at some of the better known healthfood stores.


*Caution -- While there are no warnings regarding this supplement, people using it should be aware that they may have, or may develop an allergy to kombuchu tea. Should you develop a rash or experience any other odd symptoms while using this this supplement, discontinue use of it immediately.




The Herb Corner


Panax Ginseng
Several issues back we discussed Siberian ginseng. Panax ginseng (panax, which in greek means panacea) is a distant relative of this ginseng--like herb, yet more closely related to American ginseng (which we'll be discussing in the August issue of Natural Alternatives). Panax ginseng is grown in China and has been used by the Chinese for thousands of years to combat numerous maladies.

Like the maitake mushroom discussed earlier, research has also shown this herb to be an adaptogen (a substance which helps the body to better deal with stress). Consequently, taking panax ginseng can help to keep the body functioning normally, by correcting certain abnormalities as they occur.

Among its many benefits, panax ginseng can help to lower elevated LDL cholesterol levels (yet raise HDL levels -- the good cholesterol ), while regulating blood pressure, which in turn helps to prevent heart disease. In addition, this herb also acts as a "stress buster" by helping to calm the body during stressful times. Menopausal women have also found benefits in using this herb, as it's very helpful in easing several of the side effects associated with menopause, by increasing the estrogen levels in the body (many of these symptoms are believed to be caused by a drop in estrogen levels).

Some athletes have even reported an improvement in their performance levels after taking this herb, and because ginseng appears to improve blood circulation throughout the body (including the brain) it has also been associated with improvements in mental acuity. Another important benefit in taking this herb is that it may help to prevent different forms of cancer.

A substance contained within ginseng known as saponins, has been shown to not only inhibit cancer cell growth, but amazingly enough, to actually convert the diseased cells to normal. Panax ginseng can be taken in several different forms: Powder -- mix up to 10 grams in 8 ounces of water; As a tea -- mix a teaspoon of the herb in one cup of boiling water; Capsule -- take up to 3 capsules daily.

*Caution -- Panax ginseng can have a stimulating effect on the body. Consequently, one should use it cautiously, and those suffering from hypertension should consult with a physician before taking it.
It should also be noted that vitamin C can inhibit the body's ability to absorb this herb, and thus should be taken at least two hours before or after ginseng.

Also, women may experience vaginal bleeding while taking this herb. While this in itself should not be cause for concern, consistent vaginal bleeding can be symptomatic of uterine cancer, and should be brought to your physician's attention. Remember to tell him/her if you are using ginseng.

Boneset
This herb (which is also known as white snakeroot) received its name because of its ability to relieve the symptoms associated with a virulent strain of flu known as "break bone fever." It's also one of the best herbs that one can take when suffering with upper respiratory congestion as it makes an excellent expectorant which helps loosen phlegm. Not only can boneset help break a fever, but it's also useful as an anti-inflammatory.

Moreover, it has a calming effect on the body which can be very helpful in times of stress, and because it can function as a laxative also helps to relieve constipation. Boneset is available as an extract: for relief from symptoms mix up to 40 drops in 8 ounces of water once a day.

*Caution -- This herb should not be used for long periods as it can be toxic. Also, people using it should be aware that they may have, or may develop an allergy to boneset. Should you develop a rash or experience any other odd symptoms while using this herb, discontinue use of it immediately.


Lady's Mantle
Lady's mantle offers several healing benefits. When used externally, this herb can be applied to wounds to stop them from bleeding, as it functions as a coagulant. When taken internally, it can (as its name suggests) be useful to women, as it not only helps to regulate menstruation, but can also be used as a douche to relieve vaginal irritation.

Lady's mantle has also been rumored to be of use in stimulating the appetite. It can be taken orally by mixing a tablespoon of the herb in boiling water. For use as a douche or on skin wounds, mix up to 10 drops of the extract in one pint of water.

*Caution -- While there are no warnings regarding this herb, people using it should be aware that they may have, or may develop an allergy to lady's mantle. Should you develop a rash or experience any other odd symptoms while using this herb, discontinue use of it immediately.

Oat fiber
The grain from the oat plant is an excellent source of nutrition and serves some important functions. Perhaps the most important of these is that because it contains a substance known as beta glucam (which when used on a regular basis, can dramatically lower the level of serum cholesterol in the body), it can help prevent heart disease.

Oat extract is also quite useful as a digestive aid, and helps to promote a relaxing effect on the body. And, the straw from this plant can be used when bathing to relieve the soreness associated with hemorrhoids. In addition, this herb is fine source of some of the B vitamins. One of the best ways to enjoy the benefits of this plant is through whole grain cereals such as oatmeal and bran flakes.

Oat fiber can be taken in extract form as well: mix from 5 to 20 drops in 8 ounces of water from 1 - 3 times a day. Remember to gradually increase your intake of oat bran, to prevent digestive disturbances.

*Caution -- While there are no warnings regarding this herb, people using it should be aware that they may have, or may develop an allergy to oat fiber. Should you develop a rash or experience any other odd symptoms while using this herb, discontinue use of it immediately.


***Caution should be taken when using herbal supplements. Many of these while harmless at their recommended dosages, can become dangerous when taken in larger amounts. In addition, some people may have or may develop allergies to an herb that has had no prior reputation for causing allergic reactions. If you feel that you need to increase your daily intake of a particular supplement, please speak with either your physician or someone who is knowledgeable with regard to pharmacognosy (the study of drugs derived from plants).



Until next month!
Jim : )

Submit your Questions




Trivia
By PSpatches@aol.com

This month's word "JEEP"

Elzie Crisler Segar's name is far from a household word. But
comic strip characters he created are known everywhere. Popeye
the Sailor, launched about 1930, made a quick and lasting hit.
Eugene the Jeep, an animal friend of Popeye, appeared on
March 16, 1936. Slender but very strong, he was widely admired
by readers.
Soon after becoming acquainted with Eugene the Jeep, soldiers
began working with a new vehicle. Small and drab, the sturdy car
had four drive wheels instead of the then-standard two.
Military supply officers initially stenciled the little heavy-duty
car G.P. - for "general purpose." Influenced by its initials, G.I.'s
compared the new vehicle with Eugene the Jeep. As a result, both
the military Jeep and its civilian relatives perpetuate the name of a
remarkable animal made famous by a comic strip.




By Borrelia s@aol.com
Stephen J. Nostrom R.N.
Founder/Director,Lyme Borrelia Out-Reach Foundation, circa 1987


"The Neuropsychiatric Aspects of Lyme Borreliosis"

"Part number Three of Three parts"


*****As shared in past, the following presentations are "possible" in Lyme Borreliosis. The following definitions are shared, so as to show that what may appear to be a "psychiatric" presentation, may well be Lyme induced via invasion of this "spirochetal" bacterial infection.


"Personal Space" That area around an individual that he/she considers private; the invisible boundary around a person. I have included this matter as the Lyme pt. often guards this "area" and may desire to be left alone. The care giver, significant other, needs to understand this. On the other hand, quite the "opposite" may present in the pt. (That is: They may be afraid to be left alone!).

"Phoebic Disorder" A disorder characterized by fear and subsequent attempted avoidance of specific objects or situations, acknowledged by the person as unreasonable. A few examples: bugs, leaving the home or safe place, fear of being alone, dying, getting lost.

"Photoreceptors" The light sensitive cells of the retina, rods and cones of the eyes. We've touched bases on this one with regards to floaters, sensitivity of light, eye pain, double/blurred vision, and bursts of light.

"Psychotic" This describes a gross impairment of reality testing that interferes with an individual's ability/capacity to meet the ordinary demands of life. Ex: What may have been "reality" now is not. A Physician friend once shared having a conversation with a "tree," and the tree talked back to him!

"REM Sleep" A stage of sleep characterized by high-frequency, low-voltage brain activity, with rapid and systematic eye movements and dreams. Many Lyme pts. no longer dream. The opposite which has been seen are: nightmares and night terrors!

"Retrieval" The process of making available previously learned or experienced events. Using self here as an example.... Returning to University I found "often" the "retrieval" of information to be not only difficult, but at times, impossible. It was there, it had been learned and understood; I could "rattle off" an entire procedure, and moments later it was completely gone. Having shared as much, the frustration was overwhelming, as well as the fear as to exams and pressures, which led to many more frustrations and anxious moments. Will share in the closing of this series!

"Separation Anxiety" The fear response when being alone, the absence of someone close, husband/wife, mother/father etc. This is common!

"Short Term Memory" The memory process that temporally stores information for immediate or short term use. The duration of short term memory is said to be about thirty seconds; its capacity is limited to from nine to five items This is quite common; a phone number, where are my glasses?, car keys, etc.

"Social Phobia" A disorder characterized by fear of and desire to avoid situations in which the person might be exposed to scrutiny by others, and might behave in an embarrassing or humilating way. Using self here, being active in a Christian ministry for over thirty five years, I became "afraid of church services!" Why? One Sunday morning when (as is our custom in my church) I went to greet another {with a hand shake, hello etc.}, I took it upon self to raise my hand in the congregation after this custom, and the Pastor acknowledged me, and I stood up and asked the following: " Are we allowed to give a big hugg and kiss?" My point here is this: "emotions" can go wild. I was embarrassed more then words can share, after the words came from my mouth. I was with my dear wife; I was in never never land; I had Lyme Borreliosis!

"Stress"
A non specific response by one to demands made upon he/she! We can all identify with this, however, in the Lyme pt. depending upon the "clarity" of the mind, at the time/times, it can be absolutely "overwhelming" and patience as well as understanding is necessary!

STRESS!.....
Who does not have stress in their lives? We all do! As I see it in closing out this series on the Neuropsychiatric aspects/presentations of Lyme Borreliosis, a few additional/personal notations!

Personal Foot Notes from ME to YOU!

Three months of "Neuropsychiatric" definitions can make most of us .....well a "little-bit-un-easy??" The initial word, Psychiatrist, years ago used to frighten me, because of my "ignorance" in understanding such a word. That is, all the jokes, miss-understanding about a very important matter!
Lyme Borreliosis is an "Important matter!" It is a very real as well as frightening disease that has befallen all too many of my friends, loved ones and self! The Neuro-Psychiatric presentations of this "bacterial disease" has "torn apart families, loved ones, strained relationships, and caused untold heartache to all too many!
It is my purpose in this "three part series" to de-myth as much as I can. That is, take away all the so called "fears," and to provide some basis for the Lyme patients.....what I call "
NEVER WANTING REALITY!"
There is much more to be said about such matters than I have addressed in this short newsletter. There is much to learn in this "Unfolding Drama" called Lyme Borreliosis!
But, as I see it....if we care.? If we desire to learn.? If we desire to educate.? If we will share about such matters? We can accomplish all of the above and so much more. Peace and Joy!

Until next month,

Steve


Questions, Comments for Steve


By Joynheart@aol.com


Why?

Why do we sometimes laugh
at others' aches and pains?
Perhaps we do not feel
what's running thru their veins.

Don't we "ever" realize
what they are going thru?
I bet you "would"
if it was happening to "you."

So can't we all just STOP!
To try to think things thru?
Be a little more "Thankful"
it's not happening to "you."

Would not it be more kinder
if we could "try" to understand?
Be a little more tender
extend a helping hand.

Poetry by Joynheart

© Joynheart
Not to be distributed without prior
permission from the author.


Abstracts by ROWDEEGPSY@aol.com


07/11/2000 - Tuesday - Newsday
Biodiversity: Key to Controlling Lyme? Might increasing species diversity be a new way to control Lyme disease?

By Catherine Zandonella, Staff Writer


WHEN TICKS HAVE a rich array of dining opportunities, they are less likely to take a bite from an animal carrying Lyme disease bacteria, and thus less likely to pass the disease on to humans, suggests a study, published in the June issue of Conservation Biology by Richard Ostfeld of the Institute of Ecological Studies in Millbrook and CO-researcher and wife Felicia Keesing, now at Bard College in Annandale-on-Hudson.

"The greater the diversity of potential hosts for ticks, the fewer ticks that will become infected," said Ostfeld, "and the lower the risk to humans." Not all ticks are capable of becoming infected with the bacteria that cause Lyme disease. Those that can - deer ticks of the genus Ixodes-acquire the bacteria when they bite certain species of small mammals, lizards and birds.

Scientists estimate that 40 to 80 percent of ticks that take a bite from the white-footed mouse acquire Lyme bacteria. Other reservoirs include eastern chipmunks and American robins.

States with high species diversity had fewer cases of Lyme disease per capita.

The study did not account for intrastate differences in species diversity or Lyme disease rates, however. Nor did it directly tie species diversity to the number of infected ticks in the states.

What Ostfeld's study does show is that, overall, states with a greater variety of small mammals and lizards have fewer human cases of Lyme disease.

New York, with 28 different species of mammals and 30 Lyme disease cases per 100,000, is not as diverse, as say, Georgia, with 38 different species of mammals and fewer than one case per 100,000. Deer ticks capable of carrying the bacteria, meanwhile, are evenly spread from north to south, said Ostfeld.

Species diversity is greatest in warmer climates to the South.

Given its northern location, "Long Island is a hotspot of biodiversity," said Kathy Schneider, director of the New York Natural Heritage program, who measures biodiversity in terms of the number of rare or endangered species found in an area. But despite this diversity, Suffolk County reported 637 cases last year.

Annual case reports from New York constitute 35 percent to 40 percent of all Lyme disease reported annually, according to the New York State Department of Health.

This summer could bring an increase in the number of cases, said Ostfeld, due to a bumper crop of acorns that fattened white-footed mouse populations two years ago. Larval ticks feeding on the resulting mouse "baby-boom" can transmit the disease to humans.

Might increasing species diversity be a new way to control Lyme disease? Not any time soon, said Dennis White, director of the Tick-borne Disease Institute at the New York State Department of Health. "Current interventions are designed to target mice or deer to keep them from getting infected, but not to manipulate the populations of individual species." "If anything, this study is a wake-up call that when people move into areas that are natural, they are going to exposed to diseases that are there," said White. "Where you have the right combination of ticks, animal species and human presence you are bound to have a higher incidence of Lyme disease in the population."

Ostfeld agreed that reducing the abundance of white-footed mice would be a mistake. "White-footed mice perform lots of beneficial services," he said.

"They regulate gypsy moth populations and serve as a source of food for foxes, owls and bobcats." Even if health officials wanted to tinker with mouse populations, they'd find it challenging. "I don't know of any environmentally sound method to control mice or any other small animal," said David Graham, director of public health for the Suffolk County Department of Health Services.

The researchers hope to discover whether keeping large wooded spaces around new homes can decrease the rate of Lyme disease, or whether small wooded areas are just as good. "What we find could be used to influence planning of housing developments," said Ostfeld.

"A lot of people are just waking up to how ecology affects infectious diseases," said Ostfeld. Insect-borne diseases like Lyme, West Nile encephalitis, and malaria rely for transmission on the complex interplay of insects, animals and humans. And yet, said Ostfeld, "The ecological aspect of infectious diseases is often overlooked." Last November the National Science Foundation, National Institutes of Health, NASA and other federal agencies teamed up to fund a studies of how ecological factors can impact the emergence and transmission of diseases in humans and other animals.

"As humans develop natural areas, there are all kinds of impacts that occur," said Nassau County Health Commissioner Kathleen Gaffney, whose county reported 105 cases of Lyme disease last year. "These are balances we can turn upside down and not realize it for generations."



GARDEN GROVE, Calif.--(BUSINESS WIRE)--July 10, 2000


Hycor Biomedical Inc. announced the availability of a User-Defined Software on the HY-TEC 288 Plus automated immunoassay system that complements the basic instrument software package, which permits the testing of up to 25 different autoimmune tests or over 900 specific allergies.

This software permits a laboratory to run ELISA-based tests, such as Lyme disease, measles, and other immunology tests, in addition to Hycor's allergy and autoimmune tests. "The expansion of the HY-TEC 288 Plus's testing capability permits more laboratories to automate their ELISA testing by allowing the laboratory to amortize the instrument over a greater number of tests."

Laboratories that were previously too small to justify an instrument now become sites for potential instrument placements and can now automate more of their testing. The combination of FDA-cleared autoimmune tests and a menu of over 900 allergy tests with User-Defined Software provides a diagnostic testing platform that is second to none in the immunology sector of the laboratory."

Hycor products are used by physicians and clinical laboratories all over the world to provide accurate, reliable test results for physicians and their patients. Head quartered in Garden Grove, California with facilities in Germany and Scotland, Hycor employs more than 175 people worldwide and serves customers in more than 50 countries. Visit Hycor Biomedical's web site at http://www.hycorbiomedical.com.
CONTACT: Hycor Biomedical Inc. Reg Jones (714) 933-3000



Printed with permission


To DEET Or Not To DEET
Compelling Issues Draw Consumer Attention
By David Shaw CEO, Quantum, Inc.

When Dr. Marcus Laux's students - a group of doctors, pharmacists and researchers - arrived in the Amazon Rain Forest to study the roots of modern pharmacy, most had packed their bags with DEET based insect repellents. But by the end of the trip, all members of his expedition had switched to the natural plant oil based repellent provided by our company (Quantum, Inc.) for field testing. According to Dr. Laux, the natural product worked just as well and is friendlier to the environment.

Classified as a pesticide by the EPA, DEET, or diethyl-meta-toluamide, can be found in most over-the-counter insect repellents. Media coverage documenting the health risks associated with it's use have prompted retailers to look for alternative repellent formulas. But not for the first time.

Five years ago, one of the first DEET-free insect repellents was brought in by a number of major drug chains. The product didn't do well and most pulled it. The buyers were forward thinking, but the public simply didn't know enough about DEET to fully take advantage of the choice being offered. Times have changed - largely due to the media's attention to the potential dangers of DEET.

Three major incidents set the presses rolling. In 1995, New York State banned products with 30% or more DEET after reviewing 44 public health studies; The U.S. Military supplies soldiers with 33% or less DEET products; and DEET is suspected of being responsible, in part, for Gulf War Syndrome.

DEET has been proven to enter the bloodstream through application to the skin, and while many people use DEET-based products without incident, others have suffered side-effects ranging from rashes and hives to uncontrollable twitching and muscle spasms to death. Children seem especially susceptible to DEET problems. In 1995 alone, the National Poison Control Center in Washington, DC. received over 6,700 reports of repellent exposure, including one death, and of the 6,700 reports, two thirds occurred in children age six and under.

The biggest media jolt came when ABC's PrimeTime Live did a twenty minute segment on DEET. The public began to pay serious attention, and companies like ours began to see very strong product movement.

PrimeTime's report focused on particularly dramatic incidents that highlight the dangers. The program told the stories of Tim Christiansen, who at 26 years old died after using DEET twice one summer day in 1994; on Elijah Harrison, an 8 year old boy who's mother sprayed him with a 25% DEET product once a day for two days - he still suffers from seizures; and on workers in the Everglades National Park who experienced rashes, dizziness and numbness of the lips after using a DEET repellent.

To DEET or not to DEET? As with other products on the market today that have known health risks, the consumer must make the choice. We at Quantum have been marketing a non-DEET repellent, Buzz Away, since 1992 and sales have increased 10 fold since the introduction. Much of the increase is due to willingness of mass market retailers to revisit the category. Buzz Away velocities have equaled or exceeded those of DEET based repellents.

It is our belief that increased consumer awareness of DEET's dangers, combined with it's unpleasant odor and feel on the skin (which outdoor lovers have complained about for years), have driven sales.
Even the EPA, which regulates the category, is aware of the problem. In an article that appeared in Natural Health Magazine, EPA toxicologist Michael Watson noted an instance 'where exposure to DEET caused six cases of brain damage in girls aged one through six - and three of them died".

A significant number of books on health care also note the dangers. According to The Doctors Book Of Home Remedies For Children from Bantam Books; 'DEET containing products must be used sparingly on children under ten and should never be used on children under two. Very young children run the risk of absorbing a toxic dose through the skin'.

In response to the problem, manufacturers have come up with a variety of product options. The most accepted active ingredient alternative to DEET is citronella. While the Buzz Away line uses citronella and other natural plant oil extracts exclusively, companies like SC Johnson have chosen to use a low percentage DEET base. It should be noted that as with DEET based repellents, Buzz Away went through the EPA's rigorous testing for safety and efficacy.

Still, DEET based products continue to far outsell the natural alternatives. For one thing, DEET formulas work longer - most for 6 hours but some go up to 10 hours. Our product was EPA tested for 2 ½ hours and field tested by a University of Oregon team for up to 4 hours. The consumer has to apply it more frequently. DEET based products are the more familiar and most people don't experience negative side effects.

Some people attract bugs so much that only a DEET product is effective. Also, the side effects hurt children in much larger numbers than adults. Media coverage continues to expose the dangers. Already this year, articles on DEET have appeared in Rodale's Backpacker magazine and others will be appearing in New Woman, Saturday Evening Post, Better Nutrition, Ms. Fitness and others.

Quantum , Inc., is a 15 year old Eugene, Oregon based company that makes natural products in several categories including cold & Flu, skin care, lip care, age management, weight loss and oral care. It's natural outdoor protection line includes Buzz Away insect repellent in spray, towelette and sunblock-15 lotion formats.



By CCCooks@aol.com

Sicilian Chicken

Well since we have been so many cool summer night's I thought I would give you a reason to turn your oven on. This is a great dish by itself or served with pasta, rice ......what ever you like.
preheat oven to 350
3 to 4 lb. of chicken thighs .....clean and trim some of the skin off
season with salt and cracked tri-colored or black pepper
1 large Red Bell Pepper
1 large Green Bell Pepper
2 small sweet onions or 1 large
1 can of whole tomatoes......I love Pastene
I do this all in one pan.....that can go into the over. A 12" skillet works great! First pan sear the chicken ... about 8 minutes on each side. remove chicken from pan discard excess fat.....but do not wash or wipe leave enough fat to cook peppers and onions. Cook them on med high till slightly soft. Now it is really easy, just take the peppers and onions out .....put chicken back in ..top with the peppers and onions and top them with the can of tomatoes! I sprinkle with salt and black pepper. Cover and bake for one hour at 350......your house will smell great and everyone will flow into the kitchen to see what's cookin!! :) This is a great dish the chicken is so moist the flavors are amazing ...now since it is summer you can put some fresh herbs on top of you tomatoes.....
like basil, rosemary or thyme.
Enjoy
If anyone would like to share your favorite recipe we will all would love to try it! :) Have a great summer Carla

Recipe




Lyme Chatters Reminder
>The Daytime Chat is scheduled for
Wednesday, July 19th
Join us in celebrating our 3rd Anniversary!

3:00 PM Est.
2:00 PM Central
12:00 PM Pacific
Click here to enter the room > Private Room Lyme Disease


Submitted by Ellen, ellenlu@webtv.net


....Please Write....

I just spoke with Erin Quay, the health aide of Senator Arlen Specter of Pennsylvania. It seems that Senator Specter has developed an interest in our predicament via a group of Lyme patients and physicians who have educated him about the doctor harassment issue, the difficulty finding a physician who will give us a proper diagnosis and adequate treatment, and the difficulty getting insurance companies to pay for adequate treatment.

Senator Specter is asking that we write to him explaining our difficulty getting diagnosed, treated and reimbursed by insurance. His interest, it seems, is broader than we originally thought, which was a focus on insurance non-payment. He is not, as we originally thought, heading a task force nor is he PROMISING a hearing. HOWEVER, if the information we send him seems to warrant it, he could begin hearings into the issues we raise.

PLEASE, write a short letter to Arlen Specter outlining all your difficulties getting adequate care for Lyme disease. I think that probably close to 100% of us have such stories. We must get the word out and we must capitalize on any opportunity for hearings into the politics that have deprived us of our health.
WRITE TO:
Senator Arlen Specter
711 Senate Hart Building
Washington, DC 20510
ATTENTION: Erin Quay

E-MAIL:
erin_quay@specter.senate.gov

Thanks,
Ellen




Conference in July


Course Director:
J. Russell Corcoran, M.D., F.A.C.P.
CME Director, South County Hospital

General info:

Date/time: Friday, July 21, 2000; 9:00 am- 3:15 pm

Location: South County Hospital
Potter Conference Center
100 Kenyon Ave.
Wakefield, RI

Registration: A registration fee of $50 includes the refreshment break and an outdoor barbecue luncheon.


"We wish to acknowledge, with appreciation, support of this activity through educational grants from Pfizer, Inc. and Imugen Labs."

The Program:
The Tenth Annual Diseases of Summer Conference returns to its roots with concentration on Vector Borne Diseases. The Conference began in 1991 with a program on Lyme Disease, which was emerging as a public health issue in southern Rhode Island. This year, we will expand participants' knowledge of Lyme Disease, both treatment and prevention, as well as offer discussion and comment on the emerging problems of Babesiosis and West Nile Virus.

Agenda:
9:00-9:15 AM Registration

9:15-10:00 AM Diagnosis of Lyme Disease After Vaccine Administration
Philip Molloy, M.D., Rheumatologist
Medical Director, Imugen Labs

10:00-10:45 AM Community-based Prevention of Tick Borne Disease
Thomas Mather, Ph.D.,
Director, Center for Vector Borne Disease & Professor, University
of Rhode Island

10:45-11:00 AM Coffee Break

11:00-11:45 AM Overdiagnosis and Overtreatment of Lyme Disease & Chronic Lyme Disease
Leonard H. Sigal, M.D., Chief of Rheumatology & Professor, Robert Wood Johnson School of Medicine
New Brunswich, New Jersey

11:45 AM-12:45 PM Discussion Panel- Morning Speakers
J. Russell Corcoran, M.D., Moderator

12:15 PM-1:15 PM Barbeque Luncheon

1:15-2:00 PM Babesiosis Update
Leonard Marcus, V.M.D., M.D.
Travelers' Health & Immunization Services

2:00-2:45 PM West Nile Virus: An Emerging Vector Borne Illness
Uptala Bandy, M.D., R.I. State Epidemiologist & Assistant
Medical Dir., Div. of Disease Prevention & Control, R.I. Department
of Health

2:45-3:15 PM Panel Discussion - Afternoon Speakers
J. Russell Corcoran, M.D., Moderator

CONFERENCE OBJECTIVES

The Diseases of Summer Conference is an annual meeting which covers
diseases of illnesses that increase in incidence during the summer
months.

At the conclusion of the conference, participants should be able to:

1. Understand treatment and prevention of Lyme Disease.

2. Update symptoms and diagnosis of Babesiosis.

3. Understand the epidemiology and symptoms of West Nile Virus.

This one day symposium will provide state-of-the-art reviews of
diagnosis and treatment of these seasonal medical issues.

Accreditation

South County Hospital is accredited by the Rhode Island Medical Society
(RIMS) to sponsor intrastate continuing medical education for
physicians.

South County Hospital designates this continuing medical education
activity for 4.75 credit hours in Category I credit towards the AMA
Physician's Recognition Award. Each physician should claim only those
hours of credit that he/she actually spends in the educational activity.


By PSpatches@aol.com


HELP SITES FOR PEOPLE WITH DISABILITIES

Raising Special Needs Kids

http://members.aol.com/Iepmom/index.html
Excellent search engine,

MedSupport FSF International: 24hr. Multiple ...

http://www.medsupport.org/
Medical and emotional support and education for the disabled. Newsletter, bulletin board, articles. Supporting those with Multiple Sclerosis, Fibromyalgia, Chronic Fatigue and other disabilities.


Jobs Consortium Home Page

http://www.jobsconsortium.org/

A non-profit organization specializing in client-centered training and employment services for disabled and non-disabled homeless people.

CENTER FOR COMPUTER ASSISTANCE TO THE DISABLED

http://www.c-cad.org/

CCAD is a non-profit organization whose mission is enhancing the quality of life and employment options for persons with disabilities.

Disability and Medical Resource Directory

http://www.coast-resources.com/

Catalogs and Brochures

http://www.coast-resources.com/catalogs.htm
All sorts of information and items for the disabled.

Communications, Computers and Electronic Equi...

http://www.coast-resources.com/electric.htm

This site will help you find the equipment of your choice.


STUDENT SERVICES

http://www.gu.edu.au/gwis/studserv/mainwindow.htm

DISABILITIES RESOURCES

http://www.valdosta.peachnet.edu/coe/coed/sped/camp/special/disable.html


Disability Link Directories

http://www.accessunlimited.com/disability_link_directories.html

Connection to other links.


DISABILITIES - RESOURCES

http://ksc.geo.ukans.edu/rod.html
Similar to the above.

Coping with Lyme Disease

http://www.drkoop.com/news/special-reports/lyme/coping.html?nl=dkc&sct=main&dt=071100

CBSHealthWatch- Library

http://cbshealthwatch.health.aol.com/aolmedscape/p/G_Library/article.asp?RecID=211607&ContentType=Library

Welcome to NY State Psychiatric Institute

http://www.columbia-lyme.org/dept/nyspi/index.html
Dr. Fallon's Study

Webmedic4u Resource Center

http://members.aol.com/webmedic4u/index.htm
Great site for Lyme info!

I Believe

http://www.geocities.com/ladymears2000/page9.html

Reflecting Rose

http://www.justsaywow.com/friendshipgift.htm



From Lucille (Snail mail member)

Enclosed is my SASE for your next newsletter. We appreciate all you
do. You have helped us so much. Thank God for good people like you.
I don't remember (Lyme, you know) if I sent my SASE for the next issue.
If I have, please save this for the next one!
Thank you,
Lucille (Guilford, CT)

Note:
There are currently approx. 150 people who I send "Lyme Matters"
via regular mail.
To all those receiving the newsletter via regular postal mail.
When you receive the newsletter, send in your SASE envelope
at that time, marking it for the following month (so I will remember,
Lyme brain here too...LOL)
~~~~~~~~~~~~~

From Lymecare@aol.com

Dear Lyme Matters staff,
Thanks so much for all you do to keep us informed, supported and linked. I hope you know that it is a priceless gift.
I am looking for any information on PCR positive bone biopsy results of Bb. Also any cases of iron deficiency anemia with Lyme disease. If you have any leads please let me know.
Carol
LDA Ohio

Readers: If you have any info for Carol, please email her
at Lymecare@aol.com



If you have a comment, suggestion or submission for
the newsletter, please let us know.
Regards, From the Staff of Lyme Matters!
Please feel free to share this newsletter with your friends,
family and doctors.
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