THE FORMATION AND MAINTENANCE OF ETHICS COMMITTEES
Portions from Reference List distributed at the NYCLTCEN seminar in September, 1998 held at the Fairview Nursing Home in Queens. Some new references have been added to the list as well.
Allison, C. C., Fletcher, J., & Ambronsini, R. (1995). Ethics roundtable: Forming, running, and revitalizing an ethics committee. Community Ethics, 2(2). ( http://www.pitt.edu/ ~cep/22Ethics-Roundtable.html)
Andre, J. (1997). Goals of ethics consultation: Toward clarity, utility, and fidelity. The Journal of Clinical Ethics, 8(2), 193-198.
American Association of Homes and Services for the Aging (1990). Ethics committees: Allies in long-term care. A guidebook to forming an ethics committee. Washington, DC: Author.
Arnold, R., et al. (1996). Task force on standards for ethics consultation: Response to "Ethics consultation: The least dangerous profession?" Cambridge Quarterly of Healthcare Ethics, 5(2), 284.
Aulisio, M. (1996). Goals of clinical ethics consultation: Discussion starter. SHHV-SBC Task Force on Standards for Bioethics Consultation. (http://iphh.cal.msu.edu/shhv/CEC- goals.htm)
Baylis, F. F. (1994). A profile of the health care ethics consultant. The health care ethics consultant (pp. 25-44). Ottowa, Ont.: Humana Press.
Brennan, T. A. (1992). Quality of clinical ethics consultation. Quality Review Bulletin, 18, 4-5.
Brown, B. Miles, S., & Asokar, M. (1987). The prevalence and design of ethics committees in nursing homes. Journal of the American Geriatrics Society, 35, 1028- 1033.
Chichin, E., & Olson, E. (1995). An ethics consult team in geriatric long-term care. Cambridge Quarterly of Healthcare Ethics, 4, 178-184.
Christensen, K. T., et al. (1997). Ethics without walls: The transformation of ethics committees in the healthcare environment. Cambridge Quarterly of Healthcare Ethics, 6(3), 299-301.
Collopy, B. J. (1988). Autonomy in long term care: Some crucial distinctions. The Gerontologist, 28 (Suppl.), 10-17.
Corsino, B. V. (1996). Bioethics committees and JCAHO patients' rights standards: A question of balance. The Journal of Clinical Ethics, 7(2), 177-181.
Craig, R. P., Middleton, C. L., & O'Connell, L. J. (1986). Ethics committees: A practical approach.. St. Louis: Catholic Health Association.
Crigger, B. J. (1995). Negotiating the moral order: Paradoxes of ethics consultation. Kennedy Institute of Ethics Journal, 4(2), 89-112.
Critelli Shick, I., & Moore, S. (1988). Ethics committees identify four key factors for success. H E C Forum, 10(1), 75-85.
Day, J., et al. (1994). An assessment of a formal ethics committee consultation process. HEC Forum, 6(1), 18-30.
Department of Bioethics & The Ethics Committee (1998). Dealing with ethical questions in health care. Contemporary Issues. Cleveland, OH: The Cleveland Clinic Foundation. (http://www.ccf.org/ed/bioethic/bioeth.htm)
Department of Bioethics & The Ethics Committee (1998). What do they mean by "Organizational Ethics." Contemporary Issues. Cleveland, OH: The Cleveland Clinic Foundation. (http://www.ccf.org/ed/bioethic/biocon8.htm)
Dowdy, M. D., Robertson, C., & Bander, J. A. (1998). A study of proactive ethics consultation for critically and terminally ill patients with extended lengths of stay. Crit Care Med, 26(2), 252-259.
Drane, J. F. (1994). Basic facts about health care ethics committees. Clinical Bioethics (pp. 1-16). Kansas City, MO: Sheed and Ward.
Dubler, N. N., & Marcus, L. J. (1994). Mediating bioethical disputes: A practical guide. NY: United Hospital Fund.
Feinsod, F. M.,, & Levinson, S. A. (1998). Procedures for managing ethical issues and medical decision making. Annals of Long-Term Care, 6(2), 63-65.
Fletcher, J. C. (1995). The consultant's credentials. Hastings Center Report, 25, 39-40.
Fletcher, J. C., & Hoffmann, D. E. (1994). Ethics committees: Time to experiment with standards. Annals of Internal Medicine, 120, 335-338.
Fletcher, J. C., & Siegler, M. (1996). What are the goals of ethics consultation? A consensus statement. The Journal of Clinical Ethics, 7(2), 122-126.
Fletcher, J. S., & Wolf, S. M. (1991). Ethics committees and due process: Nesting rights in a community of caring. Maryland Law Review, 50, 798-858.
Fox, E. (1996). Concepts in evaluation applied to ethics consultation research. The Journal of Clinical Ethics, 7(2), 116-121.
Fox, E. & Stocking, C. (1993). Ethics consultants' recommendations for life-prolonging treatment of patients in a persistent vegetative state. Journal of the American Medical Association, 270 (21), 2578-82.
Fox, M.D., et al. (1998). Paradigms for clinical ethics consultation practice. Cambridge Quarterly of Healthcare Ethics, 7(3), 308-314.
Fry-Revere, S. (1994). The accountability bioethics committees and consultants. Frederick, MD: University Publishing Group.
Glasser, G. Zweibel, N. R., &. Cassel, C. K. (1988). The ethics committee in the nursing home: Results of a national survey. Journal of the American Geriatrics Society, 36, 150-156.
Griener, G. G., & Storch, J. L. (1994). The educational needs of ethics committees. Cambridge Quarterly of Health Care Ethics, 3, 467-477.
Hartz, J. N. (1997). Ethics committees at work: Commentaries on "A family's right to know?" Cambridge Quarterly of Healthcare Ethics, 6(1), 95-96.
Hastings Center (1988). Ethics committees: Core resources. Briarcliff Manor, NY: Hastings Center.
Hayry, M. (1998). Ethics committees, principles, and consequences. J Med Ethics, 24(2), 81-85.
Heitman, E. (1993). A proactive role for the ethics committee, ethics consultant: Meeting the JCAHO standards on patient rights. Trends in Health Care, Law, and Ethics, 8, 4.
Heitman, E., & Bulger, R. E. (1998). The healthcare ethics committee in the structural transformation of health care: Administrative and organizational ethics in changing times. Healthcare Ethics Committee Forum, 10(2), 152-176.
Hoffman, D. E., Boyle, P., & Levenson, S. A. (1995). Handbook for nursing home ethics committees. Washington D.C.: American Association of Homes and Services for the Aging.
Howe, E. G. (1996). The three deadly sins of ethics consultation. The Journal of Clinical Ethics, 7(2), 99-108.
JCAHO (1996). Standards for Organizational Ethics. In the section "Patient Rights and Organizational Ethics,"Comprehensive Accreditation Manual for Hospitals (pp. 95-97). Oakbrook Terrace Ill.: JCAHO.
La Puma, J., & Schiedermayer, D. L. (1991). Ethics consultation: Skills, roles, and training," Annals of Internal Medicine, 114, 155-160.
La Puma, J., & Schiedermayer, D. L. (1994). Ethics consultation: A practical guide. Boston: Jones and Bartlett.
Libow, L., Olson, E., Neufeld, R., et al. (1992). Ethics rounds at the nursing home: An alternative to an ethics committee. Journal of the American Geriatrics Society, 40, 95-97.
Maricle, K. (1997). JCAHO 1997: Patients right and organizational ethics. Virginia Bioethics Network: UB Center for Clinical Ethics and Humanities in Health Care. (http://wings. buffalo.edu/faculty/research/bioethics/man-jcah.html)
Marsh, F. H. (1993). Why physicians should not do ethical consults. Theoretical Medicine, 18 (1), 1-8.
McClung, J. A., Kamer, R. S., DeLuca, M., Barber, H. J. (1996). Evaluation of medical ethics consultation service: Opinions of patients and health care providers. Am J Med, 100(4), 456-460.
McIntyre, R. L. (1993). The ethics consultant must always begin with what the patient and family are saying. Trends in Health Care, Law, and Ethics, 8(4).
Mezey, M., Mitty, E., Rappaport, M., & Ramsey, G. (1997). Implementation of the Patient Self-Determination Act (PSDA) in nursing homes in New York City. J Am Geriatr Soc, 45(1), 43-49.
Michel, V. (1992). Ethics committee procedure: Due process or good process? Ethical Currents, 30, 6-7.
Olson, E., Chichin, E., Meyers, H., Schulman, E., & Brennan, R. (1994). Early experiences of an ethics consult team. JAGS, 42, 437-441.
Orr, R. D., Marshall, P. A., & Osborn, J. (1995). Cross-cultural considerations in clinical ethics consultations. Archives of Family Medicine, 4, 159-164.
Orr, R. D., Morton, K. R., de Leon, D. M., & Fals, J. C. (1997). Evaluation of an ethics consultation service: Family and patient perspective. Am J Med, 103(2), 167- 168.
Pentz, R. D. (1998). Expanding into organizational ethics: The experience of one clinical ethics committee. Healthcare Ethics Committee Forum, 10(2), 213-221.
Phillips, B. (1997). Survival on the ethics committee: A nurse's guide. Community Ethics, 4(1).
Phillips, D. F. (1996). Ethics consultation quality: Is evaluation feasible? JAMA, 275(24). (http://www.ama-assn.org/sci-pubs/journals/archive/jama/vol_275/no_24/ mn6112.htm)
Ross, J. W. (1986). Handbook for hospital ethics committees. Chicago: American Hospital Association.
Ross, J. W., et al. (1993). Health care ethics committees: The next generation. Chicago: American Hospital Association.
Ross, J. W., et al. (1994). The future of ethics committees. Part II: Should case consultation/ review dominate the agenda? Ethical Currents, 39, 1-3.
Rubin, S., & Zoloth-Dorfman, I. (1994). First-person plural: Community and method in ethics consultation, The Journal of Clinical Ethics, 5(1), 49-54.
Sansone, P. (1996). The evolution of a long-term care ethics committee. H E C Forum, 8(1), 44-51.
Scheirton, L. S. (1993). Measuring hospital ethics committee success. Cambridge Quarterly of Healthcare Ethics, 2 (4), 495-504.
Scofield, G. R. (1993). Ethics consultation: The least dangerous profession? Cambridge Quarterly of Healthcare Ethics and Ethics Committees, 2(4), 421.
SHHV-SBC Task Force on Standards for Bioethics Consultation (1998). Ethical issues and patient rights across the continuum of care. (ISBN 0-86688-591-9)
SHHV-SBC Task Force on Standards for Bioethics Consultation (1997). Discussion draft of the SHHV-SBC Task Force on Standards for Bioethics Consultation. ( please access via link at the end of the reference list.)
Siegler, M. (1992). Defining the goals of ethics consultations: A necessary step for improving quality. Quality Review Bulletin, 18, 15-16.
Silverman, H. J. (1994). Revitalizing a hospital ethics committee. HEC Forum, 6(4), 189-222.
Simon, S. (1997). Ethics committees at work: A family's right to know? Cambridge Quarterly of Healthcare Ethics, 6(1), 93-94.
Singer, P. A., Pellegrino, E. D., & Siegler, M. (1993). Ethics committees and consultations. The Journal of Clinical Ethics, 1(4), 263-267.
Slomka, J. (1994). The ethics committee: Providing education for itself and others. HEC Forum, 6(1), 31-38.
Smith, M. L. (1997). Institutional ethics committees for long-term care settings. Contemporary issues. Cleveland, OH: The Cleveland Clinic Foundation. (http://www.ccf.org/ed/ bioethic/biocon4.htm)
Sobol, T. L., & Boes, A. M. (1994). Establishing an ethics committee for a nursing home. In M. B. Kapp (Ed.), Patient Self-Determination in Long-Term Care: Implementing the PSDA in medical decisions. New York: Springer Publishing Company.
Spenser, E. M. (1997). A new role for institutional ethics committees: Organizational ethics. The Journal of Clinical Ethics, 8, 372-376.
Thomasma, D. C. (1992). Models of the doctor-patient relationship and the ethics committee: Part one. Cambridge Quarterly of Healthcare Ethics, 1(1), 11-31.
Thomasma, D. C. (1994). Models of the doctor-patient relationship and the ethics committee: Part two. Cambridge Quarterly of Healthcare Ethics, 3(1), 10-26.
Tulsky, J. A., & Fox, E. (1996). Evaluating ethics consultation: Framing the questions. The Journal of Clincial Ethics, 7(2), 109-115.
Tulsky, J. A., &. Lo, B. (1992). Ethics consultation: Time to focus on patients. American Journal of Medicine, 92, 19-26.
Tulsky, J. A., & Stocking, C. B. (1996). Obstacles and opportunities in the design of ethics consultation evaluation. The Journal of Clinical Ethics, 7(2), 139- 145.
West, M. B., & Gibson, J. M. (1992). Facilitating medical ethics case review: What ethics committees can learn from mediation and facilitation techniques. Cambridge Quarterly on Healthcare Ethics, 1, 63-74.
Winn, P., & Cook, J. (2000). Ethics committees in long-term care: A user's guide to getting started. The Annals of Long-Term Care, 8(1), 35-43. (See link to article below)
3/3/00
Check back for further updates to this list.
SHHV-SBC Task Force on Standards for Bioethics Consultation
Contains information about core competencies needed for consultation, consultation teams, ethics committees, assessment skills, process and interpersonal skills, organizational ethics, evaluation, etc.
Ethics Committes in Long-Term Care: A User's Guide to Getting Started
Published in Annals of Long-Term
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