Names on the Sign
Names Compiled by Barbara Fitzmaurice blfitzma@prodigy.net
1. Name: Joan Starkman
State I live in & contracted LD: N.Y.
1st became ill: approx 1985
How long ill: approx. 15 yrs.
Joan Namkrats3@webtv.net
*************************************************
2. Name: Mary Ann
State you live in: Oregon
State where thought to have contracted: Missouri
First became ill: 1956
How long have you been ill: 42 years
MA thunderchicken57@mindspring.com
*************************************************
3. Name: "Denim" - Jo Johnson
State you live in: New Mexico
State where thought to have contracted: Oklahoma
First became ill: June 1994
How long have you been ill: 5-1/2 years
**************************************************
4. Name: Kim S.
State you live in: NJ
State where thought to have contracted: NJ
First became ill: 1996
How long have you been ill: 3 years of misdiagnosis
**************************************************
~Kerler family~
5. Name: Barbara
6. Name: Glenn
7. Name: Erica
Live in: Pennsylvania
State where thought to have contracted: PA
How long have you been ill: diagnosed and treated since
June 1998. Dtr. had a Bull's eye 10 yrs ago.
Still have memory problems, irritability/rage/frustration, fatigue.
*************************************************
8. Name: Karen
State where thought to have contracted: Washington State
How long have you been ill: 1976
CLSUJI@aol.com
*************************************************
9. Name: Mary Rock
State you live in: I live in NJ
State where thought to have contracted: Believe I was bitten there. [NJ]
I have been ill for 3 1/2 years Treated for 1 yr.
MaryLuRock@aol.com
*************************************************
~Melillo Family~
10. Name: Sharon Melillo - 46
State you live in: NJ
State where thought to have contracted: NJ
First became ill: 1986
How long have you been ill: 13 years
melillo
******************************************************
11. Name: Mike Melillo - 20
State you live in: NJ
State where thought to have contracted: NJ
First became ill: 1994
How long have you been ill: 5 years
12. Name: Christie Melillo - 19
State you live in: NJ
State where thought to have contracted: NJ
First became ill: 1996
How long have you been ill: 3 years
13. Name: Dan Melillo - 15
State you live in: NJ
State where thought to have contracted: NJ
First became ill: 1997
How long have you been ill: 2 years
************************************************
14. Name: Timothy J. Rowett
State you live in: NJ
State where thought to have contracted: NJ
First became ill: Spring of 96 severly in from 2 /10 /97 till present two heart attacks
Bells paulsy, hypertention 3rd stage deceminated lyme with neuro presentations
How long have you been ill: 3 yrs.
tim rowett
*************************************************
15. Name: Beth Nardozza
State you live in: Bergen County , New Jersey
State where thought to have contracted: PA. or NJ.
First became ill: 16 years old, was dx. with mono
How long have you been ill: April of 1998. I was diagnosed with possible MS, chemical inbalance of the brain
“I truely believe I have chronic lyme disease, and if Steere wants to argue it,
I invite him to spend a day in the life of me.”
ANGEL23374@aol.com
**************************************************
16. Name: L. Lott
State Live In: MI
State contracted in: MI
First became ill: April 94 and again in July of 98
How long been ill: Off and on since 94 until July 98 and then constant downhill slide from July 98
“I wish I could go as well but other than the money
issue I cant even manage to post right now so guess
travel is out.”
**************************************************
19. Name: Bonnie Dowell
State I live in: California
State where thought to have contracted: Connecticut
First became ill: 1991
How long ill: 8 years
(My friend-not online [Georgia's friend])
Submitted by: JWissmille@aol.com
**************************************************
20. Name: Joyce McGrath
State you live in: Texas
State where thought to have contracted: Texas
First became ill: 1985
How long have you been ill: Since 1985
mcgrath
**************************************************
21. Name : Diana Chan
State I Live in is, N.Y.
Contracted it in: N.J.
First became ill: June, 91
How long ill: 8.5 yrs
BearyPrety@aol.com
****************************************************
22. Name: Ann
State you live in: Ohio
State where thought to have contracted: New York State
First became ill: Fall, 1986
How long have you been ill: 13 years.
***************************************************
~Henry Family~
23. Name: Lee Henry
State you live in: NJ resident
First became ill: 1983 admitted to hospital with high fever,
dehydration, weight loss, Started on Vibramycin IV for
Rocky mountain spotted fever.???
How long have you been ill: 1992 Christmas tree -- tick bite on ear, ring
rash on back, red lumpy ear lobe, migratory arthralgias, dizzy,
memory loss, depression, overwhelming fatigue.
Feb-May ?? diagnosis until LLMD in May 1993.
DX in 1993 with treatment until 1995---good results
Another tick bite in 1997 in NJ.
EM Rash, symptoms flared up and is still being
treated with antibiotics. He still cannot work. He is
hypoglycemic, and hypotensive
Serology always read as non-reactive by lab.
24. Name: Deb Henry
Resident of NJ - Spouse of LD victim.
Diagnosed in May 1999 because of + Elisa and +Western Blot on
routine screening blood test by husbands LLMD.
I had enough of the LD bands to be counted by
the CDC. Started oral antibiotics ASAP and treatment continues.
Debdidit21@aol.com
****************************************************
.~Lovey's Family~
25. Name: Lovey aka Marvina,
Native Floridian,
First bitten in Florida, (where were Willie B & A. Steere when I needed them?)
first tickbite 1950 - rash, high fevers, hallucinations, forced to take "tonics" for
years, could not put on weight;
1967 - was told I was in "early menopause at age 26;
1968 - tick paralysis lasted 7 days until tick removed from head;
1969 - all extremities had numbness/tingling, dx: vitamin deficiencies;
1970 - L-5 herniated disk removal;
1971- hysterectomy;
1975 - rash, flu symptoms;
1975 - 1989-continual phleabitis in right leg, nerve damage blamed;
1989 - Rushed to ER with menengitis symptoms, blinding headache,
spiking 105 fevers, for 2 weeks, diagnosis: must have 2 or more of the "new"
flu viruses at one time, I believe this was onset of Ehrlichiosis;
1992 right epicondral injury(?)surgery 6/93;
1/1994 Carpal Tunnel Release right palm;
4/1994 Left Wrist Carpal Tunnel Release;
1996 Carpal Tunnel Release of Radial Nerve, left forearm;
July 1998 bitten on right hand by tick, no rash;
August 1998 bitten twice under right breast by adult tick or Brown
Recluse Spider; put on 14 days abx, site of bite presented as
"volcano-like" protrusion with varying shades of purple/white rings,
debrided on day 14, exactly 10 days later Immune System closed down
and ALL lyme symptoms presented;
Nov. 1998 had T.I.A. and left with right side weakness, foot drag;
Dec 1, 1998 Dx by LLMD with Bb, Babesiosis, Ehrlichiosis (both human strains).
I WILL BE 59 YEARS OLD ON NOV 2nd. I HAVE HAD BORRELLIOSIS
ALMOST ALL OF MY LIFE! The Summer of 1998 brought co-infections
for sure. Tested positive for ELISA, negative Western Blot, positive
Babesiosis, positive Ehrlichiosis (both strains) at first time testing, positive
LUAT followed, positive PCR blood culture for Bb this month.
lovey38@juno.com
26. Son - Our son was born in 1960 with "thrush mouth" and has all symptoms
of Bb
27. Daughter - Our daughter was born in 1961 with rash on face.
Both have degenerating disk problems.
I have disk herniations at C4, C-5, L-4 and slight bulge at T-3 and now
have RA in spine;
28. My spouse - Major Lyme, had L-5 disk removed July 1996 and was dxd with
borrelliosis in April. 1999;
*We are both Chronic Lyme sufferers.
Barbara, feel free to shorten this history or we may need a parade just
for my story! Ha. Lovey the LongSuffering Lymie
*******************************************************
29. Name: Michelle P.
State you live in: VA
State where thought to have contracted: I think Okinawa, Japan: Dr's say NC
First became ill: Fall of 92, got better then relapsed fall of 97
How long have you been ill: 4 to 7 years
BBHMM@aol.com
*******************************************************
30. Name: Sandra Smith
State you live in: Texas
State where thought to have contracted: Germany, France, or Texas
First became ill: 1969
How long have you been ill: 44 yrs
Sandra Smith
I never knew Lyme was a possible diagnosis and kept searching for
end to joint and muscle pain since 1978, 21 years without one single doctor
telling me that Lyme might be a differential diagnosis. I don't believe it's
because they didn't know but because they didn't want to get involved.
I already sent specific info, not knowing I might
get to pick what goes on poster to represent me.
If possible, I would like
STOP A STEERE FROM DOING MORE HARM
***************************************************
Husband & wife
31. Name: R. James Martin
Current state: Texas
Contracted state: New Jersey
First Ill: 1972
How Long: 27 years
R. James Martin
32. Name: Karen J. Rose (my wife)
Current state: Texas
Contracted state: California
First Ill: 1959
How Long: 40 years
We were both part of the Phillips, Moayad, Mattman study.
**************************************************
33. Name: FRAN PIAZZA-PARKINSON
BRIAN'S WIFE AND RANDY'S MOM
State you live in: NEW JERSEY SEASHORE (TICK HEAVEN)
State where thought to have contracted: PA/NJ '92/'93
NJ '99 (bit INSIDE home!!)
First became ill: DISABLED 3-16-93
First became ill: 6 1/2 LONG PAINFUL EXPENSIVE YEARS!!!
SEAFRAN731@aol.com
**************************************************
34. Name: Katherine Mary S.
State where thought to have contracted: Connecticut
First became ill: 1992
Diag 1999, currently awaiting second IV treatment
**************************************************
35. Name: Judy Smith
State I live in: New York
State where I contracted Lyme: Massachusettes (in the Berkshires)
First Became Ill: June 1996 (I am still not well.)
judy.smith@excite.com
***************************************************
36. Name: Debbie D.
State I live in : VA
State where I believe I contracted Lyme : VA
First Got Sick: 1998
How long have you been ill: 1 year
Sorry lymies, I wont be able to attend, please feel free to use my name.
Deb-VA DJinMECH@aol.com
***************************************************
37. Name: Paul Maloney
State you live in: FL
State where thought to have contracted: CT
First became ill: 1981 or earlier
How long have you been ill: 18 years +
Magic2626
*************************************************
38. Name: Mary Bochain
State you live in: CO
State where thought to have contracted: Lyme, CT
First became ill: 1993
How long have you been ill: 6 years
Magic2626
**************************************************
39. Name: CAROLYN ROWE
State you live in: KANSAS
State where thought to have contracted: ARKANSAS
(DEFINATELY THERE!! MORE THAN ONCE!!!)
First became ill: MAY 1989
How long have you been ill: 10 1/2 YEARS
**************************************************
~Maloney Family~
40. Name: Danielle Maloney
State you live in: CO
State where thought to have contracted: Lyme, CT
First became ill: 1995
How long have you been ill: 5 years
Magic2626
41. Name: Isabelle Maloney
State you live in: CO
State where thought to have contracted: Lyme, CT
First became ill: 1994
How long have you been ill: 6 years
Magic2626
42. Name: Stephanie Maloney
State you live in: CO
State where thought to have contracted: Lyme, CT
First became ill: 1994
How long have you been ill: 5 years
43. Name: Larry Yenko
State you live in: Las Vegas, Nevada
State where thought to have contracted: Lyme Connecticut, 1985 and
possibly Reno, Nevada 1996.
First became ill: July 1996
How long have you been ill: 3 years months.
larryyenko
44. Name: Barbara Fitzmaurice, R.N.
State you live in: Saginaw Co., MI
State where thought to have contracted: MI
First became ill: I believe I was born with LD,
First became ill: since 1975, off & on,
How long have you been ill: 4 yrs., 1995 unable to work.
blfitzma@prodigy.net
******************************************************
45. Name: Kara Kyriaka Tyson
State you live in: Huntsville, Alabama
State where thought to have contracted: Lyme Disease April 1999,
Monte Sano Mountain State Park Northeast Side Of Mountain
First became ill: 6 weeks later, Diagnosed 6 months later
How long have you been ill: Have had Lyme 6+ months
Kara Kyriaka Tyson omni@hiwaay.net
*******************************************************
~Leonard Family~
46. Name: Peggy Leonard
State you live in: No. Calif.
State where thought to have contracted: Contracted Lyme: No. Calif.
First became ill: 1990
How long been ill: 9 years
Peggy Leonard
47. Name: John Leonard
State live in: No. Calif.
Contracted Lyme: No. Calif.
First became ill: 1997
How long been ill: 2 years
******************************************************
48. Name: Sage Hopkins
State live in: No. Calif.
Contracted Lyme: No. California
First became ill: 1978 at age of 5
How long been ill: 21 years
*********************************************
49. Name: Emily Fletcher
State/live: Connecticut
Place infected: Connecticut
First ill: May 1998
How Long: 2 years
Bruce or Emily
******************************************************
50. Name: Todd Summer
From: California
Contracted disease in: Jersey
First ill, for sure, 1993
Ill for six years
MadTodd@aol.com MadTodd@aol.com
******************************************************
51. Name: Annalisa
State you live in: MI
State where thought to have contracted: MI
First became ill: 1985
How long have you been ill: 14 yrs.
*******************************************************
52. Name: Karen Crown
Live in: New Jersey
Contacted Lyme in : New Jersey
Infected: July 1996
Still ill November 1999
Michael Crown crown@prodigy.net
******************************************************
53. Name: Rita L. Stanley, Ph.D.
State you live in: Oregon
State where thought to have contracted: PA and OR
First became ill: 1963
How long have you been ill: Badly ill for 6 years - remission now
Rita Stanley ritastan@worldnet.att.net
*******************************************************
~Pratt Family~
54. Name: Angie Pratt
State you live in: Virginia
State where thought to have contracted: Virginia
First became ill: May 1998-Undiagnosed until November
1998-still unproperly treated until June 1999
How long have you been ill: Hard to tell how long I've actually had it - at least 1 1/2 years.
Submitted by: Jo McCallum, Lyme Disease Information Center of VA
LDIC of Virginia
55. Name: Genevieve Pratt (3 years old)
State you live in: Virginia
State where thought to have contracted: Virginia
First became ill: Uncertain - probably infected while nursing, also tick bites
How long have you been ill: At least 1 year-unable to find proper treatment in Virginia
Submitted by: Jo McCallum, Lyme Disease Information Center of VA
LDIC of Virginia
*******************************************************
56. Name: Nancy Chapman Dieter
State you live in: VA
State where thought to have contracted: MA or VA
First became ill: Possibly 1980's and definitely 8/11/99
How long have you been ill: Not sure whether I've had it all along and recent
occurrence (w/EM) is first, or other life-long problems reflect
earlier Lyme infection.
Submitted by: Jo McCallum, Lyme Disease Information Center of VA
LDIC of Virginia
*******************************************************
57. Name: Susan Mac Namee
State you live in: PA
State where thought to have contracted: PA
First became ill: first symptoms 1983-85, first doc 1987, late stage 1988,
13th doc diagnosed in 1993
How long have you been ill: at least 15 years, disabled 11 years
Aqua920
******************************************************
58. Name: Michael Boyle
State you live in: PA
State where thought to have contracted: PA
First became ill: Summer 1998
How long have you been ill: over 1 yr
Aqua920
******************************************************
59. Name: Christie
State you live in: Michigan
State where thought to have contracted: Michigan
First became ill: 1976 with remission, rash with pain and debilitating fatigue.
During 90's health has declined and am disabled. Been diagnosed
with CFIDS, FM, lupus before lyme.
How long have you been ill: 23yrs.
C.Tab.
******************************************************
60. Name: Stephanie
Live in: New York
State where thought to have contracted: Connecticut
First became ill: 1994
How long have you been ill: 5 years
******************************************************
~Schwartzman Family~
61. Name: Judy Schwartzman
New York State
Lyme Endemic Northern Westchester
How long have you been ill: for 18-20 years
Katonah2@aol.com Katonah2@aol.com
62. Name: Myron Schwartzman
New York State
Lyme Endemic Northern Westchester
First became ill: 1992 - Lyme and Lyme Meningitis - almost died 1995 - Lyme
and Lyme Meningistis/Encephalitis - almost died
*******************************************************
63. Name: Kate Howell
State live in: Missouri
State where contracted: Missouri
Contracted: Infected June 29, 1999 (with nymph in about two hours)
How long ill: Ill since a few weeks after
G & K
******************************************************
64. Name: Maggie Parker
Lives in: Virginia
Contracted in: Gaithersburg, Maryland
Became ill in 1986, Positive Lyme Test 1994
Living with Lyme for 13 Years
I WANT MY LIFE BACK !!!!
Maggie A Parker
*******************************************************
65. Name: Carla C. Colson
State you live in: Massachusetts
State where thought to have contracted: Massachusetts
First became ill: 1989
How long have you been ill: 10 Years
“I am unable to attend due to money and distance but want to be
a part of this protest against Steere and all he has done to deprive
me of a normal, healthy life.”
Rhausta@aol.com
******************************************************
66. Name: Lee Lull
State you live in: CA
State contracted: CA or Vancouver, BC
First became ill: March 1993
How long have you been ill: 6 and 1/2 years to date, but only in treatment
last 2 years because it took 4 years to get a diagnosis.
Worst aspect of illness: Band of pain and pressure around
chest if I lie flat in bed....have to sleep in recliner.
Lee
*******************************************************
67. Name: Lynn Oliver - We currently have 100 addresses on our mailing list with
about 28 active members this year.
Lyme Disease Network North Metro (Twin Cites MN)
Submitted by - Lynn Oliver lyndy@crosswinds.net
State you live in: Minnesota
State where thought to have contracted: Wisconsin
First became ill: Jan 1975
How long have you been ill: 24 years.
******************************************************
***68. Name: Paula Lipkin *** Death
State where you onced lived in: Minnesota
State where thought to have contracted: Minnesota
First became ill: before Feb 1996
How long have you been ill: ***Paula died in March of 1998 due to
complications from her Lyme Disease.***
Submitted by - Lynn Oliver lyndy@crosswinds.net
******************************************************
69. Name: Jonathan Strong
Live in: New Jersey
Contracted in one of NY, NJ, or PA (camping?)
Ill for more than 11 years - treated once after three years of misdiagnosis,
and now relapsing a few years later with worse neuro symptoms
and a newly positive PCR.
Jonathan R. Strong
*******************************************************
70. Name: Miki Eiffert on behalf of husband
Live in: Okanogan Valley Washington
State where thought to have contracted: Okanogan Valley Washington
First became ill: Became noticably ill round 94
Seriously ill for past two years and rapidly getting worse
Miki Eiffert
*******************************************************
71. Name: Joan Green
State I live in: NY
Contracted: NY (upstate)
First ill: 1998
How long ill: l and 1/2 yrs. Possibility of a much earlier bite
JGreen1471@aol.com
******************************************************
~Jemec Family~
72. Name: Janet Jemec
Live in: Bklyn, N.Y.
Got lyme in my own backyard (live in Gerrittsen Beach-a salt marsh peninsula,
adjacent to Jamaca Bay Wildlife Preserve),
Sick w/chronic lyme for 10yrs.
Janjem1@aol.com Janjem1@aol.com
WISH WE COULD BE THERE.Pls. be our voices.
permission to use any & all info.sent.....usually do attend rallys when we
can....best regards, & thanks for all your doing....Janet....()
73. Daughter, Victoria Jemec - age 13 yrs. old,
sick with chronic lyme since she was 4 yrs. old.
*******************************************************
74. Husband, Thomas Jemec
sick w/chronic lyme for 8 yrs.
*****************************************************
75. Name: Art Doherty
State I live in: Lompoc, California
State where thought to have contracted: Lompoc, California
First became ill: Fall 1990
How long have you been ill: Fall 1990 to Mid 1996
Art Doherty
*****************************************************
76. Name: Karl Schrantz
State where thought to have contracted: in the LOWER PENINSULA of Michigan
First became ill: at age 21/2
How long have you been ill: been sick 9 years, now bad neurological involvement.
Hope this helps!! Thanks for being there and going!!
Submitted by: Phil Schrantz
*****************************************************
77. Name: Janis S.
State you live in: Massachusetts
State where thought to have contracted: Massachusetts
First became ill: 1991
How long have you been ill: 9 years
I am unable to attend due to money and distance but want to be
a part of this protest against Steere and all he has done to deprive
me of a normal, healthy life.
Jan S.
******************************************************
~Fasey Family~
78. Name: Helen Fasy, RN
79., 80., 81. **John's wife and mother to Jessica and
Kristin--ALL 3 are Lyme victims also.**
State you live in: New Jersey (Long Valley for 11 years and now Robbinsville, NJ)
State where you thought to have contracted: PA/NJ 1986/87
First became ill: 1995/96 Disabled 1996
How long have you been ill: At least 7 horrific years
helen fasy
*******************************************************
82. Name: Terry J. James
Washington state
Became sick in the spring of 1997 and have continued to worsen.
TERRY J JAMES
******************************************************
83. Name: SJ
State you live in: New York
State where thought to have contracted: New York
First became ill: 3 years definite- maybe more
How long have you been ill: 2.5 years since diagnosis
Onboard15
*******************************************************
~Rutherford Family~
Names: Marnie & Bill Rutherford, Stacey, Jamie, Keri, & Chad
84. Marnie, 85., Stacey and 86., Chad have chronic lyme.
Marnie 10 yrs [undiagnosed 6 yrs]
Stacey since 1994
Chad 1996
I can’t remember what else you wanted more Jodie Ring thanks for doing this
Submitted by: Shore59@aol.com
***************************************************
87. Name: Linda Lobes - President MI Lyme Disease Assoc.***
State you live in: Michigan
State where thought to have contracted: Michigan
State where thought to have contracted: Michigan
First became ill: May 1989 had Bulleye Rash
How long have you been ill: 10 1/2 years
***We have 8 support Groups with over 100 members in all but 2 of them.
There are 10 Board Members on the Board of the Michigan Lyme Disease
Association. We receive over 500 calls per month.***
Submitted by: Lpurdy1040@aol.com
***************************************************
88. Name: Adam Rowett age 10
State you live in: sussex county new jersey
State where thought to have contracted: same sussex county
First became ill: 6/15/99
How long have you been ill: same 6/15/99 till unknown
******************************************************
89. Name: Kathrine Fleshman
State you live in: Maryland
State where thought to have contracted: Maryland
First became ill: 1991
still fighting the battle
*******************************************************
90. Name: "Hope"
State you live in: Live in NM
Contracted in: MN
First became ill at age 10
How long ill...39 years
*******************************************************
91. Name: Brian Carroll
State you live in: Ansonia, CT
Infected Oct 1994 while golfing at Yale CC, New Haven, CT
I remain chronically ill to this day though taking antibiotics helps considerably.
*******************************************************
92. Name: Connie Siese
State you live in: Michigan
Contracted in Michigan, in my classroom
First became ill: 9-13-93
How long ill: Six years
******************************************************
~McKenzie Family~
93. Name: Kathy McKenzie
Live in: TN
Contracted: RI
First became ill: 1972
How long been ill: 26 Yrs
94. Name: Vic McKenzie
Live in: TN
Contracted: RI
First became ill: At Birth Congenital
How long been ill: 19yrs
95. Name: Jean D.
State you live in: TX
State where thought to have contracted: MI
First became ill: 1990
How long have you been ill: 10 yrs.
Jean
******************************************************
96. Name: Jane V
State you live in: Fairfield Co., CT
State where thought to have contracted: CT
First became ill:. Spring 1999
How long have you been ill: 6 mos.
JVSPL@aol.com
*******************************************************
97. Name: Pepi
State you live in: TX
State where thought to have contracted: CT
First became ill: Infect. in 1984, Symp since 1988, Dx. 7-1999
How long have you been ill: 11 yrs
*************************************************
~Lawes Family~
98. & 99. Name: David and Anita Lawes
State you live in: Oakland Co., MI
State where thought to have contracted: MI
First became ill: Dave - approx. 9 yrs.
Anita - 10 yrs., symps past 20 yrs.
How long have you been ill: Dave - 9 yrs.,
Anita - 10 yrs, last 5: 2 yrs.
bedridden, & last 3 home bound.
Anita
*******************************************************
100. Name: Marleen O.
State you live in: NJ
State where thought to have contracted: NJ
First became ill: 1996
How long have you been ill: Almost 3 1/2 yrs.
*****************************************************
101. Name: Jeanne Dubeau
State you live in: Florida
State where thought to have contracted: Wisconsin
First became ill: 1975
How long have you been ill: 24 years
Jeanne2du@aol.com
******************************************************
[Note the following from # 101 were submitted to late to get on the posters for 3 Nov. 1999
Protest at NIH. And added #94 late. BF]
******************************************************
102. Name: Nancy Berntsen, age 41
State you live in: Connecticut
State where thought to have contracted: Connecticut
First became ill: Don’t know; became overly symptomatic in 1982;
diagnosed in 1994
How long have you been ill: 14 years but 98% well now after long
term antibiotic treatment (26 months IV & orals)
thanks to a wonderful doctor.
Nancy B. berntsen@altavista.net
*******************************************************
103. Name: Tim B.
State you live in: Connecticut
State where thought to have contracted: Connecticut
First became ill: Age 3
How long have you been ill: 10 years but getting better now that I have
a doctor who will treat me!
Submitted by: Nancy B. berntsen@altavista.net
******************************************************
104. Name: Bruce Goulding
State you live in: Connecticut
State where thought to have contracted: Rhode Island
First became ill: 1974
How long have you been ill: 25 (twenty-five) years (finally diagnosed
in 1997)
BRGOULDING@aol.com
******************************************************
105. Name: Michelle
State you live in: Michigan
State where thought to have contracted: Michigan
First became ill: child
How long have you been ill: too many, painful years
******************************************************
106. Name: Ruth
State you live in: NJ
State where thought to have contracted: NY
First became ill: 1985
How long have you been ill: seriously since 1990.
******************************************************
107. & 108. also have two kids with chronic lyme....
"I tried reality once, I found it too confining."- Lily Tomlin.
rufie
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