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FROM Your Medicine On Line Cancer Forum

(MOL) and Album!
brightstar.gif(2841 bytes)              mol-cancer@list.med.com                 brightstar.gif (2841 bytes

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  It is here that you will meet a wonderful caring group of individuals who are presently cancering or who are loved ones and advocates for those cancering. Individuals in this group are not in the medical profession field. Therefore,we do not endorse a treatment, drug or product. Our people combined do have many years of accumulated knowledge and experience, who come from all walks in life and are able to lend tremendous assistance to help you through this journey. There are a few matters of importance to address. It is the general assumption of the group that one can use alternative treatments (with your doctors permission) in conjunction with traditional therapy. We feel that an individual who has had testing and is returning to the doctor should take someone with them as an extra set of ears. It must be remembered that this is a most stressful time for you. We also agree that a second or even a third opinion is healthy. One needs to shop for the right doctor for them; as each of us are so different not only in personality; but our bodies react differently. You should be seeking nothing but the best doctors and hospital, remember this is your life and you want to be in control. The best way to be in control is to acquire all the information needed for your particular cancer; so that you and your doctor can decide the best treatment for you. We find stress is our worst enemy, it is so important to remove yourself from stressful situations and non positive thinkers. There are so many new drugs and treatments out there for most cancers that lend hope to all. Be prepared for your doctors visits with questions. Should the doctor interrupt you while you are questioning explain that you have more questions. Make sure the doctor speaks to you in lay terms and that he is positive also. Too often the doctor will give a gloomy statistical report, thus taking hope away from the patient and we find so many people who far out lived the guess of any doctor. Last; but never least make sure that you eat healthy and that you keep your immune system built up. Again, we are here for you, we are a place of compassionate comfort, a place you can rant and rave knowing that we too have done that. A place of shelter; whereas all of us know what you are going through. To help you acquire the knowledge you need we are including many sites that have proven to be beneficial to us. Your friends of the MOL CANCER FORUM


TRADITIONAL SITES

                    National Cancer Institute http://rex.nci.nih.gov

Univ of Penn http://cancer.med.upenn.edu

Cancer Notes on the Net http://www.cancernews.com

Medicine On Line http://www.meds.com

MD Anderson http://www.mdanderson.org

Mem. Sloan-Kettering http://www.mskcc.comALTERNATIVE MEDICINE SITES

www.canceranswers.com CancerAnswers - Alternative Treatments Cancer Information -Alternative Treatments www.chiro.org

CANCER TREATMENTS/ ALTERNATIVE Alternative Remedies for Cancer and other diseases. www.meds.com Re: Alternative cancer treatments [00299] Internet Resources on Cancer

See what the doctor says on alternative meds. http:www.quackwatch.com/index.html.

BOOKS

"50 Essential Things to Do When the Doctor Says it is Cancer", Greg Anderson
Dr. Bernie Siegel's "Love, Medicine and Miracles"
Dr. Carl Simonton's "The Healing Journey"
Anne Frahm's "Cancer Battle Plan"

Resources: Support Services:
                                                                                                  

                                                                

TRANSPORTATION & LODGING

Air Care Alliance 4620 Haygood Road, Suite 8 Virginia Beach, VA 23455 (800)296-1217 (National Patient Air Transport Helpline) (757)318-9107 FAX E-mail: mailto:aircarea@aol.com Web site: http://www.angelflightfla.org/ A trade organization providing air transportation to ambulatory and medically stable people.

AirLifeLine 6133 Freeport Boulevard Sacramento, CA 95822 (916)429-2500 (800)446-1231 (916)429-2166 FAX E-mail: mailto:staff@airlifeline.org Web site: http://www.airlifeline.org/ Provides cost-assisted emergency medical transportation.

Corporate Angel Network Westchester County Airport, 1 Loop Road White Plains, NY 10604 (914)328-1313 E-mail: mailto:info@corpangelnetwork.org Web site: http://www.corpangelnetwork.org/ Provides free plane transportation for cancer patients undergoing treatment from recognized cancer treatment centers.

National Association of Hospital Hospitality Houses 4915 Auburn Avenue Bethesda, MD 20814 (800)542-9730 (301)961-3094 E-mail: mailto:nahhh@aol.com Web site: http://www.visit-usa.com/hhh Provides information on away from home lodging for patients and families.

National Patient Air Transport Helpline P.O. Box 1940 Manassas, VA 22110 (800)296-1217 E-mail: mailto:npathmsg@aol.com Web site: http://www.npath.org/ Provides referrals for charitable and discounted patient medical air transport services.

BONE MARROW,TISSUE & ORGAN DONOR

Bone Marrow Transplant Newsletter 1985 Spruce Avenue Highland Park, IL 60035 (847)831-1913 (847)831-1943 FAX E-mail: mailto:help@bmtnews.org Web site: http://www.bmtnews.org/ Publishes quarterly newsletter for bone marrow peripheral stem cell transplant patients; provides patient-to-survivor telephone link.

                        Bone Marrow Transplant Family Support Network                


P.O. Box 845 Avon, CT 06001 (800)826-9376 Provides a telephone support network, family counseling and education, peer groups and insurance information for BMT patients and families.

Living Bank P.O. Box 6725 Houston, TX 77265 (800)528-2971 (713)528-2971 (713)961-0979 FAX Promotes and facilitates organ and tissue donor commitments.

National Marrow Donor Program 3433 Broadway Street NE, Suite 500 Minneapolis, MN 55413 (612)627-5800 (800)526-7809 (800)MARROW2 (Donor Information) Web site: http://www.marrow.org/ Maintains a registry of bone marrow donors; provides donor recruitment information.

National Bone Marrow Transplant Link (BMT Link) 29209 Northwester Hwy. #624 Southfield, MI 48034 (800)LINK-BMT (810)932-8483 FAX Web site: http://comnet.org/nbmtlink Provides information and support to BMT patients and families; promotes public understanding and research for BMT issues.

Organ Transplant Fund 1102 Brookfield, Suite 202 Memphis, TN 38119 (901)684-1697 (800)489-3863 (901)684-1128 FAX E-mail: mailto:atfnatl@aol.com Web site: http://www.otf.org/ Provides financial and insurance assistance, patient advocacy and housing information during treatment for transplant recipients and their families.

Transplant Foundation 8002 Discovery Drive, Suite 310 Richmond, VA 23229 (804)285-5115 (804)288-2408 FAX Provides financial assistance to offset cost of post-transplant medications; acts as clearinghouse for transplant information.

 

CHILDREN'S HOPES & DREAMS FOUNDATION
1-201-361-7366

 

HOME HEALTH CARE

National Association for Home Care c/o Consumer Guide P.O. Box 14241 Washington, DC 20003 (202)547-7424 (202)547-3540 FAX Web site: http://www.nahc.org/ Trade association providing referrals to home or hospice care.

The Oley Foundation 214 Hun Memorial, A-23 Albany Medical Center Albany, NY 12208-3478 (518)262-5079 (800)776-OLEY E-mail: mailto:taylor@ccgateway.amc.edu Web site: http://www.wizvax.net/oleyfdn Support for home and/or parental nutrition therapy.

Gentiva Health Services 3 Huntington Quadrangle 2S Melville, NY 11747 (888) GENTIVA or (888) 436-8482 www.gentiva.com Gentiva Health Services (Nasdaq: GTIV) is the nation's leading provider of specialty pharmaceutical and home health care services. Gentiva also is a leading provider of adult, pediatric and geriatric home health care services for diabetes, cardiovascular conditions, post-surgical care, orthopedic rehabilitation and other disease states.

Visiting Nurse Association of America National Office 3801 East Florida Avenue, Suite 900 Denver, CO 80210 (888)866-8773 (303)753-0218 Provides skilled nursing and assisted living services.

Amherst H. Wilder Foundation 919 Lafond Avenue St. Paul, MN 55104 (612)642-4000 (612)642-4068 FAX Web site: http://www.wilder.org/ Provides assisted living and nursing home care services for the elderly in the Minneapolis area.

Children's' Hospice 2202 Mt. Vernon Ave., Suite 3C Alexandria, VA 22301 (703)684-0330 (703)684-0226 FAX E-mail: mailto:chiorg@aol.com Web site: http://www.chionline.org/ Provides information and referral services,counseling, support groups, education, and research aimed at improving hospice care for children.

Choice in Dying 1035 30th Street NW Washington, DC 20007 (202)338-9790 (202)338-0242 FAX Web site:http://www.choices.org/ Advocacy organization for end-of-life rights;provides legal counseling and information on end-of-life decisions.

National Association for Home Care c/o Consumer Guide P.O. Box 14241 Washington, DC 20003 (202)547-7424 (202)547-3540 FAX Web site: http://www.nahc.org/ Trade association that provides referrals to local hospice organizations.

Hospice Education Institute/Hospicelink 190 Westbrook Road Essex, CT 06426 (860)767-1620 (800)331-1620 (860)767-2746 FAX E-mail: mailto:hospiceall@aol.com Provides information and referral services,education, advice and assistance regarding hospice and palliative care.

National Hospice Organization 1901 N. Moore Street, Suite 901 Arlington, VA 22209 (703)243-5900 (800)658-8898 (703)525-5762 FAX E-mail: mailto:drsno@cais.com Web site: http://www.nho.org/ Provides information and referrals to local hospitals, patient advocacy and professional education.

National Institute for Jewish Hospice 8723 Alden Drive, Suite 219 Los Angeles, CA 90048 (310)854-3036 (213)HOSPICE (800)446-4448 Provides free telephone counseling and referrals; trains professionals in the art of helping the Jewish terminally ill. RESOURCES/ LEGAL

Americans with Disabilities Act U.S. Equal Employment Opportunity Commission Office of Legal Council 1801 L Street NW Washington, DC 20507 (202)663-4503 Provides information and legal assistance regarding discrimination due to illness or disability

Family Medical leave Act U.S. Department of Labor Wage & Hour Division 200 Constitution Avenue NW Washington, DC 20210 (202)219-8412 Provides information on employment rights during medical leave due to illness

INSURANCE : &   FINANCE

American Association of Health Plans Membership Department 129 20th Street NW, Suite 600 Washington, DC 20036 (202)778-3200 Web site: http://www.aahp.org/ Insurance industry trade association that will provide information on insurance and health care issues.

Blue Cross and Blue Shield Association 675 North St. Claire Street Chicago, IL 60601 (312)440-6000

Department of Health and Human Services Inspector General Hotline Office of the Inspector General P.O. Box 23489 Washington, DC 20026 (800)368-5779 U.S. government hotline for complaints regarding Medicare or Medicaid; provides assistance with issues of entitlements, benefits, insurance, and community resources.

Disabled American Veterans 807 Main Avenue SW Washington, DC 20024 (202)554-3501 (202)554-3581 FAX Web site: http://www.dav.org/ Provides assistance with health benefits for U.S. veterans.

Hill-Burton Free Hospital Care 5600 Fishers Lane, Room 7-47 Rockville, MD 20857 (800)683-0742 Hotline (301)594-5999 FAX Web site: http://www.hrsa.dhhs.gov/bhrd/dfcr/dfcrmain.htm U.S. government program that can arrange for cost-assisted care for disadvantaged individuals at certain medical facilities or hospitals.


National Insurance Consumer Hotline 1001 Pennsylvania Avenue, NW Washington, DC 20004 (800)942-4242 Provides assistance in finding insurance coverage, information on insurance issues and a consumer complaint service.

HAIR LOSS

Look Good, Feel Better The American Cancer Society (800)395-LOOK Teaches women who have undergone cancer treatment how to improve appearance through cosmetics, wigs, scarfs, etc.

Y-ME WIG 212 West Van Buren Street, 4th Floor Chicago, IL 60607 (800)221-2141 (312)294-8598 FAX Web site: http://www.y-me.org/ Provides donated wigs free of charge.

The MOL FORUM is intended to assist people with cancer, their family, friends and caregivers find the information to help them make decisions regarding treatment and management of their disease. Nothing presented herein should be construed as a substitute for professional advice from a physician or medical practitioner. Reasonable efforts have been made to ensure the accuracy of the information provided, but the Mol Forum makes no warranty , nor endorses any recommendation, practice or product of any organization or service contained herein.



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