The topic for August, 1999 is: "Has RSD had any positive effects on your life, and if so, what are they?"
One personal reason, is that ever since I was young, I've wanted to be a physiotheraphist. By having RSDS, I have been able to see what really goes on and even got a job as a helper.
Another thing, is my outlook on life. Now I live for today and stuff tomorrow!! It's taught me to look after myself and not to just asume that my body will always be mine. An illness can take over you at any time. I've also learnt to sand up for myself. Where before I would be really quiet, I now fight for my rights a lot better.
I am much more aware of other disabled people now. Where before I would see a 'disabled person', now I only see a person. I seem to care more as well. I have more time to listen to people, as before I was always rusing of doing something else. It's made be a lot stronger (in my personailty). Instead of doing what everyone else is doing, I have to do my own thing as I can no longer do them. I have my own image now and it's better then everyone's else!! lol
As I haven't slept for the last year, I've taken up a lot more reading and it's actually making me brainier!! I've also had time to think about myself (for a change!! lol) and realize who I really am and what I want to do with my life. I've also, made new friends, through both support groups and the internet, as well as generally meeting people in the hospital.
As far as that, I think that's about all I found positive out of RSDS!! I'm looking forwards to reading everyone elses in hope that there are many more things that I'm not thinking of!!
Aya:
The positive effect that RSD has had on me is that I'm not as shy as I used to be -
probably because of the talks about RSD I did in class - or with my friends - to explain
what it's like to have RSD, and ...I am more sensitive to other kids who have any illness.
In other sicknesses or illnesses you see the handicap - in RSD it is not so visible.
So I am very conscious of what those kids must be going through and am more understanding of
what it must be like for them, to try to deal with what they have on a daily basis.
Natalie:
Well my positive effcts about RSD is that I was placed into a wheelchair
for long distances and other things and I was upset because I couldn't do the
sports that ( wanted to do and I felt that everyone would have to do things
for me. But today it's different. I am able to do many things for myself.
Not all, I will admit that, but enough that it makes me feel independant but
anyway LOL. I decided not to sit around and cry about everything so I went to my
local rehab ceneter and they told me there is a tennis team that they have
and I can try it out and see how ( like it and if I do, they would love to
have me on it, and so I did and now I'm loving it every day I go to. Many
people like tennis pors by my house that help me with my game and I play
also with my rehab center's team and I go on tournaments every year and they
are a lot of fun and I meet a lot of great people that are so nice to me.
Heck, I'm the youngest to play around here they all call me their little
sister LOL. But I think of this every day I hate the RSD and I wish it
could go away but I think of this too, that if I didn't have it I wouldn't meet
a lot of nice people such as you guys :o)
Betsy:
Well, RSD has effected my life in many ways, most of them
negative. There have been many positive effects though,
which all add up to make living with this disease bearable.
First of all, if I hadn't gotten RSD, I would never have met many of the friends whom I love right now. I wouldn't have Teen Corner, which I enjoy very much. I never would have become friendly with my best friend, Liz, because we would have just met in passing...or maybe not at all! The people who I have met through RSD support groups amaze me. They inspire me, and they have changed my outlook on life.
RSD has taught me to stand up for myself. Learning to be assertive is an important lesson, which will help me in many ways in the future. I had to stand up for myself against ignorant, mean, and egotistical doctors, or I would never have gotten the treatment I needed. I strongly believe that without treatment, I would not be able to walk right now.
I've learned not to take simple things for granted. Walking, for instance, is something that I never really thought about before. Now, it's a struggle to take each step. I don't take it for granted anymore...that's for sure! My biggest fear is that I won't be able to walk, and the thought of a wheelchair keeps me pushing myself to do whatever I can to walk.
I've learned to write with my non dominant hand! So basically, I'm ambidexterous!!! It's really cool to be able to write with both hands...I had to learn because my right hand was totally useless for a while. Now I have about 65% of the use of that hand/arm back, so I can write with both hands!
I know that there are other positive effects that RSD
has had on my life, but those are the ones that I thought
of off the top of my head!