CFS-20s

Related Mailing Lists/On-line Information

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The following is a list of CFS/CFIDS/ME/FMS/etc. related Mailing Lists, Newsgroups, Electronic Newsletters, Fileservers and Real Time Internet Chat Groups, available on the Internet. If you know of any resources that should be added to this list, or if any of the information below needs correcting, please feel free to contact Roger at cfs20sweb@rbpc.demon.co.uk.

Note to Non-CFS Sufferers: Many of the CFS/ME Groups offer support for the full spectrum of illnesses including FMS, NMH, MCS, etc. Check out their home page, or subscription details for further information.

Mailing Lists & Newsgroups (Usenet)

What are Mailing Lists?
What are Newsgroups?

CFS/ME
CFS-20s
CFS-L (alt.med.cfs)
Co-Cure
MEChat (UK Based)
OzME (Aus/NZ Based)
OzME-Chat (Aus/NZ Based)
Sasyfras
WECAN
CFS-Severe
CFS-GLB
CDN-ME-FM (Canadian Based)
CFS-R
MEActionUK (UK Based)
uk.people.support.cfs-me (UK Based)
ME-NET (Netherlands Based)
CFIDS-L (alt.health.cfids-action)
PWC-INFO (Canadian Based)
CCFS
CFS-OPEN (alt.med.cfs.open)

FMS
Fibrom-L
alt.med.fibromyalgia
UK-FMS (UK Based)
[SPID] Liste fibromyalgie (French Based)

Youth (25 and under)
CFS-Y
CFS-20s
AYME (UK Based)

Caregivers
CFS-P
CFS-CARE
AYMEFRIENDS (UK Based)

Doctors/Medical Professionals
CFS-DOC
CFS-MED

Other
BookChat
MBS-Healing
CFS-W
CFS-Leaders (Aus/NZ Based)
CFS-WIRE
CATHAR-M

Electronic Newsletters

CFS-NEWS

File Servers

What are fileservers?

CFS-FILE
CFS-D
Other CFS Information Documents

Live Internet Chat

IRC
AOL

Mailing Lists & Newsgroups (Usenet)

What are Mailing Lists?
A Mailing List, is a community of like minded individuals, who communicate with each other via e-mail. When you want to send a message to the list, instead of having to send it to everyone, you just send it to the List's Server (a computer) and it will send copies of your message to everyone subscribed to that list.

To join a mailing list, you will need to subscribe. Usually this involves sending an e-mail to the list's subscription address, or subscribing via a web page. Then, usually you will receive a request to confirm that you want to join the list (as a security precaution). Finally, you will probably be sent a Welcome Message which contains information about List Commands, and the List Rules. Make sure you read this and keep it safe for future reference.

Usually Mailing Lists can only be read by those people subscribed, and have one or more people running the list and keeping an eye on things, so they tend to be more private and secure than Newsgroups, and because of this, tend to have a 'cosier' feel to them. However, some of the CFS Mailing Lists, such as CFS-L, are 'gated' to Usenet. This means, posts made to these gated mailing lists can be read by anyone with Usenet access, even those not subscribed to the list.

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What are Newsgroups (Usenet)?
In a way, Newsgroups are like Mailing Lists in as much as there is a central point where you can send your messages (articles), so that everyone on the Newsgroup can read them. However, Newsgroups are not private, and can be read and posted to by anyone with Usenet access. Not only this but articles sent to Newsgroups are publicly archived at places like DejaNews, so everyone in the world has access to anything you ever post to Usenet.

Some of the following CFS Newsgroups, are actually mailing lists, 'gated' to Usenet. What this means is that they work just like a mailing list, and you can receive your messages via e-mail if you want. However, you can also choose to receive your messages through the Newsgroup instead. Unlike normal Newsgroups, you will have to subscribe to these 'gated' Newsgroups. Therefor, although anyone in the world can see your posts, at least there is some control over who is posting to these types of lists.

Although you can use web based services such as DejaNews to view and post to Newsgroups, you are far better using Newsreader software. Newsreaders are quite common, and you have probably got one as part of your ISP's Software, or with you Web Browser.

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CFS Mailing Lists (Many also offer support for FMS, NMH, MCS, etc.)

Listname: CFS-20s
Title: CFS/ME/FM Discussion Group For Those In Their 20s
Subscription Address: listserv@maelstrom.stjohns.edu
Web Page: https://www.angelfire.com/me4/cfs20s/

CFS-20s is an e-mailing list for 20-somethings with CFIDS/CFS/ME, their spouses or significant others, and 20-somethings with CFIDS/CFS/ME-related conditions.

20-somethings begin to encounter a whole new range of CFIDS-related problems. These include (but are not limited to) marriage, engagement, dating (or not being able to date due to health), financial, schooling, and career problems. This will be the place to provide support and discuss hopes and fears relating to career options, schooling choices, personal relationships, sexual issues, financial woes, dependence on parents at a time one longs to be independent, etc. This will also be the place for the significant others of CFIDS patients to receive support, encouragement, and "coping" tips. It is a place for all involved to discuss experiences, frustrations, and fears, in addition to providing an environment to vent, ask questions, and receive help.

To subscribe, send the following command...

ADDRESS:   listserv@maelstrom.stjohns.edu
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe CFS-20s Yourfirstname Yourlastname

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Listname: CFS-L (linked to the alt.med.cfs newsgroup)
Title: CFS Patients discussion group
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU
Web Page: http://www.cfs-news.org/cfs-l.htm

This is a wide-ranging patients' discussion group on CFS which deals with medical treatments, disability benefits, coping and other issues. The group can be accessed either through Internet e-mail OR through Usenet as the newsgroup alt.med.cfs.

To subscribe to CFS-L, send the command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CFS-L YourFirstName YourLastName

For direct posting privileges to the newsgroup alt.med.cfs, register by sending the command...

ADDRESS:    LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:     [Leave this blank]
MESSAGE:    SUB CFS-L YourFirstName YourLastName
                      SET CFS-L NOMAIL

Read the newsgroup's Topics FAQ for the rules of participation.

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Listname: Co-Cure
Title: CFS/FM information exchange
Subscription Address: listserv@listserv.nodak.edu
Web Page: http://www.co-cure.org/

A mailing list open to individuals and groups who are interested, either professionally or personally, in information pertaining to CFS and FM. It's goals is to effectively distribute and exchange information between the medical/clinical, political, patient groups, as well as other organizations/institutions. Because of the overlap in symptom profiles, we also welcome as members those individuals interested in or affected by Multiple Chemical Sensitivity, Gulf War Syndrome, and auto-immune conditions. However, at least at this time, the list must limit the nature of the information suitable for posting to that which is directly relevant to CFS and FM.

To subscribe, send the command...

ADDRESS:   listserv@listserv.nodak.edu
SUBJECT:    [Leave this blank]
MESSAGE:   SUBSCRIBE CO-CURE YourFirstName YourLastName

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Listname: MEChat
Title: UK Based ME/CFS Discussion Group
Subscription Address: LISTSERV@LISTSERV.AOL.COM
Web Page: http://www.mechat.co.uk/

The ME Chat mailing list was created for people with ME/CFS in (or from) the UK and Europe, and their carers, friends and family. We discuss subjects more relevant to UK healthcare and politics, and not always acceptable on the 'big list' (alt.med.cfs / CFS-L).

To subscribe, send the command...

ADDRESS:   LISTSERV@LISTSERV.AOL.COM
SUBJECT:    [Leave this blank]
MESSAGE:   SUBSCRIBE MECHAT-L YourFirstName YourLastName

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Listname: OzME
Title: Australia and New Zealand CFIDS-Related Mailing List
Subscription Address: ozme-request@tertius.net.au
Web Page: http://www.tertius.net.au/mailman/listinfo/ozme

OzME is a mailing list for people with CFS/CFIDS/ME, FMS, MPS, or any other related illness like MCS. People who have some interest in these diseases - such as parents, children, spouses and carers - are also very welcome. The focus is on Australia and New Zealand - but those outside are also welcome to subscribe. Just be a aware that most of the messages will be related to Australia/NZ rather than to your area.

You can subscribe to OzME from this Web Page: http://www.tertius.net.au/mailman/listinfo/ozme

Or send the command...

ADDRESS:   ozme-request@tertius.net.au
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe your_e-mail_address

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Listname: OzME-Chat
Title: Australia and New Zealand CFIDS-Related Social Mailing List
Subscription Address: ozme-chat-request@tertius.net.au
Web Page: http://www.tertius.net.au/mailman/listinfo/ozme-chat

This is a sister list to OzME, set up to provide a social forum for it's members.

You can subscribe to OzME-Chat from this Web Page: http://www.tertius.net.au/mailman/listinfo/ozme-chat

Or send the command...

ADDRESS:   ozme-chat-request@tertius.net.au
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe your_e-mail_address

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Listname: Sasyfras
Title: CFS/ME patient discussion
Subscription Address: listserv@home.ease.lsoft.com
Web Page: http://www.cfids-me.org/sasyfras.html

An open e-mail discussion list; it is not gated to USENET and doesn't keep archives, so it's a bit more private than CFS-L. Sasyfras@home.ease.lsoft.com

To subscribe, send the following command...

ADDRESS:   listserv@home.ease.lsoft.com
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe sasyfras yourname

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Listname: WECAN
Title: WECAN, the Worldwide Electronic CFIDS/M.E. Action Network.
Subscription Address: membership@wecantogether.org
Web Page: http://www.wecantogether.org/

Our snailmail address is P.O. Box 805, Hockessin, DE 19707-0805; our telephone number is 302-239-6176. We "meet" by way of a private internet discussion list called WECAN, hosted by the commercial list-hosting site, best.com. Please read your welcome email and visit WECAN's web page for more information about how WECAN works.

When you join WECAN, you will be automatically subscribed to the list. It is a closed list -- only members can receive or send messages. It is NOT posted on USENET. The list is "pre-moderated" -- that is, a moderator will glance at the postings before they go out, to screen for flames, off-topic messages, repetitious messages, and spams.

We also have a second discussion list, called WECAN-Chat, that is used for support, friendship, humor, and general information, by the members of WECAN. Approximately half of the WECAN membership belongs to this second list. It is not formally moderated.

If you want to join, send us an email to membership@wecantogether.org. We'll send you a registration form to fill out, and you can join when you send it back.

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Listname: CFS-Severe
Title: CFS-Severe - For those with severe/long-term CFS/FMS/MCS/etc.
Subscription Address: cfs-severe-request@tertius.net.au
Web Page: http://www.tertius.net.au/mailman/listinfo/cfs-severe

CFS-Severe aims to create a place where people with severe CFS, Fibromyalgia, MCS, and related diseases can communicate and get support.

It's a place where people who are severely ill don't have to worry about "scaring" the newly-diagnosed with horror stories, and can feel like their issues are understood. It is -not- envisaged that educating list members about treatment options will be a large topic of discussion. Many of us have been sick for years and pretty much "know it all" on that score. There are also other places that treatments can be discussed, including CFS-L and OzME.

What's meant by "severe"? It's up to you, but here are some vague guidelines. You can't work or go to school more that a few hours a week, and that from home. You have been sick for 5 years or more. You need a walking stick, crutch, or wheelchair to get around. You are, or have been, substantially bedridden. You are on strong, possibly narcotic, painkillers.

You can subscribe to CFS-Severe from this Web Page: http://www.tertius.net.au/mailman/listinfo/cfs-severe

Or by sending the command...

ADDRESS:   cfs-severe-chat-request@tertius.net.au
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe your_e-mail_address

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Listname: CFS-GLB
Title: Gay/Lesbian/Bisexual CFS/ME discussion
Subscription Address: majordomo@queernet.org
Web Page: http://www.queernet.org/lists/cfs-glb.html

For the discussion of issues facing people in the Gay/Lesbian/Bisexual community who are afflicted with Chronic Fatigue Syndrome. Those with Fibromyalgia, Multiple Chemical Sensitivities, and Gulf War Syndrome are also welcome. It is a closed, unmoderated forum created to offer a gay-friendly and supportive atmosphere for the sharing of information pertaining to the many unique concerns that specifically affect these individuals. This list will provide a place to share experiences, vent frustrations and fears, ask questions, lend and receive help from each other, and hopefully form friendships in the process. Most information relevant to the GLB community is appropriate for the list, but discussion is certainly not limited to this specifically. While the list is geared toward the GLB community, it is open to all who are interested.

You can subscribe to CFS-GLB from this web page: http://www.queernet.org/lists/cfs-glb.html

Or by sending the following command...

ADDRESS:   majordomo@queernet.org
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe cfs-glb

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Listname: CDN-ME-FM
Title: Canadian ME/FM discussion
Subscription Address: LISTSERV@LISTSERV.NODAK.EDU
Web page:

This Canadian list has been established with the goal of exchanging Canadian information and support (personal, financial, legal, etc.) for those with Myalgic Encephalomyelitis (also Chronic Fatigue Syndrome) and Fibromyalgia, in the hope of finding a cure for these illnesses and solving the isolated situation that most sufferers find themselves in.

One of the primary ways in which these goals may be achieved is through effective distribution and exchange of information between the medical/clinical, political, patient groups, as well as other organizations/institutions. Therefore, the list is open to individuals and groups who are interested, either professionally or personally, in Canadian information pertaining to ME/CFS and FM. Because of similarities in symptom profiles, also welcome to participate are those individuals interested in or effected by Multiple Chemical Sensitivity (MCS), Gulf War Syndrome (GWS), and auto-immune conditions.

To subscribe, send the command...

ADDRESS:   LISTSERV@LISTSERV.NODAK.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUBSCRIBE CDN-ME-FM

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Listname: CFS-R
Title: CFS Recovery
Subscription Address: cfs-r-subscribe@onelist.com
Web page: http://cfsrecovery.freeservers.com/

This is a new list called CFS-R. It has been set up so that those who are recovering from CFS can discuss the troubles they face getting back to a normal life without making those that are still very ill feel uncomfortable.

To join this list you must be in the recovery stages of CFS or interested in being involved in discussions about recovery. If you are still very ill, but are interested in listening and participating, just bear in mind that discussions in here will revolve around people being active and problems that an extremely ill person may find petty. If you find the discussion is not to your liking, we can point you in the direction of many other mailing lists.

It will be an informal/unmoderated forum, but an eye will be kept on the content.

To subscribe, send the command...

ADDRESS:   cfs-r-subscribe@onelist.com
SUBJECT:    [Leave this blank]
MESSAGE:   [Leave this blank]

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Listname: MEActionUK
Title: UK Based ME Discussion Group
Subscription Address: http://www.onelist.com/community/MEActionUK

This list is dedicated to the discussion of the major issues surrounding the illness that is m.e.. Over the next two years we hope to see a change in the way we are treated. The aim of this group is to share views and knowledge about the issues that will effect us.... hopefully for the good! We are trying to add to that hope :o)

You can subscribe to the list from the web page: http://www.onelist.com/community/MEActionUK

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Listname: UPSCM (uk.people.support.cfs-me)
Title: UK Based ME/CFS Discussion Group
Newsgroup: uk.people.support.cfs-me
Web Page: http://www.dinkipix.co.uk/me/bed.htm

This unmoderated group is for discussion of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), and for the mutual support of sufferers and their carers, in the U.K. This allows for specific and general discussion of the illness, support services, treatment, and similar topics, together with personal concerns where these will interest other readers.

Announcements relevant to ME / CFS are permitted (e.g. forthcoming meetings, local support group details, charity contacts). Commercial advertising is forbidden, but readers may post requests for commercial information to be sent to them via e-mail.

Postings are welcome from people outside the U.K. provided they are relevant to U.K. readers.

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Listname: ME-NET
Title: Dutch language list for CFS/ME, Fibromyalgia and Lyme
Subscription Address: LISTSERV@HEARN.NIC.SURFNET.NL
Web Page: http://www.dds.nl/~me-net

This is Netherlands-based group which discusses and exchanges news about CFS, Fibromyalgia and Lyme Disease. The discussion is conducted mostly in Dutch and distributes postings nearly every day. The group's archives are available via web and gopher, and its web page provides very useful information.

To subscribe, send the command...

ADDRESS:   LISTSERV@HEARN.NIC.SURFNET.NL
SUBJECT:    [Leave this blank]
MESSAGE:   SUB ME-NET YourFirstName YourLastName

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Listname: CFIDS-L (linked to the alt.health.cfids-action newsgroup)
Title: Political advocacy issues for CFS/CFIDS/ME
Subscription address: LISTSERV@AMERICAN.EDU
Web Page: http://www.cais.net/cfs-news/cfids.htm

Political action discussion for CFS/CFIDS/ME. The group can be accessed either through Internet e-mail OR through Usenet as newsgroup alt.health.cfids-action.

For direct posting privileges to the newsgroup, register by sending the commands...

ADDRESS:   LISTSERV@AMERICAN.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CFIDS-L YourFistName YourLastName
                       SET CFIDS-L NOMAIL

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Listname: PWC-INFO
Title: Canadian CFS/ME discussion
Subscription address: PWC-INFO-REQUEST@HOME.EASE.LSOFT.COM

PWC-Info is a moderated list for Canadians, for discussion specific to the problems of Canadians with M.E., and general to the illness itself. Subscription is by listowner. For information about how to join, e-mail PWC-INFO-REQUEST@HOME.EASE.LSOFT.COM.

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Listname: CCFS
Title: Christian CFS Discussion Group
Subscription Address: http://www.onelist.com/community/ccfs
Web Page: https://www.angelfire.com/me2/ccfs/

Christian CFS (CCFS) is an email mailing list for intended for people who are Christians with CFS, however all others are welcome too. We provide a place for 'socialising' and support for Christian CFS sufferers with other people in the same health situation, who share the same beliefs and faith.

Subscribe to the list at: http://www.onelist.com/community/ccfs

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Listname: CFS-OPEN (linked to the alt.med.cfs.open newsgroup)
Title: Unmoderated CFS Discussion group
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU

This is an unmoderated CFS patients' discussion group. May contain heated debate. The group can be accessed either through Internet e-mail OR through Usenet as newsgroup alt.med.cfs.open.

For direct posting privileges to the newsgroup, register by sending the commands...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CFS-OPEN YourFirstName YourLastName
                      SET CFS-OPEN NOMAIL

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FMS Mailing Lists

Listname: Fibrom-L
Title: Fibromyalgia Discussion Group
Subscription Address: LISTSERV@MITVMA.MIT.EDU
Web Page: http://www.fibrom-l.org/default.htm

Individuals with fibromyalgia, their family members, health-care professionals, and any other interested persons are welcome to join this group. It is hoped that, through their interaction with the group, subscribers can better understand their symptoms, discover how others have coped with FM, and perhaps even avoid some of the frustrating doctor-hopping" so common among FM sufferers searching for answers and help.

To subscribe, send the following command...

ADDRESS:   LISTSERV@MITVMA.MIT.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB FIBROM-L FIRSTNAME LASTNAME

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Listname: AMF (alt.med.fibromyalgia)
Title: FM Discussion Group
Newsgroup: alt.med.fibromyalgia

Although AMF is part of the "MED" hierarchy, it now functions as a support group. This means you are welcome not only to post medical information and ask questions about FM, but also to vent, whine, cry, and laugh. There is usually a dry shoulder or two around in case you need one. You will notice that some people also post inspirational messages and jokes.

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Listname: UK-FMS
Title: UK Based Fibromyalgia Discussion Group
Subscription Address: http://www.lewolf.com/fms.htm
Web Page: http://www.lewolf.com/fms.htm

A UK support email list for Fibromyalgia. Subscribe from their home page: http://www.lewolf.com/fms.htm

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Listname: [SPID] Liste fibromyalgie
Title: French Based Fibromyalgia Discussion Group
Subscription Address: fibromyalgie@club.voila.fr
Web Page: http://club.voila.fr/group/fibromyalgie/fullinfo.html

Cette liste est destinée à favoriser les échanges entre les personnes qui sont concernées par le Syndrome de la FibroMyalgie (SFM). Elle a été ouverte par Thierry Raffin. Elle est administrée et animée par Courlu (Lucie).

This is a French discussion group for people with FM. It was created by Thierry Raffin and is managed by Courlu (Lucie).

Subscribe to the list at: http://club.voila.fr/group/fibromyalgie/fullinfo.html

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Youth (25 and under) Mailing Lists

Listname: CFS-Y
Title: CFS Youth Discussion group
Subscription address: CFS-Y-REQUEST@MAELSTROM.STJOHNS.EDU
Web Page: http://www.enabling.org/ia/cfs-y/

This group is for young people (generally 25 years and younger) who have CFS/CFIDS/ME.

To subscribe, send the following command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUBSCRIBE CFS-Y firstname lastname

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Listname: AYME
Title: UK Based ME/CFS Discussion Group AYME Members
Subscription Address: ayme-owner@onelist.com
Web Page: http://www.ayme.org.uk/theme5/maillist.html

NOTE: AYME is for Association of Youth with ME (AYME) members ONLY. AYME is a UK based M.E. Charity for young people aged 25 and below.

To subscribe, please send your full name and Date of Birth to: ayme-owner@onelist.com

For more information: http://www.ayme.org.uk/theme5/maillist.html

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Caregivers Mailing Lists

Listname: CFS-P
Title: Parents/Caregivers of YPWCs Discussion Group
Subscription Address: majordomo@tertius.net.au

CFS-P is an Emailing list for the parents (or caregivers) of young people with CFS/CFIDS/ME and related conditions.

Being a parent or caregiver of a young person with CFIDS/CFS/ME can be stressful and is often filled with questions and worries. CFS-P gives parents/caregivers a place to discuss their experiences, frustrations, and fears as a parent/caregiver of a YPWC, as well as providing an environment to vent, to ask questions, and to help and support other parents and caregivers.

To subscribe to CFS-P, sign up instantly at:
http://www.tertius.net.au/mailman/listinfo/cfs-p

Or send the command...

ADDRESS:   cfs-p-request@tertius.net.au
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe your_e-mail_address

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Listname: CFS-CARE
Title: Caregivers discussion
Subscription address: CFScare@aol.com
Web Page: http://wwcoco.com/cfs-care/

CFS-CARE is an Internet discussion group for caregivers of people with chronic fatigue syndrome, fibromyalgia, and other chronic illnesses. Topics include emotional support, communication, research, diagnosis and treatment, related illnesses, support mechanisms, community, and humor.

The discussion is conducted by electronic mail and is unmoderated, the atmosphere is supportive, and no topic is off limits or "incorrect". There's no charge to participate, and you can join or drop the list at any time. (Note: In order to encourage free expression on sensitive topics, the discussion is currently limited to caregivers.)

For more information, or to join, write to Greg Ross at CFSCare@aol.com.

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Listname: AYMEFriends
Title: UK Based Discussion Group For Parents/Caregivers/Friends of YPWMEs
Subscription Address: http://www.onelist.com/community/aymefriends

A mailing list for friends/parents/carers of members and anyone with an interest in ME. This may be limited to those interested in AYME at a later date.

To find out more about AYME visit: www.ayme.org.uk

You can subscribe to this list from: http://www.onelist.com/community/aymefriends

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Doctors/Medical Professionals Mailing Lists

Listname: CFS-DOC
Title: CFS discussion for doctors
Subscription address: CFS-DOC-REQUEST@LIST.NIH.GOV
Web Page: http://www.cais.net/cfs-news/doctors.htm

This is a private discussion group about CFS. Only medical doctors and doctors of osteopathy may participate.

To apply to join, send a request to CFS-DOC-REQUEST@LIST.NIH.GOV

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Listname: CFS-MED
Title: CFS discussion for health professionals
Subscription address: LISTSERV@LIST.NIH.GOV

This is a discussion group for health professionals. The group is not operative yet, and the rules about exactly who may participate have not been developed. Temporary subscriptions are available now until the group will become operative.

To subscribe, send the command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CFS-MED YourFirstName YourLastName

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Other Mailing Lists

Listname: BookChat
Title: CFS/ME/FMS Friendly Reading Group
Subscription Address: bookchat@altavista.net
Web Page: https://www.angelfire.com/bc/bookchat/

We are a friendly and informal book club or reading group, especially designed for people with CFS/ME/FM or related conditions. The group is run by a PWC (person with CFS), but anyone is welcome to join us whether they are ill or not. Friends and family members of PWC are particularly welcome, as are people suffering from similar illnesses.

To subscribe, send an e-mail, asking to be subscribed to BookChat, to: bookchat@altavista.net

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Listname: MBS-Healing
Title: "Mind-Body-Spirit-Healing" Discussion List
Subscription Address: LISTSERV@MAELSTROM.STJOHNS.EDU

This is a CFS-related discussion list. It is a list that discusses an energy approach to healing and mind/body/spirit-related topics.

To subscribe, send the command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe mbs-healing

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Listname: CFS-W
Title: Chronic Fatigue Syndrome Writers Mailing List
Subscription Address: cfs-w-request@tertius.net.au
Web Page: http://www.geocities.com/SoHo/Atrium/4232/cfs-w.html

E-mail forum where writers with CFIDS/ME, FMS and other related illnesses can talk about writing, share their own writing, and exchange ideas on coping with the symptoms of CFIDS (brainfog, fatigue) that can make writing difficult.

To subscribe to CFS-W, sign up instantly at:
http://www.tertius.net.au/mailman/listinfo/cfs-w

Or by sending the command...

ADDRESS:   cfs-w-request@tertius.net.au
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe your_e-mail_address

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Listname: CFS-Leaders
Title: Discussion Group For CFS/ME 'Leaders' In Australia
Subscription Address: cfs-leaders-request@tertius.net.au
Web Page: http://www.tertius.net.au/mailman/listinfo/cfs-leaders

CFS-Leaders is a discussion mailing list specifically for, CFS/ME support group leaders, CFS/ME website authors/owners, CFS/ME medical practitioners and researchers, CFS/ME e-mail list owners, CFS/ME telephone support counsellors, based in Australia and New Zealand.

You can subscribe to the list from it's Web Page: http://www.tertius.net.au/mailman/listinfo/cfs-leaders

Or by sending the command...

ADDRESS:   cfs-leaders-request@tertius.net.au
SUBJECT:    [Leave this blank]
MESSAGE:   subscribe your_e-mail_address

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Listname: CFS-WIRE
Title: CFS Newswire service
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU
Web Page:

This mailing list is an exchange of news articles among editors of newsletters for CFS patient groups. Some articles are posted by other organizations, and by individuals. Timely articles appear irregularly, perhaps several times a month through this mailing list. Subscription is open to all.

To subscribe, send the following command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CFS-WIRE YourFirstName YourLastName

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Listname: CATHAR-M
Title: Catharsis Magazine
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU

This is a monthly humanities magazine of personal health, intellect and creativity for the CFS/CFIDS/ME community. The magazine has been temporarily suspended until a new editor has been found.

To subscribe, send the following command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CATHAR-M YourFirstName YourLastName

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Electronic Newsletters

Listname: CFS-NEWS (linked to the bit.listserv.cfs.newsletter newsgroup)
Title: CFS-NEWS Electronic Newsletter
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU
Web Page: http://www.cais.net/cfs-news/cfs-news.htm

The CFS-NEWS Electronic Newsletter is issued between 1 and 4 times each month and focuses on medical issues about chronic fatigue syndrome. CFS-NEWS publishes timely reports on current research, medical conferences and medical publications. The newsletter is also available through the Fidonet CFS echo, available on many BBSs, and is transmitted through the Usenet newsgroup bit.listserv.cfs.newsletter.

To subscribe, send the command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   SUB CFS-NEWS YourFirstName YourLastName

For instructions on obtaining back issues, send...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   GET CFS-NEWS INDEX

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File Servers

What are fileservers?
Fileservers, are simply computers on the net, where information files are stored. You can retrieve this information, by sending a simple e-mail to the server with your request, and it will send you the results of your request back to you via e-mail.

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Listname: CFS-FILE
Title: CFS-FILE database of information files
Subscription address: LISTSERV@MAELSTROM.STJOHNS.EDU

This is a file database containing many medical articles, newsletters, etc. about or relating to CFS. To get a list of current files available, send the command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   GET CFS-FILE FILELIST

To retrieve specific files, note the filenames on the FILELIST and then send a command in the form of GET (filename1) (filename2) to the LISTSERV address (each file has a two-part name).

Example: GET CFS FAQ

For a more detailed discussion of the CFS-FILE fileserver, see the CFS Network Help file (to obtain a copy, send the command...

ADDRESS:   LISTSERV@MAELSTROM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   GET CFS NET-HELP

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Listname: CFS-D
Title: CFS-D file database
Subscription address: LISTSERV@HEALTH.STATE.NY.US

This file database is similar to the CFS-FILE fileserver described above, however it has fewer files. CFS-D contains individual back-issues of CFS-NEWS, some older articles, and special files used by the CFS Patients Discussion Group.

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Other CFS Information Documents

A few of these are stored at several Listserv sites, but all of them can be obtained by sending the command...

ADDRESS:   LISTSERV@SJUVM.STJOHNS.EDU
SUBJECT:    [Leave this blank]
MESSAGE:   GET filename1 filename2

The most useful files to get first...

.------------------------------------------------------------------------------------------,   
| filename1 | filename2 | Description                                                      |
|-----------|-----------|------------------------------------------------------------------|
|  CFS      |  INDEXA   | Complete list of basic CFS documents on-line.                    |
|  CFS      |  FAQ      | Answers to frequently asked questions about CFS.                 |
|  CFS      |  NET-HELP | Detailed info about CFS resources on Internet, Usenet, Listserv. |
|  CFS-NET  |  TXT      | About CFS on-line resources on all computer networks.            |
'-----------'-----------'------------------------------------------------------------------'

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Live CFS Related Internet Chat

IRC
To learn more about IRC, then take a look at our IRC FAQ where you will also find a list of all the available CFS/CFIDS/ME/FMS related channels.

AOL
America Online has scheduled CFS-related chats. For the weekly schedule e-mail TAV01@aol.com, Subject: AOL CFS Support Group.

Also America Online has live FMS-related chats. Visit http://members.aol.com/fmswebpage/talk/ftalka.html for weekly schedules.

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