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If you would like to share your comments please write to Ed
"Thank you so much for the wonderful emails you all have sent to me.
All of your information is very very helpful. I keep telling this disease I
am not going down easy, dang it.
You all will help me through it and I appreciate it sooooo much more than you
could ever know."
Monica, PAN patient
Welcome to the PAN group. You have found one of the best sources for information
on vasculitis.
The people here have probably been through every feeling and problem that you
are now encountering.
It's also an excellent resource for the researcher or medical specialist."
Dr. Eric Hoy, Immunologist
You have found the best site if you have Polyarteritis Nodosa. Remember fear
will only control what you let it. It has been a great resource and support
to know others feel and go through similar things as I. Quite a comfort to come
in here and talk and have my questions be answered. I was diagnosed in Feb.
2003 and I'm doing great. . The road ahead will only give you insight so climb
aboard and join us as we move forward together.
Don, PAN Patient
Every day you will be thankful that you found this group - the people here all share their PAN experiences and you realize that even tho no one else in your town has PAN, these folks can pretty much relate to what you are experiencing and feeling now.
Kay, Florida
Thank you! It is amazing the comfort I have now that I didn't have 5 years
ago, because of history and this support group!
Shelley in Texas
This support group is truly a Godsend - blessing, helping & touching PAN sufferers,
their familes & friends (as well as doctors & researchers) all over the world.
Thank You, Ed, and every one who is a part of this group, for your courage &
encouragement in the face of such a devastating illness.
My thoughts & prayers go out to all of you as we continue the fight to understand
& conquer a common enemy.
Katherine (in St. Louis)
I went to the main PAN site and read the stories to my husband who is a PAN
patient.
It was unbelievable how much I could see in his face.but I could just hug everyone
of you for what you did for Allen tonight."
Margaret, caregiver for PAN patient
After only one day of posting in this forum I am overwelmed by the love and
support of people I have never had the privelage to have met, who are willing
to share their experiences, it has certainly given me a more positive outlook
towards life for the future.
Ronnie, U.K.
"My attitude has really turned around since I found the group. My family is
happy and supportive for finding an organization such as yours. I don't feel
like an outsider anymore."
Kenny, PAN patient
Before this, I had never had any health problems, not even a broken bone. This
was a big adjustment for me, and as a minister I'm usually the one people come
to for help. I wasn't used to getting support from others. This group has helped
me immensely by being here for me to talk to, ask questions, and to remind me
that I'm not alone in this battle.
Darrin Gunnison, CO
Like others have said, I'm sorry if you needed to find this group. But you
have found a good one, for both support and info.
I've been in this group for 4 years. People have helped me so much.
Linda (RN and PAN patient.)
