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Submit Prayer Requests for sick, chronic, critical, and terminal children. You may follow the praying hands to submit a webpage of a child that is in need of our prayers, or go to the message forum to submit prayers on the board for children that do not have webpages. WebTV and Lower Browsers, please use this link to submit prayer requests for children. Thanks and God Bless. |
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Childhood Brain Tumor Foundation 20312 Watkins Meadow Drive Germantown, MD 20876 (301) 515-2900 http://www.monumental.com/cbtf/ Heightens public awareness of childhood brain tumors, funds clinical as well as basic scientific research, enhances efforts to develop safer and more effective therapies, and serves as an advocate for children disabled by this disease. |
Children's Brain Tumor Foundation 274 Madison Avenue Suite 1301 New York, NY 10016 (212) 448-9494 FAX: (212) 448-1022 http://www.cbtf.org CBTF raises funds for research programs and medical personnel training, hosts monthly parent support meetings in New York City; provides free resource guide for parents of children with brain and spinal cord tumors. |
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Pediatric Brain Tumor Foundation of the United States 315 Ridgefield Court Asheville, NC 28806 (800) 253-6530 * (828) 665-6891 e-mail: Ride4Kd@IBM.NET http://www.ride4kids.org The sole funder of the brain tumor registry, PBTF promotes awareness of brain tumors so increased funding for laboratory research will be available. |
Blood and Marrow Transplant (BMT) Newsletter 2900 Skokie Valley Road Highland Park,IL 60035 888-597-7674 847-433-3313 e-mail: help@bmtnews.org http://www.bmtnews.org |
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Candelighters Childhood Cancer Foundation 7910 Woodmont Avenue, Suite 460 Bethesda, MD 20814 (800) 366-2223 (301) 657-8401 e-mail: info@candlelighters.com http://www.candlelighters.org |
Children's Hospice International 2202 Mt. Vernon Ave. Suite 3-C Alexandria, VA 22301 (800) 242-4453 * (703) 684-0330 e-mail: chiorg@aol.com http://www.chionline.org |
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Cure for Lymphoma Foundation 215 Lexington Avenue New York, New York 10016-6023 (212) 213-9595 * FAX: (212) 213-1987 e-mail: InfoCFL@aol.com http://www.cfl.org |
Leukemia Society of America (CNS Lymphoma) 600 Third Avenue New York, NY 10016 (800) 955-4LSA * (212) 573-8484 FAX: (212) 856-9686 e-mail: infocenter@leukemia.org http://www.leukemia.org |
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Lymphoma Research Foundation of America 8800 Venice Blvd. Suite 207 Los Angeles, CA 90034 (310) 204-7040 * FAX: (310) 204-7043 e-mail: lrfa@aol.com http://www.lymphoma.org |
National Bone Marrow Transplant Link 29209 Northwestern Highway # 624 Southfield, MI 48034 (800) 546-5268 (810) 932-8483 FAX: (810) 932-8483 |
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National Cancer Institute Building 31, Room 10A24 Bethesda, MD 20892 Cancer Information Service and Physician Data Query 1-800-4CANCER http://cis.nci.nih.gov |
Neuroblastoma Children's Cancer Society P.O. Box 957672 Hoffman Estates, IL 60195 (800) 532-5162 (847) 490-4240 * FAX: (847) 490-0705 http://www.granitewebworks.com/nccs.htm |
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American Society for Deaf Children 814 Thayer Avenue Silver Spring, MD 20910 (800) 942-2732 e-mail: ASDCl@aol.com |
American Speech-Language-Hearing Association 10801 Rockville Pike Rockville, MD 20852 (800) 638-8255 * FAX: (301) 897-7348 http://www.asha.org |
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Brain Injury Association, Inc. 105 North Alfred Street Alexandria, VA 22314 (703) 236-6000 FAX: (703) 236-6001 e-mail: biahelp@biausa.org http://www.biausa.org |
Cushing's Support and Research Foundation (Cushing's Syndrome) 65 East India Row, #22B Boston,MA 02110-3389 (617) 723-3674 http://world.std.com/~CSRF |
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The Diabetes Insipidus Foundation, Inc. c/o Marion and Joe Arminger 4533 Ridge Drive Baltimore, MD 21229 (410) 247-3953 e-mail: diabetesinsipidus@maxinter.net http://diabetesinsipidus.maxinter.net |
Epilepsy Foundation of America 4351 Garden City Drive Landover, MD 20785-2267 (800) 332-1000 * FAX: (301) 577-4941 http://www.epilepsyfoundation.org |
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Hydrocephalus Association 870 Market Street, Suite 955 San Francisco, CA 94102 (415) 732-7040 Operates listserv HYCEPH-L http://www.HydroAssoc.org e-mail: hydroassoc@aol.com |
Hydrocephalus Foundation, Inc. 910 Rear Broadway Saugus, MA 01906 (617) 942-1161 FAX: (617) 231-5250 http://www.hydrocephalus.org |
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Let's Face It (Facial difference) Box 29972 Bellingham, WA 98228-1972 (360) 676-7325 e-mail: letsfaceit@faceit.org http://www.faceit.org/~letsfaceit/ 50 page resource list published annually; available for cost of postage. |
International Radiosurgery Support Association P.O. Box 60950 Harrisburg, PA 17106-0950 (717) 671-1701 * FAX: (717) 671-1703 e-mail: intouch@irsa.org http://www.irsa.org |
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Hydrocephalus Research Foundation 1670 Green Oak Circle Lawrenceville, GA 30243 (770) 995-9570 FAX: (770) 995-8982 |
National Aphasia Association 156 Fifth Avenue, Suite 707 New York, NY 10010 (800) 922-4622 * FAX: (212) 989-7777 e-mail: klein@aphasia.org http://www.aphasia.org |
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National Ataxia Foundation 2600 Fernbrook Lane, Suite 119 Minneapolis, MN 55447 (612) 553-0020 * FAX: (612) 553-0167 e-mail: naf@mr.net http://www.ataxia.org |
National Association for
Parents of the Visually Impaired P.O. Box 317 Watertown, MA 02272-0317 (800) 562-6265 * FAX: (617) 972-7444 |
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National Center for Learning Disabilities, Inc. 381 Park Avenue South, Suite 1420 New York, NY 10016 (888) 575-7373 * (212) 545-7510 http://www.ncld.org |
National Chronic Pain Outreach Association, Inc. (NCPOA) P.O. Box 274 Millboro, VA 24460 (540) 997-5004 * FAX: (540) 997-1305 email: NCPOA1@aol.com |
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National Family Caregivers Association 9621 East Bexhill Drive Kensington, MD 20895-3104 (800) 896-3650 * FAX: (301) 942-2302 e-mail: info@nfcacares.org http://www.caregiver.com |
National Institute on Deafness and Other Communication Disorders National Institutes of Health Building 31, Room 3C35 Bethesda, MD 20892-2320 (800) 241-1044 FAX: (301) 907-8830 e-mail: nidcd@aerie.com http://www.nih.gov/nidcd |
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National Library Service for the Blind and Physically Handicapped 1291 Taylor Street NW Washington, DC 20542 (202) 707-5100 FAX: (202) 707-0712 e-mail: NLS@loc.gov http://lcweb.loc.gov/nls |
National Neurofibromatosis Foundation 95 Pine Street, 16th Floor New York, NY 10005 (800) 323-7938 * (212) 344-6633 FAX: (212) 747-0004 e-mail: nnff@aol.com http://www.nf.org |
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National Organization for Rare Disorders, Inc. (NORD) P.O. Box 8923 New Fairfield, CT 06812-8923 Telephone: (203) 746-6518 Toll-Free (800) 999-6673 Fax: (203) 746-6481 e-mail: orphan@rarediseases.org http://rarediseases.org |
National Rehabilitation
Information Center 1010 Wayne Avenue, Suite 800 Silver Spring, MD 20910 (800) 346-2742 * (301) 562-2400 http://www.naric.com |
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National Tuberous Sclerosis Association 8181 Professional Place Suite 110 Landover, MD 20785-2226 (800) 225-6872 * (301) 459-9888 e-mail: ntsa@ntsa.org http://www.ntsa.org |
Neurofibromatosis, Inc. 8855 Annapolis Rd. Suite 110 Lamham, MD 20706-2924 (800) 942-6825 * (301) 577-8984 FAX: (301) 577-0016 e-mail: NFINC@gnn.com http://www.nfinc.org |
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Neuropathy Association (Peripheral neuropathy) P.O. Box 2055, Lennox Hill Station New York, NY 10021 (800) 247-6968 * FAX: (212) 692-0668 e-mail: info@neuropathy.org http://www.neuropathy.org |
NIH Neurological Institute (NINDS) National Institutes of Health Building 31, Room 8A16 Bethesda, MD 20892-2540 (800) 352-9424 (301) 496-5751 http://www.ninds.nih.gov |
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NIH Office of Rare Diseases National Institutes of Health 31 Center Drive, MSC 2082 Room 1B03 Bethesda, MD 20892-2082 (301) 402-4336 * FAX (301) 402-0420 e-mail: sg18b@nih.gov http://rarediseases.info.nih.gov/ord/ |
Pseudotumor Cerebri Society 750 East Adams Street Syracuse, NY 13210 (315) 464-3937 e-mail: mtanay@aol.com |
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St. Jude Children's Research Hospital - Memphis, TN http://www.stjude.org/brain |
Southeastern Brain Tumor Foundation http://groups.accessatlanta.com/sbtf |
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Southwest Oncology Group (SWOG) maintains a website listing their clinical trials. http://www.oo.saci.org/brain3.html |
University of Chicago Department of Neurology http://ucneurology.uchicago.edu/index.html |
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Kid's Home (NCI's home page for Children with cancer) http://wwwicic.nci.nih.gov/occdocs/KidsHome.html |
PDQ (Physician's Data Query) - is a database produced by the National
Cancer Institute. http://cancernet.nci.nih.gov/trials |
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Jim Kenzig's site - Information on Brain Stem Tumors http://www.zoner.net/zoned/index.cfm |
Johns Hopkins Radiosurgery http://www.med.jhu.edu/radiosurgery |
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Epilepsy Foundation of America http://www.efa.org |
Hydrocephalus Association http://neurosurgery.mgh.harvard.edu/ha/ |
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Childhood Cancer Group(CCG) - A listing of CCG protocols is available
at this National Childhood Cancer Foundation website. http://www.nccf.org/nccf/ccg_who.htm |
Dana BrainWeb: Great Sites for Information on Brain Diseases and
Disorders http://www.dana.org/brainweb |
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CANSEARCH: A GUIDE TO CANCER RESOURCES - A Guide to Cancer Resources on the Internet, courtesy of
the National Coalition for Cancer Survivorship http://www.access.digex.net/~mkragen/cansearch.html |
Cedars-Sinai Hospital Neurosurgical Institute - A neurosurgical center for brain tumors http://www.csmc.edu/nsi/ |
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Cancerlinks - Searching the web for information http://www.cancerlinks.org |
Cancer News on the Net -
A comprehensive online cancer guide http://www.cancernews.com |
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Cancer Hope Network is a not-for-profit organization that provides free and confidential
one-on-one support to cancer patients and their families http://www.cancerhopenetwork.org |
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People sharing a common interest in an illness or another subject can communicate with one another using a list serv, a simple way to use the Internet. Participants send e-mail to a special address which forwards the message to all group members. The "discussion" does not occur live but develops from a series of topic-oriented messages sent and received over a period of time. You will receive several e-mail messages daily as long as you subscribe to the list. Three such groups are described below: BRAINTMR is a forum to discuss topics related to all types of brain tumors, whether benign or malignant. To subscribe, send a message from your e-mail account to: listserv@mitvma.mit.edu The text of your message should read: subscribe BRAINTMR <your name> Example: subscribe BRAINTMR Jane Doe EPILEPSY-L is an e-mail based support group for people with seizure disorders. Complete information is available at the Epilepsy List web page http://home.ease.lsoft.com/Archives/Epilepsy-L.html. HYCEPH-L is an information and support forum for hydrocephalus. To subscribe, send e-mail to: listserv@vm.utcc.utoronto.ca Text: subscribe HYCEPH-L <your name> Other Listserv mailing lists include DISABILITIES, CANCER-L, the Hem-Onc listserv (includes CNS Lymphoma), HOSPIC-L and bmt-talk; some of these are described in detail in the NCCS CANSEARCH guide mentioned above; many can be accessed through ONCOLINK's Automated E-mail Discussion Group Subscriber.
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