Autism Resources
You
will find some resources below that are mostly for the United States. Some of these I have used and others were given to me.
It is hard to get money to help pay for expenses. Try your insurance, school district
(some give money to families for a home trainer), Social Security Disability Income (SSI),
and your local department of health. Rally your state government to consider bills to help families
pay for therapy. E-mail your state representatives, send them pictures of your children,
and have your local Autism Society meet with them.
Please let me know of other suggestions. Check out the Autism Links page to see resources
on the Internet.
PAGE CONTENTS:
STATE
RESOURCE CENTERS
AUTISM
RESOURCES-US & WORLD
AUTISM
PUBLICATIONS
LIFE
- LOVAAS INSTITUTE FOR EARLY INTERVENTION
RESOURCES:
BOOKS & ARTICLES
LAWSUIT & VACCINE INFORMATION
STATE
RESOURCE CENTERS
Alabama
Alabama's Early Intervention System
2127 East South Boulevard
P.O. Box 11586
Montgomery, AL 36116-0586
Phone: 800-543-3098 or 334-613-2394
TTY Phone: 800-548-2546
Fax: 334-613-3494
Alaska
Healthy Alaskan's Info Line
701 East Tudor Road, Room 280
Anchorage, AK 99503-7445
Phone: 800-478-2221 or 907-343-6718
Arizona
Arizona Children's Information Center
Arizona Department of Health Services
411 North 24th Street
Phoenix, AZ 85008
Phone: 800-232-1676 or 602-220-6570
Arkansas
Arkansas Early Intervention
Department of Human Services
Developmental Disabilities Services
P.O. Box 1437, Slot 2520
Little Rock, AR 72203-1437
Phone: 800-643-8258 or 501-682-8699
TTY Phone: 501-682-1337
Fax: 501-682-8687
California
Early Start
California Department of Development Services
1600 9th Street, Room 310
Sacramento, CA 85814
Phone: 800-515-BABY or 916-654-2773
TTY Phone: 916-654-2054
Fax: 916-654-2271
Colorado
Birth to Age Three (El Paso County Only)
Resources for Young Children and Families
201 East Colfax, Room 305
Denver, CO 80203
Phone: 888-777-4041 or 303-866-6667
Fax: 303-866-6662
Connecticut
Birth- To - Three Info Line
1344 Silas Dean Highway
Rocky Hill, CT 06067
Phone: 800-505-7000 or 860-571-7556
TTY Phone: 860-571-7556
Fax: 860-571-7525
Delaware
Child Development Watch
2055 limestone Road, Suite 201
Wilmington, DE 19808
Phone: 800-671-0050 or 302-995-8617
New Castle: 800-671-0050
Kent and Sussex Counties: 800-752-9393
Fax: 302-995-8363
District of Colombia
DC Early Intervention Program Department of Human Services
609 H Street NE, 5th Floor
Washington, DC 20002
Phone: 202-727-1829
Fax: 202-727-9709
Florida
Florida Children's Forum
2807 Remington Green Circle
Tallahassee, FL 32308
Phone: 800-654-4440 or 850-921-5444
TTY Phone: 800-654-4440
Fax: 850-681-9816
Georgia
Parent To Parent of Georgia Inc.
2872 Woodcock Boulevard
Suite 230
Atlanta, GA 30341
Phone: 770-451-5484
Voice /TTY Phone: 800.-229-2038
Fax: 770-458-4098
Hawaii
Hawaii Keiki Information Service System
Zero to Three Hawaii Project (H-Kiss)
1600 Kapiolani boulevard
Suite 1401
Honolulu, HI 96814
Voice/TTY phone: 800-235-5477 or 808-955-7273
Fax: 808-946-5222
Idaho
Idaho Careline
P.O. Box 83720
Boise, ID 83720-0036
TTY phone: 208-332-720
Fax: 208-334-5531
Illinois
Help Me Grow Helpline
2501 North Kirsken Parkway
Springfield, IL 32702
Voice/ TTY phone: 800323-4769 or 217-557-3887
Fax: 217-557-3777
Indiana
Bureau of child Development
402 West Washington Street, Room W386
Indianapolis, IN 46204
Phone: 800-441-7837 or 317-232-2429
Fax: 317-232-7948
Iowa
Iowa Compass
S277 Hospital School
100 Hawkins Drive
Iowa City, IA 52242-1011
Voice/TTY Phone: 800-779-2001 or 319-353-8777
Fax: 319-356-1343
Email : iowa-compass@uiowa.edu
Web site: www.medicine.uiowa/edu/iowacompass
Kansas
Kansas Make a Difference Info Network
Kansas department of Health and Environment
Landon State Office Building, 10th Floor
900 SW Jackson Street
Topeka, KS 66612-1290
Phone: 800-332-6262
Voice/TDD phone: 785-296-1317
Fax: 785-296-8616
Kentucky
First Steps
Kentucky Early Intervention System
Division of Mental Retardation
100 Fair Oak Lane 4E-E
Frankfort, KY 40621-0001
Phone: 800-442-0087 or 502-564-7722
Fax: 502-564-0438
Louisiana
Louisiana Disabilities Info Access Line
200 Lafayette, 4th Floor
Baton Rouge, LA 70801
Phone: 800-922-3425 or 225-342-7700
TTY phone: 225-342-5704 or
800-256-1633
Fax: 225-342-1970
Web site: http://www.laddc.org
Maine
Department of Education
Child Development Services, State
House Station 146
Augusta, ME 04333
Phone: 207-287-3272
Fax: 207-287-3884
Maryland
Governor's Office for Children, Youth, and
Families
301 West Preston Street, 15th Floor
Baltimore, MD 21201
Phone: 800-535-0182 or 410-767-4027
TTY phone: 410-767-8117
Fax: 410-333-5248
Massachusetts
Early Intervention Services
Department of Public Health
250 Washington Street, 4th Floor
Boston, MA 02108-4619
Phone: 617-624-5969
Fax: 617-624-5990
Michigan
Early On
Michigan 4C Association
2875 Northwind Drive, Suite 200
East Lansing, MI 48823
Voice/TTY phone: 800-327-5966 or
517-351-4171
Fax: 517-351-0157
Minnesota
Pacer Center
4826 Chicago Avenue South
Minneapolis, MN 55417-1098
Voice/TTY phone: 800-534-2237 or
612-827-2966
Fax: 612-827-3065
Mississippi
Parent Partners
1900 North West Street, Suite C-100
Jackson, MS 39202
Phone: 800-366-5707 or 601-714-5707
Fax: 601-714-4025
Missouri
Missouri Parent's Act (MPACT)
2100 South Brentwood, Suite G
Springfield, MO 65804
Phone: 800-743-7634 or 417-882-7434
Montana
Family Support Services Info Network-
Parents, Let's Unite for Kids
516 North 32nd Street
Billings, MT 591014-6003
Voice/TTY phone: 800-222-7585 or
406-255-0540
Fax: 406-255-0523
Nebraska
Nebraska Child Find
5143South 48th Street, Suite c
Lincoln, NE 68516-2204
Voice/TTY phone: 888-806-6287 or
402-471-0734
Fax: 402-471-6052
Nevada
Nevada Project Assist
P.O. Box 70247
Reno, NV 89570-0247
Phone: 800-522-0066 or
775-688-2819
TTY phone: 775-688-2818
Fax: 775-688- 2558
New Hampshire
Infants and Toddlers Program
State Office Park South
105 Pleasant Street
Concord, NH 03301
Phone: 800-298-4321 or
603-271-7931
Fax: 603-271-6826
New Jersey
Early Intervention Program
State Office on Disability Services
P.O. Box 364
Trenton, NJ 08625-0364
Voice/TTY phone: 888-285-3036 or
609-292-7800
Fax: 609-292-3580
New Mexico
Baby Net
Info Center for New Mexicans with
Disabilities
435 St. Michaels Drive, Building D
Santa Fe, NM 87505
Phone: 800-552-8195 or 505-827-7596
TTY phone: 800-552-8195
Fax: 505-827-7589
New York
New York Office of Advocates for
Persons with Disabilities
One Empire State Plaza, Suite 1001
Albany, NY 12223-1150
Phone: 800-522-4369 or 518-474-5567
TDD: 518-473-4231
Fax: 518-473-6005
North Carolina
Family Support Network of NC
CB #7340
UNC at Chapel Hill
Chapel Hill, NC 27599-7340
Voice/TTY phone: 800-852-0042 or
919-966-2841
Fax: 919-966-2916
North Dakota
Developmental Disabilities Unit
Department of Human Services
600 South Second Street, Suite 1A
Bismark, ND 58504-5729
Phone: 800-755-8529 or 701-328-8930
Fax: 701-328-8969
Ohio
Ohio Coalition for the Education of
Children with Disabilities
Bank One Building
165 West Center Street, Suite 302
Marion, OH 43302-3741
Voice/TTY phone: 800-374-2806 or
740-382-5452
Fax: 740-383-6421
Oklahoma
Oklahoma Areawide Service Information
System (OASIS)
Oklahoma Univ. Health Sciences Center
4545 North Lincoln Boulevard
Suite 284
Oklahoma City, OK 73105
Voice/TTY phone: 800-426-2747 or
405-271-6302
Fax: 405-521-1452
Oregon
Oregon Department of Education
Public Services Biulding
255 Capitol Street NE
Salem, OR 97310
Phone: 503-378-3598, ext.637
TTY phone: 503-378-2892
Fax: 503-373-7968
Pennsylvania
Parent to Parent
150 South Progress Avenue
Harrisburg, PA 17109
Phone: 800-986-4550 or 717-540-4722
Fax: 717-540-7603
Rhode Island
Division of Family Health
State Department of Health
Three Capitol Hill
Cannon Building, Room 302
Providence, RI 02908-5097
Phone: 800-464-3399 or 401-222-4612
Fax: 401-222-1442
South Carolina
South Carolina Babynet Central Directory
Center for Disability Resources
USC School of Medicine
Columbia,SC 29208
Voice/TTY phone: 800-922-1107 or
803-935-5300
Fax: 803-935-5300
South Dakota
South Dakota Part C Central Directory
Dept. of Education and Cultural Affairs
700 Governors Drive
Pierre, SD 57501-2291
Phone: 800-529-5000 or 605-773-4478
Fax: 605-773-6846
Tennessee
Tennessee Early Intervention System
2147 Belcourt Avenue, Suite 200
Nashville, TN 37212
Phone: 800-852-7157 or 615-936-1849
Fax: 615-936-1852
Texas
Texas Interagency Council on Early
Childhood Intervention (ECI)
Intervention Program
4900 N. Lamar Boulevard
Austin, TX 78751
Phone: 800-250-2246 or 512-424-6785
Fax: 512-424-6799
Utah
Access Utah Network
555 East 300 South, Suite 201
Salt Lake City, UT 84102
Voice/TTY phone: 800-333-8824 or
801-533-4636
Fax: 801 533 5305
AUTISM
RESOURCES-US & WORLD
United
States
Access to Respite Care and Help (ARCH)
Chapel Hill Training-Outreach Project
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
Phone: 800-473-1727 or 919-490-5577
Fax: 919-490-4905
E-mail: Ylayden@intrex.net
Web site: http://www.chtop.com/archbroc.htm
ACRES National Headquarters
(American Council on Rural Special Education)
Kansas State University
2323 Anderson Avenue
Suite 226
Manhattan, KS 66502
Phone: 785-53-ACRES
Fax: 785-532-7732
E-mail: acres@k-state.edu
Web site: http://www.ksu.edu:8000/acres/contact.html
Austin Autoimmunity Project
45 Iroquois Avenue
Lake Hiawatha, NJ 07034
Phone: 973-299-9162
Fax: 973-299-2668
E-mail: truegrit@gti.net
Austin Research Institute
4182 Adams Avenue
San Diego, CA 92116
Phone: 619-281-7165
Fax: 619-563-6840
Web site: http://www.austism.com/ari
The Austin Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
Phone: 800-3AUTISM, ext. 150 or 301-657-0881
Fax: 301-657-0869
Web site: http://www.autism-society.org
Center for the Study of Austin
P.O. Box 4538
Salem, OR 97302
Phone: 503-538-9045
Web site: http://www.autism.org
COSAC (Center for Outreach and Services
for the Austin Community)
1450 Parkside Avenue, Suite #22
Ewing, NJ 08638
Phone: 609-883-8100
Fax: 609-883-5509
E-mail: Njautism@aol.com
Web site: http://members.aol.com/njautism
The Council for Exceptional Children
1920 Association Drive
Reston, VA 20191-1589
Phone: 888-CEC-SPED or 703-620-3660
TTY phone: 703-264-9446
Fax: 703-264-9494
Web site: http://www.cec.sped.org/index.html
The Doug Flutie Jr. Foundation for Autism
c/o The Giving Back Fund
54 Canal Street, Suite 320
Boston, MA 02114
Phone: 617-556-2820
Fax: 617-973-9463
E-mail: giveback@ma.ultranet.com
Web site: http://www.dougflutie.org
The HANDLE Institute (Holistic Approach to
NeuroDevelopment and Learning Efficiency)
1530 Eastlake Avenue East, Suite 100
Seatle, WA 98102
Phone: 206-860-2665
Fax: 206-860-3505
E-mail: support@handle.org
Web site: http://www.handle.org
Indiana Resource Center for Autism
Indiana Institute on Disability and Community
2853 East Tenth Street
Bloomington, IN 47408-2696
Phone: 812-855-6508
TTY phone: 812-855-9396
Fax: 812-855-9630
E-mail: bowman@indiana.edu
Web site: http://www.isdd.indiana.edu/~irca
International Rett's Syndrome Association
9121 Piscataway Road
Clinton, MD 20735
Phone: 800-818-RETT or 301-856-3334
Fax: 301-856-3336
E- mail: irsa@rettsyndrome.org
Web site: http://www.rettsyndrome.org
The National Fragile X Foundation
P.O Box 190488
San Francisco,CA 94119
Phone: 800-688-8765 or 510-763-6030
Fax: 510-763-6223
Web site: http://www.nfxf.org
National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield,CT 06815-8923
Phone: 800-999-6673 or 203-746-6518
Fax: 203-746-6481
E-mail: orphan@raredieases.org
Web site: http://www.raredieasaes.org
STOMP (Specialized Training of Military Parents)
6316 South 12th Street
Tacoma,WA 98465-1900
Voice/TTY phone: 800-5-parent or 253-565-2266 (Military parents can call collect
from anywhere in the U.S. or overseas)
Fax: 253-566-8052
E-mail: wapave9@washingtonpave.com
Web site: http://washingtonpave.org/stomp.html
INTERNATIONAL
Allergy induced Autism (AiA)
8, Hollie Lucas Road
King's Heath
Birmingham B13 0QL UNITED KINGDOM
Phone: 44-0-173-33-1771
Fax: 44-0-121-444-6450
E-mail: aia@kessick.demon.co.uk
Web site: http://wwwkessick.demon.co.uk/aia.html
Autism France
182 avenue des Jasmins
06250 Mougins
FRANCE
Phone: 04-93-46-00-48
Numero azur: 0810-179-179
Fax: 04-93-46-01-14
Autism Europe
Avenue E. Van Becelaere 26B, Bte. 21
B-1170 Brussels, BELGUIM
Phone: 32-0-2-675-75-05
Fax: 32-0-2-675-72-70
E-mail: autisme.europe@arcadis.be
Web site: http://osiris.sunderland.ac.uk/autism.eur.html
Autism Society of British Columbia
Suite 200---3550 Kingsway
Vancouver, B.C. V5R 5L7 CANADA
Phone: 888-437-0880 or 604 -434 -0880
Fax: 604 - 434 - 0801
E-mail: autismbc@istar.ca
Web site: http://www.enet.ca/austim
Autism Society of Canada
129 Yorkville Avenue, #202
Toronto, Ontario M5R 1C4 CANADA
Phone: 416-922-0302
Fax: 416-922-1032
Autism Society of Ontario
1 Greensboro Drive, Suite 306
Etobicoke, Ontario M9W 1C8 CANADA
Phone: 416-246-9592
Fax: 416-246-9417
E-mail: mail@autismsociety.on.ca
Web site: http://home.tct.net/autism/
Gateway Provincial Resource Program
4812 Georgia Street
Delta, B.C. V4K 259 CANADA
Phone: 604 - 946-3610
The Geneva Centre for Autism
200-250 Davisville Avenue
Toronto, Ontario M4S 1H2 CANADA
Phone: 416-322-7877
Fax: 416-322-5894
E-mail: info@autism.net
Web site: http://www.autism.net
The National Autism Society
393 City Road London, EC1V 1NG UNITED KINGDOM
Phone: 44 -0-20-7833-2299
Fax: 44 - 0-20-7833-9666
E-mail: nas@nas.org.uk
Web site: http://www.oneworld.org/autism_uk
PAPA Resource Centre (Parents and Professionals and Autism)
Graham House
Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH IRELAND
Phone: 44 -0-1232-401729
Fax: 44 - 0-1232-403467
Pro Aid Autisme (AFPPA)
42 rue Benard
75014 Paris FRANCE
Phone/fax: 01-45-41-52-93
Sesame Autisme
53 rue Clisson
75013 Paris. FRANCE
Phone: 01-44 - 24 - 50-00
Fax: 01-53-61-25-63
AUTISM
PUBLICATIONS
The Advocate
Published by the Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda. MD 20814 - 3015
Phone: 800-3AUTISM,ext.150 or 301-657-0881
Fax: 301-657-0869
Web site: http://www.Autism-society.org
Autism Autoimmunity Project Newsletter
Published by the Autism Autoimmunity Project
45 Iroqouis Avenue
Lake Hiawatha, NJ 07034
Phone: 973-299-9162
Fax: 973-299-2668
E-mail: truegrit@gti.net
Autism Research Review International
Published by the Autism Research Institute
4182 Adams Avenue
San Diego, CA 92116
Phone: 619-281-7165
Fax: 619-563-6840
Web site: http://www.autism.com/ari
Closing the Gap
526 Main Street
P.O. Box 68
Henderson, MN 56044
Phone: 507-248-3294
Fax: 507-248-3810
E-mail: closingthegap.com
Web site: http://wwwclosingthegap.com/index.html
This newsletter is about hardware and software products for the disabled
Exceptional Parents
555 Kinderkamack Road
Oradell, NJ 07649-1517
Phone: 201-634-6550
Fax: 201-634-6599
E-mail: vieprnt@concentric.net
Web site: http://www.eparent.com
Included in the yearly subscription is an annually update resource guide
FEAT Daily Online Newsletter
To subscribe (no cost):
http://wwwfeat.org/FEATNews
This on-line newsletter will send only
Two e-mail messages per day concerning features and breaking news in the world
of autism
Journal of Autism and Developmental Disorders
Published by Plenum Publishing Co.
233 Spring Street
New York, NY 10013-1578
Phone: 212-620-8000
Fax: 212-463-0742
E-mail: info@plenum.com
Web site: http://plenum.com
The MAAP
Published by MAAP (More Advanced Individuals with Autism, Asperger's Syndrome,
and Pervasive Development Disorders)
MAAP Services, Inc.
P.O. Box 524
Crown Point, IN 46307
Phone: 219-662-1311
Fax: 219-662-0638
E-mail: chart@netnitco.net
Web site: http://www.netnitco.net/users/chart/maap.html
NAARRATIVE
Published by the National Alliance for Autism Research (NAAR)
414 Wall Street
Research Park
Princeton, NJ 08540
Phone: 888-777-NAAR- or 609-430-9160
Fax: 609-430-9163
E-mail: naar@naar.org
Web site: http://www.naar.org
RESEARCH
Austin Genetic Resource Exchange
(AGRE)
5225 Wilshire Boulevard
Los Angeles, CA 90036
Phone: 888-AUTISM2
Fax: 831-648-0240
E-mail: familyagre@aol.com
Web site: http://www.hbdi.org/autisresearch2html.htm
Austin Research Foundation
P.O Box 1571 GMF
Boston, MA 02205
Phone: 617-414-5286
Fax: 617-414-7207
E-mail: tarf@Ladders.org
Web site: http://ladders.org/tarf/
Austin Research Unit
School of Health Sciences
University of Sunderland
Sunderland SR2 7EE
Untied Kingdom
Phone/fax: 44-0-191-510-8922
E-mail: aru@suderland.ac.uk
Web site: http://osiris.sunderland.ac.uk/autism/index.html
The Cure Austin Now Foundation
(CAN)
5225 Wilshire Boulevard, Suite 226
Los Angeles, CA 90036
Phone: 888-8AUTISM or 323-549-0500
Fax: 323-549-0547
E-mail: CAN@primente.com
Web site: http://www.canfoundation.org
Medical Investigation of Neurodevelopmental Disorder
(M.I.N.D)
UC Davis Medical Street, Room 3020
Sacramento, CA 95817
Phone: 888-883-0961 or 916-734-5153
E-mail: andrea.verdon@ucdmc.ucdavis.edu
Web site: http://mindinsitute.ucdmc.ucdavis.edu
Mount Sinai School of Medicine
Seaver Autism Research Center
Department of Psychiatry. Box 1230
1 Gustave L. Levy Place
New York, NY 10029
Phone: 212-241-2994
Fax: 212-987-4031
E-mail: E_Hollander@smtplink.mssm.edu
Web site: http://www.mssm.edu/psychiatry/seaver.html
National Alliance for Austin Research
(NAAR)
414 Wall Street
Research Park
Princeton, NJ 08540
Phone: 888-777-NAAR or 609-430-9160
Fax: 609-430-9163
E-mail: naar@naar.org
Web site: http://www.naar.org
National Institute of Child Health and Human Development
P.O Box 3006
Rockville, MD 20847
Phone: 800-370-2943
Fax: 301-984-1473
E-mail: NICHDClearinghouse@iqsolutions.com
Web site: http://www.nichd.nih.gov/
Southwest Austin Research Center
1002 East McDowell Road, Suite A
Phoenix, AR 85006
Phone: 602-340-8717
Fax: 602-340-8720
E-mail: schneider@autismcenter
or SARC@autismcenter.org
Web site: http://www.autismcenter.org
Support Group
Autism Network International
P.O Box 448
Syacuse, New York 13210-0448
E-mail: jisincla@mailbox.syr.edu
(Jim Sinclair, ANI Coordinator)
Web site: http://www.students.uiuc.edu/bordner/ani/
This organization is designed for and operated by individuals with autism.
The Autism Society of America
7910 Woodmont Avenue, Suite 300
Berthesda, MD 20814-3015
Phone: 800-AUTISM, ext. 150 or 310-657-0881
Fax: 301-657-0869
Web site: http://www.autism-society.org
Families Working Together
12400 Cypress Avenue, Space 20
Chino, CA 91710
Phone: 909-627-4514
Fax: 909-627-6786
E-mail: javajive38@aol.com
Web site: http://www.ucddfam.com
This Christian Web site includes listings of chapters of F.E.A.T and the Autism
Society of America and autism seminars around the country.
F.E.A.T (Family of Early Autism Treatment)
P.O Box 255722
Sacramento, CA 95865-5722
Voice mail: 916-843-1536
Web site: http://www.fear.org
They will be able to direct you to the F.E.A.T chapter nearest you.
LIFE - LOVAAS INSTITUTE FOR EARLY
INTERVENTION
Phone:
(310) 840-5983
Internet Address: http://www.lovaas.com
LIFE
Offices:
1.New
Jersey . . . (609) 616-9442
2.San Francisco . . . (415) 785-1036
3.San Diego . . . (619) 283-1567
4.Sacramento . . . (916) 979-9398
LIFE
Replication Sites
(in
alphabetical order by state):
1.Central
Valley Autism Project
1518 Coffee Rd. Suite C
Modesto, CA 95355
Phone: (209) 613-7220
Fax: (209) 521-4794
2.CSAAC - Community Services for Autistic Adults and Children
751 Twinbrook Parkway
Rockville, MD 20851-1428
Phone: (301)762-1650
Fax: (301) 762-5230
Internet Address: http://www.csaac.org/res.htm
3.The May Institute May Center, Inc.
940 Main Street P.O. Box 899
South Harwich, MA 02661
Phone: (508) 432-5530 ext. 211
Internet Address: http://www.mayinstitute.org
4.Minnesota Young Autism Project REM Consulting & Services, Inc.
3101 W. 69th St., #121
Edina, MN 55435
Phone: (612) 926-9808
Fax: (612) 926-9808
5.New Jersey Institute for Early Intervention
52 Haddonfield Berlin Rd.
Cherry Hill, NJ 08034
Phone: (856) 616-9442
Fax: (856) 616-9454
E-Mail: nije@lovaas.com
6.Meredith Autism Project Meredith
College 3600 Hillsborough
St. Raleigh, NC 27606-5298
Phone: (919) 760-8080
Fax: (919) 760-8054
Internet Address: http://www.meredith.edu/psych/default.htm
7.Intensive Behavioral Intervention Clinic Children's Hospital Autism
Center
Ohio State University
Phone: (614) 866-3473
8.Pittsburg Young Autism Project
Intercare-Brentwood Office
4411 Stilley Road/Route 51 2nd Floor, Suite 202
Pittsburg, PA 15227
Phone: (412) 881-3902
Fax: (412) 881-3599
9.Converse College Department of Psychology
580 E. Main Street
Spartanburg, SC 29302-0006
Phone: (864) 596-9132
Fax: (864) 596-9201
Internet Address: http://www.converse.edu
10.Texas Young Autism Project Department of Psychology Psychological Research
and Services
Center University of Houston
Houston, TX 77204-5341
Phone: (713) 743-8610
Fax: (713) 743-8633 11.Northwest Young
Autism Project Department of Psychology
Washington State University Pullman, WA 99164
Phone: (509) 335-2522
12.Wisconsin Early Autism Project
6402 Odana Rd.
Madison, WI 53719
Phone: (608) 288-9040
Fax: (608) 288-9042
Internet Address: http://wiautism.com
13.PEACH - Parents for the Early Intervention of Autism in Children
Brunel University School of Education
300 Margaret's Road Twickenham,
Middlesex, TW1 1 PT England
Phone: 0200 891-0121 ext. 2257
Fax: 0181 891-8209
E-Mail: peach@brunel.ac.uk
Internet Address: http://www.peach.uk.com
14.Iceland Young Autism Project
Digranesvegur 5 200
Kopavogur Iceland
Phone: 011-354-554-5462
Fax: 011-354-564-1753
15.Akershus College (Norway)
P.O. Box 372 1301
Sandvika Norway Phone: (0) 011-67-11-74-22
Fax: (0) 011-67-11-74-01
Internet Address: http://www.hiak.no
16.Barcelona Autism Project
Paseo San Gervasio 90, Local 2 08022
Barcelona Spain
Phone: (0) 011-3493-418-4850
Fax: (0) 011-3493-418-4850
RESOURCES:
BOOKS & ARTICLES
There
are many books & articles about Autism. My advice is to focus on the positives
in any book & realize that not every child with Autism will recover or
not recover. I read too many books in the beginning that said my child would
never be able to function on his own, feel emotion, or get better. These books
made me too depressed. I needed to be strong for my son & my family. I
decided to mainly focus on books that offered techniques & help for my
family. Look at on-line book stores like Amazon.com & read the reviews
& what others have said about the book. Ask parents of Autistic children
which books helped them the most. Try finding a special needs resource library
that loans out books so that you will not spend a fortune on reading materials
that are not always good.
Teaching Developmentally Disabled Children: The ME Book
(1981) Write: Pro-Ed, 8700 Shoal Creek Blvd., Austin, TX 78757 Phone: (512)
451-3246 Internet Address: www.proedinc.com
Companion
videos to the ME Book
(5 tapes, 20 minutes each): The Lovaas Videotapes
Write: Pro-Ed, 8700 Shoal Creek Blvd., Austin, TX 78757 Phone (512) 451-3246
Internet Address: www.proedinc.com Research articles: Lovaas, 0.I.(1987).
Let
Me Hear Your Voice.The reader may also be helped by reading a book written
by a mother of an autistic child: Maurice, Catherine. Alfred A. Knopf, publisher,
New York: 1993.
Behavior
Intervention For Young Children With Autism: A Manual for Parents and Professionals.
Edited by: Catherine Maurice Coedited by Gina Green & Stephen C. Luce.
Asperger
Syndrome and Difficult Moments: Practical Solutions for Tantrums, Rage, and
Meltdowns by Brenda Smith Myles, Jack Southwick (Paperback - June 1999).
Facing
Autism: Giving Parents Reasons for Hope and Guidance For Help (by Lynn M.
Hamilton) is
a Mom's story which includes information on various therapies, resource guides,
and special education information. Waterbrook, publisher, Colorado: 2000.
The
New Social Stories : Illustrated Edition by Carol Gray (Paperback - September
2000).
Thinking
in Pictures : And Other Reports from My Life With Autism by Temple Grandin,
Oliver W. Sacks (Paperback - November 1996).
Unraveling
the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story
of Research and Recovery by Karyn Seroussi, Bernard Rimland Ph. D. (Hardcover
- February 2000).
Biological
Treatments for Autism & PDD : What's Going On? What Can You Do About It?
by William Shaw (Paperback - January 1998).
Toilet
Training for Individuals with Autism and Related Disorders by Maria Wheeler
(Paperback).
Do-Watch-Listen-Say
: Social and Communication Intervention for Children With Autism by Kathleen
Ann Quill (Paperback - August 2000).
Teaching
Children with Autism: Strategies to Enhance Communication and Socialization
by Kathleen Ann Quill (Paperback).
Visual
Strategies for Impoving Communication : Practical Supports for School & Home
by Linda A. Hodgdon (Paperback - December 1995).
Facing
Autism : Giving Parents Reasons for Hope and Guidance for Help by Lynn
M. Hamilton, Bernard Rimland (Paperback).
Not
Otherwise Specified : When Sensory Integration Affects Your Child : Working
With the Child With Pervasive Developmental Disorder (Pdd) by Joan, Dr
Fallon, et al (Paperback - June 2000).
Creating
a Win-Win I. E. P. for Students With Autism by Beth Fouse (Paperback -
January 1999).
Handbook
of Autism and Pervasive Developmental Disorders by Donald J. Cohen(Editor),
Fred R., MD Volkmar(Editor) (Hardcover).
Teaching
Children With Autism to Mind-Read : A Practical Guide for Teachers and Parents
by Patricia Howlin(Editor), et al (Paperback - March 1998).
Children
With Autism and Asperger Syndrome : A Guide for Practitioners and Carers by
Patricia Howlin (Paperback - February 1999).
Activity
Schedules for Children With Autism : Teaching Independent Behavior (Topics
in Autism) by Lynn E. McClannahan, Patricia J. Krantz (Paperback - March
1999).
A
Treasure Chest of Behavioral Strategies for Individuals With Autism by
Beth Fouse, Maria Wheeler (Paperback - August 1997).
Emergence
: Labeled Autistic by Temple Grandin, Margaret M. Scariano(Contributor)
(Paperback - September 1996).
The
World of the Autistic Child : Understanding and Treating Autistic Spectrum
Disorders by Bryna Siegel, Bryna Siegal (Hardcover - February 1996).
Siblings
of Children With Autism : A Guide for Families (Topics in Autism) by Sandra
L. Harris (Paperback - November 1994).
Social
Skills Activities for Special Children by Darlene Mannix (Paperback -
June 1993).
Keys
to Parenting the Child With Autism (Barron's Parenting Keys) by Marlene
Targ Brill (Paperback - October 1994).
A
Parent's Guide to Autism by Charles A. Hart, Claire Zion(Editor) (Paperback
- June 1993).
Children
With Autism : A Parents' Guide (Special Needs Collection) by Michael D.
Powers(Editor), Beverly Sills Greenough (Paperback - November 1989).
Without
Reason : A Family Copes with Two Generations of Autism by Charles A. Hart
(Paperback).
A
Work in Progress : Behavior Management Strategies & A Curriculum for Intensive
Behavioral Treatment of Autism by Ron Leaf, et al (Paperback - May 1999)
Targeting
Autism : What We Know, Don't Know, and Can Do to Help Young Children With
Autism and Related Disorders by Shirley Cohen (Paperback - January 1998).
Living
With Autism : The Parents' Stories by Kathleen M. Dillon, Lahri Bond(Illustrator)
(Paperback - September 1995).
Just
This Side of Normal : Glimpses into Life With Autism by Elizabeth King
Gerlach (Hardcover).
Somebody
Somewhere : Breaking Free from the World of Autism by Donna Williams (Paperback
- April 1995).
Words
From Those Who Care: Further Case Studies of ABA with People with Autism
by Bobby Newman(Editor), et al (Mass Market Paperback).
Play
and Imagination in Children With Autism (Special Education Series (New
York, N.Y.).) by Pamela J. Wolfberg (Paperback - March 1999).
Autism:
A Sensorimotor Approach to Management by Ruth A. Huebner
Ph.D.(Editor)
Online
Articles:
Autism
Proof Your House
Parents of Autistic Spectrum children often find it necessary to go
to extraordinary lengths to protect not only their children, but their
possessions as well. Here are some tips to make life a litte easier
and a lot safer.
ACCESS
Some parenting organizations and their contact information are
given to help parents with their day to day lives.
As
A Sibling
A letter to parents regarding the importance of siblings to the
special needs child.
Autism
Unschool Information Page
If you are considering homeschooling your Autistic child, this page
will help you with hints, tips, legal information and more.
A
Parent's Roadmap
If you are new to getting your child evaluated and treated, this
site is for you. From the Unicorn Children's Foundation, there is a
bevy of information.
Extraordinary
Parenting
The power of thoughts and feelings in reaching our children who
have Autism/PDD.
Fathers
of Children With Special Needs
A discussion of how fathers can learn to deal with their child's
disability. This father writes about his Autistic son and his
parenting experience.
How
I Cope With Rett Syndrome
After living with a daughter with Rett Syndrome for 20 years, this
mom has some real parenting strategies available.
Joint
Custody and Shared Parenting
The importance of shared parenting when a couple divorces is
discussed at this website. This is especially true with special needs
children.
Toilet
Training and Toileting Difficulties
This is one of the biggest challenges the parent of an Autistic/PDD child
faces. Some practical advice is offered in this site.
Other
Articles
"Behavioral
treatment and normal educational and intellectual functioning in young autistic
children." Journal of Consulting and Clinical Psychology, 55, 3-9. Lovaas,
0.I. & Smith, T. (1989).
"A
comprehensive behavioral theory of autistic children: Paradign for research
and treatment." Journal of Behavioral Therapy and Experimental Psychiatry.
20, 17-29. McEachin, J. J., Smith, T., and Lovaas, 0.1. (1993).
"Long-term
outcome for children with autism who received early intensive behavioral treatment."
American Journal on Mental Retardation. 2-7 (4), 359-372. (See also the commentaries
on this study)
LAW,
LAWSUIT & VACCINE INFORMATION
AMERICANS
WITH DISABILITIES ACT (ADA)
Library
directory of topics on the American with Disabilities Act.
http://handicap.bfn.org/public/ada.html
LAWS
AFFECTING CHILDREN WITH SPECIAL NEEDS
Listing of materials and directories around issues of law available
for order.
http://www.lrp.com/Education/books.htm
NATIONAL
CENTER FOR DISSEMINATION OF DISABILITY RESEARCH (NCDDR)
Provides information on research in the area of children with disabilities
and collaboration between federal agencies.
http://www.ncddr.org/index.html
OFFICE
OF CIVIL RIGHTS-DEPART OF EDUCATION
Office of Civil Rights that provides information on the law, recent publications,
and links.
http://www.ed.gov/offices/OCR
THE
HANEN EARLY LANGUAGE PROGRAM
Provides information about the program concerning lanuage delay and updates
of research and materials for purchase.
http://www.hanen.org
WRIGHTS
LAW WEB PAGE
Has information about special education laws.
http://www.wrightslaw.com/
A
BIG PROBLEM--STATUTE OF LIMITATIONS:
A claim must be filed under the NVICP within three (3) years of when the first
symptoms occurred. This rule is inflexible, and there is no "discovery
rule" as there is under some many state statutes. It does not matter that a
child's parents did not know about this program, or that they did not know that
their child's injuries were related to the vaccine. This is a bad law and simply
unfair to families and injured victims. Most states also have laws which toll
(i.e. stop) the running of the statute of limitations while someone is under a
disability, such as minority. In many states a child who is injured does not
even have to file a case until sometime after they reach majority. THIS IS NOT
TRUE FOR VACCINE CLAIMS UNDER THE NVICP.
There may be additional reasons to file a claim under the NVICP sooner than 3
years after the vaccination. Example-if an adult receives a vaccination, has an
adverse reaction, and if the state statute of limitations is less than 3 years
(i.e., 2 years as in Texas and many other states), then the claim needs to be
filed within 2 years. Filing the claim will toll (i.e. stop) the running of the
state statute of limitations until the claim is over. If the victim is not
satisfied with the results in the U.S. Court of Federal Claims (the judgment is
too little or the claim is denied), then the victim can reject the judgment and
elect to file a civil action in state court. Civil actions are typically filed
against the vaccine manufacturer and/or the person who administered the vaccine.
The statute of limitations to file a death claim under the NVICP is two (2)
years from the date of death, but not more than four (4) years from the date of
the vaccine injury. This again is a confusing, ridiculous and simply absurd
statute of limitations. Let's look at an example to understand this. A child is
vaccinated with DPT and develops toxic encephalopathy within three (3) days. The
child is brain damaged (incompetent), but survives for seven (7) years before
dying because of the encephalopathy. The day the child dies, it is already too
late to file a claim under the NVICP, because it is more than four (4) years
after the injury. Now, if this were traditional civil litigation, in most states
it would NOT be too late to file. Most states' statutes run from the date of
death without regard to when the injury took place. Most states' statutes of
limitation would not begin to run until death because of the child's being under
two disabilities - minority and incompetency. Many states statutes of limitation
would have discovery rules that would apply if the parents did not know or have
reason to believe that the injuries were caused by the vaccine until some later
date. There are many reasons why such a claim should not be time barred, but the
NVICP would bar it, fair or not. That's just the way the program is, for now.
Here's how you can help:
IT IS HIGH TIME TO BRING THE PROBLEMS WITH LIMITATIONS DESCRIBED HERE TO THE
ATTENTION OF CONGRESS, AND IT IS HIGH TIME FOR CONGRESS TO FIX THIS MISCARRIAGE
OF JUSTICE! WE ARE CALLING ON EVERYONE TO CONTACT THEIR CONGRESSMAN AND IMPLORE
THEM TO EXTEND THE DEADLINE FOR FILING THESE NVICP CLAIMS. ASK YOUR
REPRESENTATIVES AND SENATORS TO SUPPORT THE PASSAGE OF HR 1287.
This entire section has been
quoted from Attorney, Jeff Sell
Jeff and his wife of 15
years, Paula, have been blessed with four children, Natalie (8), Ben and Joe (7
year-old autistic twins), and Gracie (3). Mr. Sell is also the 3rd Vice
President and Chairman of the Government Relations Committee of the
Autism Society of America.
HITT,
PATTERSON & SELL
Jeff Sell's lawfirm. He has a lot of knowledge about autism, vaccine injuries,
and of course a lot more.
http://www.HittPattersonSell.com
INJURY
LAWYER NETWORK
Free information on lawsuits such as: mercury, Thimerosal, MMR vaccines.
http://www.injury-lawyer-network.com/autism.htm
NATIONAL
VACCINE FOUNDATION
If you feel that your child has had an adverse reaction from a vaccine,
or if you think a vaccine caused your child's autism, contact them and you
may be eligible for money from this injury. This is a Federal program and
you must seek out their compensation before starting a lawsuit.
http://www.909shot.com/
VACCINE
INJURY ALLIANCE
http:// www.vaccineinjury.org
Williams Bailey Law Firm, L.L.P
.http://www.williamsbailey.com/
Conway, Homer & Chin-Caplan, P.C.
http://www.ccandh.com/
Shoemaker & Horn
http://www.attorneyaccess.net/
Investigating Vaccination
http://www.crosswinds.net/%7Evaxchoice/
Thimerosal Information
http://www.access1.net/via/VACCINE/thimerosal.htm
P.R.O.V.E.
http://www.vaccineinfo.net/
NVICP
http://bhpr.hrsa.gov/vicp/
Vaccine Information & Awareness (VIA)
http://www.access1.net/via/
Autism Mercury Web Site
http://www.autism-mercury.com
P.A.V.E.
http://www.vaccines.bizland.com/
Autism and Vaccines
http://www.altcorp.com/autismvaccines.htm
VIRC
http://www.unc.edu/%7Eaphillip/www/vaccine/resrcntr.htm
Waters
& Kraus
Andy Waters, Waters & Kraus, announced that his firm is now in
possession of a previously unreleased confidential report authored by
Centers for Disease Control scientists which studied autism as a potential
neurological injury caused by mercury in children's vaccines.
http://www.autismfraud.com/press_release.htm
Hard to read file to download
concerning the CDC report.
http://www.autismfraud.com/00000121.tiff
Vaccine
Exemptions by State
http://www.access1.net/via/STATES/howto.htm
http://www.access1.net/via
MADORE FAMILY'S AUTISM RESOURCE SITE:
AUTISM
OUR STORY RESOURCES
LINKS TEXAS
HELP HOME PROGRAM
RECOVERY
JUST DIAGNOSED TREATMENTS
BIOMEDICAL SENSORY
ISSUES NUTRITION
LEGISLATION AUTISTIC
ADULTS CONFERENCES
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