PRINT THIS PAGE
OR YOU CAN COPY THE SECTIONS YOU WANT (HIGHLIGHT THE SECTION THEN GO TO EDIT ON YOUR INTERNET BROWSER & CLICK ON COPY) AND PASTE THEM INTO YOUR WORD PROCESSOR (GO TO EDIT IN WORD OR WORDPERFECT AND CLICK ON PASTE) AND PRINT JUST THE SECTIONS THAT YOU WANT.

Autism is a pervasive neurological disorder that impairs language development, communication and social interaction. It is more prevalent than multiple sclerosis, cerebral palsy or Down syndrome. Autism affects roughly 1 in 500 people
(new estimates are closer to 1 in 175 people on the autistic spectrum). Autism will affect 22 new babies born today and every day in the US. Without effective treatment, its sufferers often require lifelong care. This is fast becoming an epidemic and we need to join forces to educate others about autism. Early diagnosis and intensive early intervention have been shown to influence the outcome, but there still a lot of medical/biological problems that we may need to address in these children to help them to get better.
Autistic children have difficulties in three areas but the degree of difficulty varies. First, they have problems using and understanding language. Second, they have problems in understanding how to interact with others or to make friends.
Third, their toy play is sometimes unusual or immature with limited pretending, some show unusual repetitive movements, some have a strong preference for doing things the same way, many have limited interests and some have limited diets. Often, motor abilities and the ability to learn by watching how things are done are normal.
They may have bowel problems, excessive amounts of ear infections as a child, sensory issues, yeast in their gut, vitamin and mineral deficiencies, brain myelin reduction, seizures, trouble making eye-contact, and many of our children have multiple disorders along with autism such as: Epilepsy, Tourette Syndrome, ADHD, Mental Retardation, Hypothyroidism, Cerebral Palsy and Diabetes.
Individuals with autism have to painstakingly learn normal patterns of speech and communication, and appropriate ways to relate to people, objects, and events, in a similar manner to those who have had a stroke.

What I do understand is that this disorder is reaching families everywhere.
Most people know of someone with autism.
Doug Flutie, Sylvester Stallone, Didi Conn and Dan Marino are just some of the parents that have autistic children.

The Doug Flutie Jr Foundation, founded by Doug Flutie and his wife, have made it their lifetime commitment to make life easier for Autistic children and their families.

In 1982, Sylvester Stallone's son Seargeoh (with wife Sash Czack) was diagnosed as autistic. Today, at 22, Seargeoh is "high-functioning." "He spends a great deal of time with his mother. He lives 200 yards away."
"I can actually yell from my house to his," said Stallone.

Didi Conn's autistic son is 8 years old. She recently appeared on the Montel William's Talk Show to talk about autism.

The Dan Marino Center was initiated by Dan Marino, former NFL quarterback, who also has an Autistic son.
He has endowed Miami Children's Hospital, providing a center for Neuroscience.

Autistic Disorder causes impairments in social interaction, communication, and imaginative play prior to age 3 years. You will see a variety of stereotyped behaviors, interests and activities.
Asperger's Disorder characterized by impairments in social interactions and
the presence of restricted interests and activities, with no clinically
significant general delay in language, and testing in the range of
average to above average intelligence.
Pervasive Developmental Disorder- Not Otherwise Specified (commonly referred to as atypical autism). A diagnosis of PDD-NOS may be made when a child does not meet the criteria for a specific diagnosis, but there is a severe and pervasive impairment in specified behaviors.
Rett's Disorder a progressive disorder which, to date, has occurred only in girls. Period of normal development and then loss of previously acquired skills, loss of purposeful use of the hands replaced with repetitive hand movements beginning at the age of 1-4 years.
Childhood Disintegrative Disorder characterized by normal development for at least the first 2 years, significant loss of previously acquired skills.
(American Psychiatric Association 1994)
Other related disorders or syndromes are:
Angelman Syndrome Apraxia Attention Deficit Disorder Fragile X Syndrome Landau-Kleffner Syndrome
Hyperlexia Web Page
Prader-Willi Syndrome
Williams Syndrome

Autism is a spectrum disorder. In other words, the symptoms and characteristics of autism can present themselves in a wide variety of combinations, from mild to severe. Although autism is defined by a certain set of behaviors, children and adults can exhibit any combination of the behaviors in any degree of severity. Two children, both with the same diagnosis, can act very differently from one another and have varying skills. Therefore, there is no standard "type" or "typical" person with autism. Parents may hear different terms used to describe children within this spectrum, such as: autistic-like, autistic tendencies, autism spectrum, high-functioning or low-functioning autism, more-abled or less-abled, mild, moderate, or severe. More important to understand is, whatever the diagnosis, children can learn and function productively and show gains from appropriate education and treatment. The Autism Society of America provides information to serve the needs of all individuals within the spectrum.
DON'T GIVE UP HOPE!!There are many children that are making great strides.
See JUST DIAGNOSED for help.

There are some theories that autism is caused by vaccines with Thimerosal (which contains almost 50% mercury) and that the combined MMR shot attacks the "gut" or intestines when they are weak from dealing with mercury. I would suggest to anyone, not just families with auto-immune problems, to request Thimerosal-free vaccines and to take the MMR shot separated over months. I would try to put off starting vaccinations until the child is older, preferably 2 years old. If you can't, which many of cannot that work and need daycare, postpone the Hep B vaccine until they are a little older (not less than 24 hours old).NEVER give your child a vaccine if they are possibly sick or on antibiotics. For more information about vaccines check out http://www.909shot.com/.

There are other theories that a family is at a greater risk if they have a stealth virus, which has been linked to auto-immune disease, gulf war syndrome, and autism. Many of our children have immune problems, food allergies, hypothyroidism, countless ear infections and reactions/regression after vaccinations.

HOW TO DETERMINE IF SOMEONE YOU KNOW HAS AUTISM
I have listed 2 different methods below that are used.

DIAGNOSTIC CRITERIA FOR 299.00 AUTISTIC DISORDER* *
Source: The American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Washington D.C., American Psychiatric Association, 1994.

A. A total of at least six items from (1), (2), and (3), with at least two from (1), and one each from (2) and (3):

1.Qualitative impairment in social interaction, as manifested by at least two of the following: marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction. failure to develop peer relationships appropriate to developmental level a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest) lack of social or emotional reciprocity

2.Qualitative impairments in communication as manifested by at least one of the following: delay in, or total lack of, the development of spoken language (not accompanied by an attempt to compensate through alternative modes of communication such as gesture or mime) in individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others stereotyped and repetitive use of language or idiosyncratic language lack of varied, spontaneous make-believe play or social imitative play appropriate to developmental level

3.Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following: encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus apparently inflexible adherence to specific, nonfunctional routines or rituals stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole body movements) persistent preoccupation with parts of objects

B. Delays or abnormal functioning in at least one of the following areas, with onset prior to age 3 years:
(1) social interaction,
(2) language as used in social communication, or
(3) symbolic or imaginative play.

C. The disturbance is not better accounted for by Rett's Disorder or Childhood Disintegrative Disorder.

CHAT-Checklist for Autism in Toddlers
The original CHAT paper was first published by Simon Baron-Cohen in 1992.
He has since published a follow-up paper (Br J Psychiatry 168:158-163).
As described in the abstract, he tested 41 18-month-old children "at genetic risk for autism" (they had older siblings with autism) and 50 randomly selected 18-month-olds. The CHAT identified 4 children and all 4 were later diagnosed
with autism. This is a very small sample and it is difficult to establish the validity of the CHAT based on it.

Section A - Ask Parent:
1) Does your child enjoy being swung, bounced on your knee, etc?
2) Does your child take an interest in other children?
3) Does your child like climbing on things, such as up stairs?
4) Does your child enjoy playing peek-a-boo/hide-and-seek?
5) Does your child ever pretend, for example, to make a cup of tea using a toy cup and teapot, or pretend other things?
6) Does your child ever use his/her index finger to point, to ask for something?
7) Does your child ever use his/her index finger to point, to indicate interest in something?
8) Can your child play properly with small toys (e.g. cars or bricks) without just mouthing, fiddling, or dropping them?
9) Does your child ever bring objects over to you, to show you something?

Section B - GP's observation
i) During the appointment, has the child made eye contact with you?
ii) Get child's attention, then point across the room at an interesting object and say "Oh look! There's a (name a toy)!" Watch
child's face. Does the child look across to see what you are pointing at?
NOTE - to record yes on this item, ensure the child has not simply looked at your hand, but has actually looked at the object
you are pointing at.
iii) Get the child's attention, then give child a miniature toy cup and teapot and say "Can you make a cup of tea?" Does the child
pretend to pour out the tea, drink it etc?
NOTE - if you can elicit an example of pretending in some other game, score a yes on this item
iv) Say to the child "Where's the light?" or "Show me the light". Does the child point with his/her index finger at the light?
NOTE - Repeat this with "Where's the teddy?" or some other unreachable object, if child does not understand the word "light".
To record yes on this item, the child must have looked up at your face around the time of pointing.
v) Can the child build a tower of bricks? (If so, how many?) (Number of bricks...)

Characteristics of a child with autism may include:
-Little or no speech
-Little or no understanding of language
-Stereotyped and repetitive idiosyncratic language
-Little or no eye contact
-Little or no ability to relate to or communicate with others
-A lack of affection toward or attachment to others
-Lack of make believe or play or imitative play
-Inappropriate toy play or odd attachment to objects
-Adherence to nonfunctional routines or rituals
-Stereotyped and repetitive mannerisms
-Self-injurious behavior, aggression, or tantrums
-Hand/arm flapping
-Walking on tips of toes

DIAGNOSIS

The first thing you should do if your child is diagnosed on the Autism/PDD spectrum is to tell yourself that it is not your fault, you are living with it already, it just didn't have a name yet, and that things will get better.
I am just repeating what other parents of Autistic/PDD children told me when Andrew was diagnosed. I am still having to tell myself that it is not my fault because I do feel guilt that it was something I did wrong during my pregnancy, delivery, in caring for him, or my bad genes. I do know that it has gotten so much better. He does not tantrum near as much or hit anymore. He can also communicate so much better and he points to things. Below I will give you some ideas of where to start and what worked for us. Good Luck and don't forget that there are a lot of us out here pulling for
you and your family.Use these with caution. The quality of assistance you may receive will differ by city and state and sometimes you may get assistance that you don't want. Use as many as you can but my suggestion is to first talk to other parents about their experience and success with different programs.
Let me know of other suggestions you have.

WHAT I DID AND WHAT I HAVE SUGGESTED OTHERS DO

1. If your child is under 3 years old, look for your local ECI (Early Childhood Intervention) type program.
2. If your child is over 3 years old, call your school district, give your situation and see how they can help (you usually have to go through an evaluation through the school district). Read up on special education law and monitor your school district during this process to make sure they are treating you fairly. I would recommend bringing people with you during the ARD's and any meetings and evaluations. Good people to take are those that are knowledgeable and have your child's best interest in mind. Look for an advocacy group, the ARC, your personal therapists and consultants.
3. Check for the nearest Autism Society Organization and attend a meeting. At that first meeting, introduce yourself (they will probably ask you to stand up and introduce yourself) and say how you need help e.g.."My name is Michelle and my 3 year old son Joe was diagnosed as PDD 1 month ago and I need help finding therapists and financial aid. I am also having trouble with my school district and am not sure what to do". The people there are generally helpful and nice as they have been in similar shoes at one time.
4. Check for support groups in your area for related disorders.
5. Try and find other parents in similar circumstances. They are a great resource and a good support tool.
6. Check with your insurance company to see what they can offer. My insurance company offered speech and occupational therapy but our son didn't like who was in our plan at that time, so we paid out of our pocket for in-home behavior modification. We have since found a good speech pathologist and occupational therapist.
7. If you have family members, friends, neighbors, church members, or others that you are close to, encourage those relationships with your child. They can be trained on how best to work with your child and may be able to work one-on-one with them or give you respite time.
8. Research Autism Web Pages. My favorite search engines are www.monstercrawler.com and www.ask.com. There you can type in any of your concerns or questions about autism. You should also check out my links page which has a lot of links. This was very helpful when Andrew was first diagnosed.
9. Join an e-mail group for informational purposes. Many of their discussions will pertain to you and your family and some might just go over your head. When they start talking about medical test results and genes I get lost, but I am learning a lot about treatments. Go to http://groups.yahoo.com/ to search for a group you like or create you own group. The groups I subscribe to are: Recovered Kids , Texas Autism Advocacy , Interven , Verbal Behavior , Autism Awareness Action , CAN Alert , Autism List , Autism-Mercury , Allergy-Related Vaccine Induced Autism. I get these sent in digest form. That way I can go to my e-mail, right click on the digest for that day, choose "open in new window" on all of them, then disconnect from my Internet host (so I don't use hours or hold up my phone line) and then I read them off-line. Yahoo also has clubs that are pretty much like the groups.
10. Try to be creative in what you do. If you need to make therapy tools, try to make it yourself using magazine pictures, recycled products, and used toys to save money (check with other parents that have children that are older or more advanced and they may no longer need the tools or toys that you can use).
11. Find a good doctor, preferably someone with knowledge of the DAN (Defeat Autism Now) protocol. Have them run tests on your child to check for things you would feel comfortable with such as: fragileX, amino acids, metals, intestinal permeability, candida, yeast, mercury toxicity, food allergies, and such. A lot of our kids have medical/biological problems that need to be addressed. I would also suggest that you order the DAN protocol for yourself ($25.00's).
12. Pull out the phone book and look in the yellow pages under "Autism." Call any place that you think might be able to give you advice, information, or help. Be bold and ask how much their services are, how old are the people they serve, and do they have referrals or could you talk to a client about them.
(I called a nonprofit help group called "Any Baby Can, Inc." to help me understand my options for financial aid, therapy, and special needs programs We did not qualify for financial aid, but did qualify for respite services and a little money from in-home family and support services for therapy and supplies[up to $3,600.00 a year]).

WHAT DO I DO FIRST?

Here are some recommendations from books, articles, web sites, and other parents.
Use all with caution and consult your doctor before trying anything new. These ideas were what I based my search on but I did vary a little from the recommended course.

1. Get a second opinion-preferably from a treatment or research center.
2. Call anyone you think that can help (use this web site, phone book, etc..)
3. Read good books and get informed.
4. Remove all dairy products from their diet and if possible start the gluten/casein free diet-see diet.
5. Start an ABA (Applied Behavior Analysis) program by finding a consultant and therapists-see ABA. If this therapy is not for you or your child, look at alternatives like Floortime (we use many of these techniques in our ABA program) and Son-Rise. Find a Speech Language Pathologist and Occupational Therapist that has knowledge and experience with autistic/pdd children like your own (verbal/non-verbal/passive/aggressive, etc).
6. Join a support group, the local autism society chapter, or call other parents that you can connect with.
7. Order the urine organic acids test from the Great Plains Laboratory-(913)-341-8949 or have your doctor find a test that your insurance will pay for. These type tests will tell you whether your child has an abnormal amount of yeast in his gastrointestinal system (can be treated with antifungal medications or probiotics and a low-sugar and yeast diet).
8. Have an allergy test run to determine any other allergens-then remove anything that your child may be allergic or sensitive to. Note: although your child's test may say that they are NOT allergic to something, the test may have missed an something. An elimination diet is helpful in determining food reactions.
9. Consider adding supplements such as B6 and magnesium and DMG, both of which can be found at Kirkman Labs (SuperNuThera, TMG, EnZymAid, etc.) http://www.kirkmanlabs.com. Although these did not work well for my son at this time, many other parents have had success with them.

At this point I would recommend reading positive books about autism and looking at my
About Autism, Treatments, US Resources and Autism Links pages. Feel free to e-mail me any time.

TREATMENTS
There is no cure for autism and no test to predict if your child will develop it.
We hope with more money given to research and with more public awareness that we will find a cure.
Below are some of the treatments some families try.
Not everything works for every child and I urge you to use caution.
With Andrew we have only tried things that could not do him harm,
(ABA, diet, vitamins, speech and occupational therapy, sensory integration, early intervention).
If you do try any of these treatments do so only with a good physician's aid and try one at a time. We started with ABA, added diet, and now we are trying vitamin supplements and tests. We are hoping that by trying each one separately we may be able to judge each one better. We have known parents who have tried some of the things below
and they now wished that they had not (felt it was a waste of time or their child was worse off than before).
Again I urge that you use treatments with caution and check with your doctor before starting anything new (preferably a proactive autism doctor such as those found at research or treatment centers).

The Autism Society has a chart that compares some of these treatments.

I would suggest reading one of the best papers that I have read,
A Comprehensive Guide to Managing Autism by Willis S. Langford
It is very long and can be complicated but it worth reading and free.
You may find the key to helping your child become healthy.

I highly recommend everyone doing one treatment at a time so that you can better determine what is truly helping. To help judge how much a treatment is helping go to: http://www.autism.com/atec/ and answer the questions. You will get a score to compare how things are going. You may hear other parents talking about an ATEC improvement score for a particular treatment and this is where you can score things and help Dr. Rimland track treatments. Under the assessment period I would suggest you say baseline on your treatment information.

EDUCATION/MANAGEMENT STRATEGIES

ABA
(Applied Behavioral Analysis)
Based on the works of Lovaas and Skinner.
See my page on ABA

TEACCH
Is a well-established educational intervention. It is not really a "therapy" but a strategy where students use a chart to help with transitioning between activities. It is often used in school systems.

Picture Exchange system(PECS)
Pyramid Educational Consultants, Inc. -a
source of training for the Picture Exchange
Communication System (PECS).
See this site for free PECS.

The Son-Rise Program®
Offered by only one for-profit organization.

Facilitated Communication
This is an extensive but not yet exhaustive list of references of articles on facilitated communication. Look for periodic updates, which will include references to articles in press.

See the speech section and play therapies below for additional choices.

DIET INTERVENTION

Gluten Free Casien Free Diet
ANDI-Autism Network for Dietary Intervention
Homepage for this well-known organization.
http://www.autismNDI.com/
Also-See my page on Diet

Nutritional Supplements -
B6 & Magnesium, DMG, Vitamin A, SuperNuThera,
TMG, EnZymAid, etc.
http://www.kirkmanlabs.com
Kirkman Laboratories, Wilsonville, Oregon. Based on Dr. Bernard Rimland's theories
(Autism Research Institute). This site provides an overview of these theories plus products for sale that can be ordered over the Internet. Many parents are very active with supplements, chelation, yeast control and gut healing.

ALTERNATIVE MEDICINE INTERVENTIONS

Overview of Many Alternative Theories

Alternative Therapies for Children with
Brain Injury and Developmental Disorders
This site has an immediately accessible index to the following autism theories: Opioid Excess Theories, Opioid-like substances, Dipeptidyl peptidase deficiency, Opioids and secretin, Opioids and glutathione, Opioids and immunosuppression, Gluten/Casein Theories, Opioid receptors, Urinary IAG, Fatty Acids, Gamma Interferon Theory, Free Sulphate Theory, Cholocystokinin and Autism, Oxytocin and Vasopressin in Autism, Autism and Amino Acids, Autoimmune Theory, Viral Infection Theory, Vaccinations and Autism, DPT and brain damage, MMR vaccine and autism, Action of Secretin Theories, Secretin
and camp, Lectins and secretin, Prenatal Aspartame Exposure

DAN Protocol (from Defeat Autism Now)
In my opinion this is a must have for parents. It details the tests that help diagnose medical/biological problems with your child. It is only $25.00's and they will send you a list of DAN doctors and others other information free. I have referred to mine many times. To request the DAN Protocol or other information click here http://www.autism.com/ari/request.html
See the DAN 2001 PowerPoint Presentations from the spring conference in (Atlanta, GA 2001).

Secretin
S.F.T.A.H. Society For The Autistically
Handicapped -Page on Secretin
Background information about secretin from Paul Shattock, Autism Research Unit.

Enzyme Potentiated Desensitization
Enzyme Potentiated Desensitization (EPD) is a method of immunotherapy developed byimmunologist, Dr. Leonard M. McEwen, in England in the mid 60's. The method involves desensitization with combinations of a wide variety of extremely low dose allergens.

Food Allergy Net
Activities, studies, and research related to food allergies. Practical tips, recipes, and educational materials. Register to receive Special Allergy Alerts by e-mail regarding product recalls or ingredient changes.

Chelation
Cleansing the body of toxins-especially mercury.

Epsom Salt Baths (or just foot soaking or spraying)
This is suppose to supply sulphur and magnesium for calming, the Zyme Prime diagestive enzymes, and molybdenum. My son seems to enjoy them.

BODY & MIND THERAPIES

Sensory Integration and Occupational Therapy
See my page on Sensory Integration.

Handwriting Without Tears (HWT)
is a way to teach pre-printing, printing and cursive. It was developed by Jan Z. Olsen, OTR, an occupational therapist and a handwriting specialist. HWT is an inclusive method for teaching children of ALL ability levels. ADOPTED BY THE CALIFORNIA STATE BOARD OF EDUCATION.

CranioSacral Therapy (CST)
A gentle hands-on method of evaluating and enhancing the function of the craniosacral system. The Upledger Institute (UI) founded in 1985 by osteopathic physician and surgeon John E. Upledger supports the work of CranioSacral Therapy (CST).

Auditory Treatments

AIT-Berard Method
The Society for Auditory Intervention Techniques distributes information about
auditory integration training (AIT) based on the Berard method and other auditory-based interventions to professionals and parents through information packets; The Sound Connection quarterly newsletter; and annual conferences. The Berard method is different than the Tomatis auditory treatment.

Tomatis Method
The Tomatis Method builds listening skills through auditory stimulation to improve learning and language abilities, communication, creativity, and social
behavior. This page offers an overview of the Tomatis Method, addresses of Tomatis centers, and tells how the training affects Attention Deficit Disorders (ADD), Autism, Depressive Tendencies, Learning Disabilities and Dyslexia, and foreign language training. note: The Tomatis method is different than the Berard AIT auditory treatment.

Rhythmic Entrainment Intervention (REI)
The REI Institute offers Rhythmic Entrainment Intervention (REI), a musical
therapy program which uses specific rhythmic patterns performed on a hand drum to aid individuals with neurobiological disorders, including autism and related developmental disabilities.

Speech and Language Therapy

ASHA - American Speech-Language-Hearing Association
Speech is an important area to address for our spectrum kids. Some of our children may never use a verbal language. It is very important to find a therapy that addresses these needs and a spectrum experienced therapist.

Mark L. Sundberg
Behavior Analysts, Inc specializes in teaching language to children with autism. They will conduct workshops but can expensive and hard to get but have heard their VB workshops are worth it. This web page is not working right now?

Vince Carbone
Applied Verbal Behavior is good to be used with ABA. You can find his schedule at his site.
He is also with Behavior Analysts, Inc

Play Therapies

The Miller Method
Combines physical play, speech and other modalities to treat autism. "We expand and transform limited reality systems and we enrich the child's repertoire by introducing new ones through spheric activity. When, through their work at the Center, the children learn to tolerate "stretching" their reality systems, or to accept new ones via repetitive spheres of activity"

The Greenspan Method
Please visit Dr. Greenspan's home page at www.stanleygreenspan.com for more information regarding this method, most known for the term "floortime," or visit the Interdisciplinary Council on Developmental and Learning Disorders pages at www.icdl.com. We have used techniques similar to this for play.

COMPUTER RELATED

Tools and Resources-There a lot of other links on my ABA page for other learning web sites.

Do To Learn
A new web site, supported by the National Institutes of Health, has free activities and games designed to help children and adults with diagnosed disorders such as autism, learning disabilities, and ADD. This site contains information for parents and teachers and tools such as printable picture cards. Check this site regularly for changes.

Laureate Learning Systems
Computer software to help with language and problem solving.

Fast ForWord by Scientific Learning
Corporation This program, targeted at improving language and auditory systems, has been documented by this company as an appropriate tool for children with autism. Their premise is that "A child who does not
recognize and process word sounds accurately will not be able to make the right associations between letter representations and spoken language."

RECOVERY

When I first read Catherine Maurice's "Let Me Hear Your Voice,"
I was filled with great hope that I could "recover" my child.
We set out to find ABA therapists in my area, locate a consultant/trainer/troubleshooter/specialist in autism, and create an in-home "classroom" to begin his recovery. We have been at this for about 11months and we have seen huge improvement. He had zero words to start in November 2000 and now he has over 200 words and has over 20 phrases that have multiple word combinations. Once a week we have "school time" where 3 non-autistic children come over and they practice things that he will need to know for school like songs, circle time, holding hands and walking in a line, calendar song/time, good morning song where they have to answer questions (your name, age, favorite color, etc..) and more. The video I watched a few weeks ago of their "school time" was amazing. Andrew got his carpet square like the other kids, he sat cross-legged on it the whole time, answered questions, sang songs and performed the hand/body motions to them. He even asked someone else a question during the good morning song ("What's your name?"). My husband and I were so proud at how far he has come. Back in November 2000, he could not even sit in a chair, follow directions, match, and could not talk. It gives us hope through the rough days. The therapists have worked hard and try to make it fun for him, but in the end it is still a lot of work for him to do. He is behind and he does have a lot of catching up to do. The best part is that he loves the praise and is very proud of his accomplishments.

What I have tried to do on this page is to include some information and links that may help you understand what other families and researchers are doing to "recover" autistic spectrum children. I don't know why some children do not recover, but I do know that there are too many children being diagnosed and even one child that is not recovered is one too many. As parents, all we can do is to help our children to do the best they can with what they have.

I know that I may not be able to "recover" my child totally, but I will fight the damage that has been to my son as long as I have a breath in my body. For me "recovery" is a multifaceted ideal. We "recover" Andrew from new things every week. He might be playing inappropriately with the musical flute/recorder (taking the top off and on). We work with him on how to play with it appropriately and that is a small problem we have "recovered." We take him out and expose him to different sounds, lights, and activities so that we can help him to get used to dealing with things that might bother his senses (was real hard at first with people staring and making comments about his behavior but he has improved so much. We try not to do too much in a routine way so that he can get used to change (this has been hard but he is doing well with it). We are not trying to make him into a robot or to torture him. We are basically trying to help him prepare for the world that he will be exposed to.In the end he will hopefully have reached his greatest potential and be the happiest and most successful that he can be. No matter what, we will love him and appreciate him like no other.

I encourage you to find a good doctor, preferably someone with knowledge of the DAN (Defeat Autism Now) protocol. Have them run tests on your child to check for things you would feel comfortable with such as: fragileX, amino acids, metals, intestinal permeability, candida, yeast, mercury toxicity, food allergies, and such. A lot of our kids have medical/biological problems that need to be addressed; read a great paper about medical/biological problems in our children. I would also suggest that you order the DAN protocol for yourself. While you are trying to heal your child's immune system and gut, start with the therapy that will help catch them up developmentally ( ABA, Speech, VB, OT, PT, Supplements, etc..) Remember to listen to what your child's body is telling you.

LINKS FOR RELATED RECOVERY SITES

ABA Resources for Recovery from Autism/PDD/Hyperlexia
One of the best sites for ABA information, legal documents for fighting school districts, and how best to implement an ABA program.
http://members.tripod.com/RSaffran/aba.html

Recovered kids (a mail group)
I would highly suggest you at least read some of these emails between parents with
recovered or recovering autistic children.
You can also join and post your own questions (even if you are newly diagnosed).
http://groups.yahoo.com/group/RecoveredKids

You can join other groups are create your own at
http://groups.yahoo.com/
Other mail groups that I find useful
Texas Autism Advocacy , Interven , Verbal Behavior , Autism Awareness Action , CAN Alert ,
Autism List , Autism-Mercury , Allergy-Related Vaccine Induced Autism

Order the DAN protocol to begin to understand what is
medically/biologically wrong with your child.
http://www.autism.com/ari/request.html

A Comprehensive Guide to Managing Autism by Willis S. Langford
Please read this thoroughly to help solve some of the medical/biological issues for your child.
http://www.talkinternational.com/issues_health_autism_guide_aug_03_01.htm

The International Autism Research Center
Physician and father of an autistic child.
http://www.gnd.org/autism/overview.htm

PROGRAMS More Than Words - The Hanen Program for Parents of
Children with Autism Spectrum Disorders
http://hanen.velocet.ca/programs_autism.shtml

Interview with parent of a toddler with autism
http://www.csaac.org/intervw.htm

Parent testimonials (long)
http://people.sca.uqam.ca/~sqa/lovaas_damian_e.html

A chance to be heard
http://www.postgazette.com/newsroom/extras/19980106haut.asp

There is Hope
http://www.geocities.com/Heartland/Plains/1648/hope.htm

Intensive therapy...Louise
http://www.post-intelligencer.com/autism/tret08.shtml

Donna's Story
http://www.treehouse.org.uk/story.htm

Reagan
http://members.nbci.com/Neil_S_Clark/ABA.html

Fairfax County, Virginia AutismProgram
http://washingtonpost.com/wp-dyn/articles/A21939-2000Jun29.html

Counting the Cost of Autism (Hamilton, Ontario)
http://www.hamiltonspectator.com/reports/265353.html

Intensive therapy... (Seattle, WA)
http://seattlep-i.nwsource.com/autism/tret08.shtml

Letters of Support for Bradley Murphy
http://www.insidetheweb.com/mbs.cgi/mb1137461

Tommy (Anchorage, Alaska)
http://www.cridder.com/morgue/press/news/autsidebar.html

Maxie (Naples, Florida)
http://www.naplesnews.com/special/ztest/a24337b.htm

Early help... (Vancouver, BC)
http://www.nsnews.com/issue/w102797/autism.html

Early Intervention... (Torrance, California)
http://www2.sac-co.k12.ca.us/speced/resource/rise/early.htm

The Virginian-Pilot and The Ledger-Star, Norfolk, VA
http://www.psycport.com/news/2000/10/10/NFLK/0000-7004-KEYWORD.Missing.html

Treatment triumph in treating autism (Australia)
http://www.communique.qut.edu.au/features/Autism.htm

ABC News Nightline
http://abcnews.go.com/sections/nightline/DailyNews/nl_010309_autism_jake1.html

Hannah's Story (documentary film)
http://www.hannahstory.com/

New York State Department of Health Clinical Practice Guideline
http://www.health.state.ny.us/nysdoh/eip/menu.htm

The Childhood Learning Center includes ABA curriculum,
links to parents groups, and a list of service providers.
http://www.tclc.com/

Behaviour analysis at Athabasca University
http://server.bmod.athabascau.ca/html/aupr/ba.shtml

Great Ideas for Teaching
http://www.gift-inc.com/ .

Lingui-Systems
http://www.linguisystems.com/

Mayer-Johnson Inc.
http://www.mayerjohnson.com/

Pyramid Educational Consultants
http://www.pecs.com/index.html

Silver Lining Multimedia
http://www.silverliningmm.com

Discrete Trial Trainer
http://www.dttrainer.com/

FEAT has a collection of teaching programs on-line
http://www.feat.org/

Flash!
http://shops.looksmart.com/aba

Gaining Face teachs recognition of emotions and facial expressions
http://www.ccoder.com/GainingFace/index.html

Labeling Tutor
http://members.aol.com/peuapeu/

Progressive Academic Learning System
http://www.pals1.com/

ABBY for Windows
http://www.compusmart.ab.ca/jhealth/abby/

Log It!
http://www.iowapc.com/logit.html

Spedfile
http://www.spedfile.com/

Books to read (These are the first positive ones that I read):

Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery. a must read book by Karyn Seroussi, Bernard Rimland Ph. D. (Hardcover - February 2000) that has a lot of resources.

Let Me Hear Your Voice.The reader may also be helped by reading a book written by a mother of 2 recovered autistic children: Maurice, Catherine. Alfred A. Knopf, publisher, New York: 1993.

Facing Autism : Giving Parents Reasons for Hope and Guidance for Help.
Full of resources and information by Lynn M. Hamilton, Bernard Rimland.
Waterbrook, publisher, Colorado: 2000.

See my other pages for more links:

AUTISTIC ADULTS

At my very first Autism Society Meeting the guest speaker was an education specialist. A lot of questions were posed to him about how we can help our adolescent autistic children prepare for the future. He said that it was sad that not much money has been in place for older autistic people/children/adults, because so much emphasis is placed on the early years. He suggested parents contact the ARC of Texas (organization for retarded citizens that helps with transition or work related information) and to make sure it was discussed at the ARD and that there is a transitional plan in place in the IEP (Individual Education Plan). Beyond that, we as parents, we're on our own. I know Andrew is only 3 years old but we need to be prepared. One mother's comment really struck me at that meeting, "If you think you have problems when they are little just wait until they're 290 pounds and wear a size 14 shoe!" Wow!! We have our work cut out for us if we are going to prepare our kids for the future. The statistics show that most our autistic adults either still live at home or in a facility (not on their own). Finding a place for our older children to live and possibly work are two of the biggest hurdles at this age. Let me know of any information or advice that you have.
Below is just a little information that I have found relating to this area.
Read about some autistic adults

Making the Transition from the World of School into the World of Work
Choosing the Right Job for People with Autism or Asperger's Syndrome
Survival In The Workplace
Autistic Continuum Connections, Education, and Support Site
NAS's Prospects Scheme helps find real jobs for people with HFA/AS
Employment-The Autism & Asperger's Syndrome Independent Living Assoc.
'My coding just flies'
Study Skills For Students With HFA/AS
The University-Students-With-Autism-And-Asperger's-Syndrome Mailing List
To Tell Or Not To Tell?
The hindered path - a student newspaper article about university students with autistic spectrum conditions, with many first-person quotes.
Autistics offer unique skills to IS
Emergence: Labeled Autistic
Autism, Puberty, and the Possibility of Seizures
How to Understand People Who Are Different by Brad Rand
My Experiences with Visual Thinking Sensory Problems and Communication Difficulties by Temple Grandin, Ph.D.
A Way of Describing Autism by Dave Spicer
Don't Mourn for Us by Jim Sinclair
Ooops....Wrong Planet! Mom's View
Parents Helping Parents, resources for and by parents of special-needs children
http://www.php.com/

Wouter Schenk interviews Carolyn Baird.
In this interview Carolyn Baird from Glendale, Australia, tells about her life, autism and Internet and her list PAN-L. Carolyn Baird is the listowner of PAN-L (Parents Autistics Network List). Carolyn, a high functioning person with autism, and is the mother of four children.

OUR STORY

The reason for sharing our story is to help find a link or cause that other people may have experienced, which may lead to a helping our children. We can learn so much from each other about treatments and techniques.
In talking with other parents of autistic children we found some things in common (not everyone experienced all of these things & of course this is not proven). Our children had a lot of ear infections, took antibiotics for an illness (ear infections, viruses), mother had a hard pregnancy, mother had to take prescription for nausea during pregnancy, their child seemed fine the first year or so but then started to withdraw, and there are some auto-immune problems or depression in genes of mother's or father's family. We could probably add a lot more similarities, but does this really tell us something? It may all be a coincidence, but maybe there is a connection there.
My husband is a firefighter and I am a high school computer teacher. We have a daughter that is 4 years old and she is not autistic but does have a heart defect and murmur. Andrew was a good baby. He was 9lbs 7oz. I had to deliver C-section because he was breech and he was 2 weeks overdue. The placenta had begun to deteriorate a little so I have always been worried that I had done something during the end of my pregnancy to harm Andrew, but he met all his milestones on-time or early. His sister (17 months older) was an easy pregnancy, fast natural delivery (5 hours), and I felt great afterwards. When I was pregnant with Andrew I had morning sickness, food poisoning (had to take a anti-nausea prescription for that, could it have caused problems?). My body has not been the same since Andrew. My C-section incision became infected and I was very sick for a few weeks. I eventually was diagnosed with psoriatic arthritis (positive ANA blood test too), and put on Paxil to help with a "sadness" that had set in. I had been tested for immune problems before having children because I did not want to pass on problems, but everything tested fine. My mom died of Lupus complications and I knew Lupus could be hereditary. My sister's beautiful daughter, who is now 11, has had many auto-immune problems (juvenile diabetes, pernicious anemia, hypothyroidism, & epilepsy{not considered autoimmune?}). Only my mother and my niece had ever shown these types of problems so I thought I might be safe because there was no connection at that time. My daughter does not have any of these medical conditions at this time and my psoriatic arthritis, joint pain, and psoriasis have been very manageable.
When Andrew was a year old (summer of 1999), my in-laws came to visit. He was so sweet during those 3 weeks. He let them hold him, play with him, and love on him. He had a few words and was very happy and playful. He was "normal" then. Somewhere after that we started to lose him. He did have immunizations during this time. He was sick a lot and ended up the hospital on October 31, 1999 (about 6 weeks after his last set of shots), with pneumonia and what seemed to be an asthma attack, low pulse oxygen level, difficulty breathing, and very lethargic; he was exactly 17 months old. He was in the ICU because of his blood oxygen level and his trouble breathing. I know this makes me sound like a bad parent and that I should have been able to catch these things in time, but I am hoping others will understand. We had him at the doctors every 1-2 weeks after his immunizations just 6 weeks before because we were concerned about his congestion & lethargy. The pediatrician kept saying he was fine, just a virus going around and maybe he had allergies. We took him to the ER when his breathing seemed to get worse (had just been in to the doctor's office but they said he was okay). I felt there was something going very wrong. I am not sure when we started losing Andrew, but he did not come out of the hospital the same. He was no longer letting people hold him or touch him and he was withdrawn. When my in-laws saw him one year after their visit they could not believe that he was the same child. It was just a few more months before we would know the answer.....AUTISM. That was the most devastating day of my life, and only the first day in a long process of mourning. Mourning for what might have been. Mourning for what he could have achieved. Mourning for the happiness that he may never feel. Will he ever fall in love? Will he be able to drive, care for himself, have friends; will he ever be whole? What sadness we have felt from that moment on. There are nights when I still cry and hope that I will wake up from this nightmare and he will be that happy child that he once was. To wake up and not know what a horror autism truly is.
We knew something was wrong when we started to notice he would not play with other children (would go off on his own). His eye contact was okay but a little inconsistent. He wasn't answering to his name (had his hearing tested) and he was becoming more combative (he had been such a sweet and happy child).
We changed doctors and got a great Pediatrician. She monitored Andrew for a couple of months to get to know him and then she recommended an Early Intervention Program in our area (ECI-Brighton School). It was a long process. Andrew did not actually get to see an Occupational Therapist for 4 months, but at her first visit she referred him to a developmental pediatrician. That took another 3 months for insurance and then waiting to clear with the doctor's hectic schedule. Andrew did not even look up when the developmental pediatrician entered the testing room (he wasn't paying attention to others anymore). I told her we were worried about his delays (especially the speech-he had no words-he had lost the few he had). Our daycare person had told us she thought he was autistic (of course we were very upset and disagreed with her). Andrew was not very cooperative during the appointment. Could he match things, sort things, point to things? No, no, no. The result was a diagnosis of regressive autism.
I was devastated. My husband had just left for a month to go to Hazardous Materials School. I was alone and had to stay strong for Andrew and his sister. I got on the Internet and looked up the Autism Society and read what the ECI program gave me. The books they gave me to read told me about how the brain had been damaged, theories of why it happened, and how his life would never be normal. The literature all implied that Andrew would grow up to live in an institution, a "home", or with us because he could never care for himself. Thank goodness I did not accept those answers and that I continued to reach out to others who had been through this before.
One of the places I called, Busy Bodies, (they do therapy that involves body movements along with speech and behavior therapy), invited me to an informal support group where parents could talk and the kids could play in the gym. They first told me to stop reading all of those books and to read hopeful ones. I saw all of their children were talking; a different singsong type talk. I met some wonderful people that night that gave me hope even though I had a hard time not crying through the whole event.
Now we are working hard in therapy and trying to appreciate what we have. I know things could be a lot worse. We don't know what the future holds and the odds are against us. Some days are hard. Trying to work (to have money for therapy) and manage a family and Andrew's autism can be overwhelming. I am taking a year off so that we can increase his therapy and so I can work with him more. It will be a hard year but I am hoping we will see improvements. We just try to appreciate the small things, like the day Andrew said "Mama" and gave me a hug or his latest new phrase-"love you." Those are most precious and we savor each one.
I am trying to view the hard days as challenges. One of the challenges is taking him out in public. We try to do this to expose him to other people and to acclimate him to other sounds, lights, and smells. Our consultant advised us to do this. We are in no way embarrassed by the scenes we sometimes create, but we do feel protective of Andrew and don't appreciate the comments or looks that we sometimes get. I created a business card that explains Andrew's condition and why he may appear different and I ask them to be sensitive to those less fortunate than they are. I got this idea from another family and have since enjoyed reading other family's cards. Now when we are experiencing a difficult moment and a stranger does something that signals that they "NEED" one of my sensitivity cards, I can feel like I am educating another person about Autism. Hopefully they will not be so judgmental towards other children and will begin to appreciate what they have and maybe even help educate others.

Sensitivity Card:
_________________________________________________

MY CHILD IS AUTISTIC.
Autism is a pervasive neurological disorder that impairs language development, communication and social interaction. It is more prevalent than multiple sclerosis, cerebral palsy or Down syndrome. New estimates show that up to 1 in every 175 people will be affected. Autism will affect 22 new babies born today and every day in the US.
Part of his treatment and therapy is to bring him out in public and expose him to things that he is sensitive to like sounds, lights, & activities. Please be sensitive to our situation. This is a very debilitating disorder that we struggle with every minute of every day. Thank you
__________________________________________________

If you know of a family that deals with autism/pdd, please learn as much as you can and ask them how you can help. Good Luck to all of the families out there who are struggling.
I will keep you in my thoughts and prayers.

I saw this published in our local paper and it seemed so true. I think it really strikes a chord with parents of disabled children and of dreams shattered.

WELCOME TO HOLLAND
by Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to
help people who have not shared that unique experience to understand it, to imagine
how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy.
You buy a bunch of guide books and make your wonderful plans. The Coliseum. The
Michelangelo David. The gondolas in Venice. You may learn some handy phrases in
Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off
you go. Several hours later, the plane lands. The stewardess comes in and says,
"Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed
to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you
must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place,
full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new
language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after
you've been there for a while and you catch your breath, you look around.... and you
begin to notice that Holland has windmills....and Holland has tulips. Holland even has
Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging
about what a wonderful time they had there. And for the rest of your life, you will say
"Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that
dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never
be free to enjoy the very special, the very lovely things ..... about Holland.

c1987 by Emily Perl Kingsley. All rights reserved

WHAT WE ARE TRYING FOR ANDREW RIGHT NOW:

1. ABA therapy with some Verbal Behavior mixed in.
2. Some sensory integration.
3. Speech therapy.
4. Occupational therapy.
5. Small doses of Super Nu Thera-which we no longer are giving since it seems his system can't handle it at this time.
6. No milk and avoid dairy products. This was very hard because Andrew craved milk and drank gallons of it a day. We had to find other ways of getting him calcium like calcium enriched drinks.
7. Starting with a PPCD unit that goes inclusive with the pre-K 30 minutes out of the 3 hour day. We hope this will not cause any regression. Our goal is for him to gain more social skills, play with other kids, and have more contact with other adults in authority. The is an autism unit that he could have gone into, but he had progressed past the kids that are in that unit. If we had not been doing ABA, he would have fit in there.
8. We are seeing Dr. Vernon James with TCART (Texas Center for Autism Research and Treatment). We need to find out what medical/biological problems Andrew has and then deal with them. His pyruvate kinase, rbc test came back as "DETECTED" and that may mean his liver is not flushing out his system correctly and that he may have metals in his blood. It has been suggested this is mercury from Thimerosal in some of his vaccinations. Imagine giving a newborn baby vaccinations when only hours old (some of these shots have mercury in them) and then added more mercury every few months for the first 18 months of his life. When he gets his MMR cocktail at 12 months, his intestines/gut are already overwhelmed (milk added to diet, mercury from vaccines, antibiotics used for ear infections, etc..). Don't forget the big vaccination at 15-18 months-DPT with mercury (please ask for Thimerosal-free vaccines and have the doctor separate the MMR-).
UPDATE 9-10-01-Andrew has yeast problems in his gut (positive from testing). We will be trying meds for this after he has been on his new diet for 30 days.

WHAT WE TRIED & DIDN'T WORK FOR US:

1. The GF part of the GFCF diet. Andrew had a bad reaction to this diet. I think it is because he is allergic to something that we were giving him during that time. We will probably try this again after we have him tested for food allergies. I encourage everyone that may have a child with bowel problems (diarrhea, constipation, vomiting) to try this diet. It is very hard to do, but many children have gotten much better when on the diet. There are also enzymes that you can give your child when they are eating if the diet is not for you. See my DIET page to find good GFCF links. UPDATE: The tests run showed him reactive to 41 foods out of the 150 tested. Some of the main foods he is reactive to are: Milk, soy, rice, beef, pork, banana, and yeast. Check the DIET page for more info.
2. DMG-it gave him a fever the 2 times we tried it. This may mean that it was going to work but it scared us too much. We will wait until we have his gut tested and it is healed before we try other things. There are theories that giving your child some of these things can actually be harmful if the "gut" is not healed. It is better to heal the gut and take things that help that process.

The Madore's at the Guadalupe River in the Texas Hill Country.

BEHAVIOR INTERVENTION FOR YOUNG CHILDREN WITH AUTISM: A Manual for Parents and Professionals (This is what we use for our curriculm).
Edited by: Catherine Maurice Coedited by Gina Green & Stephen C. Luce.

TEACHING DEVELOPMENTALLY DISABLED CHILDREN: The ME Book
(1981) Write: Pro-Ed, 8700 Shoal Creek Blvd., Austin, TX 78757 Phone: (512) 451-3246 Internet Address: www.proedinc.com

LET ME HEAR YOUR VOICE.The reader may also be helped by reading a book written by a mother of an autistic child: Maurice, Catherine. Alfred A. Knopf, publisher, New York: 1993.

FACING AUTISM: Giving Parents Reasons For Hope And Guidance For Help: Hamiliton, Lynn M., WaterBrook publisher, Colorado: 2000.

AUTISM & PERVASIVE DEVELOPMENTAL DISORDER: A Mother's Story of Research & Recovery
Seroussid, Karyn. Simon & Schuster, publisher, New York: 2000.

ASPERGER SYNDROME AND DIFFICULT MOMENTS: Practical Solutions for Tantrums, Rage, and Meltdowns by Brenda Smith Myles, Jack Southwick (Paperback - June 1999).

TEACHING CHILDREN WITH AUTISM: Strategies to Enhance Communication and Socialization by Kathleen Ann Quill (Paperback).

RIGHT FROM THE START: INTENSIVE INTERVENTION FOR CHILDREN WITH AUTISM by Mary Jane Weiss, Ph.D., and Sandra Harris, Ph.D., both from the Rutgers University Center for Applied Psychology. (1998, Woodbine Press)

A WORK IN PROGRESS: BEHAVIOR MANAGEMENT STRATEGIES & A CURRICULUM FOR INTENSIVE BEHAVIORAL TREATMENT OF AUTISM by Ron Leaf, John McEachin, and Jaisom D. Harsh. (1999, DRL Books)

ACTIVITY SCHEDULES FOR CHILDREN WITH AUTISM: TEACHING INDEPENDENT BEHAVIOR by Lynn E. McClannahan, Ph.D., and Patricia J. Krantz, Ph.D. (Woodbine House, 1999).

TEACH ME LANGUAGE: A LANGUAGE MANUAL FOR CHILDREN WITH AUTISM, ASPERGER'S SYNDROME AND RELATED DEVELOPMENTAL DISORDERS by Sabrina Freeman, Ph.D., and Lorelei Dake, B.A. (British Columbia, Canada: 1996, SKF Books) SKF Books, 20641 46th Avenue, Langley, B.C., Canada V3A 3H8.

WHOLE CHILD, WHOLE PARENT by Polly Berrien Berends (New York: 1983, Harper & Row). Not a book on Autism but is a good book for parenting.

The 1987 Study: "Behavioral Treatment and Normal Educational and Intellectual Functioning in Young Autistic Children," O.I. Lovaas, Journal of Consulting and Clinical Psychology #55 (1987), pg.s 3-9. ·

The 1993 Follow-up: "Long-term Outcome for Children with Autism Who Received Early Intensive Behavioral Treatment," J. McEachin, T. Smith & O.I. Lovaas, American Journal on Mental Retardation #4 (1993), pg.s 359-372.

"Criteria for Appropriate Treatments," a letter by Dr. Lovaas that "is intended to address the question of what constitutes an appropriate therapeutic intervention for a child diagnosed with autism." The document is dated 4/6/95 and is available from the UCLA Department of Psychology, Box 951563, Los Angeles, CA 90095-1563.

"Case Study: Deterioration, Autism, and Recovery in Two Siblings," R. Perry, I. Cohen & R. DeCarlo, (1995). Journal of the American Academy of Child and Adolescent Psychiatry, 34, pgs. 232-237.

"Interview with Ivar Lovaas," Autism Society of America, Advocate #26, (1994) pgs. 13-15.

"Special Treatment Aids Autistic Children," Maine Sunday Telegram, 12/17/95, pg. 14B. "Intense Therapy Shows Signs of Helping Autistic Children," Washington Post, 1/24/95, Sec. WH, pg. 10.

"The Murdoch Early Intervention Program After 2 Years," J.S. Birnbrauer & D.J. Leach (1993). Behavior Change #10, pgs. 63-74.

"Autism: A New Behavioral Treatment," by Ivar Lovaas, Ph.D., Harvard Medical School Mental Health Letter, June, 1989. The Autism Research Institute publishes a quarterly newsletter and many information packs. ARI's director is Bernard Rimland, Ph.D. Autism Research Institute 4182 Adams Avenue San Diego, CA 92116.

CLASSROOM
This is where our ABA therapy takes place. We have centers (reading, construction, music, arts & crafts, and pretend play) that keep him moving. We often move in and out of this room during the two hour sessions for his breaks and sensory needs.

SENSORY ROOM/GYM
This is a great place for "breaks" and to help with transitioning. It helps him work off his "hyperness." In this room we have tunnels and tents to hide objects in for Andrew to find. We have a basketball hoop and trampoline to have him run and jump and follow commands. We have a ball pit to help calming. There are carpet squares for circle time and to sit on to play games. We have all sorts of sport's equipment such as: hoola hoops (use on the floor to jump in or out of), soft Frisbees, kids rackets, bats of all sorts with soft balls and gloves, and containers filled with beans, noodles and rice for sensory play (Andrew actually likes to sit in the big container of beans and he will move around and pore more beans over himself). Busy Bodies and Sensory Integration at Warm Springs really helped out side the home with these sensory needs he has.

PLAYROOM
In here we have the computer, play kitchen and house with lots of food and dolls,
the reading area, cars with tracks, an arts and crafts area, and the kid's TV/VCR.

FIELD TRIPS
When learning about places and the community, our therapist would take our "class" on field trips to places like the zoo, library, restaurant, playground, McDonalds, Chuck E Cheese, grocery store, and for a ride on the city bus. This helped his behavior, social, and sensory skills.

STARTING POINTS
The information below is by no means a thorough listing of ABA help,
but I am hoping it will at least give you a place to start.

United States

California

Applied Behavior Consultants School (ABC)
4550 Harlin Drive
Sacramento, Ca 95826
Phone: 800-435-9888 or 916-568-1111
Fax: 916-568-1112
E-mail: jmorrow223@aol.com
Web site:
http://www.onlearn.com/abc.html

Austin Partnership
200 Marina Drive, Suite C
Seal Beach, CA 90740-6057
Phone: 562-431-9293]
Fax: 562-431-8386
E-mail: autismptnr@aol.com

Behavior Analysts, Inc/ S.T.A.R.S School (Strategic Teaching and Reinforcement System)
3329 Vincent Road
Pleasant Hill, CA 94523
Phone: 925-210-9378
Fax: 925-210-0436
E-mail: stars@corteks.com
Web site:
http://www.corteks.com/stars

Behavior Therapy and Family Counseling Clinic
32123 Lindero Canyon Road, Suite 302
West Lake Village, CA 91361
Phone: 818-706-9913, ext. 4
Fax: 818-706-6093
E-mail: btfcc@best.com
Web site: http://www.btfcc.com

Center for Autism and Related Disorders (CARD)
2061 Business Center Drive, Suite 202
Irvine, CA 92612
Phone: 949-833-7736
Fax: 949-833-7566

Center for Autism and Related Disorders (CARD)
5677 Oberlin Drive, Suite 200
San Diego, CA 92121
Phone: 619-558-4567
Fax: 619-558-9250

Center for Autism and Related Disorders (CARD)
23300 Ventura Boulevard
Woodland Hills, CA 91364
Phone: 818-223-0123
Fax: 818-223-0133
E-mail: cardla2@aol.com
Web site: http://www.cardhq.com

Center Valley Autism Project
1518 Coffee Road, Suite C
Modesto, CA 95355
Phone: 209-613-7220
Fax: 209-578-4272
Web site:
http://www.lovvas.com/cvapl.htm

Institute for Applied Behavior Analysis
5777 West Century Boulevard, Suite 675
Los Angeles, CA 90045
Phone: 310-649-0499
Fax: 310-649-3109
E-mail: iabala@attmail.com
Web site: http://www.iaba.com

Lovaas Institute for Early Intervention
2566 Overland Avenue, Suite 530
Los Angeles, CA 90064-3366
Phone: 310-840-5983 ext.100
Fax: 310-840-5987

UCLA Young Autism Project
Dept. of Psychology
1282A Franz Hall
Box 951563
Los Angeles, CA 90095
Phone: 310-825-2319
Fax: 310-206-6380
Valley Mountain Regional Center
P.O. Box 692290
Stockton, CA 95269
Phone: 209-473-0951
Fax: 209-473-0256

Connecticut

Innovative Developments for Educational Achievement (IDEA)
20 Washington Avenue, Suite 108
North Haven, CT 06473
Phone: 203-234-7401
Fax: 203-239-4348
E-mail: ideasb@cshore.com

Florida

Reaching Potentials, Inc.
7390 NW 5th Street, #9
Plantation, Fl 33317
Phone: 954-321-7393
Fax: 954-321-1019
E-mail: RpforAutism@hotmail.com or info@reachingpotentials.org
Web site:
http://www.reachingpotentials.org

Illinois

Illinois Early Autism Project
Linden Oaks Hospital
852 West Street
Naperville, IL 60540
Phone: 630-718-0313
Fax: 630-718-0314

Maryland
Community Services for Autistic Adults
And Children (CSAAC)
751 Twinbrook Parkway
Rockville, MD 20851-1428
Phone: 301-762-1650
Fax: 301-762-5230
E-mail: csaac.org
Web site: http://csaac.org/index.html

Massachusetts

The May Institute
940 Main Street
P.O. Box 899
South Harwich, MA 02661
Phone: 508-432-5530
Fax: 508-432-3478
E-mail: information@mayinstitute.org
Web site: http://www.mayinstitute.org

The New England Center for Children
(NECC)
33 Turnpike Road
Southboro, MA 01772-2108
Phone: 508-481-1015
Fax: 508-485-3421
E-mail: ksenecal@necc.org
Web site: http://www.NECC.org

Michigan
The Association for behavior Analysis
213 West Hall
Western Michigan University
1201 Oliver Street
Kalamazoo, MI 49008-5052
Phone: 616-687-8341 or 616-387-8342
Fax: 616-387-8354
E-mail: 76236.1312@compuserve.com
Web site: http://www.wmich.edu/aba/Autismwebfile.html
This association deals with using ABA for
Autism as well as other disorders.
They can provide direction on finding
An ABA provider, and their Web
Site gives training guidelines for Qualified
ABA professionals.

Minnesota

Families for Effective Autism Treatment of
Minnesota
1821 University Avenue
Suite 324 South
St. Paul, MN 55104
Phone: 612-927-0017
E-mail: elarsson@worldnet.art.net
Web site: http://208.210.146.138/abta/

Nevada

Early Children Autism Program
Department of Psychology / 296
University of Nevada
Reno, NV 89557
Phone: 775-784-1128
Fax: 775-784-1126

New Jersey

Alpine Learning Group
777 Paramus Road
Paramus, NJ 07652
Phone: 201-612-7800
Fax: 201-612-7710
Bancroft School
P.O. Box 20
Hopkins Lane
Haddonfield, NJ 08033-0018
Phone: 800-774-5516 or 856-429-0010
Fax: 856-429-4755
E-mail: Inquiry@Bancroftneurohealth.org
Web site: http://www.Bancroftneurohealth.org

Douglas Developmental Disabilities Center
Rutgers, the State University of New Jersey
25 Gibbons Circle
New Brunswick, NJ 08901-8528
Phone: 732-932-9137
Fax: 732-932-8081
Web site: http://www.rci.rutgers.edu/~gsapp/gsappweb/dddc.html

Douglas Outreach
Rutgers, the State University of New Jersey
30 Gibbons Circle
New Brunswick, NJ 08901-8528
Phone: 732-932-3902 Fax: 732-932-4469
E-mail: kdvorak@rutgers.edu

Eden Family of Services
One Logan Drive
Princeton, NJ 08540
Phone: 609-987-0099
Fax: 609-987-0243
E-mail: EdenSvcs@aol.com
Web site: http://members.aol.com/EdenSvcs/index.html

New Jersey Institute for Early Intervention
52 Haddonfield-Berlin Road,
Suite 4000
Cherry Hill, NJ 08034-3502
Phone: 856-616-9442
Fax: 856-616-9454

Partners in Therapy, Inc.
804 Park Avenue
Collingswood, NJ 08034-3502
Phone: 856-858-3673
Fax: 856--869-9469
E-mail: partner1@ix.netcom.com

Princeton Child Development Institute
300 Cold Soil Road
Princeton, NJ 08540-2002
Phone: 609-924-6280
E-mail: njpcdi@earthlink.net
Web site http://www.pcdi.org

Rutgers Autism Program
41 Gordon Road, Suite A
Piscataway, NJ 08854
Phone: 732-445-1141
Fax: 732-445-7970
Web Site: http://www.rci.rutgers.edu/~rapsite

New York

Center for Autism and Related Disorders
(CARD)
280 North Central Avenue, Suite 314
Hartsdale, NY 10530
Phone: 914-683-3833
Fax: 914-683-3836

Eden II Programs / Genesis School
150 Granite Avenue
Staten Island, NY 10303
Phone: 718-816-1422
E-mail: eden2si@aol.com
Web site: http://www.eden2.org

Fred S. Keller School
1 Odell Plaza
South Westchester Executive Park
Yonkers, NY 10701
Phone: 914-956-1152
Fax: 914-956-1419

North Carolina

Building Blocks Children's Group
1102 North Main Street, Suite 202
High Point, NC 27262
Phone: 336-886-8019
Fax: 336-886-8661
E-mail; BBlkChldGr@aol.com

Center for Autism and Related disorders
(CARD)
3711 W. Market Street, Suite B
Greensboro, NC 27403
Phone: 336-855-1700
Fax: 336-855-1787

Meredith Autism Program
Meredith College- Department of
Psychology
3800 Hillsborough Street
Raleigh, NC 27607-5298
Phone: 919-760-8080 Fax: 919-760-2303

Oregon

Project PACE, Inc.
9725 SW Beaverton Hillsdale Highway
Suite 230
Beaverton, OR 97005
Phone: 503-643-7015 Fax: 503-641-3640
E-mail: hred@projectpace.com
Web site: http://www.projectpace.com

Pennsylvania

The Childhood Learning Center
98 Fairview Street
Reading, PA 19605
Phone: 610-929-9459
Fax: 610-929-4066
E-mail: cynthia@tclc.com or info@tclc.com
Web site: http://www.tclc.com

Pittsburgh Young Autism Project
Intercare - Brentwood Office
4411 Stilley Road / Route 51
2nd floor, Suite 202
Pittsburgh, PA 15227
Phone: 412-881-3902
Fax: 412-881-3599

South Carolina

Autism Research Center, S.C.
P.O Box 1066
Anderson, SC 29622
Phone: 864-260-9005
Fax: 864-226-8902
E-mail: drbmetzger@aol.com

Texas

Texas Young Autism Project
Department of Psychology
University of Houston
Houston, TX 77204-5341
Phone: 713-743-8610
Web site: http://www.uh.edu/tyap

Terri Locke
Behavior Consultant, Parent Training,
Home & School Intervention,
Vocational & Functional Life Skills Training
Phone (published with permission)
210-771-3166

Busy Bodies
Sue Selander
San Antonio, TX
Gross Motor Movements & skills with ABA approach,
Handwriting & School Help
210-545-2840

Virginia

Center for Autism and Related Disorders
(CARD)
5105-P Backlick Road
Annandale, VA 22003
Phone: 730-256-6383
Fax: 703-256-6384

Washington

Northwest Young Autism Project
Department of Psychology
Washington State University
P.O Box 644820
Pullman, WA 99164
Phone: 509-335-7750
Fax: 509-335-2522

Wisconsin

Autism and Behavioral Consultants
349 Winnebago Drive
Fond du Lac, WI 54935
Phone: 920-926-1255
Fax: 920-921-1798

Families with Autism Counseling and Resource Center
49 Kessle Court
Madison, WI 53711
Phone: 608-231-300, ext. 350

Integrated Developmental Services
14 Ellis Potter Court
Madison, WI 53711
Phone: 608-441-0123
Fax: 608-441-0126

Wisconsin Early Autism Project (W.E.A.P)
272 East Walnut Street
Green Bay, WI 53711
Phone: 920-431-3380
Fax: 920-431-0256
E-mail: weapgd.jobs.@wiautism.com

Wisconsin Early Atuism Project (W.E.A.P.)
2433 North Mayfair Road, Suite 102
Wauwatosa, WI 53226
Phone: 414-479-9798
Fax: 414-479-9805
E-mail: weapmil.jobs@wiautism.com

The Young Autism Project at UCLA
UCLA Dept. of Psychology
405 Hilgard Avenue
Los Angeles, California 90024-1563
310-825-2319 tel.
310-206-6173 fax

The Early Childhood Intervention Center, Inc.
2124 Broadway, #338
New York, NY 10023
212-606-2036, Fax 212-877-1276.

Rutgers Center for Applied Psychology
41 Gordon Rd.
P.O. Box 5062
New Brunswick, N.J. 08903-5062
phone: 732-445-7778
extension #18: Ellen Picollo

Ivar O. Lovaas
1-310-825-2319
lovaas@psych.sscnet.ucla.edu
Note - Ivar Lovaas usually doesn't answer mail sent to this ID.

Center for Autism and Related Disorders, CARD.
CARD is run by Dr.Doreen Granpeesheh who did her PhD under Dr.Lovaas.
CARD does in-home workshops around the world.
CARD will come to your house within 3 weeks of contact.
Phone = 818-995-4673
Fax = 818-995-4679

Behavioral Intervention Associates (B.I.A.)
14 Crow Canyon Court, Suite 100
San Ramon, CA 94583
Tel: (510) 855-1350
The director of the program is Hilary Stubblefield

The Wisconsin Early Autism Project (WEAP) provides in-home workshops around the United States. They are also a
replication site for Lovaas. Here is the address: Wisconsin Early Autism Project
Child & Family Psychological Services
2828 Marshall Court, Suite110
Madison, Wi 53705
(608) 233-1551 Sally Brockett, M.S., Director

Innovative Developments for Educational Achievement, Inc. (IDEA)
20 Washington Ave., Suite 108
North Haven, CT 06473
203-234-7401

The May Center for Early Childhood Education
10 Acton Street
Arlington, MA 02174 Phone: (617)648-9260

Autism Partnership
Directors: Dr. Ronald Leaf & Dr. John McEachin
3346 Olive Avenue
Signal Hill, CA 90807
(310) 424-9293

Valley Mountain Regional Center
P.O. Box 692290
Stockton, California 95269-2290
209-473-0951 tel.

Alta California Regional Center
2031 Howe Avenue, Suite 100
Sacramento, California 95825
916-929-0500 tel.
Glen Sallows, Ph.D.

Wisconsin Early Autism Project
2828 Marshal Court, Suite 110
Madison, Wisconsin 53705
608-233-1551
608-836-9131

Dr. Carryl Navalta
Lovaas Study
May Institute
10 Acton Street
Arlington, MA 02174
617-648-9260

Tristram Smith, Ph.D.
Washington State University
Pullman, Washington 99164-4820
509-335-7750

Dr. John Mc.Eachin
Autism Partnership
3346 Olive Avenue
Signal Hill CA 90807
(310) 424-9293, ext. 306 for Dr. McEachin, ext. 375 for Dr. Leaf

Greg Buch, Ph.D.
3116D Oakroad, Suite 106
Walnut Creek, California 94596
(510)938-4508

Doreen GranPeesheh, PhD.
Center for Autism and Related Disorders (CARD)
15840 Ventura Boulevard, Suite 301
Encino, California 91436
818-995-4679 tel.

Keli Larson, M.A.
1508 8th Avenue, Northeast
Rochester, Minnesota 55906
(507)282-0516

The Center for Applied Psychology
Rutgers University
New Brunswick, New Jersey
908-445-7778 tel.

Terri Locke
Behavior Consultant, Parent Training,
Home & School Invervention,
Vocational & Functional Life Skills Training
Phone (published with permission)
pager: 210-713-9533-San Antonio, Texas

Sandra J. Rowan, M.A.
Comunidad Los Horcones
Apartado Postal #372
Hermosillo Sonora Mexico
CP 83000
Tel/Fax (62) 14 72 19
E-Mail: walden@imparcial.com.mx

Ethel W. Hetrick, Ph.D. (Director)
Oak Forest Psychological Services
2834 Bill Owens Pkwy.
Longview, Texas 75605
Office: (903) 759-6588
Fax: (903) 759-4904
EHetrick1@aol.com

The diet is a new aspect we will be trying for Andrew.
I never thought Andrew had any real diet problems except re seemed allergic to milk. We removed milk from his diet a little after diagnosis because he always seemed to be a little more congested when he drank it. We had not read anything yet about milk allergies and autism. The first book that I read was given to me by another mom whose autistic son's behavior greatly improved on the diet. Anytime her son managed to each something not on the GFCF diet,
he really acted out and had other problems such as: disturbed sleep, loose stools, and wild behaviors.
The book was called Unraveling the Mystery of Autism & Pervasive Developmental Disorder: A Mother's Story of Research & Recovery by Karyn Seroussi. I had been putting off the diet because I was still working and I knew it would be a major overhaul in our life. After reading this book I knew that I should not wait a single second. I could be hurting Andrew everytime I gave him one of those foods (which were his favorite). Thankfully I had removed the milk from the beginning and tried to avoid dairy products for him. I encourage you to read this book before deciding not to try the diet.
The diet is an all or nothing approach for it to work. I will be trying it through the summer of 2001 and will keep you updated.

One of the key tenants of the DAN Protocol is returning to a diet that is healthy. To quote Dr. Baker, "The American diet is not fit for human consumption." Elimination of refined sugars, junk foods, artificial additives, and the other things that are common in the diet of most children in the United States does nothing to promote good health. Instead it loads their system with unnecessary substances some of which have been shown to be harmful. A Gluten Free/Casein Free diet is also an important step toward implementing the DAN Protocol. The GFCF diet has been shown to have beneficial affects in Autistic children and is a key component of the Protocol. These substances often are found in laboratory blood tests that are done on Autistic children, as well as in urinary peptide tests. The DAN Protocol suggests specific lab testing that should be done, and provides a list of recommended laboratories to do these tests. These labs have been found to provide the best quality information about the test results and help the treating physician determine the priorities that must be addressed in each individual case. We are having Andrew tested for Celiac Disease, yeast, and fungus.

It is important to remember every child is different and not everything will work for every child, including the diet. Some children benefit from removing all artificial colors and flavors. Other children need sugars and yeast removed.

Dietary supplementation is also a key ingredient of this treatment method. Many Autistic/PDD children have been found to have deficiencies in various vitamins and minerals. The combination of all of the above factors have been shown to have sometimes dramatic effects on Autistic children, but the people at DAN are the first to admit that it is not a "cure all" and that all improvements may not be solely the result of the protocols. Autism is a complex illness, and there are multiple factors that may influence it's course.

The Protocol involves a combination of changes to the diet and implementation of vitamin supplement therapy as a means of producing changes in Autistic behaviors. These changes include the following steps, according to published information.

1.Eliminate dairy products. The introduction of a Casein free diet appears to be primary in the treatment of Autism by means of this Protocol. Instead of cow's milk, substitute rice or soy milk or use Vitamite (chocolate) as a replacement.

2.Eliminate cereal grain products. Gluten has been shown to aggravate the digestive systems of individuals and with the known bowel involvement found in Autistic/PDD children, this action helps to relieve these problems. Instead substitute rice or another product for the Gluten containing wheat.

3.Eliminate junk foods and other food products that contain refined sugars. These are not necessary to good health and in fact have been shown to be harmful, due to their chemical composition and the artificial additives that are included in many of them. A "natural" source of sugar, such as fruit offers a much better alternative.

4.Supplement the diet with the vitamin and mineral therapy. Below is a list of the supplements and their dosages which are recommended:
Calcium: 300 mg twice a day. This can be done in two doses, or once at bedtime to facilitate sleep.
Magnesium: 50 mg twice a day
Vitamin C: 50 mg twice a day
Vitamin B5: (Pantothenic Acid) 500 mg twice a day
Vitamin B6: 100 mg twice a day1 multiple vitamin daily
DMG: 125 mg twice a day
Pycnogenol: 50 mg twice a day Gaba: 75 mg twice a day

5.If your child is currently taking any medications especially those such as Prozac or Ritalin, it is recommended that you discontinue use before beginning Secretin infusions. I know of families that have struggled with the after effects of secretin so I urge caution.

As with any treatment, the DAN Protocol should only be undertaken with an experienced autism physician.

U.S.A.

Abersold Foods
P.O. Box 3927
Citrus Heights, CA 95611
Vance's Dari Free (non-dairy beverage mix)
1-800-275-1437
1-800-497-4834
fax 1-800-497-4329
www.abersoldfoods.com

Arrowhead Mills, Inc
Box 2059 Hereford, TX 79045
www.wholefoods.com
Gluten free Pancake and Baking Mix

Adrienne's Gourmet Foods
849 Ward Drive
Santa Barbara, CA.93111
(800)937-7010

American Spoon Foods
PO Box 566
Petoskey, MI 49770
(616)347-9030, (888)735-6700
http://www.spoon.com
Email: information@ spoon.com
Jellies, preserves, compotes, dried fruits

Authentic Foods
1850 W. 169th Street, Suite B
Gardena, CA 90247
(800)806-4737
www.authenticfoods.com
(mixes, baking supplies, GREAT pancake mix)

Carolina Country Kitchen, Inc.
P.O. Box 1371
Flat Rock, NC 28731-1371
(828)693-6549

'Cause You're Special, Inc.
P.O. Box 316
Phillips, WI 54555
1-815-877-6722
www.causeyourespecial.com
email- foodallergy@rockriver.net

Cecilia's Gluten-Free Grocery
300 different gluten-free goodies from about 40 different vendors
some items contain casein - verify when ordering
www.glutenfreegrocery.com
E-Mail: info@glutenfreegrocery.com
Phone: 775-827-0672
Fax: 775-827-5850
Toll-Free Number (Orders Only): 1-800-491-2760

De-Ro-Ma Ltd.
910 Jarry Blvd.
Chomedey, Laval (Qc) Canada H7w 2W6
(800)363-diet
http://www.cosmo2000.ca/deroma/liste_en.html
(huge selection of cookies, crackers, pasta, etc. from around the world)

Dining By Design
www.diningbydesign.com
phone 402-327-8880
FAX 402-327-8496
Vegan online restaurant will provide nutritious meals for children with special dietary needs. (Specify food must be gluten and casein free.) Prepared meals can be ordered on line and sent straight to your door. This is a service for parents who may not have the time or expertise to prepare meals at home themselves.

Edy's Whole Fruit Sorbet
Oakland, CA home office
www.edys.com/freezer/taste.html

Ener-G Foods www.ener-g.com
5960 First Avenue So.
PO Box 84487
Seattle, WA 98124
(206)767-6660 (800)331-5222 FAX(206) 764-3398
breads, pizza shells, donuts, mixes snacks, cookies, pastas, soup
mixes, gelatin desserts

Food For Life Baking Co.
2991 E. Doherty St.
Corona, CA 91719
http://food-for-life.com/
1-800-797-5090 or 1-909-279-5090
makes great rice bread!

Gillian's Foods, Inc.
462 Proctor Avenue
Revere, MA 02151-5730
Phone: (781)286-4095
www.GilliansFoods.com/
e-mail: R357BOBO@aol.com

Imagine Foods, Inc.
350 Cambridge Ave Suite 350
Palo Alto, CA 94306
650-327-1444
650-327-1459 fax

The Gluten-Free Mall
Specialists in gluten free and casein-free diets Food from 14 different manufacturers)
Specify when ordering that every product must be gluten free and casein free
www.glutenfreemall.com

The Gluten-Free Pantry
P.O. Box 840
Glastonbury, CT 06033
(800)291-8386
http://www.glutenfree.com/
(mixes, baking supplies, pretzels)

Kinnikinnick Foods
10306-112 Street
Edmonton, Alberta, Canada T5K 1N1
877-503-4466
780-424-2900
Fax 780-421-0456
www.kinnikinnick.com
info@kinnikinnick.com
The Alta GFCF Logo will be shown on the packages, website and all literature
to identify guaranteed GFCF products. Any product with the Alta Logo next
to it is guaranteed 100% GFCF.
Alta Protocol means:
Dedicated production time
Dedicated Baking pans
Dedicated equipment

MenuDirect
Dietary Specialties
865 Centennial Ave.
Piscataway, NJ 08854
1-888-MENU123
http://www.dietspec.com/
pretzels, mixes, condiments, baking supplies, cookies, pasta, snacks

Miss Roben's
Box 1149
Frederick, MD 21702
1-800-891-0083
Fax 1-301-631-5954
pretzels, home-made mixes for cakes, muffins, cookies, pancakes, etc.
Snacks, cookies, crackers, pasta, puddings, wafers, GFCF chocolate bits,
Order catalogue: http://www.missroben.com
Email: info@missroben.com

Natural Noodles
PO Box 24006
Penticton, BC
V2A 8L9 Canada
1-800-556-3339 phone or fax
natural@telus.net
http://www3.telus.net/noodles

Twin Valley Mills
RR 1 Box 45
Ruskin, Nebraska 68974
402-279-3965
Sorghum Flour
(substitution for wheat flour in a wide variety of baked goods)
http://www.twinvalleymills.com/

[Reminder: Always remember when ordering from any manufacturers "on line" you specify gluten
and casein free]

The Really Great Food Company
P. O. Box 319
Malverne, NY 11565
1-800-593-5377
(Good cornbread mix)

Shelton's of Pomora, CA
makes bologna & hot dogs both from turkey or chicken
that is gfcf, corn free, soy free, no nitrates

Soyco/Soymage Foods
2441 Viscount Row
Orlando, FL 32809
www.soyco.com/dairy.html
Soymage Dairy/Casein Free Products

Sterk's Bakery
Vineland, Ontario, Canada
(800)608-4501

Yorkshire Farms
Swedesboro, NJ
www.Yorkshirefarms.com
GFCF Meat/ verify GFCF products when ordering

Walnut Acres Organic Farms
(800)433-3998 for a catalogue
Fax: (717)837-1146
customer service (800)344-9025

Westbrae
c/o The Hain Food Group/The Natural Food Division
255 W. Carob St.
Compton, CA 90220
(310) 886-8200 ext.112
Westbrae@aol.com

Whyte's Darifree
Non Dairy Beverage/Darifree Challenge
No Rice, No Soy, No Dairy, No Corn, No Gluten, No Oils, No Protein
http://www.darifree.com/

Kitchen Basics Inc.
Real Cooking Stocks packaged in cartons & are reduced fat and /or sodium.
No yeast, gluten, soy, milk.
Soon to be available in local Kroger stores.
Also available by phone by the case: 1-440- 838-1344

United Kingdom GFCF Food Resources

Allergyfree Direct Ltd. (United Kingdom)
5 Centremead
Osney Mead OX2 OES
phone # 01865 722003
FAX #01865 244134
http://www.allergyfreedirect.co.uk
info@allergyfreedirect.co.uk/

Allergyfree Direct offers UK home delivery of a wide range of foods suitable for people suffering from food allergies and/ or intolerances. Virtually all products are VEGAN and GLUTEN FREE. Most foods are ORGANIC and we do not knowingly supply any containing genetically modified organisms.

Asda Customer Service
phone 0500100055

Barbara's Kitchen (United Kingdom)
www.barbaraskitchen.co.uk
GFCF Flour and many recipes
phone 01443 229304

Retailer of GFCF flours, xanthan gum, GFCF chocolate drops and recipes.

Dietary Specialties
www.glutenfree-dsdirect.co.uk
phone 07041544044

GFCF Bread & Cake Mixes

Doves Farm
www.dovesfarm.co.uk
phone 01488 684880

GFCF Flours & Biscuits, etc. UK

Fresh Food Co
www.freshfood.co.uk
phone 0181 969 0351

Retailer of GFCF Products

General Dietary
phone 02083362323

Retailer of Xanthan Gum

Glutafin (Part of Nutricia Dietary Care)
www.glutafin.co.uk
phone 01225 711801GFCF

Gluten Free Foods Ltd
www.glutenfree-foods.co.uk
phone 020 8953 4444

Goodness Direct
www.goodnessdirect.co.uk
phone 01327871655

Retailer of GFCF Products

Gourmet Gluten Free Imports
www.ggfi.co.uk
phone 02392647572

Granovita
phone 01933 273717

Green People
www.greenpeople.co.uk
phone 01444 401444

Heinz
phone 01942 214057

House of Eden Scotland (United Kingdom)
Eden Place
Denhead, Kingswells
Aberdeen AB15 8PT
phone 01224 749288
www.house-of-eden.co.uk
info@house-of-eden.co.uk
Retailer of Xanthan Gum, GFCF products

Innovative Solutions UK Ltd.
www.innovative-solutions.org.uk
phone 0845 6013151
Retailer of GFCF flours, xanthan gum, pure flavorings.

KP Foods UK
phone 01530 412771

Lifestyle
www.glutenfree.co.uk
phone 01491 570000
Retailer of Xanthan Gum

Matthews Foods
www.pure-sunflower.co.uk
phone 01924 272534
GFCF margarines

McCains Foods (GB) Ltd
phone 01723 581230
Frozen potato products.

Meridian Foods Ltd
www.meridianfoods.co.uk

Nestle UK Ltd
phone 01904 604604
Sweets, ice lollies and milk shake powder.

Parsonage Pork
phone 01994448255
GFCF sausages, GFCF, nitrate/nitrite free bacon

Pickerings
phone 01603 742002
GFCF Sausages

Plamil Foods Lts.
www.plamilfoods.co.uk
phone 01303 850588

GFCF milk, chocolate, yogurt, carob drops.

Provamel www.provamel.co.uk
phone 02085772727
GFCF milks, yogurt

Pure Organics
www.organics.org
phone 01980 626264
GFCF burgers, minced beef, sausages

Safeway Customer Service
phone 01622712546

Sainsbury’s Customer Service
phone 0800636262

Somerfield/Kwiksave
Customer Service phone 01179359359

Tesco Customer Service
phone 0800 505555

Trufree (Part of Nutricia Dietary Care)
www.trufree.co.uk
phone 01225 711801
GFCF breads, biscuits

Andrew seems to have some "sensory issues" that we try to address.
He seems more aware and relaxed after jumping on his little trampoline, swimming in the pool or swinging outside.
I try to have him "sensorized"
(my word for when Andrew is done with sensory activities)
before his sessions and the therapists are trying to incorporate
it into his "break" times.
There are some Occupational Therapists that are trained in this area.
I would suggest you try some of their techniques. There are many things you can do that don't require purchasing things. My speech therapist and occupational therapist from the Early Intervention Program helped train my family and therapists how to use the activities below to "ready" Andrew's senses to learn. Once he performs some of these activities, he is more prepared to sit down, relax, and focus on his lessons.
Thanks to Annette Fears and Tami Johnson for this information
and their devoted help.

Let me know of any suggestions that you have that I can pass on to other parents.

PRESENTING PROBLEMS SEEN IN CHILDREN WITH SUSPECTED SENSORY INTEGRATION DISORDERS
(For identification of sensory system dysfunction,
several symptoms must occur together.)

INFANCY

Irritable baby
Low muscle tone
Poor sleep cycles
May dislike being on back
May startle easily
Slow development - or less than normal quality of movement

TODDLER
(above may continue with addition of the following)

Short attention span
Clumsiness
Poor Articulation
Overly upset by slight injury
Fear of walking on some surfaces
Fear of slides, other movements
Very messy eater
Slow language development
Rejects many foods because of texture

CHILDHOOD - Pre-K to 3rd grade
(above may continue with addition of the following)

Fine motor problems (i.e., handwriting, cutting, coloring)
Hyperactivity
Poor social skills
Impulsiveness
Cries easily
Dislikes textures (i.e., fingerpainting, food)
Difficulties in gross motor activities
Falls easily
Often accidentally breaks toys during play
Strong dislike for certain types of clothing
MIDDLE CHILDHOOD - 4TH - 6TH grade
(above may continue with addition to the following)

Increased academic problems/attention
Behavioral problems
Poorly organized or compulsively organized
Reversals in writing and reading
Trouble keeping up with peers in activities

PRE-ADOLESCENCE
(above may continue with addition to the following)

Organization problems
Trouble finishing homework/attention
Immature in physical skills and social relationships
More pronounced behavioral problems (i.e., acts out, picks fights)
Loses or forgets things
Often socially isolated
Chooses individual sports (i.e., running, swimming)
Chooses heavy contact sports (i.e., football, soccer)
Avoids team sports (i.e., basketball, baseball)
May be overly emotional

Information taken from: Frames of Reference for Pediatric Occupational Therapy,
Paula Kramer, Jim Hinojosa.

THE LEARNING BLOCKS OF
SENSORY INTEGRATION DEVELOPMENT

Level 4 - Academic Readiness (By 6 years)
Complex Motor Skills
Regulating Attention & Organized Behavior
Specialization of Body & Brain
Visualization
Self- Esteem & Self-Control

Level - 3 Perceptual-Motor Skills (By 3 years)
Auditory & Visual Perception
Eye-Hand Coordination (Pencil Skills)
Visual-Motor Integration
Purposeful Activity

Level 2 - Perceptual-Motor Foundations (By 1 year)
Body Percept (Body Awareness)
Bilateral Coordination
Lateralization (hand preference)
Motor Planning (Praxis)

Level 1 - Primary Sensory Systems (By 2 months)
Tactile Sense (Touch)
Vestibular Sense (Balance & Movement)
Proprioceptive Sense (Body Position)
Visual & Auditory Sense

Illustration taken from The Out-of-Sync-Child, Carol Stock Kranowitz, M.A.

Marching, jumping skipping crawling -Imitation of gross motor movements (remembering use only age appropriate skills), Demonstration of actions named, following locative directions (in, out, on top, under, around. Through. Next to, in front, in back).

Wall push-ups/push-ups, sit-ups, etc.-Discuss sequence of events, ("First we are doing push-ups, and finally we will find our seats.").

Sitting in a bean bag-Great for story time, Use during listening activities.

Obstacle Course-Imitation of gross motor movements, Demonstration of actions named, Describing actions , Following locative directions (in, out, on top, under, through, next, in front,/back).

Wheelbarrow walking-Let individuals race each other, Talk about locatives "Who was in front/behind?"

Moving chairs/desks-Rearrange room/chairs using prepositions ("Put your chair next to Cathy's chair."), Describing where they want to move their chair using prepositions/locatives.

Tug-o-war-Following directions (simple or complex), Following directions involving adjectives/adverbs, Sing songs.

Chewing on plastic tubing, twizzlers, tootsie rolls-Great during story time or for listening activities.

Chewing gum-Use only in controlled situations (only at given times).

Eating crunchy snacks, pretzels/popcorn/nuts/chips-Great to do before articulation/speech activities-wakes up the mouth.

Eat sour/bitter/spicy snacks-Great to do before articulation/speech activities wakes up the mouth.

Ring Around the Rosie- Locatives & descriptives (next to, around, up, down, fast, slow) Following directions. Turn-taking

London bridges- Locatives & descriptives (under, in, out, around, in front of, behind, fast, slow)

Sitting on a move-n-sit, a rocking chair, - Great for story time. Or a Ther-a-ball

Erasing the chalkboard in a rhythmically motion- Imitating actions following directions Describing actions using adjectives.

Exercises such as picking up cherries, jumping jacks, windmills, toe touches- Discuss body parts-great for identifying/labeling. Following a sequence of events (1st, 2nd , 3rd ).

Stretching exercises (reaching for the sky, reaching for toes, side to side)- Great relaxation exercises for the children with dysfluent speech. Discuss adjectives/locatives.

Swinging- Great for very structured one-to-one activities. Increased eye contact. Turn taking. Use of requests for "More", "Fast", Slow", etc.

Lotion/Hand sanitizer- Imitation of movements (gross & fine motor) Identifying/labeling body parts. Following directions.

Textured toys- Great for pretend play

Fidgets- Great during story time or listening activities

Finger painting with various mediums- Imitating strokes, circles, letters, etc. Following directions. Requesting for supplies "I need more paint/shaving cream." Describing the feel of the medium "It's sticky/squishy/soft."

No Bake activities (Trail mix, Chex mix, Pudding, etc.)- Following directions & sequence of events. Describing actions. Following locative directions

Sensory boxes for hands and feet- Encourage pretend play Use cup, bowls, spoons to incorporate functional use of objects Follow locative commands (in, out, next to, under, in front of, etc) Labeling objects in box using stereognosis (Naming by just touching objects) Identifying objects using attributes named ("Find the squishy, soft, round objects.")

You will find some resources below that are mostly for the United States. Some of these I have used and others were given to me. It is hard to get money to help pay for expenses. Try your insurance, school district (some give money to families for a home trainer), Social Security Disability Income (SSI), and your local department of health. There are lawsuits in the works right now for autism vaccine-injured children that you may need to investigate. Many are looking at vaccinations as the key damaging element in autism. There are the MMR or the Thimerosal (contains mercury) issues. You must first file through the National Vaccine Foundation before you may file a lawsuit. I urge caution in pursuing this. Find out all that you can first. Read more about this at the bottom of the page.

Rally your state government to consider bills to help families pay for therapy, keep the IDEA intact, and to better serve our kids. E-mail your state representatives, send them pictures of your children, and have your local Autism Society meet with them. Please let me know of other suggestions that I am missing or any that do not work.
Check out the Autism Links page to see resources on the Internet.

Alabama
Alabama's Early Intervention System
2127 East South Boulevard
P.O. Box 11586
Montgomery, AL 36116-0586
Phone: 800-543-3098 or 334-613-2394
TTY Phone: 800-548-2546
Fax: 334-613-3494

Alaska
Healthy Alaskan's Info Line
701 East Tudor Road, Room 280
Anchorage, AK 99503-7445
Phone: 800-478-2221 or 907-343-6718

Arizona
Arizona Children's Information Center
Arizona Department of Health Services
411 North 24th Street
Phoenix, AZ 85008
Phone: 800-232-1676 or 602-220-6570

Arkansas
Arkansas Early Intervention
Department of Human Services
Developmental Disabilities Services
P.O. Box 1437, Slot 2520
Little Rock, AR 72203-1437
Phone: 800-643-8258 or 501-682-8699
TTY Phone: 501-682-1337
Fax: 501-682-8687

California
Early Start
California Department of Development Services
1600 9th Street, Room 310
Sacramento, CA 85814
Phone: 800-515-BABY or 916-654-2773
TTY Phone: 916-654-2054
Fax: 916-654-2271

Colorado
Birth to Age Three (El Paso County Only)
Resources for Young Children and Families
201 East Colfax, Room 305
Denver, CO 80203
Phone: 888-777-4041 or 303-866-6667
Fax: 303-866-6662

Connecticut
Birth- To - Three Info Line
1344 Silas Dean Highway
Rocky Hill, CT 06067
Phone: 800-505-7000 or 860-571-7556
TTY Phone: 860-571-7556
Fax: 860-571-7525

Delaware
Child Development Watch
2055 limestone Road, Suite 201
Wilmington, DE 19808
Phone: 800-671-0050 or 302-995-8617
New Castle: 800-671-0050
Kent and Sussex Counties: 800-752-9393
Fax: 302-995-8363

District of Colombia
DC Early Intervention Program Department of Human Services
609 H Street NE, 5th Floor
Washington, DC 20002
Phone: 202-727-1829
Fax: 202-727-9709

Florida
Florida Children's Forum
2807 Remington Green Circle
Tallahassee, FL 32308
Phone: 800-654-4440 or 850-921-5444
TTY Phone: 800-654-4440
Fax: 850-681-9816

Georgia
Parent To Parent of Georgia Inc.
2872 Woodcock Boulevard
Suite 230
Atlanta, GA 30341
Phone: 770-451-5484
Voice /TTY Phone: 800.-229-2038
Fax: 770-458-4098

Hawaii
Hawaii Keiki Information Service System
Zero to Three Hawaii Project (H-Kiss)
1600 Kapiolani boulevard
Suite 1401
Honolulu, HI 96814
Voice/TTY phone: 800-235-5477 or 808-955-7273
Fax: 808-946-5222

Idaho
Idaho Careline
P.O. Box 83720
Boise, ID 83720-0036
TTY phone: 208-332-720
Fax: 208-334-5531

Illinois
Help Me Grow Helpline
2501 North Kirsken Parkway
Springfield, IL 32702
Voice/ TTY phone: 800323-4769 or 217-557-3887
Fax: 217-557-3777

Indiana
Bureau of child Development
402 West Washington Street, Room W386
Indianapolis, IN 46204
Phone: 800-441-7837 or 317-232-2429
Fax: 317-232-7948

Iowa
Iowa Compass
S277 Hospital School
100 Hawkins Drive
Iowa City, IA 52242-1011
Voice/TTY Phone: 800-779-2001 or 319-353-8777
Fax: 319-356-1343
Email : iowa-compass@uiowa.edu
Web site: www.medicine.uiowa/edu/iowacompass

Kansas
Kansas Make a Difference Info Network
Kansas department of Health and Environment
Landon State Office Building, 10th Floor
900 SW Jackson Street
Topeka, KS 66612-1290
Phone: 800-332-6262
Voice/TDD phone: 785-296-1317
Fax: 785-296-8616

Kentucky
First Steps
Kentucky Early Intervention System
Division of Mental Retardation
100 Fair Oak Lane 4E-E
Frankfort, KY 40621-0001
Phone: 800-442-0087 or 502-564-7722
Fax: 502-564-0438

Louisiana
Louisiana Disabilities Info Access Line
200 Lafayette, 4th Floor
Baton Rouge, LA 70801
Phone: 800-922-3425 or 225-342-7700
TTY phone: 225-342-5704 or
800-256-1633
Fax: 225-342-1970
Web site: http://www.laddc.org

Maine
Department of Education
Child Development Services, State
House Station 146
Augusta, ME 04333
Phone: 207-287-3272
Fax: 207-287-3884

Maryland
Governor's Office for Children, Youth, and
Families
301 West Preston Street, 15th Floor
Baltimore, MD 21201
Phone: 800-535-0182 or 410-767-4027
TTY phone: 410-767-8117
Fax: 410-333-5248

Massachusetts
Early Intervention Services
Department of Public Health
250 Washington Street, 4th Floor
Boston, MA 02108-4619
Phone: 617-624-5969
Fax: 617-624-5990

Michigan
Early On
Michigan 4C Association
2875 Northwind Drive, Suite 200
East Lansing, MI 48823
Voice/TTY phone: 800-327-5966 or
517-351-4171
Fax: 517-351-0157

Minnesota
Pacer Center
4826 Chicago Avenue South
Minneapolis, MN 55417-1098
Voice/TTY phone: 800-534-2237 or
612-827-2966
Fax: 612-827-3065

Mississippi
Parent Partners
1900 North West Street, Suite C-100
Jackson, MS 39202
Phone: 800-366-5707 or 601-714-5707
Fax: 601-714-4025

Missouri
Missouri Parent's Act (MPACT)
2100 South Brentwood, Suite G
Springfield, MO 65804
Phone: 800-743-7634 or 417-882-7434

Montana
Family Support Services Info Network-
Parents, Let's Unite for Kids
516 North 32nd Street
Billings, MT 591014-6003
Voice/TTY phone: 800-222-7585 or
406-255-0540
Fax: 406-255-0523

Nebraska
Nebraska Child Find
5143South 48th Street, Suite c
Lincoln, NE 68516-2204
Voice/TTY phone: 888-806-6287 or
402-471-0734
Fax: 402-471-6052

Nevada
Nevada Project Assist
P.O. Box 70247
Reno, NV 89570-0247
Phone: 800-522-0066 or
775-688-2819
TTY phone: 775-688-2818
Fax: 775-688- 2558

New Hampshire
Infants and Toddlers Program
State Office Park South
105 Pleasant Street
Concord, NH 03301
Phone: 800-298-4321 or
603-271-7931
Fax: 603-271-6826

New Jersey
Early Intervention Program
State Office on Disability Services
P.O. Box 364
Trenton, NJ 08625-0364
Voice/TTY phone: 888-285-3036 or
609-292-7800
Fax: 609-292-3580

New Mexico
Baby Net
Info Center for New Mexicans with
Disabilities
435 St. Michaels Drive, Building D
Santa Fe, NM 87505
Phone: 800-552-8195 or 505-827-7596
TTY phone: 800-552-8195
Fax: 505-827-7589

New York
New York Office of Advocates for
Persons with Disabilities
One Empire State Plaza, Suite 1001
Albany, NY 12223-1150
Phone: 800-522-4369 or 518-474-5567
TDD: 518-473-4231
Fax: 518-473-6005

North Carolina
Family Support Network of NC
CB #7340
UNC at Chapel Hill
Chapel Hill, NC 27599-7340
Voice/TTY phone: 800-852-0042 or
919-966-2841
Fax: 919-966-2916

North Dakota
Developmental Disabilities Unit
Department of Human Services
600 South Second Street, Suite 1A
Bismark, ND 58504-5729
Phone: 800-755-8529 or 701-328-8930
Fax: 701-328-8969

Ohio
Ohio Coalition for the Education of
Children with Disabilities
Bank One Building
165 West Center Street, Suite 302
Marion, OH 43302-3741
Voice/TTY phone: 800-374-2806 or
740-382-5452
Fax: 740-383-6421

Oklahoma
Oklahoma Areawide Service Information
System (OASIS)
Oklahoma Univ. Health Sciences Center
4545 North Lincoln Boulevard
Suite 284
Oklahoma City, OK 73105
Voice/TTY phone: 800-426-2747 or
405-271-6302
Fax: 405-521-1452

Oregon
Oregon Department of Education
Public Services Biulding
255 Capitol Street NE
Salem, OR 97310
Phone: 503-378-3598, ext.637
TTY phone: 503-378-2892
Fax: 503-373-7968

Pennsylvania
Parent to Parent
150 South Progress Avenue
Harrisburg, PA 17109
Phone: 800-986-4550 or 717-540-4722
Fax: 717-540-7603

Rhode Island
Division of Family Health
State Department of Health
Three Capitol Hill
Cannon Building, Room 302
Providence, RI 02908-5097
Phone: 800-464-3399 or 401-222-4612
Fax: 401-222-1442

South Carolina
South Carolina Babynet Central Directory
Center for Disability Resources
USC School of Medicine
Columbia,SC 29208
Voice/TTY phone: 800-922-1107 or
803-935-5300
Fax: 803-935-5300

South Dakota
South Dakota Part C Central Directory
Dept. of Education and Cultural Affairs
700 Governors Drive
Pierre, SD 57501-2291
Phone: 800-529-5000 or 605-773-4478
Fax: 605-773-6846

Tennessee
Tennessee Early Intervention System
2147 Belcourt Avenue, Suite 200
Nashville, TN 37212
Phone: 800-852-7157 or 615-936-1849
Fax: 615-936-1852

Texas
Texas Interagency Council on Early
Childhood Intervention (ECI)
Intervention Program
4900 N. Lamar Boulevard
Austin, TX 78751
Phone: 800-250-2246 or 512-424-6785
Fax: 512-424-6799

Utah
Access Utah Network
555 East 300 South, Suite 201
Salt Lake City, UT 84102
Voice/TTY phone: 800-333-8824 or
801-533-4636
Fax: 801 533 5305

Access to Respite Care and Help (ARCH)
Chapel Hill Training-Outreach Project
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
Phone: 800-473-1727 or 919-490-5577
Fax: 919-490-4905
E-mail: Ylayden@intrex.net
Web site: http://www.chtop.com/archbroc.htm

ACRES National Headquarters
(American Council on Rural Special Education)
Kansas State University
2323 Anderson Avenue
Suite 226
Manhattan, KS 66502
Phone: 785-53-ACRES
Fax: 785-532-7732
E-mail: acres@k-state.edu
Web site: http://www.ksu.edu:8000/acres/contact.html

Austin Autoimmunity Project
45 Iroquois Avenue
Lake Hiawatha, NJ 07034
Phone: 973-299-9162
Fax: 973-299-2668
E-mail: truegrit@gti.net

Austin Research Institute
4182 Adams Avenue
San Diego, CA 92116
Phone: 619-281-7165
Fax: 619-563-6840
Web site: http://www.austism.com/ari

The Austin Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
Phone: 800-3AUTISM, ext. 150 or 301-657-0881
Fax: 301-657-0869
Web site: http://www.autism-society.org

Center for the Study of Austin
P.O. Box 4538
Salem, OR 97302
Phone: 503-538-9045
Web site: http://www.autism.org

COSAC (Center for Outreach and Services
for the Austin Community)
1450 Parkside Avenue, Suite #22
Ewing, NJ 08638
Phone: 609-883-8100
Fax: 609-883-5509
E-mail: Njautism@aol.com
Web site: http://members.aol.com/njautism

The Council for Exceptional Children
1920 Association Drive
Reston, VA 20191-1589
Phone: 888-CEC-SPED or 703-620-3660
TTY phone: 703-264-9446
Fax: 703-264-9494
Web site: http://www.cec.sped.org/index.html

The Doug Flutie Jr. Foundation for Autism
c/o The Giving Back Fund
54 Canal Street, Suite 320
Boston, MA 02114
Phone: 617-556-2820
Fax: 617-973-9463
E-mail: giveback@ma.ultranet.com
Web site: http://www.dougflutie.org

The HANDLE Institute (Holistic Approach to
NeuroDevelopment and Learning Efficiency)
1530 Eastlake Avenue East, Suite 100
Seatle, WA 98102
Phone: 206-860-2665
Fax: 206-860-3505
E-mail: support@handle.org
Web site: http://www.handle.org

Indiana Resource Center for Autism
Indiana Institute on Disability and Community
2853 East Tenth Street
Bloomington, IN 47408-2696
Phone: 812-855-6508
TTY phone: 812-855-9396
Fax: 812-855-9630
E-mail: bowman@indiana.edu
Web site: http://www.isdd.indiana.edu/~irca

International Rett's Syndrome Association
9121 Piscataway Road
Clinton, MD 20735
Phone: 800-818-RETT or 301-856-3334
Fax: 301-856-3336
E- mail: irsa@rettsyndrome.org
Web site: http://www.rettsyndrome.org

The National Fragile X Foundation
P.O Box 190488
San Francisco,CA 94119
Phone: 800-688-8765 or 510-763-6030
Fax: 510-763-6223
Web site: http://www.nfxf.org

National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield,CT 06815-8923
Phone: 800-999-6673 or 203-746-6518
Fax: 203-746-6481
E-mail: orphan@raredieases.org
Web site: http://www.raredieasaes.org

STOMP (Specialized Training of Military Parents)
6316 South 12th Street
Tacoma,WA 98465-1900
Voice/TTY phone: 800-5-parent or 253-565-2266 (Military parents can call collect from anywhere in the U.S. or overseas)
Fax: 253-566-8052
E-mail: wapave9@washingtonpave.com
Web site: http://washingtonpave.org/stomp.html

Allergy induced Autism (AiA)
8, Hollie Lucas Road
King's Heath
Birmingham B13 0QL UNITED KINGDOM
Phone: 44-0-173-33-1771
Fax: 44-0-121-444-6450
E-mail: aia@kessick.demon.co.uk
Web site: http://wwwkessick.demon.co.uk/aia.html

Autism France
182 avenue des Jasmins
06250 Mougins
FRANCE
Phone: 04-93-46-00-48
Numero azur: 0810-179-179
Fax: 04-93-46-01-14

Autism Europe
Avenue E. Van Becelaere 26B, Bte. 21
B-1170 Brussels, BELGUIM
Phone: 32-0-2-675-75-05
Fax: 32-0-2-675-72-70
E-mail: autisme.europe@arcadis.be
Web site: http://osiris.sunderland.ac.uk/autism.eur.html

Autism Society of British Columbia
Suite 200---3550 Kingsway
Vancouver, B.C. V5R 5L7 CANADA
Phone: 888-437-0880 or 604 -434 -0880
Fax: 604 - 434 - 0801
E-mail: autismbc@istar.ca
Web site: http://www.enet.ca/austim

Autism Society of Canada
129 Yorkville Avenue, #202
Toronto, Ontario M5R 1C4 CANADA
Phone: 416-922-0302
Fax: 416-922-1032

Autism Society of Ontario
1 Greensboro Drive, Suite 306
Etobicoke, Ontario M9W 1C8 CANADA
Phone: 416-246-9592
Fax: 416-246-9417
E-mail: mail@autismsociety.on.ca
Web site: http://home.tct.net/autism/

Gateway Provincial Resource Program
4812 Georgia Street
Delta, B.C. V4K 259 CANADA
Phone: 604 - 946-3610

The Geneva Centre for Autism
200-250 Davisville Avenue
Toronto, Ontario M4S 1H2 CANADA
Phone: 416-322-7877
Fax: 416-322-5894
E-mail: info@autism.net
Web site: http://www.autism.net

The National Autism Society
393 City Road London, EC1V 1NG UNITED KINGDOM
Phone: 44 -0-20-7833-2299
Fax: 44 - 0-20-7833-9666
E-mail: nas@nas.org.uk
Web site: http://www.oneworld.org/autism_uk

PAPA Resource Centre (Parents and Professionals and Autism)
Graham House
Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH IRELAND
Phone: 44 -0-1232-401729
Fax: 44 - 0-1232-403467

Pro Aid Autisme (AFPPA)
42 rue Benard
75014 Paris FRANCE
Phone/fax: 01-45-41-52-93

Sesame Autisme
53 rue Clisson
75013 Paris. FRANCE
Phone: 01-44 - 24 - 50-00
Fax: 01-53-61-25-63

The Advocate
Published by the Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda. MD 20814 - 3015
Phone: 800-3AUTISM,ext.150 or 301-657-0881
Fax: 301-657-0869
Web site: http://www.Autism-society.org

Autism Autoimmunity Project Newsletter
Published by the Autism Autoimmunity Project
45 Iroqouis Avenue
Lake Hiawatha, NJ 07034
Phone: 973-299-9162
Fax: 973-299-2668
E-mail: truegrit@gti.net

Autism Research Review International
Published by the Autism Research Institute
4182 Adams Avenue
San Diego, CA 92116
Phone: 619-281-7165
Fax: 619-563-6840
Web site: http://www.autism.com/ari

Closing the Gap
526 Main Street
P.O. Box 68
Henderson, MN 56044
Phone: 507-248-3294
Fax: 507-248-3810
E-mail: closingthegap.com
Web site: http://wwwclosingthegap.com/index.html
This newsletter is about hardware and software products for the disabled

Exceptional Parents
555 Kinderkamack Road
Oradell, NJ 07649-1517
Phone: 201-634-6550
Fax: 201-634-6599
E-mail: vieprnt@concentric.net
Web site: http://www.eparent.com
Included in the yearly subscription is an annually update resource guide

FEAT Daily Online Newsletter
To subscribe (no cost):
http://wwwfeat.org/FEATNews
This on-line newsletter will send only
Two e-mail messages per day concerning features and breaking news in the world of autism

Journal of Autism and Developmental Disorders
Published by Plenum Publishing Co.
233 Spring Street
New York, NY 10013-1578
Phone: 212-620-8000
Fax: 212-463-0742
E-mail: info@plenum.com
Web site: http://plenum.com

The MAAP
Published by MAAP (More Advanced Individuals with Autism, Asperger's Syndrome, and Pervasive Development Disorders)
MAAP Services, Inc.
P.O. Box 524
Crown Point, IN 46307
Phone: 219-662-1311
Fax: 219-662-0638
E-mail: chart@netnitco.net
Web site: http://www.netnitco.net/users/chart/maap.html

NAARRATIVE
Published by the National Alliance for Autism Research (NAAR)
414 Wall Street
Research Park
Princeton, NJ 08540
Phone: 888-777-NAAR- or 609-430-9160
Fax: 609-430-9163
E-mail: naar@naar.org
Web site: http://www.naar.org

RESEARCH
Austin Genetic Resource Exchange
(AGRE)
5225 Wilshire Boulevard
Los Angeles, CA 90036
Phone: 888-AUTISM2
Fax: 831-648-0240
E-mail: familyagre@aol.com
Web site: http://www.hbdi.org/autisresearch2html.htm

Austin Research Foundation
P.O Box 1571 GMF
Boston, MA 02205
Phone: 617-414-5286
Fax: 617-414-7207
E-mail: tarf@Ladders.org
Web site: http://ladders.org/tarf/

Austin Research Unit
School of Health Sciences
University of Sunderland
Sunderland SR2 7EE
Untied Kingdom
Phone/fax: 44-0-191-510-8922
E-mail: aru@suderland.ac.uk
Web site: http://osiris.sunderland.ac.uk/autism/index.html

The Cure Austin Now Foundation
(CAN)
5225 Wilshire Boulevard, Suite 226
Los Angeles, CA 90036
Phone: 888-8AUTISM or 323-549-0500
Fax: 323-549-0547
E-mail: CAN@primente.com
Web site: http://www.canfoundation.org

Medical Investigation of Neurodevelopmental Disorder
(M.I.N.D)
UC Davis Medical Street, Room 3020
Sacramento, CA 95817
Phone: 888-883-0961 or 916-734-5153
E-mail: andrea.verdon@ucdmc.ucdavis.edu
Web site: http://mindinsitute.ucdmc.ucdavis.edu

Mount Sinai School of Medicine
Seaver Autism Research Center
Department of Psychiatry. Box 1230
1 Gustave L. Levy Place
New York, NY 10029
Phone: 212-241-2994
Fax: 212-987-4031
E-mail: E_Hollander@smtplink.mssm.edu
Web site: http://www.mssm.edu/psychiatry/seaver.html

National Alliance for Austin Research
(NAAR)
414 Wall Street
Research Park
Princeton, NJ 08540
Phone: 888-777-NAAR or 609-430-9160
Fax: 609-430-9163
E-mail: naar@naar.org
Web site: http://www.naar.org

National Institute of Child Health and Human Development
P.O Box 3006
Rockville, MD 20847
Phone: 800-370-2943
Fax: 301-984-1473
E-mail: NICHDClearinghouse@iqsolutions.com
Web site: http://www.nichd.nih.gov/

Southwest Austin Research Center
1002 East McDowell Road, Suite A
Phoenix, AR 85006
Phone: 602-340-8717
Fax: 602-340-8720
E-mail: schneider@autismcenter or SARC@autismcenter.org
Web site: http://www.autismcenter.org

Support Group
Autism Network International
P.O Box 448
Syacuse, New York 13210-0448
E-mail: jisincla@mailbox.syr.edu (Jim Sinclair, ANI Coordinator)
Web site: http://www.students.uiuc.edu/bordner/ani/
This organization is designed for and operated by individuals with autism.

The Autism Society of America
7910 Woodmont Avenue, Suite 300
Berthesda, MD 20814-3015
Phone: 800-AUTISM, ext. 150 or 310-657-0881
Fax: 301-657-0869
Web site: http://www.autism-society.org

Families Working Together
12400 Cypress Avenue, Space 20
Chino, CA 91710
Phone: 909-627-4514
Fax: 909-627-6786
E-mail: javajive38@aol.com
Web site: http://www.ucddfam.com
This Christian Web site includes listings of chapters of F.E.A.T and the Autism Society of America and autism seminars around the country.

F.E.A.T (Family of Early Autism Treatment)
P.O Box 255722
Sacramento, CA 95865-5722
Voice mail: 916-843-1536
Web site: http://www.fear.org
They will be able to direct you to the F.E.A.T chapter nearest you.

1.New Jersey . . . (609) 616-9442
2.San Francisco . . . (415) 785-1036
3.San Diego . . . (619) 283-1567
4.Sacramento . . . (916) 979-9398

1.Central Valley Autism Project
1518 Coffee Rd. Suite C
Modesto, CA 95355
Phone: (209) 613-7220
Fax: (209) 521-4794

2.CSAAC - Community Services for Autistic Adults and Children
751 Twinbrook Parkway
Rockville, MD 20851-1428
Phone: (301)762-1650
Fax: (301) 762-5230
Internet Address: http://www.csaac.org/res.htm

3.The May Institute May Center, Inc.
940 Main Street P.O. Box 899
South Harwich, MA 02661
Phone: (508) 432-5530 ext. 211
Internet Address: http://www.mayinstitute.org

4.Minnesota Young Autism Project REM Consulting & Services, Inc.
3101 W. 69th St., #121
Edina, MN 55435
Phone: (612) 926-9808
Fax: (612) 926-9808

5.New Jersey Institute for Early Intervention
52 Haddonfield Berlin Rd.
Cherry Hill, NJ 08034
Phone: (856) 616-9442
Fax: (856) 616-9454
E-Mail: nije@lovaas.com

6.Meredith Autism Project Meredith
College 3600 Hillsborough
St. Raleigh, NC 27606-5298
Phone: (919) 760-8080
Fax: (919) 760-8054
Internet Address: http://www.meredith.edu/psych/default.htm

7.Intensive Behavioral Intervention Clinic Children's Hospital Autism Center
Ohio State University
Phone: (614) 866-3473

8.Pittsburg Young Autism Project
Intercare-Brentwood Office
4411 Stilley Road/Route 51 2nd Floor, Suite 202
Pittsburg, PA 15227
Phone: (412) 881-3902
Fax: (412) 881-3599

9.Converse College Department of Psychology
580 E. Main Street
Spartanburg, SC 29302-0006
Phone: (864) 596-9132
Fax: (864) 596-9201
Internet Address: http://www.converse.edu

10.Texas Young Autism Project Department of Psychology Psychological Research and Services
Center University of Houston
Houston, TX 77204-5341
Phone: (713) 743-8610
Fax: (713) 743-8633 11.Northwest Young
Autism Project Department of Psychology
Washington State University Pullman, WA 99164
Phone: (509) 335-2522

12.Wisconsin Early Autism Project
6402 Odana Rd.
Madison, WI 53719
Phone: (608) 288-9040
Fax: (608) 288-9042
Internet Address: http://wiautism.com

13.PEACH - Parents for the Early Intervention of Autism in Children
Brunel University School of Education
300 Margaret's Road Twickenham,
Middlesex, TW1 1 PT England
Phone: 0200 891-0121 ext. 2257
Fax: 0181 891-8209
E-Mail: peach@brunel.ac.uk
Internet Address: http://www.peach.uk.com

14.Iceland Young Autism Project
Digranesvegur 5 200
Kopavogur Iceland
Phone: 011-354-554-5462
Fax: 011-354-564-1753

15.Akershus College (Norway)
P.O. Box 372 1301
Sandvika Norway Phone: (0) 011-67-11-74-22
Fax: (0) 011-67-11-74-01
Internet Address: http://www.hiak.no

16.Barcelona Autism Project
Paseo San Gervasio 90, Local 2 08022
Barcelona Spain
Phone: (0) 011-3493-418-4850
Fax: (0) 011-3493-418-4850

There are many books & articles about Autism. My advice is to focus on the positives in any book & realize that not every child with Autism will recover or not recover. I read too many books in the beginning that said my child would never be able to function on his own, feel emotion, or get better. These books made me too depressed. I needed to be strong for my son & my family. I decided to mainly focus on books that offered techniques & help for my family. Look at on-line book stores like Amazon.com & read the reviews & what others have said about the book. Ask parents of Autistic children which books helped them the most. Try finding a special needs resource library that loans out books so that you will not spend a fortune on reading materials that are not always good.

Teaching Developmentally Disabled Children: The ME Book
(1981) Write: Pro-Ed, 8700 Shoal Creek Blvd., Austin, TX 78757 Phone: (512) 451-3246 Internet Address: www.proedinc.com

Companion videos to the ME Book (5 tapes, 20 minutes each): The Lovaas Videotapes Write: Pro-Ed, 8700 Shoal Creek Blvd., Austin, TX 78757 Phone (512) 451-3246 Internet Address: www.proedinc.com Research articles: Lovaas, 0.I.(1987).

Let Me Hear Your Voice.The reader may also be helped by reading a book written by a mother of an autistic child: Maurice, Catherine. Alfred A. Knopf, publisher, New York: 1993.

Behavior Intervention For Young Children With Autism: A Manual for Parents and Professionals.
Edited by: Catherine Maurice Coedited by Gina Green & Stephen C. Luce.

Asperger Syndrome and Difficult Moments: Practical Solutions for Tantrums, Rage, and Meltdowns by Brenda Smith Myles, Jack Southwick (Paperback - June 1999).

Facing Autism: Giving Parents Reasons for Hope and Guidance For Help (by Lynn M. Hamilton) is a Mom's story which includes information on various therapies, resource guides, and special education information. Waterbrook, publisher, Colorado: 2000.

The New Social Stories : Illustrated Edition by Carol Gray (Paperback - September 2000).

Thinking in Pictures : And Other Reports from My Life With Autism by Temple Grandin, Oliver W. Sacks (Paperback - November 1996).

Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery by Karyn Seroussi, Bernard Rimland Ph. D. (Hardcover - February 2000).

Biological Treatments for Autism & PDD : What's Going On? What Can You Do About It? by William Shaw (Paperback - January 1998).

Toilet Training for Individuals with Autism and Related Disorders by Maria Wheeler (Paperback).

Do-Watch-Listen-Say : Social and Communication Intervention for Children With Autism by Kathleen Ann Quill (Paperback - August 2000).

Teaching Children with Autism: Strategies to Enhance Communication and Socialization by Kathleen Ann Quill (Paperback).

Visual Strategies for Impoving Communication : Practical Supports for School & Home by Linda A. Hodgdon (Paperback - December 1995).

Facing Autism : Giving Parents Reasons for Hope and Guidance for Help by Lynn M. Hamilton, Bernard Rimland (Paperback).

Not Otherwise Specified : When Sensory Integration Affects Your Child : Working With the Child With Pervasive Developmental Disorder (Pdd) by Joan, Dr Fallon, et al (Paperback - June 2000).

Creating a Win-Win I. E. P. for Students With Autism by Beth Fouse (Paperback - January 1999).

Handbook of Autism and Pervasive Developmental Disorders by Donald J. Cohen(Editor), Fred R., MD Volkmar(Editor) (Hardcover).

Teaching Children With Autism to Mind-Read : A Practical Guide for Teachers and Parents by Patricia Howlin(Editor), et al (Paperback - March 1998).

Children With Autism and Asperger Syndrome : A Guide for Practitioners and Carers by Patricia Howlin (Paperback - February 1999).

Activity Schedules for Children With Autism : Teaching Independent Behavior (Topics in Autism) by Lynn E. McClannahan, Patricia J. Krantz (Paperback - March 1999).

A Treasure Chest of Behavioral Strategies for Individuals With Autism by Beth Fouse, Maria Wheeler (Paperback - August 1997).

Emergence : Labeled Autistic by Temple Grandin, Margaret M. Scariano(Contributor) (Paperback - September 1996).

The World of the Autistic Child : Understanding and Treating Autistic Spectrum Disorders by Bryna Siegel, Bryna Siegal (Hardcover - February 1996).

Siblings of Children With Autism : A Guide for Families (Topics in Autism) by Sandra L. Harris (Paperback - November 1994).

Social Skills Activities for Special Children by Darlene Mannix (Paperback - June 1993).

Keys to Parenting the Child With Autism (Barron's Parenting Keys) by Marlene Targ Brill (Paperback - October 1994).

A Parent's Guide to Autism by Charles A. Hart, Claire Zion(Editor) (Paperback - June 1993).

Children With Autism : A Parents' Guide (Special Needs Collection) by Michael D. Powers(Editor), Beverly Sills Greenough (Paperback - November 1989).

Without Reason : A Family Copes with Two Generations of Autism by Charles A. Hart (Paperback).

A Work in Progress : Behavior Management Strategies & A Curriculum for Intensive Behavioral Treatment of Autism by Ron Leaf, et al (Paperback - May 1999)

Targeting Autism : What We Know, Don't Know, and Can Do to Help Young Children With Autism and Related Disorders by Shirley Cohen (Paperback - January 1998).

Living With Autism : The Parents' Stories by Kathleen M. Dillon, Lahri Bond(Illustrator) (Paperback - September 1995).

Just This Side of Normal : Glimpses into Life With Autism by Elizabeth King Gerlach (Hardcover).

Somebody Somewhere : Breaking Free from the World of Autism by Donna Williams (Paperback - April 1995).

Words From Those Who Care: Further Case Studies of ABA with People with Autism by Bobby Newman(Editor), et al (Mass Market Paperback).

Play and Imagination in Children With Autism (Special Education Series (New York, N.Y.).) by Pamela J. Wolfberg (Paperback - March 1999).

Autism: A Sensorimotor Approach to Management by Ruth A. Huebner Ph.D.(Editor)

Autism Proof Your House
Parents of Autistic Spectrum children often find it necessary to go
to extraordinary lengths to protect not only their children, but their
possessions as well. Here are some tips to make life a litte easier
and a lot safer.

ACCESS
Some parenting organizations and their contact information are
given to help parents with their day to day lives.

As A Sibling
A letter to parents regarding the importance of siblings to the
special needs child.

Autism Unschool Information Page
If you are considering homeschooling your Autistic child, this page
will help you with hints, tips, legal information and more.

A Parent's Roadmap
If you are new to getting your child evaluated and treated, this
site is for you. From the Unicorn Children's Foundation, there is a
bevy of information.

Extraordinary Parenting
The power of thoughts and feelings in reaching our children who
have Autism/PDD.

Fathers of Children With Special Needs
A discussion of how fathers can learn to deal with their child's
disability. This father writes about his Autistic son and his
parenting experience.

How I Cope With Rett Syndrome
After living with a daughter with Rett Syndrome for 20 years, this
mom has some real parenting strategies available.

Joint Custody and Shared Parenting
The importance of shared parenting when a couple divorces is
discussed at this website. This is especially true with special needs
children.

Toilet Training and Toileting Difficulties
This is one of the biggest challenges the parent of an Autistic/PDD child faces. Some practical advice is offered in this site.

"Behavioral treatment and normal educational and intellectual functioning in young autistic children." Journal of Consulting and Clinical Psychology, 55, 3-9. Lovaas, 0.I. & Smith, T. (1989).

"A comprehensive behavioral theory of autistic children: Paradign for research and treatment." Journal of Behavioral Therapy and Experimental Psychiatry. 20, 17-29. McEachin, J. J., Smith, T., and Lovaas, 0.1. (1993).

"Long-term outcome for children with autism who received early intensive behavioral treatment." American Journal on Mental Retardation. 2-7 (4), 359-372. (See also the commentaries on this study).

A BIG PROBLEM--STATUTE OF LIMITATIONS:

A claim must be filed under the NVICP within three (3) years of when the first symptoms occurred. This rule is inflexible, and there is no "discovery rule" as there is under some many state statutes. It does not matter that a child's parents did not know about this program, or that they did not know that their child's injuries were related to the vaccine. This is a bad law and simply unfair to families and injured victims. Most states also have laws which toll (i.e. stop) the running of the statute of limitations while someone is under a disability, such as minority. In many states a child who is injured does not even have to file a case until sometime after they reach majority. THIS IS NOT TRUE FOR VACCINE CLAIMS UNDER THE NVICP.

There may be additional reasons to file a claim under the NVICP sooner than 3 years after the vaccination. Example-if an adult receives a vaccination, has an adverse reaction, and if the state statute of limitations is less than 3 years (i.e., 2 years as in Texas and many other states), then the claim needs to be filed within 2 years. Filing the claim will toll (i.e. stop) the running of the state statute of limitations until the claim is over. If the victim is not satisfied with the results in the U.S. Court of Federal Claims (the judgment is too little or the claim is denied), then the victim can reject the judgment and elect to file a civil action in state court. Civil actions are typically filed against the vaccine manufacturer and/or the person who administered the vaccine.

The statute of limitations to file a death claim under the NVICP is two (2) years from the date of death, but not more than four (4) years from the date of the vaccine injury. This again is a confusing, ridiculous and simply absurd statute of limitations. Let's look at an example to understand this. A child is vaccinated with DPT and develops toxic encephalopathy within three (3) days. The child is brain damaged (incompetent), but survives for seven (7) years before dying because of the encephalopathy. The day the child dies, it is already too late to file a claim under the NVICP, because it is more than four (4) years after the injury. Now, if this were traditional civil litigation, in most states it would NOT be too late to file. Most states' statutes run from the date of death without regard to when the injury took place. Most states' statutes of limitation would not begin to run until death because of the child's being under two disabilities - minority and incompetency. Many states statutes of limitation would have discovery rules that would apply if the parents did not know or have reason to believe that the injuries were caused by the vaccine until some later date. There are many reasons why such a claim should not be time barred, but the NVICP would bar it, fair or not. That's just the way the program is, for now.

Here's how you can help:

IT IS HIGH TIME TO BRING THE PROBLEMS WITH LIMITATIONS DESCRIBED HERE TO THE ATTENTION OF CONGRESS, AND IT IS HIGH TIME FOR CONGRESS TO FIX THIS MISCARRIAGE OF JUSTICE! WE ARE CALLING ON EVERYONE TO CONTACT THEIR CONGRESSMAN AND IMPLORE THEM TO EXTEND THE DEADLINE FOR FILING THESE NVICP CLAIMS. ASK YOUR REPRESENTATIVES AND SENATORS TO SUPPORT THE PASSAGE OF HR 1287.

This entire section has been quoted from Attorney, Jeff Sell

Jeff and his wife of 15 years, Paula, have been blessed with four children, Natalie (8), Ben and Joe (7 year-old autistic twins), and Gracie (3). Mr. Sell is also the 3rd Vice President and Chairman of the Government Relations Committee of the
Autism Society of America.

HITT, PATTERSON & SELL
Jeff Sell's lawfirm. He has a lot of knowledge about autism, vaccine injuries, and of course a lot more.
http://www.HittPattersonSell.com

HELP IN TEXAS

Most of the information found here is specific for San Antonio, Texas, but you should be able to find similar places in your area. I am originally from a small town on the coast of Texas and a lot of these services are not offered there.
I know of families who lived in rural areas that moved to Houston, Dallas, and San Antonio so they would have better access to services. Ask the school district in your area what services might be comparable to these. If you live in another city or town I would love to receive other information to post here for Texas families. Just e-mail it to me.

CONTENTS OF THIS PAGE:

STATE CENTERS & CHAPTERS
STATE OFFICES
GOVERNMENT PROGRAMS/ OFFICES
COMMUNITY MHMR TEXAS OFFICES
MEETINGS
RESIDENTIAL SERVICES (GROUP HOMES)
LEARNING DISABILITIES & (ADHD)
ADAPTIVE EQUIPMENT / MEDICAL SUPPLIES
ATTORNEYS
GENERAL POPULATION COMMUNITY RESOURCES
RECREATIONAL/LEISURE ACTIVITIES
TRANSPORTATION
RESOURCE/REFERRAL/ADVOCACY SERVICES
COMMUNITY SUPPORT
ADULT DAY SERVICES
CHILDREN'S SERVICES
CHILD CARE RESOURCE & REFERRAL

CHECK OUT OUR LINKS PAGE FOR INTERNET RESOURCES

Also look for the closest Autism Treatment Center such as the ones in
San Antonio & Dallas:

STATE CENTERS & CHAPTERS

Texas Center for Autism Research and Treatment (TCART)
DIRECTOR: Vernon L. James, M.D.
16111Nachogdoches
San Antonio,Texas 78247
Phone: 210-590-3381
Fax: 210-590-3143
http://www.tcart.org
email: Dessie-Vernon.James@worldnet.att.net

The Autistic Treatment Centers of Texas
Dallas Offices 10503 Forest Ln. #100
Dallas, Texas 75243
Office: 972-644-2076 Fax: 972-644-5650
San Antonio Offices 16111 Nacogdoches
San Antonio, Texas 78247
Office: 210-590-2107 Fax: 210-590-3143
http://www.atcoftexas.org/default.htm
email: info@atcoftexas.org

Collin County Chapter Plano
http://autism-ascc.org/

Denton County Autism Society
http://www.geocities.com/Heartland/Plains/3565/

East Texas Chapter Gladewater
http://www.geocities.com/asatx

Families for Early Autism Treatment (Houston)
http://www.neosoft.com/FEAT_Houston

Families for Early Autism North Texas
http://www.flash.net/~sjapollo/featnt.htm

Fort Worth Mid-Cities Autism Society
http://www.asgtc.org

San Antonio Autism Society
http://www.sanantonioautism.org

Texas Assistive Technology Partnership
http://www.edb.utexas.edu/coe/depts/sped/tatp/tatp.html

Texas Gulf Coast Chapter
http://www.kidquest.com/asa

Texas State Resources at NICHCY
http://www.nichcy.org/stateshe/tx.htm

Texas-Autism-Advocacy e-Group List's Web Site
https://www.angelfire.com/tx5/autismlist

STATE OFFICES

Texas Gene Lenz, Senior Director
Texas Education Agency Division of Special Education
1701 North Congress Avenue Austin, TX 78701-1494
(512) 463-9414; Fax: (512) 463-9560; (800) 252-9668
http://www.tea.state.tx.us/special.ed
TEA complaint line (or call with questions) 1-800-252-9668
OSEP Continuous Improvement Monitoring Process
The Texas Public Comment Meeting Report is available.

Texas Department of Insurance Complaints Resolution,
(MC 111-1A) 333 Guadalupe Street
Austin, TX 78701 (512) 463-6515; (800) 252-3439
http://www.tdi.state.tx.us

Texas Vernon M. Arrell, Commissioner
Texas Rehabilitation Commission
4900 North Lamar, Room 7102
Austin, TX 78751-2399
(512) 424-4001; Fax: (512) 424-4012;
P/TTY: (800) 628-5115
http://www.rehab.state.tx.us

Texas Roger A. Webb, Executive Director
Texas Planning Council for Developmental Disabilities
4900 North Lamar Boulevard
Austin, TX 78751-2399
(512) 424-4080; TTY: (512) 424-4099;
(800) 262-0334; Fax: (512) 424-4097
txddc@rehab.state.tx.us
http://www.rehab.state.tx.us/tpcdd/index.htm

Texas Jim Comstock-Galagan, Executive Director
Advocacy, Inc. 7800 Shoal Creek Boulevard, Suite 171-E
Autsin, TX 78757-1024
(512) 454-4816;
Fax: (512) 323-0902; (800) 252-9108
infoai@advocacyinc.org
http://www.advocacyinc.org

Texas Agnes A. Johnson
Grassroots Consortium
6202 Belmark Post Office Box 61628
Huston, TX 77087 (713) 643-9576;
Fax: (713) 643-6291
speckids@pdq.net

David Meraz, Director
Parents Supporting Parents Network
601 North Texas Boulevard, Suite C
Weslaco, TX 78596
(956) 447-8408; (956) 973-9503
weslaco@gte.net
http://www.thearcoftexas.org

Janice Meyer, Project Director
Partners Resource Network, Inc.
1090 Longfellow Drive, Suite B
Beaumont, TX 77706-4819
(409) 898-4684; (800) 866-4726 (In TX);
Fax: (409) 898-4869
http://www.partnerstx.org

Project PODER
1017 North Main Avenue,
Suite 207 San Antonio, TX 78212
(210) 222-2637; (800) 682-9747
http://www.tfepoder.org

HOPE Worldwide-Texas
Volunteers with autistic children-contact:
Penny Sahatrungsinee at 972-434-1940.

The University of Texas-Houston Health Science Center
Autism Research
http://www.uth.tmc.edu/uth_orgs/pub_affairs/uthouston/mar_96/aut.html

GOVERNMENT PROGRAMS/ OFFICES

State of Texas Web Site

A Texas web site where you can fill out a form and see if you qualify for any programs such as 
SSI, Medicaid, and more.
http://www.txstars.net/servlet/HSGServlet 

Texas Department of Human Services - TDHS
This is the general address for all of the TDHS offices.
P.O. Box 149030
Austin, Texas  78714-9030
512-438-3011

Texas Department of Mental Health & Mental Retardation
MHMR's link for the Houston area
Mental Health Care for Houston
They have a link for all the elected officials and legislative alerts. 
909 West 45th Street
P.O. Box 12668
Austin, TX 78711-2668
(512) 454-3761
1-800-252-8154

Texas Department of Health
1100 West 49th Street
Austin, Texas 78756-3199
Toll free: 1-888-963-7111
(512)458-7111
TDD (512)458-7708

Social Security Administration
1-800-772-1213
Local in San Antonio:	727 E Durango, SAT 78206 , 210-472-4400
Hearing & Appeals:  731-3301,M-F 7:00am-7:00pm

TDHS-Community Living Assistance and Support Services - CLASS
Program provides home and community based services to individuals with related conditions 
as a cost-effective alternative to ICCF-MR/RC institutional placement.
Long waiting list (around 7 years) so sign up now.
My ARC case worker helped me sign up.
877-438-5658
1-512-438-5658

 Home and Community-Based Services Program - HCS
contact local Mental Retardation Authority (in San Antonio, The Center for Health Care Services)
ARC of Texas
1-512-206-5755

TDMH- In-Home and Family Support Services
San Antonio:731-1335

TDH- Children's Health Insurance Program - CHIP 
800-647-6558

TDH- Community Care For the Aged and Disabled - CCAD

TDH- Comprehensive Care Program/ Home Health Services
800-252-9330

TDH- Medically Dependent Children's Program - MDCP
1-877-438-5658

TDHS- Community Based Alternatives - CBA
Medicaid Wavier Program for adults with medical needs.
377-3550
1-512-438-5658

Medical Programs
-Medicaid
Building 4
909 West 45th St.
Austin, TX 78711-2668
(512) 206-5700

Mental Retardation Local Authority Program-MRLA
Contact local mental retardation office for information.

TDHS- Deaf- Blind Multiple Disabilities Waiver
Medicaid Wavier Program for those with D-B and Multiple Disabled.  
1-512-438-2622	 1-512-424-4185		Toll free(877)438-5658

TDHS- Medicare Hotline		800-252-8263

Chronically Ill and Disabled Children's Program - CIDC
For families 200% above the poverty level down (insurance)
1-800-252-8023

Early Childhood Intervention - ECI 
Children 0-3 years old
1-800-250-2246

Texas Respite Resource Network
210-704-2794

TDPRS- Protective & Regulatory Services ( Children & Adults)
1-800-252-5400, 24 hour hotline
1-512-438-4778

Texas Rehabilitation Commission-TRC
1-800-628-5115

Texas Commission for the Blind-TCB
1-800-252-5204

Texas Workforce Commission-TWC
1-512-381-4200

ICF-MR  1-800-292-2065 

The ARC of Texas 1-800-252-9729 
 The Arc of the Capital Area (formerly the Arc of Austin) 
 The Arc of Dallas 
 The Arc of Fort Bend County 
 Arc of Greater Houston 
 The Arc of San Antonio 

PART  1-512-453-7145 

 Children's Association for Maximum Potential (CAMP) 
 P.O. Box 27086
San Antonio, Texas 78227
(210) 292-3566 (210) 292-3567 Fax: (210) 292-3576 (210) 292- 3577 

 Kidds' Kids 
 c/o 106.1 KISS-FM
P.O. Box 106
Dallas, Texas 75221

 NICHCY Texas Contact Sheet 
Find your government officials e-mail addresses and web sites to a lot of places.

 Partners Resource Network, Inc. - The PATH Project 
1090 Longfellow, Suite B * Beaumont, TX * 77706-4819 
409-898-4684 or 800-866-4726

 Texas Advocates Supporting Kids with Disabilities (T.A.S.K.) 
 P.O. Box 162685
Austin, Texas  78716 
Telephone: 512 336-0897  
  
Bexar County Tx Office For Handicap placards and license plates
Call for nearest location.
220-2251

San Antonio Housing Authority
818 S Flores, SAT 78204
Housing Assistance Program
220-3312

Web site of the Coalition of Texans with Disabilities (CTD).
CTD is the oldest cross-disability advocacy organization in Texas.
http://www.cotwd.org

Advocacy, Inc. is a free service that helps families
with situations and problems that affect disabled individuals: http://www.advocacyinc.org/
Advocacy, Inc. 7800 Shoal Creek Blvd. #171-E Austin, TX 78757-1024
512-454-4816 (V/TDD) 512-323-0902 (Fax) 1-800-252-9108 (V/TDD)

Easter Seal in Texas
http://www.tx-nw.easter-seals.org/
National site: http://www.easter-seals.org/

Also, here's a blanket list of some Texas resources.
http://www.disabilityresources.org/TEXAS.html

Don't forget we have insure-a-kid/Texas partnership.  
Insure a child for $18/month.
http://www.insureakid.com/

Community MHMR Centers

ACCESS (Anderson/Cherokee Community Enrichment ServiceS)
913 N. Jackson
Jacksonville, TX 75766
(903) 586-5507
Relay Texas: (800) 735-2989

Andrews Center
2323 W. Front Street
Tyler, TX 75702
(903) 597-1351
Relay Texas: (800) 735-2989

Austin Travis County MHMR Center
1430 Collier Street
Austin, TX 78704
(512) 447-4141
Relay Texas: (800) 735-2989

Betty Hardwick Center (Formerly Abilene Regional MHMR Center.)
2616 S. Clack
Abilene, TX 79606
(915) 690-5133
Relay Texas: (800) 735-2989

Bluebonnet Trails Community MHMR Center
555-A Round Rock West Drive
Round Rock, TX 78681
(512) 255-1720
Relay Texas: (800) 735-2989

Border Region MHMR Community Center (Formerly Laredo State Center.)
1500 Pappas
Laredo, TX 78041
(P.O. Box 1835, 78044-1835)
(956) 794-3000
Relay Texas: (800) 735-2989

Burke Center
4101 S. Medford Drive
Lufkin, TX 75901-5699
(936) 639-1141
Relay Texas: (800) 735-2989

Camino Real Community MHMR Center (Formerly Camino Real
State-Operated Community MHMR Services.)
19965 FM 3175 N.
Lytle, TX 78052 (P.O. Box 725, 78052)
(210) 357-0300
TTY: (210) 357-0468

The Center for Health Care Services
3031 IH 10 West
San Antonio, TX 78201
(210) 731-1300
Relay Texas: (800) 735-2989

Central Counties Center for MHMR Services
304 S. 22nd
Temple, TX 76501-4726
(254) 298-7000
TTY: (254) 298-7000, ext. 7999

Central Plains Center for MHMR and Substance Abuse
2700 Yonkers
Plainview, TX 79072-1892
(806) 293-2636
Relay Texas: (800) 735-2989

The Central Texas MHMR Center
408 Mulberry
Brownwood, TX 76804
(915) 646-9574
Relay Texas: (800) 735-2989

Coastal Plains Community MHMR Center (Formerly Coastal Plain
State-Operated Community MHMR Services.)
200 Marriott
Portland, TX 78374
(361) 777-3991
Relay Texas: (800) 735-2989

Dallas MetroCare Services
1380 River Bend Drive
Dallas, TX 75247-4914
(214) 743-1200
Relay Texas: (800) 735-2989

Denton County MHMR Center
2519 Scripture
Denton, TX 76201
(P.O. Box 2346, 76202)
(940) 381-5000
TTY: (800) 269-6233

Gulf Bend MHMR Center
1502 E. Airline, Suite 25
Victoria, TX 77901
(361) 575-0611
Relay Texas: (800) 735-2989

The Gulf Coast Center
123 Rosenberg, Suite 6
Galveston, TX 77550
(P.O. Box 2490, 77553-2490)
(409) 763-2373
(281) 488-2839
Relay Texas: (800) 735-2989

Heart of Texas Region MHMR Center
110 S. 12th Street
Waco, TX 76703
(P.O. Box 890, 76703-0890)
(254) 752-3451
TTY: (254) 752-3451

Helen Farabee Regional MHMR Centers
1000 Brook Street
Wichita Falls, TX 76301
(940) 397-3300
Relay Texas: (800) 735-2989

Hill Country Community MHMR Center
819 Water Street, Suite 300
Kerrville, TX 78028
(830) 792-3300
Relay Texas: (800) 735-2989

or

1901 Dutton Drive, Suite D
San Marcos, TX 78666
(512) 558-2000
Relay Texas: (800) 735-2989

Hunt County Mental Health and Mental Retardation
4200 Stuart Street
Greenville, TX 75401
(903) 455-3987
Relay Texas: (800) 735-2989

Johnson-Ellis-Navarro MHMR Services
1601 N. Anglin
Cleburne, TX 76031
(817) 558-1121
Relay Texas: (800) 735-2989

Lakes Regional MHMR Center
650 N. Rockwall Street
Terrell, TX 75160
(P.O. Box 747, 75160-0747)
(972) 524-4159
Relay Texas: (800) 735-2989

Life Management Center for MHMR Services
8929 Viscount
El Paso, TX 79925
(915) 629-2665
Relay Texas: (800) 735-2989

LifePath Systems (Formerly Collin County MHMR Center.)
1416 N. Church Street
McKinney, TX 75069
(P.O. Box 828, 75070)
(972) 562-0190
Relay Texas: (800) 735-2989

Lubbock Regional MHMR Center
1602 Tenth Street
Lubbock, TX 79401
(P.O. Box 2828, 79408-2828)
(806) 766-0202
Relay Texas: (800) 735-2989

MHMR Authority of Brazos Valley
1504 S. Texas Avenue
Bryan, TX 77803
(979) 822-6467
Relay Texas: (800) 735-2989

MHMR Authority of Harris County
2850 Fannin
Houston, TX 77002
(713) 970-7000
TTY: (713) 970-7014

MHMR of Tarrant County (Formerly Tarrant County MHMR Services.)
3840 Hulen Street
Fort Worth, TX 76107
(817) 569-4300
Relay Texas: (800) 735-2989

MHMR Services for the Concho Valley
1501 W. Beauregard
San Angelo, TX 76901-4004
(915) 658-7750
Relay Texas: (800) 735-2989

MHMR Services of Texoma
5001 Airport Drive
Denison, TX 75020
(903) 786-4800
FAX: (903) 786-2345
Relay Texas: (800) 735-2989

Northeast Texas MHMR Center
1C Oaklawn Center
Texarkana, TX 75501-4159
(903) 831-3646
Relay Texas: (800) 735-2989

Nueces County MHMR Community Center
1630 S. Brownlee
Corpus Christi, TX 78404-3178
(361) 886-6900
TTY: (361) 886-6900

Pecan Valley MHMR Region
640 W. Green
Stephenville, TX 76401
(254) 965-7806
Relay Texas: (800) 735-2989

Permian Basin Community Centers for MHMR
401 E. Illinois
Midland, TX 79701
(915) 570-3333
Relay Texas: (800) 735-2989

Sabine Valley Center
107 Woodbine Place
Longview, TX 75601
(903) 758-2471
TTY: (903) 234-4221

Spindletop MHMR Services (Merger of Beaumont State Center and Life Resource.)
2750 S. 8th Street
Beaumont, TX 77701
(409) 839-1000
TTY: (409) 839-1000

Texana MHMR Center (Merger of Riceland Regional Mental Health Authority and Central Gulf State-Operated Community MHMR Services.)
4910 Airport Avenue
Rosenberg, TX 77471
(281) 342-9387
Relay Texas: (800) 735-2989

Texas Panhandle MHMR (Merger of Amarillo State Center and Texas Panhandle Mental Health Authority.)
1501 S. Polk Street
Amarillo, TX 79101-4228
(P.O. Box 3250, 79116-3250)
(806) 337-1000
TTY: (806) 359-2025

Tri-County MHMR Services
1506 Old Montgomery Road
Conroe, TX 77305
(P.O. Box 3067, 77305-3067)
(936) 756-8331
Relay Texas: (800) 735-2989

Tropical Texas Center for MHMR
1901 S. 24th Street
Edinburg, TX 78540
(P.O. Drawer 1108, 78539)
(956) 383-0121
Relay Texas: (800) 735-2989

West Texas Centers for MHMR
319 Runnels
Big Spring, TX 79720
(915) 263-0007
Relay Texas: (800) 735-2989

Behavioral Health Service System

Dallas Area NorthSTAR Authority (DANSA)
10056 Marsh Lane, Suite 200
Dallas, TX 75229
(214) 366-9417

State Hospitals

Austin State Hospital
4110 Guadalupe
Austin, TX 78751-4296
(512) 452-0381
TTY: (512) 419-2165

Big Spring State Hospital
1901 N. Highway 87
Big Spring, TX 79720
(915) 267-8216
TTY: (915) 268-7805

Kerrville State Hospital
721 Thompson Drive
Kerrville, TX 78028
(830) 896-2211
TTY: (830) 257-8213

North Texas State Hospital, Vernon Campus
4730 College Drive
Vernon, TX 76384
(P.O. Box 2231, 76385-2231)
(940) 552-9901
TTY: (940) 552-9901

North Texas State Hospital, Wichita Falls Campus
6515 Lake Road
Wichita Falls, TX 76308
(P.O. Box 300, 76307-0300)
(940) 692-1220
TTY: (940) 692-1220

Rusk State Hospital
U.S. Highway 69 N.
Rusk, TX 75785
(P.O. Box 318, 75785-0318)
(903) 683-3421
TTY: (903) 683-7799

San Antonio State Hospital
6711 S. New Braunfels
San Antonio, TX 78223
(P.O. Box 23991, Highland Hill Station 78223-0991)
(210) 532-8811
Relay Texas: (800) 735-2989

Terrell State Hospital
1200 E. Brin
Terrell, TX 75160
(P.O. Box 70, 75160-0070)
(972) 563-6452
TTY: (972) 563-4479

Waco Center for Youth
3501 N. 19th Street
Waco, TX 76708
(254) 756-2171
Relay Texas: (800) 735-2989

State Schools

Abilene State School
S. 25th and Maple
Abilene, TX 79602
(P.O. Box 451, 79604-0451)
(915) 692-4053
Relay Texas: (800) 735-2989

Austin State School
2203 W. 35th Street
Austin, TX 78703
(P.O. Box 1269, 78767-1269)
(512) 454-4731
Relay Texas: (800) 735-2989

Brenham State School
4001 Highway 36 S.
Brenham, TX 77833-9611
(979) 836-4511
Relay Texas: (800) 735-2989

Corpus Christi State School
902 Airport Road
Corpus Christi, TX 78405
(P.O. Box 9297, 78469-9297)
(361) 888-5301
Relay Texas: (800) 735-2989

Denton State School
I-35 E. South
Denton, TX 76205
(P.O. Box 368, 76202-0368)
(940) 891-0342
Relay Texas: (800) 735-2989
Admissions: (940) 591-3379
Superintendent: (940) 591-3302

Lubbock State School
3401 N. University
Lubbock, TX 79417
(P.O. Box 5396, 79408-5396)
(806) 763-7041
Relay Texas: (800) 735-2989

Lufkin State School
Highway 69 North
Lufkin, TX 75902
(P.O. Drawer 1648, 75902-1648)
(936) 634-3353
Relay Texas: (800) 735-2989

Mexia State School
Highway 171
Mexia, TX 76667
(P.O. Box 1132, 76667-1132)
(254) 562-2821
Relay Texas: (800) 735-2989

Richmond State School
2100 Preston
Richmond, TX 77469-1499
(281) 344-4681
TTY: (281) 344-4558

San Angelo State School
10950 U.S. Highway 87 N.
Carlsbad, TX 76934
(P.O. Box 38, 76934-0038)
(915) 465-4391
Relay Texas: (800) 735-2989

San Antonio State School
6711 S. New Braunfels
San Antonio, TX 78223
(P.O. Box 14700, Harlandale Station 78214-4700)
(210) 532-9610
Relay Texas: (800) 735-2989

State Centers

El Paso State Center
6700 Delta Drive
El Paso, TX 79905 (P.O. Box 20019, 79998)
(915) 782-6300
TTY: (915) 775-1916

Rio Grande State Center
1401 S. Rangerville Road
Harlingen, TX 78550
(P.O. Box 2668, 78551)
956-425-8900
TTY: (956) 425-8900


MEETINGS 

Mental Retardation Planning Advisory Council
1st Tuesday of the month, 10am
Houston, TX 3110 Southwest Freeway
Dee Hall 713-970-7150

Bay area Community Resource Meetings
3rd Thursday of every month, 8:30am
Bay Area United Way Service Center
Barbara V. Rivas 281-282-6038

Federation of Families for Children's Mental Health
Regular Meeting
October 11, 2001
Lubbock, TX Lubbock Regional MHMR
purecntry@email.msn.com 806-765-9183

San Antonio Autism Society
3rd Saturday of the month, 9:30 am, babysitting available. 
Northside Church of Christ, 16318 San Pedro Avenue. 
Phone: 210-308-8752, www.sanantonioautism.org

Autism Support Group
3rd Tuesday of the Month
San Antonio, TX  "Any Baby Can Office"
210-227-0170

The ARC of Texoma
2nd Monday of each month

The ARC of Greater Houston Parent Support Groups
Aldine:		3rd Friday 10-12
Channelview:	1st Monday 7-9pm
Alief:		1st Thursday 6:30-8:30pm
Contact Monica Vaughan 713-957-1600

The Attention Defecit Disorders Association Southern Region
Meets the 2nd Tuesday of the month
Call 281-897-0982

The Autism Society of Collin County
Support/Networking
3rd Monday of the month
Call 214-925-2722

Collin County Autism Society
1st Tuesday of every month 
Plano, TX
Call 214-925-2722

FEAT-Houston, Inc.
2nd Thursday of odd numbered months 7-9pm
Call FEAT at 281-348-7067 www.feathouston.org

Friends Interested in Students Needing Pervasisve Supports (FISH)
Call 713-694-6300 x315

Greater Houston Chapter of the ASA
2nd Saturday 9:30am
Call 713-513-7575

Houston Parent Information Network
1st Thursday at the Children's Museum 12 noon
Call 713-926-2580 or 713-661-5511

Parents Educating Parents
1st Tuesday 9:30am
3rd Tuesday 11:30-1:30pm
Call 281-362-1918 or 281-363-3619

PDD/IDA
4th Tuesday except in December - 7pm
Call Gina 713-660-0944  www.hounet.com/autism

Dallas Asperger Network for all PDD's - DANISH
Meets 4th Thursday of the month.
Richardson, TX

The Autism Society of Greater Tarrant County
3rd Tuesday of every month
Child Study Center  6:30pm
Fort Worth, TX
http://www.asgtc.org

Texas Gulf Coast Chapter - ASA
2nd Tuesday of each month except December 7-9pm
Clear Lake Presbyterian Church
Clear Lake, TX
http://kidquest.com/asa/tgcc

Family to Family Network of Collin County
For families with children of all types of special needs or chronicillnesses.
3rd Thursday of each month during the school year
Dallas, TX  Christ Episcopal Church
713-466-6304

Easter Seals of Greater Dallas
Massage Class for Special Needs Children
3rd Wednesday of month - 10-11:30am
Carrollton, TX  Trinity Center
Lisa 972-394-8900

RESIDENTIAL SERVICES (GROUP HOMES)

Aniol River Gardens
750 Rusk, New Braunfels, TX 78130
(830) 609-4400

Autistic Treatment Center
16111 Nacogdoches  78247-1002
ICF-MR Level 5 Group Homes /HCS
590-2107

Community Assisted Living / Assosiated Benefits - CALAB
6502 Bandera Rd., Ste 212 SAT, 78238
ICF-MR Level 5 & 6 Group Homes / HCS
647-0191                         Fax: 647-7639

Complete Life Care
6647 Cade's Cove, SAT, 78238
ICF-MR Level 5 & 6 Group Homes
520-0774

Council Oaks
11902 Toepperwein, Suite 1001, SAT 78233
ICF-MR Level 5 & 6 Group Homes
646-0717

Dreams Come True, Inc.
3242 Swandale SAT, 78230
ICF-MR Level 5 Group Homes
979-6420

EduCare
10515 Gulfdale, SAT, 78216
ICF-MR Level 5 & 6 Group Homes / HCS
979-7009

Falcon Homes
9714 Knob Oak, SAT 78250
ICF-MR Level 5  Group Homes
630-6768

Growing Capabilities, Inc.
4338 Wind Valley, SAT 78261
ICF-MR Level 5 Group Homes
980-9565

Hill Country Support Services Inc.
3355 Cherry Ridge, Suite 104, SAT 78230
HCS Only
354-3691                        Sandy Smith

Home Life & Community Services, Inc.
505 E Travis, Suite 200, SAT 78205
HCS Only
340-8256

Lange & Ford, Inc. 
2002 Pine Tree, SAT 78232
ICF-MR Level 5 Group Homes
494-1956

Martin Luther Homes of Texas
324 S Loop 123 Business, Seguin TX 78155
(830) 924-92665

Mi Casa HCS Program
4142 Dakota Sun, SAT 78244-3277
HCS Only
661-6437

Mission Road Development Center
8706 Mission Rd, SAT 78214 
ICF-MR Level 1 & 5 Group Homes / HCS/ Semi-
Independent Apartments
656-6674

Progressive Life of San Antonio
(Formerly Skyview Group Homes)
11124 Wurzbach, Suite 204, SAT 78230
ICF-MR Level 5 & 8 Group Homes / HCS
558-3097                           Fax: 558-9791

R & K Specialized Homes, Inc.
1550 NE Loop 410, Suite 206
ICF-MR Level 5 Group Homes / HCS
805-0802                      Fax: 805-0744

Residential Management, Inc.
6336 Montgomery Rd., SAT 78239
ICF-MR Level 1, 5 & 6 Group Homes / HCS / Semi-
Independent Apartments
656-6674

Skyview Living Centers, Inc.
4703 Goldfield, SAT, 78218
ICF-MR Level 5 (97 Residents)
661-6751

South Texas Community Living Corp.
14607 San Pedro, Suite 205, SAT 78232
ICF-MR Level 5&6 Group Homes/ HCS 
494-1030

Specialized Home Life
PO Box 33487, SAT 78217
ICF-MR Level 5 Group Homes
599-8656

Willow Development Center
3700 Belgium, SAT 78219
ICF-MR Level 6 (208 Residents)
227-5722

Yes I Can
4231 Centergate, SAT 78217
HCS Only
599-6668

Respite Services

C.A.M.P.	292-3575

Respite Care of San Antonio
Davidson Respite House
PO Box 12633, SAT 78212
737-1212
737-0767 (Davidson RH after hours only)

Respite Station-Santa Rosa Hospital
519 W Houston
228-3497


LEARNING DISABILITIES (LD) AND 
ATTENTION DEFECIT HYPERACTIVITY
 DISORDER (ADHD)

ADD Warehouse
Resource books on attention deficit/hyperactivity disorder.
1-800-ADD-WARE		1-800-233-9273

Learning Disabilities Association
(512) 458-8324

The Learning Foundation
After School Tutoring 
3331A Wurzbach, SAT 78238			681-0033
15118 Jones Maltsburger, SAT 78247

The Winston School of San Antonio
8565 Ewing Halsell, SAT 78229
Private School for 1-12 grades for indiviuals with learning disabilities.
 615-6544

ADAPTIVE EQUIPMENT / MEDICAL SUPPLIES

Alamo Mobility 
6473 DeZavala Rd, SAT 78249
Driving Aids 
697-8884

Bexar Care 7410 John Smith Dr, Suite 214-A, SAT 78229
Authorized Medicaid Provider, durable medical equipment
614-3804

D&L Medical Products 
9701 Dessau Rd, Suite 202, Austin TX 78754
Authorized Medicaid provider, durable medical equipment 
800-880-7402

Davila Pharmacy 
1423 Guadalupe, Suite 108, SAT 78207
Authorized Medicaid Provider, medical appliances
266-5293

Lynay 
8474 Fredricksburg Rd, Suite 100, SAT 78229
Authorized Medicaid Provider, durable medical equipment
614-9100

New Directions 
2219 Babcock Rd, SAT 78229
Info and evals for assistive technology and wheelchairs
614-7138 614-1910

Para-Driving 4714 Broom, SAT 78229
Driving Aids 
655-5438
Rehab in Motion
5460 Babcock Rd Suite 100, SAT 78240

San Antonio Orthotics & Prosthetics
7220 Louis Pasteur, SAT 78229
Leg braces, etc
616-0761

Simon & Simon
9207 Huebnar Rd, SAT 78240
821-6581

Summit DME
5405 Bandera Rd, Suite 116, SAT 78238
Authorized Medicaid provider, durable medical equipment
521-9800

Wheelchairs Plus
7719 Wurzbach Rd, SAT 78229949-1660

Project M.E.N.D.
1201Austin St, SAT 78208
Rents used equipment, wheelchairs, walkers, etc.
223-6363

ATTORNEYS

In Houston-Jeff Sell
HITT, PATTERSON & SELL
   He has a lot of knowledge about autism, vaccine injuries, and of course a lot more.
He also has twin autistic boys and is very kind passionate about our plight.
    http://www.HittPattersonSell.com 

Yolanda Gonzales-Alvarez
102 Marshall< SAT 78212
Guardship, Medicaid & Social Security
212-6020

Michael Archer
8207 Callaghan Rd, Suite 425, SAT 78230
Social Security 
349-7772

Patricia Ann Bath
100 W Houston St, Suite 1550, SAT 78205-1457
Estate Planning & Guardship
224-9144

Carol Bertsch
1919 San Pedro, SAT 78212
Medicaid
735-9911

Margie Boldrick 
1777
MNE Loop 410,Suite 600, SAT 78217
Estate Planning

John Heard 
3737 Broadway, Suite 310,SAT 78209
Social Security
820-3737

Jim House
8620 New Braunfuels, Suite 315, SAT 78217
Estate Planning 
821-6863
Cheryl Mc Mullan
111 Soledad, Suite 300, SAT 78205
Estate Planning, Guardship &* Medicaid 
212-4067

Marc Perkins
12500 San Pedro, Suite 555, SAT 78216
Guardship
496-1516

Patricia Sitchler
112 E Pecan 30th floor, SAT 78205
Estate planning Guardship & Medicaid
224-4491

Charlene Smith
5451 Grissom, SAT 78238
Guardship
521-6622

Connie Somers 
711 Navaro, Suite 777, SAT 78205
Social security
271-7807

K,T, Whitehead
6102 Broadway, Suite B-2, Sat 78209
Estate Planning, Guardship & Medicaid
930-4300

GENERAL POPULATION COMMUNITY RESOURCES

Busy Bodies
A non-profit motor behavior program.
Sue Selander and Dr. Strauss
11985 Starcrest
San Antonio, TX
Gross Motor Movements & skills with ABA approach,
Handwriting & School Help
210-545-2840

Catholic Charities
Food, Clothing, Rent, Utilities & Immigration
2903 W. Salinas, SAT 78207
433-3256

Christian Assistance Ministries - CAM
110 McCollough, SAT 78215
Food, Clothing, Rent, Utilities
223-6648

Community Acton Program - CAP
Food, Clothing, Rent, Utilities
Call for nearest location
207-7135

Ella Austin Community Center
1023 N. Pine, SAT 78202
Food, Clothing, Utilities
224-2351

Greater Randolph Area Services Program
426 E Aviation, Universal City TX 78148
Randolph & Marion area only
Food, Clothing, Rent, Utilities
656351

Greater Corinth Baptist Church
500 S New Braunfels, SAT 78203
Food Only
M-F 4:00 p.m. - 5:30 p.m. ONLY
533-7991

Guadalupe Community Center
1801 W Durango, SAT 78207
Rent, Utilities, & GED
In area only
226-6178

Habitat for Humanity
311 Probant, SAT 78204
Build homes for low-income families
223-5203

Health Care for the Homeless
204 Nolan, SAT 78202
229-9322

Helping Hands Lifeline Foundation
Food, Clothing, Rent, Utilities, Prescriptions
Call M-W-F mornings only
922-4280

House of Neighborly Service
407 N Calaveras St
Food only
434-2301

Link-up America
Reduced telephone service for low income families
800-244-5188

Presa Community Center
3721 S Presa, SAT 78210
Senior Nutrition Center
532-5295

Project Warm
For CPS assistance during winter only
299-7835 or 220-6770

Randolph Area Christian Assistance Program - RACAP
Food, Clothing, Rent, Utilities
NE area only
M-F 2:00 p.m. - 4:00 p.m.
658-1613

Society of St. Vincent de Paul
Food, Clothing, Rent, Utilities
225-7837

San Antonio Alternate Housing
1215 S Trinity, SAT 78207
Helps low income families own homes
224-2349

Salvation Army
226 Nolan St
Temporary shelter for men
226-2291

Salvation Army-Hope Center
510 N Flores St, SAT 78212
Food anytime, For Clothing, Rent & Utilities must telephone on
Mondays by 9 a.m. for appointment
352-2020

SAMM Center
910 W Commerce, SAT 78207
Temporary Shelter
224-5358

San Antonio Food Bank
4311 Director Dr., SAT 78219
Food
337-3663

Terri Locke
Behavior Consultant, Parent Training,
Home & School Intervention,
Vocational & Functional Life Skills Training
Phone (published with permission)
210-771-3166

Wesley Community Center
1406 Fitch, SAT 78211
Food, Clothing, Utilities & Counseling in their area only
924-5191

United Way Help Line
227-4357

RECREATIONAL/LEISURE ACTIVITIES

The Arc of San Antonio, Inc.
Heart in Hand Square Dance Group
Meets Tuesday evenings
490-4300

A.W.A.R.E. San Marcos
Sam Marcos, TX
Therapeutic Riding for people with special needs
(512) 754-6773

Busy Bodies
San Antonio, TX
Gross Motor Skill, Handwriting & School Help
210-545-2840

Children's Association for Maximum Potential - C.A.M.P.
Administration				292-3566
Fax						292-3576
Littlest CAMP					292-3560
Camping					292-3574
C.A.M.P. Camp (summer only)		830-634-2267


Circle T Equestrian Therapy Center
9560 Hilderbrand Rd., SAT 78222  
Therapeutic riding for people with special needs
633-0678

Mary Kay Studios, Creative Music Education
9590 Campton Farms, SAT 78250
Music Lessons
647-3238

R&K All-Stars Special Olympic Team
Coach: Roy Hernandez	805-0802

The Saddle Light Center for Therapeutic Horseback Riding
17530 Old Evans Rd., Selma TX 78154
Therapeutic riding for people with special needs
651-9574

St. David's Episcopal Church & School
1300 Wilshire, SAT 78209
Saturday bowling		824-2481

San Antonio Area 20 Special Olympics
10233 McAllister Frwy Ste 100, SAT 78216
530-9898 Fax: 530-9896

Songsters Choir
Gail Phillips			805-0802

Sunburst Gymnastics
7903 Mainland Dr., SAT 79250
680-0944

Triple H Equitherapy
789 Backhaus Rd, Pipecreek, TX 78063
Therapeutic riding for people with special needs
(830) 510-9515

TRANSPORTATION

Medical Transportation		1-877-633-8747
(For medical appointments only)	(1-877-MEDI-TRIP)
Medicaid eligibility required

Transportation for the Elderly		226-9212

VIA-Trans				227-5371 ext. 8375

RESOURCE/REFERRAL/ADVOCACY SERVICES

The Arc of San Antonio, Inc.
Advocacy, Resources & Choices
(Formally the Association for Retarded Citizens
13430 West Ave, SAT 78216
490-4300 Fax 490-5196

ARC-TX	800-252-9729		Fax: 512-54-4956
ARC-US	800-433-5255		Fax: 817-277-3491

Advocacy, Inc
Information / Assistance about legal rights of persons with disabilities
Intake:		800-252-9108(Spec ED calls)
All others:	800-223-4206
M-F, 12:30- Thursdays, 12:30-8:00 p.m.

Advocacy Inc. - San Antonio
434 S. Main Ave, SAT 78204
227-0111

Any Baby Can, Inc.
5410  Fredericksburg Rd., Suite 104 SAT 78229
377-0222                                    fax: 377-0497

Center On Independent Living -COIL
4905 Center Park Blvd. SAT 78218
599-7711

Parent Resource Network - The Path Project
4602 Cobble Crest, SAT 78218
654-7015

Project Poder
School issues, literature, rights
222-2637

San Antonio Area Disability Advocates -SAADA
Meet at Luby's Cafeteria McCreless, 1st Tuesday of the month, 5:30-7:30p.m
523-0544                LMSW President


San Antonio Independent Living Services -SAILS
1028 S Alamo, Suite 1, SAT 78210
281-1878 Fax: 281-1759

San Antonio League of Self Advocates- SALSA
231 Montclair, SAT 78209
828-7125 Fax: 821-5530

Texas Communication for the Blind
4204 Woodcock, Suite 274 SAT 78228
732-9751 Fax: 735-7508

COMMUNITY SUPPORT

The Arc- SA/ Commission Living Assistance Support Services -CLASS
Medicaid Waiver Program for those with Developmental Disabilities
Program Information: 490-4300
Waitlist in Austin:  (512)438-5658

The Arc- SA/ Comprehensive School- Based Case
Management- Children with Special Health Care Needs
Program (Formerly CIDC)
490-4300

Advance National Headquarters
301 S. Frio Suite SAT 78207
Parenting Education, Adult Literacy, Fatherhood Services, 
Child Abuse/ Neglect Intervention
220-1788

Avance of San Antonio
2300 W. Commerce Suite 304 SAT 78207
Parenting Education, Adult Literacy, Fatherhood Services, Child Abuse/ Neglect
Intervention
270-4630 Fax: 270-4612

Jewish Family Services
12500 NW Military Hwy, Suite 250, SAT 78231
Counseling, Guardianship & Various Support Groups
302-6920

Mental Health Association of Greater San Antonio
901 NE Loop 410. Suite 504, SAT 78209
826-2288

Muscular Dystrophy Association Of South Texas
2391 NE Loop 410, Suite 313, SAT 78217
Diagnostic exams, medical follow- up, carrier- testing counseling, equipment, 
PT/OT, summer camp, support groups
650-3181

Projects Jobs of San Antonio
231 Montclair, SAT 78209
Information about supportive employment and empowerment. Monthly Newsletter
828-7125 FAX: 821-5530

San Antonio Alliance for the Mentally III
2339 W Woodlawn, SAT 78228
Monthly meetings and apartment living
Call 10a.m- 2p.m. on MWQF
734-3349

Texas Commission for the Blind
4204 Woodcock Suite 274, SAT 78228
Assistance for visually impaired from the birth to adult

The Center For Health Care Services

CHCS( Formerly Bexar County Mental Health & Mental Retardation Center- 
BCMHMRC
Information						731-1300
Intake							731-1335
Adult Training Residence (ATR) ICF-MR 1		732-4966
Case Management					731-1335
Comm Hab Integration Program Services		532-5159
Crisis Unit						225-5481
Diagnosis 						731-1335
Employment Connections				532-5159
Family Resources					731-1335
Home & Community-based Services/HCS		731-1335
I n Home & Family Support				532-5158
MR Residential					659-5857
MR Clinical Services				731-1335/532-5158

ADULT DAY SERVICES

The Arc of  San Antonio, Inc.
Project Choice
13430 West Ave Sat 78216
Adult Day Habilitation and Vocational Programs
490-4300 Fax: 490-5196

Alternative Buisness Services-ABS
Vocational Programs and Day Habilitation
N: 5403 Jackwood,  SAT 78238	509-7567	Fax: 509-7514
NE: 5121 Crestway, Suite 115, SAT 78239   967-9699

Autistic Treatment Center
16111 Nacogdoches SAT 78247
Vocational Workshop & Day Habilitaion 
590-2107

The Center for Health Care Services - CHCS
227 W Drexel SAT 78210
C.H.I.P.S			532-5159
Employment Connections      532-5159

Council Oaks
11901 Toepperwein Suite 1001 SAT 78233
Adult Occupational Program for Developmentally Disabled
Residents
646-0717

Easter Seal Rehabilitation Center
Head Injury / New Beginnings Program
2203 Babcock Rd, SAT 78229
Day Habilitation and Vocational Training
614-3911

Goodwill Industries
ERI-4722 Eisenhaur RD, SAT 78218		599-7107
North- 4630 Hamilton Wolfe, SAT  78229	614-1656
South-3830 Pleasanton RD, SAT 78221	924-8581

Health, Inc.
217 Cactus St., SAT 78203
DAHS Program
532-3977		FAX: 532-2126

Mission Road Development Center
8706 Mission Rd SAT 78214-3144
DAHS Program
924-9265

Mother Earth Daycare
8464 Barron Rd SAT 78240
DAHS Program
691-1778 FAX: 691-2959
Pos-Abilties, Inc.
10515 Gulfdale SAT 78216
Vocational Workshop and Day Habilitaion
979-7009

San Antonio Lighthouse
2305 Roosevelt SAT 78217
Vocational and Rehabilitation services for blind and visually impaired
533-5195

Sterling Adult Day Services (Formally Golden Comfort)
4252 Thousand Oaks SAT 78217
DAHS Program
656-1772 FAX: 656-2275

Texas Rehabilitation Commission
Central			225-3281
North			349-2684
Northeast		650-0943
South			924-9205
West			434-9421

Unicorn Center, Inc
1300 West Avenue SAT 78201
Vocational Workshop & Day Habilitation
737-3355 FAX: 737-3208

Unique Adult Day Services
2845 Thousand Oaks, SAT 78232
DAHS Program
499-5151

CHILDREN'S SERVICES

The Arc of San Antonio, Inc.
A Caring Choice - After School Care
13430 West Ave SAT 78216
490-4300 FAX: 490-5196
North	558-6607
Northeast	491-3477

Autistic Treatment Center
16111 Nacogdoches SAT 78247
Educational Services
590-2107

Brighton School
271 E Lullwood, SAT 78212
ECI Program 826-4492

Children Learning Center- CLC
333 W Lovera SAT 78213
Day Program for Children with Autism & MR Age 3-21
Functional Living Skills for Young Children & Adult Supportive Employment 
733-1017

Easter Seal Rehabilitation Center
2203 Babcock Rd, SAT 78229
ECI Program
614-3911

Mi Casa of San Antonio
8601 Cinnamon Creek
561-7660

New Directions 
2219 Babcock Rd, SAT 78229
Info and evals for assistive technology and wheelchairs
614-1910

Paces Program
The Center for Health Care Services - CHCS
227 W Drexel SAT 78210
ECI Program
532-5158

Parent Information Exchange- PIE
511 E Craig Place, SAT 78212
Agency/program information binder for sale
Margaret Larcade		733-0260

Village of Hope
701 S  Zaramora
Center for children with learning disabilities
358-7375

CHILD CARE RESOURCE & REFERRAL

Child Care Management Services - CCMS
1222 N Main Suite 115, SAT 78212
Child care funding and placement
246-5200

Southwest Institute Educational Advancement - SIEA
(Formerly Child Care Services)
PO Box 701364, SAT 78270
Assistance in locating childcare services for special needs children
and providing on site and group training workshops. 
885-5250

Mi Casa
Mi Casa of San Antonio
8601 Cinnamon Creek
561-7660
After school, holiday, and summer hours for childrens with disabilities

CONFERENCES

I am having a hard time finding conference information. If you know of any conferences coming up please send me the details and I will post them.

email: autismzone@yahoo.com

Defeat Autism Now! (DAN!)
2001 SPRING CONFERENCE

Friday, May 11
Saturday, May 12
Atlanta, GA
Atlanta Hilton, 255 Courtland St. NE, Atlanta, GA 30303
DAN! Fall Conference, October 5, 6, 7, 2001: San Diego, CA
TOPICS INCLUDE:
* Toxic Metals in Autism: Focus on Mercury * Immunizations: Practical Safety Issues * The Role of Special Diets and
Supplements * Prioritizing Interventions * Digestive Enzyme Inhibition and Autism * Environmental Factors as Triggers for Autism * The Role of Omega 3 Fatty Acids, Virus, Vaccines and the Gut in Autism (Latest Information on MMR) *
SPEAKERS INCLUDE:
* Sudhir Gupta, M.D., Ph.D. * Sidney Baker, M.D. * Jon Pangborn, Ph.D. *
* Bernard Rimland, Ph.D. * Paul Shattock * Jeff Bradstreet, M.D. *
* Lisa Lewis, Ph.D. * Kenneth Bock, M.D. * Stephanie Cave, M.D. *
* Jane El-Dahr, M.D. * Amy Holmes, M.D. * Paul Hardy, M.D. *
* James Laidler, M.D. * Woody McGinnis, M.D. * Nancy O'Hara, M.D. *
* Andrew Stoll, M.D. * Jayne Barese, R.N. *

Autism Society of America's 2001 Conference - "Millennium of Hope" July 18-22, 2001 San Diego, California.

ANNOUNCING IMFAR International Meeting For Autism Research November 9 - 10, 2001 San Diego, California

UNLOCKING AUTISM Don't Miss the Power of One Conference and Rally in DC - April 26 - 27, 2001
Autism Conference 2001: From Research to Practice May 17-18, 2001 Atlanta, GA
Sponsored by: Emory Autism Resource Center (404) 727-8350

Register for "Autism 2001" BUFFALO, NEW YORK June 14-15, 2001
GUEST SPEAKERS: Temple Grandin, Eustacia Cutler (Temple’s mother), Lynn Hamilton, Christopher Alterio, Kathleen Quill, and Carol Kranowitz Buffalo Convention Center Buffalo Convention Center Plaza Buffalo, NY 14202 1-716-855-5555

2-Day (PECS) Picture Exchange Communication System Workshop Contact:Pyramid Educational Consultants, Inc. 888-732-7462 or skubala@pecs.com

Salt Lake City, Utah June 7 & 8, 2001
Boise, Idaho June 14 & 15, 2001
Eu Clair, Wisconsin June 19 & 20, 2001
Nashville, Tennessee July 12 & 13, 2001
Burlington, Vermont July 23 & 24, 2001
Oklahoma City, Oklahoma August 2 & 3, 2001
Baton Rouge, Louisiana August 9 & 10, 2001
San Fransisco, California August 16 & 17, 2001
Honolulu, Hawaii August (TBD)
Las Vegas, Nevada September 6 & 7, 2001
Little Rock, Arkansas September 20 & 21, 2001
Albany, New York October 11 & 12, 2001
Seattle, Washington October 25 & 26, 2001
Chicago, Illinois November 13 & 14, 2001
Albuquerque, New Mexico November 15 & 16, 2001
Boston, Massachusetts December 3 & 4, 2001
West Palm Beach, Florida December 6 & 7, 2001

Visual Strategies for Improving Communication and Behavior
2-day workshop featuring Linda Hodgdon,M.Ed., CCC-SLP
June 7-8, 2001, Livonia, MI

Positive Approaches to Solving Behavior Challenges
If you provide educational or support services to individuals who have behavior challenges associated with a developmental disability, autism, PDD, brain injury, mental illness or SED/BD then this series of seminars is a MUST for you to attend. By attending these seminars you will learn concrete strategies to improve the quality of life of the people you support using only person-centered, positive behavioral strategies. Seminars are scheduled monthly and are held throughout the US, Canada, UK, and Australia. Visit web site
http://www.iaba.com for more information or e-mail jmarshall@iaba.com. John Q. Marshall, Jr. Institute for Applied Behavior Analysis PO Box 5743 Greenville, SC 29606-5743 Toll Free (US & Canada): (800) 457-5575 Telephone: +1 (864) 271-4161 Fax: +1 (864) 271-4162.

Check out http://network54.com/Forum/58400 for other information on autism conferences.

AUTISM LINKS

Categories:

GENERAL INFORMATION AUTISM SITES
GOVERNMENT
NATIONAL DISABILITY ORGANIZATIONS
FRAGILE X
RELATIONSHIPS
TECHNOLOGY
ADAPTIVE CLOTHING
ACTIVITES
ASPERGER'S SYNDROME
RESPITE
ADD/ADHD
LAWS FOR DISABILITIES
TRANSITION
ADVOCACY
MEDICAL SEARCH ENGINES
THE BRAIN
COMMUNICATION DISORDERS
LEARNING DISABILITIES
EPILEPSY
TOURETTE SYNDROME
CHILDREN'S ACTIVITY SITES
COLORING SITES
DIAGNOSIS
ABA-APPLIED BEHAVIOR ANALYSIS
THE DIET
SENSORY INTEGRATION
TREATMENTS
TEXAS LINKS

Web Sites That Give Good Information
GENERAL INFORMATION AUTISM SITES

ABA Resources for Recovery from Autism/PDD/Hyperlexia
One of the best sites for ABA information, legal documents for fighting school districts, and how best to implement an ABA program.
http://members.tripod.com/RSaffran/aba.html

Paper on autism w/checklist
Has a good checklist.
http://www.allkids.org/Epstein/Articles/Autism.html

Autism Main Index
Good source for updated info, one of the largest sites
http://www.autismuk.com

Autism Society of Wisconsin
Best local site on the web
http://www.asw4autism.org

Ooops....Wrong Planet! Syndrome
Autism Spectrum Resources
http://www.isn.net/~jypsy

Autism TalkNet
Good place to share information
http://www.autismtalk.net

Autism Research Institute
ARI is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood.
http://www.autism.com/ari/
To order the DAN Protocol and other publications-a must have for parents ($25.00's)
http://www.autism.com/ari/request.html

Center for the Study of Autism
A comprehensive autism links page and is linked to the Autism Research Institute.
http://www.autism.com

A Comprehensive Guide to Managing Autism by Willis S. Langford
http://www.talkinternational.com/issues_health_autism_guide_aug_03_01.htm

PowerPoint Presentations from the Spring 2001 DAN Conference
(Atlanta, GA 2001)
http://www.autism.com/ari/powerpoint.html

Unlocking Autism
http://www.unlockingautism.org

Behavior Analysis & Therapy, Inc.
A java-rich site with a lot of links and information
http://www.behavior-analysis.org/Default-F.htm

F.E.A.T
good page
http://www.feat.org

PDD Palace
personal page w/book list & resources
http://members.aol.com/pddpalace/index.html

Repligen
Repligen is the patent holder to Secretin
http://www.secretin-repligen.com

Autism Links
Many catagorized links
http://members.tripod.com/~transmil/alp.htm

Autism and ABA Resources
Comprehensive site for PA clinic
http://www.tclc.com

AUTISM Independent UK
Comprehensive site with lastest news.
http://www.autismuk.com/

Developmental Delays Resources
A lot of information & links about various delays & therapies.
http://www.devdelay.org/

FEAT Website Search
http://www.feat.org/Search/DefaultSearch.htm

National Autistic Society (Surrey Branch) Parent's Group
http://www.mugsy.org

Nerdworld-Autism
Great search and resource page
http://www.nerdworld.com/nw2383.html

The Lovaas Institute for Early Intervention
Is a research based Institute that specializes in teaching pre-school aged children with autism, pervasive developmental disorders, and related developmental disabilities. The behavioral intervention program was developed in the Psychology Department of UCLA under the direction of Dr. O. Ivar Lovaas. It is based on extensive clinical experience and more than 35 years of scientific research.
http://www.lovaas.com/

Autism-South Carolina
Parent's page on their experience.
http://hometown.aol.com/sheeanaa/page1.html

The Association for Behavior Analysis
http://www.wmich.edu/aba/

What Is Autism?
A site giving some first hand views of what Autism is, in addition to clinical information and definitions.
http://www.students.uiuc.edu/~bordner/ani/definitions.html

Autism Society of America Foundation
ADAF was founded in 1996 by the Autism Society of America, the largest and oldest organization representing people with autism. The primary mission of ASAF is to raise and allocate funds to address the many unanswered questions about autism. ASAF sponsors work as diverse as the people affected by autism, spanning such fields as neurobiology, education, behavioral science, adult services, and disability law.
www.autism-society.org/foundation/

Autistic.Net
Autistic.Net offers free information about the treatment and diagnosis of Autism, Asperger's Syndrome, Pervasive Developmental Disorder, as well as information about clinics for autistic children, support groups for parents, autism newsgroups and chat rooms.
www.autistic.net/

CAMP Homepage
Children's Association for Maximum Potential (CAMP) is a non-profit corporation established in 1979 to provide a wide range of recreational, rehabilitative, educational, and respite services for children with developmental disabilities and their families.
www.serve.com/campcamp/index01.htm

CAN, The Cure Autism Now Foundation
The Cure Autism Now Foundation is an organization of parents, clinicians and scientists dedicated to finding effective biological treatments, prevention and a cure or autism and related disorders.
www.canfoundation.org/

Center for the Study of Autism
(Autism.COM) Information on autism.
www.autism.com

Center for Disease Control and Prevention
A government site containing information and links for a variety of diseases. All information is available for public viewing.
www.cdc.gov

Combined Health Information Database
CHID is a database produced by health-related agencies of the Federal Government. This database provides titles, abstracts, and availability information for health information and health education resources.
www.cdc.gov

Different Roads to Learning
Different Roads to Learning is an on-line catalog specializing in learning materials and playthings for children with developmental delays and challenges. This catalog puts together educational toys and materials that stimulate the skills leading to speech and language for challenged children ages 2 to 10.
www.difflearn.com

Future Horizons
Future Horizons is a company that specializes in publishing books on autism. National Institute of Neurological Disorders and Stroke
www.futurehorizons-autism.com

MERCURY AND AUTISM
http://www.autism.com/ari/mercurylong.html

NINDS
Provides information for Patients, Clients, and Scientists, and information of the work being done by the Institute.
www.ninds.nih.gov

The American Speech-Language-Hearing Association
ASHA is the professional, scientific, and credentialing association for more than 96,000 audiologists, speech-language pathologists, and speech, language, and hearing scientists. This site is a resource for ASHA members, persons interested in information about communication disorders, and for those wanting career and membership information.
www.asha.org

The Autism Picture Page
A site with photos of kids with autism, through donated pictures by parents. There is also text and sound references regarding autism.
http://autism.simplenet.com

The Autism Society of America Homepage
The main Homepage for the Autism Society, it has statistics and general information on autism, as well as a mailing list, information on joining and news updates.
www.autism-society.org

Institute for Childhood Development
ABA information and activities.
http://icd.binghamton.edu/

Empowerment Zone
Family's page offers information, ideas, and software.
http://www.empowermentzone.com/#education

Photo CD Site-must purchase CD
Great pictures for all sorts of Autism teaching tools.
http://shops.looksmart.com/cgi-bin/ePages.storefront/1013082770/Product/View/9136&2D22431

Laureate Learning Systems
Has great software for learning language and other skills for children with disabilities.
http://www.laureatelearning.com/

Autism Network for Dietary Intervention(ANDI)
Providing Help And Support For Families Using A Gluten & Casein Free Diet In The Treatment Of Autism And Related Developmental Disabilities
http://www.autismndi.com/

National Alliance for Autism Research
The National Alliance for Autism Research, NAAR, is a national nonprofit, tax-exempt organization dedicated to finding the causes, prevention, effective treatment and, ultimately, cure of the autism spectrum disorders.
http://www.naar.org/

Ariel's Web Site
http://www.autismsupport.org

Autism site at members.spree
Has good links for autism and good training for ABA, toilet training, fact sheets, where to start, TEACCH, and so much more.
http://members.spree.com/autism/

ABA Connections
Interventions for Autism Spectrum Disorders (I4ASD) sets up home-based early intervention programs for individuals with an autism spectrum disorder or other related disabilities. The company is based in Atlanta, GA with availability throughout the Southeast.
http://www.abaconnections.com/

Applied Behavior Analysis Master's Program
University of South Florida
http://aba.grad.usf.edu/

CLARIFYING COMMENTS ON THE UCLA YOUNG AUTISM PROJECT
Dr. Lovaas's comments on his study
http://www.feat.org/lovaas/full.htm

Surgeon General's Report on Autism
See the Surgeon General's opinions of ABA and other treatments.
http://www.surgeongeneral.gov/library/mentalhealth/chapter3/sec6.html#autism

San Antonio Autism Society Web Page
San Antonio Autism Site
http://www.sanantonioautism.org/

Circle Time Web Site
Has links for play.
http://www.circletime.com/subpgs/fealinks.htm#Games

The Experts Accounts of life on the Spectrum
The homepages of people on the Spectrum and their parents
http://www.isn.net/~jypsy/experts.htm

Families for Early Autism Treatment
FEAT is a non-profit organization dedicated to providing world class Education, Advocacy, and Support for the Northern California AutismCommunity.
http://www.feat.org/

AUTISM VIDEOS
Provides information for sale.
http://www.autism.com/cont_ed_prog

AUTISM-PDD (Pervasive Developmental Disorder Network)
Information guide dedicated to autism spectrum disorders
http://www.autism-pdd.net

CENTER FOR STUDY OF AUTISM (CFA)
The center provides information about autism to parents and professionals, and conducts research on the efficiency of various therapeutic interventions. Much research is in collaboration with the Autism Research Institute in San Diego, California
http://www.autism.org

CURE AUTISM NOW (CAN)
Dedicated to promoting and funding research with direct clinical application for treatment of autism.
http://www.canfoundation.org

FUTURE HORIZONS
Provides information on videos, books, publications, and conferences; links and newsletter.
http://www.futurehorizons-autism.com

OTHER SITES
List of Internet resources and links concerning autism.
http://www.autism.org/links.html

TEACCH
Treatment and education of autistic and related communication handicapped children.
http://www.unc.edu/depts/teacch

THE AUTISM CHANNEL
Provides chat, information and support to parents with children with autism or related disorder.
http://www.autism.clarityconnect.com

CAMPS FOR AUTISTIC CHILDREN
http://wizard.ucr.edu/~wm/therapy.html

E-GROUPS TO DISCUSS AND SHARE INFORMATION
To search for a group that is right for you or to create your own.
http://groups.yahoo.com/

UNLOCKING AUTISM PAGE
http://www.unlockingautism.org

New School for the Learning Sciences
A nonprofit, Internet-based institution offering advanced training in the learning sciences from scientists and scholars throughout the world, for parents, students and learners throughout the world, featuring courses such as: ***Behavior Analyst Certification Exam Preparation , ***Applied Behavior Analysis and the Treatment of Children.
www.nsls.com

GOVERNMENT

GOVERNMENT EDUCATION PROGRAMS BY STATE
http://www.ed.gov/Programs/statelist.html

FEDERAL REGISTER-US DEPT.OF EDUCATION ANNOUNCEMENT
Provides a choice of the US Department of Education documents to be viewed.
http://gcs.ed.gov/fedreg/announce.htm

FEDERAL WORLD HOME PAGE
Provides a way to search within the government for reports and information.
http://www.fedworld.gov/#hletr

GPO ACCESS
Provides a link to search different departments of government.
http://www.access.gpo.gov/su_docs/dbsearch.html

HHS AGENCIES
Home page for the office of Health and Human Services.
http://www.hhs.gov/progorg

IDEA PRACTICES
Resource and interactive website that provides service providers and local administrators with information and support for IDEA related concerns, issues, and strategies.
http://www.ideapractices.org

SOCIAL SECURITY ONLINE
Provides information about social security.
http://www.ssa.gov

US DEPT OF EDUCATION
Home Page for the US Department of Education.
http://www.ed.gov

US FEDERAL GOVERNMENT AGENCIES
US.Federal Government agencies directory.
http://www.lib.lsu.edu/gov/fedgov.html

NATIONAL DISABILITY ORGANIZATIONS

AMERICAN ASSOCIATION OF UNIVERSITY AFFILIATED PROGRAMS FOR PERSONS WITH DEVELOPMENTAL DISABILITIES
Provides information about organizations for people with disabilities, legislation, special projects, resources, membership, and links.
http://www.aauap.org

AMERICAN ASSOCIATION ON MENTAL RETARDATION
Provides information on careers, publications, conference, etc.
http://www.aamr.org

AMERICAN SOCIETY FOR DEAF CHILDREN
Providing a link between those with experiences to share and people seeking answers: services, resources, and links.
http://www.deafchildren.org

AMERICAN SPEECH-LANGUAGE-HEARING
Provides information for professionals, students, and consumers
http://www.asha.org

NATIONAL EASTER SEAL SOCIETY
Non-profit, community-based heath agency dedication to helping children and adults with disabilities attain greater independence.
http://www.seals.org

NATIONAL HEALTH INFORMATION CENTER
Health information referral service.
http://nhic-nt.health.org

NATIONAL INFORMATION CENTER FOR CHILD AND YOUTH WITH DISABILITIES (NICHCY)
National information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals, available in Spanish.
http://www.nichcy.org

NATIONAL INFORMATION CENTER ON DEAFNESS INFOGO
Centralized source of accurate, up-to-date, objective information on topics dealing with deafness and hearing loss.
http://www.gallaudet.edu/~nicd

NATIONAL INSTITUTE FOR LIFE PLANNING FOR PERSON WITH DISABILITIES (NILPPD)
Serves as a national clearinghouse for persons with disabilities, families and professionals on all aspects of Life Planning.
http://www.sonic.net/~rfee

NATIONAL INSTITUTE OF MENTAL HEALTH
Mental health research organization: valuable information on specific mental disorders, diagnosis and treatment. (also in Spanish)
http://www.nimh.nih.gov

NATIONAL INSTITUTE ON DISABILITY & REHABILITATION RESEARCH
Provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disability.
http://www.ed.gov/offices/OSERS/NIDRR

NATONAL MENTAL HEALTH ASSOCIATION
Dedicated to improving the mental health of all individuals and achieving victory over mental illnesses.
http://www.nmha.org

NATIONAL ORGANIZATION ON DISABILITIES
Only National disability organization concerned with all disabilities, all age groups, and all disabilities issues.
http://www.nod.org

NATIONAL PARENT NETWORK ON DISABILITY
Provide a presence and national voice for All families of children, youth and adults with disabilities.
http://www.npnd.org

NATIONAL REHABILITATION INFORMATION CENTER
Provides information on disability and rehabilitation.
http://www.cais.com/naric

FRAGILE X

FRAXA
http://www.fraxa.org

American College of Medical Genetics
http://www.faseb.org/genetics/acmg/pol-16.htm

National Center for Biotechnology Information
http://www.ncbi.nlm.nih.gov/

RELATIONSHIPS

CHILDREN WITH DISABILITIES: UNDERSTANDING SIBLING ISSUES (NICHY)
Article on sibling issues.
http://Ldonline.org/ld_indepth/family/family-sib1.html

A SMATTERING OF SIBLING RESOURCES
A listing of books/resources for sibling of children with disabilities.
http://Funrsc.fairfield.edu/~jfleitas/siblinks.html

THE SIBLING SUPPORT PROJECT
Provides general information for siblings of all ages of children with special needs, resources, newsletter, information on sibshops.
http://www.chmc.org/departmt/sibsupp

TECHNOLOGY

ALLIANCE FOR TECHNOLOGY ACCESS
Provides information on assistive technology center, books, facts, and vendors.
http://www.ataccess.org

APPLIED SCIENCE AND ENGINEERING LABS
Gives information on terms, devices, and types of equipment, also links to other resources.
http://www.asel.udel.edu

ADAPTIVE CLOTHING

KIDOVATIONS.COM
Adaptive clothing for children with disabilities that are fun and functional (also a monthly newsletter & discussion forum)
http://www.kidovations.com

FAMILY VILLAGE- ADAPTIVE CLOTHING
Provides vendor listing and other resources surrounding adaptive clothing.
http://www.familyvillage.wisc.edu/at/adaptive-clothing.htm

ACTIVITES

ALTERNATIVE LEISURE COMPANY
Provides information about trips and camps for children with disabilities.
http://www.alctrips.com

SPECIAL OLYMPICS
Programs of sport training and competition for individuals with mental retardation.
http://search.acacamps.org/search.html

ASPERGER'S SYNDROME

ASPEN- ASPERGER SYNDROME EDUCATION NETWORK, INC.
Education about issues, support, and advocacy.
http://www.aspennj.org

ASPEN OF AMERICA
Provides support and information to parents of children with Asperger's and related disorders.
http://www.asperger.org

RESPITE

THE ARC'S Q&A ON RESPITE CARE
Information on respite.
http://www.thearc.org/faqs/respite.html

THE JP DAS DEVELOPMENTAL DISABILITIES CENTRE
Containing valuable information, resources in five major areas: inclusive education, violence & disability, developmental disabilities, human ethics, and links by categories; for parents of children with developmental disabilities.
http://www.quasar.ualberta.ca/ddc/INDEX.html

ZERO TO THREE: NATIONAL CENTER FOR INFANTS, TODDLERS, & FAMILIES
Goal is to strengthen and support families, practitioners, and communities to promote the healthy development of babies and toddlers; links and resources.
http://www.zerotothree.org

ADD/ADHD

A.D.D.
Treatment and Research Center.
http://www.cpgs.com/add

A.D.D. CLINIC
Diagnosis and treatment of Attention Deficit Disorder.
http://www.addclinic.com

A.D.D. (C.H.A.D.D.)
Diagnosis and treatment of Attention Deficit Disorder.
http://www.addclinic.com

ADD (C.H.A.D.D)
Works to improve the lives of those with ADD/ADHD through education, support, and advocacy.
http://www.chadd.org

ADD & OPPOSITIONAL DEFIANT DISORDER IN CHILDREN &ADULTS
Article on this issue, and links
http://users.choice.net/~digital/index.htm

ADD/ADHD
Important information regarding the side effects of common medications.
http://www.sinbad.net/business/adds

ADD/ADHD SUPPORT GROUP
Online support group also provides news, information, research and links.
http://www.adders.org

LAWS FOR DISABILITIES

AMERICANS WITH DISABILITIES ACT (ADA)
Library directory of topics on the American with Disabilities Act.
http://handicap.bfn.org/public/ada.html

LAWS AFFECTING CHILDREN WITH SPECIAL NEEDS
Listing of materials and directories around issues of law available for order.
http://www.lrp.com/Education/books.htm

NATIONAL CENTER FOR DISSEMINATION OF DISABILITY RESEARCH (NCDDR)
Provides information on research in the area of children with disabilities and collaboration between federal agencies.
http://www.ncddr.org/index.html

OFFICE OF CIVIL RIGHTS-DEPART OF EDUCATION
Office of Civil Rights that provides information on the law, recent publications, and links.
http://www.ed.gov/offices/OCR

THE HANEN EARLY LANGUAGE PROGRAM
Provides information about the program concerning lanuage delay and updates of research and materials for purchase.
http://www.hanen.org

WRIGHTS LAW WEB PAGE
Has information about special education laws.
http://www.wrightslaw.com/

INJURY LAWYER NETWORK
Free information on lawsuits such as: mercury, Thimerosal, MMR vaccines.
http://www.injury-lawyer-network.com/autism.htm

NATIONAL VACCINE FOUNDATION
If you feel that your child has had an adverse reaction from a vaccine, or if you think a vaccine caused your child's autism, contact them and you may be eligible for money from this injury. This is a Federal program and you must seek out their compensation before starting a lawsuit.
http://www.909shot.com/

HITT, PATTERSON & SELL
Jeff Sell has 2 autistic sons and is true fighter for our children. He has a lot of knowledge about autism, vaccine injuries, and of course a lot more.
http://www.HittPattersonSell.com

VACCINE INJURY ALLIANCE
http:// www.vaccineinjury.org

Williams Bailey Law Firm, L.L.P
.http://www.williamsbailey.com/

Conway, Homer & Chin-Caplan, P.C.
http://www.ccandh.com/

Shoemaker & Horn
http://www.attorneyaccess.net/

Investigating Vaccination
http://www.crosswinds.net/%7Evaxchoice/

Thimerosal Information
http://www.access1.net/via/VACCINE/thimerosal.htm

P.R.O.V.E.
http://www.vaccineinfo.net/

NVICP
http://bhpr.hrsa.gov/vicp/

Vaccine Information & Awareness (VIA)
http://www.access1.net/via/

P.A.V.E.
http://www.vaccines.bizland.com/

Autism and Vaccines
http://www.altcorp.com/autismvaccines.htm

VIRC
http://www.unc.edu/%7Eaphillip/www/vaccine/resrcntr.htm

TRANSITION

ALLEN, SHEA, AND ASSOCIATES
Professional services in planning, research, and such within the human services for developmental disabilities.
http://www.allenshea.com

FACTS/LRE PROJECT
Guide for families planning your child's transition.
http://facts.crc.uiuc.edu/facts4/facts4.html

PREPARING CHILDREN WITH DISABILITIES FOR SCHOOL
Article with information on how government supports readiness, special problems faced during transition.
http://kidsource.com/kidsource/content3/preparing.disble.p.k12.2.html

ADVOCACY

ARC OF THE US
National organization of and for people with mental retardation and related disabilities and their families.
http://www.thearc.org

CHILDREN NOW
Group working to advocate for children and famililes.
http://www.childrennow.org

CHILDREN'S DEFENSE FUND
Provides valuable information about the chilren's population in the US and articles on several issues, also a Parent Resource Network.
http://www.childrensdefense.org

FAMILY USA FOUNDATION: THE VOICE FOR HEALTH CARE CONSUMERS
Provides information about children's health.
http://www.familiesusa.org

PARENT'S RIGHTS AND RESPONSIBILITIES
Parent Borchure on rights.
http://www.accesseric.org/resources/parent/disab1.html

PARENTS PLACE
Site for families and parents.

REFERENCE CIRCULAR PARENT'S GUIDE TO THE DEVELOPMENT OF PRESCHOOL CHILDREN WITH DISABILITIES: RESOURCES & SERVICES
Wide range of information to assist in promoting the development of a child with disablitites from infancy to age 5.
http://www.loc.gov/nls/reference/parents.html

MEDICAL SEARCH ENGINES

Avicenna: http://www.avicenna.com

Health Gate Medline Access: http://healthgate.com/HealthGate/MEDLINE/serch.shtml

Health World Medline Access:
http://www.healthy.net/library/search/medline.htm

MedScape: http://www.medscape.com

Webcrawler Autism Search
Even more Autism links
http://www.webcrawler.com/cgi-bin/WebQuery?searchText=autism

Yahoo Autism Search
Tons of links!
http://search.yahoo.com/bin/search?p=autism

THE BRAIN

BRAIN INJURY CENTER
An information get away regarding acquired brain injury.
http://www.braincenter.org

BRAIN INJURY GUIDE
Personal page providing information, story, and links.
http://members.aol.com/bigkate4/big.htm

BRAIN INJURY INFORMATION
Statistics, coma information, email support groups, resources and links.
http://tbinet.org

BRAIN-NET
International Consultancy in child development; U.K. site about brain injury available in English, Dutch, and Italian.
http://www.btinternet.com/~brain.net/

COMA WAITING PLACE
Directed to those who are waiting while someone is in a coma, information about brain injury, resources, and reports.
http://www.waiting.com

THE PERSPECTIVE NETWORK
Focuses to communicate public awareness and knowledge of acquired brain injury.
http://www.tbi.org

THE TRAUMATIC BRAIN INJURY (TBI) PROJECT
Serves as a resource for families of students with ABI/TBI.
http://www.sped.ukans.edu /spedprojects/tbi/TBIhomepage.html/

TRAUMATIC BRAIN INJURY MODEL SYSTEM
Links to publications, a database, news, the center for outcome measurement, and other areas.
http://www.tbims.org

COMMUNICATION DISORDERS

KIDSSOURCE ONLINE: SPOKEN LANGUAGE PROBLEMS
Basic explanation of oral language disorders.
http://www.kidssource.com/LDA/spoken_language.htm

NATIONAL APHASIA ASSOCIATON
Promotes public education, research, rehabilitation and support services to assist families.
http://www.aphasia.org

LEARNING DISABILITIES

ESSENTIAL LEARNING INSTITUTE
Information on LD with audio introduction option.
http://www.rsts.net/eli/index.html

LD ONLINE
Interactive guide to learning disabilities for parents, teachers, and children.
http://www.ldonline.org/index.html

LEARNING DISABILITIES ASSOCIATION OF AMERICA
Dedicated to enhancing quality of life, alleviating restricting effects. And supporting endeavors to determine causes of learning disabilities.
http://www.ldanatl.org

LEARNING DISABILITIES CLINIC
Private educational treatment facility to children, adolescents, and adults, dedicated to helping individuals achieve their full learning potential.
http://wwwldclinic.org

NATIONAL CENTER FOR DISABILITIEES
Provides information, resources, referral services, public awareness, advocacy and more.
http://www.ncld.org

SPECIAL KIDS
Reaching and teaching kids with disabilities through videos, CD-Roms, and picture books.
http://specialkids1.com

THE LEARNING CENTER
Information about testing and enrichment; Educational an counseling services to children and adults.
http://learningcenteronline1.com

EPILEPSY

EPILEPSIA
Official journal of The International League Against Epilepsy.
http://www.epilepsia.com

EPILEPSY FOUNDATION OF AMERICA
Provides information on advocacy, services, publications, research, etc.
http://www.efa.org

EPILEPSY INTERNATIONAL
Provides a large, comprehensive and well-designed educational and informational resource for epilepsy.
In English and Spanish.
http://www.epiworld.com

THE EPICENTRE
Provides basic information & answers about epilepsy.
http://137.172.248.46/epilepsy.htm

TOURETTE SYNDROME

THE FACTS ABOUT TOURETTE SYNDROME
A collection of general information, FAQ's causes, related problems, and links.
http://members.tripod.com/~tourette13

FUN SITES FOR KIDS-CRAFTS & GAMES

ARTS & CRAFTS

KinderArt
http://www.kinderart.com/lessons.htm

Michael's
http://www.michaels.com/kids/kid-main.html

The Mailbox
http://www.themailbox.com/

Hands on Crafts for Kids
http://www.crafts4kids.com/

Makingfriends.com
http://www.makingfriends.com/

The Mining Company Crafts for Kids
http://craftsforkids.miningco.com/mbody.htm

Arts and Craft Projects for Preschoolers
http://www.inmotion-pcs.com/amass/theboss/artsn.htm

Funroom.com Crafts for Kids
http://tac.shopnetmall.com/www.funroom.com/Craftindex.html

Kinderplanet Crafts
http://www.kinderplanet.com/makestuf.htm

Makestuff.com
http://www.makestuff.com/kidstuff.html

Camp Crafts
http://www.guidezone.skl.com/campc.htm

Crayola Craft Central
http://www.crayola.com/craft_index.html

GuideZone Crafts
http://www.guidezone.skl.com/i_kd_crafts.htm

Hobby Lobby Project Sheets
http://www.hobbylobby.com/site2/projects/project.htm

Jim Speirs' Scouting Page
http://www.interlog.com/~speirs/index.htm

Squigly's Arts & Crafts for Kids
http://www.squiglysplayhouse.com/ArtsAndCrafts/index.html

DLTK's Printable Crafts for Kids
http://www.members.home.net/leannee/

Bozo's Crafts
http://www.wgntv.com/bozo/crafts.html

Toddler Crafts
http://www.stretcher.com/stories/981214b.htm

Art Links for Kids
http://www.webfoundations.com/JustForKids/art.html

KinderCrafts - Enchanted Learning Software
http://www.enchantedlearning.com/crafts/

Pleasant Surprizes Crafts
http://hometown.aol.com/Surprizes/SurprizesCrafts.html

Danielle's Place
http://www.daniellesplace.com/

Eileen's Camp Crafts and Other Fun Things
http://members.home.net/saw2/crafts/index.html

The Mining Company Special Days Crafts
http://craftsforkids.miningco.com/library/blspecdays.htm?pid=2779&cob=home

ChildFun.com
http://www.childfun.com/crafts/

Fun For Kids by Jen
http://www.geocities.com/Athens/1850/

The Open Directory Preschool Arts and Crafts
http://207.200.73.135/Home/Kids/Arts_and_Crafts/Pre-school_arts_and_crafts/

Family.Com Craft Finder
http://family.go.com/Categories/crafts/

Home Arts: Rainy Day Projects
http://homearts.com/depts/family/00rain11.htm

Kinder Planet
http://www.kinderplanet.com/index.htm

Kids Domain Crafts
http://www.kidsdomain.com/craft/index.html

GusTown: Craft Corner
http://gustown.com/Museum/Crafts/SpringCrafts.html

Kids CRAFT - The Ultimate Kids Resource
http://www.users.bigpond.com/rob_annie/kidscraft/

Hafta Craft Arts and Crafts Links
http://www.haftacraft.com/hafta_surf.htm

Donna's Day Home Page
http://www.ktca.org/donnasday/index.html

MUSIC

Fifty Songs every child should know
http://family.go.com/Categories/Education/Features/
family_1998_10/dony/dony108songs/dony108songs2.html

Music and Movement
http://www0.delphi.com/care/music/music.html

Nursery Rhymes
http://www-personal.umich.edu/~pfa/dreamhouse/nursery/rhymesABC.html

Musical Museum
http://www.kididdles.com/mouseum/index.html

Mother Goose
http://www-personal.umich.edu/~pfa/dreamhouse/nursery/rhymes.html

GAMES

Games Kids Play
http://www.corpcomm.net/~gnieboer/gamehome.htm

Games for Ages 7 and 8
http://www.skl.com/~guidezon/jm_games_brownies.htm

Games for Ages 5 and 6
http://www.skl.com/~guidezon/jm_games_sparks.htm

Noncompetitive Games
http://www.circletime.com/ct1998/v01-04/evrywin.htm

Group Games
http://www.thepartyworks.com/group.htm

Circle Time Magazine Activities
http://www.circletime.com/subpgs/fealinks.htm#Games

Creative Creations Web Site Activities
http://www.datasync.com/waidsoft/funkids.html

RECIPES

The Idea Box Craft Recipes
http://www.theideabox.com/ideas.nsf/craft+recipe

Dido's Play Dough and Craft Recipes
http://www.mnsinc.com/osfan/playdo.htm

The Mining Company's Craft Recipes
http://craftsforkids.miningco.com/msubcrecipe.htm?
pid=2779&cob=home&TMog=
72892358363310&Mint=72892358363310&FFV=1

Wendy's Craft Recipes
http://www.netfix.com/poptart/craftres.htm

Family.com Clay Time
http://family.go.com/Categories/Activities/Features/family_1996_
05/famf/famf199605_ff56clay/famf199605_ff56clay.html

Salt Dough from A to Z
http://www.sentex.net/~kramer/crafts/from_a-z.html

Craft Recipes by Ellen Davis
http://homepages.uc.edu/~edavis/kids-list/crafts/doughs.html

Scouting Craft Recipes
http://www.melborponsti.com/speirs/crafts/index.htm

Kids Craft Recipe Factory
http://members.aol.com/sail2957

The Kinderart Kitchen
http://www.kinderart.com/krecipe.htm

Tactile Media Recipes
http://www.geocities.com/Athens/6478/tactile.htm

Bubble Girl's Recipe Page
http://www.acgilbert.org/recipes.html

Secret Solutions - Bubble-Mania!
http://www.bubblemania.com/faq/solution.html

KIDS COOKING

The Idea Box Recipes
http://www.theideabox.com/ideas.nsf/recipe

Galaxy cooking with Kids
http://www.weeklyreader.com/features/cookwka.html

Jell-O Kids' Cooking
http://kraftfoods.com/html/features/jello.html

Fun with Fruit and Vegetables
http://www.dole5aday.com/COOK/BREAK.html

SOAR's Kid's Recipes
http://soar.berkeley.edu/recipes/kids

Recipes for Preschoolers
http://www.inmotion-pcs.com/amass/theboss/recipe.htm

Easy Recipes for Kids
http://www.cp.duluth.mn.us/%7Esarah/rdr020.html

Whirlpool Really Cooking Kids Recipes
http://www.whirlpoolcorp.com/whr/cookin/kids/more.html

Father's World: Dads and Kids Cooking Together
http://www.fathersworld.com/recipes/dadscookin/index.html

Kowalskis Kid's Section
http://kowalskis.com/kids.htm

Kids's Kings of the Kitchen
http://www.scoreone.com/kids_kitchen/index.htm

Family Food Zone: Kids Cooking Tips
http://www.familyfoodzone.com/cooking/tip.html

Kid's Cooking Club
http://www.kidscook.com/

Cooking With Kids for Dummies
http://www.cookingwithkids.com/

Kitchen Kids Links
http://www.techedlab.com/techkids/cooking.html

Roll the Can Ice Cream
http://members.tripod.com/~Akasha_3/edibles.html

GENERAL SITES

DIFFERENT ROADS TO LEARNING
Writing and discrete trial information.
http://www.difflearn.com/

MELINDA SMITH'S WEB PAGE
This website was created to help teach play and social skills to children with autistic spectrum disorder. Has great links for play & pretend.
http://melindasmith.home.mindspring.com/

BEYOND AUTISM
A fantastic site with helpful information, fun stuff, and links.
http://trainland.tripod.com/

ABOUT.COM
Farm Animal Crafts for kids to do-with parents help.
http://craftsforkids.about.com/parenting/craftsforkids/cs/farmanimalcrafts/index.htm

Circle Time
Ideas and links for kids.
http://www.circletime.com/subpgs/fealinks.htm#Games

COLORING WEB SITES

http://www.execpc.com/~byb/paint.html
http://www.cyberkids.com/cw/index.html
http://www.greenvalley.com/coloring/colorme1.html http://disney.go.com/DisneyVideos/Oliver_and_Company/treasure/treasure.html http://www.janbrett.com/activities_pages.htm#Artwork http://www.tpwd.state.tx.us/adv/kidspage/colorpic.htm
http://www.coloringpage.org/
http://www.thecrayonhouse.com/
http://www.haringkids.com/activit/color/color.htm
http://thecolorsite.com/ http://www.kidzdraw.com/ http://place.scholastic.com/magicschoolbus/index.htm http://www2.ctw.org/sesamestreet/coloringpages/0,5903,,00.html http://www.surfnetkids.com/games/coloring-cb.htm
http://www.coloringbook.com/

DIAGNOSIS

LINKS
See my links page to learn as much as possible about autism.

DAN Protocol
Read about treatments and what is new in autism.

Special Education at About.com!
If you need to know anything about Special Ed, Pat Linkhorn, the
Spec Ed Guide at About.com, has it here.

Autism and Asperger's Syndrome
Classroom strategies for the Autistic and Asperger's student in the
mainstream school environment.

Autism and Asperger's: The State of Play
A good review of various issues involved with education for the
Autistic and Asperger's student.

Developing the Individual Education Plan
This IEP informational packet is valuable for all parents dealing with
special education issues.

Division TEACCH
The mission of TEACCH is to enable Autistics to function as
meaningfully as possible within the community.

Educational Rights
The Individuals with Disabilities Education Act is a federal law which
guarantees a free and appropriate public education for every child
with a disability.

Project P.A.C.E.
A Portland, Oregon based organization that provides training
seminars for parents, professionals and school districts around the
world.

The Individuals with Disabilities Education Act
A summary of the Individuals with Disabilities Education Act and it's
amendments.

Autism/PDD & SSI Disability
A diagnosis of Autism or PDD used to mean automatic qualification
for SSI but now things aren't that simple. Read about what you
need to know to help your child's case be allowed.

New Early Screening Guidelines Published
The American Academy of Pediatrics recently endorsed new
guidelines for early screening of children at risk for Autism. Their
endorsement along with those of other organizations is a big step
toward developing an early intervention plan that will be effective
in working with this disease.

A Case for Neurobiological Workup in Autism
The author suggests a more rigorous diagnostic procedure would
better identify the nature of Autism.

Autism, Puberty and the Possibility of Seizures
In about 25% of Autistic children, puberty brings on seizures. This
paper discusses the diagnostic issues and implications.

Autism-Related Disorders in the DSM-IV
Provides the basic diagnostic criteria needed to make a valid
diagnosis of Autism and other PDD conditions.

Autistic Disorder Symptoms
This site provides a listing of many of the commonly seen
behavioral diagnostic criteria.

DSM-IV Diagnostic Criteria for Asperger's Disorder
This site provides the diagnostic criteria needed to diagnose
Asperger's Syndrome. It also provides Gillberg's Criteria for
diagnosis.

Getting a Diagnosis of Asperger's or PDD in Canada
This page lists out the requirements for a medical diagnosis of
either Asperger's or PDD in Canada.

New Definition of Autism
Dr. Goldberg offers a new look at Autism.

Screening Tools List for Doctors
Early Intervention is the key with Autism and PDD. This is a
screening list for physicians and parents.

ABA Links

ABA/VB e-groups
Connect with other therapist across the world.
You must join to read and post here. I really enjoy the ideas therapists post.
http://groups.yahoo.com/group/DTT-NET and
http://groups.yahoo.com/group/autismaba/ or
http://groups.yahoo.com/group/VerbalBehavior

The ME list database:
http://www2.addr.com/~me-list/databases/

Consulting Behavior Analyst (AVB specialization)
Has ideas and information on how to teach ABA or VB.
www.ChristinaBurkABA.com

Association for Behavior Analysis
http://www.wmich.edu/aba/

Dr. Vincent Carbone's Verbal Behavior Website
http://www.drcarbone.net

Family's Web Page in South Carolina
http://hometown.aol.com/sheeanaa/page1.html

Yale Child Study Center Developmental Disabilities Clinic & Research Home Page
http://info.med.yale.edu/chldstdy/autism/

RSaffran's Web Site -very good page for anything dealing with Autism
http://members.tripod.com/RSaffran/aba.html#districts

A Maine Family's Early Intervention Program for Autism - PDD
http://www.gwi.net/goplay/

John Wobus' Homepage
http://www.autism-resources.com/

Wisconsin Early Autism Project
Replicated Lovaas' Treatment Findings-look at how great the in-home therapy kids did!!
http://www.wiautism.com/

Behavior Analysis & Therapy, Inc.
A java-rich site with a lot of links and information
http://www.behavior-analysis.org/Default-F.htm

Preparation Classes & Supervision for the
Florida/National Behavior Analysis Certification Examination
by Behavior Analysis & Therapy, Inc.
http://www.behavior-analysis.org/Certification/CBA%20Training.htm

New School for the Learning Sciences
A nonprofit, Internet-based institution offering advanced training in the learning sciences from scientists and scholars throughout the world, for parents, students and learners throughout the world, featuring courses such as: ***Behavior Analyst Certification Exam Preparation,
***Applied Behavior Analysis and the Treatment of Children.
www.nsls.com

Autism and ABA Resources
Comprehensive site for PA clinic
http://www.tclc.com

Empowerment Zone
Family's page offers information, ideas, and software.
http://www.empowermentzone.com/#education

Evie's Web Page from the UK
http://www.rees-shah.co.uk/Eviespag.htm

Recovery Zone
http://pages.prodigy.net/damianporcari/recovery.htm

School Districts that pay for ABA Programs
http://pages.prodigy.net/damianporcari/school.htm#School_Issues

Legal cases involving suits to pay for ABA Programs
http://pages.prodigy.net/damianporcari/legal.html#Legal_Issues

Feat-information on funding
http://www.feat.org/FEATorg/FeatLinks.htm

Gary S. Mayerson Sponsored Site-law information to help parents get funding.
http://www.mayerslaw.com

Wrights Law on Special Education
http://www.wrightslaw.com

Me List-Sign upand view the database on ABA drills, resources, and more
http://www.addr.com/~me-list/databases

Ten Common Roadblocks When Beginning a Home Program
http://www.nationalspeech.com/news.htm#Quest3/Article

ABA Internet Course Department of Behavior Analysis, University of North Texas
BEHAVIOR PRINCIPLES I An Intro Course Available on the Internet
Introduction to applied behavior analysis. For enrollment information please contact Dr. June Powell by email: jpowell@scs.cmm.unt.edu or web site: http://webct.courses.unt.edu/public/BEHV2300SG/

TxABA website for workshop and ABA Trainers Group information:
www.scs.unt.edu/depts/behv/txaba

Florida Association for Behavior Analysis- Home of behavior analysts in the Sunshine State.
http://www.psy.fsu.edu/~FABA/index.html

Tennessee ABA- Tennessee's ABA affiliate.
http://www.taba.org

Northwestern ABA- Behavior Analysis in Washington State and the region.
http://www.cwu.edu/~warren/nwaba/

North Carolina ABA- Conference announcements for NC area behavior analysts.
http://www.uncc.edu/~fhspoone/NCABA/

Department of Behavior Analysis, University of North Texas- TxABA HQ,
B.S. and M.S. degrees in behavior analysis, including new autism special interest area.
http://www.scs.unt.edu/depts/behv

Cambridge Center for Behavioral Studies-
This Center disseminates information about
behavior analysis and sponsors conferences and workshops.
http://www.behavior.org

Behavior Analysis, Inc.
Commercial site in Florida with many links to behavior analysis
resources and other information of interest.
http://www.behavior-analysis.org

B.F. Skinner Foundation-
This site has a listing of Skinner's books available for sale, as well as
a complete bibliography of his writings.
http://www.lafayette.edu/allanr/skinner.html

B.F. Skinner: The Texas Years- A Texas Tall Tale.
http://www.scs.unt.edu/depts/behv/txaba/bfstex.htm

HELP WITH ACTIVITIES AND LESSONS

DEAF WORLD SIGN LANGUAGE INSTRUCTION
Find out how to say most anything in ASL - the video clips actually demonstrate the sign.
http://dww.deafworldweb.org/asl/

DIFFERENT ROADS TO LEARNING
Writing and discrete trial information.
http://www.difflearn.com/

BEYOND AUTISM
A fantastic site with helpful information, fun stuff, and links.
http://trainland.tripod.com/

ABOUT.COM
Farm Animal Crafts for kids to do-with parents help.
http://craftsforkids.about.com/parenting/craftsforkids/cs/farmanimalcrafts/index.htm

Circle Time
Ideas and links for kids.
http://www.circletime.com/subpgs/fealinks.htm#Games

PROGRAMS More Than Words - The Hanen Program for Parents of
Children with Autism Spectrum Disorders
http://hanen.velocet.ca/programs_autism.shtml

Interview with parent of a toddler with autism
http://www.csaac.org/intervw.htm

Parent testimonials (long)
http://people.sca.uqam.ca/~sqa/lovaas_damian_e.html

A chance to be heard
http://www.postgazette.com/newsroom/extras/19980106haut.asp

There is Hope
http://www.geocities.com/Heartland/Plains/1648/hope.htm

Intensive therapy...Louise
http://www.post-intelligencer.com/autism/tret08.shtml

Donna's Story
http://www.treehouse.org.uk/story.htm

Reagan
http://members.nbci.com/Neil_S_Clark/ABA.html

Fairfax County, Virginia AutismProgram
http://washingtonpost.com/wp-dyn/articles/A21939-2000Jun29.html

Counting the Cost of Autism (Hamilton, Ontario)
http://www.hamiltonspectator.com/reports/265353.html

Intensive therapy... (Seattle, WA)
http://seattlep-i.nwsource.com/autism/tret08.shtml

Letters of Support for Bradley Murphy
http://www.insidetheweb.com/mbs.cgi/mb1137461

Tommy (Anchorage, Alaska)
http://www.cridder.com/morgue/press/news/autsidebar.html

Maxie (Naples, Florida)
http://www.naplesnews.com/special/ztest/a24337b.htm

Early help... (Vancouver, BC)
http://www.nsnews.com/issue/w102797/autism.html

Early Intervention... (Torrance, California)
http://www2.sac-co.k12.ca.us/speced/resource/rise/early.htm

The Virginian-Pilot and The Ledger-Star, Norfolk, VA
http://www.psycport.com/news/2000/10/10/NFLK/0000-7004-KEYWORD.Missing.html

Treatment triumph in treating autism (Australia)
http://www.communique.qut.edu.au/features/Autism.htm

ABC News Nightline
http://abcnews.go.com/sections/nightline/DailyNews/nl_010309_autism_jake1.html

Hannah's Story (documentary film)
http://www.hannahstory.com/

Recovered kids (a mail group)
http://groups.yahoo.com/group/RecoveredKids

New York State Department of Health Clinical Practice Guideline
http://www.health.state.ny.us/nysdoh/eip/menu.htm

The Childhood Learning Center includes ABA curriculum,
links to parents groups, and a list of service providers.
http://www.tclc.com/

Behaviour analysis at Athabasca University
http://server.bmod.athabascau.ca/html/aupr/ba.shtml

Great Ideas for Teaching
http://www.gift-inc.com/ .

Lingui-Systems
http://www.linguisystems.com/

Mayer-Johnson Inc.
http://www.mayerjohnson.com/

Pyramid Educational Consultants
http://www.pecs.com/index.html

Silver Lining Multimedia
http://www.silverliningmm.com

Discrete Trial Trainer
http://www.dttrainer.com/

FEAT has a collection of teaching programs on-line
http://www.feat.org/

Flash!
http://shops.looksmart.com/aba

Gaining Face teachs recognition of emotions and facial expressions
http://www.ccoder.com/GainingFace/index.html

Labeling Tutor
http://members.aol.com/peuapeu/

Progressive Academic Learning System
http://www.pals1.com/

ABBY for Windows
http://www.compusmart.ab.ca/jhealth/abby/

Log It!
http://www.iowapc.com/logit.html

Spedfile
http://www.spedfile.com/

Beyond Autism
A fantastic site with helpful information, fun stuff, and links.
http://trainland.tripod.com/

Laureate Learning Systems
Has great software for learning language and other skills for children with disabilities.
http://www.laureatelearning.com/

Different Roads to Learning
Different Roads to Learning is an on-line catalog specializing in learning materials and playthings for children with developmental delays and challenges. This catalog puts together educational toys and materials that stimulate the skills leading to speech and language for challenged children ages 2 to 10.
http://www.difflearn.com/

ABOUT.COM
Farm Animal Crafts for kids to do-with parents help. Check out the rest of about.com for other autism articles.
http://craftsforkids.about.com/parenting/craftsforkids/cs/farmanimalcrafts/index.htm

Circle Time
Ideas and links for kids.
http://www.circletime.com/subpgs/fealinks.htm#Games

Photo CD Site-must purchase CD
Great pictures for all sorts of Autism teaching tools.
http://shops.looksmart.com/cgi-bin/ePages.storefront/1013082770/Product/View/9136&2D22431

The Idea Box
Good ideas for play.
http://www.theideabox.com/

Crayola Web Site
Interesting activities from Crayola.
http://familyplay.com/activities/

Creative Creations
Has some fun kids activities.
http://www.datasync.com/waidsoft/funkids.html

Family.com Web Site
Part of Disney on-line.
http://family.go.com/raisingkids/learn/

THE DIET LINKS

ANDI-Autism Network for Dietary Intervention
Homepage for this well-known organization.
http://www.autismNDI.com/

Lisa S. Lewis, Ph.D.'s Web Site
http://members.aol.com/lisas156/index.htm

New Diets
New Diets features gluten free/casein free (GF/CF) recipes
http://www.newdiets.com

The Great Plains Laboratory
http://www.autism.com/shaw-yeast/contents.html

A&A Amazing Foods
http://www.amazingfoods.com/

GFCF Kids
Great GFCF food lists & information.
http://www.gfcfdiet.com/index.htm

Miss Roben's Allergy Foods
http://www.missroben.com/

The Gluten Free Pantry
http://www.glutenfree.com/

Gluten Solutions
http://www.glutensolutions.com

Kinnikinick Foods
http://www.kinnikinnick.com

Dietary Specialties
http://www.dietspec.com

Ener-G Foods
http://www2.digimktg.com/enrg/enHome1.tmpl?Src=

Gluten Free Mall
http://www.glutenfreemall.com

Dietary Specialties Shoppe
http://www.dietaryshoppe.com

Glutino
http://www.glutino.com

Authentic Foods
http://www.authenticfoods.com

Karyn Seroussi's article from Parent's Magazine
http://members.aol.com/autismndi/PAGES/PMarticl.htm

Karyn's Frequently Asked Questions About Dietary Intervention
http://members.aol.com/autismndi/PAGES/faq.htm

PArent Support System
http://members.aol.com/autismndi/PAGES/PASS.htm

AUTISM-FBI List (Fighting Back with dietary Intervention)
http://www.egroups.com/group/AUTISM-FBI

Autism & Diet: Eight Years of Experience
http://www.advimoss.no/gfcf_results.htm

AiA Home Page
http://www.demon.co.uk/charities/AIA/aia.htm

The Autism Research Group
http://osiris.sunderland.ac.uk/autism/

International Autism Treatment Center
http://www.gnd.org/autism/autism.htm

Vance's Foods (makes DariFree™ potato-based milk substitute)
http://www.vancesfoods.com

SUPPLEMENTS:

Hopewell Pharmacy (DanPlex)
http://www.hopewellrx.com

Kirkman Labs (SuperNuThera, TMG, EnZymAid, etc.)
http://www.kirkmanlabs.com

Klaire Labs (SerenAid, etc.)
http://www.klaire.com

SEARCH FOR DOCTORS THAT MAY HAVE DIETARY KNOWLEDGE:

Alternative Medicine Network
http://www.sonic.net/~nexus/listdocs.html

American Academy of Environmental Medicine
http://www.healthy.net/asp/Associations/assocsearch.asp?table
=American+Academy+of+Environmental+Medicine

American College for Advancement in Medicine
http://www.acam.org/asp/AssocSearch.asp

EarthMed
http://www.earthmed.com/find_practitioners.asp

SENSORY INTEGRATION LINKS

Belle Curve Records, SI products and expertise available.
http://www.bellecurve.com/

Carol Kranowitz's site
http://www.out-of-sync-child.com

Marie's Sensory Integration Page, one mother's compendium on SI
http://www.mindspring.com/~mariep/si/sensory.integration.html

Pocketful of Therapy - Toys and educational products
http://pfot.com

Sensory Integration According to Cindy Hatch-Rasmussen, OTR,
the Center for the Study of Autism's SI link
http://www.autism.org/si.html

Sensory Integration Resource Center
http://uchsc.edu/sinet

Theraproducts
http://www.theraproducts.com

Special Clothes for special children
http://www.weightedvest.com

S.I. Net - Sensory Integration Resource Center
http://www.sinetwork.org

Nashville Sensory Integrative Dysfunction Foundation
http://www.nashvillesid.com

Sensory Comfort
http://www.sensorycomfort.com

Sensory Integration International
http://home.earthlink.net/~sensoryint/

American Occupational Therapy Association
http://www.aota.org

Developmental Concepts
http://www.atready.com

Fractiles
http://www.fractiles.com

Henry Occupational Therapy Services Inc
http://www.gtcs.com/sponsors/henry/index2.html

KidPower
http://www.kid-power.com/sid.html

Through the Looking Glass
http://www.lookingglass.org

The Unicorn Children's Foundation
http://www.saveachild.com

Ideal Lives
http://www.ideallives.com

Exceptional Parent
http://www.eparent.com

Internet Resources for Special Children
http://www.irsc.org

Prelude Music Therapy
http://preludetherapy.home.att.net

West Music
http://westmusic.com

Sensory Resources
http://www.sensoryresources.com/index.asp

TREATMENTS

The Autism Society has a chart that compares some of these treatments.

EDUCATION/MANAGEMENT STRATEGIES

See the speech section and play therapies below for additional choices.

DIET INTERVENTION

ALTERNATIVE MEDICINE INTERVENTIONS

Chelation
Cleansing the body of toxins-especially mercury.

Epsom Salt Baths (or just foot soaking or spraying)
This is suppose to supply sulphur and magnesium for calming, the Zyme Prime diagestive enzymes, and molybdenum. My son seems to enjoy them.

BODY & MIND THERAPIES

Auditory Treatments

Speech and Language Therapy

Vince Carbone
Applied Verbal Behavior is good to be used with ABA. You can find his schedule at his site.
He is also with Behavior Analysts, Inc

Play Therapies

COMPUTER RELATED

TEXAS LINKS

STATE CENTERS & CHAPTERS
STATE OFFICES
GOVERNMENT PROGRAMS/ OFFICES
ATTORNEYS

Also look for the closest Autism Treatment Center such as the ones in
San Antonio & Dallas:

STATE CENTERS & CHAPTERS

Texas Center for Autism Research and Treatment (TCART)
DIRECTOR: Vernon L. James, M.D.
16111 Nachogdoches
San Antonio,Texas 78247
Phone: 210-590-3381
Fax: 210-590-3143
http://www.tcart.org
email: Dessie-Vernon.James@worldnet.att.net

Collin County Chapter Plano
http://autism-ascc.org/

Denton County Autism Society
http://www.geocities.com/Heartland/Plains/3565/

East Texas Chapter Gladewater
http://www.geocities.com/asatx

Families for Early Autism Treatment (Houston)
http://www.neosoft.com/FEAT_Houston

Families for Early Autism North Texas
http://www.flash.net/~sjapollo/featnt.htm

Fort Worth Mid-Cities Autism Society
http://www.asgtc.org

San Antonio Autism Society
http://www.sanantonioautism.org

Texas Assistive Technology Partnership
http://www.edb.utexas.edu/coe/depts/sped/tatp/tatp.html

Texas Gulf Coast Chapter
http://www.kidquest.com/asa

Texas State Resources at NICHCY
http://www.nichcy.org/stateshe/tx.htm

Texas-Autism-Advocacy e-Group List's Web Site
https://www.angelfire.com/tx5/autismlist

STATE OFFICES

Texas Department of Insurance Complaints Resolution,
(MC 111-1A) 333 Guadalupe Street
Austin, TX 78701 (512) 463-6515; (800) 252-3439
http://www.tdi.state.tx.us

Texas Agnes A. Johnson
Grassroots Consortium
6202 Belmark Post Office Box 61628
Huston, TX 77087 (713) 643-9576;
Fax: (713) 643-6291
speckids@pdq.net

David Meraz, Director
Parents Supporting Parents Network
601 North Texas Boulevard, Suite C
Weslaco, TX 78596
(956) 447-8408; (956) 973-9503
weslaco@gte.net
http://www.thearcoftexas.org

Project PODER
1017 North Main Avenue,
Suite 207 San Antonio, TX 78212
(210) 222-2637; (800) 682-9747
http://www.tfepoder.org

HOPE Worldwide-Texas
Volunteers with autistic children-contact:
Penny Sahatrungsinee at 972-434-1940.

The University of Texas-Houston Health Science Center
Autism Research
http://www.uth.tmc.edu/uth_orgs/pub_affairs/uthouston/mar_96/aut.html

GOVERNMENT PROGRAMS/ OFFICES

State of Texas Web Site

A Texas web site where you can fill out a form and see if you qualify for any programs such as 
SSI, Medicaid, and more.
http://www.txstars.net/servlet/HSGServlet 

Texas Department of Human Services - TDHS
This is the general address for all of the TDHS offices.
P.O. Box 149030
Austin, Texas  78714-9030
512-438-3011

Texas Department of Mental Health & Mental Retardation
MHMR's link for the Houston area
Mental Health Care for Houston
They have a link for all the elected officials and legislative alerts. 
909 West 45th Street
P.O. Box 12668
Austin, TX 78711-2668
(512) 454-3761
1-800-252-8154

Texas Department of Health
1100 West 49th Street
Austin, Texas 78756-3199
Toll free: 1-888-963-7111
(512)458-7111
TDD (512)458-7708

Social Security Administration
1-800-772-1213
Local in San Antonio:	727 E Durango, SAT 78206 , 210-472-4400
Hearing & Appeals:  731-3301,M-F 7:00am-7:00pm

TDHS-Community Living Assistance and Support Services - CLASS
Program provides home and community based services to individuals with related conditions 
as a cost-effective alternative to ICCF-MR/RC institutional placement.
Long waiting list (around 7 years) so sign up now.
My ARC case worker helped me sign up.
877-438-5658
1-512-438-5658

 Home and Community-Based Services Program - HCS
contact local Mental Retardation Authority (in San Antonio, The Center for Health Care Services)
ARC of Texas
1-512-206-5755

TDMH- In-Home and Family Support Services
San Antonio:731-1335

TDH- Children's Health Insurance Program - CHIP 
800-647-6558

TDH- Community Care For the Aged and Disabled - CCAD

TDH- Comprehensive Care Program/ Home Health Services
800-252-9330

TDH- Medically Dependent Children's Program - MDCP
1-877-438-5658

TDHS- Community Based Alternatives - CBA
Medicaid Wavier Program for adults with medical needs.
377-3550
1-512-438-5658

Medical Programs
-Medicaid
Building 4
909 West 45th St.
Austin, TX 78711-2668
(512) 206-5700

Mental Retardation Local Authority Program-MRLA
Contact local mental retardation office for information.

TDHS- Deaf- Blind Multiple Disabilities Waiver
Medicaid Wavier Program for those with D-B and Multiple Disabled.  
1-512-438-2622	 1-512-424-4185		Toll free(877)438-5658

TDHS- Medicare Hotline		800-252-8263

Chronically Ill and Disabled Children's Program - CIDC
For families 200% above the poverty level down (insurance)
1-800-252-8023

Early Childhood Intervention - ECI 
Children 0-3 years old
1-800-250-2246

Texas Respite Resource Network
210-704-2794

TDPRS- Protective & Regulatory Services ( Children & Adults)
1-800-252-5400, 24 hour hotline
1-512-438-4778

Texas Rehabilitation Commission-TRC
1-800-628-5115

Texas Commission for the Blind-TCB
1-800-252-5204

Texas Workforce Commission-TWC
1-512-381-4200

ICF-MR  1-800-292-2065 

The ARC of Texas 1-800-252-9729 
 The Arc of the Capital Area (formerly the Arc of Austin) 
 The Arc of Dallas 
 The Arc of Fort Bend County 
 Arc of Greater Houston 
 The Arc of San Antonio 

PART  1-512-453-7145 

 Children's Association for Maximum Potential (CAMP) 
 P.O. Box 27086
San Antonio, Texas 78227
(210) 292-3566 (210) 292-3567 Fax: (210) 292-3576 (210) 292- 3577 

 Kidds' Kids 
 c/o 106.1 KISS-FM
P.O. Box 106
Dallas, Texas 75221

 NICHCY Texas Contact Sheet 
Find your government officials e-mail addresses and web sites to a lot of places.

 Partners Resource Network, Inc. - The PATH Project 
1090 Longfellow, Suite B * Beaumont, TX * 77706-4819 
409-898-4684 or 800-866-4726

 Texas Advocates Supporting Kids with Disabilities (T.A.S.K.) 
 P.O. Box 162685
Austin, Texas  78716 
Telephone: 512 336-0897  
  
Bexar County Tx Office For Handicap placards and license plates
Call for nearest location.
220-2251

San Antonio Housing Authority
818 S Flores, SAT 78204
Housing Assistance Program
220-3312

Web site of the Coalition of Texans with Disabilities (CTD).
CTD is the oldest cross-disability advocacy organization in Texas.
http://www.cotwd.org

Easter Seal in Texas
http://www.tx-nw.easter-seals.org/
National site: http://www.easter-seals.org/

Also, here's a blanket list of some Texas resources.
http://www.disabilityresources.org/TEXAS.html

Don't forget we have insure-a-kid/Texas partnership.  
Insure a child for $18/month.
http://www.insureakid.com/

ATTORNEYS

In Houston-Jeff Sell HITT, PATTERSON & SELL
He has a lot of knowledge about autism, vaccine injuries, and of course a lot more.
He also has twin autistic boys and is very kind passionate about our plight.
http://www.HittPattersonSell.com

______________________________________________________________________________________

MADORE WEB SITE LINKS:
About Autism Diagnosis Our Story Autism Links Recovery US Resources TX Resources Treatments ABA Program Diet Sensory Integration Conferences Autistic Adults Madore Home Print This Page
e-mail here

______________________________________________________________________________________

MADORE HOME

MOVIES

DIAGNOSIS