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Families Forever

Foetal diagnosis & Child loss support group

 

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  • What is Spina Bifida?

       

     

    Spina Bifida is a congenital defect of the spine and spinal cord.  Like anencephaly, it is a neural tube defect.  The amount of damage to the spinal cord and nervous system varies from person to person, depending on the region of the spine affected. The outcome of the condition range from deformity of the back and legs, bowel and bladder control issues, loss of control and sensation in the lower body including legs. They may be clubfeet and problems walking, from minor to wheelchair dependant. Some babies may also have hydrocephalus (extra fluid in the brain causing the head to enlarge), which may need surgery. Some developmental delays may affect some (not all) of the babies to variable degree.

     

     

     

     

    Potter's syndrome    Anencephaly    Down syndrome

     

    Hypoplastic left heart syndrome    Spina bifida

     

    Diaphragmatic Hernia    Trisomies (13,18..)